LIVING WITH DEMENTIA EP. 22 | ANSWERING QUESTIONS PT.1
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- Опубликовано: 17 ноя 2024
- LIVING WITH DEMENTIA EP. 22 | ANSWERING QUESTIONS PT.1 What's it like having dementia? Find out today from Jason! He shares his answers to some very interesting questions you all have asked! 7/24/23
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Jason must have been an extremely self-assured, kind, intelligent man before dementia. I say that because even with dementia, Jason still comes across as a person I would love to have as my friend. I was glad for this interview, but I also know that many times, Jason is not able to be as mentally clear as he was during this interview. This video will help both caregivers and people in various stages of dementia. You two are very, very special people. Diane
They sure are…I hope this journey for them is a slow ride. ❤
Well said!!!!!
They certainly seem to have a very special relationship. I’m so happy for them, both. ❤❤❤❤
Very well said.
So true! ❤
That conversation will tremendously help other caregivers. Jason's sense of humor is purely contagious.
I, in no way, mean to diminish how horrible dementia and memory loss is on the the person who has it but I’d like to share something I observe daily with my mama who has it. She is absolutely the happiest person I know. Let me explain: Jason said you don’t know what you don’t know. She doesn’t know she’s no longer independent, that there’s anything wrong with her or with the world, she has no bills to pay, no stress about responsibilities, home repairs, etc. She works her puzzles, watches her shows, “does her housework” (what she THINKS is home keeping, is usually creating chaos and hiding things). She’s past the point of awareness that she has dementia but still cognitive enough to be able to enjoy what she loves. If she does realize she’s missing out on something, like traveling, it’s only for a moment. She lives completely in the present. As long as we keep her present moment happy, she’s happy. When I do make her angry, for instance at bath time, she forgets about it immediately. In her world. There’s no arguments, stress, trials, angry words, divorce, death,….simply bc she doesnt know what she doesn’t know. Jason, you summed it all up so simply. With my mom, this disease is no longer HER cross to bear. It’s mine. But she doesn’t know it. She’s happy and I’m glad.
This response helped me so much. My mother has dementia and I am struggling. But she is happy. She is happier and more agreeable than I’ve ever known her to be. Possibly the one (and only) positive of dementia.
Im so glad that this is the experience your mom has with dementia. It may also be that you are making that possible for her. I work in health care so I've seen both sides. Some like your mom who is totally oblivious to some who are so confused that its scary for them. Then still others who are very angry all the time. I also think it the personality of the person in general. I had one wife whos husband has dementia and that man is angry and uncooperative all the time. She said something that hit home for me. She said that he was a very strict man, he angered easily even in his early years he was a "my way or no way" kind of person. So of course now with dementia he still exhibits those characteristics. This would imply to me that your mother was probably a pretty happy person and in a way ignorance is bliss so to speak. I hope you are able and continue to be able to enjoy your time with her. God Bless.
Yes, it is different for each person with dementia. My daddy seemed scared and worried a lot of the time. It broke my heart and I spent most of my time reassuring him and calming him down. My best friends mom is very angry and combative, hitting and saying hurtful things to everyone. 😢
@@karenA.6375 I feel very lucky then because my mother was fairly disagreeable before dementia. She has truly never been sweeter than she is now. They also put her on Zoloft so maybe that helps.
@@dianedeck😊
Jason seems so much calmer and serious during this questioning. Im so glad for him and for you leslie.
This is for Jason: Jason you are an amazing person! You know you have a rough road ahead but you still have a great attitude. As this progresses you know you will trust your wife even more, your wife is your rock! Your smile and attitude has made my day, thank you very much!!!
Wonderful interview with Jason. He remembers things of the past. Very special. Jason looked pleased to do the Q and A.
These two are amazing
They are an amazing couple. It is touching and beautiful that their love survives and continues forward.
