I hear you on this. I was recently confirmed with having CFS/ME (symptoms started in mid November '22) on top of all the other shit that I'm dealing with (dysautonomia, adrenal insufficiency, Sjogrens syndrome, CRPS, central pain syndrome, hyperalgesia and allodynia, CIDP, Adult onset tourettes and the disease that I give an equal view of a video game that is unwinnable and will likely be a partial cause of my death eventually-> insulin dependent diabetes). I've found that if I push myself to even a smidge past what I'm able to tolerate doing I end up feeling like the constant brain fog feels like quicksand, get a super sore throat that hurts to even have air passing over the tissue of my throat and the need to drop what I'm doing to go and sleep.
As someone is also disabled l think its great there are medical aids out there that fit people’s aesthetic. My disability is entirely invisible so l know first hand what its like to get a ton of crap. I also fully agree that disabled people can wear what they want. People need to understand that disabled people are still people. Being disabled doesn’t mean you stop being a human being.
@anamegoeshere well your not in her body are you? You should not think everyone is the same. I can walk 5 minutes but when I get back I'm dead tired for a few days. Seriously who cares what she uses. I would use the same .
@@anamegoeshereyou literally have no idea about disability or mobility issues, let alone energy limiting or relapsing-remitting conditions. Your ableism is showing
@@anamegoeshere that's not you damn business 1 it's her money used to get it 2 it's her damn body 3 if your not her or her doctors it's non of your damn concern
yeah im the same my chair is black mainly because I didn't want the paint to chip off and it look bad. but instead I have some things that go on the spokes of the wheelchair with loads of different colours and my chair was about £2,500 after all the extras I had t buy it as I was told I wasn't disabled enough to get any money towards it as I can still walk.
Same!! My custom chair is a darker purple and I was very lucky that insurance covered mine as it was about $3,800USD (about £3,000 i think). If i was faking there's no way insurance would have covered me with all the hoops I had to jump through.
My manual chair is also purple but it was nearer £2.7k after the specialist cushion was included and that’s cheap for a custom chair. What a lot of people don’t understand is that the chairs they see advertised often aren’t suitable for everyone and the so-called manual chairs on the nhs are incredibly heavy and difficult to self manoeuvre
Way before colorful mobility aids, I was painting my crutches with nail polish. I’d change the design and colors whenever I felt like it. I remember almost everyone going ‘what have you done to your crutches?’ (Like I’m a child!) to then slowly go ‘yeah they look nicer this way’. I’m sorry the mindset hasn’t changed much. ❤
nail polish is underrated as a way to customize mobility aids. I mostly use stickers on my wheelchair but i use nail polish to decorate my water bottles and that stuff works really well and lasts a while.
@@saltydinonuggies1841 nail polish doesn't ruin the mobility aid? Asking because I have a walker. Maybe I could decorate mine with my yarn? AKA yarn bomb it. 😁
Wonderful video and lots of good points, you explain everything so well. I always like to approach the "your mobility aid is aesthetic so you don't need it" comments by talking about glasses. Glasses are a needed tool, yet everyone always picks ones that look cool or cute to them, that doesn't mean they don't need them! There are lots of aesthetic glasses because we've socially gotten rid of the 'medical' aspect to them, but they are still medical aids, just like a mobility aid is an aid. I hope someday people can see mobility aids in that way too, and it'll be more normalized like glasses are.
I have MS and im new to using mobility aids, i had a comment this weekend that "i dont really need the chair though do i" and " your arms are alright though!?" because my husband was pushing my self propelled instead of me" honestly i want a pretty cane instead of my careco one, im glad you did this video as its made me think yeah i can have pretty aids and also the shoes thing! Love your videos
Oh my lanta we humans can be rude. We need more cooperation and compassion in this world not money or things. I’ve stopped taking comments like that personally. It’s a reflection of them not me. They treat the person they see in the mirror the same. Trust me. Forgive and move on. Not worth your precious life energy.
People think disabled people have to look disabled! There's a thing called invisible disability! People need to educate themselves on disability! I had a stroke due to a brain tumor four years ago! I'm doing better and I need a wheelchair if I have to walk a lot like a mall or amusement park! I'm 53 and I made my own walking stick I carved a snake out of my sturdy walking stick! I make movie props so My creative side I wanted to make me a cool walking stick! You use whatever walking stick you like! That's what it makes you! Love your attitude people like you inspire me!
Yes, some people get way too invested about what disabled people, OTHERS, "should not be allowed" to do. I believe it is displaced fear. They have not faced their own fear of death, so they try to manage their fear by controlling, exiling, or persecuting disabled people. That won't help them, of course... they are still subject to "luck and time." They might soon come to disability services in a location near us😂
i love where you talked about how everyone seems to think you can only be happy if you're cured. i'm only about 1.5 years into my disability journey, and it has been very hard to cope with it. at this point i feel like it can go either way. but my mom is very convinced i need to keep trying things to "cure" myself. i don't even have a diagnosis, so how can we cure what we aren't certain of? not only that, but its very expensive to even get a diagnosis (here, doctor's appointments are like $100 just for them to talk to you for 10 minutes) and even more expensive to try different treatment options. i think there's nothing wrong with accepting where i'm at and trying to be happy and find the joy in having a disability. i'm not hurting anyone or myself by continuing what i know works for me, and i think it is a good solution until i can make the money to find out more. thank you so much for this video. i've barely started sharing about my condition online and i am lucky to not have gotten any comments like this yet, but watching this makes me feel like i don't need to be scared!
My mum definitely used to be the same! I think parents want to protect us/save us from any difficulty but they cant in this situation so it morphs into an obsession with finding cures/treatments. Of course nothing wrong with looking for things to help but for me trying every new thing that might help a tiny bit is too hard physically and emotionally so I choose not to chase cures at all anymore. I kind of think if they discover something amazing and its properly scientifically tested and peer-reviewed and legit (anything less than this I personally don't want to try), I'll hear about it. I don't need to be searching. + I don't need a cure to be fulfilled and happy!!!
Stupid question and likely invasive feelings on your part, but as someone who has a wide array of chronic illnesses of which many have a few distinct (unique, zebra type specific sort) symptoms even though many symptoms do overlap, I may be of some sort of use to point you in the right direction for the type of specialist that you may need and what tests would need to be done. Only reason why I offer a helping hand for assisting someone who is undiagnosed is because of my wide array of chronic illnesses (cfs/me, CRPS, central pain syndrome, hyperalgesia, allodynia, dysautonomia with too many secondary diagnoses that accompany the primary diagnosis of dysautonomia, CIDP, adrenal insufficiency, adult onset tourettes, Sjogrens syndrome and diabetes) and as a result I spend quite a lot of time secluded in my nice, comfortable and dark room laying down as that activity is the least offensive (doesn't trigger me to become symptomatic, so yay..... 😒😒) for my janky and seemingly, falling apart body.
@@Leslie_ann_h that’s very kind of you to offer! i’d love advice, though i was planning on just going to see a family practice doctor and then seeing where they refer me. i dont think there are many specialists i can see without a referral… are you US based?
@@topes_soup I'm in Florida, so yes, but symptoms are still symptoms and the tests needed would be quite similar even with country differences. Although, for reasons I have no clue why it works but if you've ever been on hydrocortisone at an upper limit per day of about 15 to 30mg for an extended amount of time and your symptoms improved, that has the possibility of eliminating half of the zebra type chronic illnesses (those that don't respond well to steroids). Although one chronic illness that comes to mind that has an INSANE amount of symptoms and body functions that it affects is dysautonomia which affects about half the global population symptom wise but the symptoms are typically written off as being their own conditions and it's not until someone actually goes through the full list of symptoms from the various body symptoms that a person would get a diagnosis of dysautonomia.
@@Leslie_ann_h this is really good info! do you have an instagram or discord so we can continue in dms? i dont want to fill up the comments ahah. i’ve considered POTS and hEDS diagnosis but i honestly thought dysautonomia was a symptom, not a diagnosis. thats so interesting! the only things i know i’ve tried long-term are pain meds and supplements, and also a diet. none of them seemed to do much if anything. hydrocortisone sounds familiar though, i’ll have to look through things ive tried because i feel like maybe i was on that for a bit, but i cant say for sure.
I find it funny how people are sometimes like "you just want to look disabled, you maybe have some fetish on medical-related things"or "it makes you look ugly, leave it at home", blah blah, but then they see someone trying to make mobility aids look "normal", more fashionable and less pitiful and then it's basically "well, clearly you don't need it, otherwise you'd used the gray one". (Btw, this is coming from someone with a plan black cane and white/black crutches that aren't customized at all.) I strongly dislike how people assume something is a psychological thing if they don't see the person struggle in a way that's undeniably physical (such as having no legs). Like c'mon, that's almost an insult to the capabilities of human brains, especially when people understand that people may need for example glasses even though they "don't look like they need them" or even need glasses just sometimes (such as for reading or driving). Also, the audacity of people to tell you stuff like this when they don't even know you... And I totally agree that these comments hurt way more when they're coming from someone disabled. But we need to remember that disabled people can be uneducated about certain topics or ableist too.
As a person with a learning disability I wish my disability was visable. I told my stats professor when I was in college that I have a disability and so I struggle with math. He said that he hears that a lot. It was so frustrating because I have an IEP since I was in grade school. I was just asking if he could help me to after class. Maybe explain the concepts from class in a different way. I wasn't using it as an excuse, I was only trying to advocate for myself in order to get my needs met. I never had anybody not believe me about my disability before that. I was both shocked and disgusted by his comment. I think when I went to his group tutoring session after class he realized that I was not lying as I really struggled to understand the concepts. It felt kinda good to see his face when he realized it. Hopefully that taught him not to accuse people of faking a disability just because he can't see It. Thankfully I've found most people are curious about my disability and want to help if they can.
This makes me terrified. Not only have I been steam rollered in the prime of my life by a serious, debilitating illness that's not even my fault, but it's also an illness that makes people hate you.
@@pjaypender1009 So, smoking related lung cancer is not the fault of the smoker? Alcohol induced liver cancer is not the fault of the alcoholic? What's your point?
