I am an RN and I am baffled at how fast this disease progresses. It is the quickest debilitating disease I know of. It is a brutal thing to have and go through. :(
If I would have this horrific disease, I would kill myself (as long as this is still possible) . I saw some of these cases on German TV and some of these people were travelling - better: were being transported - to Switzerland, because assisted suicide is illegal in Germany. In the United States, where it is relatively easy to have access to a gun, I would probably take this option. I have no idea, why ALS sufferers wait until the very natural end. Probably they are hoping for a last-minute cure, I don`t know. But it is an individual decision and I respect it of course. May Kevin rest in peace, wherever he is now!
100% agree. There is no way I would allow this disgusting perversion of nature to slowly kill me - *I* would choose a date time and place and shuffle off this mortal coil on MY terms just to throw up a massive middle finger to what ever genetic error causes this horrific cruel illness to trap people in their own bodies! NOT me, ALS
I always thought like you and I still do to an extent but the strange thing is the older you get the more you hope you don’t die yet and carry on a few more years.
His speech pattern changed dramatically from July to November. Scary really.
Absolutely heartbreaking
I am an RN and I am baffled at how fast this disease progresses. It is the quickest debilitating disease I know of.
It is a brutal thing to have and go through. :(
What an inspiration...thank you for sharing your journey x
My sincerest condolences.
You are Strong! Even though you look weak..you impress me brother, Jerry
Very few diseases are as vicious as this one. Sitting here in 2024 there is still no cure
If I would have this horrific disease, I would kill myself (as long as this is still possible) . I saw some of these cases on German TV and some of these people were travelling - better: were being transported - to Switzerland, because assisted suicide is illegal in Germany. In the United States, where it is relatively easy to have access to a gun, I would probably take this option. I have no idea, why ALS sufferers wait until the very natural end. Probably they are hoping for a last-minute cure, I don`t know. But it is an individual decision and I respect it of course. May Kevin rest in peace, wherever he is now!
100% agree. There is no way I would allow this disgusting perversion of nature to slowly kill me - *I* would choose a date time and place and shuffle off this mortal coil on MY terms just to throw up a massive middle finger to what ever genetic error causes this horrific cruel illness to trap people in their own bodies! NOT me, ALS
There is a saying eat bite but don't talk big
I always thought like you and I still do to an extent but the strange thing is the older you get the more you hope you don’t die yet and carry on a few more years.
Easier said then done . I'm newly diagnosed and I feel the same but at the same time the will to live and just exsist is strong
@@jayg-lg2ot praying for you. Stay strong. It must be so unbelievably scary to watch Kevin’s decline in the series, especially being newly diagnosed.