@@brigetteconway1440 I'm not sure they are actually comorbid but rather that the symptoms overlap so closely a lot of people get misdiagnosed since MD would explain their VM symptoms and vice versa. Essentially if you have any vertigo symptoms you need to find the cause of those symptoms which may overlap with your migraines or have a distinct cause.
Yes, migraines could affect your entire vestibular system and lead to all types of ear issues like tinnitus, ear, pain, ear pressure, ear, fullness, etc. Please see Dr. Michael Teixido channel
Do you feel a preassure in your head when walking in cold weather? And a bit of dizziness and a feeling like gonna faint (but not fainting ). I suffer from VM since 10 years now, with PPPD as well . I can relate to 100% of whay you said in the video.
Great video Matt. I've had VM and PPPD for well over 2 years now and I still have trouble describing my symptoms to friends and family. Definitely going to be worth showing them your video as it describes all my symptoms perfectly. Cheers, Chris
Very true i am facing these issues but the sad part is doctors r not knowledgable abt this i met one ENT specialist she used to tell it's all normal just do some exercise that's all she tells how did u overcome can u please adress me
Yes, unfortunately, a lot of doctors are no use as they havent heard of the condition. I overcame it with the right meds, tweaks to my lifestyle and time. Have a look at my other videos for more detail.
It took me a long time (decades) to get the right diagnosis. Even in dizziness clinics, they were unable to make the right diagnosis. However, my migraines are far more complex. For years, I was put on the psychological track. I live in Germany. There are pain clinics here that specialize in migraines. I would advise you to go to one of them. It took me so long because I had very atypical burning headaches, if I had any at all. I only went there after I found out that my vision problems were visual snow. And that this phenomenon is very often a comorbidity with migraines.
Does anyone feel a constant shaking through their whole body 24/7? Honestly it is so debilitating I don't know what to do. This started a month ago for me. Constant shaking sensation, feel like I'm walking on a trampoline, constant state of shock sensation, difficulty having a conversation, brain fog, fatigue.
Josh - I am so glad to hear I am not the only one who gets this!!! I have been so distressed the last few days with this, as this is a new symptom for me, although I have had migraine for nearly 30 years. It feels like I have swallowed a mobile phone on vibrate mode! Hope you get relief soon.
@@MegaChelsea25 thank you. I have found propranolol and the supplement L-theanine don't stop the vibrations, but they make them feel less intense. Riding in the car seems to help too.
@@feedmysheep7059 That's good. I was actually going to come back on and recommend L-theanine as I had come across that in another VM video. I might also try it.
Thank you for this video ,i have all symptoms for 7 years now,the same as you,and i have dizziness 24/7 just this dizziness dont go away i mean 7 years ago started this dizziness ist just chronic 24/7 and dont get away have you had this too ?
Hi BB07. No, fortunately I have been lucky enough to not get indefinite chronic symptoms. It sounds to me like you have developed PPPD which seems to be a condition that can develop from VM. I am sorry you are suffering. Have you had any treatment?
@@thebluntyorkshireman5161 For 7 years now im using escitalopram and sulpiride still i havent been diagnose with vm or ppd they say its just anxiety 😞 but i know for sure i have all ur symptoms .
Hello,for this drunk feeling (deerealization) mixed with dizziness now i have just this symptoms that is what is bothering me , Do you have still this feeling or its gone ? and What medication you have take for this symptom deerealization(drunk feeling mixed with dizziness and visual problem? Thank you brother.
@@bigballsstudio0737 Almost 100% it is NOT anxiety. Yes anxiety might exacerbate your symptoms but the anxiety is a result of the phyical issues you are experiencing. I hate it when medics make this lazy diagnosis.
Have you ever had the pressure in your head on only one side? I’m having a lot of pressure on my left side of my head and tingling after what I think was an attack yesterday.
Hi. I do get head pressure - often the back and/or top of my head. What you describe sounds a bit like what a lot of more regular migraine sufferers report?
Eric Rosario I get terrible pressure across the back of my head and am unable to lie down to sleep until it passes.... feels sooo tight. My physio says to try and sit upright when i rest during the day which I am doing
Pebbles Miller I have this pressure 24/7. It started on my left side of my head and now it’s in the back of my head and top but not so much on the right side of my head. It’s freaking me out. It’s accompanied with a pain in my head that I’m assuming is a migraine but only ever occurs on the left side of my head. This is my second attack this year, the first was far worse and I recovered luckily after a month. The only issue I’m left with currently is the head pressure and photophobia. How long does it take your pressure to go away?
