I healed my fibromyalgia with the lion diet in two weeks. This diet helps release all inflammation in the body and with it all fibromyalgia painful symptoms disappear at the same time. I was diagnosed a couple of months ago, suffered from it all my life and got unbearable the last 8 years. I was bedridden, my knees, hands and neck were stiff, was waking up inflamed like a balloon, sleeping was disrupted by pain, needed to move from one side to the other very slowly and carefully. I was feeling like a 90 year old with a bad case of rheumatoid arthritis. Also frequent urination, headaches, migraines with aura, brain fog, poor concentration, muscle loss, IBS, in the end I could not even open the fridge door. Getting out of bed was like I was being poked by thousands of needles in my feet and legs. Also with movement my joints would feel slashed by little knives moving fast all over like Christmas lights. Just washing the dishes was a nightmare. All that when I could heal years ago and saved me from chronic pain and fatigue. How are you feeling now? Btw, watch this video called "9 Years in a Wheelchair Now I'm Free" on the Carnivore Today channel here on RUclips.
@@evegreen7604 Go on a lion diet for two months and you'll get rid of all fibromyalgia symptoms including the joint and muscle pain, restless legs, brain fog, headaches etc. Look it up Dr. Anthony Chaffee
We’re believing God for a miracle he’s going to heal. Let us learn and grow from having this, no one knows the pain and and shoulder pain and such, but we are praying and continuing to take care of our health, by nutrition, and strength
As someone with Fibromyalgia, chronic fatigue syndrome, Bipolar spectrum disorder and a chronic back injury, I sleep with my back propped up on a pile of pillows (half sitting and half laying). on the bad days I lay with a pillow under my legs and more against or under the side of my body and the leg that is hurting the most. I guess what I'm saying is have lots of pillows/body support that you can adjust to help the pain ease. Don't be afraid to reorganise the pillows or your bedding to support your needs and wiggle about as much as you need to. I sleep in parts of 2 hours maximum duration and try to get 5 repeats per 24 hour cycle. I hope and pray that we are all able to get the sleep we need to heal/restore our bodies as much as possible. Typing this in the middle of a pain flare-up so forgive if I've made obvious mistakes. Blessings from South Eastern Australia, Dot
@@nicole77177 It never felt worse for doing it for me, then again rather or not your sleep on your side or back likely change it. You could be in the middle of a big flare up, or you might have pain near the area due to too much pressure being on specific trigger point… Sometimes pain feels like one specific body part is hurting, while originating from another area entirely. Maybe try adjusting your elevation of various body parts/trying out pillows that or either ore or less firm then what you typically go with.
I have had fibromyalgia for 30 years. I have terrible osteoarthritis and just had a total knee replacement. This was the biggest mistake I have ever made. I had to give back under anesthesia for a procedure to try and give me a better range of motion. All that extra pain for nothing. My whole body is on fire. I barely got to 110 bend and it is suppose to be 120-130. My insurance would not pay for anymore PT. My doctor thinks I am not trying and have no pain tolerance to get better. I wake up after tossing and turning and end up sleeping on my stomach. I just don't know how to explain the pain and everything else to the surgeon. I gave up and cancelled my last appointment. Good luck to all. I hope you do better than I am.❤❤❤
I don’t know if this will be any help, but my daughter had a minor trip, five years ago, and a week later she had such severe pain in one knee, she has not been able to weight-bear on it since. Eventually, about six months later, it was diagnosed as complex, regional pain syndrome (CRPS). An orthopaedic surgeon told her that because she’d had M.E./CFS for 25 years at that point, and her mother (me) had fibromyalgia, She would have a propensity for developing CRPS, especially with traumatic experiences in her past having primed her system. CRPS often develops postsurgically, so it might be worth your while looking into it, because there might be treatments that can help you. Good luck!😊
I sometimes don't sleep for 24 to 38 hours because I have to always be distracting myself from the pain. I hate gabapentin and I'm allergic to Lyrica and nothing shuts off the pain anyway. When I am in a fibro flare up I just have to wait until my brain makes me pass out because as long as I am awake my body is spasming and aching in pain not letting me fall asleep. It's horrible.
It’s a long journey trying to figure it out. And all the things we have to do to ease the pain. Here are some things I have found helps me- maybe something here can give you some relief too. 🤞🏻 Magnesium at night, melatonin too plus a warm bath with salts and aromatherapy. I use Tara Spa herbal ease pillows too warm them and then have them on my stomach it brings the blood to the heat source and relaxes the body and mind. Breath work and meditative music sometimes helps. Good luck.
I fall asleep at 1:30am and wake up at 3-4:30 (not being able to fall back asleep. In the morning I cannot wake up at all. It’s a nightmare 😢 I’m self employed and it’s really starting to affect me now for early appointments. (I’ve forgotten appointments, I’m late 😭 I hate fibromyalgia
I think a lot of our problems come from the guts. Try to change your diet. Eating one meal a day and taking vitamin d changed a lot for me. Vegetables and fruits, low carb and a lot of movement. If I eat too late , I feel much more pain and sleep disturbances.
The pillows under your head are the most important thing so that your neck is in a neutral position while sleeping. The secret is to use 2 thin pillows with a folded bath towel underneath that you can scrunch up a little under your neck cavity for extra support.
