Thank you for posting this ⭐️ I'm looking towards surgery having suffered with undiagnosed nTOS, vTOS & aTOS for around 4 years now. It's encouraging to see results like yours. A life free from this condition! 😊🙌 🎉 I can't wait for my life to begin again.
Thank you for posting this I am currently in the process of MRI before surgery. I’m a dancer and I want more than anything to be back so I’m glad to see how it affects.
I’m so glad I found this video, thank you for sharing. Just past the one month mark for me and 3 PT sessions in. Had same surgery and it’s been really hard dealing with this the past 1 1/2 years and going to college.
You had mentioned feeling symptoms on both shoulders and back muscles. I have the same because of the body compensating and have a hard time dealing with the other side b/c it acts up more easily and then hurts the whole day. Any advice how to fix the side that I didn’t get the procedure done on? Thanks!
@@willbridgham2284 the recommendation was to continue your PT exercises and work on strengthening the muscles on both sides. It’s been harder said than done, but I will say that I’m better off than when I had the surgery.
@@thoracicoutletsyndromether8930 that’s so great to hear, thank you for replying. My only follow up question is are you able to workout or run or do you still feel limited? Thanks!
@@willbridgham2284 so I haven’t gone back to running (so I don’t know how the arm swinging would be), but I have been able to do indoor cycling without a problem!
that’s crazy I am not allowed to do anything in PT resembling a row & with weights..! …week 2 of PT and just passed the 4 week mark. I am doing light cardio. Wondering - does arm/hand getting cold when raised over head for 2-3 secs ever go away? I had pec minor release as well. Wondering were you ok’d to do laundry or any typing around the 4 week mark? thanks for your video! Can’t wait to get beyond range of motion items.
I’ve noticed less and less with my hand going cold when raised overhead. I was ok’d to do PT after the first 2-3 weeks, and the instructions at that time were to go slow and don’t do activities that aggravate the pain. I was able to do some light typing, but I didn’t go back to work until the 6-7 week mark, so it’s hard for me to say. I was very careful about lifting in that first month, even though I technically was “allowed”. I would say definitely listen to your body and try not to push it!
Thank you very much for the videos. How are you doing now? About yoga...it is probably not exactly what you need for your problems, which are basically also mine. I am a yogi since many years and the yoga practice tends to work in particular the front of the body. unless you have a very good instructor that has some basis of physiotherapy, I would be careful. not that I have TOS I am unable to perform yoga at all. also modifying the practice there are simply too many poses that I cannot do. usually good yogis integrate back and shoulder work with other disciplines
You’re welcome 😊I’m now 14 months out from surgery, doing better, but healing is still in progress. I agree, after trying some yoga, I noticed it did aggravate my symptoms rather quickly. I am still trying to get into an exercise routine (since I’ve had some other health issues), but have tried cycling and body weight exercises. Thank you for the advice!
I actually took swimming lessons this past summer! I will say, it did hurt (since I'm still weaker on that side), but I was actually able to swim! I would take it with caution, though....
Hi TOS, you're videos have been very helpful in preperation for surgery. I am having tos surgery in 3 days on my right side. I was daignosed back in January with surgery postponed due to covid. How were your first few hours post op? Also, how is your recovery now that its been 8 months. Thank you!
Mitch Billman hi there! I’m glad you found these videos! Honestly, I did really well with minimal pain the first 24 hours post-op (I have a video on my channel documenting from the hospital), and I’m definitely better than before surgery! I’m hoping to post a video soon with an update, so stay tuned!
Moe Zabian hi, there! I went back to work 6 weeks after surgery. I had an arrangement to work from home when I started back, and then when the coronavirus hit, we were mandated to work from home a week or two later. Great timing, huh?
I had done several rounds of PT with no improvement and my life was impaired enough due to pain where doing the surgery was worth the risk. They did notice that there was reduced circulation when they moved my arm in certain positions, BUT it was still considered neurogenic TOS (I didn't have a clot for it to be considered venous or arterial).
My surgeon didn't specifically recommend it, but I believe I used Bio-Oil and did some scar massage on my own. My incision (in my underarm) and the area below it (where my JP drain was) stayed very tender for a long time, so I didn't do it for too long. But my scar healed very well!
@@thoracicoutletsyndromether8930 My surgeon did a 3 inch incision right under the clavicle, first rib resection, and scalenectomy. He said to do scar massage in the weeks of my recovery
Hi! How did your doctor diagnose your sickness? What kind of tests did your doctor apply on you to diagnose your sickness? Did you have a problem related to nerves or veins or both? Have a nice day!
