New study points to potential cause of sudden unexplained death in children
HTML-код
- Опубликовано: 12 окт 2024
- Every year, an estimated 400 families are devastated by the sudden death of a toddler or young child. Now, an NYU study published in the medical journal Neurology on sudden unexplained death in children found evidence of febrile seizures in some of the cases. NBC News’ Kate Snow spoke with a family impacted, and has more details on the findings of the study.
» Subscribe to NBC News: / nbcnews
NBC News Digital is a collection of innovative and powerful news brands that deliver compelling, diverse and engaging news stories. NBC News Digital features NBCNews.com, MSNBC.com, TODAY.com, Nightly News, Meet the Press, Dateline, and the existing apps and digital extensions of these respective properties. We deliver the best in breaking news, live video coverage, original journalism and segments from your favorite NBC News Shows.
Connect with NBC News Online!
Breaking News Alerts: link.nbcnews.c...
Visit NBCNews.Com: www.nbcnews.com/
Find NBC News on Facebook: / nbcnews
Follow NBC News on Twitter: / nbcnews
Get more of NBC News delivered to your inbox: nbcnews.com/newsletters
#Death #Children #Investigation
We dealt with this. My son was born in 2017. From his first month he breathed through his mouth, and drooled excessively. He snored as well, and eventually was diagnosed w/ sleep apnea. His nose & mouth leaked so much, we went through 35-42 bibs a day. He got sick almost every month.
When he was 12 mos -16 mos old he had at least 1 "febrile seizure" every month. But he was always conscious. He would cry, "no, no, no" right before each episode. And of course cried during them. I was able to take a short video in only one circumstance. 5, different doctors watched it. No one could say for certain it was a febrile seizure. 2 different EKG studies could not prove a real seizure. Because they weren't conducted close enough to one of his seizures. How was I supposed to plan that!? I was offered epilepsy medicine for him. Despite not having 'real proof,' of what kind of seizure he was having.
All that to say. At 16 months of age, he was approved for ear tubes put in, adenoids & tonsils out because of his sleep apnea, open mouth breathing his whole life, constant sickness, & excessive drooling. The hope was, that clearing out his sinuses/throat etc. would mean his temperature wouldn't spike so fast when he got sick, because he would drain efficiently. His MD said that's when kids (who get febrile seizures) get seizures; when their temp would spike rapidly.
After the surgery, the surgeon said his adenoids were the biggest she had ever seen on a child his age.
Sure enough, thank God, my son's health issues cleared up after surgery. He never had a seizure again. His temperature didn't spike when he got sick, and eventually, a year later, stopped mouth breathing.
All that to share...we were never told Febrile Seizures have a 4% chance of causing death. The seizures were downplayed for sure. We were never told about monitoring devices. And the first 2 docs who said, "they are harmless, and kids grow out of them." Told us to wait, and he'll grow out of them.
After watching this video I am so glad we pursued his surgery. We didn't have to wait & see! We had found the root of his spiking fevers.
**I hope our experience can help someone.**
God bless you parents who are dealing with this.
I want to clarify that you have incorrectly stated that simple febrile seizure has a 4% risk of death. This is completely wrong. The risk is minuscule, likely less than one in a million. I am a pediatrician.
@@RiverDogRun Thank you,
So did I misunderstand the 4% statement? What did they mean when they talked about it?
the stat in the video said 4% of children 6 months to 6 years will experience febrile seizures. And that for it to cause death is "extremely rare"@@JoyComesFromGod
@@JoyComesFromGod The 4% statement was to say that 4% of children between six and 18 months have seizures. It wasn't the death rate, the death rate is much smaller
I knew I wasn’t making it up… my kid’s experience almost mirrors yours EXACTLY. Thank you for sharing
the researcher is inspirational; taking such tragedy and turning it into her life’s work. Her baby lives on through the lives of all the other babies who will be saved.
I'm so sorry for your loss. As a father to a now 5 year old son. This was one of the biggest fears my wife and I had for our child. May God give you all the strength to get you through these difficult times. Lots of love to the lovely little angels - rest in peace ❤️
Doesn’t matter what age your kids are that fear and dread never goes away, so sorry to anyone who has lost a child no matter what their age.
Nobody should ever have to bury their child. My poor dad had to bury my sister 5 months ago today, she was 29. @jemmajames6719
He’s talking about fear of baby or toddler not waking up. Fear of our children getting hurt or worse never goes away.
The singing to him the night before completely crushed me. I am a mother of 3, would’ve been 4 but I had something called vanishing twin syndrome very early in my pregnancy. Though I try not to be dismissive of my own emotions because they matter, I cannot imagine losing a child, especially unexpectedly. I am so sorry this happened to your family but through his short life, he brings a bright shining light. I am certain he is one proud baby boy for how amazing you parents are. ❤
That happened to my husband and his first wife. She miscarried a twin but the other was born healthy. Too early but still healthy. I'm so sorry for your loss😢
@@nikkibest5010 I appreciate it. I was told by so many doctors, because only select few people in our family know this happened, to stop crying over it when others have it much worse. I completely understand that and I acknowledge everyone who has a broken heart, especially losing a child that you once got to hold, kiss, play with, feed and nurture. It truly breaks my heart in so many ways, however I always tell people to never allow others to be dismissive of your feelings. I’ve suffered from major depression both related and unrelated to postpartum, and that’s something I learned along the way is to surround myself by people who are there for me and what I’ve endured and not to compare my story to others. Again, this story made my whole heart shatter to pieces. They seem like such great parents and I just pray that God can continue to cloth them with strength and that their baby who’s now in Heaven, can continuously sneak angel kisses every night as they go to sleep. 🙏🏼🩵
That was hard enough to see but realizing that there was a recording of his death is what crushed me. Things like that stay with me. I am so sorry for your loss and happy that you have a three beautiful children. I am sure you cherish them. God bless each of you.
The loss of a child at any stage of life - gestation through birth and beyond - is a gut-punch to the mother. You wonder what you did wrong, what the doctors did wrong … if nothing was done wrong, what happened? But at the end of the day the simple fact is a child was lost and the grief will always be there.
