I sometimes equate having MS (secondary or primary progressive particularly here) as rather like having to be 85 years old in your 40's (or younger!) What to do? Well.... one has to learn how to be an amazing 85 year old - and keep that going until you are 95 years old :) Doable - we become old hands at it, Paul - and, by Jove! We will do that well.
I have begun to get worse since the end of 2017 right after I turned 40 seems like when I went to Texas to spend Christmas in 2015-16 with my oldest brother I had gotten home in January 2016 and I was told I had the JC virus and couldn’t get anymore Tysabri and when Ocrevus was approved I started that with no luck I continue to decline I’m unable to do anything alone I was so grateful to be independent until I lost everything. I’m a very grateful woman after losing my parents and getting divorced from a narcissist who was emotionally and verbally abusive and I’m happily divorced from him with 3 kids and he continues to lie to my kids about their mother. I don’t let depression into my life because I lived that way for 8 years out 18 years I was with my ex husband I am now 44.
I sometimes equate having MS (secondary or primary progressive particularly here) as rather like having to be 85 years old in your 40's (or younger!)
What to do?
Well.... one has to learn how to be an amazing 85 year old - and keep that going until you are 95 years old :)
Doable - we become old hands at it, Paul - and, by Jove! We will do that well.
I think... you will never be quite as depressed as you have been in the past over this.
We all have to make that jump.
I have begun to get worse since the end of 2017 right after I turned 40 seems like when I went to Texas to spend Christmas in 2015-16 with my oldest brother I had gotten home in January 2016 and I was told I had the JC virus and couldn’t get anymore Tysabri and when Ocrevus was approved I started that with no luck I continue to decline I’m unable to do anything alone I was so grateful to be independent until I lost everything. I’m a very grateful woman after losing my parents and getting divorced from a narcissist who was emotionally and verbally abusive and I’m happily divorced from him with 3 kids and he continues to lie to my kids about their mother. I don’t let depression into my life because I lived that way for 8 years out 18 years I was with my ex husband I am now 44.
I only hope I have half the strength you have demonstrated, under conditions that break my heart for you!