Jason has such a fun and witty personality I love his answers I am amazed what he does remember and how he doesn’t mind talking about it My husband couldn’t because he was in later dementia which he passed from Alzheimer’s 😢 He was in denial Jason seems so different in a good way Thank you so much for sharing It’s good for caregivers too 👍❤
As a mother of a grown son who was also a Marine in Desert Storm and Iraqi Freedom.... I just want to reach through this screen and hug Jason. It is so touching to hear where his head and heart are. And thank you Leslie, for loving this man...past, present and future. He needs you so.
Please know this is a blessing to so many people who feel alone, scared and overwhelmed. You both have lost so much and in turn are able to give so much. May God’s love uplift you both❤
You two have helped me a lot through my husband's dementia. I was told today that he has only a few days left to live. Even though I have known this is coming I just can't believe he will be gone. This last few months have progressed very quickly. Thank you guys for helping me so much. Prayers!
Excellent interview! A lot of great info from Jason. He may not realize it, but he’s helping a lot of us who are dealing with these problems. Thank you!😊
Jason, your willingness to share is so helpful to so many. I know someone in your situation who stays in denial. Your “it is what it is” attitude is great. And Leslie, much admiration for you!
I agree, Cathy. Your words “willingness to share” say so much about Jason’s beautiful character.
On 😊the
Such an interesting interview with Jason. No real show timing , just a closer insight into how he was before dementia. Intelligent, dedicated, articulate.... He is an amazing person and it is sad to know where he is headed.
Thank you for sharing.
I love you two so much. Leslie I’m a nurse and I hope that I can honor my husband as much as you honor Jason. You are both in my prayers.
I love your giggles together..."It's not the cooking...it's the fires in the kitchen". Of course I realise the scare you had over the kitchen fire must have been really terrifying, but it's so lovely to see Jason's sense of humour about it. Love from the UK
Jason is so darn adorable. I just love his personality. ❤️
Jason, you are such an amazing individual being able to describe so eloquently what you are going through. Brew away Jason. Hope you and Leslie had a great day. ❤ Leslie you are an amazing individual and my heart goes out to both of you. ❤️ I wish there was a magic pill. Jason you were so real today and no “showtime” with this interview. You were so patient and I bet so exhausted by the end. ❤
I agree.
You two are lovely
100% agree. I love the showtiming, but also love the serious side. Thank you both for documenting your journey. It is and will be so helpful to a lot of patients and caregivers...
You both are such good people. Love you both and God bless you both.
I respect that Jason states his biggest award is based on the 'team'.
This was EPIC🎉🎉🎉 I've been a caregiver for several dementia/alz people 😊 These q&a's Jason is doing are informative, educational and comforting for so, so many just starting their journey 🫶🏾 Thank you both for being so vulnerable and strong 🥰🥰🥰
people WITH alz/dementia NOT dementia/alz people
This was an amazing video. Jason was so calm and articulate. It seems like he does better in other places besides your home, maybe it doesn't feel so much like interrogation to him. It feels so unfair that someone like jason who has so much to offer the world has to have this disease. It is a testament to how much he trusts you Leslie that he will do these videos. Leslie, I know it doesn't feel like it sometimes. But you are doing a great job, and Jason is lucky to have you.
You are a wonderful couple! I was so impressed by both of you in this interview. It was calm, quiet, upbeat, and positive. Jason, you hit it out of the park! Thank you Leslie for making this happen as you do so often and so well. Love you both.
As a fairly new caregiver for my husband's dementia, you guys helped me greatly with this video! Thank you.
Jason,your handsome smile lit up my day. Opening the video was a great surprise to see your happy face. Thanks! for bringing all of us along on this unexpected health issue in your life’s journey. Thank you! for your service. Love, love you both.
It so hurts my heart that dementia is robbing Jason of the life he so obviously loves. His sense of humor is over the top and he would be a joy to spend time with.
Thank you Jason for being willing to share. Thank you Leslie for helping others come to term, understand, give care to their loved one.