Thank you very much for this video! I have been disabled for over 20 years. I had a stroke when I was 22, from an inoperable brain tumor, that I was diagnosed with 14 years ago. My life sounds so much like a soap opera. The people don’t want to listen to it. I lost my eyesight completely four years ago, and before I had the equipment, I couldn’t even communicate with anyone. Still, they… even my family said terrible things to me and accused me of lying. They would not listen to me. I like to laugh, and I like to have a good time. I have friends who love me… Life can be good. Once you get away from the able-bodied jerks. Thank you very much for this video. The lives of disabled people are often very bad. Thank you for Making an upbeat video about it. We are allowed to smile! Disability is real. Obviously. Some people have no empathy. Thank you again for the excellent video. Cheers!
In regards to the anti depressants or ME/CFS being a phase. People really shouldn't comment on your medical condition to prescribe you medication or similar. Not even if they have the same diagnosis or symptoms. Not even if they're a medical doctor. They're not _your_ medical doctor so they don't have the right or the information to do so. Also I love the cane! Of course you can use any cane that's most suited for you! In heels, in a difficult to walk outfit or even drunk if that's what you fancy. People really need to stop judging others💛
As a long term (since 2007 being officially diagnosed with first chronic physical illness) individual, I have many options for mobility aids that depending on the day/how I'm feeling physically to determine what aid/combination of aids. I have forearm crutches, AFOs, a rolling walker with seat, a wheelchair and my own sheer dumb luck that I will absolutely pay for later on. Those who don't have chronic illnesses, and even more so if they also have chronic illnesses but not even close to the same really need to be able to medically be put through the same shit we deal with even though it would be temporary.
My attitude to getting a splint with a funky design was that people are gonna stare anyway so may as well make it pretty! It’s ridiculous people seem to think disabled people can’t possibly be fashionable lol
People really, honestly think that disabled people just sit at home all the time being miserable and constantly thinking about their disability and nothing else.
Elinor, I love your explanation with the house and the window(s). So true 😊. Every disabled person has tried out so much to manage life - that's 100% sure. And every person explores a different personal setting (medication, mobility aids, personal support...) that's helping best. Comments without knowing the circumstances are just disrespectful. I hopefully get my first wheelchair soon and I'm excited to make it my own and my style. Because I need it, it should fit me in every aspect.
@@ElinorBrown Yes, Elinor has such an easy going way of even making the complicated stuff feel good. And Be Knight I send you success and strength on your adventure. I am a very proud wheelchair owner, and for me it just keeps getting better! And friends this is my first ever joining in on a conversation! Nice to be here!
We humans can be so hurtful and rude. FYI it’s very human to care what others think. Our world needs more cooperation and compassion not money or things. I’ve stopped taking rude behavior personal. Ask ‘do I like or respect this source/person?’ No? Not worth precious life energy. We only have so much use it wisely and with self love/respect. Sadly these days many people have little self esteem or self awareness. No excuses just adding perspective. Best for you/all of us to forgive and move on. Tip: Don’t engage or reward ignorance with attn and if you do say what you need then let it go. Peace and health. Edit: I give huge props to anyone willing to put themselves out to our crazy often harsh world thru social media incl YT. Good for you.
I would say do it if it means you can go out and enjoy life then thats is great, even just going out for a coffee helps, I was worried about asking my friends to push me if I meet them without my wife and found out I didn't need to worry as I didn't even ask and then just started pushing me.
If people can have designer/flashy/blinged up glasses then why can’t we have the same in mobility aids?! Younger people wouldn’t want ‘granny glasses’ so why would we want a ‘granny cane’?
Thanks for commenting on some very oblivious comments. I’ve had ME/CFS since 1984. I’m so glad I didn’t throw away my aids & sit around waiting to get well. It would have been a long, boring 39 years. Love your videos❤️
Thank u so much for making this video! Im having a really bad flare today and felt os guilty for not being able to get up out of bed to do something I was expected to but couldn't. I layed there, unable to move, so thirsty but noone there to get me water. I couldn't even reach for my phone. So when my partner came home and I got water and after a while I felt better physically, but felt so ashamed mentally for being so unwell and worried about not being believed, watching your video made me feel like I have a friend who's got all the same issues as me and you're just cheering me on, making me feel like anyone hwo misunderstands can just f* off. So thank u!! 💙
Thank you so much for this video. It is reaffirming and gives me much to consider. I was recently diagnosed with me/cfs and the struggle is real. Your perspective regarding learning to accept your limitations and your transition from using the term illness to disability is very helpful. Lastly, I am considering getting a wheel chair but am still fighting the stigma. Thanks for your owning who you are and what you need.
hey im just about to customise my crutch for the first time. if i may ask, do you have any advice on customising mobility aids? any tips and/or tricks?
OMG... When I was still using a Cane/walking stick I was known to wear Coyboy boots with a riding heel. I wear what I like and don't judge others for what they wear. I am waiting for my first wheelchair. I have been told the same thing. I have been told by family to just suck it up Everyone has pain and hurts also. I can still walk some. No matter what anyone else thinks I know for me It is time. If they think I am fake I don't care. I was in a low place until I found your video. thank you
I’m only halfway through this video and I just have to say how amazing you are!!! Thank you for this!!! I had a doctors appointment and he kept saying mind over matter mind over matter I thought well let me give that a try and I literally tried to tell myself there’s absolutely nothing wrong with me and did two straight days of no pacing and everything I would’ve done if I wasn’t living with illness I have spent the past three days paying for what I did with shortness of breath because the fatigue is so high and I can’t do anything except very basic things. We can’t will away our illness or pretend it isn’t there just because others think they can or did that for themselves for me pacing is like oxygen, I can’t function without it. Do I like it? No, I hate it severely but it’s the only way I can live as normal as possible.
I think we’ve all tried just to push through and it’s not ever good!! random people online seem to assume we haven’t tried literally everything we can think of!!
@@ElinorBrown I know. I would never choose to live the way I do but I choose to make the best of it like you do ❤️ this started in my early 30s and I’m amazed how well all of you younger girls have had to grow up so fast and take control with dignity and grace along with it im very impressed.
I randomly found your channel because of this post, and I instantly felt for you. You have so much courage and strength to battle your illness but not let it hold you back. That in itself, is inspirational. Then you became even more awesome, and started a channel for other beautiful souls so they could relate. Of course lower, vibrational souls have to be inconsiderate ,they couldn’t fathom the hurdles that you have to go through every day. Any negative comments said to anybody trying to better themselves or better their life, just means those specific people need more healing than anyone because they’re hiding deep rooted mental, physical and emotional manipulating issues. Any negativity in this world is just projection from the lower vibrational source that it comes from. You my dear, are freakin awesome sauce… I applaud you for your bravery, and I hope it inspires more of our younger generation to open our hearts and close off negativity like it should be. I wish you love and abundance in all aspects of your life. I hope you have a fabulous day beautiful ✨🪷🧘♀️
Your videos made me enjoying life while having me/cfs. So many negative ppl think if we are sick we should stay miserable. We are sick so we wanna feel good about ourself and it’s great decorating mobility aide brings joy to us. I am sorry for dealing these negative ppl, but I really thank you putting energy in to making videos. You are helping lots of people with me cfs.
How many times Ive had the hero complex and said today I am going to prove that my disability doesn't exist. Even overseas on vacations I have done this and it always ends in a hot mess. When my legs start going numb and I am dragging my feet I focus in on the nearest place to sit and regroup. When sitting there resting I start telling myself how long are you going to keep denying the fact that you have a serious problem? I have fought hard for the last 5 years to stay out of the chair but in this last 10 months I have finally succumb to having to use it. I am ambulatory, I started feeling ashamed that I have given up on trying to be the hero everyday. No matter how much pain I had or how much I struggled to walk or work, I would rather suffer to the point of crying than to give into using a chair. I am stubborn and foolish, I thought I was a fighter, I would prove to other people I am not disabled. I am currently having an internal struggle every time I need to use the chair or one of those electric shopping carts in the big box stores. I live alone and far from any family. I have no one to help me with any daily activities like shopping etc. If I have to walk any distance now I set a goal location and try to reach it to rest but most days now it is just a fail. I am trying to find a way to remove my self shame and learning how to accept this big change in my life. I am learning now that owning a wheelchair and a handicapped placard for parking gets me a lot of... lets say looks. No one has ever verbally questioned me directly but I guess everyone knows those looks. I now counter it with funny wheelchair shirts that end up being a little bit of an ice breaker with people. They laugh and tell me my shirt is great. That leads to a discussion and a learning experience for them. Thanks for this video, I need all the info I can get for my transition away from self shame to being a chair user. I subbed
thankyou so much for your strength to say this stuff that i know but need to hear from an ally because, im forgetting it because of hearing so much more all of the ignorance and lazy cruelness in the world, lots of respect, sending spoons, thankyou very much
Last night on the bus I saw an elderly lady with a cane that had a butterfly design on the cane. Why is it that people who are elderly and people accept them having a mobility aid accept them having a designed mobility aid but those who are younger or have the invisible illnesses can't have stylish canes? I feel it's discriminatory. People accept the elderly having mobility aids and have them stylish but not those who have an invisible illness. It doeant make aense
One of my worst public encounters, while using my Rollator is old people who can’t control their ignorant comments. I look very young for my age, and seeing me using a mobility device really confuses people. One lady even blatantly asked, “what’s YOUR problem?” I physically look healthy, which makes even difficult when seeking medical treatments. The level of disregard, is astonishing. People are so used to seeing jacked up people. I don’t think want you to make the best of your situation. You are trying to normalize mobility devices. I have been accused of being self conscious for thinking people stare at me more when I use mobility devices. Thanks for validating my perception.
I have HEDS and I decorate all of my mobility aids with stickers and paint!! If people are going to stare anyway, might as well give them something to stare at!! Doesn't help that I'm only 28 and have gauged ears and an undercut, just being a small disabled alternative nerd, decorating my mobility aids so they make me happy 😊
I happen to have about 7 to 9 canes around my house and then some of them have rhinestones on them. Some of them are clear see-through. They’re in all colors imaginable and I personally enjoy them a lot when I can get out of my wheelchair and use them. Oh, and by the way, I’m 79 years old and I’m still going strong.
