QUARANTINE Week in my life with a CHRONIC ILLNESS. How i manage ONLINE UNIVERSITY and ME/CFS.

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  • Опубликовано: 26 окт 2024

Комментарии • 10

  • @JessieLee_
    @JessieLee_ 3 года назад +2

    I definitely am so glad you said everyone is different and feels different with ME/CFS! I had so many say to me I know this person that works that has... fibromyalgia or something else. Most around here have no clue what CFS is. So glad you said that ☺️ I always suggest people watching the Documentary “Unrest” by Jen Brea. On Netflix. She couldn’t find help so she basically decided to record herself for 2 yrs and had others join virtually all from bed mostly to document what it’s like and to inform doctors and others about ME/ CFS.
    Btw you look adorable 🥰 You look really pretty with blonde hair and pink hair, I really love it 💞

    • @ElinorBrown
      @ElinorBrown  3 года назад +1

      Yes! its really important to me to make sure I'm not saying blanket statements about everyone with ME/CFS, because I only really know my own experience! Yes, people do say things like that to be too and its not very helpful, we are all different, and what they can do doesn't actually help me 😂 I'm not sure I've seen that documentary, I'll have a look! and thankyou so much 💖

  • @JessieLee_
    @JessieLee_ 3 года назад +2

    Taking a shower or bath is so hard 😪So I wait as long as possible to wash my hair as well! I love your hair , but yes please do dye your hair on video 💞💜💞
    You’re calendar/ journaling is seriously goals

    • @ElinorBrown
      @ElinorBrown  3 года назад

      Yes! Showering is such a drain of energy!!
      I'm still planning to do it at some point, but i have died my hair twice since then, so im not sure when 😂 maybe next time ?? 😂
      Thankyou 💖 its a bullet journal!!

  • @genericyoutubehandle.
    @genericyoutubehandle. 4 года назад +1

    The disclaimer, the honesty, the 'fits... I'm in love 🥰

    • @ElinorBrown
      @ElinorBrown  4 года назад

      thankyou !! love you so much xx

  • @maggieraybould3873
    @maggieraybould3873 4 года назад +1

    Another great video Tawny. Im sharing your channel with 2 friends who both have daughters with CFS. I think they’ll both appreciate your honesty. Just wondering if you’ve got nutrition tips to share at some point as I know food/drink can have an influence on CFS? Maybe a future video idea??? Sending hugs as always x

    • @ElinorBrown
      @ElinorBrown  4 года назад +1

      Thankyou so much Maggie !! i hope they find my channel usefull ! Yes there are lots of things in nutrition that can effect cfs but the main thing is to find what is best for each individual through trial and error, unfortunately there is no one magic solution !! I will definitely put it on my list, it could make a good video !! hugs to you too x

  • @Neovipera
    @Neovipera 3 года назад +1

    Hiya! Thank you for another video, your editing skills are really great!! I have to ask - where did you get that adorable mini hot water bottle from!? I want one!! Also, I just want to give you a hug. Despite the horrible pain and anxiety and exhaustion, you are still getting up in the morning and doing your best :)

    • @ElinorBrown
      @ElinorBrown  3 года назад +1

      awww thankyou! I dont know where its from because its a gift!! But im sure you can find something similar online!