Hats off to Jason here, for navigating such a wide range of questions. I don't know the behind the scenes workings but this is so well done . Jason relayed his thoughts and gave us a clear picture of himself in different situations and times .Excellant Jason & Lesley
Jason, with your long term memory being so good, would you consider writing a book about your adventures? I love listening to you talk about the funny things you have been through. You're an awesome story teller!
His life has been absolutely INCREDIBLE. If he can’t write the book himself I hope she or his children do!! It would be an amazing story
I had Wyze cameras in various rooms of my Dad’s house so that I could check on him when I was out. I could even speak to him through it. It was especially helpful when other caregivers were with him. I caught one in the act of wheedling money from him by watching the playback. Thank you, Jason, for your service! And, thank you both for sharing on this channel!
I so wish I would've had cameras back when I was taking care of my grandma. I would've been able to leave more. 😮
I did the same with my mom. It really helped me relax, knowing I could keep an eye on her at all times.
He seems so aware and lucid at some level. At the beginning of this episode his eyes seemed so, I guess, almost wild but as it went on they looked more like regular Jason eyes. That make any sense.? He’s had such wonderful memories to hang on to together. You are tremendous Leslie.
I noticed that too, terry! He was looking all over the place, looked somewhat uncomfortable and unfocused, but as the questions went on, he was able to focus in on the questions.
Thank you so much for this video. My husband had primary progressive aphasia for over six years. He was diagnosed for six years but we know he had it longer than that.
Your video mirrors so many things that we went through. I joined a caregiver support group at a local church. That was helpful and helped me learn not to take some of the things that he was saying personally, and to know how to be extra cautious without letting him know that. Having a circle of friends and support team was extremely helpful.
He would plateau and be OK and then he’d take a dive downhill. I had to learn to check things like doors and water faucets. I learned to not correct, and not to argue. Reminiscing together was therapeutic and looking at old pictures also. He loved being around the grandchildren. That gave him a lot of joy. Not feeling comfortable to travel was one of the hardest things for us. Thank you again for sharing your journey. I know it’s helping a lot of others who are going through the same thing at this time.
Always applaud you guys for sharing. It has to be a huge help to others. Especially to hear it from Jason’s point of view. Thank you, thank you, thank you.
This format was excellent. It gave Jason a chance to express himself which he seemed to enjoy. It also took some of the ‘burden’ off of you which was good. It is obvious Jadon is very intelligent, funny and charming. Dementia is so cruel. Sending hugs to you guys. 🤗💕
It is so sad that such a intelligent man ends up with such a cruel disease, but I’m so glad he still has his sense of humour.God bless you both .
Thank you Jason and Leslie.
Thank you for your service, Jason.
Our son was also in Desert Storm, 24th infantry. Bless you both.💟
So good to see Jason bright-eyed and bushy tailed! You guys make such a great team dealing with dementia!
Jason is such a good guy…his smile is priceless. And Leslie you are amazing. The two of you are the best. Take care of yourselves.❤
@@DaynaMathews I am not sure why you replied to my comment. I did not ask any intimate question.
@@AuntieUncle2 oh sorry, replying to the wrong comment. I apologize.
Leslie and Jason - I absolutely loved that segment. I think Jason felt so much more 'in control' answering your questions his way. Yes - I'm dealing with dementia from a 76 yr old partner. This 'interview' helped tremendously. ps: I still want to hear your side of everything also. ❤❤🙏🙏❤❤
As a caregiver I feel so overwhelmed with responsibilities and trying to stay one step ahead of what my husband needs. He's having so much more difficulty with speech and doesn't want to be around anyone except family. I'm his lifeline and security. I'm feeling the weight as I know you are Leslie. As always.....🙏🙏🙏
that is really hard...
Great video! Jason seemed to handle it better than some other ones. Leslie your such a kind compassionate person, that’s why Jason trusts you so much. Thanks!
Leslie, I LOVE your sweet laughter. I know we tend to focus on that ONE mean comment, but, Girl, you SHINE! You are doing an incredible job with your very own hubby..... Have you ever heard the family laughing at a funeral? (most people will look at us sideways when we do that). We can only cry so much, then comes the laughter. It's a survival skill, AND seems to come from your joy in marriage and in CHRIST!!
