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The thing is, just because your mum likes museums, doesn't mean you will. I hope you find what you do enjoy and that your mum supports you. We are react differently to different situations.

I felt very similarly about Madrid. It's a very full on, intense place and doesn't quite have the same romantic, chilled vibe as Paris. I think sometimes things just work, and sometimes they don't and we don't always know why.

I feel for you. I presume you are talking about the Prado museum? I went around with a friend and I could not drag him out... it felt exhausting waiting around for him and I felt super bad that I wasn't enjoying all the amazing art. Don't be too hard on yourself, these buildings are amazingly stuffy and austere. No wonder you were overwhelmed and felt ill. I remember going around the Uffizi art gallery in Florence. It's a massive art gallery and takes hours to go around, with so many masterpieces to see. I felt jealous of the small children who seemed to have masses more stamina and interest than I did. And I LOVE art!! The truth is, museums and art galleries can be overwhelming and over stimulating at the best of times. Do not be too hard on yourself. xx

By the way, thank you for your ROLLZ candy pink videos. I just got mine yesterday and it's an electric! Because of your videos i chose the awesome pink!

So nice to see a new video made by you! Great you're getting a bit more independence with your new car! It's lovely!

I feel the same way, i’m going to to be getting my first one soon.

Recently, I upgraded from a regular chair to an electric one, which sparked a similar feeling of transformation. My creative outlet involves crocheting, and I’ve even designed Yarnie boy stickers that pique interest. Embracing personal questions and socializing are essential aspects of growth. Your algorithmically recommended RUclips videos have been truly inspiring. While I aim to travel and make new friends in the future, I also acknowledge the invisible stigma surrounding individual disabilities. Thank you for motivating me to create more videos! 7:07

Awh nawh Clioh!!

Congratulations , I have mobility problems & have been thinking of purchasing a car . Wishing you every success & here's to freedom & new beginnings .

I get a powerchair from the Motability scheme as I struggle to drive a car more than once a fortnight so I didn't think a car was worth it. My partner has a private wheelchair accessible van so I use that just don't drive it. 😂 i have to drive an automatic as I lost my manual licence due to EDS & ME as I have a medical licence.

and yes I have all the questions about the motability thing cause I absolutely don't know what it is ... at first when reading the title I thought it was going to be well a scheme video ... like if you're were going to talk about how people are falling for a schemed 🙈 Maybe because English isn't my first language who knows xD

When you are on the couch sleeping almost all day because you're so tired and one of your fav creators uploads a video <3

wow great that this is possible in the UK :D

Great to see you with more freedom and independence 🚗

Great video, I will come back to this if I ever get PIP approved, I'm considering getting a car. Its been 1 year since I first applied for PIP. I'm still waiting for my appeal hearing, and I will also have to update them as I get it anyway as I can't walk as far any more, and I think you need to be able to walk less than 20m to get theon the motability scheme.

Im so grateful for your channel. Its so comforting and inapiring as someone with moderate cfs and still coming to terms with mobility aids etc.

I'm 27 and def have this and didn't even know what it was until I found it myself, my doctors are useless at diagnosing.

Hello, just found your videos. Struggling with ME/CFS for a few months now, I think the illness was here since 2018 where I had a very bad virus and many things changed since then. But because I did not know that I should not push through I thought I could train my body to be able to function again. February this year after I guess some other infection (which I had a lot in the previous years aswell) suddenly everything became extremely bad, I got a lot of pain, sleep problems, of course the extreme exhaustion, crashes after physical and mental activities, and a lot of cognitive hardships. I cannot read anymore, which I loved and I am a very fast and passionate reader. I just cannot follow through. I cannot stand for some time, not even talking about real activity. And the last part you describes with finding the rules is the place where I am currently in. I have no idea, what I can do, when I need rest, how to even be able to get my environment to support me in this and respect my situation with the rest I need without me whining about constantly. Its such an overwhelming feeling to suddenly dont know yourself again even tough you thought to finally know yourself. I could do a lot before February, even tough I surely was not well since this infection, which I just realized in the last couple of weeks. BUt it has gotten to the point where I have the feeling I cannot do anything at all, but I wanna, I just cant stand it to lie in bed all day and accept that, I wanna do something I like and be able to be me again. Thankfully I finally have a good doctor who knows about this illness, thanks to my general physician whom I have mad respect for thinking about this illness even tough there is so little knowledge about it in my country aswell. BUt still its hard to find the rest when you dont even wanna rest but know you cant do anything aswell. SO I really could relate and hope you find your rules again and maybe they better a bit after some time.

