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Life Under Deborah's Palm - The Dementia Road
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Добавлен 18 фев 2021
Part of Life Under Deborah's Palm includes a video series addressing things my husband and I wish someone told us about caretaking Alzheimer's / Dementia for three of our parents. So many things - from behaviors to legalities to assisted living placement. You name it and we've learned it the hard way. This Vlog is to give insight into things no one tells you. Caregivers are left to muddle their way through a system that can be difficult all while navigating a disease that takes unexpected twists and turns down a long road.
3 Heartbreaking Things I Witnessed Caretaking Dementia
Dementia brings so many challenges and so much sadness. These are three things were the most heartbreaking to me.
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Просмотров: 1 374
Видео
Avoid These 4 Things When Talking to a Dementia Caregiver
Просмотров 2,3 тыс.3 месяца назад
Four things that people said (or did) that were sooooooo tiring and aggravating while being a caregiver for a loved one with dementia. What bothers you? Comment below. I've Released a novel! Universal Amazon Link: mybook.to/LaBelleCommunaute Affiliate Links to Amazon: I earn a small commission if you use the links: Medready 1700: amzn.to/43TbA4c Medready Carousel: amzn.to/3CulSwk Flipper Remote...
Dementia: 5 Tips for the Grocery Store (and Refrigerator)
Просмотров 2,6 тыс.8 месяцев назад
If you help someone with dementia do grocery shopping, you know it can sometimes be a challenge. Here are five things I did to help with the process and keep the refrigerator safe from food poisoning. I've Released a novel! Universal Amazon Link: mybook.to/LaBelleCommunaute Affiliate Links to Amazon: I earn a small commission if you use the links: Medready 1700: amzn.to/43TbA4c Medready Carouse...
Dementia: 3 Tests You Can Use at Home
Просмотров 9 тыс.11 месяцев назад
Dementia Testing: 3 Types of Dementia Tests used by doctors that you can also use at home. They are easy to administer and score. Mini-Cog: www.alz.org/media/Documents/mini-cog.pdf MMSE: www.bmc.org/sites/default/files/For_Medical_Professionals/Pediatric_Resources/Pediatrics MA_Center_for_Sudden_Infant_Death_Syndrome SIDS_/Modified-Mini-Mental-Exam-MMSE.pdf Montreal Test: www.parkinsons.va.gov/...
Dementia: 10 Things I Wish Doctors Told Us
Просмотров 22 тыс.Год назад
Getting information from the medical community can be frustrating! Here are ten things I wish a doctor had told us. I've Released a novel! Universal Amazon Link: mybook.to/LaBelleCommunaute Affiliate Links to Amazon: I earn a small commission if you use the links: Medready 1700: amzn.to/43TbA4c Medready Carousel: amzn.to/3CulSwk Flipper Remote: amzn.to/3NtGyuo Clock Calendar: amzn.to/3p3Jk04 Ke...
Dementia Diagnosis: Finding a Doctor
Просмотров 1,4 тыс.Год назад
Frustrations: Trying to find the right doctor to diagnose and treat dementia. Amazon Universal Book Link: mybook.to/LaBelleCommunaute Affiliate Links to Amazon: I earn a small commission if you use the links: Medready 1700: amzn.to/43TbA4c Medready Carousel: amzn.to/3CulSwk Flipper Remote: amzn.to/3NtGyuo Key / Purse Finder: amzn.to/43ElQ0G Corded Phone: amzn.to/3N9wl4W Website: lifeunderdebora...
Normal Aging or Dementia?
Просмотров 1,9 тыс.Год назад
What's the difference between normal aging and dementia? Besides the disease itself, one of the most frustrating things is the medical community. Let's start with the so-called "age-related dementia." Amazon Universal Book Link: mybook.to/LaBelleCommunaute Affiliate Links to Amazon: I earn a small commission if you use the links: Medready 1700: amzn.to/43TbA4c Medready Carousel: amzn.to/3CulSwk...