My mother works crazy hard in the cleaning business back breaking work , she has fibromyalgia and arthritis her best help is medical Marijuana but in edible form like gummy THC she gets relief of 16 hours after every two gummy’s if anyone sees this I hope it helps 🙏🏽 also it helps sleeps peacefully during the night my mother says she wakes up feeling good
I was just reading up on this. I was sent a link from a specialist at a medical school for rare cases. He sent me a link to a dr who specializes in fibromyalgia and they specifically noted that gummies are the best form if you were to use a med card. When using it for pain relief, you aren't trying to achieve a high, so that gives you the best form of pain relief over a long period of time. Rather than smoking where you just get an immediate head high and the pain relief effects go away just as quickly. He also noted to look for ones higher on CBD than THC again to achieve pain relief rather than the high effects of THC. I actually found a lot of their information incredibly eye opening. One of the major things they say to do is to avoid pushing yourself too hard when you have a good day, because that will come back to bite you and cause more pain. I know personally that's incredibly hard advice to follow because there's always more to do
I basically “built” my bedding from scratch. Layering it with different sponges and toppers. I also sleep with a C-shaped pillow; they are designed as a pregnancy pillow but it’s great for sleeping with fibro. Tho I still have to reposition often. I also have various medications for pain but it’s still there, always humming in the background.
@@Andpistolsgirli know what they mean...and sometimes you THINK you are relaxed then you really think about it and realize you are rigid, tense and jaw is clenched
I too suffer…& I do mean suffer at times with fibromyalgia…..I can’t tell you how many different pillows I’ve gone thru over the years till I finally found one which seems to work for the most part…I also have chronic sinus problems. I didn’t think about the pillow between my knees… or I had forgotten about it…but will definitely try it. I’m as tired when I get up as I was when I laid down…& sleep is very sporadic. And it’s painful all nite…& day. Hurts and burns like certain areas all over feels like liquid fire being shot thru my body. I feel for anyone who has this.
As a fibromyalgia side sleeper that also has osteoarthritis and bone spurring also now in my hips, I also take a muscle relaxer and anti anxiety prescription to help me sleep. Have had both knees and one shoulder replaced and now hip spurring is getting bad and even with an adjustable bed and pillows, I have to change to another side off and on during the night, but wake up and can barely walk now, as I have had sciatica for 15 months at this point. It's wearing me down.
Be aware those meds especially the anti anxiety deplete nutrients that help ease pain naturally and especially anti anxiety meds cause mental deterioration if taken like that regularly.
I too have sever sciatica both hips right worse. Going to physical therapy now, stay away from sugar. No relief yet, but they sy to stretch, it's painful. Wish u healing soon
The worst part of my pain is that my arms and hands are a big reason why sleeping is hard. If im on my side, i can't bend my arm, or it'll go numb. And if im on my back, I have to make an effort to keep my arms from going above my head and going numb. I do use the pillow for both ways of sleeping already too
PLEASE try gentle Qigong. Do a bit every day, up to the pain, not through it; if it hurts too much, back off a bit, but keep moving, if the pain is bearable, keep moving, it gets better! Many instructors on RUclips, but look for gentle - Qigong with Kseny, YoQi with Marisa, QiYoga with LuChin ... it helps, it works, it also helps with sleep. BEST OF LUCK!
I do these things - esp laying on your back and put a pillow down at your knees. The hard thing is that I move so much (legs mainly) that I have a phone arm hold my phone above me so I can fall asleep to RUclips or a movie. This works well because I focus on the media and let myself dift off when I can. Although, I still have nights (last night actually) that I'm up till 5am and there isn't a thing I can do to help myself. Bottom line - fm is a struggle in everything you do each day. Everything.
Living with fibro for about 35 yrs now. I’ve been sleeping in the first position for many of those years. This year we bought an adjustable air numbers bed. Best money ever spent! It doesn’t fix the problem, but I do get more relief.
Wow. This is amazing. I do sleep this way, but I can’t have a pillow in between my knees. So strange laying down or sleeping on my side is one of the few ways I can get out of pain for a little bit. Thank you so very much. I think this helped a lot of people and made us feel less alone.
im 15 and I have been having all the fibromyalgia symptoms for months (if not years). today I went to the doctor to talk about these symptoms and he just laughed it off making fun of me.
I ‘m so sorry that your doctor did that like Roxy said change your Dr right away my family has tell me I don’t look sick if only for one day they could be in my shoes
I have found this to be very useful. Been doing this for years. I did get a pillow that is a better support for my neck that has been the best investment I’m ever done.
I sleep on my side with a pillow between my legs, one pillow underneath my upperarm/arm pit and when its a really bad day a small pillow beneath my upper hand to relax my wrist. And wear comfortable ear buds and sleep is a lot better that way.
My best sleep happens in a semi upright position, in a recliner. I haven’t been able to sleep comfortably in a bed for the past 15 years, tho I have tried many times. I will wake every 15-30 mins laying in our bed & believe me, we have tried a number of beds, water, sleep #, soft, medium, temprapedic w/cooling gel & our most recent, which I can’t even remember the name of. I wished we had spent the extra $1000. to have the dbl reclining function(which makes it a king size bed) but than I wouldn’t bother my husband when I move around. LOL. Next time, I guess. 😅
It’s the same for me. I’ve been suffering with fibromyalgia for 20+ years with no relief in sight. I’ve tried many medications and either they don’t work or I’m allergic to them, muscle relaxers don’t do anything for me and even my anxiety medication doesn’t help me get any sleep. It’s like being in a living hell.
I use a pregnancy pillow and other pillows to keep it in place. I have put railing on both sides to keep everything from falling off. I have to prop up both my knees and elbows. My bed looks like a toddler having a sleepover and building a fort.
@@denisepolley7389 There is nothing I can do to make it look decent no matter how matching the colours are. I hate using my recliner because I need pillows that keep falling off. Yet I keep getting pains just from laying there. Pains that runners get from running....