Hasan Hüseyin Keskin hey there! It ended up being a process of elimination. They first thought it was a shoulder impingement, then ulnar nerve issues, and when I started having symptoms again after ulnar nerve surgery, they started looking into more rare issues like TOS. I went to the Mayo Clinic, so they do lots of tests. I had an ultrasound of the nerve pathways to check for issues with blood flow, EMG/NCS, MRIs, X-rays, etc. The most conclusive test was when they injected my scalene muscle with lidocaine and my pain went away temporarily. My nerve conduction test was normal, but when I’d move into certain positions, the blood flow would cut off. They still labeled it with nerve issues because of my symptoms, though. I hope this helps!
I have the same problem. I had a couple of tests of emg on my ulnar and radial nerves and nothing was wrong about the emg tests but I always have numbness on my fingers, hand and arm also pain. I think I need some tests to see what is wrong with my veins. Thanks for the info.
You need to check your neck. It is usually cause numbness of fingers. I don't recommed you this surgery because doctors have lack of evidences for it. I also had tos surgery on my right side and I completely regret for doing it.
I will say that it was much better than prior to surgery, but I still had some stiffness in general, and I continue to have stiffness, but I think it’s more related to ergonomics/muscle weakness from having TOS….
@@dylanallen5653 I went very slowly. My first issue was taking deep breaths which took some time. I was able to get into normal activities of daily living more routinely between the 4-6 weeks range. I was able to do cycling since then (with some adjustments to the hand bars), but I did not start using weights after that.
@@thoracicoutletsyndromether8930 i hear its 2 to 3 days unless there are complications then it can be more time. Looks like I am going to have surgery on both sides and on the Left I am also compressed in two locations, smh. How long did the Worst pain last?
@@singingmanmd that sounds about right. As far as pain, it’ll differ from person to person, and if they’re operating on one side or both. The pain kicked in about around 36-48 hours post-op and it was pretty strong for at least the first 10 days for me.
Pre-surgery, I couldn't wear my seatbelt across my chest with irritation to my nerve and causing pain and numbness down my left arm. I still was dominant in driving with my left arm, but I avoided driving long distances because it would definitely aggravate it.
After my neurogenic TOS surgery, the problem was on left side but after surgery my left hand is not working. Will it work after sometimes. I am afraid because it's the 5th day after my surgery and i am not seeing any improvement in my hand. Please ma'am reply
@@KiranYadav-vs2mo Hello there I had some improvement, but it was slow improvement. I would recommend you journal about how you're feeling: pain, on a level from 1-10, did anything aggravate the pain, anything relieve the pain, how long did it last, etc. When recovering from surgery, time can become a blur. When I felt like I wasn't making progress, I would go back to my journal, and then I'd realize that I had improved; I just didn't realize it because the process was slow. Keep an open dialogue with your surgeon and keep your follow-up appointments. Make sure to address any concerns with your doctor as they can give you an idea of what to expect, and what is "unusual" and needs to be reported to them. Wishing you the best 💓
@@thoracicoutletsyndromether8930 ma'am i want to ask one more thing. Now it's the 15th day after my operation. But the numbness in my arm and in fingers is not gone, it's same. So this numbness is temporary or permanent? Will it be normal after some more days or will it be same for whole life? One more thing ma'am after my n tos surgery i am seeing atrophy in hand .
You know, I'm not really sure. I don't think they are structurally uneven, but after years of not using my left side properly, I noticed that my shoulder is usually dropped more so than my right. I need to work on that!
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Thank you for making these updates. I am having surgery next week and was curious if the recovery process. This has helped me anticipate it better.
Thank you for posting this ⭐️
I'm looking towards surgery having suffered with undiagnosed nTOS, vTOS & aTOS for around 4 years now.
It's encouraging to see results like yours. A life free from this condition! 😊🙌 🎉
I can't wait for my life to begin again.
What were your symptoms
Thank you for posting this I am currently in the process of MRI before surgery. I’m a dancer and I want more than anything to be back so I’m glad to see how it affects.
I’m so glad I found this video, thank you for sharing. Just past the one month mark for me and 3 PT sessions in. Had same surgery and it’s been really hard dealing with this the past 1 1/2 years and going to college.
You had mentioned feeling symptoms on both shoulders and back muscles. I have the same because of the body compensating and have a hard time dealing with the other side b/c it acts up more easily and then hurts the whole day. Any advice how to fix the side that I didn’t get the procedure done on? Thanks!
@@willbridgham2284 the recommendation was to continue your PT exercises and work on strengthening the muscles on both sides. It’s been harder said than done, but I will say that I’m better off than when I had the surgery.
@@thoracicoutletsyndromether8930 that’s so great to hear, thank you for replying. My only follow up question is are you able to workout or run or do you still feel limited? Thanks!