Final Mom Update
Просмотров 22 тыс.Год назад
Final update on my mother, along with thoughts on death. You can also check out my book! It is fictional but has a lot of good info that will make you laugh and cry! Amazon Universal Book Link: mybook.to/LaBelleCommunaute Affiliate Links to Amazon: I earn a small commission if you use the links: Medready 1700: amzn.to/43TbA4c Medready Carousel: amzn.to/3CulSwk Flipper Remote: amzn.to/3NtGyuo Ke...
Dementia: The Struggle of Taking Meds
Просмотров 1,5 тыс.2 года назад
When a dementia patient doesn't want to take their meds. Here are some ideas that may help. Amazon Universal Book Link: mybook.to/LaBelleCommunaute Affiliate Links to Amazon: I earn a small commission if you use the links: Medready 1700: amzn.to/43TbA4c Medready Carousel: amzn.to/3CulSwk Flipper Remote: amzn.to/3NtGyuo Key / Purse Finder: amzn.to/43ElQ0G Corded Phone: amzn.to/3N9wl4W lifeunderd...
The Difficulties of Care Taking a Loved One with Dementia
Просмотров 2,8 тыс.2 года назад
Dementia isn't like any other disease. Caretakers have a lot on their plate. This is my short list of some of the things I face. What's on your list? Amazon Universal Book Link: mybook.to/LaBelleCommunaute Affiliate Links to Amazon: I earn a small commission if you use the links: Medready 1700: amzn.to/43TbA4c Medready Carousel: amzn.to/3CulSwk Flipper Remote: amzn.to/3NtGyuo Key / Purse Finder...
Dementia: I WANNA GO HOME!!!
Просмотров 4,7 тыс.2 года назад
I WANNA GO HOME is an often-heard demand of a dementia patient that has moved. This video has thoughts on why they are saying it and how to handle it. Amazon Universal Book Link: mybook.to/LaBelleCommunaute Affiliate Links to Amazon: I earn a small commission if you use the links: Medready 1700: amzn.to/43TbA4c Medready Carousel: amzn.to/3CulSwk Flipper Remote: amzn.to/3NtGyuo Key / Purse Finde...
Dementia: Restlessness and Soothing
Просмотров 2,4 тыс.2 года назад
Restlessness is not uncommon in dementia. What do you do about it? This video discusses possible causes and ideas that may help. Amazon Universal Book Link: mybook.to/LaBelleCommunaute Affiliate Links to Amazon: I earn a small commission if you use the links: Medready 1700: amzn.to/43TbA4c Medready Carousel: amzn.to/3CulSwk Flipper Remote: amzn.to/3NtGyuo Key / Purse Finder: amzn.to/43ElQ0G Cor...
Mom Update: Challenges with the Medical Communtiy
Просмотров 4,2 тыс.2 года назад
Mom Update: The last three weeks have been challenging. Part of the challenge has been with the medical community. Amazon Universal Book Link: mybook.to/LaBelleCommunaute Affiliate Links to Amazon: I earn a small commission if you use the links: Medready 1700: amzn.to/43TbA4c Medready Carousel: amzn.to/3CulSwk Flipper Remote: amzn.to/3NtGyuo Key / Purse Finder: amzn.to/43ElQ0G Corded Phone: amz...
Stage 5 Dementia: Q & A with Mom
Просмотров 13 тыс.2 года назад
Stage 5 Dementia Q & A: This video was shot on two separate visits. You will see that some days are better than others. I use simple questions to judge the decline of the disease. Amazon Universal Book Link: mybook.to/LaBelleCommunaute Affiliate Links to Amazon: I earn a small commission if you use the links: Medready 1700: amzn.to/43TbA4c Medready Carousel: amzn.to/3CulSwk Flipper Remote: amzn...
Dementia: The Art of Letting Go, A Mom Update
Просмотров 10 тыс.2 года назад
Dementia: The Art of Letting Go, A Mom Update
Clean Clothes Part 1: Dementia Stage 5 - trying to get Mom into clean clothes.