I have to make a mountain with a large blanket, and place in ON My Pillow...then when I lay down I take the Blanket and curve to totally support my jaw, my head. I use it to support my arms, wrists and hands...then I use pillows AND Extra blankets to curve around my body to cusion every part of me and between my legs. I totally understand that Sleep is a Mindfield. I wake up like every 20 to 30 minutes to RE Adjust. I feel like a Princess laying on a Pea....if ONE Thing is out of order for me, it causes pain and then I have to RE Adjust all over again. Even if one tiny bump is on the sheet under me, it will TOTALLY Cause so much pain I want to cry. Wow....the chat here "GETS IT" And so does the person doing this video
God, I do all these things, been diagnosed with fibromyalgia, yet listening to him talk about it just hits me like it’s finally real to me, I live with fibromyalgia
For past 6 years ... The electric recliner is the knly wash I can sleep!, with two small side pillows snuggled both hips... Absolutely waking up with no trouble, no issues. I cannot sleep in the bed!🤷 Movement while sleeping in a bed causes too much pain; I must remain stationary... Do what works for you!
If you don’t sleep well, try a “yoga nidra” relaxation (RUclips) the next day. Or you can do the yoga nidra before bed. Yoga nidra is profoundly relaxing & healing.❤️It quiets the busy mind.
The only comfortable way for me to sleep is on my belly but even then I have to switch sides bc I've yet to find a pillow that doesn't kill my neck. It's wonderful whenever I'm really hurting and need to get up for the toilet or something, that's basically the only time I'm about to cry from frustration
I did all these thinks, but pain was to high. Within the last 8 months I’ve been taking magnesium glycinate at night after soaking in epsom salts. TOTAL difference. (I also take magnesium threonate in the morning). I rarely have a bad night anymore after20 years.
It takes a lot to figure it out and you can’t give up, I’m using the same and melatonin. As well as an herbal ease pillow from Tara Spa Therapy I warm it and put it on my stomach it relaxes the body and mind, which gives a better quality of sleep restoration. Warm magnesium baths help a lot! Good tips you’ve shared
I have Fibromyalgia. I sleep on my side my hip hurt to the point i can't walk. Sleep on my back my low back hurts to even move any part of my body. I am going to try the pillow thing and see.
My hips are giving me much pain. I can't sleep on my back. I bought a mattress topper but it's not fixed the problem. I will invest in leg pillow. Failing that I may have to sever my legs! The discomfort is real. Wishing you all a good night's rest!
I have fibro and have often found I HAVE to sleep on my side or stomach. As a nurse I do have one critique: sleeping with pillows under your knees for long amounts of time could cause DVT (a big ass clot) that could dislodge and cause a heart attack or stroke. Lifting the feet and calves is fine, but make sure to not stuff the pillows under your knees where there is a lot of pressure that could slow blood flow.
I also have fibromyalgia, and have not had a decent night's sleep in a long time , I had a hip replacement 2 years ago I also had a right knee replacement, 3 months ago , now I have to go back into hospital, to get a manipulation as I can't bend .my knee I also have , osteoarthritis, in my left hip and left knee , I have osteoporosis in my spine ,with 3 denenrative disc , spondylosis in my neck and bottom of my spine I've got ,i'am on all sorts of medication for different reasons but all I want and all I ask for is a decent night's sleep . Xxxx
I've had fibromyalgia since the late 80s. It was diagnosed finally 2010. 2011 I found a grassroots treatment once a day for the rest of my life it's called LDN. It's compounded medicine and it has helped did not cure me but it has helped
I use a pregnancy pillow, I've put it "upside-down" so I can adjust my pillow-pile to side-sleep or back-sleep, side-sleep using two pillows on top of each other and back-sleep with one of the pillows supporting my upper back. I put my legs on top of the pregnancy pillow while sleeping on my back and between my legs when side-sleeping. I still wake up when I have to turn because sleeping too long in one position will start being painful after a while. Side-sleep puts pressure on my hip, thigh and shoulder and back-sleeping makes my neck hurt. I can't sleep on my back without having my head turnt to the side. Sleeping partially on my stomach can work sometimes but since I've gained a lot of weight due to emotional eating and not being able to move enough due to pain and exhaustion it's become increasingly uncomfortable because my breasts have become too big and can't handle the pressure... I'd love to be able to sleep in one of those floating therapy devices...
You're right, lying on back with pillow under knees works great for my back for about a minute before the occipital neuralgia kicks in from lying on my back with head on low pillow. Must move quickly before that burning pain spreads up back of scalp and triggers the migraine problem.
I can't sleep. I have both kinds of insomnia because of Fibromyalga. I've had 3 hours of sleep in 4 days. I'm so exhausted. I'm in a second study because my Fibromyalga score is already 91😢
100%! Personally, recently buying an Endy mattress has helped. I’m still in pain throughout the day, but I can actually sleep a bit better at night now.
The fetal position with pillow between legs is my go-to, I can’t sleep without that extra pillow. Also got a mattress from ikea for around $300 that’s so surprisingly firm and comfy, nice pillows too.
Because of Fibro and ankolosing spondylitis I has to end up going on disability because of the all over pain and over sensitivity to cold or hot,skin burning,every muscle and tendon hurts to even put any pressure on any of them.The sleep thing is another.Rightside leftside wake up from my back feeling like I have had a bad fall and fell on my back.I worked night shift for 18 yrs so that don't help.Does anyone else have periods of sensitivity to light even on a bright cloudy day or go into a business like Walmart and get dizzy and very fatigued .And also I heard a lot of people with fibro have stomach issues.