Thank you for your videos 💗 I’m 23 from England too with CFS, and it’s lovely watching your channel 🫶

Hi lovely, thanks, this is the second video I am watching on this as I have a few too many health conditions, but 2 main ones that have affected my life and still do everyday to this day ad onwards and ended me up homeless and having to give up my job in healthcare, ended me up in a coma, yes I been through a lot as I am sure you have but I am reapplying for PIP, ADP called here in scotland as they changed it so far I can't say I've had a bad experience in contrast to UC where after a seizure I was slowed speech and todd's paresis and the caller took advatnage and said be a good girl for me I want to sue them but couldn't do anything; anyway so I am reapplying now for PIP or ADP as I didn't know as I never been in this situation tbf that it is not means tested which means they can ask my doctor for rest of the medical info they require and even if my condition changes in the future (which I hope it does as I don't wish to live in the poverty line like this forever with my health like this either) that I can still have suffcient cash to pay for my bills as i ran out of savings that i was sab]ving for my future cancer research degree. Like you my epilepsy and other conditions got to the degree I almost died myself because of the neglect in treatment I got and I'll save that story for another day but universal credit it's awful because if you, like i AM thinking after you reach a threhold (say with PIP/ADP + UC I reach a certain amount in my bank account the UC wil start subtracting money; that is what worries me the most that I just realized). I'm redoing ADP as as you know and lots of disabled people trying to apply for benefits to help them get by, as our health is daily affected by our conditions, I was and still am in out of hospital with seizures and it's exhausting to the point i can't walk talk or breathe or go into status epilepticus which messes up with my brain and ttakes time to recover, so my 90 day expired and i was barely getting any money by UC, local council didn't give a damn and only complicated things even further and took advatnage of me: i must say, i have a better and deep understanding with people going through similar things as me and why they are so outspoke now about this, because it's so bs and the way system is in place, it's bs how are you supposed to get anything done, when they're trying 1. take advtange and lie to you about certain things and you don't have a degree in law so you don't know what applies and what doesn't and then come to find they took advantage of you and made yousuffer even more unnecessarily for nothing, at already your lowest point? and 2. backtrack something in the nrxt apointment saying oh i didn't say that but when you dig deep with questions you come to find oh yes if you don't do this you'll have to resubmit a fit note that you have to pay for each time, if doesn't reach on time and so on like wtf? it's horrendous, thus as you state it put me off for a long time as i simply couldn't and I am trying now but it's draining the energy out of me but thankfully i am having an ok day (fingers crossed no jinx) still having seizures today but i can manage to an extent. I just wished there were better and more advanced things for disabled +homeless people here in the UK in place to help them. At least where I am in north scotland, Aberdeenshire, the system is i don't even have a word for it; it's that bad. Where is all the help that you always see and people say oh we will help or help homeless, for all the months I was since september 2023 and in hospital before i was placed in a hostel and i had to fight myself just out hospital for a temporary place and the hsotel alone cost me nearly £500 just for a single night. WHere's all the help they so bragabout? nowhere that I have seen that actually helped me. COnstantly phoning food banks to no avail, only in recent weeks I found some, but the winter with just my savings for my future degree I was hoping to complete to help my family someday are now gone and with this thing of UC takng money after you reach a certain savings threshold then how am I supposed how is everyone disabled and or that just lost everything because oft their medical conditions live? it's truly awful and an eye opener when you are the one going through the system yourself and I do not wish this on anybody. frm my long testament, any disabled/medically affected humans in the UK that have both Limited Capability for Work + PIP (or ADP) can let me know how do you have enough to pay for everything bills wise and still have a life that you want to pursue career or for a mortgage for a house or anything wise? because I am struggling and battling of, will I just have to cut UC out eventually? currently i only have the standard as since 2023 still applying for LCW as despite submitting a fit note as UC told me to 3x times they never told me it wasn't accepted and only told me to put 100 years due date since my GP said you don;t have capability for work due to epileptsy and in the note he said i don't need to renew this after 28 days and when i asked uc that's what they said to do, i caleld them up to check and resubmitted and they said was ok but ever since up just to now when i finally got a permanent place not in my choice as i coudln't stay in teh temporary forever and the winter with the storms we had and pooor insulation and me spending in energy to keep me from going hypothermic and that getting me sick with pneumonia and further increasing my seizures in a village without much signal due to the geographical position and not able to even put a stick on weather proof against the doors so wind and rain don't come through the bungalow and my heating all goes to waste as well as my money; yeah i suffered and still do with the council a lot + UC. I am really hoping with the PIP/ADP is different.