My neurologist told me I have vestibular migraines following a week long dizzy spell. I had so many symptoms and couldn’t accurately describe it. They ruled out everything from diabetes and heart disease to concussion. It’s been very stressful. I had never heard of these migraines before and was a bit upset that they were chalking all my pain up to a headache. They let me know migraines can have symptoms without traditional headaches. I felt like I was going crazy but this video really sums up everything that I have been experiencing. Literally every symptom I have. A genuine thank you.
Does anyone feel heaviness or feeling of weakness in their limbs? I feel like I'm dragging my legs and arms through water. My face is full of pressure with dizziness and depersonalisation. My eyes struggle to focus on screens and words on screens.
Yhe heart burn... I read somewhere the reflux could effect the eustanchian tube... don't quote me. I get full pressure in sinuses frontal and inner ears.
I’ve just had my first vestibular migraine but to be honest, I’ve probably had more than I think as I’ve had certain symptoms for many years. It’s been a week with this VM. Apparently B12 is very important with any type of dizziness/vertigo. It was either coincidence or has actually helped me as I started to improve a couple of days after taking it.
I’m not yet diagnosed but it looks like it’s headed in this direction. Been researching VM on RUclips for just 10 days and found you. As I was listening to you I started sobbing - this is exactly what I’ve been experiencing!- you’ve described my symptoms exactly. I’m feeling really bad today - all the things you just listed - But relieved to know this is actually a thing and that I’m not alone. Thank you. So grateful ❤🙏🏽
@@thebluntyorkshireman5161 It's official - The Neurologist and Ear/Nose/Throat specialists agree and now it's a continued path of (mostly) trigger management ... or occasional triptans - if I must get thru a day. It's been since Sep 2014 (over 9 years now) since the initial symptoms started - but I am truly grateful for a diagnosis... and I'm grateful AGAIN for you, sir! It's truly refreshing to know we're not suffering alone... and your closing statement, "As you were, you'll be again." brings tearful hope to me. Blessings to you and Thank you, Matt.
Had balance problems since 2008 had loads of tests, ent clinic ect couldn't find anything wrong. Had it really bad beginning of the year the worst it had ever been, fear of meeting my friends in busy environments ect, finally had a appointment with a neurologist was told it vestibular migraine.I hope the medication helps and that I can feel normal again, it's been far too long.
You forgot the most important one of all.....INNER EAR PAIN. I am dealing with this almost daily. As soon as my inner ear starts hurting everything else follows.
Me too. This is what can send one insane. I have it all day although it varies in intensity. Barometric pressure changes are usually the culprit for this. I live in Scotland now and feel the change in altitude could of been or is a catalyst to why everyday is a party 🥳
Hi, I was diagnosed with vestibular migraines in 2010 and when I watch your videos about it i feel so happy because I can relate to what you’re saying. Its so nice to know that theres someone else out there that understands what im going through.I just wanted to ask if you sometimes find it difficult to wear face masks during the pandemic? I find it really hard to breathe when my symptoms are bad and no one really gets why. thanks hope you’re well x
You are welcome and you are definitely not alone! Yes, because my breathing can go funny I think wearning a stupid face mask is awful tbh. I wear one only when I absolutely have to and I can't wait to burn the bloody things.
Thank you again for this! I experience most these 10 symptoms PLUS more ---> #11 Occasional pain at the top of my eye balls, #12 Instead of the TV static / visual snow, I have some eye floaters; #13 my computer monitor is at 30% brightess, anything more will be an eyesore; #14 Tender scalp, pain in the headband area, and tension headache / tightness on the forehead; #15 The need for mint as I sometimes feel like puking but never do.
Does anyone get eye flickering in the eyelid. Upper eyelid only. This symptom is driving me the most nuts. I also get the internal shaking feeling/ just feels like nerves frayed. Like a cat with its hair on end. Is that the twitching? I only have upper body only. Head/neck/arms. Pressure headaches yep! Especially behind the eye. Anxiety yes, awful and so scary as it comes on all of a sudden. All the symptoms match me. The depersonalisation thing is called Alice in Wonderland effect.