I'm interested - now you have AS, why do you keep using the fibromyalgia diagnosis? Is it because some of your symptoms can only be described as fibro? My understanding is fibro is a diagnosis of exclusion, so once someone figures out your have spondy, fibro is no longer relevant. I'm going through the same thing myself. Love to hear your thoughts
I suffer from Polymyalgia Rheumatica & Rheumatoid Arthritis & various spinal issues & a displaced hip. I sleep with 4 pillows sometimes 5 to stabilize me while I sleep otherwise I find I either cant get off the bed or I wake up with really bad headaches & body pain. I always sleep with a pillow between my legs so I don't get knee knock & hip pain during my sleep cycle & I always have a fan on for white noise, but also to keep the air moving around me,
Oh thank god - thanks so much Im taking amitriptyline 50mg for migraine prevention and i wake up 10 times a night regardless of this dose....sleep is nice - i also have to have a lot of pillows because i have GORD
I sleep deep a lot but I seem to get no benefit from it at all,I’m always in pain,just trying to get through the day.I’m losing hope trying to stay in this world,everyone else seems to have a reason.more pain isn’t enough for me
I sleep like that every night and it's the only way I can sleep but I have about 10 pillows and memory foam cushions too and I'm still in agony but it does help the pressure.
That’s exactly what I do. I can’t sleep without my pillows. I wake up at least every hour to two hours in pain. I have to get up and stretch and then go back and lay down.
i always put pillows under my legs just like when he lay down since i was a kid because I can't sleep at night without it and every morning I get severe headaches, body pain and i hate eating breakfast. now I'm an adult i still put pillows under and drinking coffee every morning was the only remedy for my morning headaches and bring my appetite for breakfast but the problem is after that it'll make me so sleepy again and need a little nap to get function again and if ever I can't take a nap, it'll be over after 3 hrs fighting the urge to sleep then it'll be normal for me to function again 😢
Does this apply to those with female body structure too? I find my hips react differently and create a curve in my spine when I try that side position.
I have fibromyalgia and chronic fatigue, but I also have insomnia and have been taking medication to sleep for years. Otherwise, I don’t think I would sleep at all.
Hi everyone. I have had fibro since my 40s. Im loaded with arthritis and bone spurs...i have epstein barr syndrome, Hashimotos, pulmonary hypertension and my nightmare.. sleep apnea. So on top of trying to get comfy in bed, i get to wear a mask!
I have to sleep on my back, if I don't I always wake up with a stiff back or a pulled muscle or something. I have a very good mattress and pillow as well.
I have fibromyalgia and I know sleeping flat is good for me but i have bad acids reflux so have to sleep with 4 pillows practically sitting up it hurts but I either chose the fibro pain or sickness from the acid
Im still not sure I have it but I already used those technics to get a better sleep when I have a “Flare up” , so it’s another thing that make me think it can be that. Do you have any suggestions for the shoulders, elbow, wrists ? Shoulders and neck are to me the difficult to relax..
Unfortunately for me I have a sleep disorder that causes the opposite of the paralysis most popular experience in their sleep. I aggressively move around construction through the night. I also get restless leg if I sleep on my back. Stomach tends to be the only position I can fall asleep in which causes its own problems
the pillows between the knees or under the knees is a life saver.
I have fibromyalgia and sleep is such a big problem
I healed my fibromyalgia with the lion diet in two weeks. This diet helps release all inflammation in the body and with it all fibromyalgia painful symptoms disappear at the same time.
I was diagnosed a couple of months ago, suffered from it all my life and got unbearable the last 8 years. I was bedridden, my knees, hands and neck were stiff, was waking up inflamed like a balloon, sleeping was disrupted by pain, needed to move from one side to the other very slowly and carefully. I was feeling like a 90 year old with a bad case of rheumatoid arthritis. Also frequent urination, headaches, migraines with aura, brain fog, poor concentration, muscle loss, IBS, in the end I could not even open the fridge door.
Getting out of bed was like I was being poked by thousands of needles in my feet and legs. Also with movement my joints would feel slashed by little knives moving fast all over like Christmas lights. Just washing the dishes was a nightmare.
All that when I could heal years ago and saved me from chronic pain and fatigue.
How are you feeling now?
Btw, watch this video called "9 Years in a Wheelchair Now I'm Free" on the Carnivore Today channel here on RUclips.
Promethazine helps i take 5 a day and 9 gabapentin and medical cannabis those medications 3 saved my life
How are your sleep problem
@@evegreen7604 Go on a lion diet for two months and you'll get rid of all fibromyalgia symptoms including the joint and muscle pain, restless legs, brain fog, headaches etc.
Look it up Dr. Anthony Chaffee
Hey me too 🤓
We’re believing God for a miracle he’s going to heal. Let us learn and grow from having this, no one knows the pain and and shoulder pain and such, but we are praying and continuing to take care of our health, by nutrition, and strength
On your back, but propped up on pillow shoulders and head.
ruclips.net/video/JjsuuTMZFfg/видео.html&ab_channel=KenDBerryMD
Amen
As someone with Fibromyalgia, chronic fatigue syndrome, Bipolar spectrum disorder and a chronic back injury, I sleep with my back propped up on a pile of pillows (half sitting and half laying). on the bad days I lay with a pillow under my legs and more against or under the side of my body and the leg that is hurting the most. I guess what I'm saying is have lots of pillows/body support that you can adjust to help the pain ease. Don't be afraid to reorganise the pillows or your bedding to support your needs and wiggle about as much as you need to. I sleep in parts of 2 hours maximum duration and try to get 5 repeats per 24 hour cycle.
I hope and pray that we are all able to get the sleep we need to heal/restore our bodies as much as possible. Typing this in the middle of a pain flare-up so forgive if I've made obvious mistakes. Blessings from South Eastern Australia, Dot
As someone with Ehlers Danlos, Fibromyalgia, dysautonomia and Epilepsy thank you.