I am a surviving twin of vanishing twin syndrome. I guess this is more common than we would think.
No seizure should be labeled harmless. I’m glad this has light being shed on it.
At least they have the small comfort that their son's last experience was his mom telling him "I love you" and kissing him.
So sad but yes.. he passed away knowing he was loved.
😢yes!!! 😮😮
So right. I make sure it's the last thing I say to our 5 every night. ❤
I’m sure she watches that video everyday.
The last thing he got to see and know was his moms face ❤
I started crying at "that's a beautiful legacy for him to have"
bless them for turning a tragedy into a positive thing and helping other parents
Being a parent is the best experience I’ve ever had in my life, but it’s also the scariest.
It's amazing that sudden infant death continues to baffle us, and I'm glad that the research is making some headway. Over 60 years ago, more than a decade before I was born, my dad and his first wife lost their 1-year-old son to SIDS. Even today, my dad will get choked up speaking about it. They both never got over it, which contributed to the end of their relationship. I hope for continued healing to this family and others, although I know the pain never really goes away.
This isn’t SIDS. These cases have associated comorbidities, which *cannot* exist in conjunction with a SIDS diagnosis. SIDS is a diagnosis of exclusion, meaning there is nothing else on which to place blame for the death. In these cases, the seizures appear to be the cause.
I’m so sorry your older brother passed and you didn’t grow up having him in your life. No, parents don’t get over the loss of a child, we just eventually learn to tolerate living without them.
It doesn't baffle us. They suppress the truth. Stop vaccinating!
ALL of the media hype around SIDS disease is Absolutley False!!!! SIDS is a Title only given to children born with Inborn Errors of Metabolism. Of which, there are 700(!) different ones. Everything you have Ever heard is complete BS! My daughter was Born with methylmalonic acidemia. It was NOT Caused by her sleeping on her stomach.
She died at 17 yrs old, not from the disease, which did take a heavy toll, but from an unclean hospital. Don’t believe what is reported as fact thru the news!!!!
There are correlations between actual SIDS and other things, but if big pharma can lose money, no one can even discuss it, let alone research it. I don’t claim that IS the cause, but why not investigate?
Thank you for bringing light to this issue. It’s heartbreaking
My son had a febrile seizure at 2 years old. Many told me it was so big deal, that they don’t leave any lasting effects and that he’s fine. It was so scary. Prayers for this family 🙏🏻
I’m a pediatric nurse. 99.9% it is no problem and they grow out of it.
@@jillfeatherman5523A very nasty thing to say to suffering parents 😠
@@jedigovna295that’s a bit tasteless to say, but I think it’s still important info to know
I'm so sorry for your loss
Our daughter was starting to when she was roughly 18 months, during the whole covid thing. It was weekend too, friday evening, so no GP available.
So I tentatively called 'emergency GP' that sits between the regular GP and the ER. Now I know those guys as the 'turnaway team' because I've had them reject me with broken bones, seen them reject poisonings with a 48 hour max survival rate as 'not urgent enough'.
Because our daughter, she was running a fever of 40.1, small shakes occasionally and I could hear her breathe but you know, kids do that. I thought it was covid.
The triagist on the phone basically went "Do you have a car ready to go, otherwise I'm sending an ambulance. You do have? Good. Here. Now. Don't F around. Break the speed limits, see you in 10 minutes."
We got rushed past an entire waiting area stuffed full of entitled boomers who stubbed their toe on something who clog the system up and cause the 'turnaway team' effect.
Turned out to be a regular nasty cold and nothing serious (just upper airways), but I apreciate them erring on the side of caution.
That said, you never know how it goes. 😆She recently caught covid, her 2nd time and she barely noticed it.
I got it too, 2nd time. My first time was a bad 3 days, but this time it laid me out for 3 weeks. Couldn't work. Couldn't even think. Coughing blood like I'd been snorting mustard gas or something. That was late november and still I can't run more than 100 meters without gasping, absolutely devastating. Meaning that by now our little one can outrun me.😆
I'm so sorry you went through this. I cannot even imagine.
Thank you to everyone involved in the research and this news segment.
Our daughter had sudden random choking from acid reflux for the first 12 months of life. Someone was awake with her at all times even when she slept. It was incredibly hard and required 3 adults to care for her, but in the end she survived. I think it's the only sure way to avoid these sudden deaths.
Omg. My first child had this as well!! Literally whenever she was laying, even at an incline, she would spit up, choke, and not be able to move air(had a lot of GI issues even though she was breastfed). I was so sleep deprived and scared, battling PPD with OCD. I literally could not lay her down. I bought expensive devices that would keep her upright for the first 4 months of her life and held her for sleeping. The doctors would not listen to my concerns and pleas for help. 😢😢 As soon as she gained upper body strength, I let her sleep on her tummy and that helped ALOT.
My son had this too it’s called gasping syndrome and it’s a reaction to benzyl alcohol which is in the vit k shot
They’ve known about this since at least 1980
This is actually where I'm at right now. It's exhausting to be alert in case an episode happens.
Heartbreaking i told the nurse I didn’t want that injection but the pressured me at my most vulnerable. That child still has issues
Heartbreaking i told the nurse I didn’t want that injection but the pressured me at my most vulnerable. That child still has issues
This is so painful. Precious little babies should not die. God bless the families left behind.❤
Thank you so much for this important research. My heart is with the family. My husband insisted we buy the most top of the line monitors which each had heartbeat detecting tech because his best friend had lost a child to SIDS. An alarm would sound if the baby's heart wasn't detected ( or if their older sibling takes them out of the crib). The company is Angelcare. We bought one for our grandbaby too. They've gotten even better and have video options as well. Our family swears by them.
you bought them for your children? if you’re already grandparents, how long ago was this
I would not be putting Bluetooth anything on or near an infant. Instead make sure that the mattress your child is sleeping on is not sprayed with chemical flame retardants, volatile organic compounds , and plasticizers, like phthalates and BPA as well as per- and polyfluoroalkyl substances (PFAS), a large class of synthetic chemicals otherwise known as “forever chemicals”. Sadly, most run of the mill crib mattresses do in fact contain a lot of these.