Thank you for your service, Jason! It's good to see you chipper and happy.
Jason is such a interesting, smart, funny, man….
#22 I think is the best video as of yet. Jason was relaxed, and was able to speak with ease
What a guy😍
Leslie you are amazing too❤
Jason is an incredible man with an awesome sense of humor, and so intelligent and articulate. I loved all of his answers. Thank you, Leslie and Jason. Sweetest couple on RUclips 💞
I love you both, Jason and Leslie. You are two bright lights here on earth and I am praying for your family everyday. ❤🙏🏻
Jason-you are so articulate as you answer these questions. You give us all a better understanding of what it is like to live with dementia. Thank you.
Thank you for sharing your lives.
After watching this Q & A. I realize again that “if you’ve seen one person with dementia, you’ve seen one person with dementia “.
I wanted to reminisce with my husband , but he would cry remembering all he was losing.
Nighttime was hard as he thought going into the master bedroom was going to “that place”.
He loved to travel, too, but didn’t understand why we couldn’t. I was the bad guy in many areas. I’m still healing, and still missing my sweet husband and best friend.
Your videos help. Thanks, Leslie.
how can you not love this guy? I really enjoyed this interview, you two both have such pure hearts.
Wow this man is incredible. His accomplishments, his service, going to Harvard, almost 150 IQ fighting in 3 wars, his beautiful family …I just cannot believe what a life he has lived. I am so sorry this is happening to such wonderful people ❤
Thank you, Jason, for speaking out and letting us know how you feel about having dementia. I'm glad you have memories that you think back on that make you happy. Your wit makes me laugh out loud.
I've already read the mean insulting comment 🤨 and your reply. I love when you (Leslie) are laughing while Jason is is "show timing". I've been watching you for awhile and I'm delighted that you are still having fun together! Jesus gives us joy, peace and hope even through our darkest times. My hubby is retired USAF. I do thank Jason for his service. However, i also thank Leslie for her service. Being a spouse is hard too.
Jason, thank you for doing these videos.
I don't have anyone, at this time, with dementia in my life. My father had pick's disease and this helps me understand what he was going through.
Jason is so cute and funny sometimes. Well he’s always cute. But I lost my mom to dementia so it hurts me to see what you’re both experiencing. Prayers for you guys.
I’m just blown away with the “ military” question . Jason your such an amazing guy to want to talk about your “team “ and not yourself
Leslie, love you soooooo much I pray for you guys every single day 🌻🌻🌻
You 2 are the nicest people- Just a beautiful light of God's gifts- This is such a blessing because you are helping so many by educating. Thank you for taking the time to make this video and all of the other videos. You are so appreciated! Love to you both.
Jason shared exactly what my husband shared with me. It’s amazing how they know and cope . My heart goes out to them. My heart goes out to us, we love them so
Thank you! In this video I can really see Jason's sweet and thoughtful, introspective side. In particular the question about your grandchildren ♥ My dad has alzheimer's and he loves, loves, loves his grandchildren as well.
My hubby, in stage 6 of Alzheimer's, has trouble telling his dreams from reality. He has never acted them out yet, but he wakes up and talks about them with me as though they really happened. It was very helpful to hear Jason tell about how he feels and what he goes through. Thank you for making these videos.
Jason is so darn cute. His personality just shines. Thank you, Jason for sharing.
Anyone that has been around Dementia patients notices the eyes. I've said a few times that Jason's eyes are changing in nearly every video. I love that you are documenting.
- Kim❤️
Oh Jason... I think you are such an incredible man ! Leslie you are an incredible woman ! My Husband has stage 5 mixed dementia ... ( Vascular/ Alzheimers ) . Jasons happy personality makes me smile and gives me a chance to calm down in my own life while dealing with our journey in dementia... Everyones journey in Dementia is different ... but we all have the incredibly hard life... We have been married for 53 years.... and there are ups and downs ... good days and bad days... but we were in love a long time ago and we still are today ! LOVE to you both and God Bless !
