Living with ALS 4/22/12

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  • Опубликовано: 18 дек 2012
  • A patient's experience with ALS.

Комментарии • 43

  • @DJ-bj8ku
    @DJ-bj8ku 6 месяцев назад +5

    To be robbed of life at the height of his powers is certainly cruel. The other tragedy is off-screen but felt just as much-his wife’s grief. He was a smart, dignified man. RIP.

  • @ihatesandybeaches
    @ihatesandybeaches 10 лет назад +39

    when he cries it just tears at my heart strings RIP Kevin, God bless your soul

  • @burned_pancakes
    @burned_pancakes 4 года назад +26

    This series is heart wrenching. R.I.P. Kevin thank you for sharing such a personal story.

  • @halgordonmdfacp3246
    @halgordonmdfacp3246 Год назад +13

    He was my BEST friend at USC .
    Fraternity brother, hell raiser with me. A physical specimen !
    OD went home on June 9th, 2013.
    He was 56 . I miss him every single day.

  • @user-ls2yt1ir3d
    @user-ls2yt1ir3d 5 месяцев назад +2

    What a terrific guy to share all this do openly. Thank you.

  • @God.Almighty
    @God.Almighty 4 года назад +17

    every now and then over the years i think about this nice man and come for a visit. one thing i'd never noticed until now is how awesome his hair is for his age. at every visit i am closer to death than my last visit. there's no cheating death, the greatest equalizer. we're all headed to where this man went.

    • @killuminatikilla3235
      @killuminatikilla3235 2 года назад +2

      For real brother ethier way we are going to die. Bless him

    • @robertwilliams5618
      @robertwilliams5618 Год назад +1

      You still alive?

    • @God.Almighty
      @God.Almighty 10 месяцев назад +1

      yeah, still kicking and back to see kevin. weird how he just randomly pops into my mind.

  • @Lexyvil
    @Lexyvil 9 лет назад +23

    May you rest in peace Kevin. You fought hard as it went on and we'll keep your effort as an ambition for us to find the truth behind what's causing such a illness.

  • @naomideziel
    @naomideziel 3 года назад +8

    You can see how much he loves his family by how he is hurting when he talks about them. Nothing more cruel than taking a healthy happy family man away from his family that he holds so dearly. I can't imagine his fear or being in his position, I don't know how I came across your channel but in a way im happy I did. I was absolutely gutted to hear that you passed. Wish I could have endured this for you. Rest peacefully, Kevin. I won't forget you.

  • @ajimenez1719ify
    @ajimenez1719ify 5 лет назад +14

    My God, when he cries it makes me cry. I'm so sorry this happened. I'm sorry this disease even exists. I, myself, am dealing with something very similar and my doctors cant figure out what's the matter. It's very discouraging and scary.

  • @mackster6198
    @mackster6198 Год назад +2

    I will be praying for this good man.

  • @denisemontgomery5600
    @denisemontgomery5600 5 лет назад +10

    I just want to reach out and comfort you but as I've just read other comments, you have already passed. What a brave soul you were. God bless🙏🏻🙏🏻🙏🏻🙏🏻❤️❤️❤️

  • @valeriegriner5644
    @valeriegriner5644 2 года назад +5

    RIP, brave and beautiful soul.

  • @wandalester8624
    @wandalester8624 24 дня назад

    Kevin Strong!!! God knew every tear. Kevin's body is not hear, but his spirit is still inspiring!

  • @rnt77
    @rnt77 3 года назад +4

    There must be no worse hell on earth than ALS

  • @patrickpatel5527
    @patrickpatel5527 5 лет назад +12

    You're a hero :'( ❤ I love you man :'(

  • @takamex
    @takamex 3 месяца назад

    He contributed enormously as to what this cruel illness does to an otherwise healthy man. The pain comes from the thoughts of his family and the time they wont spent together. He did his best with valor. RIP

  • @davidkellar6732
    @davidkellar6732 5 лет назад +10

    He's a Good guy

    • @fourshore502
      @fourshore502 3 года назад +2

      ALS seems to like to go for the nicest people. perhaps there is even some sort of causality there.

  • @karthikperavelli1735
    @karthikperavelli1735 3 года назад +4

    13:01 Got me deep 😢😭....such a strong man he was...RIP

  • @Lennonlashe
    @Lennonlashe 3 года назад +1

    This video series he made hurts me to watch him suffer, terrifies me that this could potentially happen to me, but most importantly motivates me. Currently in medical school, going into my final year and this reminds me of why I went into the field of medicine. Not only to diagnose and treat, but to keep up the field of research and to never quit, or lose my sense of wonder. We owe it to people like Kevin to keep that sense of curiosity and to search for answers to bigger things that have yet to have an answer or solution. R.I.P Kevin....

  • @star.cat.
    @star.cat. Год назад

    This man was so lovely. A very handsome chap too. Love to his family x

  • @skywatcher4420
    @skywatcher4420 6 лет назад +11

    Hope Kevin is at peace ? ALS makes you more emotional at times with splutterings, laughing or crying. Bloody disease ! I hope they can find a cure.. I have had it for the last year with slightly different progression. Tick Tock down at a steady pace.
    I started with leg muscle twitchings 6/17 then not until 11/17 any physical signs. First R foot slowed then leg then legs and voice started slurring in Jan of 2018. Arms weak and struggle to wobble indoors now confined . It takes no prisoners for sure.
    Hey Ho TIANDB.. I am a Kevin also.. ( Is Autophagy the key ? ) Best luck all..

    • @doomnipple9846
      @doomnipple9846 2 года назад

      You're a hero for fighting this disease. These videos and comments make me want to stop wasting my life and make a difference in the world

  • @Gandalf17
    @Gandalf17 10 лет назад +10

    you have done such a great contribution by letting us know how the disease progress.
    I not sure but i think most ppl with ALS die during their sleep, not exactly a painful death. I think at that point you can also ask for morphine.

  • @ThomasArcher
    @ThomasArcher 3 года назад +2

    Beautiful soul, RIP.

  • @seandoyle3091
    @seandoyle3091 9 лет назад +7

    Heartbreaking!

  • @pantyflash
    @pantyflash 4 года назад

    Like, even though your motor neurons were hosed, you were totally awesome. Way to go, babe!

  • @lisacrouch8726
    @lisacrouch8726 7 лет назад +8

    all is understood now your in the loving arms of our Lord Jesus Christ, thank you for taking your precious time to make these videos , that is Love for others , its getting very rare ***** :)

  • @merson812
    @merson812 4 года назад +1

    RIP Kevin.

  • @scotties.3414
    @scotties.3414 3 года назад

    I wish I could hold you til you got better. 😔❤🙏

  • @carolsmith282
    @carolsmith282 5 лет назад

    Try taking your gabapentin at night then you won’t be so tired during the day

  • @barbarajasek6019
    @barbarajasek6019 5 лет назад +1

    Dzielny Czlowiek

  • @WECOOK1969
    @WECOOK1969 2 года назад +1

    🌹

  • @Sukijopa
    @Sukijopa Год назад +2

    My brother got ALS in 2009. He got it from a TDaP.

    • @danacaro-herman3530
      @danacaro-herman3530 7 месяцев назад

      @Sukijopa. Sadly the Covid vaccines are causing this as well

    • @danacaro-herman3530
      @danacaro-herman3530 2 месяца назад

      @Sukjopa. It seems this disease of Kevin's is being manifested aster the Covid shots.

  • @iamessence6268
    @iamessence6268 5 лет назад +1

    RIP 😳