Well done! Btw would you be open to trying on the phrase “using a wheelchair “ rather than “being in a wheelchair “? It sounds imho more empowering. I use a wheelchair and can’t walk at all. But I think of it as a tool. Like a knife and fork. Or social media (which you do so much better than I do!)

Where did the haters get their medical degrees?

Thank u for showing me there's others like me! Love your video, thank u for making me feel like a person for a change x

Now now not now now

Love your videos! They are a huge help, thank you :)

Speaking of being stylish, due to also having me cfs and fybromyalga and more, about to get my first wheelchair, my biggest passion is doing crochet, trying to decide what to make first, full wheel covers, armrests covers or something else? Currently making myself a lap blanket ready, I was just wondering on your suggestions xxx

I get exhausted and in pain easily (still trying to figure out main cause), so something I found really helpful with cooking is a rice cooker. If you just want to heat up something or cook something small, I always use rice cookers because it's easier to use. I have one that is small and it is just one button, it goes from "warm" to "cook", then you set it and forget it, check in occasionally depending on the food to cook and easy. I found that much easier than taking a pan or pot out, or putting the food in the oven or microwave, because it is just so much less to worry about. Hope this helps anyone!

Thank u so much for making this video! Im having a really bad flare today and felt os guilty for not being able to get up out of bed to do something I was expected to but couldn't. I layed there, unable to move, so thirsty but noone there to get me water. I couldn't even reach for my phone. So when my partner came home and I got water and after a while I felt better physically, but felt so ashamed mentally for being so unwell and worried about not being believed, watching your video made me feel like I have a friend who's got all the same issues as me and you're just cheering me on, making me feel like anyone hwo misunderstands can just f* off. So thank u!! 💙

Looks good but I got jy electric wheelchair (Instafold) for £670, and that gives me much more independence than this rollator / push wheelchair would. However, I'm defo thinking of getting a rollator, just gonna find a cheaper one. Look really handy for those days where I'm well enough to walk but not far and don't wanna use my wheelchair xx

I just found your videos 😅. And I wanted to say I love your style and how your mobility aids just flow with everything. I agree with what you said about how your mobility aids don't always have to look medical. Since I'm still young just turned 40. And I like to dress up when I can. I love the fact that i can have my mobility aids and still feel stylish and confident. Tbh, society makes fun of me less when I have stylish mobility aids. They tend to respect my disabilities better. And don't just see me as a charity case.. Or treat me as if I'm faking everything. Even bars hold my mobility aids for me sooo they don't get lost or stolen 😅💜

UC will affect the flowing You will soon stop getting the following benefits: Child Tax Credit Housing Benefit income-related Employment and Support Allowance (ESA)

Why do chronically ill or disabled people have to look and dress miserably to be convincing enough?