The thing that frustrates me about the psychology comment is that, even if it were psychological, why does that somehow mean it isn't real? Your mind absolutely affects your body. I know my back pain gets worse if I am stressed.
I doubt my disability to. More on a regular occasion though. Then I push myself and then I realise I shouldn't of done it 🙈 I still find it difficult to identify as disabled. I started using a stick 3 years ago and recently got told to use 2 crutches. I've also decided to use a wheelchair as nipping to the shop is just too painful. My husband thinks I'm giving up, but I told him it will give me my freedom x
Wanted to comment on every section, but... currently on day ten of severe crash bedbound. This is first typing in that time. Thank you for speakng my truths when I dont have the words or voice. Thank you for showing it is okay to have fun, fashion, education, and friendship - that we can live and make adult choices, and have individuality - we are humans , we are not our disability. You are so courageous - these kind of comments are why I never pulled the trigger on creating a RUclips channel of my own. That you manage it in spite of anxiety, depression, and all the vagaries of this condition leaves me in awe.
I walk with a couple different canes, and mine are all pretty and shiny. Well, as shiny as a cane can be after use, I suppose. I have one with tropical flowers. 1 with coffee cups all over it. Another with a funky design of many colors. I also have 1 that is very special and was hand painted for me with different wildlife and farm scenes. I really like the acrylic one you have though. I have never seen one of those, and now, need to search one out... lol. Be well and ignore the ignorance society holds. People can be vile, and you handle it with class. Stay safe, and thanks for sharing your thoughts.
23:00 - “your brain can only experience those things [sic] after it has learned what they are”??? NO. Just no. OK so this person is talking about depression/anxiety but it applies to other conditions. I am in my 50s, and self-diagnosed dyspraxic. Learning about dyspraxia didn’t make me experience it, it just helped me label/explain the stuff that had been happening & how I experienced the world, since I was a kid. Yes, I’ve had to (mentally) get to grips with having a hidden disability, because that’s not a label I ever expected to use. But the freedom that my knowledge of dyspraxia has brought is literally life-changing. No more shame, anxiety or embarrassment over just existing/moving. OK, maybe some anxiety when trying to navigate unfamiliar/crowded places, but at least I know why. And can take steps to manage it, and treat myself with a lot more grace. And the whole “those disorders are barely real”? I had depression at 18 which only got better with meds, and it was very real. Thank you for taking the time to create content, educate people, being vulnerable enough to share your story and calling out the trolls (in a dignified way). 👊🏽
Hi, am 55 and waiting for my first rollator. It's so boring that they all came in black 🖤😂 and you are right, media suck in giving the impression that everyone is faking everything. 🙄
What a horrible comments! You are such a nice and also beautiful young girl. So sorry for your disability. I've suffered from terrible back aches since ever, but never received any help. Only since 5 years I've known my back and neck were broken when I was 3 (abuse) and left me with a double hernia. You go girl and I wish you a lot of fun. Btw I had ALS 10yrs ago (as a result of the broken back) and won the fight as the only person ever. Because of the hatred at my son's school I was forced to still wear high heels even if I could hardly take one step. If I had worn flat shoes they would've got on top of me and taken my kids away. Imagine. People are so hateful.
hey thanks for the video, I always get comment about how I can still walk with my stick but also use my wheelchair, I use my chair most of the time but like to have a walk with my kids as well. I get so fed up with it as I really shouldn't have to explain it. do overweight people have to explain why they are overweight probably not. hope your doing ok just have to take each day as it comes.
I fully get your point here but overweight people also constantly have to explain why they are overweight, and when disabled they are usually targeted with far more ableism than thin disabled people!
@@apenguinnamedabraham Yeah you probbly are right im just going on how some of my friends are treated and my wife who is a larger girl but maybe people only see me in the wheelchair or are kids, I don't know I wasn't trying to offend anyone and sometimes don't use the right words to explain what I mean
@@christomasjames6620 that's okay! Was just trying to make sure that we don't hurt other marginalised groups when we're defending ourselves as disabled people.
i keep a cane in my wheelchair bag in case i need to stand up so i can pretend to be all shakey and unstable just in case someone sees me T-T being an overweight person in a wheelchair is hard
There is a whole market for sparkly pretty mobility aids and people who want them. People also dress up their aids. It is no one else's business, we are just trying to make our aids our own, and there is no need to be boring about it.
I've been battling with UC for almost two years now and tommorow is my UC tribunal, it's been a nightmare journey. My mental health is all over the place and I really do I have had two disks removed in 2017 and have bad damage in my spine now and awful pain in my left leg and numbness all the time. My confidence is shot at the moment with the ordeal of it all and I'm 42 and I feel like I'm buggered already with tablets, you are an inspiration to people like us!!!
I have PPPD so I use a cane, my cane has red roses on it cause I thought it was cute for what they had at Walgreens. I would like to have a pink or blue cane to fit the pastel colors I mainly wear but yeah having something like a aid look cute doesn’t mean we don’t have a disability it’s like nice to have fun and cute things for us too.
ur canes are so pretty !!! im gonna customize my crutch soon and your canes are my main inspiration !!! im gonna draw a green/blue dragon on it :) im gonna fill it with wing symbolism because using a crutch to support me makes me feel free because i can walk with less struggle :D just cuz ur disabled doesnt mean you cant express urself !!!
@@ElinorBrown if you need to use a medical device you need to use one. People should mind their own. Disability is a class anyone can find themselves in at anytime and they wouldn’t want anyone to judge them.
@@Chiller-pc1dv I was talking about her video if you watched it you would understand where I was coming from instead of thinking I didn’t know she was joking.
My third comment in a row lmao, but i really have to talk about what her friend said at the very end. It made my heart warm up so much. I got into a motorcycle acident and broke both legs, i had to use a walker for a while and an wheelchair once. Of course my leg would just heal, and after some time i could walk just holding onto walls, and later on even walk by myself at the slowest pace ever! Even when i could walk faster my feet and legs would hurt so much after some minutes that i would have to sit down constantly. The fact that something will pass doesnt mean this person doesnt need or deserves mobility aids, the fact that they can walk short distances doesnt mean they are faking it, the fact they can walk slowly doesnt mean they dont need help. People are more understanding to cases like broken legs, but not to illneses that could pass? Why should someone have to suffer for years if this would be easily avoided by geting the help they need to have better life quality? These people get me on my nerves, i really feel so sorry for anyone that has their disability discredited or underestimated by people who dont know anything about their life
Personally I struggle to identify with any of my medical devices if they don’t feel like me. I take so much more pride in my insulin pump when I like the way it looks or is covered with pink stickers. I hated my last pump because I chose it quickly when my previous one failed and the company no longer made pink pumps- I hated it, would always hide it, and neglected my diabetes. My cane is pink and I love it, and when I had more energy to make jewellery etc, I made little crystal dangling bits to hang on the handle. When it comes time to get a wheelchair, it will 100% either be pink or customised to the heavens with pink accessories. They’re an extension of me and my body so of course I want it to match me and be my fave colour! 💖
I don’t understand how people have so much time on their hands to make up nonsense like the comments. Also I loved what you said about having Disability not meaning you have to always do the practical thing. That’s so true.
Hello there. New to your channel. I have cerebral palsy and I was born with it. I must admit I was bias as a born with disability but the reason I had bias was because I was just frustrated with myself and my own limitations. I don’t know if you’re faking it or not but actually. Who needs to care! You do what works for you right. As human beings we need to just support those around us.
i am a big fan of your channel and i think you are so so awesome and i have type 2 diabetes blood and protein in my urine high blood pressure a rare kidney disease lesions on the brain i am blind in 1 eye and my kidneys are only working at 20% and if they go down to 15% i will have to have dialysis and i have mental health as well and i get very very bad pain in my legs and feet and i have to sleep in a chair because the pain is so so bad and some times i find walking very hard and do not listen other poeple if using a wheelchair and walking stick help you then you go for it and you made me deal with my illnesses and not to care what other poeple think and i no you are not faking it so keep up the good work
I happen to have about 7 to 9 canes around my house and then some of them have rhinestones on them. Some of them are clear see-through. They’re in all colors imaginable and I personally enjoy them a lot when I can get out of my wheelchair and use them. Oh, and by the way, I’m 79 years old and I’m still going strong. And for all of you, younger folks, I am responsible for what I say and do, I’m responsible for what I think, I am not responsible for what you think about it.
I sometimes can fake being well! So I tell people they are right I am a faker. At stations I walk up the stairs with assistance while someone caries my chair. I announce “It’s a miracle!” With any funny looks. Good come backs help.
Another great video! 💖 Thanks for helping me not feel so alone. Also you always look so cute, but I'm totally gushing over that dress! Where can I get one????
I started thinking that since a disability aid is something to improve your life even when you can live life without it I started to see other things as mobility aids. Like stim toys for those with Autism spectrum disorder or ADHD. those among those communities can life life without their stim toys but their quality of life can significantly improve when using the stim toy. It can improve concentration among other things. So technically by the standard of aids being their to improve life there's a lot of disability aids that are not normally seen as aids
Hiya, You Rock, I'm currently waiting to be seen in hospital for a diagnosis of chronic fatigue myself and in the process of coming to terms with my new life, including needing more than my crutch, possibly a wheelchair and rolater walker, I really wish there was a way of letting people who say stupid comments experience what it is really like to have this condition, like maybe if there was an experience my life button! 😉 you are so incredibly amazing by doing these videos, have you considered doing some day in the life videos or rather me at worst kinda video, that might make the idiots shut up with there babbling!!! 🫂☕🍩🌻🥄🥄🥄🥄🥄🥄🌹❣️I Love You ❤️😘
I have personally found that when people fake a disability it's because they have a different, invisible disability and they're tired of being ignored or belittled. I don't think it's helpful but I do understand and honestly have considered it. It's pretty telling that some disabilities are more socially acceptable
Maybe not even fake but... Play up? Like, talking to a lot of people who grew up undiagnosed, I find that a lot of us experienced these intrusive thoughts about getting into an accident, breaking something or getting run over, because then our pain would be 'justified'. My mom can't bloody fathom why I would prefer crutches over these trekking sticks my physio recommended, because I want people to *recognise* my pain, even if they're going to be rude about it, as I've felt all my life that no one took my pain seriously since outwardly I 'seemed' fine. Attention seeking behaviour is almost always the result of an underlying issue, & in the case where it isn't, you'd be hard pressed to find even one person you know who is like that
My question is why are healthy people leaving comments or even coming to your Page? It’s just odd . Maybe they need to go to a Doctor to have their head examined 😂 I had no idea about chronically ill people until I was chronically ill. I never had any interest and searching for them and making them feel worse.
