- Видео 32
- Просмотров 72 737
Mel's Health
Канада
Добавлен 2 дек 2011
My content is here to show my personal experience with surviving a submassive pulmonary embolism and the recovery that I am going through. I hope to help people out there who are suffering from the same thing and offer support and insight where I can to those who may be struggling to find relevant and relatable information. I also hope to find others who can offer me further information whilst dealing with this condition as I continue my journey to recovery.
I've had a tough ride with this condition, it is still ongoing for me and I want to create a community where people can come for support and offer their own experiences to help others. My content will be me continuing on this journey of recovery and hoping to find an end to feeling the continuous pain and fatigue.
I've had a tough ride with this condition, it is still ongoing for me and I want to create a community where people can come for support and offer their own experiences to help others. My content will be me continuing on this journey of recovery and hoping to find an end to feeling the continuous pain and fatigue.
Chronic blood clots & a mountain hike
I rambled a bit in this one anddefinitely repeated myself quite a bit so thanks for watching!
Let me know in the comments if you have chronic clots and whether surgery has been offered as an option for you.
Here is the link to the V/Q scan video: ruclips.net/video/x3cu5MGRjaI/видео.htmlfeature=shared
Let me know in the comments if you have chronic clots and whether surgery has been offered as an option for you.
Here is the link to the V/Q scan video: ruclips.net/video/x3cu5MGRjaI/видео.htmlfeature=shared
Просмотров: 175
Видео
New year, new start. Life in recovery from pulmonary embolism
Просмотров 62110 месяцев назад
Life after pulmonary embolism continued... New year means a fresh start and I intend on being more productive this year and doing things to feel better within myself and get fitter/healthier by being more active. If you'd like more info on VQ scans see this vid here: ruclips.net/video/x3cu5MGRjaI/видео.htmlfeature=shared And go to my actual channel to see all the videos ranging from my story, i...
3 years after blood clots - recovery update from pulmonary embolism
Просмотров 3,6 тыс.Год назад
Thanks for watching my update on recovery from blood clots in the lungs - aka pulmonary embolism. I hope the information helps and here is the link to the VQ scan video as it may come in handy if you are about to have one: ruclips.net/video/x3cu5MGRjaI/видео.html Also, thanks very much for #500subs :D #pulmonaryembolism #bloodclots #bloodclotting #500subscribers #recovery
WISDOM TOOTH SURGERY - OPERATION & RECOVERY
Просмотров 2692 года назад
Thanks for watching my video about having wisdom teeth surgically removed whilst being prescribed blood thinners (Warfarin) and seeing the wonderful photos of me going through the ordeal that it was... Please subscribe to the channel to get the info pushed out to those who may need it and hit the like button if you found any of this interesting, informative or just liked seeing the dodgy photos...
WISDOM TOOTH SURGERY ON BLOOD THINNERS
Просмотров 7713 года назад
Definitely not looking forward to this...! 3 wisdom teeth being surgically removed whilst taking Warfarin :s Thanks for watching; please like & subscribe to keep the info being pushed out to those who may need to hear it and come back for part 2 to see how the recovery panned out :) Links to some other videos: Blood thinners: ruclips.net/video/DhbO0OmAf4k/видео.html&ab_channel=Mel'sHealth Warfa...
WARFARIN (COUMADIN) - THE PROS AND CONS OF THIS MEDICATION
Просмотров 2,6 тыс.3 года назад
WARFARIN (COUMADIN) - THE PROS AND CONS OF THIS MEDICATION
WHAT IS IT LIKE TO HAVE BELL'S PALSY?
Просмотров 2,1 тыс.3 года назад
WHAT IS IT LIKE TO HAVE BELL'S PALSY?
WHAT IS BELL'S PALSY? || WHAT IS THE DIFFERENCE BETWEEN THIS & FACIAL PARALYSIS?
Просмотров 2153 года назад
WHAT IS BELL'S PALSY? || WHAT IS THE DIFFERENCE BETWEEN THIS & FACIAL PARALYSIS?
WHAT ARE LUNG NODULES? || MY 9 MONTH RESULTS UPDATE || SCARRING & PULMONARY NODULES
Просмотров 8 тыс.3 года назад
WHAT ARE LUNG NODULES? || MY 9 MONTH RESULTS UPDATE || SCARRING & PULMONARY NODULES
WHAT IS A CT SCAN & WHAT TO EXPECT? CONTRAST DYE. RADIATION. FASTING.