My heart with you from Libya... a someone with fibromyalgia
💜🙏💜...🇬🇧
Try keto or carnivore it's been helpful
@@whothewhatification I’m a vegan but I could try keto
As soon as you said muscle fibres can switch off...."YOU UNDERSTAND"!!!😮😂❤
I’ve been doing the leg pillow thing for ages, sounds small but has helped with a massive chunk of my sleep related pain.
i’ve just started doing it, for you was pain normal the first few days? the pain in my legs and back feels worse
@@nicole77177 It never felt worse for doing it for me, then again rather or not your sleep on your side or back likely change it.
You could be in the middle of a big flare up, or you might have pain near the area due to too much pressure being on specific trigger point… Sometimes pain feels like one specific body part is hurting, while originating from another area entirely. Maybe try adjusting your elevation of various body parts/trying out pillows that or either ore or less firm then what you typically go with.
@@qs-ii1872 thank you this really helped, i just found out i have fibromyalgia and i have absolutely no idea what do to
Same here. The pillow has been helping a lot.
I started doing the pillow thing when I was 38 and had to have a hip replacement. It helps with 2 problems.
I have had fibromyalgia for 30 years. I have terrible osteoarthritis and just had a total knee replacement. This was the biggest mistake I have ever made. I had to give back under anesthesia for a procedure to try and give me a better range of motion. All that extra pain for nothing. My whole body is on fire. I barely got to 110 bend and it is suppose to be 120-130. My insurance would not pay for anymore PT. My doctor thinks I am not trying and have no pain tolerance to get better. I wake up after tossing and turning and end up sleeping on my stomach. I just don't know how to explain the pain and everything else to the surgeon. I gave up and cancelled my last appointment. Good luck to all. I hope you do better than I am.❤❤❤
I don’t know if this will be any help, but my daughter had a minor trip, five years ago, and a week later she had such severe pain in one knee, she has not been able to weight-bear on it since. Eventually, about six months later, it was diagnosed as complex, regional pain syndrome (CRPS).
An orthopaedic surgeon told her that because she’d had M.E./CFS for 25 years at that point, and her mother (me) had fibromyalgia, She would have a propensity for developing CRPS, especially with traumatic experiences in her past having primed her system.
CRPS often develops postsurgically, so it might be worth your while looking into it, because there might be treatments that can help you.
Good luck!😊
I sometimes don't sleep for 24 to 38 hours because I have to always be distracting myself from the pain. I hate gabapentin and I'm allergic to Lyrica and nothing shuts off the pain anyway. When I am in a fibro flare up I just have to wait until my brain makes me pass out because as long as I am awake my body is spasming and aching in pain not letting me fall asleep. It's horrible.
It’s a long journey trying to figure it out. And all the things we have to do to ease the pain. Here are some things I have found helps me- maybe something here can give you some relief too. 🤞🏻 Magnesium at night, melatonin too plus a warm bath with salts and aromatherapy. I use Tara Spa herbal ease pillows too warm them and then have them on my stomach it brings the blood to the heat source and relaxes the body and mind. Breath work and meditative music sometimes helps. Good luck.
I fall asleep at 1:30am and wake up at 3-4:30 (not being able to fall back asleep. In the morning I cannot wake up at all. It’s a nightmare 😢 I’m self employed and it’s really starting to affect me now for early appointments. (I’ve forgotten appointments, I’m late 😭 I hate fibromyalgia
That’s sounds just like my life, except I’m retired. I feel for you , it’s hard.
I think a lot of our problems come from the guts. Try to change your diet. Eating one meal a day and taking vitamin d changed a lot for me. Vegetables and fruits, low carb and a lot of movement. If I eat too late , I feel much more pain and sleep disturbances.
The pillows under your head are the most important thing so that your neck is in a neutral position while sleeping.
The secret is to use 2 thin pillows with a folded bath towel underneath that you can scrunch up a little under your neck cavity for extra support.
My mother works crazy hard in the cleaning business back breaking work , she has fibromyalgia and arthritis her best help is medical Marijuana but in edible form like gummy THC she gets relief of 16 hours after every two gummy’s if anyone sees this I hope it helps 🙏🏽 also it helps sleeps peacefully during the night my mother says she wakes up feeling good
I was just reading up on this. I was sent a link from a specialist at a medical school for rare cases. He sent me a link to a dr who specializes in fibromyalgia and they specifically noted that gummies are the best form if you were to use a med card. When using it for pain relief, you aren't trying to achieve a high, so that gives you the best form of pain relief over a long period of time. Rather than smoking where you just get an immediate head high and the pain relief effects go away just as quickly. He also noted to look for ones higher on CBD than THC again to achieve pain relief rather than the high effects of THC.
I actually found a lot of their information incredibly eye opening.
One of the major things they say to do is to avoid pushing yourself too hard when you have a good day, because that will come back to bite you and cause more pain. I know personally that's incredibly hard advice to follow because there's always more to do
Any brand that helped her a lot?
The struggle is definitely real. 😢
Amen
Jay Shree Krishna..
I basically “built” my bedding from scratch. Layering it with different sponges and toppers. I also sleep with a C-shaped pillow; they are designed as a pregnancy pillow but it’s great for sleeping with fibro. Tho I still have to reposition often.
I also have various medications for pain but it’s still there, always humming in the background.
You hear humming or you were referring to the pain lingering?
Same. I also use Microfiber fitted bed sheets because they don't pile. The bobbles on the sheets hurt me
@@Andpistolsgirli know what they mean...and sometimes you THINK you are relaxed then you really think about it and realize you are rigid, tense and jaw is clenched
@@pjj9491Yes 100% 🤗
I too suffer…& I do mean suffer at times with fibromyalgia…..I can’t tell you how many different pillows I’ve gone thru over the years till I finally found one which seems to work for the most part…I also have chronic sinus problems. I didn’t think about the pillow between my knees… or I had forgotten about it…but will definitely try it. I’m as tired when I get up as I was when I laid down…& sleep is very sporadic. And it’s painful all nite…& day. Hurts and burns like certain areas all over feels like liquid fire being shot thru my body. I feel for anyone who has this.
