I can see its still effecting you. But it gets better as time passes. My memory was terrible after I came out of hospital. I'd be driving toward a junction in an area I've lived in for 35 years and I'd forget which way to go. I made a rule that everytime it happened I'd go left if allowed. That lasted a year or more. I'm 3 years out now and its improved a lot. Good luck mate. Jaimz
This LGI1 encephalitis is relatively rare (according to my neurologist). There are probably fewer than 10 people known to have it in Switzerland. And I feel very lonely because of it. That makes your publication all the more valuable. I immediately recognize myself in some of your problems (emotionality, memory, tremors, etc.). I was never tearful and I hated myself for crying in the middle of the family, seemingly over nothing. I start to realize... Thank you so much for this video!
Thank you for posting your story.
I can see its still effecting you. But it gets better as time passes. My memory was terrible after I came out of hospital. I'd be driving toward a junction in an area I've lived in for 35 years and I'd forget which way to go. I made a rule that everytime it happened I'd go left if allowed. That lasted a year or more. I'm 3 years out now and its improved a lot. Good luck mate. Jaimz
This LGI1 encephalitis is relatively rare (according to my neurologist). There are probably fewer than 10 people known to have it in Switzerland. And I feel very lonely because of it. That makes your publication all the more valuable. I immediately recognize myself in some of your problems (emotionality, memory, tremors, etc.). I was never tearful and I hated myself for crying in the middle of the family, seemingly over nothing. I start to realize...
Thank you so much for this video!
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Thank you Steve. You have done a great commitment by sharing your experiences to us which we'll benefit to our journey of similar conditions.
Thank you Steve for sharing your story.
Thanks for listening, Duncan
Thankyou Steve . This really reached home . Grateful for your sharing this it’s an insight into my young sons thoughts he struggles to share x
Very open and honest video. Wishing you well on your journey Steve, I’m just starting mine.