Caring for a Daughter with GBS - Kelli's Story

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  • Опубликовано: 1 фев 2025

Комментарии • 55

  • @ItsKDtoyouuu
    @ItsKDtoyouuu 2 года назад +8

    Wow, this brought me to tears my mother is currently going through this. It’s nice to know there’s hope because we both have ups and downs everyday.

  • @johnmike4110
    @johnmike4110 Год назад +1

    You're a wonderful amazing mom, your dedication and patience are outstanding. my relative is going through GBS nowadays and am trying to hear stories about it. So happy for you and your daughter.

  • @mycolleeny
    @mycolleeny 4 года назад +6

    Wow, what a brave woman. As a mother , we rarely look after ourselves, and there is nothing we wouldn’t do for our children. You are a remarkable role model for caregiver. Thank you for sharing your story.

    • @gbs-cidpcanada5886
      @gbs-cidpcanada5886  4 года назад +1

      It's so true! One of our favourite things about Kelli's story is that every mother and father can watch this and completely empathize with what she went through. We'd do anything to make sure our babies are safe, and seeing GBS through Kelli's eyes made all of us reflect on what we'd do if we were in her shoes. Thank you for commenting and supporting our videos :)

  • @HeshKariyawasam
    @HeshKariyawasam 12 дней назад

    I too got guillainbarre in 2022.. when I was 19.. now I'm 95% ok but there's still a little footdrop.. it is also getting well day by day ❤

  • @germaine734
    @germaine734 4 года назад +5

    Great video. Thank you for sharing. So glad she has recovered. Prayerful hugs

    • @gbs-cidpcanada5886
      @gbs-cidpcanada5886  4 года назад

      Yes, Kelli's daughter has made a full recovery! We love the photo of the two of them at the end, post-recovery, where they're hugging each other and smiling so brightly. Kelli says it best at the end: "everything will be ok!"

  • @misstornton3848
    @misstornton3848 Год назад

    Thank you for sharing, it was heart breaking to watch. God bless them

  • @zaraengland4787
    @zaraengland4787 Год назад

    I am in the UK I had maternal sepsis during sons birthday which led onto me having GBS and I died and they brought me back. I still struggle to this date 8 years later as I was not rehabilitated properly for first year no care given. Thank you for sharing your story I hope your daughter has a wonderful life now again x

  • @tiakirk2063
    @tiakirk2063 2 года назад +4

    currently going through this, & i'm crying tears like crazy!!!! She is such an inspiration.

    • @user-hm4hx3vl5k
      @user-hm4hx3vl5k 2 года назад

      I've been bedridden now for almost one year with bilateral foot drop. I've done much research on gbs. Begin an anti-inflammatory diet asap. Blueberries, Extra Virgin Olive Oil(oleic acid was found in abundance in the myelin Sheath)...

    • @tiakirk2063
      @tiakirk2063 2 года назад

      ​@@user-hm4hx3vl5k Praying for you, i pray everything gets better for you. Thanks for telling me this. Will definitely look into this and start that diet.

    • @cynthiakenth
      @cynthiakenth 2 года назад

      I'm so sorry to hear. Eight years in and I'm still recovering. One day at a time. Keep moving no matter how slow or little movement you make. It's one of the hardest fights to overcome and most won't understand but you've got this! Don't give up.

    • @tiakirk2063
      @tiakirk2063 2 года назад

      @@cynthiakenth Thank you so much Cynthia for this message it means alot. I Pray for complete healing in your life. i came a long way even though some days i feel like i haven't. My faith in GOD and my Daughter and Family give me the motivation too keep pushing harder even when it hurts.

    • @doriswalsh3929
      @doriswalsh3929 2 года назад

      @@tiakirk2063 how old are u my sister is 44 who has this awful strange disease 🤧

  • @garythomas4431
    @garythomas4431 3 года назад +5

    I had GBS in 2008. Very difficult time. It effected Mt arms and legs. I was lucky to have a knowledgeable GP that figured it out soon. Luckily within a few my GBS diminished and has not returned. GBS is serious business.