Просмотров 1,6 тыс.3 года назад
WHAT IS A CT SCAN & WHAT TO EXPECT? CONTRAST DYE. RADIATION. FASTING.
WHAT IS A V/Q SCAN? & WHAT CAN I EXPECT?
Просмотров 1,7 тыс.3 года назад
WHAT IS A V/Q SCAN? & WHAT CAN I EXPECT?
Top tips when in recovery from pulmonary embolism
Просмотров 20 тыс.3 года назад
Top tips when in recovery from pulmonary embolism
9 MONTH REVIEW POST PULMONARY EMBOLISM || TREATMENT, CARE PLAN, CONTEMPLATIONS
Просмотров 6233 года назад
9 MONTH REVIEW POST PULMONARY EMBOLISM || TREATMENT, CARE PLAN, CONTEMPLATIONS
WAS IT COVID ALL ALONG? || RELATIONSHIP BETWEEN THE VIRUS, BLOOD CLOTS & PNEUMONIA
Просмотров 6223 года назад
WAS IT COVID ALL ALONG? || RELATIONSHIP BETWEEN THE VIRUS, BLOOD CLOTS & PNEUMONIA
WHAT CAUSED MY PULMONARY EMBOLISM? || PROTEIN S DEFICIENCY || CONTRACEPTIVE PILL
Просмотров 3,2 тыс.3 года назад
WHAT CAUSED MY PULMONARY EMBOLISM? || PROTEIN S DEFICIENCY || CONTRACEPTIVE PILL
PULMONARY EMBOLISM - WEEK 1 COMPARED TO MONTH 8...
Просмотров 6 тыс.3 года назад
PULMONARY EMBOLISM - WEEK 1 COMPARED TO MONTH 8...
D-DIMER BLOOD TEST || NEGATIVE TEST & BLOOD CLOTS?!?
Просмотров 4,4 тыс.3 года назад
D-DIMER BLOOD TEST || NEGATIVE TEST & BLOOD CLOTS?!?
What are blood thinners? || Apixaban vs. Warfarin? || Rat poison?!?
Просмотров 2,2 тыс.3 года назад
What are blood thinners? || Apixaban vs. Warfarin? || Rat poison?!?
Mel's Health - An introduction || Pulmonary Embolism || Bell's Palsy || Pneumonia
Просмотров 6153 года назад
Mel's Health - An introduction || Pulmonary Embolism || Bell's Palsy || Pneumonia
Thanks. I'm dealing with this right now. I was eating ice cream when I first noticed something was wrong and immediately remembered my dad having Bell's Palsy many years ago. Also dealing with the headaches.
@@fjrnate sorry to hear that. Hope you see some improvement soon.
Hello my mother is going through this ! I’m Super happy to come across your video !!! ❤❤
@@Kayla-7890 sorry to hear that. Hope the tips help :)
What a journey, hope it turns around for you….and thanks for sharing. I’m 6 months in and feel no change after month 2. Did you avoid intense cardio, even tho I do light cardio I think progress was better without sport
Thanks and sorry to hear you are dealing with this too. I didn't do intense exercise regularly for the first 3 months or so but around month 3-4 I got back on my bike and did short sessions. The body needs time to heal to break down the clots so it is better to take more time to rest as you will just put more pressure on the heart doing too much too soon. Unfortunately there is no easy fix with this stuff, it just takes time. Hope you see some improvement soon.
My wife was on birth control pills...recently got brain stroke....found out to be protein S deficiency...shes doing well with the treatment...she is on Aspirin 75mg.... please let me know if you are on medication right now or you are off the medication ? We are very much terrified regarding re-occurance of clotting....
@@ybgybg7889 sorry to hear that. A lot of people take what’s known as baby aspirin or technically a low dose of aspirin daily on doctors orders if they do not require anticoagulants. I am on medication for life and take Warfarin daily due to the severity of my clots, the fact I have chronic clots (ones that will never go away without surgical intervention) and that I have protein s deficiency.