I get face twitching - which is another reason why I think the nerves are at play with VM. Yes, you feel like you are looking through the looking glass! x
I just got these symptoms out of nowhere and I'm very scared because I just couldn't describe it like you did. I hope you get this message because I don't know where to start for recovery. Please help.
Thank you for this video. I have pretty much all of those symptoms but I've just been to my neurologist who said I don't have VM. I did have headaches a year ago for a few months and had a normal MRI result at the time but over the last couple of months these symptoms started (including nausea). I'm convinced it's VM which, from what I'm seeing, is hard to get a diagnosis for so I suppose the search/journey continues
How do you control this? I am this way for years now. Symptoms always come of a sudden and never know what a trigger can be but lights oh lord I feel I am about to faint every time I am shopping in a store :(
Yes, I got the fainting thing. My theory is that this is the brain/body tripping out because of the sensory overload you are experiencing in places with motion/light - such as the store. I always say the right meds, some modifications to diet, and sunglasses and/or FL41 specs for computer work are the best three ways to control.
@@thebluntyorkshireman5161 thank you! I have met an elderly lady the other day that had this when she was about my age, she said after 55+ things get better the bad news is I have about 20+ years to go with this but again one never knows. Hopefully there will be a cure one day but I highly doubt it :(
Hi Matt great video I have all your symptoms and I’ve started to get that breathing symptoms and like I have to take deep breaths in quite often. Did you do a video on your breathing symptom? x
Hi Lianne. I know how you feel! I think the breathing is messed up because either the VM, or issues with the central nervous system which also cause VM, upset your breathing. I did, if you subcribe you can see them all. :) x
So helpful, thank you. Played for my family and it helped them understand. I also have vestibular neuritis. Do you experience this as well? I’m in my 9th month and I can sort of function, if you have any comments or experience with both vestibular migraine and vestibular neuritis can you discuss that ? Thanks so much
Excellent - I am glad you used it to help your family understand. That's one of the hardest things to do! Is the neuritus the virus? I may well have had it at some point in the past (it could have been the trigger for VM) but I dont know for sure, hence I havent really commented on it.
I’ve been suffering with VM since 2017 and been horrible. The. Clogged ear (left one in my case) leads to all other symptoms and the attach with can occur by surprise.
the way i describe it to people is it comes out of no where (my attacks). it’s hard to explain but it’s not a dizzy sensation necessarily it’s more of a lightheadedness swaying sensation like the inside of my brain feels like it’s rolling around. and it comes super unexpectedly like you have no idea and then boom it hits like lightning and it’s an intense swaying sensation that makes me feel super disoriented and have a little derealization to the point where i feel like i need to sit down right away and grab onto something. and nothing ever triggers it commonly, it’s at the most random times. whether im in bed, whether im washing my face, whether im talking to someone or just walking its always different. i’ve had this for 8 months now and i haven’t been diagnosed but i have every single symptom you said in the video. these little episodes make me feel off balanced at times, affect my vision (i see microdots like tv static u said) and the violent swaying that comes like a bolt of lightning lasts for about 30 to 45 seconds and then it slows down and stops eventually but even after it stops, I just feel super off afterwards for a while. I always noticed I get this after I eat in restaurants and out at stores (not the episodes, but the feeling of just feeling disoriented and feeling like I’m gonna fall over) it’s so scary. And it’s so hard to explain to people. I fully convinced myself. It was a brain tumor for a little bit, but this sounds like exactly what I’m dealing with. it started in October and I had one episode, then the next month around the same time I had another one for the second time ever, then it was on and on like that once a month for a couple more months until it started happening more frequently around twice a month, to now once a week or once every couple days. it’s the weirdest thing ever.
Thank you I have all of them except the twitches and breathing. But the worst one is the derealisation. I feel like I'm going through life watching a video of myself. There but not. I've had it since I was 15. Now I'm 50 and I've only just been diagnosed.
Do you need room spinning vertigo for it to get diagnosed? I have all the symptoms and I do have dizziness every day but not like the room is spinning, more like I'm constantly swaying if it makes sense it's so hard to describe.
How curious. I was diagnosed with vestibular migraine a few years ago and yet do not exhibit any of the symptoms you have described. This further reinforces my belief the diagnosis i was given was incorrect.
