Thank you for this interview. I'm so sure that I used to feel the same issues growing up with the lack of health. Yes... I always often thought that everyone else can and I can't. Sorry that you were so restricted. I faced limits with the disease. I sort of understood I couldn't do sport without getting swollen ankles and joint issues so I stopped. Likewise, I used to get severe tension headaches with the chocolate so I stopped eating that too. 9:25 It's so true. I've had such a difficult journey trying to get the diagnosis itself. There's a lot of fear before when you notice your body is so different from everyone else. And then you get the tragic realisation that you're not normal at all. 10:46 Zinc overdosing is that dangerous! I'll comment later on when I get a chance to continue watching the video. Bye for now, :)
that's a great point there: "I felt sick, but I've always felt sick." completely understand and relate to this 19:33hahaha, yes, you don't really get sensitised to the process of chronic liver failure. I think you just got desensitised to your liver problems and you didn't notice that you were experiencing liver failure. when I was first misdiagnosed psychiatrically, it was because everyone thought I had paranoia. I stopped eating for about 2-3 days and I just thought, "no, I'm just not feeling like eating, I'm just in a bad mood, it's nothing serious." but I was 19 and 35kg at that time. so everyone got mad at me and I had to get get to psychiatric care. it was actually so hilarious, I think they gave me every diagnosis possible. and they would change my medicines every month and I'd be getting sugar drips at the hospital at least once a week. they kept getting nurses to follow me around and I was so annoyed, they thought I had paranoia or something so I would get followed by like 2-6 nurses and they would tell me to eat food but you're physically incapable of eating! I'd just vomit it out or not have any appetite at all. in my case, my psychiatrist eventually gave up after literally every misdiagnosis possible psychiatrically and then I went to Pakistan after a failed karate lesson in which my sensei observed that I wasn't able to move in the correct energy system out put of my human body. I stabilised after about 8 months of chelation and went back to university. and I finished my second year of maths and physics bsc this 6th June 2023. you talk about transplants after around 21:00 so I am learning a lot about that through your conversation with Danny but I think I'm hoping I never have to get one! I'm sorry it was difficult for you to have to think you have to go through a transplant after seeing how difficult it was for your aunt... but looks like it went incredibly well for you! so happy for you recovering so well after the transplant :D you left the ICU so quickly, seems like your body was tired of the disease along with your soul O_O WOAH. I love biochemistry! Amazing! Great choice of study and career! :D yes, that's lovely. getting a chance to enjoy foods and be fully yourself. it's exciting to be in such a phase of post-disease cure. that's so admirable. I initially did healthcare such as pharmacy and pharmaceutical and health sciences but I've just found human stuff so gross. I didn't want to live with all the possible things that could go wrong with my body which is the result of a pharmacy degree. and I was too grossed out about being any sort of doctor. I preferred mathematics and physics because I couldn't stand to do anything related to the human body! but you're doing so wonderful by studying transplant. ha! if only I had the heart for cutting up people T_T yea, after you started talking about autopsies, I stopped watching around 31:23. Well, Victoria, I'm so happy your shared your story with us. It's been amazing to watch. All the best ahead for your future. I wish you well :)
funny you mentioned the excessive water drinking after your transplant. I drink a lot of water already, I drink between 3-4 litres of water a day and sometimes I drink a lot of water in the night as well. Must be related to the liver.
Victoria you're an inspiration. So happy for you.
Victoriaaaaaaaaaaa it's your old friend Joeeelllllll. Looking forward to finishing this one off!
Thank you for this interview. I'm so sure that I used to feel the same issues growing up with the lack of health. Yes... I always often thought that everyone else can and I can't. Sorry that you were so restricted. I faced limits with the disease. I sort of understood I couldn't do sport without getting swollen ankles and joint issues so I stopped. Likewise, I used to get severe tension headaches with the chocolate so I stopped eating that too.
9:25 It's so true. I've had such a difficult journey trying to get the diagnosis itself. There's a lot of fear before when you notice your body is so different from everyone else. And then you get the tragic realisation that you're not normal at all.
10:46 Zinc overdosing is that dangerous!
I'll comment later on when I get a chance to continue watching the video.
Bye for now, :)
that's a great point there: "I felt sick, but I've always felt sick." completely understand and relate to this 19:33hahaha, yes, you don't really get sensitised to the process of chronic liver failure. I think you just got desensitised to your liver problems and you didn't notice that you were experiencing liver failure.
when I was first misdiagnosed psychiatrically, it was because everyone thought I had paranoia. I stopped eating for about 2-3 days and I just thought, "no, I'm just not feeling like eating, I'm just in a bad mood, it's nothing serious." but I was 19 and 35kg at that time. so everyone got mad at me and I had to get get to psychiatric care. it was actually so hilarious, I think they gave me every diagnosis possible. and they would change my medicines every month and I'd be getting sugar drips at the hospital at least once a week.
they kept getting nurses to follow me around and I was so annoyed, they thought I had paranoia or something so I would get followed by like 2-6 nurses and they would tell me to eat food but you're physically incapable of eating! I'd just vomit it out or not have any appetite at all.
in my case, my psychiatrist eventually gave up after literally every misdiagnosis possible psychiatrically and then I went to Pakistan after a failed karate lesson in which my sensei observed that I wasn't able to move in the correct energy system out put of my human body.
I stabilised after about 8 months of chelation and went back to university. and I finished my second year of maths and physics bsc this 6th June 2023.
you talk about transplants after around 21:00 so I am learning a lot about that through your conversation with Danny but I think I'm hoping I never have to get one!
I'm sorry it was difficult for you to have to think you have to go through a transplant after seeing how difficult it was for your aunt... but looks like it went incredibly well for you! so happy for you recovering so well after the transplant :D you left the ICU so quickly, seems like your body was tired of the disease along with your soul O_O
WOAH. I love biochemistry! Amazing! Great choice of study and career! :D
yes, that's lovely. getting a chance to enjoy foods and be fully yourself. it's exciting to be in such a phase of post-disease cure.
that's so admirable. I initially did healthcare such as pharmacy and pharmaceutical and health sciences but I've just found human stuff so gross. I didn't want to live with all the possible things that could go wrong with my body which is the result of a pharmacy degree. and I was too grossed out about being any sort of doctor. I preferred mathematics and physics because I couldn't stand to do anything related to the human body! but you're doing so wonderful by studying transplant. ha! if only I had the heart for cutting up people T_T yea, after you started talking about autopsies, I stopped watching around 31:23.
Well, Victoria, I'm so happy your shared your story with us. It's been amazing to watch. All the best ahead for your future. I wish you well :)
funny you mentioned the excessive water drinking after your transplant. I drink a lot of water already, I drink between 3-4 litres of water a day and sometimes I drink a lot of water in the night as well. Must be related to the liver.