So I figured that most of my pain is psychosomatic. The pulmonologist, gave me Xanax and Methylcolabamin (active Vitamin B12). When I used Xanax all pain went away after 20 minutes and came back after 1-3 days. The Methylcolabamine is for nerve damage, which support the nerve recovery. Now after 1o Month of pain, In 1 Month all my pain was gone (because it was not real).
Thanks for the videos Mel. You are a great communicator. Just coming up to my 3 month cardio check for cteph/ph.
Had good news. I went to A&E about 5 weeks after my original hosp stay and CTPA. They did another CTPA in A&E. The respiratory consultant at Papworth managed to get hold of it and it shows that most of the clots were gone at 5 weeks out - I had large volume saddle clots with cardiac thrombus originally. The 3 month echo was good too.Just need to be able to walk up stairs again now 🙂 Hopefully with time and more exercise that will come.
Thank you soo much for your channel, can I ask whether you have ever tried inhaling steam daily over time?
@@thebrainware Thanks, no never tried that
Hello. Beforehand I am so glad that you survived this episode. I found your channel because right now my wife is in intensive care precisely due to a massive thrombosis in the lungs. She’s been at the hospital for three days now and even if she can breathe on her own and in general, she looks only tired, We are very worried. She usually works a lot at the computer and we recently did a very long trip on an airplane about 16 hours of flight. Dr said that that may have been the trigger. Only problem is that when we came back she didn’t realize that she had this problem and the flight back home worsen the condition that she didn’t know she had from the first flight. Anyway, I am looking for hope and you are giving it to me right now. I hope that she can survive this because we have two beautiful girls that also wait for her recovery. Thank you for your testimonial. God bless you.
@@atreyuf so sorry you have to experience this, it is absolutely a terrifying time. I hope your wife sees improvement soon and gets to go home. I have a bunch of videos on what you may have to deal with over the next while and some top tips to be mindful of especially at the start of recovery. So glad this helped a little. Good luck with everything.
Thank you for the information. New to all of this. This is my second week home from hospital with blood clots in both lungs.
@@gillianjohnston2168 sorry to hear you’re going through this. There is light at the end of the tunnel and I hope you see improvement soon. It’s a long journey and everyone’s recovery is unique. There’s plenty of info online and there are also very active groups on facebook which can help you get other people’s perspectives too. It also helps to see that you’re not alone in this and there are many others who can empathise with what you’re experiencing.
H Mel - I'm super late to the PE party (if we can call it that sheesh! 😬) . . . but I just found your content and it's been very interesting. This year (January 2024) I experienced sub-acute massive saddleback PE, as my GP calls it, "The Widowmaker". I had 2 embolisms in one lung, 1 in the other, and, as the blood clot specialist at the ER called it: "A VERY LARGE clot in the centre" (of the main aortic branch of my lungs). It was quite the eye-opening, literally death-defying experience! Most of my doctors have no idea how I survived, but... here I am! Previous to all this, I & my daughter had Covid several times. Untested formally for a couple of bouts, but home tests for the others. My daughter even had two tests done by the local Covid-testing clinic, then later the ER - and those tests came back negative, despite her lungs feeling like they were on fire! And despite the public health nurse advising she go to Emerg NOW! lol With that bout, no one was interested in testing me, even though we lived together! We've always assumed I was asymptomatic for that round of Covid. That experience did leave me to believe the tests are not always gospel, and most likely it's best to go with how your body feels. As our GP said, my daughter ticked ALL the boxes so, despite test results it was noted that she had Covid . All that said, we've gotten pretty good at feeling the different symptoms (is it flu? just a cold? RSV? or Covid ?) because even with overlap, we've both noticed slight variations between afflictions. So, I think it's great that your family doctor started to take your Covid symptoms into account, because not only is there the overlap with some of the symptoms of PE recovery, but your major symptoms do seem more long-Covid related. And bravo to your fiancé for asking such a great question (@ 5:35)! I think Covid, long-term, can create so many unknown complications - and there's going to be so much more to learn over time. I think our doctors need to keep it in mind when patients don't seem to 'bounce back' - especially young'uns like you!! I'm retirement age, so I have a whole different