@@willbridgham2284 so I haven’t gone back to running (so I don’t know how the arm swinging would be), but I have been able to do indoor cycling without a problem!
@@thoracicoutletsyndromether8930hi, how is your breathing now? Has it improved? Your video is helpful.thank you
Thank you so much for making these videos! These bring me much needed hope and reassurance for my son's surgery in three weeks time. Bless you!! ❤❤
You’re very welcome!! I hope all goes well 😊💕
Thanks for the advice. I’m 3 weeks post op and breathing is a challenge!
that’s crazy I am not allowed to do anything in PT resembling a row & with weights..! …week 2 of PT and just passed the 4 week mark. I am doing light cardio. Wondering - does arm/hand getting cold when raised over head for 2-3 secs ever go away? I had pec minor release as well. Wondering were you ok’d to do laundry or any typing around the 4 week mark? thanks for your video! Can’t wait to get beyond range of motion items.
I’ve noticed less and less with my hand going cold when raised overhead. I was ok’d to do PT after the first 2-3 weeks, and the instructions at that time were to go slow and don’t do activities that aggravate the pain. I was able to do some light typing, but I didn’t go back to work until the 6-7 week mark, so it’s hard for me to say. I was very careful about lifting in that first month, even though I technically was “allowed”. I would say definitely listen to your body and try not to push it!
i v been trying almost everything i cannot find a solution to be healed. will think about the surgery ( a hello from france )
I hope this channel is helpful to know all your options. Hope you find your answer
Thank you very much for the videos. How are you doing now? About yoga...it is probably not exactly what you need for your problems, which are basically also mine. I am a yogi since many years and the yoga practice tends to work in particular the front of the body. unless you have a very good instructor that has some basis of physiotherapy, I would be careful. not that I have TOS I am unable to perform yoga at all. also modifying the practice there are simply too many poses that I cannot do. usually good yogis integrate back and shoulder work with other disciplines
You’re welcome 😊I’m now 14 months out from surgery, doing better, but healing is still in progress. I agree, after trying some yoga, I noticed it did aggravate my symptoms rather quickly. I am still trying to get into an exercise routine (since I’ve had some other health issues), but have tried cycling and body weight exercises. Thank you for the advice!
Have you tried any form of swimming or is that a permanent restriction?
I actually took swimming lessons this past summer! I will say, it did hurt (since I'm still weaker on that side), but I was actually able to swim! I would take it with caution, though....
It hurt? Like how? Where?
Hi TOS, you're videos have been very helpful in preperation for surgery. I am having tos surgery in 3 days on my right side. I was daignosed back in January with surgery postponed due to covid. How were your first few hours post op? Also, how is your recovery now that its been 8 months. Thank you!
Mitch Billman hi there! I’m glad you found these videos! Honestly, I did really well with minimal pain the first 24 hours post-op (I have a video on my channel documenting from the hospital), and I’m definitely better than before surgery! I’m hoping to post a video soon with an update, so stay tuned!
Mitch Billman I added an 8 month update video if you want to check it out!
Hello, this video was posted 5 months ago. Were you able to go back to work? If so, when?
Moe Zabian hi, there! I went back to work 6 weeks after surgery. I had an arrangement to work from home when I started back, and then when the coronavirus hit, we were mandated to work from home a week or two later. Great timing, huh?
Hi - what led you to make the decision to get your rib removed for TOS? Swelling? Blood clot? Something else?
I had done several rounds of PT with no improvement and my life was impaired enough due to pain where doing the surgery was worth the risk. They did notice that there was reduced circulation when they moved my arm in certain positions, BUT it was still considered neurogenic TOS (I didn't have a clot for it to be considered venous or arterial).
Did you use any cream or ointments on your scar and do scar massage?
My surgeon didn't specifically recommend it, but I believe I used Bio-Oil and did some scar massage on my own. My incision (in my underarm) and the area below it (where my JP drain was) stayed very tender for a long time, so I didn't do it for too long. But my scar healed very well!
@@thoracicoutletsyndromether8930 My surgeon did a 3 inch incision right under the clavicle, first rib resection, and scalenectomy. He said to do scar massage in the weeks of my recovery
Hi! How did your doctor diagnose your sickness?
What kind of tests did your doctor apply on you to diagnose your sickness?
Did you have a problem related to nerves or veins or both?
Have a nice day!
Hasan Hüseyin Keskin hey there! It ended up being a process of elimination. They first thought it was a shoulder impingement, then ulnar nerve issues, and when I started having symptoms again after ulnar nerve surgery, they started looking into more rare issues like TOS.