What you said about the cane being a signal to others that you need accommodations is SO true. I don’t always need mine, but sometimes I take it with me just so that people will understand. My latest mobility aid purchase is a byACRE rollator, and it’s awesome! It’s a really good midpoint between my scooter and my cane. Sometimes taking the scooter with me is just too much. But with the rollator, it helps with balance/fatigue/pain, plus I always have a chair when I need one, plus if I let go of it to pick something up when I’m shopping, it doesn’t fall on the ground!

I get really bad flareups of my illnesses if I don't get at least 12 hours of sleep, idk what to do because its interfering with my school life!

I have one as well

I'm the same way but with a walker instead. I got my first rollator walker earlier this week. It has been a game changer. I mostly got it cause I'm dealing with POTS and struggle with standing and longing too long. I decided to get a walker so I could sit down at traffic lights or bus stops that don't have the seat. I noticed that since I got the walker I don't get as winded when walking and my muscles don't ache as much cause I'm not having to carry a the things I used to have to carry. Definitely made a huge difference.

Cried a little when you spoke about pushing through being the wrong thing to do. I've been trying to get my high school diploma in my early twenties after having had to drop out as a teenager due to disability, undiagnosed at the time and I've reached the point where I've repeatedly cut back on my timetable and workload and it hasn't helped. It'll definitely take a while to get back to a sort of baseline where I can manage day to day. I can't speak to your personal experience but I've had a lot of people around me who overestimated by ability to cope and I wanted to complete school so badly that I've pushed myself and let myself be pushed far beyond what's reasonable and acceptable. Sorry for this long long comment but it's such a relief to see I'm not alone in struggling for ages and then struggling to try and readjust and recover with a 'new' kind of illness.

I started thinking that since a disability aid is something to improve your life even when you can live life without it I started to see other things as mobility aids. Like stim toys for those with Autism spectrum disorder or ADHD. those among those communities can life life without their stim toys but their quality of life can significantly improve when using the stim toy. It can improve concentration among other things. So technically by the standard of aids being their to improve life there's a lot of disability aids that are not normally seen as aids

Last night on the bus I saw an elderly lady with a cane that had a butterfly design on the cane. Why is it that people who are elderly and people accept them having a mobility aid accept them having a designed mobility aid but those who are younger or have the invisible illnesses can't have stylish canes? I feel it's discriminatory. People accept the elderly having mobility aids and have them stylish but not those who have an invisible illness. It doeant make aense

Dear Badsz, I think this is CFS please go to the Drs. You will probably have to go to a Specialist. That feeling like your dying seems to be a part of ME Blessings and Luv from Sandy in NZ❤

This came at the right time. I had an accident last year, which has left me with reduced mobility. I use a stick for walking and request a chair in almost every shop and venue I visit. People often treat you terribly when you're young and disabled (I'm only 33) as if only older people have the right. Thank you for raising awareness and sharing your story ❤ ps you're beautiful

Cfs is a hypersensitive nervous system, you can beat it

I have problems with weak legs and I run out of breath. I’ve started looking at the Overland off road rollator. I’m thinking it will help me go places and not worry about falling.

One of my worst public encounters, while using my Rollator is old people who can’t control their ignorant comments. I look very young for my age, and seeing me using a mobility device really confuses people. One lady even blatantly asked, “what’s YOUR problem?” I physically look healthy, which makes even difficult when seeking medical treatments. The level of disregard, is astonishing. People are so used to seeing jacked up people. I don’t think want you to make the best of your situation. You are trying to normalize mobility devices. I have been accused of being self conscious for thinking people stare at me more when I use mobility devices. Thanks for validating my perception.

Could you do a video about your diagnosis experience? Totally understand if not but I’d be curious to know more about the process

❤hi Elinor, i hope you see this message do you have a video to explain what helped you get from 1 month crashes to then just lasting a couple of days? How did you heal your body and get to this point? Im struggling 😢

Hi lovely review, how tall are you? You looked a little hunched over at the highest setting with your heels. I get neck and shoulder pain easily. ✌🏽+ 💜

Why do adults dress like 4 year olds idgit😂🤣😂🤣😂🤣

My wheelchair gif me freedom , it wil do that to you too

WOW WHAT A GODDESS ,, LOVE THE PINK HAIR