@@mama_knitterPlease explain why you wouldn’t use Bluetooth on or near an infant. Is there danger that isn’t well known? If so, parents who are using them unnecessarily with infants and toddlers need to be told. It is potentially worth the risk for a child with a chance of death after a condition like febrile seizures has been determined. But to loose another seemingly healthy child is unthinkable if Bluetooth devices could be responsible. Do you have a link you can share?
@@merk9569 a constant low powered RF Radiation signal is more dangerous than a more powerful short duration RF Radiation signal. Bluetooth emits RF Radiation constantly as long as it is on, and it is a slightly higher frequency than 4G cell service. (5G is a much higher frequency than Bluetooth.) Its going to be the cigarette of our generation. Brain tumors and cancer in children are already accelerating at a speed we've never seen before. However, due to the convenience, people will brush this off. Its definitely something to look into and be aware of.
ruclips.net/video/HB_OYdoFwf8/видео.html
how about sleeping with your kids. I don't understand the need to separate your toddler from you. where I'm from a child usually leaves the parents bedroom at 2 years old if not 3yeras old.
I appreciate how they look at one another while one speaks. It is loving and respectful.
my condolences to that family, i lost my brother to SIDS before i was even born. he would be 35 years old now, im 32. i am just glad i have two older sisters that i grew up with. so no matter how much you fight with your siblings just be grateful you have them.
So very true.
🙏🏾 Amen.❤
My son is 17 months old.... We have 5 kids and this is my worst fear. I am so sorry for your loss.
I am in no way blaming anyone over this tragic death, I've lost a child too. Laundry detergent companies add fragrance to detergents to make them smell 'nice', yet fragrances are NOT regulated, and contain very dangerous "perfumes". Many of us have seizures from them. Please switch to Fragrance Free laundry detergent...oh, and don't use Plug-Ins! Avoid as much fragranced things as possible since they aren't squeezing flowers for that scent, their using chemicals. It infuriates me that these products are still being sold after all the medical issues they cause, when all they have to do is leave out the toxins. My deepest condolences to this family🙏🌹
Just so you know, the sent from flowers is also a chemical. Chemical doesn't mean artificial or made in a lab. Everything we smell or taste is a chemical our body reacts to. I understand what you meant but using it in such a way is not very helpful or informative.
Most people would know unatural chemical or chemicals that are toxic- you would imagine. But these days ignorance widespread.
May you attain Salam
It would be wise to stay away from jabs... you can't even begin to imagine the dangers. It amazes me that people won't use fragrance, but they will let their delicate newborn babies get obliterated by jabs.
I have developed an allergy to artificial scents. If, for instance, I go to a friend's house who uses Plug-Ins or Scentsy or even scented candles, I have to make my apologies and leave.
Thankfully, REAL essential oils are still okay.
As an infant, I had febrile seizures. For me, they were related to my tonsils. I had my tonsils out at the age of two and never had another seizure. My heart aches for those who've lost children to SIDS.
Vaccines as well
My daughter has epilepsy recently diagnosed in Oct. she is sort of stable now I feel for this family. I just got fired due to missing work cause of daughter seizures it’s rough but I couldn’t imagine without her.
@rhinocow1203 Please contact your union representative immediately. The Family Medical Leave Act (FMLA) is a federal law that protects parents like you from being fired due to attending to a child like yours, with health issues. Parents can't predict asthma or epileptic seizures, for example. Please look into this right away. Human Resources should have informed you, but unfortunately they often fail (deliberately or because of incompetence) to provide staff with forms and information to apply for FMLA protections.
@@rosarioc.debaca1935well done.. for taking the time and care to offer some solid advice. Often people can lose their way due to the taxing effect of trauma and grief… fighting the battles that come with these challenges , you can only wish that they are surmountable. I am really sad and angry that this lady was put in this position in the first place. Life can be hard enough… we never know what is happening to some one in their private life. Kindness really does go a long way people.
I hope you can find a work from home job that's more understanding
Let me guess, this is in the US? Shame on them. In the UK I’ve never worked anywhere where bosses would do such a thing. It’s just go, she needs you, no need to take holiday days either.
@@nicolad8822 Canada but rural they think they can just treat you the way they want
My heart breaks for any parent who has lost a child. My parents still remember their fear when i had 2 febrile seizures before i was 2 and now that im currently pregnant with my first baby they are telling me to be on the lookout. Im so grateful for this research and the advanced technology
Maybe don't vaccinate your child. 🤷♀️
@@theurbanthirdhomestead get outta here with that antivaxx bs, both me and my husband are vaxxed and perfectly healthy. You know what happens to kids who aren't? Sick or worse.
@@TallieKaeyou know what happened to my son when he was vaccinated at his 4 month appointment?? He got super bloody diarreah, vomiting, and scream crying 2 hours after his shots and it lasted for 12 days. Very, very blood filled diapers for almost 2 weeks. Guess what? The same pediatrician that vaccinated him, told us he had a severe adverse event and the vaccine gave him what it was supposed to protect him from!
@@sarapierce4086 I'm sorry that's your experience but mines different and I'm going off what kept me alive, my brother alive and my husband and his brothers alive and I'm doing what's right for my baby, always ask questions about vaccines especially the side effects. I hope your little ones doing better
My son became allergic to eggs and milk after his 2&4 month shots. Eczema on the face at first. Then on his body. Ive had to limit my diet. Before that I ate egg burritos oatmeal everything. Now his system overreacts to dairy…
As a mom with a child with epilepsy I cannot stress sleep monitoring enough. The SAMI device is a great way to stay alert and constantly monitor a sleeping child or baby
I have lived with epilepsy for 38 years, since I was 11 years old. I know you worry, and I want to reassure you of something that most people dwell on. When we have seizures, we are not there. We feel no pain, and we have no idea how bad it looks for you, our loved ones. It’s often worse for you than for us, because you have to watch it.
Don’t let anyone tell you that your child will be less than, especially when it comes to intelligence. I was told I was stupid for years. I’m not. My IQ is 128.
I do have some memory problems. Mainly short term memory, ie names, numbers, and other little things. I have had many concussions, and I think it has affected my memory.