I get all of this. Bit I also get some violent spins lasting a minute or so. Anyone else. Also head turned to left or looking down. Example trying to look in a filing cabinet? Main issue lights though, movement and loud noise.
Yeah, the top ten will vary for different folks. For example some people get tinnitus whereas I didnt. I hope some people on here get back to you on the spins!
Bro I never thought I’d find somebody who deals with the same struggles I do. I’ve always had migraines but they would only happen early morning upon waking. And this last year or 2 has been so bad it’s happening all day most days
I’ve visited my physician he diagnosed me with migraine but was puzzled when I informed him about the Eye floaters, puking, sharp piercing pain on both or one of my eyes. The worse experience was one with the vertigo, it lasted for the whole night. I’m wondering what are the triggers, and what are some home remedies that could curb it! God bless !
Hi Sandeep. Yes, the face twitching is really weird isnt it. It's hard to put an exact time on recovery, it can vary depending on diagnosis, treatment etc. I was quite chronically poorly for about four months in total before things started to improve.
This describes all my symptoms the anxiety when an attack comes on is the worst. I feel like my neck gets really stiff too. I get a lot of muscle twitches and breathlessness too and the de-realisation is next level in shopping centres. I also get chest pains sometimes. My head also feels like it's going to explode and I get the tingles down my head and my arm. It took me 9 months to get diagnosed its been horrible.
Thank you for this, exactly how I feel every day! I've had migraine since my childhood, with a lot of VM symptoms over the last few years as well, vertigo made its entrance into my life 3 months ago and it changed everything.
Ah I am sorry to hear that, J. Yeah I am going to do a video soon on how people with regular migraine are prone to VM too. I hope you are getting some treatment?
Hi again, Great vid btw. Just a quick question. You mention Visual Snow- is this a symptom you experience intermittently or all the time? I ask because I have VS all the time and all the symptoms of Visual Snow Syndrome, they seem to interweave with my migraine symptoms. Prior to developing chronic VM I would experience the snow here and there. I am awaiting follow up with another Neurologist and I guess the only way I'll truly know what is what, is following testing and finding the right migraine treatment for me...see if the snow sticks around or not.
@@thebluntyorkshireman5161 You're very fortunate in that respect then, most (not all) VS sufferers have it 24/7 along with other visual weirdness! Must be part of your migraine pattern as opposed to having VSS and migraine. Yes, whiter rooms is pretty usual for VS, mine is worse in against white backgrounds or low level light
@@griggleyrock666 Hmm - that sounds like being lucky to avoid being shot but getting radiation poisoning instead....There is no luck with this condition ;o)
Hey i have a question i have vestibular migraine and im almost 100% recovered but one thing that keeps bugging me is when ever im reading on a computer or phone the letters start swaying left to right does that happen to you too im hopeless about it because no one knows what im talking about, and its been hard for me to read.
Hello. So, in certain lights or a certain colour combos on screens I can feel a bit funny, and make it hard to read. I only get it in flashes though. I suspect that will go away for you. What is it like if you try reading with sunglasses on?
@@thebluntyorkshireman5161 the sunglasses dont help me for screens only outside when in stores but i notice that i can read way better on a computer screen with darker backgrounds than white backgrounds.
Hi I have been suffering from VM for about 2 years now I only got a diagnosis a couple of months ago. I have most of the symptoms you describe, has it affected your sleep pattern? I used to work 12h shifts, nights, weekends the works and I could sleep for 10 hours straight. Now I struggle to get 3 hours before I wake up no matter how tired I am and the times are oddly regular sometimes I can roll over and go back to sleep other times my brain won't shut down. The worst symptom has always been light sensitivity for me. When I am suffering trying to read my computer screen is really hard I just cant focus on text.
Yeah I hear you and sympathize when it comes to the light sensitivity. That was one of my major shitty symptoms. My sleep was messed up yeah - I'd get about two hours a night at my worst. Are you having any treatment?
@@thebluntyorkshireman5161 Hi, thanks for replying. Yes I am taking Nortriptyline(20mg a night). I have a follow-up appointment with a Neurologist in a couple of weeks. I find my symptoms are very up and down. I will steadily improve for two weeks then it seems to flip and I will get steadily worse until I at some random point a week or so later I start to improve again. To be fair I think my symptoms are a lot milder than some people that are really suffering it just grinds you down with these cycles.