set of issues that can create complications, age being one factor. We also need to keep reminding our doctors to keep Covid in mind when we aren't recovering "like normal" for things - like your PE recovery journey. I do want to address the brain fog, or memory loss/lack of concentration or focus issue. For my daughter & I, it was one of the scariest symptoms! And when it happened to us, we were both a couple weeks recovered from having caught Covid just before we left a visit to Europe in 2022. My daughter's convinced that we caught Covid in the Florence Airport, due to no ability to have 'buffer zones' of space around passengers, even if we were all masked-up! And when we experienced the memory loss it was really pronounced! Much more severe than just that walking-into-a-room-wondering-why-I-walked-in-here feeling. My memory got so Swiss-cheesy, honestly, I could imagine forgetting my own name! My daughter forgot numbers, and many simple words for things. She had to read her driver's license over the phone to an insurance agent, and stumbled half-way through, telling the agent she was still on the call, that she recognized the number on the ID, but didn't remember the name for the number, or how to describe it! My daughter was in her 30s at the time. Around that time is when we started sharing with each other we were having this kind of memory issue. My job consists of lots of memory work, so it came back after about 6-8 weeks. But it's a symptom that keeps returning whenever I've had a couple of 'colds' since then. So, that has become a tell-tale sign that we've had Covid make a reappearance in our household. Oh! And those moments when something is 'on the tip of your tongue', or you thought of something, but couldn't share it immediately? Yeah... that thought is NEVER coming back. NEVER. It's gone. LOL Maybe something else will trigger it, but it has yet to happen to either of us, so, yes the best strategy is to either share the idea/thought immediately, or learn the graceful art of letting go. The "share-immediately" plan reminds me so much of when my mother was experiencing dementia. So that's something to look forward to! Yay! 😉 Anyway - I hope you're doing better - I haven't watched all your content yet, still working my way through it! All the best to you! 👏💯❤
I am sure that I got PE through the Covid Jabs. I was on a long haul flight from Melbourne to Dubai (13hrs), then Dubai to London Heathrow (7hours), where I got DVT. The clots eventually went to my lungs but was mis diagnosed by the NHS. It was only 3 months after my return to Australia that I ended up in hospital for a week with multiple clots in my lungs on both sides. Iam now on Eliquis x tabs a day. I forgot to mention that I also have Atrial Fibrillation I was on Beta Blockers to control this, but they just made me very tired and lethargic, I am now on Calcium Channel blockers which do not make me tired. The thing is that I have no symptoms, my Apple Watch tells me I have AFib, so part from feeling short of breath when exercising ( I put that down to more cardio needed), I live a normal life.
Nice video I appreciate that after going through a pe
Thanks for sharing. I had a bilateral pulmonary embolism at the start of this year (28M). I was on Xarelto/Rivoroxaban 30mg to 20 mg 3 month schedule. 3 Days after coming off Xarelto I had no ‘symptoms’ but had on odd feeling, more in my head than leg and was eventually convinced to go to A and E… Boom - it had happened again and within 24 hrs my right leg was un-usable. I had no risk factors or family history of clotting. I hope everyone reading this is well and please please trust your gut. ❤ I’m also on warfarin for life and get bad chest pains 😢
Im 2 weeks out from my PE diagnosis & this is truely aweful I guess my life as I once knew it is over
@@SteveRoberson-t1x sorry to hear you’re struggling. Things definitely do improve and each recovery journey is unique. You can’t expect results in such a short space of time, it is said that it takes up to 1-2years to recover from PE so just be aware that it’s not a fast process. Be mindful of how the next few months go and make sure you have regular contact with health professionals in case anything changes.
Bruh why even ask 😭
@@Cru_DeusVult ?
I’m finding after 6 weeks I get really worn out while walking and no one is telling me if this is what to expect
@@stuartthomas4836 sorry to say but unfortunately the recovery from PE is long. For any severity they state the recovery time is from 1-2years. You will see improvements as the meds keep the blood fluid and prevent any further clotting but it takes time for the body to right itself. I have chronic clots and 4 years later I still breathe very heavily and get tired a lot faster than I used to. Everyone is different but 6 weeks for sure is a small amount of time and I’d expect someone to still be getting fatigued at that point. If it lingers with no improvement I would definitely go back to the doctors for check ups though.