Просмотров 3 тыс.2 года назад
Clean Clothes Part 1: Dementia Stage 5 - trying to get Mom into clean clothes.
Dementia and Vision Problems: Overlooked but Important
Просмотров 3,3 тыс.2 года назад
Dementia and Vision Problems: Overlooked but Important
Dementia and the Holidays: Getting through the stress!
Просмотров 5372 года назад
Dementia and the Holidays: Getting through the stress!
Dementia and Bathing: It's a struggle!
Просмотров 4,1 тыс.2 года назад
Dementia and Bathing: It's a struggle!
Visiting with Dementia Patients: 8 Conversation Starters.
Просмотров 4,2 тыс.2 года назад
Visiting with Dementia Patients: 8 Conversation Starters.
Dementia, Delirium, and Drugs. Our experiences
Просмотров 4,7 тыс.2 года назад
Dementia, Delirium, and Drugs. Our experiences
Moving Your Loved One Into Assisted Living: Tips and strategies for telling them and moving them!
Просмотров 6 тыс.2 года назад
Moving Your Loved One Into Assisted Living: Tips and strategies for telling them and moving them!
Choosing an Assisted Living Facility: What to look for and questions to ask.
Просмотров 6 тыс.3 года назад
Choosing an Assisted Living Facility: What to look for and questions to ask.
Thank you for sharing all your very personal experiences. You are appreciated.
My mom has dementia my dad is fine. I put them in independent living because putting that in assisted living with depress him he would not feel comfortable being around so many people with dementia. It's going to be I think a challenge in independent living as Mom has some dementia and the other residents will probably avoid her. Nothing ever is easy thank you for your great videos.
Thank you for these videos. I have just discovered you. Everything you say is spot on. The information you share is so helpful.
I am the sole carefuver ro my late husband's 95 year old mother. She was a librarian and worked till she was 70 years and now i cannot see her in this state. Am sure, she does not even recognise me and my son, how we are related to her, but knows that we are around her most of the time. She lost both her sons, witnessed my husband's death, but still unaware of her elder son's death. Cannot see her suffer anymore.
What about bodily functions? What stage is it if they have no controls over their bathroom habits ?
Doesn’t age play a part of how quick it progresses?
very informitive
Our parent has always been very antisocial. Never had a lot of friends, didn't really go anywhere, was a one friend at a time kind of person, no hobbies. It's only and always has been about the television and tv shows. When the tv goes out at all for long periods of time, there has been crying as if they lost a best friend. And this was way before dementia ever set in or was even close. Routine is the tv show schedules. That's it. Sad, lonely life. I'm sure when the time for a living facility comes, the main focus is going to be "Where's the television?"
I've already put it in my head to not feel guilty when/if that time comes because I would rather not get "daily basis frustrated" at my parent or always worrying about the leaving the house and winding up on a silver alert missing website.
It's a hard road for sure.
Self care when you’re alone is a killer. I’m at the point where I’ve got to hire help though out of pocket and so costly but it will save my life. Eventually my sweet husband will eventually go into memory care. I’m pre planning now as I’m way past burn out to near collapse.
Sorry to hear that and others don't understand how bad it is.
Just purchased set of 2 identical clickers and uncut keys from Amazon for about $12. As soon as we find the 2nd set of keys that she said I hid from her but yet she hid on her own, we're swapping the real out for the non-functional ones. She hasn't actually tried to drive, she hasn't driven since 2014 and didn't pass her renewal exam but yet she's starting to leave the house and roam.
It's hard for sure. We were also blamed for "stealing" things that were misplaced. I found most items when I cleaned out the house.
Here I am, just as I said in your clothing issue video.....I'm watching from the beginning in hopes to get some better insight.
This really made me cry. Probably a good thing. I've been not really able to.