@@nervousfrog101 Yeah, it sounds like you are on the road to recovery. You just need to stop it from creeping back in - hopefully meds will do that, mixed with a few tweaks to lifestyle etc.
Hello Matt. This question is for you and anyone else who is going through this. With all the symptoms that goes with this illness does anyone have trouble eating? The dizziness/ head pressure makes it really hard for me.
I'm not sure you quite finished your question there - but in terms of eating- no issues. I do occasionally get the sensation I can't swallow. That is probably the central nervous system (which I believe is the real issue with VM).
Thank you for the reply. I just meant sitting down and trying to eat is really challenging for me with this dizziness feeling. I have had trouble swallowing too. Coming up on six months with this and still haven't gotten a diagnosis. It's been hell :(
Hii good evening... Facial twitching and muscle twitching problem, is it Leads to hemifacial plasam , brain stroke or big problems? Please let me know..
Hello Sandeep. I have had facial twitching as part of VM. I suspect it's not the VM as such doing it, but more the disturbance of the central nervous system. I can't give you medical advice on strokes as I am not a doctor, but I have never heard of VM causing one.
I have the all the symptoms that u have described.At first i went to a cardiologist he done an echo,ecg,blood test all the stuff and all were normal,he said there is nothing wrong with my heart..Later I went to a neurologist he said everything is fine,then i went to an ent specialist she said this a kind of migraine and prescribed propanolol and flunarizine ...I got better but not much because the anxiety was skyhigh every now and then.Then i went to a psycatrist,she gave some ssri meditations which helped me to a certain extend which reduced my anxiety drastically.I started going gym,playing etc then again it got worse..now Iam suffering again I recently changed the medication to amitriptyline and propanolol but side effects are there.Now Iam going to the next doctor.🥲
I was diagnosed vestibular migraine and prescribed sibelium 5 mg and betavert 8 mg ..initially it worked a bit but after a while the side effects started to creep in and my ENT suggested to go off meds .
Great video
One other symptom a lot have including me Is ear issues , very sensitive to noise , pressured ears , tinnitus . So horrible as well . 👍
Ah yes - quite a few people do - it must be awful - I am sorry you are suffering x
with the ear issues you are describing you may want to see Neuro about possible Meniere's Disease, I understand often comorbid with VM
@@brigetteconway1440 I'm not sure they are actually comorbid but rather that the symptoms overlap so closely a lot of people get misdiagnosed since MD would explain their VM symptoms and vice versa. Essentially if you have any vertigo symptoms you need to find the cause of those symptoms which may overlap with your migraines or have a distinct cause.
Yes, migraines could affect your entire vestibular system and lead to all types of ear issues like tinnitus, ear, pain, ear pressure, ear, fullness, etc. Please see Dr. Michael Teixido channel
My tinnitus is similar to after being at a loud concert but it's all day everyday.
Do you feel a preassure in your head when walking in cold weather? And a bit of dizziness and a feeling like gonna faint (but not fainting ). I suffer from VM since 10 years now, with PPPD as well . I can relate to 100% of whay you said in the video.
Hi Nino. Yes, I had the pressured head and the feeling like you are going to faint!
Watching from South Africa. Thanks for this video
Excellent! I am glad my South African friends and sufferers are having a watch!
Great video Matt. I've had VM and PPPD for well over 2 years now and I still have trouble describing my symptoms to friends and family. Definitely going to be worth showing them your video as it describes all my symptoms perfectly. Cheers, Chris
Cheers Chris, I'm glad it helps.
@Chris marchant how are your symptoms now?
Great video, what about tinnitus? :)
Fortunately, I dont get it - I had to based this really on what I'd experienced myself.
Very true i am facing these issues but the sad part is doctors r not knowledgable abt this i met one ENT specialist she used to tell it's all normal just do some exercise that's all she tells how did u overcome can u please adress me
Yes, unfortunately, a lot of doctors are no use as they havent heard of the condition. I overcame it with the right meds, tweaks to my lifestyle and time. Have a look at my other videos for more detail.