People love to comment, the most are ego dumbos… I can now walk just for only 50 meters with stick, why ?? proud I would give up, crying with walking so much pain, after that walking days on bed crying of the pain, and now have I a spine cord injury, did I give my self rest and a wheelchair, for the pain days or the days that I fall a lot, maybe I had just walk for years now and use the wheelchair only on off day, know I sit always in my wheelchair every day, with a lots of pain rest of my life.. So please go on living on your way it’s your body and you are the only one knows and feels your body. Respect. Grtzz from Holland
I also deal with anxiety and depression to combat my depression I listen to positive music and watch positive videos and movies to combat my anxiety I also listen to music but calming music and have lavender in my diffuser it might not work for you but I love it again we are all different you are so awesome by just being yourself
I cant believe anyone would actually think that someone is faking it becausr they have a pretty mobility aid? Lmao As if they would tell an amputee that they are faking it because they have a cute protestic, or tell someone that wear braces that they dont need it because they use colorfull ones, maybe someone that is using hello kitty really doesnt need it and is wearing it for attention. Thats the most stupid thing i ever heard.
Is there an intentional community that fully accepts and accommodates disabled people? Not a group home, an intentional community, where the disabled residents have full sovereignty, make their own decisions, and live with friends. Maybe an ecovillage, even. Affordable, preferably.
Im pretty sad you guys didnt really get the comment at 24:50, they clearly are on your side and just made a joke (as they said, ironically) about how you should just grow a spine, clearly knowing it is not possible. Saying "confidence *shouldnt have to be* a problem" really just mean that people shouldnt need to worry about being mistreated in a ideal world because they really shouldnt be singled out if people werent bastards. I really hope the person who wrote this coment havent seen this video
Why on Earth would I get a boring cane if I need one? I'll get a pink, sparkly one, thank you very much. I don't get this logic whatsoever. Just because someone chooses to go with a nice looking disability aid it's suddenly not real? What the fudge? Also, all aids should have aesthetic options. I am so sick of all the hospital looking things I see on the websites when looking for stuff that might help me. I don't want my home ugly and hospital-y. I want it to match the rest of the home. I need orthopedic shoes. It pains me that most of them are made for people over 60, not young people. I'm 30, I'd like some nice shoes to go with my nice dresses. Options are very slim.
For my part, I always thought high heels looked deeply unpleasant to wear, for a variety of reasons. Sure, they look good, but the points will sink into the ground and get stuck, the angle on your foot jams your toes against the toebox, and the heels themselves are probably not the most stable. I imagine a lot of ankle sprains. But that is still absolutely your choice.
I'm disabled and don't respond to them you are better than that ! I would just step you're moderator skills up and keep on pushing girlfriend ❤😊 fyi people she is young and her walking stick is beautiful and unique just like she is . I think you could make a business making beautiful cains for others it is something to make you feel better and help you walk so WIN WIN!! 😊😊
I find that it's a nice cane and if you need it for medical purposes people shouldn't judge anyone who have mobility aids there are able wheelchair users due to other health illnesses they need them to live either way. They just don't get or understand invisible illnesses as we do I'm disabled and I feel that people need to respect anyone doesn't matter if your differently able there are invisible illnesses that oh if they don't see it that it's fake no it's not because chronic illnesses are not always visible. I like colors myself my wheelchair has lots of colors and I think it is nice that you match your mobility Aids to your clothing.
WOW!!!! GIRL!!! YOU ARE POWERFUL!!! GLORIOUS!!! I’m so, so delighted by your dignified and justified outrage here! Your truth and words have an important place in our world. Love your pretty delightfully pink esthetic, your adorably modish cute outfits, charmingly coy makeup, the lusciously varying hair colors and yep, your style! You are just what we disabled gals need and whose voice I WANT to hear: you are BOLD, STRONG, RIGHTEOUS and you are not afraid to choose, decorate, "create" your cane and wheelchair, like your room, your clothes and personal grooming choices into a joyous, colorful celebration! I agree with you. Dang, if you chose a shoe style that is right for you, why can’t you? Yes,they need to stop “policing” us.I get that crap all the time. Especially from doctors, the ones who are supposed to help me. They never listen, just judge or assume. No one is justified in recommending that disabled people ONLY are permitted to live in a gray colorless world of meaningless oblivion. Yes, I’m another one of those perplexing ambulatory wheelchair people who is set free when she is riding happily in her chair! I LOVE MY WHEELCHAIR TOO! Yes, I encounter the dreaded “Truth Police” wherever I go too! Like you, I am not paralyzed (a very ignorant and limited interpretation of who can use a wheelchair) and while I can weight bare to stand, and yes, I can move my body around by shifting my legs, I cannot walk due to the pain caused by my CRPS and my deformed, structurally unstable, unreliable and permanently unfixable left foot and ankle. My chronic illness/disability make walking a really unhealthy choice. If I did not have my wheelchair I would be trapped in a horrible prison of not being alive: I would not be able to get out of my home. I would not have a life. Ignorant people say “wheelchair bound.” Like you, I say my wheelchair gives me freedom. No one else has the answer to the puzzle of my CRPS (or your ME/CFS). No one except me holds the keys to my life with CRPS. Chronic illness is not MY issue, my wheelchair is not MY issue. My life with CRPS is not “a prison” until I try to live by their rules. CRPS is a part of me and when I unconditionally embrace this very large and important part of me, I love myself. The key to my happy life just so happens to be living by my truth and only my truth. Almost everywhere I go some people seem to want to deny my truth and some people think they have a “cure” : I am an incredible woman who among so many things also happens to live with CRPS and use a wheelchair. When the stop thinking they can cure us, THEY will be be cured of their ableist handicap. Maybe if they took a closer look at us, they'd see there's something ere to learn from us! In this moment it is incredibly obvious that no one can cure me. Hey there? What caused my CRPS? 7 brutal, extreme, horrifically extreme bone surgeries and fusions meant to save this once upon a time able-bodies gals foot so she could WALK!!!! If I had only known, there is so much more to life that conforming to the falsely perceived "safe" life of being fixed so i could walk. No, there is nothing that will "fix" my destroyed by surgery foot/ankle, or "cure" my CRPS and all the comorbidities it causes (Gastroparesis and more! but that's another story). And they are bothered that you, Elinor, have the bold courage to carry a pretty cane and wear the shoes you desire. Pooh! Your, cane, your chaiir, your style, it's all so delightful, so lovely, so RIGHT! ROLL ON GIRL! ROLL PROUD AND STRONG! And thanks, Becky
Me running straight to your channel after seeing the newest 'Ellbat' video titled 'I'm sick' and asking if you have seen it and if you might consider reacting to it? Seeing as her being a big RUclips I want to know if that is good representation ... I know everybody is different, but yes ... I'm just curious what you think ...
i do not no about your chronic illness and disability or what you are going through right now but if using that stick helps you that is all that matters do not listen to other people just do what you have to do and i no you are not faking it and i hope you are doing ok
Also how is riding a motorbike a sign of health lmao? I can physically do a lot if i push myself but i risk being bed bound for a year. That's not health. You're responding with a lot of grace, i hope you feel safe to express frustration in private /gen
![Can you tell if a disabled person is 'faking'? (yes, Jameela Jamil) [CC]](http://i.ytimg.com/vi/OBC3zNZx7Dg/mqdefault.jpg)
I dont fake being ill, I fake being well (which can make me more ill).
wow i love that saying, i feel the same way. I'm sick everyday, even if i look well and healthy, i just accept this as my new normal
@@happyplant8439
Great point! We are experts at hiding levels of illness and pain they cannot imagine!
A bit hokey. people need to buck their ideas up.
I hear you on this. I was recently confirmed with having CFS/ME (symptoms started in mid November '22) on top of all the other shit that I'm dealing with (dysautonomia, adrenal insufficiency, Sjogrens syndrome, CRPS, central pain syndrome, hyperalgesia and allodynia, CIDP, Adult onset tourettes and the disease that I give an equal view of a video game that is unwinnable and will likely be a partial cause of my death eventually-> insulin dependent diabetes). I've found that if I push myself to even a smidge past what I'm able to tolerate doing I end up feeling like the constant brain fog feels like quicksand, get a super sore throat that hurts to even have air passing over the tissue of my throat and the need to drop what I'm doing to go and sleep.
Very true.
Honestly, if someone were going to fake a disability, they'd choose things that looked as medical as possible.
Yes as well as being as actually less disabling
As someone is also disabled l think its great there are medical aids out there that fit people’s aesthetic. My disability is entirely invisible so l know first hand what its like to get a ton of crap. I also fully agree that disabled people can wear what they want. People need to understand that disabled people are still people. Being disabled doesn’t mean you stop being a human being.
Exactly!
@@ElinorBrown i already called you out before in a comment.. if you can walk 50feet YOU DON'T NEED A WHEELCHAIR, you can take breaks.
THAT SIMPLE.
@anamegoeshere well your not in her body are you? You should not think everyone is the same. I can walk 5 minutes but when I get back I'm dead tired for a few days. Seriously who cares what she uses. I would use the same .
@@anamegoeshereyou literally have no idea about disability or mobility issues, let alone energy limiting or relapsing-remitting conditions. Your ableism is showing
@@anamegoeshere that's not you damn business 1 it's her money used to get it 2 it's her damn body 3 if your not her or her doctors it's non of your damn concern
My wheelchair is purple and I love it! But it was £2300 if I was faking it I would not have spent that much 😅
yeah im the same my chair is black mainly because I didn't want the paint to chip off and it look bad. but instead I have some things that go on the spokes of the wheelchair with loads of different colours and my chair was about £2,500 after all the extras I had t buy it as I was told I wasn't disabled enough to get any money towards it as I can still walk.