Keep an eye on your child’s teeth. Many medications for epilepsy can dry the mouth out, and it causes teeth to rot.
Making sure that your child doesn’t see themselves as an epileptic is important. They live with epilepsy, they are not epilepsy. I never had a seizure without wearing makeup lol. I have seen too many people who live with epilepsy, let go of themselves and embrace the disability as who they are. It’s self destructive, it’s counterproductive to living a full life.
I hope you don’t feel I’ve condescended to you, as that’s the last thing I want you to feel. I just want to offer you a perspective, from someone who knows the struggle, and the strength, it takes to live with epilepsy. You live with it too, remember that. Sending you blessings, and light. 🌹
As a mother of a child with seizure disorder, I have to ask how does monitoring oxygen levels help? When a child is in seizure, we may warch, clock how long it is, but we can't make it go away. Sudep, sudden unexplained death in epilepsy, rare, but real, is not something we have control over, except trying to pre ent seizures with medication. But uncontrolled seizures for those on medications is still correlated with SUDEP
Unfortunately those devices prey on people's fear without offering real solutions. I think they start with good intentions but when investors get involved it can go sideways.
Ugh all of you google what a SAMI device is. It does not monitor vitals it is a video monitoring system that watches for repetitive movements (my daughter has clonic tonic seizures) and it’s been a life saver. I can actually sleep at night with her narcoleptic epilepsy. And yes it works.
@@jaykay3619 " HiPass Design LLC. does not guarantee the effectiveness of SAMi for any particular application and use of SAMi is solely at your own risk." , not evaluated by the FDA, no publications, no studies.
So we just don't know how well it's working, all you have is your own empiric evidence of how well it's working. Imo this company hasn't proved that their product is working. Especially after 10 years they should have data to back it up, a younger company could make more sense. That said I am sure it's helpful to have that monitoring since there are no other options anyway, and you can't watch them sleep every night.
My heart breaks for this Mom and Dad ❤ I love that his legacy will live on through warning others. Thank you guys for spreading awareness. God is truly with you during this tragic time.
My son spent his first month in the NICU due to meconium aspiration during birth. We immediately purchased an Owlet sock to monitor his oxygen levels while he slept. It was honestly such a life saver! I could sleep better knowing my baby was being "watched".
Unfortunately there is no evidence that it has helped anyone. If anything, there are a lot of babies who had pneumonia and were brought to the ER too late because the readings were wrong and telling parents they were ok when they were not. It can give a wrong sense of safety. You would need hospital grade equipment to fully rely on it.
I have used the Owlet for my 2 babies. Nothing ever happened with my daughter, but for my son we’ve had 2 red alerts. The first one he was asleep on his tummy (he had rolled over on his own) and his face was straight down on the bed!! So that was very real. We had a second incident recently where he was on his back and breathing really weird when we came in. He had a very stuffy nose at the time. But yeah his oxygen had dropped into the 70’s. So I always see people saying the Owlet isn’t as good as hospital devices, but it’s better than nothing. That’s for sure.
@@s.stevens4520Exactly and it is now FDA approved. My son has one as well since he catches so many colds as a little guy. We bought it also for peace of mind. It is better than having nothing. I wish they’d lower the prices so other families could afford them.
@@comment_account2343Oricom has breathing monitor plates that you can place under babies crib mattress. They used them in the NICU/SCBU with my baby, they are also hospital grade and cost the same if not cheaper than the owlet. They monitor baby’s movement and an alarm goes off if there’s no movement for longer than 20 seconds :)
@@s.stevens4520there’s a possibility that your kid might have asthma, my son at 3 also had his oxygen dropped to 78-79 and we had to bring him to the emergency and they took him in right away and had to over night at the hospital, it was last spring and it happened again during last summer. So after twice in the emergency we were given inhaler/nebulizer twice daily for him. Please mention this to the pediatrician even though they cannot technically diagnose asthma usually before age of 5 but it helps so much with proper treatment. My son is now capable of doing normal things and won’t be grasping for air.
My son had febrile seizures just after his two year old shots. Kept going all weekend. Thank goodness he hasn’t had any since then. He is 11 now.
Was it bc of the shot?
@@dani23dani85 I thought it was, but was never confirmed
they will NEVER tell you, but you know the truth; its definitely connected to the shotz. aluminum getting into the brain and killing the neurons. my friends baby dyed a few hours after it got a series of shotz, moments after the shotz, the infant suddenly emitted a high pitched screech, unlike anything before, im told its the aluminum killing the neurons. DONT let docs bamboozle you, theres a moms group for this brain damage.@@Mommyvisions
So glad that maybe with age he has ‘grown out’ ( for a better word) of the seizures. The lengthy time frame sounds really positive… I hope for whatever blessed reason the tide has turned and he will keep on improving. Self care is a must and just looking after himself.. with the great support around him. 😊
@@Mommyvisionsthey would never admit it. Have 2 family members that had febrile seizures post the MMR and both have epilepsy in adulthood that has affected their career, income and ability to drive.
This is extremely important to share, I’m so sorry for your loss. My heart goes out to you and your family 😢💔.
My brother had seizures when he was a baby and as a toddler, my mom didn’t care what the doctors would say, she would always take him to the hospital and he would stay overnight. I’m glad to say that his doctor never brushed off his seizures and eventually he stop having them. ❤️
He’s now 33 years old, with a beautiful wife and 3 wonderful children. 💙
I’m so confused. Did this video even explain the cause?
@@terrycrews1760sometimes, there is no cause and they just happen
Such important research. My heart breaks for this family and any parent who loses their child like this.
Years ago, I did a ride along with our local sheriff. The last call we went on that day was a crib death. That mother was completely devastated. Having answers would not heal such a terrible tragedy but it would help parents understand what happened.
Keep your children close by !! I understand the importance of privacy but when you have little ones they should be sleeping in the same room as you. Or have a room nearby to yours with the door open.
Absolutely % this. Noone should desire privacy from their vulnerable baby who is 100% dependent on you. Not cosleeping or putting your baby under 6 months in a different room away from an adult caregiver all night is neglect.
thank you! I never understand pediatricians in the US encouraging independent sleeping for infants! blows my mind!! that baby should sleep in their own bassinet/crib next to your bed or at least in the same room as long as they can.