Yes! What's up with the freaking clothing issue? Just found your channel for this one search. I'll have to tell my sister about your videos. Thank you so much for making these videos even at the expense of the stressful situation. It's all about just having a conversation with them and letting them feel like the final decision is theirs even when we secretly know that it's not. Bait and switch sometimes. I'm going to go back and watch your channel from the begin because we need any assistance we can get lately.
The clothing struggle is real! If I could go back, I would buy as many of the exact same pants and shirts as I could. That way they could be switched out when she wasn't looking and she wouldn't see a difference or struggle with the decision.
Absolutely true!!!
I like your down to earth way of telling what life is like. I have Parkinson's and not looking to cause all these problems for my love ones.
Sorry to hear that you are ill.
My understanding is there are only 5 stages of dementia. My mom has it and we were told by a dementia Dr that she is leaving stage 4 and on the cusp of stage 5. We just got her in a facility on Saturday. She has a huge brain tumor also. She got cobalt poisoning from defective hip replacements. She is on meds from actual neurologists and a dementia Dr and it's as if the facility couldn't wait for us to leave because when I got there today my mom was so drugged up she couldn't make a coherent sentence like she could when we took her there. She's a fall risk and was very unstable walking or trying to sit down. I'm absolutely livid and I don't know what to do. We didn't entrust her care to them to be drugged up to this point. It's like in a matter of hours they took our mom completely away from us
Sorry to hear. Did you ask what meds they put her on? The place we were at always asked permission before switching meds - until Covid, and then I had to make sure they called me first.
This sounds like my Moms story and behavior. She had me in tears saying I just didn’t want to take care of her. I left one day and felt I don’t really care if I come back or not. Like you did, I spoke to one of the administrators and she said that they were not getting that behavior from her, like I was lying. I left there thinking, well you can keep her. But as time passed she became really social and blossomed calling the young care workers Honey and other sweet treatment. EXCEPT. For the one who had stolen her change purse. There are thieves amongst some of those sweet young ladies. A freind had stupidly put 14 kit earrings on her mother’s ears, doing something nice for Momma, but Momma did not even know she had earrings or not in her ears. Another instance is when Moms roommate had her wedding rings stolen. Do not leave parents with expensive things. There are thieves amongst the patients also, example afghans disappear from beds. This home was in a nice town of about 15,000 people, middle class. Not a run down place. Label everything with a Sharpie permanent ink pen! The patients also steal clothes. And good luck.
We did take the jewelry as soon as we were able to get the rings off. We didn't have any issues with thievery but the residents get confused and go into the wrong room and pick things up and without permanent markers everything will get mixed up.
Fake food is the culprit
I have a hard time not saying do you remember? I said it to him for years before he got dementia. Old habits are hard to break.
I think we've all said it at some point.
Thank you for this info! My mom has emphysema & is cognitively declining. I know it is the SAME as alzhymers, but the decline is there & she is exhibiting the same kinds of things you are mentioning. I am their only kid that lives out of town so the brunt of her care falls on my other 4 siblings. I like to be informed & help as much as I can so these tests are perfect! I'd say she is at stage 3-4, but that is me on the outside looking in. I might be able to get her to take these tests so thank you again for the links!
Number 0: Getting a diagnosis.
"THEY" ....?? Who? Could you be anymore insensitive
Eating sugar and refined carbs can cause pre-dementia and dementia. But cutting out the sugar and refined carbs and adding lots of fat can prevent and even reverse pre-dementia and early dementia. More recent studies show that people with diabetes have a four-fold risk
Sugar is causing dementia. Watch a video on youtube that is called the effects of sugar on a rats' brain. It's a real eye opener and the place I live is a senior's apartment and a lot of the people here that have early onset, dementia and Alzheimer's eat a ton of donuts.And sweets when the food bank brings in treats into the lobby. And you can be sure that the ones that crave sweets are either diabetic.Or diabetic plus dementia. I've seen this over and over. In fact, one woman that moved out of here and was put in assisted living was old. Yes, 94, but she would always steal a lot of the sweets and she would eat it almost all day. And there's a guy in here.He does not have dementia.He's ninety six and he walks at least 4 blocks a day For his morning coffee at mcdonald's and then he walks back. He doesn't have the best hearing but he keeps away from sweets. One day I was sitting in the lobby and I saw him walking in and I pointed at the donuts that were left by the food bank and he shook his head and he says that's garbage not for me.