I learned the upside of this disease this week. My hubby was really angry with me because I refused to talk on the phone with his sister (whom I intensely dislike). He said hurtful things to me and I couldn’t sleep that night. In the morning, we just did our regular routine (I find a regular routine/schedule is very helpful). Wha-La he had forgotten all about it and hasn’t mentioned it since. That’s a win!! Thank you for this video. The one about loneliness hit me hard. That is so true.
Leslie, i hear you and see you as a caregiver. Thank you for these videos, because they help affirm our situation for both of us.
It’s not easy putting your life out there, it shows courage and commitment for your cause to educate others! Everyone’s story is different and by doing these videos someone out there may find comfort. Great job to both of you! 😊
I love the story of Jason taking your doggie out to go P. That was just too funny.!
Love Jason’s funny side! I always get a giggle out of his silliness while videoing. ❤
That was a wonderful interview, Jason was so informative about his feelings and about how his disease frustrates him. Thank you for being such a wonderful caregiver and videographer!! Keep telling your story!
Thank you Leslie for today’s insights. Prayers for strength especially evening and nights. Nights were scary times for us with my dad’s dementia.
WOW, THIS WAS A GOOD INTERVIEW. LOVE AND BLESSINGS TO BOTH OF YOU
Wow this was so informative. I got so choked up with gratitude and love for you both when he answered these questions. You two have become my favorite couple! You both are witty, intelligent, and very caring and devoted to each other. A great example in the world today! I loved learning more about this disease. And even though both my fathers that went through this have fulfilled their journey in this lifetime this will definitely help me be better understanding of those going through this and those caregiving that I most likely will see again. Gosh I truly pray for a cure or a slow down the progression breakthrough. Blessings to you both! 🙏♥️
Jason is amazing to share his truth. You Leslie are a blessing to even those who may never go thru dementia but be a caretaker to person suffering from an illness. ❤🙏
Jason, I feel like we really got to see a snapshot of your personality before dementia with this interview. It was really nice to see. Thank you for sharing your journey with us.
Wow, I am amazed at how well Jason can talk. My husband has a difficult time finishing a thought. I can't leave my husband alone. I'm too afraid to leave him. He falls so easily. I went up street today for 20 minutes and I was a wreck and my 7 year old grandson Hudson stayed with him.
Thanks for doing this.
Jason, I want to thank and praise you for your years giving of yourself in the service to our country. Then to be injured in that service is so unfortunate. I know that is the chance one takes unfortunately. You are a fabulous couple.God be with you.
I absolutely love you, Leslie and Jason! You are pioneers in this area of dementia! You are honoring the Lord and I am absolutely blessed to watch you both!
Do not listen to any one who says to the contrary, because you are absolutely blessing the kingdom of God and his righteousness!
Love you both dearly and pray that you continue to be strong and what the Lord has called you to do!!
Love you dearly sister in Christ and brother in Christ!
Hugs and kisses dear ones❤
I love Jason’s personality.
Thank you Jason for your willingness to answer questions. My husband has dementia and I have tried to get him to tell me how he feels, but he lets me know he doesn’t want to talk. I know it is difficult for him to think. It frustrates him when he is questioned. It amazed me how you can talk like you do. My husband is very quiet. He doesn’t want company, he just wants to watch tv. He can’t use the remote so I have to stay with him to get rid of ads. He gets mad at me if I’m not there when the ad starts. I loved that you were so good at talking and explaining how you feel. Thank you!
Love Jason he’s so informative. If I didn’t know during this interview I wouldn’t know he has dementia.
My 14 year old granddaughter has autism and she has said that she’s been show timing for years and it’s so exhausting. You guys are dealing with so much and we all appreciate your sharing your experiences with us. My husband has Alzheimer’s so his experiences are a little different but we do share many challenges. God bless you both. Life does change and we are focusing on enjoying the time we have the best we can. Family and friends are so important.