As a fibromyalgia side sleeper that also has osteoarthritis and bone spurring also now in my hips, I also take a muscle relaxer and anti anxiety prescription to help me sleep. Have had both knees and one shoulder replaced and now hip spurring is getting bad and even with an adjustable bed and pillows, I have to change to another side off and on during the night, but wake up and can barely walk now, as I have had sciatica for 15 months at this point. It's wearing me down.
I hope you get some kind of relief. God bless you.
❤❤❤
What caused your bone spurs? Spondyloarthritis?
Be aware those meds especially the anti anxiety deplete nutrients that help ease pain naturally and especially anti anxiety meds cause mental deterioration if taken like that regularly.
I too have sever sciatica both hips right worse. Going to physical therapy now, stay away from sugar. No relief yet, but they sy to stretch, it's painful. Wish u healing soon
The worst part of my pain is that my arms and hands are a big reason why sleeping is hard. If im on my side, i can't bend my arm, or it'll go numb. And if im on my back, I have to make an effort to keep my arms from going above my head and going numb. I do use the pillow for both ways of sleeping already too
PLEASE try gentle Qigong. Do a bit every day, up to the pain, not through it; if it hurts too much, back off a bit, but keep moving, if the pain is bearable, keep moving, it gets better! Many instructors on RUclips, but look for gentle - Qigong with Kseny, YoQi with Marisa, QiYoga with LuChin ... it helps, it works, it also helps with sleep.
BEST OF LUCK!
I do these things - esp laying on your back and put a pillow down at your knees. The hard thing is that I move so much (legs mainly) that I have a phone arm hold my phone above me so I can fall asleep to RUclips or a movie. This works well because I focus on the media and let myself dift off when I can.
Although, I still have nights (last night actually) that I'm up till 5am and there isn't a thing I can do to help myself.
Bottom line - fm is a struggle in everything you do each day. Everything.
Living with fibro for about 35 yrs now. I’ve been sleeping in the first position for many of those years. This year we bought an adjustable air numbers bed. Best money ever spent! It doesn’t fix the problem, but I do get more relief.
Wow. This is amazing. I do sleep this way, but I can’t have a pillow in between my knees. So strange laying down or sleeping on my side is one of the few ways I can get out of pain for a little bit. Thank you so very much. I think this helped a lot of people and made us feel less alone.
im 15 and I have been having all the fibromyalgia symptoms for months (if not years). today I went to the doctor to talk about these symptoms and he just laughed it off making fun of me.
Switch doctors immediately! That’s medical gaslighting
I ‘m so sorry that your doctor did that like Roxy said change your Dr right away my family has tell me I don’t look sick if only for one day they could be in my shoes
That’s a horrible doctor. Please go somewhere else and if possible, report him
My mother suffers from fibromyalgia, thank you for this.
I have found this to be very useful. Been doing this for years. I did get a pillow that is a better support for my neck that has been the best investment I’m ever done.
Thanks a lot! This is exactly what I do
Sleep is indeed a mine field. Thank you for your help.
I sleep on my side with a pillow between my legs, one pillow underneath my upperarm/arm pit and when its a really bad day a small pillow beneath my upper hand to relax my wrist. And wear comfortable ear buds and sleep is a lot better that way.
My best sleep happens in a semi upright position, in a recliner. I haven’t been able to sleep comfortably in a bed for the past 15 years, tho I have tried many times. I will wake every 15-30 mins laying in our bed & believe me, we have tried a number of beds, water, sleep #, soft, medium, temprapedic w/cooling gel & our most recent, which I can’t even remember the name of. I wished we had spent the extra $1000. to have the dbl reclining function(which makes it a king size bed) but than I wouldn’t bother my husband when I move around. LOL. Next time, I guess. 😅
Oh my god i have it and no matter what i do there seems to be no relief but thanks for bringing the topic up
It’s the same for me. I’ve been suffering with fibromyalgia for 20+ years with no relief in sight. I’ve tried many medications and either they don’t work or I’m allergic to them, muscle relaxers don’t do anything for me and even my anxiety medication doesn’t help me get any sleep. It’s like being in a living hell.
Aww. It's clear he's sincere.
I use a pregnancy pillow and other pillows to keep it in place. I have put railing on both sides to keep everything from falling off. I have to prop up both my knees and elbows. My bed looks like a toddler having a sleepover and building a fort.
😂😂😂 me too...I see beautiful beds and bedding and my own bed/sofa is just a pain pit full of messy pillows and cosy things...😔
@@denisepolley7389 There is nothing I can do to make it look decent no matter how matching the colours are. I hate using my recliner because I need pillows that keep falling off. Yet I keep getting pains just from laying there. Pains that runners get from running....
I have slept on my sofa recliner for 5 years. It has helped so much bc I'm not laying straight. Sitting up really helps me.
Brilliant. Thank you for this video.
I have and I have noticed that it’s flaring up because the way i sleep! I needed this thank you!