It took me a long time (decades) to get the right diagnosis. Even in dizziness clinics, they were unable to make the right diagnosis. However, my migraines are far more complex. For years, I was put on the psychological track. I live in Germany. There are pain clinics here that specialize in migraines. I would advise you to go to one of them. It took me so long because I had very atypical burning headaches, if I had any at all. I only went there after I found out that my vision problems were visual snow. And that this phenomenon is very often a comorbidity with migraines.
Does anyone feel a constant shaking through their whole body 24/7? Honestly it is so debilitating I don't know what to do. This started a month ago for me. Constant shaking sensation, feel like I'm walking on a trampoline, constant state of shock sensation, difficulty having a conversation, brain fog, fatigue.
I've had it - often when I lay down in bed tbh.
Josh - I am so glad to hear I am not the only one who gets this!!! I have been so distressed the last few days with this, as this is a new symptom for me, although I have had migraine for nearly 30 years. It feels like I have swallowed a mobile phone on vibrate mode! Hope you get relief soon.
I have the internal shaking. Mostly when I lay down.
@@MegaChelsea25 thank you. I have found propranolol and the supplement L-theanine don't stop the vibrations, but they make them feel less intense. Riding in the car seems to help too.
@@feedmysheep7059 That's good. I was actually going to come back on and recommend L-theanine as I had come across that in another VM video. I might also try it.
Hope your heartburns better lol.
Great video Matt!!!😄
Thanks lovely
Thank you for this video ,i have all symptoms for 7 years now,the same as you,and i have dizziness 24/7 just this dizziness dont go away i mean 7 years ago started this dizziness ist just chronic 24/7 and dont get away have you had this too ?
Hi BB07. No, fortunately I have been lucky enough to not get indefinite chronic symptoms. It sounds to me like you have developed PPPD which seems to be a condition that can develop from VM. I am sorry you are suffering. Have you had any treatment?
@@thebluntyorkshireman5161
For 7 years now im using escitalopram and sulpiride still i havent been diagnose with vm or ppd they say its just anxiety 😞 but i know for sure i have all ur symptoms .
Hello,for this drunk feeling (deerealization)
mixed with dizziness now i have just this symptoms that is what is bothering me ,
Do you have still this feeling or its gone ? and
What medication you have take for this symptom deerealization(drunk feeling mixed with dizziness and visual problem?
Thank you brother.
@@bigballsstudio0737 Almost 100% it is NOT anxiety. Yes anxiety might exacerbate your symptoms but the anxiety is a result of the phyical issues you are experiencing. I hate it when medics make this lazy diagnosis.
Have you ever had the pressure in your head on only one side? I’m having a lot of pressure on my left side of my head and tingling after what I think was an attack yesterday.
Hi. I do get head pressure - often the back and/or top of my head. What you describe sounds a bit like what a lot of more regular migraine sufferers report?
The Blunt Yorkshireman I’m not sure, I have experienced all of the symptoms you listed in the video.
@@ericrosario5369 Sounds like VM, Eric!
Eric Rosario I get terrible pressure across the back of my head and am unable to lie down to sleep until it passes.... feels sooo tight. My physio says to try and sit upright when i rest during the day which I am doing
Pebbles Miller I have this pressure 24/7. It started on my left side of my head and now it’s in the back of my head and top but not so much on the right side of my head. It’s freaking me out. It’s accompanied with a pain in my head that I’m assuming is a migraine but only ever occurs on the left side of my head. This is my second attack this year, the first was far worse and I recovered luckily after a month. The only issue I’m left with currently is the head pressure and photophobia. How long does it take your pressure to go away?
Most importantly how do i get rid of them.had everyday different levels 24/7 for over 32 years migraines. Vestibular for over 21 yrs.its hell.
It is hell and I’m sorry you are suffering constantly. How I got better is covered in my videos. Check them all out!
Can it be chronic?
Yep - I had a chronic phase - but chronic does not mean it can't get better - it did for me.
I dint had migrine in past... Is there any chance to get vestibulat migrine
I dont quite understand your question, Sinu?
Sir.. I am from kerala... I dont get a small headache in my whole life. But i have vestibular migrine... Is chance is there to get like that
@@sinuchocho9519 Yes, I think so. I never suffered from regular migrants but obviously got vestibular migraine.