  • @opheliabriggs348
    @opheliabriggs348 Год назад

    Thank you I needed this as a care giver. I’m going through this now with my husband GBS he’s still in the hospital it’s been 37 days as of today.

    • @michellesmoments
      @michellesmoments Год назад

      I'm taking care of my nephew who is 43. He's single with no kids. Hope your husband is doing better. My nephew can finally use a walker after being diagnosed 2 months ago.

  • @lucyadelle2009
    @lucyadelle2009 11 месяцев назад

    It's really a relief to see her fully functional again 😊

  • @deboraholler2211
    @deboraholler2211 2 года назад +2

    I am also suffering from GBS. I understand everything that you and your daughter are going through. It is horrendous.

  • @doriswalsh3929
    @doriswalsh3929 2 года назад +1

    Hi my twin sister 🤣 had this for over 12 months prayers and thoughts to your family 🥰

  • @Nosnow24
    @Nosnow24 Год назад

    I was the mom in 2015. My daughter developed GBS after graduating college. It was devastating.

  • @annalagee2519
    @annalagee2519 4 года назад +10

    My name Anbalagee I had GBS in 2016 very severe one known as Aman it is already 4 1/2 years I still HV numbness footdrop no balance yet my pain n suffering during my hospital stay unbearable I m a very active person REAL ESTATE AGENT Till 2day I m praying to get 100% well hope GOD hear my prayers

    • @shallugarg3443
      @shallugarg3443 Год назад

      were you on a ventilator and if yes how long please tell

  • @kevinbaxter7390
    @kevinbaxter7390 4 года назад +3

    I have wotched numerous videos and posts on GBS /CIDP etc.
    And 5yrs on still fighting and learning, it's absolutely hell, physically mentally socially financially and emotionally and still does, recently another diagnosis off MMNCB.
    Muscle atrophy, balance issues, essential tremor both hands, foot drop.
    And those weird dreams wow. Get all the help you can pester doctors Neurologists for answers otherwise you get left behind.
    Was at the time 50yrs old working, played sports Rugby cycling gym walking, always have eaten clean. So it literally happens to anyone regardless. I went to three hospitals in my time, and sorry to say not all staff was caring, probably their lack of knowledge on how to help me.
    Our house living room was turned into a ward, hospital bed commode walkers wheelchair rota stands.
    Best wishes to all suffering with this 🙏♿🇬🇧.

    • @catalayatern2251
      @catalayatern2251 3 года назад

      What kind of questions should you ask

    • @kevinbaxter7390
      @kevinbaxter7390 3 года назад

      @@catalayatern2251 ask about IVIG treatment the short term benefits of it! Personally steer clear of steroids meds.
      If you in uk 🇬🇧 ask about physio
      Occupational health visits.

    • @catalayatern2251
      @catalayatern2251 3 года назад

      @@kevinbaxter7390 Thank you!! In the U.S. Its for my dear mom she's been in the hospital too long (7m) she seems to be worsening in condition. There's so many machines hooked she's in ICU🤧 people getting better on RUclips there has to be a way🙏

    • @kevinbaxter7390
      @kevinbaxter7390 3 года назад +1

      @@catalayatern2251 please don’t go by other GBS sufferers
      Literally every one is different,some people get better off in months or two yrs or more.
      Meself 5yrs 3m
      Need physio while bed bound a must to get muscles 💪🏻 moving
      Agree you tube is helpful but just tell your mum keep positive 🙏🏴󠁧󠁢󠁥󠁮󠁧󠁿

    • @karenlovesforrest1966
      @karenlovesforrest1966 3 года назад +1

      Kevin did you fully recover? I have it and I think I'm as good as I'm going to get. I can walk but my feet are awful still. Balance is terrible. Hands and feet are numb. I really thought I would fully recover and it's been like 3 yrs now. Just curious.

  • @DorisWalsh-n3j
    @DorisWalsh-n3j Год назад

    Its a long year and almost 20 months for my sister. Bless all the other familys.