There also may be a connection with artificial sweeteners as well.
If they have a chop or a pair of pants that they put on, you should take a picture and, in a few days say look at this. How long have you had this on, and they'll look at the picture. And have them hold up a piece of paper that says the date. For instance, say if it is July, the first have them put the pants on or the item on and get them to hold up a plaque or a piece of paper that has the date on it and take the picture of them holding that date. And then if they keep wearing it for 3 or 4, get them to look at that picture that shows them holding up the paper that says july the first.
It doesn't work for long. As they progress in the disease, you will often get arguments that it's not true and million other answers.
I inherited early onset ALZ. Found using CBD oil restored function in minutes & have been able to stay functional for about $40/month. Zero bad side effects. It ought to be the main source of new thinking on this illness. I have help now. First sign of my illness was visual distortions. I was part of global study at univ Wisconsin for 8 years. The worst part of the ilness is relatives who try to steal your home & money. My advice to anyone diagnosed with ALZ is tell NO ONE until you visit a lawyer who will protect your assets. Beware home health aides unless they are monitored by camera. It doesn't have to be so hard.
Your the first person I’ve watched on here that’s talked about some of the things I’m experiencing with my boyfriends mom who has dementia…. We moved in with her giving up our own home 2 yrs ago. It’s the hardest craziest situation EVER! Best wishes to you… 🫶🏻🫶🏻 and to us…. 😏
yep sure got a shock going through Mums house when she moved to memory care
We did as well.
I agree. All the same losses. Can't identify telemarketers. Can't use phone. Can't use computer. Can't use heat. Can't figure out how to turn off the ceiling light. Lived with me for 6 months of crazy times. I can't describe the weird things she did. She's been in a nursing home for the last year. If she would die suddenly it would be a blessing. I know from her own words when she was not ill that "there are worse things than dying."
The menus at the restaurant, yes, absolutely, my mother would always say 'same as you'. Then she'd end up with chop when she really doesn't like meat that much. But now that she is wheelchair bound and unable to leave the house I think we had it good then.
It's weird. You never know when you do something with them for the last time...
Thank you for your videos 😢. My mom is 86 and from watching your videos, she’s in stages 5-6. Your videos have helped me recognize things going on with her. I’m responsible fir her and I’m in the hamster wheel. But u finally cried watching this. I’m grieving for the mom I used to know. I’ve come into terms that this mom with dementia is just another stage. But…. I miss my mom because she was a really good mom 😢. As we journey through this I will keep your advice. 😢. I will let go. Let her go home with God. In the meantime, we’ll do everything we can. Some days I do need God to sustain me. 😢😢😢
Same boat. Mom is 87. Probably 5-6 stage. I miss her. 😭😪
Thank you so much. I’ve been getting concerned about my mom lately (she’s 88) and this video has convinced me something is going on, apart from normal aging. Will be making an appointment tomorrow.
You're welcome.
Last July, I was in the hospital for 3 weeks and my brothers and sisters had to take over being there for my mom who has had dementia since 2020 right before lockdown of Covid. Me and my younger brother are there day in and day out with my mom(or should I say I am). Even though I was in the hospital, it felt like a vacation for me . But I then came home and suppose to be recuperating and had to "go back to work", ordering my mom's pills, etc. When told one of my sisters what I had to order 3 of my mom's pills, they are like (my mom takes 10 or 9 pills at that time) in the morning and 3 in the evening) my one sister was like "How did that happen?" I was like, "I haven't been home in 3 weeks)
It is definitely hard.