My neurologist told me I have vestibular migraines following a week long dizzy spell. I had so many symptoms and couldn’t accurately describe it. They ruled out everything from diabetes and heart disease to concussion. It’s been very stressful. I had never heard of these migraines before and was a bit upset that they were chalking all my pain up to a headache. They let me know migraines can have symptoms without traditional headaches. I felt like I was going crazy but this video really sums up everything that I have been experiencing. Literally every symptom I have. A genuine thank you.
Ah no worries, love. I am glad you now have a diagnosis. First step to getting better x
Does anyone feel heaviness or feeling of weakness in their limbs? I feel like I'm dragging my legs and arms through water. My face is full of pressure with dizziness and depersonalisation. My eyes struggle to focus on screens and words on screens.
I defo had the head pressure. Not a headache but a pressure!
Spot on, just how i feel with Vestibular migraine
Thanks Diane x
Yhe heart burn... I read somewhere the reflux could effect the eustanchian tube... don't quote me. I get full pressure in sinuses frontal and inner ears.
How interesting. That would make sense wouldnt it!? x
Thank you 🙏 I have one now. It’s horrible neck stiffness too.
Agreed - that could have gone in, as I get that (and I think in some cases it is a trigger for this condition)...
I’ve just had my first vestibular migraine but to be honest, I’ve probably had more than I think as I’ve had certain symptoms for many years. It’s been a week with this VM. Apparently B12 is very important with any type of dizziness/vertigo. It was either coincidence or has actually helped me as I started to improve a couple of days after taking it.
I’m not yet diagnosed but it looks like it’s headed in this direction. Been researching VM on RUclips for just 10 days and found you.
As I was listening to you I started sobbing - this is exactly what I’ve been experiencing!- you’ve described my symptoms exactly.
I’m feeling really bad today - all the things you just listed - But relieved to know this is actually a thing and that I’m not alone. Thank you. So grateful ❤🙏🏽
Ah Beth. I’m sorry but I’m also glad you found me (and us). Hopefully you can get your diagnosis now x
@@thebluntyorkshireman5161 It's official - The Neurologist and Ear/Nose/Throat specialists agree and now it's a continued path of (mostly) trigger management ... or occasional triptans - if I must get thru a day. It's been since Sep 2014 (over 9 years now) since the initial symptoms started - but I am truly grateful for a diagnosis... and I'm grateful AGAIN for you, sir! It's truly refreshing to know we're not suffering alone... and your closing statement, "As you were, you'll be again." brings tearful hope to me. Blessings to you and Thank you, Matt.
@@YogabyBethanieMeredith4Jesus ah that is great news, Beth. This will set you down the road to feeling better now. You’re most welcome x
@@YogabyBethanieMeredith4Jesus aww you are very welcome! Getting the diagnosis means you can move towards recovery!
Since I was diagnosed and know what it is, my attacks seem less severe. I'm sure anxiety about not knowing what was wrong made the symptoms worse.
Had balance problems since 2008 had loads of tests, ent clinic ect couldn't find anything wrong. Had it really bad beginning of the year the worst it had ever been, fear of meeting my friends in busy environments ect, finally had a appointment with a neurologist was told it vestibular migraine.I hope the medication helps and that I can feel normal again, it's been far too long.
You forgot the most important one of all.....INNER EAR PAIN. I am dealing with this almost daily. As soon as my inner ear starts hurting everything else follows.
Didnt forget it, I didnt have it. These are my top 10 symptoms, which of course will vary from person to person.
That happens with mine ear pain/fullness then I start to feel dizzy
Me too. This is what can send one insane. I have it all day although it varies in intensity. Barometric pressure changes are usually the culprit for this. I live in Scotland now and feel the change in altitude could of been or is a catalyst to why everyday is a party 🥳
I hope you've put a new battery in the smoke alarm by now.
One big one you may have forgotten....when the barometric pressure moves or is low, my symptoms greatly increase.
Yes, that is something I am going to do a video on!
Hi, I was diagnosed with vestibular migraines in 2010 and when I watch your videos about it i feel so happy because I can relate to what you’re saying. Its so nice to know that theres someone else out there that understands what im going through.I just wanted to ask if you sometimes find it difficult to wear face masks during the pandemic? I find it really hard to breathe when my symptoms are bad and no one really gets why. thanks hope you’re well x
You are welcome and you are definitely not alone! Yes, because my breathing can go funny I think wearning a stupid face mask is awful tbh. I wear one only when I absolutely have to and I can't wait to burn the bloody things.