Same!! My custom chair is a darker purple and I was very lucky that insurance covered mine as it was about $3,800USD (about £3,000 i think). If i was faking there's no way insurance would have covered me with all the hoops I had to jump through.
My manual chair is also purple but it was nearer £2.7k after the specialist cushion was included and that’s cheap for a custom chair. What a lot of people don’t understand is that the chairs they see advertised often aren’t suitable for everyone and the so-called manual chairs on the nhs are incredibly heavy and difficult to self manoeuvre
Way before colorful mobility aids, I was painting my crutches with nail polish. I’d change the design and colors whenever I felt like it. I remember almost everyone going ‘what have you done to your crutches?’ (Like I’m a child!) to then slowly go ‘yeah they look nicer this way’. I’m sorry the mindset hasn’t changed much. ❤
hahah! its ok! no I don't get a notification, I can just see the current count of each!
I used to do the same to my mums plain black ones before colourful ones became a thing. Luckily she only ever got good comments.
no because before i was disabled, when i would break my foot as a kid, or sprain my ankle, i ALWAYYYSSS put stickers and things on my crutches
nail polish is underrated as a way to customize mobility aids. I mostly use stickers on my wheelchair but i use nail polish to decorate my water bottles and that stuff works really well and lasts a while.
@@saltydinonuggies1841 nail polish doesn't ruin the mobility aid? Asking because I have a walker. Maybe I could decorate mine with my yarn? AKA yarn bomb it. 😁
Wonderful video and lots of good points, you explain everything so well. I always like to approach the "your mobility aid is aesthetic so you don't need it" comments by talking about glasses. Glasses are a needed tool, yet everyone always picks ones that look cool or cute to them, that doesn't mean they don't need them! There are lots of aesthetic glasses because we've socially gotten rid of the 'medical' aspect to them, but they are still medical aids, just like a mobility aid is an aid.
I hope someday people can see mobility aids in that way too, and it'll be more normalized like glasses are.
Thankyou!! Yep, definitely seen plenty of funky glasses!!
I have just made a very similar comment! No one wants ‘granny glasses’ so why should we have ‘granny sticks’?!
I have MS and im new to using mobility aids, i had a comment this weekend that "i dont really need the chair though do i" and " your arms are alright though!?" because my husband was pushing my self propelled instead of me" honestly i want a pretty cane instead of my careco one, im glad you did this video as its made me think yeah i can have pretty aids and also the shoes thing! Love your videos
People are annoying but your priority is you! not random people and their opinions!!
Ooo definitely look into pretty aids!! so worth it in my opinion!
Oh my lanta we humans can be rude. We need more cooperation and compassion in this world not money or things. I’ve stopped taking comments like that personally. It’s a reflection of them not me. They treat the person they see in the mirror the same. Trust me. Forgive and move on. Not worth your precious life energy.
Self-gaslighting is imposter syndrome! HUGE in this community but I’m glad I have a community who gets me❤
People think disabled people have to look disabled! There's a thing called invisible disability! People need to educate themselves on disability! I had a stroke due to a brain tumor four years ago! I'm doing better and I need a wheelchair if I have to walk a lot like a mall or amusement park! I'm 53 and I made my own walking stick I carved a snake out of my sturdy walking stick! I make movie props so My creative side I wanted to make me a cool walking stick! You use whatever walking stick you like! That's what it makes you! Love your attitude people like you inspire me!
that sounds so cool!!
Yes, some people get way too invested about what disabled people, OTHERS, "should not be allowed" to do. I believe it is displaced fear. They have not faced their own fear of death, so they try to manage their fear by controlling, exiling, or persecuting disabled people. That won't help them, of course... they are still subject to "luck and time." They might soon come to disability services in a location near us😂
i love where you talked about how everyone seems to think you can only be happy if you're cured. i'm only about 1.5 years into my disability journey, and it has been very hard to cope with it. at this point i feel like it can go either way. but my mom is very convinced i need to keep trying things to "cure" myself. i don't even have a diagnosis, so how can we cure what we aren't certain of? not only that, but its very expensive to even get a diagnosis (here, doctor's appointments are like $100 just for them to talk to you for 10 minutes) and even more expensive to try different treatment options. i think there's nothing wrong with accepting where i'm at and trying to be happy and find the joy in having a disability. i'm not hurting anyone or myself by continuing what i know works for me, and i think it is a good solution until i can make the money to find out more.
thank you so much for this video. i've barely started sharing about my condition online and i am lucky to not have gotten any comments like this yet, but watching this makes me feel like i don't need to be scared!
My mum definitely used to be the same! I think parents want to protect us/save us from any difficulty but they cant in this situation so it morphs into an obsession with finding cures/treatments. Of course nothing wrong with looking for things to help but for me trying every new thing that might help a tiny bit is too hard physically and emotionally so I choose not to chase cures at all anymore.
I kind of think if they discover something amazing and its properly scientifically tested and peer-reviewed and legit (anything less than this I personally don't want to try), I'll hear about it. I don't need to be searching.
+ I don't need a cure to be fulfilled and happy!!!
Stupid question and likely invasive feelings on your part, but as someone who has a wide array of chronic illnesses of which many have a few distinct (unique, zebra type specific sort) symptoms even though many symptoms do overlap, I may be of some sort of use to point you in the right direction for the type of specialist that you may need and what tests would need to be done.
Only reason why I offer a helping hand for assisting someone who is undiagnosed is because of my wide array of chronic illnesses (cfs/me, CRPS, central pain syndrome, hyperalgesia, allodynia, dysautonomia with too many secondary diagnoses that accompany the primary diagnosis of dysautonomia, CIDP, adrenal insufficiency, adult onset tourettes, Sjogrens syndrome and diabetes) and as a result I spend quite a lot of time secluded in my nice, comfortable and dark room laying down as that activity is the least offensive (doesn't trigger me to become symptomatic, so yay..... 😒😒) for my janky and seemingly, falling apart body.
@@Leslie_ann_h that’s very kind of you to offer! i’d love advice, though i was planning on just going to see a family practice doctor and then seeing where they refer me. i dont think there are many specialists i can see without a referral… are you US based?
@@topes_soup I'm in Florida, so yes, but symptoms are still symptoms and the tests needed would be quite similar even with country differences. Although, for reasons I have no clue why it works but if you've ever been on hydrocortisone at an upper limit per day of about 15 to 30mg for an extended amount of time and your symptoms improved, that has the possibility of eliminating half of the zebra type chronic illnesses (those that don't respond well to steroids).
Although one chronic illness that comes to mind that has an INSANE amount of symptoms and body functions that it affects is dysautonomia which affects about half the global population symptom wise but the symptoms are typically written off as being their own conditions and it's not until someone actually goes through the full list of symptoms from the various body symptoms that a person would get a diagnosis of dysautonomia.
@@Leslie_ann_h this is really good info! do you have an instagram or discord so we can continue in dms? i dont want to fill up the comments ahah.
i’ve considered POTS and hEDS diagnosis but i honestly thought dysautonomia was a symptom, not a diagnosis. thats so interesting!
the only things i know i’ve tried long-term are pain meds and supplements, and also a diet. none of them seemed to do much if anything. hydrocortisone sounds familiar though, i’ll have to look through things ive tried because i feel like maybe i was on that for a bit, but i cant say for sure.
I find it funny how people are sometimes like "you just want to look disabled, you maybe have some fetish on medical-related things"or "it makes you look ugly, leave it at home", blah blah, but then they see someone trying to make mobility aids look "normal", more fashionable and less pitiful and then it's basically "well, clearly you don't need it, otherwise you'd used the gray one". (Btw, this is coming from someone with a plan black cane and white/black crutches that aren't customized at all.)
I strongly dislike how people assume something is a psychological thing if they don't see the person struggle in a way that's undeniably physical (such as having no legs). Like c'mon, that's almost an insult to the capabilities of human brains, especially when people understand that people may need for example glasses even though they "don't look like they need them" or even need glasses just sometimes (such as for reading or driving). Also, the audacity of people to tell you stuff like this when they don't even know you...
And I totally agree that these comments hurt way more when they're coming from someone disabled. But we need to remember that disabled people can be uneducated about certain topics or ableist too.
As a person with a learning disability I wish my disability was visable. I told my stats professor when I was in college that I have a disability and so I struggle with math. He said that he hears that a lot. It was so frustrating because I have an IEP since I was in grade school. I was just asking if he could help me to after class. Maybe explain the concepts from class in a different way. I wasn't using it as an excuse, I was only trying to advocate for myself in order to get my needs met. I never had anybody not believe me about my disability before that. I was both shocked and disgusted by his comment. I think when I went to his group tutoring session after class he realized that I was not lying as I really struggled to understand the concepts. It felt kinda good to see his face when he realized it. Hopefully that taught him not to accuse people of faking a disability just because he can't see It. Thankfully I've found most people are curious about my disability and want to help if they can.
This makes me terrified. Not only have I been steam rollered in the prime of my life by a serious, debilitating illness that's not even my fault, but it's also an illness that makes people hate you.
oh no! I promise MOST people are lovely, it’s just some people online that really suck! this type of thing almost never happens in real life!!
Nobody's debilitating illness is their fault. Not sure what "not even my fault" is supposed to mean.
@@pjaypender1009 So, smoking related lung cancer is not the fault of the smoker? Alcohol induced liver cancer is not the fault of the alcoholic? What's your point?
Thank you very much for this video! I have been disabled for over 20 years. I had a stroke when I was 22, from an inoperable brain tumor, that I was diagnosed with 14 years ago. My life sounds so much like a soap opera. The people don’t want to listen to it.
I lost my eyesight completely four years ago, and before I had the equipment, I couldn’t even communicate with anyone. Still, they… even my family said terrible things to me and accused me of lying. They would not listen to me.
I like to laugh, and I like to have a good time. I have friends who love me… Life can be good. Once you get away from the able-bodied jerks. Thank you very much for this video. The lives of disabled people are often very bad. Thank you for Making an upbeat video about it.