While this is true don’t guilt these people or people similar to them into feeling worse than they already do. Even if baby was next to them in this case it doesn’t mean they would’ve been able to do anything. Yes in general sleeping in the same room as baby is safer but SUDI/SIDS can occur anywhere
@@Animeshelly0120I really think it's encourage to detach baby from mom asap in the US because we send our new mothers back to work so early...gotta get mom back on the grind so get that baby used to being detach as soon as we can !
I've coslept and had a baby that honestly did better placed in his crib at just under a month and he slept a solid 12 hrs. Don't assume people are putting them in rooms for privacy reasons. I've never heard that as a reason. Nor was I doing it to seperate from him. I stared at the monitor all the time for his chest moving etc. I'm sahm so I didn't need to go anywhere. He just woke very easily and would cry and cry and he did so well when it was suggested to try laying him in his crib. Sleep health is a very important issue too that needs to be weighed with other issues like parent bonding and needs. Some kids need their own space to sleep well.
My youngest just turned 10 months, lord Jesus i pray and ask that you keep all pain, evil away from these young ones. Keep their heart and mind at peace. Grace them with you love and ease the pain of the families involved. Amen
Don’t get the M. m. RV. At least not until after 3
Mine just turned 10 months as well. God bless these families because i pray to never experience anything like this 🙏 Bless your baby as well ❤️
Amen
God is all mighty and powerful. Jesus Christ our Lord and Savior I pray for all of our children’s well being. May they always experience your peace, love and gracious protection. Keep them from harm, illness, and attacks from the enemy. I pray this in the mighty and matchless name of Jesus Christ, AMEN
It’s true, the doctors are now saying if your baby has a febrile seizure, it’s not good if they have another one in less than 24 hours. So always take your child to see the doctor even if it seem to be just febrile seizure. My husband laughed at those monitoring socks devices because he said what is it going to help, but I think it can save lives for some. I had two friends uses those monitoring socks and both of them don’t regret it one bite.
It will help even in the sense of parents having the psychologically important feeling of having done all they could, if nothing else.
They take it pretty seriously in my experience.
Our daughter was running a fever and I could hear her breathe. Not struggling, but audibly working on it. Think I saw some shakes every now and then, more like a glorified twitch.
Tentatively called the weekend service (who I know to reject even poisoned people if their prognosis doesn't involve dying in the next 24 hours) and explained the information told me to call if I heard our baby breathing and it was probably nothing serious, but....
The triagist interupted me and basically went "Do you have a car? Here. Now. Don't F around. Break the speed limits, see you in 10 minutes." and we got rushed past an entire waiting area full of entitled boomers who ussually clog the system and ensure each emergency visit is normally a minimum 2+ hour wait.
I was told more than 3 in a 24-hr period to go to hospital a long time ago....
It sure isn't going to hurt and might even save a life.
This is heartbreaking... that poor mom's voice just hurts
Sending hugs to this family ❤️💕💕
They seem like the best parents
Thanks for speaking on this matter
My prayers are with your family ❤
My niece has these and just shared this with her mom, thank you for sharing your story and I’m so sorry for your loss 🙏📿
Always, ALWAYS buy baby monitors. At a few months old, my sister stopped breathing one night. It's only thanks to the breathing monitor that woke us up and got my mom to take her to the ICU that she's grown into a woman in her twenties. People keep calling them redundant or a myth, but those of us who either lost or almost lost a family member to SIDS and later unexplained death know the truth.
SUDEP (Sudden unexpected death in epilepsy) I try to spread awareness. Similar to this situation it's something you NEVER could think would happen. After my first seizure at 6 months my crib was in my mom's room because it's all she could do at the time. Please spread this video to whatever platform you can.
We love our nanit system. It's alerted us when our son stopped breathing during the night.
What a love they share in their marriage, I pray their family grows.
SIDS has an extremely high correlation to routine pediatric visits (well visits). This shouldn't be ignored.
100% correct
💯 so glad to see someone who understands what's going on
And we all know what schedule those "well visits" follow
@@4lindseylove exactly
I searched through all the comments for someone mentioning this. Notice who sponsoring the video too…
I feel so bad for these parents, so heartbreaking! My cousin's granddaughter suffered the same fate around the same age, went to bed healthy and was dead an hour or two later, no explanation. My thoughts are not seizures, but lethal arrhythmia, in adults ventricular fibrillation usually produces seizure like activity in the person from anoxia at the onset. I think the seizure activity is a hint to what is happening, but not the cause.
Vaccines?
@@sandy239b6dude, no. You know that's not been connected (and has been examined).
uh, no@@sandy239b6
@@deprofundis3293honestly people blaming the vaccines is so bizarre since it has been studied. Also, even though we are terrified of sids nowadays, before the vaccines, or in countries were vaccines are not as available, infant mortality was/is a lot more common and that alone should end all discussions around the topic.
They've changed the ingredients in vaccines since their inception. They now have known carcinogens and toxins. @@gk9546 they're not benign. But that is also not to say they're the cause of SIDS for a majority of children.
I don't understand why don't realize seizures are a side effects of the vaccine schedule. Apart from other types of genetic conditions that some children are born with.
That's what I thought too 😢
Check when he had his last vxx shots, kids usually die in the first 3 days or on the 24th day post vx due to immune exhaustion. Check Vera Sceibner research
I can't imagine the pain of losing a child I feel for all those babies loved ones. I never even thought that it could happen to a twin which is silly I guess. This is such important work to try to prevent and understand. I hope this really turns into something significant ❤
It’s very heartbreaking
Nobody talking about the amazing amount of chemical poisons in vaccines I see. In my country all vaccines have been classified as venimous substances.
I don't understand how people don't see all the links in this related to vaccines... the age of the child. They say these seizures are "normal" from 6 months-6years, aka the exact age gap that children receive vaccines for. SID isn't rare. It happens a lot. It is a listed side effect on vaccine package Inserts. Which they don't just give the public...no. any other prescription they give you a sheet or pamphlet and talk over all possible side effects...but not with vaccines??!
I'm praying more and more eyes continue to open... this is an evil world we live in.
