New year, new start. Life in recovery from pulmonary embolism
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- Опубликовано: 19 янв 2024
- Life after pulmonary embolism continued... New year means a fresh start and I intend on being more productive this year and doing things to feel better within myself and get fitter/healthier by being more active.
If you'd like more info on VQ scans see this vid here: • WHAT IS A V/Q SCAN? & ...
And go to my actual channel to see all the videos ranging from my story, info on blood thinner meds, scan descriptions and much more: ruclips.net/user/melshealth?...
Thanks for watching, be sure to subscribe to help the content get out to more people who are unfortunately affected by blood clots.
#pulmonaryembolism #recovery #bloodclotting
I had my PE in January2021 and was 2 years before I started or feel like I could be on the path to recovery. My respirologist was useless as well and seemed uncaring so I stoped going. I started back to the gym as soon as I could , several months after it happened. It is now 3 years and I am finally feeling like I can completely recover if I continue to exercise . I am 62 but have always worked out, that may be why I made it through. In my mind I believe I am rebuilding my lung that has felt dead for 3 years and I will completely recover. I have watched all your reports and can tell you I have felt your pain, keep a strong mind and imagine your efforts at the gym are rebuilding your lungs. Life is too beautiful to give up.
Hello Mel, I am now in month 9, double sided PE with infection and fluid, on Xeralto. After 3 month the lung was fine no blood-cloth but still little fluid and smal fibrosis (scar tissue). DVT still existing. After 6 month I did the DVT Ultrasound and the legs are fine now. The problems is the fibrosis, still pain after 7 month then I discovered ZINK can heal fibrosis faster. I have been taken ZINK, NAD+ and Sirtuin 1, after 9 month the pain went away. And I am fine now. And yes right after the hospital I started walking 3-5 Kilometer every day, until now. Breathing exercises also helped to expand the lung and stretch the fibrosis.
Glad to hear you are on the mend
Hi Mel, I’ve been watching your videos since I was diagnosed with a massive PE back in August 2023. I recently had a 6 month follow up and my VQ scan showed a large perfusion mismatch. I have been referred to specialists that deal with Chronic Thromboembolic Pulmonary Hypertension (CTEPH) because of the concern that I’m still having a defects after 6 months. Based on your VQ it may be worth while to ask your doctor about it. It seems like the specialist you are going to is going to test for that. But for your own research I would recommend reading up on it. Some people also get diagnosed with Chronic Thromboembolic Disease. Its similar to CTEPH but the patient does not have hypertension but they have chronic clots. This may give you some more answers to what you’re going through.
Thanks for the info. I do have an appointment booked with the specialists now so hopefully I’ll know more after that as to what they are going to focus on.
You’re lucky they are investigating after 6 months, that’s really great. When I had large VQ mismatch at 6months they just switched my meds around and now almost 4 years later & constant persistence from me, here I am.
I’ll start reading more about it all.
I hope you see some improvement soon too.
Hi Mel 👋🏼 your channel supported me when I came out of hospital last August so thank you.
They found two clots one in my artery behind right knee and one in left brachial artery. They couldn’t operate so they are stuck there. I am on lifelong apixaban now.
I wondered are you on this still?
I also wondered if you fly and if so how to get over the fear of it on DOACs
Thank you again for your channel love from Wales x
Hi! ☺️ Thanks for the message and sorry you’re going through all this too. I’m a lifer on Warfarin, I was only on Apixaban for the first 6 months then switched over.
I do fly long haul yes! I live in Canada but I’m from England so I fly back and forth to see family and friends usually once a year. It’s a 9.5hr flight on a good day as I’m West Coast. I think being on DOACs stops me feeling any type of way about the flight tbh. If I wasn’t on any meds I think I’d be more cautious with compression socks and regular walks but I’ve honestly treated flying no different to before this happened. I’m just more aware of risks and when I get up to go to the toilets once or twice in a flight and do a couple of leg stretches whilst I’m stood up for 5 mins or whilst watching films I move my legs up and down putting my feet onto tip toes, if that makes sense? lol.
I hope you get to go on a nice holiday soon and for peace of mind you can always check in with your doctors about any specific risks you may have with flying and they might give you compression socks or something.
Thanks for the update Mel your info is really helpful I had a sub massive saddle p e in June 2022 initially it was thought it was due to a flight back from Montreal to London there now saying it wasn't along enough flight they also said it would be a 2 year recovery but to forget that now ive recently seen haematology after 18 months and had advanced blood tests and a echocardiogram I still can't get back to a normal level get very fatigued and have to pick and choose what things I do im a 60 year old male who was previously very fit
Sorry to hear it’s taking its time, unfortunately this process is usually 1-2years for the bulk of people young and old but there always seems to be some sort lingering effects for people not just psychologically but physically too.
I say to everyone to continually pester their health professionals and keep on the radar as it’s easy to get lost and forgotten about.
I hope you see some improvement soon.
@@MelsHealth Thanks Mel for replying much appreciated
Hi Mel! Are you a part of any support groups on Facebook (or any in general really). I joined a couple right away after i had a sub massive saddle pe early this year, and found them to be really helpful and informative (obviously supportive as well). And ofc found your channel too so i can learn all that i can.
Appreciate all of your videos!!! So far i can hop on a stationary bike for about 20 minutes at a very slow pace twice a day, in addition to my normal routine around the house. Nervous to get back to work because i still tire pretty easily and mentally just feel fatigued pretty much all day. Hope you get some answers soon!
Hi there, yes I’m in a bunch of FB groups, there’s so many! I like to make videos as well as look at the posts on FB as there’s something different about actually watching a person explain their experience over reading a post in my opinion.
The groups are a great place to get loads of info. I think I linked a few of them in one of my old videos the top tips on recovery one :)
Hope you continue to improve and good luck when you have to return to work.