Stage 5 Dementia: Q & A with Mom
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- Опубликовано: 27 сен 2024
- Stage 5 Dementia Q & A: This video was shot on two separate visits. You will see that some days are better than others. I use simple questions to judge the decline of the disease.
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lifeunderdebora...
You are so patient and respectful. You don’t condescend. Thank you for your example, you are inspiring Deb
My mother is Stage 5 with some Stage 6 mixed in. She doesn't remember my dad's name and told me she really never got to know him (they had 6 kids). She likes to go through photographs and have me tell her who everyone is. She can recognize herself and her siblings when they were young, but not more recent photos. You are so right, how well she sleeps has a definite impact on her mental acquity! Thank you for your videos.
Sleep and the amount of daylight seemed to be the greatest issues for us.
It breaks my heart seeing her. It pains me that there are people in this world that exploit and scam people that are vulnerable like this.
Thank you, Deb, for sharing your journey with us.
My 94 year old mother is now in stage 5 Alzheimers. She has lived on her own for 32 years and is under Adult Social Care Services. Mother just cannot cope with questions. More than one sends her into confusion and she struggles to answer correctly. Mother is becoming increasingly unaware of who her grandchildren are and cannot recognise them or remember their names, even when shown pictures of them. She has little knowledge of her age, present day events and cannot even recall her twice a day , 6 days a week visits from her carers. Mother becomes horribly verbal and aggressive when told she is in need of a Care Home. She refuses to wear hearing aids, glasses , slippers or a personal alarm. We are seeing her decline weekly, but mother still displays " capacity" to be able to dress herself in the morning and have her breakfast. A recent assessment showed that this capacity to maintain herself is still present, but declining. In the meantime, we, her family, have to witness her confusion, paranoia and denial of normality.
They do lose their sense of reality for sure. It's very sad to watch.
Thankyou for helping me know what I'll be dealing with in the near future and how to deal with it
It is so true about video calls making the person feel like they are together❤keep doing it it so important
The more contact they have with people, the better. It usually lifts their mood but sometimes it can make them a little sad.
My dad used to ask how old he was, we would tell him. Sometimes he asked how old we were, he would cry when we answered. This brings back such precious memories. Thank you.
My mom passed with dementia, so did my husband, at 84. Now I am a p.t. companion to a sweet dear lady of 86 and she is able to go shopping, eat out and she tells me the same stories day after day. Thanks for these videos, so helpful to is all. God bless you.
You’re so loving. You’ve given encouragement and a great perspective of love. Thank you!
Your videos have been so helpful. Thank you, for sharing them and your mother with us.
i see this look in my father's eyes. I do nt remember, seems a release from the confusing lack of clarity. if they do nt feel bad about the inability to recall, i feel is better, because they do nt get sad or anxious.
My MIL with dementia has stopped wanting to eat solid foods. She is content to drink her meals ( Ensure etc)
The last time I visited my parents, who still live at home at 89 and 82, I asked my mom how old I am. I had just had my 55th birthday. It's the first time they've forgotten it. She guessed I was 35. My dad is compensating a lot for mom's decline. If he passes first she will not do well
Spouses do compensate for sure. We went through that as well. The problem was that the one compensating had the disease as well.
@@lifeunderdeborahspalm-thed8114 sometimes I think dad may be getting it too
@@lanapoulliot7682 That's difficult.
89 and 82 that's agood run
My paternal grandmother started losing her memory at 90. At a family gathering we had, I said Grandma do you know these people in this picture? Mind you she had 9 children and a slew of grandchildren, but the picture I handed her was when she was a younger woman sitting on the couch with grandpa plus 7 of her 9 kids were in the picture to include her oldest and her youngest. She took the picture and looked at it for a good bit, studying it then handed it back to me. She never said anything about it. Then I started naming the people and she was studying the picture but never said anything. She was talking to people that day but she couldn’t remember her family in that old picture. 😢
I know someone who had the same experience. The person with dementia was showing a family member a picture - the person they were showing it to was the person they were talking to, but he couldn't make the connection.
"I have no idea" is one of my favorite things to say ..... mahalo
Hi Debra.. first time to watch this video. Mixed emotions.. im going to be a Care giver soon and this kind of prepare me in a way. And youre right whats matters is the love and connection that we have we our parents and families that will remain until the end.
If I could go back in time I would have had friends and relatives lined up to help on occasion. Many asked what they could do, but once the disease progressed my mom depended / trusted me more than anyone else.
Hey Deborah, thank you for the updated videos. I was just diagnosed with Lewy body dementia and I'm pretty sure I'm between beginning and middle stages. Since I'm still functioning well enough when do add a social worker to my team of Drs?
I would ask your doctor. I would think sooner is better than later, but they would be better at advising you.
@@lifeunderdeborahspalm-theg4767 Gotcha, thanks for responding 👍😊😊
My mom blurted out she gave a daughter up for adoption before she married my dad. Turned out to be true. I’ll be honest and say I wasn’t happy about getting that sprung on me. It turned out to be true.
Sometimes the disease can be a truth serum.
Is it dementia if they start repeat questions they know the answers to just to keep a conversation going. They are fit and healthy otherwise.
Good question but I don't have an answer. Maybe they just want someone to stay longer???
My mom has hallucinations of people she lives and misses. She really believes she sat in her room talking to them, is glad to see them and happy they were here even tho nobody was. It took a while for me to learn to just go along with things. It makes her happy and at this point no harm no foul. It’s the only way she gets to see anyone right now
I agree. If it makes them happy and it isn't hurting anything, let them go.
My dad hallucinated that the neighbors were there with our family on his birthday. We just went with it. He had other hallucinations too of people visiting.
I have thoroughly enjoyed watching your videos. My grandma has vascular dementia and the doctors gave us no advice. Just sent us on the way years ago. I had no idea about the stages and have learned so much from you. My grandma is currently having a good day but more bad days. Her bad days consist of her trying to figure out “what’s wrong with her” when I ask how she is or what’s wrong she says “my mind has me a mess today” it’s so gut wrenching to know she’s trying so hard to be normal and knows somethings off. Thank you for all that you do.
My mom would say her brain was fog.
I think to ask them guestions.. stresses them out. Because at this stage " they know that they don't know " must be difficult and maybe even scary. At to things like who are these people where am I etc.
I love how at around 11:50 when you’re asking if she had kids and you said you’ve got me and ….at that time she got a little gleam or something that resembled a happy look in her eye. Very subtle but it was there. ❤️
Your mom is so lovely 🥰
Thank you for making these videos. They have been very helpful. I will be sharing them.
all that remains....is love...She reminds me of my Mom she was very calm and complacent like this.I like how your mom says"I don't remember. I don't know." She admits it.She's so cute.
My mom is just started to lose her mind. I am not looking forward to this. This is a devastating disease. Old age is not for the weak 😢
It is devastating. Make sure you know her end-of-life wishes if you don't already - and get them put into legal writing (Health care proxy / POA, etc)
Really hard to watch. Filming and such.
I can hardly hear her mother’s responses.
Appreciate WHAT You Do for Us, but it's Frustrating to NOT Be Able to HEAR . . .
They Need to Have a M🎤c On.