Iv had many of them in my 36 years got diagnosed with a DVT in my calf few years ago was givin blood thinners… I did t take them properly and yeah yesterday I felt like something was really wrong I went to hospital and had a CT scan I remember the feeling of the ink going thru the cannula feel like you might pee your self now I’m home live alone no partner feel scared I have hiv aswell I never give myself resit for that rough time Iv had… thank you for your videos 🤲
Discharged today with multiple same meds I’m scared for my life Iv abused my body for a lil time and got clean 4 months ago but relapses today I feel like I’m slowly committing pain slow suicid I’m scared
@@jaykay7120 sorry to hear about your situation. It’s definitely a scary time and has to be taken seriously. Hope you’re getting the support you need and if not I hope you can reach out to local services for help.
@@MelsHealth thank you I’m in the hospital again they have found e some bacteria in my blood, and yesterday I was assaulted in the uk with 2 lads with knifes a fight broke out and they kicked me in the head and gave me adm eyes in just happy I wasn’t stabbed… I seem to be having a wonderful time at the moment they also took all my money that was to last me the month so now I’m in a position we’re I’m stuck and at my worst end the hospital have offered no dirtier support regarding my blood clots so when I get seen today I will ask them what support they can provide …. S
@@jaykay7120 everything going on back home at the moment seems horrendous. I watch a lot of the updates on X (twitter) as it’s the only way to see what’s happening. Getting assaulted whilst on blood thinners is awful, make sure they check for internal bleeding. As for local services, not sure where you are but I used to work for CGL back when it was CRI in the UK. The services in Sussex were abundant so hopefully there is something similar wherever you are.
Diagnosed with PE about 4 weeks ago and now on medication. Not sure if the drop off in stamina while walking is normal.
@@ukcarver sorry to hear that. I would say it’s absolutely normal as your body has been through a hell of a lot. The basis for recovery is generally said to be 1-2years so 4 weeks in is really fresh. You should see gradual improvement but try not to push it too hard at the start as your lungs need time to recover.
You said recovery takes 1-2 years, where do you read this, do you have a support website? I have some fibrosis and the pain wears me out😂
@@svenhuber6533 tbh when I was first diagnosed and typed it into google it was on a all the websites that appear. Nowadays I use chat gpt a lot and when I asked it today it separated out the severity and the recovery times ranging from months to years. Not sure if you’re on facebook but there are a lot of blood clot support groups that are extremely active. If you see my video ‘top tips for recovery from PE’ they are in there. Also the NCBA is a support community (national blood clot alliance)
I am wondering whether you have fibrosis. I do have some fibrosis, which causes from time to time little pain and ultimately shortness of breath. That can be permanent (I am now 10 month in recovery). However, it still getting less and less pain.
@@svenhuber6533 I have chronic clots that aren’t going anywhere. The hypertension specialist said the only way to remove them would be surgery so other than that they will be there forever. I also have infarction due to the lack of blood supply for such a long time too.
@@MelsHealth Oha, I am sorry for that, and a removal by operation is not feasible for you?
@@svenhuber6533 no worries haha. The surgery is a potential option but it’s not a light procedure. I am planning on making a video about what it entails as it is full open heart surgery including being put on a bypass machine. It’s something that takes a lot of consideration and the recovery would be very long. Kind of a last option if I feel like I can’t just continue in the state I am.
I can feel pressure on my chest and tight ring on my throat just viewing your hiking video. Know how it feels when your muscles are capable more but not getting enough oxygen, perfusion mismatch is not a fair company 😢
Plus: Zink, NAD+,, high protein diet from fish and animals, exercise , fast 1 or 2 days per week for autophagy
Thanks for sharing. Had a similar experience.
I am a very healthy person play badminton almost every week for 15 years but my health detiorate due to Pulmonary Embolism now its been 5 months I still cannot get my stamina back if I walk fast I feel tired and shortness of breath
Sorry to hear this. They say as standard that recovery from PE takes 1-2years minimum so 5 months is not far in to it. Hopefully you’ll see improvement as time goes on.
Hello Mel, I am now in month 9, double sided PE with infection and fluid, on Xeralto. After 3 month the lung was fine no blood-cloth but still little fluid and smal fibrosis (scar tissue). DVT still existing. After 6 month I did the DVT Ultrasound and the legs are fine now. The problems is the fibrosis, still pain after 7 month then I discovered ZINK can heal fibrosis faster. I have been taken ZINK, NAD+ and Sirtuin 1, after 9 month the pain went away. And I am fine now. And yes right after the hospital I started walking 3-5 Kilometer every day, until now. Breathing exercises also helped to expand the lung and stretch the fibrosis.