@@lifeunderdeborahspalm-thed8114 yes it is. I even have blacked out due to the stress, resulting into things I wouldn't have done otherwise
Wow i want to do this for our mother. She really needs to go somewhere
It was hard, but they all did well and made friends.
@@lifeunderdeborahspalm-thed8114 i wish you could come help us. I really feel like you could really help ppl. With the moving. And getting them in a place.
And another thing my sister and i are afraid of is mom wont make friends bc she is a hard person. But we feel she needs assistant living bc she keeping herself isolated and thinks we should do everything for her. She uses that excuse too she cant afford it and she can.@@lifeunderdeborahspalm-thed8114
I can totally relate, I didn’t see myself burning out, I was on survival mode with mom, my husband put his foot down and we then put her in a home. It was hard but I realized that I was running into a wall and when she left, I got back my life. I was slowly coming back to the person I was before…I had time for my family and me and mom is being well taken care of. Something I alone as a caregiver was not being able to do.
I agree. It also allowed me to enjoy my mother. I took her for ice cream, and family dinners, etc. and had a ton of patience for her where before, it was very stressful.
How long does it take to advance from one stage until another
It can vary greatly from person to person. We were told that from diagnosis to death averages 10 years. My FIL was much shorter and my MIL was longer. There was a person in the assisted living facility that lived there for 20 years before he passed.
You have helped me so much l don't feel so alone now
My mother exactly..she thought that there was a witch coven living upstairs. She wanted to die,and finaly she did.that was not my mother.l wanted her at peace
My fiance wonders what to talk about with his mom even though she's only in the middle stages. She doesn't remember almost anything. What she had for lunch,her grand daughter visited (she did??) etc. he said it's gone down to "small talk" he calls it...the weather, the birds,that kind of stuff. What I do is talk about myself,what I did,funny stories that happened, the cats..she seems to enjoy that and laughs or gets a kick out of it.
Good idea. I started doing the same thing, and it doesn't matter if you repeat the stories.
My question is this- WHEN did the system flip to taking them here and there for treatments!?? Back in the 70s-90s you’d ask the elders “What ever happened to aunt so and so? “ Oh her? She lived upstairs from us and didn’t feel well one day went to the hospital and died there” Or “Uncle so and so had SENILITY” (dementia Alzheimer’s) Or they had a heart attack came home NO PT- NO OT- NO weekly nursing. NO stopping the lives of the caregivers to take off work driving them all over etc killing their OWN financial situation. This is what infuriates me. Mom had terrible brain cancer twice and broke her hip recently she’s FINE but now stage 5. Running out of money. This is THE WORST LIFE FOR HER AND HER FAMILY.
There is a lot of truth in that. My great aunts and uncles did exactly that.
Thank you for guidance I'm a caregiver with dementia clients more family members need your views have a blessed day. -jelizabeth from Texas
Giving away large sums of money or donating huge sums to charities. What the money, its going ti be needed someplace else..
Good point. We didn't have that happen but my mom was pretty sure the junk mail that was soliciting money was a bill to be paid. Thankfully, she would hold the mail and wait for me to help her with it.
Thank you so much for this video. I've been nodding my head throughout saying "Yes that's my mom!!" She moved into a care home today... 97 years old and obviously stage 5. 😢😢🫤
:-(
I wonder if sleep-walkers are prone to Dementia?
I hope not, because I have done it my whole life 👀.
Too much of talking. Show clips
Very informative and frank. Thanks!
Our Drs look concerned but aren't giving details. We live in a small town with a gp and medical assistant plus an annual cardiologist visit My guess is from the pinched looks they expect it to go bad but they're not saying 🤷 Self education. Thanks
It is sooooo frustrating when doctors won't spit it out. I know someone who is dealing with this and needed to take the FMLA - they won't approve it because there is no "official diagnosis."
My partner is going in Memory care in the next couple weeks. Thank you so much, I really needed this.
Sorry to hear that. There is no perfect way to handle it.
Thank you for being so honest!