We are allowed to smile!
Disability is real. Obviously. Some people have no empathy.
Thank you again for the excellent video. Cheers!
In regards to the anti depressants or ME/CFS being a phase. People really shouldn't comment on your medical condition to prescribe you medication or similar. Not even if they have the same diagnosis or symptoms. Not even if they're a medical doctor. They're not _your_ medical doctor so they don't have the right or the information to do so.
Also I love the cane! Of course you can use any cane that's most suited for you! In heels, in a difficult to walk outfit or even drunk if that's what you fancy. People really need to stop judging others💛
Totally agree!!!
Ironically enough, certain antidepressants are used off label for fibromyalgia treatment
As a long term (since 2007 being officially diagnosed with first chronic physical illness) individual, I have many options for mobility aids that depending on the day/how I'm feeling physically to determine what aid/combination of aids. I have forearm crutches, AFOs, a rolling walker with seat, a wheelchair and my own sheer dumb luck that I will absolutely pay for later on.
Those who don't have chronic illnesses, and even more so if they also have chronic illnesses but not even close to the same really need to be able to medically be put through the same shit we deal with even though it would be temporary.
My attitude to getting a splint with a funky design was that people are gonna stare anyway so may as well make it pretty! It’s ridiculous people seem to think disabled people can’t possibly be fashionable lol
What design do you have??
People really, honestly think that disabled people just sit at home all the time being miserable and constantly thinking about their disability and nothing else.
Elinor, I love your explanation with the house and the window(s). So true 😊.
Every disabled person has tried out so much to manage life - that's 100% sure. And every person explores a different personal setting (medication, mobility aids, personal support...) that's helping best. Comments without knowing the circumstances are just disrespectful.
I hopefully get my first wheelchair soon and I'm excited to make it my own and my style. Because I need it, it should fit me in every aspect.
Thankyou! Exactly! Oooo so excited for you!
@@ElinorBrown Yes, Elinor has such an easy going way of even making the complicated stuff feel good. And Be Knight I send you success and strength on your adventure. I am a very proud wheelchair owner, and for me it just keeps getting better! And friends this is my first ever joining in on a conversation! Nice to be here!
We humans can be so hurtful and rude. FYI it’s very human to care what others think. Our world needs more cooperation and compassion not money or things. I’ve stopped taking rude behavior personal. Ask ‘do I like or respect this source/person?’ No? Not worth precious life energy. We only have so much use it wisely and with self love/respect. Sadly these days many people have little self esteem or self awareness. No excuses just adding perspective. Best for you/all of us to forgive and move on. Tip: Don’t engage or reward ignorance with attn and if you do say what you need then let it go. Peace and health. Edit: I give huge props to anyone willing to put themselves out to our crazy often harsh world thru social media incl YT. Good for you.
I have chronic illnesses to. I am thinking about getting a wheelchair to.
I would say do it if it means you can go out and enjoy life then thats is great, even just going out for a coffee helps, I was worried about asking my friends to push me if I meet them without my wife and found out I didn't need to worry as I didn't even ask and then just started pushing me.
No one can know what your life is like unless they are living it with you. You need to do what works for you and whatever makes you happy 😊💜💜
If people can have designer/flashy/blinged up glasses then why can’t we have the same in mobility aids?! Younger people wouldn’t want ‘granny glasses’ so why would we want a ‘granny cane’?
Thanks for commenting on some very oblivious comments. I’ve had ME/CFS since 1984. I’m so glad I didn’t throw away my aids & sit around waiting to get well. It would have been a long, boring 39 years. Love your videos❤️
yes!!
Thank u so much for making this video! Im having a really bad flare today and felt os guilty for not being able to get up out of bed to do something I was expected to but couldn't. I layed there, unable to move, so thirsty but noone there to get me water. I couldn't even reach for my phone. So when my partner came home and I got water and after a while I felt better physically, but felt so ashamed mentally for being so unwell and worried about not being believed, watching your video made me feel like I have a friend who's got all the same issues as me and you're just cheering me on, making me feel like anyone hwo misunderstands can just f* off. So thank u!! 💙
Thank you so much for this video. It is reaffirming and gives me much to consider. I was recently diagnosed with me/cfs and the struggle is real. Your perspective regarding learning to accept your limitations and your transition from using the term illness to disability is very helpful. Lastly, I am considering getting a wheel chair but am still fighting the stigma. Thanks for your owning who you are and what you need.
I have numerous canes and walkers blinged out or painted in different ways. Totally brings about a lot of conversation.
hey im just about to customise my crutch for the first time. if i may ask, do you have any advice on customising mobility aids? any tips and/or tricks?
OMG... When I was still using a Cane/walking stick I was known to wear Coyboy boots with a riding heel. I wear what I like and don't judge others for what they wear. I am waiting for my first wheelchair. I have been told the same thing. I have been told by family to just suck it up Everyone has pain and hurts also. I can still walk some. No matter what anyone else thinks I know for me It is time. If they think I am fake I don't care. I was in a low place until I found your video. thank you
You have the patience of a saint 🩷
haha
I’m only halfway through this video and I just have to say how amazing you are!!! Thank you for this!!! I had a doctors appointment and he kept saying mind over matter mind over matter I thought well let me give that a try and I literally tried to tell myself there’s absolutely nothing wrong with me and did two straight days of no pacing and everything I would’ve done if I wasn’t living with illness I have spent the past three days paying for what I did with shortness of breath because the fatigue is so high and I can’t do anything except very basic things. We can’t will away our illness or pretend it isn’t there just because others think they can or did that for themselves for me pacing is like oxygen, I can’t function without it. Do I like it? No, I hate it severely but it’s the only way I can live as normal as possible.
I think we’ve all tried just to push through and it’s not ever good!! random people online seem to assume we haven’t tried literally everything we can think of!!
@@ElinorBrown I know. I would never choose to live the way I do but I choose to make the best of it like you do ❤️ this started in my early 30s and I’m amazed how well all of you younger girls have had to grow up so fast and take control with dignity and grace along with it im very impressed.
I randomly found your channel because of this post, and I instantly felt for you. You have so much courage and strength to battle your illness but not let it hold you back. That in itself, is inspirational. Then you became even more awesome, and started a channel for other beautiful souls so they could relate. Of course lower, vibrational souls have to be inconsiderate ,they couldn’t fathom the hurdles that you have to go through every day. Any negative comments said to anybody trying to better themselves or better their life, just means those specific people need more healing than anyone because they’re hiding deep rooted mental, physical and emotional manipulating issues. Any negativity in this world is just projection from the lower vibrational source that it comes from. You my dear, are freakin awesome sauce… I applaud you for your bravery, and I hope it inspires more of our younger generation to open our hearts and close off negativity like it should be. I wish you love and abundance in all aspects of your life. I hope you have a fabulous day beautiful ✨🪷🧘♀️
Your videos made me enjoying life while having me/cfs. So many negative ppl think if we are sick we should stay miserable. We are sick so we wanna feel good about ourself and it’s great decorating mobility aide brings joy to us. I am sorry for dealing these negative ppl, but I really thank you putting energy in to making videos. You are helping lots of people with me cfs.
How many times Ive had the hero complex and said today I am going to prove that my disability doesn't exist. Even overseas on vacations I have done this and it always ends in a hot mess. When my legs start going numb and I am dragging my feet I focus in on the nearest place to sit and regroup. When sitting there resting I start telling myself how long are you going to keep denying the fact that you have a serious problem? I have fought hard for the last 5 years to stay out of the chair but in this last 10 months I have finally succumb to having to use it. I am ambulatory, I started feeling ashamed that I have given up on trying to be the hero everyday. No matter how much pain I had or how much I struggled to walk or work, I would rather suffer to the point of crying than to give into using a chair. I am stubborn and foolish, I thought I was a fighter, I would prove to other people I am not disabled. I am currently having an internal struggle every time I need to use the chair or one of those electric shopping carts in the big box stores. I live alone and far from any family. I have no one to help me with any daily activities like shopping etc. If I have to walk any distance now I set a goal location and try to reach it to rest but most days now it is just a fail. I am trying to find a way to remove my self shame and learning how to accept this big change in my life. I am learning now that owning a wheelchair and a handicapped placard for parking gets me a lot of... lets say looks. No one has ever verbally questioned me directly but I guess everyone knows those looks. I now counter it with funny wheelchair shirts that end up being a little bit of an ice breaker with people. They laugh and tell me my shirt is great. That leads to a discussion and a learning experience for them. Thanks for this video, I need all the info I can get for my transition away from self shame to being a chair user. I subbed
thankyou so much for your strength to say this stuff that i know but need to hear from an ally because, im forgetting it because of hearing so much more all of the ignorance and lazy cruelness in the world, lots of respect, sending spoons, thankyou very much
Last night on the bus I saw an elderly lady with a cane that had a butterfly design on the cane. Why is it that people who are elderly and people accept them having a mobility aid accept them having a designed mobility aid but those who are younger or have the invisible illnesses can't have stylish canes? I feel it's discriminatory. People accept the elderly having mobility aids and have them stylish but not those who have an invisible illness. It doeant make aense
One of my worst public encounters, while using my Rollator is old people who can’t control their ignorant comments. I look very young for my age, and seeing me using a mobility device really confuses people. One lady even blatantly asked, “what’s YOUR problem?”
I physically look healthy, which makes even difficult when seeking medical treatments. The level of disregard, is astonishing. People are so used to seeing jacked up people. I don’t think want you to make the best of your situation. You are trying to normalize mobility devices. I have been accused of being self conscious for thinking people stare at me more when I use mobility devices. Thanks for validating my perception.
If I get comments. I freak out the person by dislocating all my fingers and they usually shut up 😂😅
I have HEDS and I decorate all of my mobility aids with stickers and paint!! If people are going to stare anyway, might as well give them something to stare at!! Doesn't help that I'm only 28 and have gauged ears and an undercut, just being a small disabled alternative nerd, decorating my mobility aids so they make me happy 😊
I happen to have about 7 to 9 canes around my house and then some of them have rhinestones on them. Some of them are clear see-through. They’re in all colors imaginable and I personally enjoy them a lot when I can get out of my wheelchair and use them. Oh, and by the way, I’m 79 years old and I’m still going strong.