  • @DorisWalsh-n3j
    @DorisWalsh-n3j Год назад

    Awww prayers 🤲🙏 its awful but keep the postive vibe. My twin still has this today she is still bedridden and cant work but she can speak

  • @lg3053
    @lg3053 2 года назад

    Great story. Thanks for sharing..

  • @wilmaperry4045
    @wilmaperry4045 2 года назад +2

    I got GUILLAIN-Barre Syndrome and Transverse Myelitis from the flu shot.. I got it in Oct 7th, 2015, I’m still in a wheelchair but all my neurologists say I’m one of the
    20% who survive!!

  • @chloegoodrich5315
    @chloegoodrich5315 10 месяцев назад

    Im currently battling Guillian barre and l was so moved by your daughters story 🩷 she’s amazing!

  • @prayerstojesus
    @prayerstojesus 4 года назад +2

    Got my attack of the in April 17 , 2 months ICU plasma perricess then in another Hosp for recovery now home recovering can't do sit to stand but walking with support your story is just like mine but only a few friends and wife by my side and the main doctor was Christ he saved me this is my testimony

    • @gbs-cidpcanada5886
      @gbs-cidpcanada5886  4 года назад +1

      You must be glad to be home now, and it's great to hear that you had a partner and some friends along to help support your recovery. We all joke that GBS should stand for Getting Better Slowly. It's a long process, but hang in there :)

    • @prayerstojesus
      @prayerstojesus 4 года назад +1

      @@gbs-cidpcanada5886 yes I really appreciate you and your husband you guys rock I could not talk for 7 months because of trechyastromy so could not thank them but now I thank them and you guys for taking care gbs in another India is rare we too who get it are rare I mean one in a million but the hospitals here took us for a ride don't blame them they are there to make most money they made a vegetable out of me but only lord blessings saved me I thank him for his grace and blessings on all gbs guys thank u for reading my comment god bless you all take care

    • @gbs-cidpcanada5886
      @gbs-cidpcanada5886  4 года назад +1

      @@prayerstojesus thank you for sharing your story with us. I know it must have been a really difficult time in your life. I bet you've learned things about yourself that you never knew before, and you've found strength that you didn't know existed. Stay strong, continue to share your story, and be patient with yourself. You're a warrior! ❤️

    • @prayerstojesus
      @prayerstojesus 4 года назад

      @@gbs-cidpcanada5886 thanks you dear take care your doll to is a fighter be with her always in this journey of life and do thank god for his blessings and grace

  • @giftmziza8409
    @giftmziza8409 3 года назад +2

    My Husband is in ICU n on ventilator ryt now fighting this horrible disease, he is paraysed from neck down ..please advice as a caregiver how do I encourage my husband except prayers on which am doing everyday because he is awake but full of emotions.

    • @shallugarg3443
      @shallugarg3443 Год назад

      hello mam could you please tell has your husband recoverd and how long was he on a ventilator

  • @adrianzztv9815
    @adrianzztv9815 Год назад

    Good morning my niece suppering of GBS too right now she confined cuase of her illness and she's in comma sleep 3weeks ago until she's not wake up we need help she needs medication the vails can't afford it's too expensive 19, k fer vails she needs 13pcs. Please us🙏🙏🙏

  • @zachliamvaldez9232
    @zachliamvaldez9232 3 года назад +1

    hi everyone my uncle sufferring right now a GBS , we are FIlipino, how we can deal this disease, i hope you can help us

    • @user-hm4hx3vl5k
      @user-hm4hx3vl5k 2 года назад

      Increase Extra virgin Olive Oil on salads, in soups, etc..Eat an anti-inflammatory diet.

    • @user-hm4hx3vl5k
      @user-hm4hx3vl5k 2 года назад

      The myelin sheath is a fatty substance. Oleic Acid was found in abundance in the Myelin.

  • @doriswalsh3929
    @doriswalsh3929 2 года назад +1

    I ment she still has this today