I went to the Mayo Clinic, so they do lots of tests. I had an ultrasound of the nerve pathways to check for issues with blood flow, EMG/NCS, MRIs, X-rays, etc. The most conclusive test was when they injected my scalene muscle with lidocaine and my pain went away temporarily. My nerve conduction test was normal, but when I’d move into certain positions, the blood flow would cut off. They still labeled it with nerve issues because of my symptoms, though. I hope this helps!
I have the same problem. I had a couple of tests of emg on my ulnar and radial nerves and nothing was wrong about the emg tests but I always have numbness on my fingers, hand and arm also pain. I think I need some tests to see what is wrong with my veins. Thanks for the info.
You need to check your neck. It is usually cause numbness of fingers. I don't recommed you this surgery because doctors have lack of evidences for it. I also had tos surgery on my right side and I completely regret for doing it.
@@ainars1205 Hi. So, what kind of a symptom has to be on my neck?
@@KonyaTribun Hi! Don't you feel tension on your neck like shoulder is hanged there?
hello how do you feel one year after the surgery please ? thank you
Hello there, I actually have a one year update video on my channel (I’m wearing a purple shirt with flowers), check it out!
It is rather more cosmetic thoracosurgeric or orthopedic treatment. It should be better after weeks or few months
Today, I am exactly 4 weeks (1 month) out from surgery!
How long did it take for u neck not to be stiff anymore ?
Hey I’m about a month after my surgery was ur neck still kinda stiff around that time ?
I will say that it was much better than prior to surgery, but I still had some stiffness in general, and I continue to have stiffness, but I think it’s more related to ergonomics/muscle weakness from having TOS….
@@thoracicoutletsyndromether8930 ahh where did u get ur surgery done by who ?
And how long after the surgery did u start like doing activities like sports or working out ?
@@dylanallen5653 Mayo Clinic in MN, Dr. Mendez
@@dylanallen5653 I went very slowly. My first issue was taking deep breaths which took some time. I was able to get into normal activities of daily living more routinely between the 4-6 weeks range. I was able to do cycling since then (with some adjustments to the hand bars), but I did not start using weights after that.
How many days you were hospitalized? Thank you.
I was there for two days....surgery on a Tuesday and out by noon on Thursday, with a follow-up appointment on Friday
@@thoracicoutletsyndromether8930 i hear its 2 to 3 days unless there are complications then it can be more time. Looks like I am going to have surgery on both sides and on the Left I am also compressed in two locations, smh. How long did the Worst pain last?
@@singingmanmd that sounds about right. As far as pain, it’ll differ from person to person, and if they’re operating on one side or both. The pain kicked in about around 36-48 hours post-op and it was pretty strong for at least the first 10 days for me.
@@thoracicoutletsyndromether8930 Thank you. I have to get ready for the battle😐
2/21/76 is my born on date. I need to do this surgery
Did you have lots of issues driving pre surgery?
Pre-surgery, I couldn't wear my seatbelt across my chest with irritation to my nerve and causing pain and numbness down my left arm. I still was dominant in driving with my left arm, but I avoided driving long distances because it would definitely aggravate it.
After my neurogenic TOS surgery, the problem was on left side but after surgery my left hand is not working. Will it work after sometimes. I am afraid because it's the 5th day after my surgery and i am not seeing any improvement in my hand. Please ma'am reply
Ma'am after your surgery have you seen any numbness in your hand? Or you were Not able to hold anything.
@@KiranYadav-vs2mo Hello there I had some improvement, but it was slow improvement. I would recommend you journal about how you're feeling: pain, on a level from 1-10, did anything aggravate the pain, anything relieve the pain, how long did it last, etc. When recovering from surgery, time can become a blur. When I felt like I wasn't making progress, I would go back to my journal, and then I'd realize that I had improved; I just didn't realize it because the process was slow. Keep an open dialogue with your surgeon and keep your follow-up appointments. Make sure to address any concerns with your doctor as they can give you an idea of what to expect, and what is "unusual" and needs to be reported to them. Wishing you the best 💓
@@thoracicoutletsyndromether8930 thank you so much ma'am for your information it's helpful for me.
@@thoracicoutletsyndromether8930 ma'am i want to ask one more thing. Now it's the 15th day after my operation. But the numbness in my arm and in fingers is not gone, it's same. So this numbness is temporary or permanent? Will it be normal after some more days or will it be same for whole life? One more thing ma'am after my n tos surgery i am seeing atrophy in hand .
Ma'am please reply
R ur shoulders uneven after surgery?
You know, I'm not really sure. I don't think they are structurally uneven, but after years of not using my left side properly, I noticed that my shoulder is usually dropped more so than my right. I need to work on that!