My daughter had a febrile seizure from the Hep B vaccine! When we took her to the hospital they checked her out and said she was fine. My husband and I took turns watching her 24-7 for a long time after that. She’s okay now. More research needs to be done. My heart brakes for these parents.
I have to wonder how much of this could be prevented if parents kept their babies sleeping in the same room as them. Especially when the baby is having a seizure, if the mom is sleeping right next to the baby when its happening, mom might wake up and be able to save the babies life. As a mother myself I hear everything my baby does at night as she is next to me. I wish America did not endorse a culture of babies sleeping in their own rooms. It's totally abnormal (and goes against every biological marker) for a baby to be alone ever, and it went against every instinct and bone in my body when I had my babies. My son slept in his bed next to me until he was 3 and my baby girl is next to me in her crib. Crazy that people put babies in separate rooms.
I totally agree. In my country, babies always sleep in the same room with parents.
I can see your point of view but babies have slept in the same room as their parents for centuries and SIDS rates were extremely high up until recently
Infantile seizures are a potential side effect to most childhood vaccines. Read the pamphlets.
Yes. My son had one after MMR, I learned quickly.
It was a really important message to announce the oxygen monitoring socks. If I ever had children, I would want those socks. This is very scary and very sad. God bless this family.
Those devices are expensive. Do you know of a thrifty solution?
@@Fido-vm9ziAngelCare monitor. They have one that does under the mattress.
@@Fido-vm9zi I don't know about prices but I'm aware of a pressure mat that goes under the baby in the cot/crib and detects if they stop moving. May or may not be cheaper than the sock.
In what world are seizures harmless or common? That’s just crazy!!!!
the new normal.
My heart ❤️ ughh poor family. Thank you for sharing your story now other families will be better advocate for their children’s in cases like this ..❤️🙏🏼
This is so heartbreaking. However, I am glad that science is finally beginning to get more information about what could possible cause SIDS. When my son was a baby I was terrified something like that would happen to him. Now he’s 4 and I still worry about SUDC (Sudden Unexplained Death in Childhood), even though the odds for that appear to be less than that of SIDS. I guess worrying about my child is something that will never go away, though.
The odds may be less because they give less toxic injections to children than babies. Also the injections are less concentrated because their bodies are bigger compared to the same size dose.
Look up the ingredients (the omes they choose to list) from the full lenth insert for the "immunizations" given to baboes and children. All of them are toxic. Look at the lost of known "adverse events" or side effects. SIDS is clearly listed, but you are told it is 1 in a million if you ask about it. Anything to make money for big pharma companies.
@@HopeAbigailDayanYou do realize dosage is based on weight right?
@Bmo9881 You do realize Toxins are Toxins, right?!?
@@bmo9881 you do realize they are not dosed based on weight, right?
My twin nephews were born at a pound each at 26 weeks. Everything is dosed by weight except those injectables. Look up the amount of aluminum in there. Unsafe.
Gosh- as a mom… how can any of us not sob watching this?
So grateful for some research on helping this!
I have always been taken it back when the medical community are taught and then tell their patients that febrile seizures are the better one to have... It made no sense to me. I'm so glad this researcher did not quit looking just because standard practice told her there's no cause.
So the doctors always knew there was a risk of death with febrile seizures, however small, but chose to not inform parents of that...? I get not wanting to stoke fear but that's simply irresponsible and ethically questionable
This is so sad and my parents have had friends who lost babies to not waking up I appreciate this study
But no one asks why he was having the febrile seizures……
The video tells you at the end, at the 4:10 mark.
Probably from something very safe and very effective.
Bingo
My toddler and I both have seizures. Both diagnosed around 14 months old. My first seizure was febrile but hers started out of nowhere one day when she was taking a nap. I was watching the monitor so thankfully I was able to rush in there. But I totally believe that these infants easily could’ve had seizures in their sleep. SUDEP is more common than we think and we need to spread awareness about epilepsy/seizures in infants/toddlers. I’m glad these studies are finding something!!
can't stop crying while watching this. as a mother of a 7month old this is so hard to watch but i did for information. my heart goes to those parents.
Me too I have a 9 month old 😢
Same here. My is 5 months today 😭
What a dumb doctor to say ANY seizure is okay!! I have epilepsy myself and to hear a DOCTOR said that to his poor parents just brakes me!
The doctor never said that the seizures were okay, he was saying that at that age, between epileptic seizures and febrile seizures, febrile seizures are the VASTLY less dangerous type for children to have.
@@LM-wz9yw no seizure is good! Maybe look up what a seizure does the the body, brain, oxygen, oxygen to the brain, what can happen in the middle of a seizure or if you don't know it's even going to happen I can keep going. NO SEIZURE IS GOOD FOR AN ADULT OR CHILD!!
Febrile siezures are scary, but not usually dangerous.
@@codename495 I have never heard of a febrile seizure but I'll just say most all seizure aren't good but I'm no doctor soo 🤷🏽♀️
the doctor was talking about FEBRILE SEIZURES!!! Calling someone dumb due to your ignorance is weird
I find it bittersweet to have this video suggested after posting a vlog about my recent miscarriage. ❤💔 SIDS has always been something I will fear in the future especially after knowing people who have been affected by it. This research is pivotal! I'm happy it was recommended.
I lost a brother at age 1 from sudden death syndrome he didn't show any signs of problems with him
😞🙏🏽🙏🏽🙏🏽
When I had my twins. I was paranoid about SIDS. We did IVF and it took a long time to have kids. He slept with our kids in the same room. My wife and I checked our kids every few hours.
Unfortunately, doctors do not tell parents that febrile seizures can be caused by vaccinations.
Yep. 2 children in our family had febrile seizures days after their 12 month shots. It wasn't until the second child 2 years later had theirs that their parents put 2 and 2 together. The children didn't even have fevers.... by the grace of God their parents were in the room to witness and the seizures lasted SO LONG they continued in the ambulance, for both children 2 years apart!
Link a source that says they are?