The thing that frustrates me about the psychology comment is that, even if it were psychological, why does that somehow mean it isn't real? Your mind absolutely affects your body. I know my back pain gets worse if I am stressed.
exactly !
I doubt my disability to. More on a regular occasion though. Then I push myself and then I realise I shouldn't of done it 🙈 I still find it difficult to identify as disabled. I started using a stick 3 years ago and recently got told to use 2 crutches. I've also decided to use a wheelchair as nipping to the shop is just too painful. My husband thinks I'm giving up, but I told him it will give me my freedom x
you got this!! freedom is def worth using aids!!
I think people shouldn't be focused on the outward appearance but upon the heart ♥️
Wanted to comment on every section, but... currently on day ten of severe crash bedbound. This is first typing in that time.
Thank you for speakng my truths when I dont have the words or voice. Thank you for showing it is okay to have fun, fashion, education, and friendship - that we can live and make adult choices, and have individuality - we are humans , we are not our disability.
You are so courageous - these kind of comments are why I never pulled the trigger on creating a RUclips channel of my own. That you manage it in spite of anxiety, depression, and all the vagaries of this condition leaves me in awe.
I walk with a couple different canes, and mine are all pretty and shiny. Well, as shiny as a cane can be after use, I suppose. I have one with tropical flowers. 1 with coffee cups all over it. Another with a funky design of many colors. I also have 1 that is very special and was hand painted for me with different wildlife and farm scenes. I really like the acrylic one you have though. I have never seen one of those, and now, need to search one out... lol. Be well and ignore the ignorance society holds. People can be vile, and you handle it with class. Stay safe, and thanks for sharing your thoughts.
23:00 - “your brain can only experience those things [sic] after it has learned what they are”??? NO. Just no. OK so this person is talking about depression/anxiety but it applies to other conditions. I am in my 50s, and self-diagnosed dyspraxic. Learning about dyspraxia didn’t make me experience it, it just helped me label/explain the stuff that had been happening & how I experienced the world, since I was a kid. Yes, I’ve had to (mentally) get to grips with having a hidden disability, because that’s not a label I ever expected to use. But the freedom that my knowledge of dyspraxia has brought is literally life-changing. No more shame, anxiety or embarrassment over just existing/moving. OK, maybe some anxiety when trying to navigate unfamiliar/crowded places, but at least I know why. And can take steps to manage it, and treat myself with a lot more grace. And the whole “those disorders are barely real”? I had depression at 18 which only got better with meds, and it was very real. Thank you for taking the time to create content, educate people, being vulnerable enough to share your story and calling out the trolls (in a dignified way). 👊🏽
I almost cried in a good way finding this video, I have me/cfs too and this made me feel less alone
awww thankyou! that means so much to me! 💜
Hi, am 55 and waiting for my first rollator. It's so boring that they all came in black 🖤😂 and you are right, media suck in giving the impression that everyone is faking everything. 🙄
I have a Rollator and it came in Purple.💜 My favorite color. 😁
Where did the haters get their medical degrees?
jupiter probably
What a horrible comments! You are such a nice and also beautiful young girl. So sorry for your disability.
I've suffered from terrible back aches since ever, but never received any help. Only since 5 years I've known my back and neck were broken when I was 3 (abuse) and left me with a double hernia.
You go girl and I wish you a lot of fun. Btw I had ALS 10yrs ago (as a result of the broken back) and won the fight as the only person ever. Because of the hatred at my son's school I was forced to still wear high heels even if I could hardly take one step. If I had worn flat shoes they would've got on top of me and taken my kids away. Imagine. People are so hateful.
If you wanted to go on a hike you should definitely get one of those all terrain wheelchairs that would be cool
hey thanks for the video, I always get comment about how I can still walk with my stick but also use my wheelchair, I use my chair most of the time but like to have a walk with my kids as well. I get so fed up with it as I really shouldn't have to explain it. do overweight people have to explain why they are overweight probably not. hope your doing ok just have to take each day as it comes.
I fully get your point here but overweight people also constantly have to explain why they are overweight, and when disabled they are usually targeted with far more ableism than thin disabled people!
@@apenguinnamedabraham Yeah you probbly are right im just going on how some of my friends are treated and my wife who is a larger girl but maybe people only see me in the wheelchair or are kids, I don't know I wasn't trying to offend anyone and sometimes don't use the right words to explain what I mean
@@christomasjames6620 that's okay! Was just trying to make sure that we don't hurt other marginalised groups when we're defending ourselves as disabled people.
@@apenguinnamedabraham yeah totally I don't want anyone to be dicriminalted against, as I know first hand what thats like growing up was hard.
i keep a cane in my wheelchair bag in case i need to stand up so i can pretend to be all shakey and unstable just in case someone sees me T-T being an overweight person in a wheelchair is hard
There is a whole market for sparkly pretty mobility aids and people who want them. People also dress up their aids. It is no one else's business, we are just trying to make our aids our own, and there is no need to be boring about it.
I've been battling with UC for almost two years now and tommorow is my UC tribunal, it's been a nightmare journey. My mental health is all over the place and I really do I have had two disks removed in 2017 and have bad damage in my spine now and awful pain in my left leg and numbness all the time. My confidence is shot at the moment with the ordeal of it all and I'm 42 and I feel like I'm buggered already with tablets, you are an inspiration to people like us!!!
I have plenty of walking sticks not to make fun of people but in preparation for the time I will need it
All your replies are well-said. Thank you
Glad you like them!
I have PPPD so I use a cane, my cane has red roses on it cause I thought it was cute for what they had at Walgreens. I would like to have a pink or blue cane to fit the pastel colors I mainly wear but yeah having something like a aid look cute doesn’t mean we don’t have a disability it’s like nice to have fun and cute things for us too.
ur canes are so pretty !!! im gonna customize my crutch soon and your canes are my main inspiration !!! im gonna draw a green/blue dragon on it :) im gonna fill it with wing symbolism because using a crutch to support me makes me feel free because i can walk with less struggle :D
just cuz ur disabled doesnt mean you cant express urself !!!
I've gone through so much of this recently.
Thank you! Everyone's (sometimes well meaning) advice and opinions make my fatigue worse.
Also… I love pink too. I have a pink wheelchair 💕
My wheelchair is purple and white does that mean I’m faking my sci?
I guess it must!! haha!
@@ElinorBrown if you need to use a medical device you need to use one. People should mind their own. Disability is a class anyone can find themselves in at anytime and they wouldn’t want anyone to judge them.
@@Jaggededge112Yeah, they were joking
@@Chiller-pc1dv I know I was just talking to Elinor.
@@Chiller-pc1dv I was talking about her video if you watched it you would understand where I was coming from instead of thinking I didn’t know she was joking.
My third comment in a row lmao, but i really have to talk about what her friend said at the very end. It made my heart warm up so much.
I got into a motorcycle acident and broke both legs, i had to use a walker for a while and an wheelchair once. Of course my leg would just heal, and after some time i could walk just holding onto walls, and later on even walk by myself at the slowest pace ever! Even when i could walk faster my feet and legs would hurt so much after some minutes that i would have to sit down constantly.
The fact that something will pass doesnt mean this person doesnt need or deserves mobility aids, the fact that they can walk short distances doesnt mean they are faking it, the fact they can walk slowly doesnt mean they dont need help. People are more understanding to cases like broken legs, but not to illneses that could pass? Why should someone have to suffer for years if this would be easily avoided by geting the help they need to have better life quality? These people get me on my nerves, i really feel so sorry for anyone that has their disability discredited or underestimated by people who dont know anything about their life
Personally I struggle to identify with any of my medical devices if they don’t feel like me. I take so much more pride in my insulin pump when I like the way it looks or is covered with pink stickers. I hated my last pump because I chose it quickly when my previous one failed and the company no longer made pink pumps- I hated it, would always hide it, and neglected my diabetes. My cane is pink and I love it, and when I had more energy to make jewellery etc, I made little crystal dangling bits to hang on the handle. When it comes time to get a wheelchair, it will 100% either be pink or customised to the heavens with pink accessories. They’re an extension of me and my body so of course I want it to match me and be my fave colour! 💖
I don’t understand how people have so much time on their hands to make up nonsense like the comments. Also I loved what you said about having Disability not meaning you have to always do the practical thing. That’s so true.
Hello there. New to your channel. I have cerebral palsy and I was born with it. I must admit I was bias as a born with disability but the reason I had bias was because I was just frustrated with myself and my own limitations. I don’t know if you’re faking it or not but actually. Who needs to care! You do what works for you right. As human beings we need to just support those around us.
i am a big fan of your channel and i think you are so so awesome and i have type 2 diabetes blood and protein in my urine high blood pressure a rare kidney disease lesions on the brain i am blind in 1 eye and my kidneys are only working at 20% and if they go down to 15% i will have to have dialysis and i have mental health as well and i get very very bad pain in my legs and feet and i have to sleep in a chair because the pain is so so bad and some times i find walking very hard and do not listen other poeple if using a wheelchair and walking stick help you then you go for it and you made me deal with my illnesses and not to care what other poeple think and i no you are not faking it so keep up the good work
I happen to have about 7 to 9 canes around my house and then some of them have rhinestones on them. Some of them are clear see-through. They’re in all colors imaginable and I personally enjoy them a lot when I can get out of my wheelchair and use them. Oh, and by the way, I’m 79 years old and I’m still going strong. And for all of you, younger folks, I am responsible for what I say and do, I’m responsible for what I think, I am not responsible for what you think about it.
I sometimes can fake being well! So I tell people they are right I am a faker.
At stations I walk up the stairs with assistance while someone caries my chair. I announce “It’s a miracle!” With any funny looks.
Good come backs help.
Another great video! 💖 Thanks for helping me not feel so alone.
Also you always look so cute, but I'm totally gushing over that dress! Where can I get one????
I started thinking that since a disability aid is something to improve your life even when you can live life without it I started to see other things as mobility aids. Like stim toys for those with Autism spectrum disorder or ADHD. those among those communities can life life without their stim toys but their quality of life can significantly improve when using the stim toy. It can improve concentration among other things. So technically by the standard of aids being their to improve life there's a lot of disability aids that are not normally seen as aids
I had someone claim I was faking being disabled because I was standing in some of my videos.