Glad to hear you are on the mend
Lying ass imposter works for the pharmaceutical industry
Thank you! This helped me understand some aspects of my brand new diagnosis! I am glad to hear that you are still doing lots in life. Thank you!
Hope you are feeling better and doing well ❤️🩹. Take care Mel.
Thank you for sharing this. Recently, I experienced a pulmonary embolism (PE) about a week ago in May. Additionally, I had pneumonia approximately 20 years ago. Currently, I have blood clots throughout both lungs, with the most severe ones on the left side. Interestingly, this episode began while I was riding my bike about two weeks ago. Prior to that, in March, I visited the Emergency department due to chest pain, and at that time, I was diagnosed with costochondritis. In January, I broke five ribs during a skiing accident. The pain was so intense I was bedridden for a couple of weeks and mostly immobile after that. Given my symptoms, I suspect that my PE may be related to deep vein thrombosis (DVT), especially since I experienced intense pain and occasional discomfort in my right calf after breaking my ribs. EDIT: for clarity
Sorry to hear you’re going through this. They should do some testing to see if your clots were provoked by anything else just to be sure. Hopefully not and the lack of movement is all that is to blame. Good luck with your recovery.
@@MelsHealth Thank you. Yes, they're doing more testing over the next few weeks to diagnose the causes. I watched a few more videos: I am sorry that, years later, you are still having breathing problems.
I had a DVT that turned into a PE. For the most part they stated that my PEs were small and they were decreasing in size. 2 months in they now say that the clots in the lungs have desolved. Now, my pain is sporadic. I don’t know if that’s normal or not. Could anyone share.
Every experience is unique but the base line for any kind of pulmonary embolism is 1-2 years for recovery. Even small clots cause strain on the body so when they’ve dissolved the recovery continues. It is also possible that clots of any kind can cause scarring in the lungs that can cause discomfort but this isn’t always the case. If pain persists definitely go back to your doctor but it is part of the recovery process.
Hi. I had 3 blood clots in my lungs May 2019. I have never been the same. On blood thinners for the rest of my life. The damage has left me easily fatigued and I finally had to give up work August 2023. I regularly become short of breath and with other on going issues I will never work again. I'm only 55. Keep fighting and best of luck.🥰
my bro has been released from hospital and he still has clot in lungs. what exercise he can do to get rid of the clot? he is also on dialysis
There isn’t anything you can do to break down clots, it’s just time unfortunately.
@@MelsHealth any exercise?
@@PositiveVibes360 I’m not saying he can’t do light exercise, I started going on very short walks to start with but in terms of breaking down clots that is just something the body has to work though over time. There isn’t anything to speed it up and you can cause more harm to yourself if you go too hard too soon.
Feb 2023 i had multiple blood clots in my right lung. Took xerelto for 6 months then doctors took me off. 21st January 2024 i suffered 2nd pulmonary embolism . Bilaterally this time. I was put back on xerelto 20mg for life this time.
I hope your recovery is going as best it can.
Drinking lots of water helps dissolve blood clots especially the lungs..
Eat or increase a medley of vegetables and beans along with brown rice especially chickpeas and black beans.
I have a steady diet as I’m on Warfarin so have to keep things static and not go high on Vitamin K rich foods. For me chickpeas have previously caused my INR levels to be affected so adding in those or green vegetables they stop my medication from being effective. It’s definitely a good shout for those that aren’t eating well but in my case my diet is very stable.
@@MelsHealth what about lovenox? I thank God my blood clot is undected/ lowered on the d-dimer. It's not impossible it just take God's mercy, time and prayer. I also found out losing weight (fat) does cause the clot to break down and eat food to send calcium in your food to the bones and magnesium glycinate. I read calcium buildup can cause the blood to thicken.
@@MelsHealth have you thought about switching to Eliquis?
@@theuglytruth4303 I was originally on Eliquis when in the hospital at diagnosis and was on it for the first 6 months. I then had a VQ scan at that point and none of my clots had gone away/barely broken down so they switched me to Warfarin.