I have to make a mountain with a large blanket, and place in ON My Pillow...then when I lay down I take the Blanket and curve to totally support my jaw, my head. I use it to support my arms, wrists and hands...then I use pillows AND Extra blankets to curve around my body to cusion every part of me and between my legs. I totally understand that Sleep is a Mindfield. I wake up like every 20 to 30 minutes to RE Adjust. I feel like a Princess laying on a Pea....if ONE Thing is out of order for me, it causes pain and then I have to RE Adjust all over again. Even if one tiny bump is on the sheet under me, it will TOTALLY Cause so much pain I want to cry. Wow....the chat here "GETS IT" And so does the person doing this video
Thank you
I have fibromyalgia, arthritis, back and left knee injury. And a pinched nerve that affects my hands and fingers. I use these methods
It does help
God, I do all these things, been diagnosed with fibromyalgia, yet listening to him talk about it just hits me like it’s finally real to me, I live with fibromyalgia
This makes so much sence. I do need to feel secure in my environment. I realize that when I'm not I tend to tense up.
I have the butterfly pillow and it has been a tremendous help. I also have the knee pillow it helps as well.
For past 6 years ... The electric recliner is the knly wash I can sleep!, with two small side pillows snuggled both hips... Absolutely waking up with no trouble, no issues. I cannot sleep in the bed!🤷 Movement while sleeping in a bed causes too much pain; I must remain stationary... Do what works for you!
I finally invested in a temperpedic mattress and it saved me. I don’t wake up in pain and its just amazing!!
Was there a specific one you bought. I need a new mattress and think I will look into temperpedic.
If you don’t sleep well, try a “yoga nidra” relaxation (RUclips) the next day.
Or you can do the yoga nidra before bed. Yoga nidra is profoundly relaxing & healing.❤️It quiets the busy mind.
Fibro sucks. Very painful.
My brain wakes up when I need to roll over. But that involves a shit ton of pain, so I panic. It's horrible.
The only comfortable way for me to sleep is on my belly but even then I have to switch sides bc I've yet to find a pillow that doesn't kill my neck. It's wonderful whenever I'm really hurting and need to get up for the toilet or something, that's basically the only time I'm about to cry from frustration
Omg yes I would love to sleep on my belly, but it just ruins my neck.
Yes! This is exactly what I do every night!
I have 3 autoimmune diseases, 2 blood diseases, every kind of osteoarthritis, severe migraines, severe chronic pain, and almost 20 more diagnosis
I did all these thinks, but pain was to high. Within the last 8 months I’ve been taking magnesium glycinate at night after soaking in epsom salts. TOTAL difference. (I also take magnesium threonate in the morning). I rarely have a bad night anymore after20 years.
It takes a lot to figure it out and you can’t give up, I’m using the same and melatonin. As well as an herbal ease pillow from Tara Spa Therapy I warm it and put it on my stomach it relaxes the body and mind, which gives a better quality of sleep restoration.
Warm magnesium baths help a lot! Good tips you’ve shared
I have Fibromyalgia. I sleep on my side my hip hurt to the point i can't walk. Sleep on my back my low back hurts to even move any part of my body. I am going to try the pillow thing and see.
I get injections in my hips and shoulders front and back from my Rheumatologist. ( Depomedrol)
I drink plenty of alcohol... I don't recommend it... but at least I sleep
Thaank you🙏🏾 I’ll try Thiis tonight
Thanks for these tips
My hips are giving me much pain. I can't sleep on my back. I bought a mattress topper but it's not fixed the problem. I will invest in leg pillow. Failing that I may have to sever my legs! The discomfort is real. Wishing you all a good night's rest!
I have fibro and have often found I HAVE to sleep on my side or stomach. As a nurse I do have one critique: sleeping with pillows under your knees for long amounts of time could cause DVT (a big ass clot) that could dislodge and cause a heart attack or stroke. Lifting the feet and calves is fine, but make sure to not stuff the pillows under your knees where there is a lot of pressure that could slow blood flow.
Great suggestions. This could be for anyone but yes. If on your back - prop up those knees. Will help your low back.
I also have fibromyalgia, and have not had a decent night's sleep in a long time , I had a hip replacement 2 years ago I also had a right knee replacement, 3 months ago , now I have to go back into hospital, to get a manipulation as I can't bend .my knee I also have , osteoarthritis, in my left hip and left knee , I have osteoporosis in my spine ,with 3 denenrative disc , spondylosis in my neck and bottom of my spine I've got ,i'am on all sorts of medication for different reasons but all I want and all I ask for is a decent night's sleep . Xxxx
Thank u so much for this video - extremely helpful.
I've had fibromyalgia since the late 80s. It was diagnosed finally 2010. 2011 I found a grassroots treatment once a day for the rest of my life it's called LDN. It's compounded medicine and it has helped did not cure me but it has helped
Thanks very much mate 👍
sleeping with a pillow or folded blanket in between knees is the way to go❤
I use a pregnancy pillow, I've put it "upside-down" so I can adjust my pillow-pile to side-sleep or back-sleep, side-sleep using two pillows on top of each other and back-sleep with one of the pillows supporting my upper back. I put my legs on top of the pregnancy pillow while sleeping on my back and between my legs when side-sleeping. I still wake up when I have to turn because sleeping too long in one position will start being painful after a while. Side-sleep puts pressure on my hip, thigh and shoulder and back-sleeping makes my neck hurt. I can't sleep on my back without having my head turnt to the side. Sleeping partially on my stomach can work sometimes but since I've gained a lot of weight due to emotional eating and not being able to move enough due to pain and exhaustion it's become increasingly uncomfortable because my breasts have become too big and can't handle the pressure... I'd love to be able to sleep in one of those floating therapy devices...
I have fibro, thank you for sharing
You're right, lying on back with pillow under knees works great for my back for about a minute before the occipital neuralgia kicks in from lying on my back with head on low pillow. Must move quickly before that burning pain spreads up back of scalp and triggers the migraine problem.