It will be okay honey. Just ignore them. You know who you are and that is all that matters.
Hiya, You Rock, I'm currently waiting to be seen in hospital for a diagnosis of chronic fatigue myself and in the process of coming to terms with my new life, including needing more than my crutch, possibly a wheelchair and rolater walker, I really wish there was a way of letting people who say stupid comments experience what it is really like to have this condition, like maybe if there was an experience my life button! 😉
you are so incredibly amazing by doing these videos, have you considered doing some day in the life videos or rather me at worst kinda video, that might make the idiots shut up with there babbling!!! 🫂☕🍩🌻🥄🥄🥄🥄🥄🥄🌹❣️I Love You ❤️😘
I have personally found that when people fake a disability it's because they have a different, invisible disability and they're tired of being ignored or belittled. I don't think it's helpful but I do understand and honestly have considered it. It's pretty telling that some disabilities are more socially acceptable
Maybe not even fake but... Play up? Like, talking to a lot of people who grew up undiagnosed, I find that a lot of us experienced these intrusive thoughts about getting into an accident, breaking something or getting run over, because then our pain would be 'justified'. My mom can't bloody fathom why I would prefer crutches over these trekking sticks my physio recommended, because I want people to *recognise* my pain, even if they're going to be rude about it, as I've felt all my life that no one took my pain seriously since outwardly I 'seemed' fine. Attention seeking behaviour is almost always the result of an underlying issue, & in the case where it isn't, you'd be hard pressed to find even one person you know who is like that
My question is why are healthy people leaving comments or even coming to your Page? It’s just odd . Maybe they need to go to a Doctor to have their head examined 😂 I had no idea about chronically ill people until I was chronically ill. I never had any interest and searching for them and making them feel worse.
haha yep!
perhaps the youtube algorithm??? idk, even when searching for these videos i find it hard to find em... so maybe not??? no idea 🤷
People love to comment, the most are ego dumbos… I can now walk just for only 50 meters with stick, why ?? proud I would give up, crying with walking so much pain, after that walking days on bed crying of the pain, and now have I a spine cord injury, did I give my self rest and a wheelchair, for the pain days or the days that I fall a lot, maybe I had just walk for years now and use the wheelchair only on off day, know I sit always in my wheelchair every day, with a lots of pain rest of my life.. So please go on living on your way it’s your body and you are the only one knows and feels your body. Respect. Grtzz from Holland
Here's an opinion/ advice: How about you just do whatever works best for you!
Love that!
I also deal with anxiety and depression to combat my depression I listen to positive music and watch positive videos and movies to combat my anxiety I also listen to music but calming music and have lavender in my diffuser it might not work for you but I love it again we are all different you are so awesome by just being yourself
Don't worry about what people think of you sweetheart 😘 you just be you
💜 Absolutely!!💜💜💜😊
She is so pretty!
It’s called ableism
I cant believe anyone would actually think that someone is faking it becausr they have a pretty mobility aid? Lmao
As if they would tell an amputee that they are faking it because they have a cute protestic, or tell someone that wear braces that they dont need it because they use colorfull ones, maybe someone that is using hello kitty really doesnt need it and is wearing it for attention. Thats the most stupid thing i ever heard.
Is there an intentional community that fully accepts and accommodates disabled people? Not a group home, an intentional community, where the disabled residents have full sovereignty, make their own decisions, and live with friends. Maybe an ecovillage, even. Affordable, preferably.
Very well said! 💜
Thankyou!
Im pretty sad you guys didnt really get the comment at 24:50, they clearly are on your side and just made a joke (as they said, ironically) about how you should just grow a spine, clearly knowing it is not possible. Saying "confidence *shouldnt have to be* a problem" really just mean that people shouldnt need to worry about being mistreated in a ideal world because they really shouldnt be singled out if people werent bastards. I really hope the person who wrote this coment havent seen this video
Why on Earth would I get a boring cane if I need one? I'll get a pink, sparkly one, thank you very much. I don't get this logic whatsoever. Just because someone chooses to go with a nice looking disability aid it's suddenly not real? What the fudge?
Also, all aids should have aesthetic options. I am so sick of all the hospital looking things I see on the websites when looking for stuff that might help me. I don't want my home ugly and hospital-y. I want it to match the rest of the home. I need orthopedic shoes. It pains me that most of them are made for people over 60, not young people. I'm 30, I'd like some nice shoes to go with my nice dresses. Options are very slim.
we can have cute aid devises, we want to be cute!
I have low vision and use a purple stick. Had similar teactions😅
This is what social media have come to, wow, I am flabbergasted, you wouldn't walk up to someone and say those things to their face smh
oohh i love your charm bracelet
For my part, I always thought high heels looked deeply unpleasant to wear, for a variety of reasons. Sure, they look good, but the points will sink into the ground and get stuck, the angle on your foot jams your toes against the toebox, and the heels themselves are probably not the most stable. I imagine a lot of ankle sprains.
But that is still absolutely your choice.
Fair enough! everyone should wear what they prefer!
I think the matching canes are pretty and not something I would have thought of doing.
I'm disabled and don't respond to them you are better than that ! I would just step you're moderator skills up and keep on pushing girlfriend ❤😊 fyi people she is young and her walking stick is beautiful and unique just like she is . I think you could make a business making beautiful cains for others it is something to make you feel better and help you walk so WIN WIN!! 😊😊
You have a good heart
I find that it's a nice cane and if you need it for medical purposes people shouldn't judge anyone who have mobility aids there are able wheelchair users due to other health illnesses they need them to live either way. They just don't get or understand invisible illnesses as we do I'm disabled and I feel that people need to respect anyone doesn't matter if your differently able there are invisible illnesses that oh if they don't see it that it's fake no it's not because chronic illnesses are not always visible. I like colors myself my wheelchair has lots of colors and I think it is nice that you match your mobility Aids to your clothing.
DON"T LET THE HEATERS GET TO YOU JUST BE STRONG.
WOW!!!! GIRL!!! YOU ARE POWERFUL!!! GLORIOUS!!! I’m so, so delighted by your dignified and justified outrage here! Your truth and words have an important place in our world. Love your pretty delightfully pink esthetic, your adorably modish cute outfits, charmingly coy makeup, the lusciously varying hair colors and yep, your style! You are just what we disabled gals need and whose voice I WANT to hear: you are BOLD, STRONG, RIGHTEOUS and you are not afraid to choose, decorate, "create" your cane and wheelchair, like your room, your clothes and personal grooming choices into a joyous, colorful celebration! I agree with you. Dang, if you chose a shoe style that is right for you, why can’t you? Yes,they need to stop “policing” us.I get that crap all the time. Especially from doctors, the ones who are supposed to help me. They never listen, just judge or assume. No one is justified in recommending that disabled people ONLY are permitted to live in a gray colorless world of meaningless oblivion. Yes, I’m another one of those perplexing ambulatory wheelchair people who is set free when she is riding happily in her chair! I LOVE MY WHEELCHAIR TOO! Yes, I encounter the dreaded “Truth Police” wherever I go too! Like you, I am not paralyzed (a very ignorant and limited interpretation of who can use a wheelchair) and while I can weight bare to stand, and yes, I can move my body around by shifting my legs, I cannot walk due to the pain caused by my CRPS and my deformed, structurally unstable, unreliable and permanently unfixable left foot and ankle. My chronic illness/disability make walking a really unhealthy choice. If I did not have my wheelchair I would be trapped in a horrible prison of not being alive: I would not be able to get out of my home. I would not have a life. Ignorant people say “wheelchair bound.” Like you, I say my wheelchair gives me freedom.
No one else has the answer to the puzzle of my CRPS (or your ME/CFS). No one except me holds the keys to my life with CRPS. Chronic illness is not MY issue, my wheelchair is not MY issue. My life with CRPS is not “a prison” until I try to live by their rules. CRPS is a part of me and when I unconditionally embrace this very large and important part of me, I love myself. The key to my happy life just so happens to be living by my truth and only my truth. Almost everywhere I go some people seem to want to deny my truth and some people think they have a “cure” : I am an incredible woman who among so many things also happens to live with CRPS and use a wheelchair. When the stop thinking they can cure us, THEY will be be cured of their ableist handicap. Maybe if they took a closer look at us, they'd see there's something ere to learn from us! In this moment it is incredibly obvious that no one can cure me. Hey there? What caused my CRPS? 7 brutal, extreme, horrifically extreme bone surgeries and fusions meant to save this once upon a time able-bodies gals foot so she could WALK!!!! If I had only known, there is so much more to life that conforming to the falsely perceived "safe" life of being fixed so i could walk. No, there is nothing that will "fix" my destroyed by surgery foot/ankle, or "cure" my CRPS and all the comorbidities it causes (Gastroparesis and more! but that's another story).
And they are bothered that you, Elinor, have the bold courage to carry a pretty cane and wear the shoes you desire. Pooh!
Your, cane, your chaiir, your style, it's all so delightful, so lovely, so RIGHT!
ROLL ON GIRL! ROLL PROUD AND STRONG! And thanks, Becky
Me running straight to your channel after seeing the newest 'Ellbat' video titled 'I'm sick' and asking if you have seen it and if you might consider reacting to it? Seeing as her being a big RUclips I want to know if that is good representation ... I know everybody is different, but yes ... I'm just curious what you think ...
Well said !!!
Let them remember the girl in the stilettos! Grab the walking sticks!
Whatever it takes to LIVE! Quality not quantity!
i do not no about your chronic illness and disability or what you are going through right now but if using that stick helps you that is all that matters do not listen to other people just do what you have to do and i no you are not faking it and i hope you are doing ok
The nerve of people. You look great. Thank you for making this vid 💗/srs
Also how is riding a motorbike a sign of health lmao? I can physically do a lot if i push myself but i risk being bed bound for a year. That's not health. You're responding with a lot of grace, i hope you feel safe to express frustration in private /gen
Ppl unbelievable
❤❤❤❤❤❤