I was so ignorant about PEs that I didn't know they were so serious and could be fatal. When I went to the hospital, thinking I was having a heart attack, I was told it was a PE. So, I thought nothing of it and was glad it wasn't a heart attack. The night doctor came in and said, "Well, since I'm standing here talking to you, I can say you made it through!" Only then did I realize the severity. PE awareness is certainly needed since I'm sure there are many, many people who are as unaware as I was.
I totally hear you!! I did the same thing! When I was in the ER, the clot specialist came to tell me & my daughter I wouldn't need the angiogram later in the week since the CT scan determined I had PE - however a VERY LARGE clot! I would stay overnight, and right away he gave me a double dose of Eliquis. I told my daughter to Google PE's 'cuz I was so exhausted I was just going to sleep. I slept in the hallway of the ER, at the nurse's station and all the overnight noises and other patients screaming in the emergency ward didn't even wake me. The next morning I did some online research while waiting for the breakfast cart. WOW! I had no clue how close to death I came! Even my GP called a few days later to tell me I came back - somehow - from what they call "The Widowmaker". I had a sub-acute massive saddleback PE. Now I don't say "serious as a heart attack", I say serious as PE! People definitely need more education about this DVT and pulmonary embolism!
Thank you for this information after 2 years I am still not 100%. I still get winded easy, and I have had one micro clot a year ago.. all your symptoms are exactly the same as mine ❤
I did extensive research during Covid 19. Most of the severly affected Covid patients suffered from extremely high pulmonary artery pressure. This was due to pulmonary capillary damage. It's why they often got blood in their lungs.This could be the case of residual scarring.
For a medicine like Eliquis to work, the blood has to make it to the clot. Likewise, if there was an extreme clot that completely blocked flow, the products of that clot (fibrin) might not be making it into circuclation to be picked up by the test. Liquid plumber only works when the clog is close to the bowl or when the clog lets a little fluid by.
That was insane. Red bull sign this chick
I was hospitalized after blacking out twice two weeks apart. The diagnosis was bilateral massive saddle embolism and my heart as being damaged. I was given zero chance of survival and i would be kissing the world goodbye probably within 30 minutes. The doctor said but i could be given an intervenes drug...very powerful but also very risky. This drug could possibly break up the clots but it could also kill me. I opted for the drug. After four days in intensive care i was discharged and instructed to take Eliquis blood thinner. I was told to get to the ER if i ever fell and hit my head. I was also scheduled for a follow up with a hematologist. The cause of the clots remains unknown. I was not provided any other information or told about recovery. I have less energy and strength. I need to sleep a lot. I do not have pain other than the knee pain i have had for a long time. I do not feel ill. I do what i can and am careful not to overdo strenuous activities like yard work. This happened about 10 months ago and all i can say is that i feel like i have aged 10 years. I was 76 years old and judged myself to be a very strong active person when i had the saddle embolism. I did not feel like an "old woman" but now i do. I am fortunate to have survived but i will never be the same. Thank you for your video. It helped me to better understand this life changing situation.
TALKING
Two months complete my lips no improvement help me i cant able to blow air
How are you now
SEND IT🤙🔥🤙🔥🤙🔥
Absolutely brilliant, congratulations. Greetings from the Czech Republic / Europe✌️
Nice🎉👌
Hi Mel 👋🏼 your channel supported me when I came out of hospital last August so thank you. They found two clots one in my artery behind right knee and one in left brachial artery. They couldn’t operate so they are stuck there. I am on lifelong apixaban now. I wondered are you on this still? I also wondered if you fly and if so how to get over the fear of it on DOACs Thank you again for your channel love from Wales x
Hi! ☺️ Thanks for the message and sorry you’re going through all this too. I’m a lifer on Warfarin, I was only on Apixaban for the first 6 months then switched over. I do fly long haul yes! I live in Canada but I’m from England so I fly back and forth to see family and friends usually once a year. It’s a 9.5hr flight on a good day as I’m West Coast. I think being on DOACs stops me feeling any type of way about the flight tbh. If I wasn’t on any meds I think I’d be more cautious with compression socks and regular walks but I’ve honestly treated flying no different to before this happened. I’m just more aware of risks and when I get up to go to the toilets once or twice in a flight and do a couple of leg stretches whilst I’m stood up for 5 mins or whilst watching films I move my legs up and down putting my feet onto tip toes, if that makes sense? lol. I hope you get to go on a nice holiday soon and for peace of mind you can always check in with your doctors about any specific risks you may have with flying and they might give you compression socks or something.