You mean YOUR doctor didn't. Probably because the risk is still too low to outweigh the benefit of the vaccine. But there's no conspiracy going on, this is literally the first search result from the CDC regarding vaccine safety, the information is all there www.cdc.gov/vaccinesafety/concerns/febrile-seizures.html#:~:text=Studies%20have%20shown%20a%20small,the%20risk%20is%20still%20small.
@@bmo9881www.cdc.gov/vaccines/vac-gen/side-effects.htm
@@bmo9881 just Google CDC possible side effects from Vs (spelt out). They list them for you. Febrile seizures, even the risk of death. Most of the adverse reactions go unreported though. Yet they have a court for only those lawsuits.
I've never thought any kind of seizure was ok no matter what they say!
I couldn't survive losing my child. I just couldn't.
I would die if I lost my son. He's only 13 months old. I check on him 5 or 6 times a night, ever since he was born
Your brain would adjust and you'd be fine and if not, well, we all die anyway
I remember when my niece would have them. Her little face would go purple and she never made a sound. The fear is unlike anything I've ever felt. The dispatcher just kept saying, "blow in her face, blow in her face". But it will always haunt me to think about what would have happened if she were alone. Has it happened while she was alone before? Did we get lucky on both occasions? That sweet girl is a teenager now.
My son had one febrile seizure once a year. As he grew older it got worst. When he was 5 years old his last seizure was so long that we and the doctors were so concerned about him. We took him to the specialist but they couldn’t find anything wrong. I was so scared that I even went to a psychic for help. She told me that it will stop so I don’t have to worry about it. It finally stopped when he was almost 6. It is scary because my didn’t wake up after his seizure. We continue to check his breathing. Now he is 18 years and haven’t have a seizure since 6 years of age.
Vaccines
Brought to you by 4:10 in the video
@@MyFriendlyPup kindergarten booster at five and then glutathione helped from there on
I used the owlet smart sock with my daughter. She had just woken up from a nap and was crying like usual. Then all of the sudden she got completely silent and the alarm started going off. I knew to be worried because this wasn’t your typical false alarm from the sock being kicked off. The fact that she was also completely silent just ignited this fear inside of me and I went running into her bedroom. She was completely unresponsive, her eyes were open but unmoving, I couldn’t tell if she was even breathing. I unwrapped her from her snoo swaddle and lay her flat on the floor. She was unresponsive for what felt like forever but could have only been a matter of seconds. Before I could even respond to what was happening she started blinking and looking around smiling. The entire situation was still extremely alarming and I’ll never know what happened. There is no way to know if what I did solved the problem or if it would have resolved on its own. All I know is that for some reason her oxygen levels were showing as low and she didn’t appear to be breathing. I also have a friend who used the owlet smart sock with their infant. In the middle of the night the alarm went off and sure enough something was very wrong. They rushed him to the emergency room and spent several weeks there. Whatever he was sick with I can’t remember now was really bad and the doctors said had they not gotten there sooner he would have died. Like the kid went to bed fine and then when they went in there he had a raging fever and was not responding to them. I really do think that anyone who can afford one should have one especially if your infant has some sort of medical condition already. I wish everyone could afford to have one because there are several stories from people who have had some weird situations like mine and then some more very serious ones like my friends. A lot of people called me extra when I got one but I don’t care. I’d rather be safe then look back later and think about what more I could have done. What happened to this family is terrible. It shouldn’t happen to any family and if something like the smart sock could help prevent it from happening to anyone else then it’s worth it. It doesn’t replace being vigilant of course but in this situation where everyone is exhausted and asleep how can you be? Parents don’t have eyes in the backs of our heads as much as we wish we did. They had no reason to suspect that anything might go wrong that night. Even if you have a perfectly healthy baby I still urge parents to consider getting one.
Are there any studies linked to vaccinations and infant death?
It's listed on every vaccine package insert. Many reports on VAERS.
My heart goes out to this family and others who deal with this. As a mother I know first hand how we are extremely nervous about our children's first year of life due to SIDS. But to see it extend past a year and it's due to seizures that are being downplayed is horrible. They tell us to let the child sleep by theyself but then you really can't monitor them. I watch my babies while they sleep even if that means I'm losing sleep because this type of stuff is terrifying. I pray for families that go thru this. 😢😢😢
My twin died at 15 during covid , but one thing I noticed is that this baby did not have no eyebrows at all , my twins had a little eyebrows too , just wanted to point that out , and I pray God gives this family solace in their loss ❤😢🙏
Sorry for your loss. Many of us lost family members during Covid, so you are not alone. Honestly, Covid period was a tough time for everyone. Sorry that your twin's death could not have been prevented.
Very observant. The body's lack of hair production may be tied to nutrition deficiency. Bulimic or anorexic girl's bodies produce facial hair and body hair in the absence of proper fat intake and nutrition, to stay warm. A connection?
I'm so sorry for the loss of your twin. ❤
They are there, they are just very light. I had to watch it 3 times. I know of another child who has febrile seizures and he's also very fair skinned with blonde hair. All their children have uncombable hair syndrome when they are young. They have one incident on video and he almost died. I think people are thinking they are saying that this is the cause for all infants when it's not. There is obviously going to be other causes but they are saying this may be the cause for the majority of the unexplained... where they followed all of the rules and it still happened.
A lot of babies don't have eyebrows... and all nationalities die of SIDS.. let's leave the speculation to the experts
My heart breaks for this sweet family 💔
I'm so sorry for your loss ❤️🙏
Ugh that poor mother. I am so sorry for her. As I Mom myself i just can’t even imagine how a parent could even continue
My oldest son had a febrile seizure a day after a round of shots. He didn't wake up for three days. Doctors suggested it was fine. He is my child with special needs. I am that mom you may think crazy for no longer allowing shots.
Not crazy at all! Trust your instincts:) Some think I am crazy too;)
My daughter had bad reactions at 2 months and encephalitis at 4 months. I thank God I learned the truth before more damage happened to my daughter although I wish I had known beforehand.
My infant son stopped breathing at home in his sleep after a round of shots. Thankfully I was using a breathing monitor and the alarm went off. It took time to get him to breathe again and boy was that scary. We spent 3 days in a pediatric ER/hospital. He’s ok and believe me that made me do more research into shots and getting so many at once for a tiny baby.