I can't sleep. I have both kinds of insomnia because of Fibromyalga. I've had 3 hours of sleep in 4 days. I'm so exhausted. I'm in a second study because my Fibromyalga score is already 91😢
100%! Personally, recently buying an Endy mattress has helped. I’m still in pain throughout the day, but I can actually sleep a bit better at night now.
Thank you gor your hood advice.
Helpful. I sleep in this position.
The fetal position with pillow between legs is my go-to, I can’t sleep without that extra pillow. Also got a mattress from ikea for around $300 that’s so surprisingly firm and comfy, nice pillows too.
My mom has been sleeping like this for several years. I hate seeing her in pain.
Dr emuakhe is an epitome of good treatment,the doc has every criteria to human health..
Yesssss thank you. This is how I sleep and if it’s not just right it’s days to recover in all ways lol.
Thank you ❤
Yes really it is specially in the heat of 40 degrees
Because of Fibro and ankolosing spondylitis I has to end up going on disability because of the all over pain and over sensitivity to cold or hot,skin burning,every muscle and tendon hurts to even put any pressure on any of them.The sleep thing is another.Rightside leftside wake up from my back feeling like I have had a bad fall and fell on my back.I worked night shift for 18 yrs so that don't help.Does anyone else have periods of sensitivity to light even on a bright cloudy day or go into a business like Walmart and get dizzy and very fatigued .And also I heard a lot of people with fibro have stomach issues.
I have very bad light sensitivity and dizziness..but have decades of migraines..which are related to fibromyalgia somehow
I'm interested - now you have AS, why do you keep using the fibromyalgia diagnosis? Is it because some of your symptoms can only be described as fibro?
My understanding is fibro is a diagnosis of exclusion, so once someone figures out your have spondy, fibro is no longer relevant.
I'm going through the same thing myself.
Love to hear your thoughts
I suffer from Polymyalgia Rheumatica & Rheumatoid Arthritis & various spinal issues & a displaced hip. I sleep with 4 pillows sometimes 5 to stabilize me while I sleep otherwise I find I either cant get off the bed or I wake up with really bad headaches & body pain. I always sleep with a pillow between my legs so I don't get knee knock & hip pain during my sleep cycle & I always have a fan on for white noise, but also to keep the air moving around me,
Sad that I knew these already 😮
Same here. I have SO much trouble sleeping, even when exhausted, so take pain med and use pillows as he suggests.
I was diagnosed a decade ago and am figuring out now I have myofascial pain, not fibromyalgia. God Bless ALL!
Oh thank god - thanks so much
Im taking amitriptyline 50mg for migraine prevention and i wake up 10 times a night regardless of this dose....sleep is nice - i also have to have a lot of pillows because i have GORD
Thank you so much❤
I sleep deep a lot but I seem to get no benefit from it at all,I’m always in pain,just trying to get through the day.I’m losing hope trying to stay in this world,everyone else seems to have a reason.more pain isn’t enough for me
I sleep like that every night and it's the only way I can sleep but I have about 10 pillows and memory foam cushions too and I'm still in agony but it does help the pressure.
Excellent! Sleeping with the pillow under the knees really works
Fibromyalgia is killing me 😢😢😢
Same!
Hugs
This is so true!
I ran out of my meds recently and sleep is impossible.
I just keep moving parts when they really start hurting. Spray, tincture, heating pad, gummy, oil caps, massage all helps.
That’s exactly what I do. I can’t sleep without my pillows. I wake up at least every hour to two hours in pain. I have to get up and stretch and then go back and lay down.
I use a therapy body pillow that is like those massive pregnancy pillows. It's a lifesaver as it keeps my whole body aligned and supported.
Cut out sugar and carbs ..it will help dramatically
i always put pillows under my legs just like when he lay down since i was a kid because I can't sleep at night without it and every morning I get severe headaches, body pain and i hate eating breakfast.
now I'm an adult i still put pillows under and drinking coffee every morning was the only remedy for my morning headaches and bring my appetite for breakfast but the problem is after that it'll make me so sleepy again and need a little nap to get function again and if ever I can't take a nap, it'll be over after 3 hrs fighting the urge to sleep then it'll be normal for me to function again 😢
Does this apply to those with female body structure too? I find my hips react differently and create a curve in my spine when I try that side position.
I do both of these!
I have fibromyalgia and chronic fatigue, but I also have insomnia and have been taking medication to sleep for years. Otherwise, I don’t think I would sleep at all.
Hi everyone. I have had fibro since my 40s. Im loaded with arthritis and bone spurs...i have epstein barr syndrome, Hashimotos, pulmonary hypertension and my nightmare.. sleep apnea. So on top of trying to get comfy in bed, i get to wear a mask!
I have to sleep on my back, if I don't I always wake up with a stiff back or a pulled muscle or something. I have a very good mattress and pillow as well.
I have fibromyalgia and I know sleeping flat is good for me but i have bad acids reflux so have to sleep with 4 pillows practically sitting up it hurts but I either chose the fibro pain or sickness from the acid
I call going to sleep my "second shift". It's such hard work and I wake up more tired than when I went to sleep
I sleep on a large air mattress that way I can adjust it to just the way I like it
i sleep on my side on a couch with memory foam padding under me, pillow between knees. memory foam neck pillow too.
Im still not sure I have it but I already used those technics to get a better sleep when I have a “Flare up” , so it’s another thing that make me think it can be that.
Do you have any suggestions for the shoulders, elbow, wrists ? Shoulders and neck are to me the difficult to relax..
Unfortunately for me I have a sleep disorder that causes the opposite of the paralysis most popular experience in their sleep. I aggressively move around construction through the night. I also get restless leg if I sleep on my back. Stomach tends to be the only position I can fall asleep in which causes its own problems
Try going full carnivore to clear up that fib pain. The pain stems from oxalates that are in vegetables