Hi Mel, I’ve been watching your videos since I was diagnosed with a massive PE back in August 2023. I recently had a 6 month follow up and my VQ scan showed a large perfusion mismatch. I have been referred to specialists that deal with Chronic Thromboembolic Pulmonary Hypertension (CTEPH) because of the concern that I’m still having a defects after 6 months. Based on your VQ it may be worth while to ask your doctor about it. It seems like the specialist you are going to is going to test for that. But for your own research I would recommend reading up on it. Some people also get diagnosed with Chronic Thromboembolic Disease. Its similar to CTEPH but the patient does not have hypertension but they have chronic clots. This may give you some more answers to what you’re going through.
Thanks for the info. I do have an appointment booked with the specialists now so hopefully I’ll know more after that as to what they are going to focus on. You’re lucky they are investigating after 6 months, that’s really great. When I had large VQ mismatch at 6months they just switched my meds around and now almost 4 years later & constant persistence from me, here I am. I’ll start reading more about it all. I hope you see some improvement soon too.
warfarin is causing me severe stomach pain and bloating
Apixaban for most people is regarded as the best anticoagulant with fewer side effects if any although for some people they are suited to warfarin. Warfarin is known to cause more cases of internal bleeding. But both are pretty safe.
❤hi here's some sound advice to consider. What is causing your ongoing pain in your neck and breathlessness and walking is,nt your recovery time its your medication Eliquis and three other DOAC,s called direct oral antiguagulants the sise effects from these drugs are responsible for all your pain l used to be on warfrin for a dvt l had then one day my doctor rang me a said hey Martin there's this new drug blood thinner l think you should swap to you just pop one drug a day no blood monitoring or appointments at the clinic for blood inr testing l thought great then my nightmare began these doacs caused hives skin rash breathlessness walking differ ulties hair loss tightness pain in chest back and shoulders dizziness to name a few l suffered these for over a year with no improvement l demanded that my doctor return me to warfrin with some differculty he did since then everything has inproved no more side effects yes its a hassle going to the clinic every month taking blood to check INR but hey better that then those side effects for sure did l also mention spasm of tightness in lower calves when walking Go onto warfrin if you can pet you,ll be safe and most of your side effects will go wishing you well from england
Hi, thank you for the comment. Not sure which videos you’ve seen on my story but Warfarin is actually my prescribed medication. I’m a lifer on warfarin and have been on it for over 3 years. My dad is also a warfarin lifer and has taken it for around 30+ years so I’m in agreement with you that it’s the better choice as it’s over 50yrs old, tried and tested. I’ve made some videos specifically on Warfarin too. I started on Apixaban/Eliquis when I was first diagnosed and in hospital but due to my dad’s history taking Warfarin and the success there I was switched over after 6 months. Unfortunately that means my on going pain etc isn’t due to one of the newer DOACs.
I had my PE in January2021 and was 2 years before I started or feel like I could be on the path to recovery. My respirologist was useless as well and seemed uncaring so I stoped going. I started back to the gym as soon as I could , several months after it happened. It is now 3 years and I am finally feeling like I can completely recover if I continue to exercise . I am 62 but have always worked out, that may be why I made it through. In my mind I believe I am rebuilding my lung that has felt dead for 3 years and I will completely recover. I have watched all your reports and can tell you I have felt your pain, keep a strong mind and imagine your efforts at the gym are rebuilding your lungs. Life is too beautiful to give up.
Thanks for the update Mel your info is really helpful I had a sub massive saddle p e in June 2022 initially it was thought it was due to a flight back from Montreal to London there now saying it wasn't along enough flight they also said it would be a 2 year recovery but to forget that now ive recently seen haematology after 18 months and had advanced blood tests and a echocardiogram I still can't get back to a normal level get very fatigued and have to pick and choose what things I do im a 60 year old male who was previously very fit
Sorry to hear it’s taking its time, unfortunately this process is usually 1-2years for the bulk of people young and old but there always seems to be some sort lingering effects for people not just psychologically but physically too. I say to everyone to continually pester their health professionals and keep on the radar as it’s easy to get lost and forgotten about. I hope you see some improvement soon.
@@MelsHealth Thanks Mel for replying much appreciated