@amelajay which shots were they, if you don't mind me asking?
Not crazy, very very sane lol
My son developed gasping syndrome and jaundice and had a hard time waking up from the vitamin k shot. I had to feed him through a syringe. Scariest week of my life.
I can’t stress enough to tell parents don’t have baby’s in their own room the first year, I understand you are sleep deprived but I had infants that were choking on their spit or vomit due to colic so I had them beside my bed waking up every 40 minutes to ensure their safety. Every time I see or hear about an infant dying is because they were in their own room or a baby sitter didn’t check on them and left them in a spot for too long. It’s tiring working but you must sacrifice your sleep to make sure the baby is breathing. Also breastfeeding your kids a lot who just go to bottle the baby’s tend to get seizures. Baby’s weren’t meant to be in their own rooms away from parents.
But when is it safe to leave them in their own room and get a decent night’s sleep? This baby was 17 months, not under one.
I had breastfed my baby and then gave her a bottle 3 hours later and she was laying on her back and started spitting up really bad . It was coming outta her mouth and nose . I immediately picked her up and put her over my shoulder and started hitting her on her back. I then got the nose suction thing and starting sucking a lot out from her nose She was only a week old when that happened. Scariest day of my life . Before I had picked her up , and she looked at me like mommy please help me 😢😢😢I cried so hard that nite . Thank god me and my older kids were in the room with her that nite 🙏🏽🙏🏽
Devastating. I hope there’s a cure soon…😢
As it appears to rarely have fatal outcomes, it's not so likely. It starts out from the whole problem of how to research it in first place. Even getting to test procedures/medications on children (at the appropriate stage of testing) is really sth. that - with rare diseases - may pose more risks than benefits.
My daughter had ‘simple febrile seizures.’ Until the last one she had when she got a CT scan now we know it’s a brain mass and I’m f--ing terrified. I wake up everyday terrified this could happen even though she’s stable and one seizure meds and sees doctors regularly.
God can help you navigate these tough times if you give Him a chance
Were vaccines given to a child leading up to the days before death? That is what these scientists should be studying.
We all know the truth
Listed side effect. Sponsored by 4:10
My heart goes out to the mom, I can’t even imagine her pain 🥺. I can imagen that she keeps checking on her other kids at night due to fear. My condolences to the family.
So tragic even worse knowing if given proper information from Drs they took their baby to might have prevented this 😢 I'm devastated for those parents. Hopefully, this will bring light and save other babies 🙏
My heart breaks for them and any parent who’s lost a child. I cannot imagine.
But what’s causing these seizures? No one wants to ask or answer the question. Check out the sponsor at the end of this video…
Yep…
4:10 wow it’s blatant.
When my son was about 18months, he had a febrile seizure. He had an elevated temperature all day (never got over 101) but his fever spiked to 104 out of nowhere and he began to have a seizure right in front of us. The ER doctor told me that because how quickly his fever escalated, that’s what ultimately triggered a seizure.
So deeply sorry for your loss. Thank you for sharing your story and participating in research. Blessings on your journey 🙏
Yet we live in a society that pushes and shames parents into sleep training infants into sleeping in separate rooms. I will continue to keep my 2 kids (5&1) in my room until it feels right. They both have a hx of febrile seizure that I would have never caught if they slept in their own rooms. Febrile seizures are super scary to witness and I feel for this family.
Stop using products from 4:10 and watch their bodies heal
I lost my 2yo cousin from SIDS. He didn't have seizures though. It has to do with the part of the brain that rouses them during sleep to breathe, being underdeveloped. He was born very prematurely though, and his lungs weren't completely developed, so he was in the NICU for a while after birth.
He was so shy, and I remember the weekend prior to his passing, he gave me a kiss. His daddy was holding him and when he saw me, he leaned in and wrapped his little arms around me and gave me a kiss on my cheek. He was such a happy boy. He would have been 17yo now.
Unimaginable!!!And at 17 months who would expect that 😢😢
I'm 8 months pregnant and this is terrifying. I'm glad they're finally getting answers. Every time I inquire about this, there's no answers.
But feveral seizures are caused by fevers... So, what caused the fever is my next question.
Who sponsored the video? It tells you at the end.
My son had fits in the middle of the night when he was about 12-15months old. Luckily thanks to God, we were all sleeping together and he was in between me and hubby. I woke up to his movements and realised something was wrong . I then woke up my hubs and he acted quickly and we managed to save our son and bring him to the hospital quickly. It was a horrifying experience but my son never got that episode after that and he’s now a healthy 16 year old awaiting his tertiary school admission. I pray that God be with you all the way He was with us then and always! Amen
This is why Baby should be in the same room at the parents for minimum the first year
And 4:10 Easter egg should be delayed or avoided altogether
I am so very sorry....he was absolutely beautiful and precious. My heart breaks for you.
This is so heartbreeaking. So glad to hear there is something that can help indicate they are not breathing. Some doctors have said vaccines can contribute to sids
My son was 7 months old and I was a first time mom and I checked on his so much. At one point I just had a weird feeling, so i went to check on his and he wasnt breathing. I called 911 and they walked me through CPR for him, my neighbor was a Navy Seal and heard and came running and helped me and we got him breathing. They said it was SIDS and if i hasn't of gone in there and checked he would have died. I hadn't heards of SIDS but when my dad called to check on us at the hospital he told me i had an older sister who died of SIDS. 💔
I heard about a recent study that linked SIDS to a particular bacteria. That could easily be connected, of course, if kids who are susceptible to febrile seizures get that bacteria…
It’s not. It’s linked to the Easter egg at 4:10
I’m so sorry to hear about the passing of your young one. My heart aches for your family.
There has been an ongoing study from 15 countries and 40 states for 4 years about how circumcision increases the risk of SIDS for boys.
I’m glad they are starting to find some explanations, while it doesn’t hurt any less losing a child. ❤
God please bless all these parents. I can't even imagine. 😢
My Aunt Lorene died before she was a year old from SIDS. She just went to sleep and never woke up. It’s a shame, she would be turning 55 this year. I hope a cure for SIDS is in the cards for 2024, because no one should ever have to lose someone so young and no one should have to die so young.