You did great Jason. This style of video seemed to work better for you. You’re so kind to share your journey.
Dementia really does suck 🥺🥺
Jason and Leslie - thank you with all my heart for this particular video. Everything you covered applies to my life right now. I cannot even count how many issues are turning our lives upside down because of this condition. Your candor and humor and compassion are providing amazing services to me in the care of my husband. Thank you, thank you! ❤❤❤
I do understand that it would be hard not being able to travel if he loved it so much. Dementia is so very hard, unless you have lived through it, it is hard to understand how hard it is. You both do so great at helping other people that are going through this.
Way to go Jason! This presentation as guest/amateur journalist seems to suit you two even better ❤😊👏👏
Thank you so much Jason for answering the questions! Very appreciative that you took the time from your day for us.
Thank you Jason for answering all these questions. I can only imagine how you was way before. New journey. Leslie and you Rock. One day at a time and Christ centered always. Hang unto your faith.
I felt like Jason was much more engaged today. Looked like a good day. X❤
This channel is so interesting and informative. I was a caregiver for dementia patients and still learn so much from Jason’s direct Q&As.
Thanks for sharing your journey with us. Jason - I too suffer from "smartassitis" so I get you.
Thank you Jason for being so open and honest about this sensitive subject. 🍀
I love, love, love when you laugh, Leslie!!! You are the sweetest and I admire you & Jason so much!
Jason is amazing!
My husband has Primary Progressive Aphasia and doesn’t seem to function nearly as well as Jason can. My husband’s speech has been affected and it’s so hard to even hold a conversation with him. We are experiencing some of the same things though and I like hearing how you handle those situations.
Thank you soooo much for these videos! They are very helpful!
Hi, Jason; it was so cool when you mentioned spinning plates on the sticks. My husband and I just brought that subject up yesterday. I would say that a lot of young people don’t even know what we are talking about 😊 we are all a part of a great village. Thanks for being you!
I understand this was a particular moment in time but listening to Jason I am in awe of his awareness, sense of humor and his analogy when he explains things. I do understand this is a particular moment in time when he is feeling good and up to an able to answer questions but it just goes to show type of person he was and is. And thank you Leslie although not a spouse which is a different situation I do understand what you're going through because I was my mom's caregiver. But I just wanted to thank you both for this video and send you both lots of love hugs and blessings❤❤❤❤❤
....Linda
Your laughter shows me the special closeness that you & Jason have in your marriage. You are comforting and joyful, Leslie, and Jason is hilarious at times! Laughter truly is the best medicine! It’s helpful and healing!
This little light of mine….I’m gonna let it shine! Keep laughing and doing the amazing job that you are doing with your dear husband ❤️
Jason, I admire your honesty, candidness, humility and humor. Your comments reflect where my husband and I are! Very few men would be willing to be so open. You are a brave man and I appreciate you so much
Loved this. May be one of the best❤ I have found a counselor that works only with caregivers of dementia patients. Hoping this helps me deal with the angry outbursts! His 2 sons are taking him to the Grand Canyon for a few days on the railroad ride around the canyon. Flying with his sons from Charleston to Flagstaff. I’m so excited to have a girls weekend somewhere with my two daughters!
Jason was at his best today! So charming and sincere. Nice work you two!
That was the best interview ever…Thank you Jason 👏👏👏🥰🙏🏻
Jason is the sweetest person. I bet he was really fun in the younger days before the dementia.
I love the talks with Jason when the window opens up and allows us to see ‘Jason’. And Leslie I think women have the best laughs especially when they get together and laugh so hard.
Leslie you are such a good Caregiver and wife. Hugs to you. I am a professional CG and what you do is hard and very emotional. Hugs to you
This is so helpful for caregivers and everyone dealing with this horrible disease.
He is much more engaged by what he is proud of, projects, rather than focusing on the dementia so much..he looks so sad talking about it. I am heartbroken for him