I get that exact problem with masks
Thank you again for this! I experience most these 10 symptoms PLUS more ---> #11 Occasional pain at the top of my eye balls, #12 Instead of the TV static / visual snow, I have some eye floaters; #13 my computer monitor is at 30% brightess, anything more will be an eyesore; #14 Tender scalp, pain in the headband area, and tension headache / tightness on the forehead; #15 The need for mint as I sometimes feel like puking but never do.
No worries! I used to get the forehead tightness too. At the time I thought I needed my eyes testing!
Does anyone get eye flickering in the eyelid. Upper eyelid only. This symptom is driving me the most nuts.
I also get the internal shaking feeling/ just feels like nerves frayed. Like a cat with its hair on end. Is that the twitching? I only have upper body only. Head/neck/arms.
Pressure headaches yep! Especially behind the eye.
Anxiety yes, awful and so scary as it comes on all of a sudden.
All the symptoms match me. The depersonalisation thing is called Alice in Wonderland effect.
I get face twitching - which is another reason why I think the nerves are at play with VM. Yes, you feel like you are looking through the looking glass! x
I just got these symptoms out of nowhere and I'm very scared because I just couldn't describe it like you did.
I hope you get this message because I don't know where to start for recovery.
Please help.
Hi Sesar. Check out my other reply. :)
Thank you for this video. I have pretty much all of those symptoms but I've just been to my neurologist who said I don't have VM. I did have headaches a year ago for a few months and had a normal MRI result at the time but over the last couple of months these symptoms started (including nausea). I'm convinced it's VM which, from what I'm seeing, is hard to get a diagnosis for so I suppose the search/journey continues
Hmm - what did your Neuro say it was then? Sometimes their diagnosis' are bizarre!!
How do you control this? I am this way for years now. Symptoms always come of a sudden and never know what a trigger can be but lights oh lord I feel I am about to faint every time I am shopping in a store :(
Yes, I got the fainting thing. My theory is that this is the brain/body tripping out because of the sensory overload you are experiencing in places with motion/light - such as the store. I always say the right meds, some modifications to diet, and sunglasses and/or FL41 specs for computer work are the best three ways to control.
@@thebluntyorkshireman5161 thank you! I have met an elderly lady the other day that had this when she was about my age, she said after 55+ things get better the bad news is I have about 20+ years to go with this but again one never knows. Hopefully there will be a cure one day but I highly doubt it :(
@@missprettyonabudget Ah I dont agree with her - if you get the right treamment you will get better :o)
@@thebluntyorkshireman5161 that is true too I mean who know where I will be in 20 some year. But not looking forward to it with these symptoms.
Did u had ear popping or ear fullness.. And eye pain
Yes, sometimes my ear would fill full, Sinu.
One thing that REALLY helps the off balance is wearing ear plugs!
Ah - good tip! I didnt know that!
Oh that's interesting, I'll give it a go, thanks for sharing🙂
Hi Matt great video I have all your symptoms and I’ve started to get that breathing symptoms and like I have to take deep breaths in quite often. Did you do a video on your breathing symptom? x
Hi Lianne. I know how you feel! I think the breathing is messed up because either the VM, or issues with the central nervous system which also cause VM, upset your breathing. I did, if you subcribe you can see them all. :) x
So helpful, thank you. Played for my family and it helped them understand. I also have vestibular neuritis. Do you experience this as well? I’m in my 9th month and I can sort of function, if you have any comments or experience with both vestibular migraine and vestibular neuritis can you discuss that ? Thanks so much
Excellent - I am glad you used it to help your family understand. That's one of the hardest things to do! Is the neuritus the virus? I may well have had it at some point in the past (it could have been the trigger for VM) but I dont know for sure, hence I havent really commented on it.
I’ve been suffering with VM since 2017 and been horrible. The. Clogged ear (left one in my case) leads to all other symptoms and the attach with can occur by surprise.
Im sorry you have been suffering Antonio - it is horrible, you are absolutely right.
the way i describe it to people is it comes out of no where (my attacks). it’s hard to explain but it’s not a dizzy sensation necessarily it’s more of a lightheadedness swaying sensation like the inside of my brain feels like it’s rolling around. and it comes super unexpectedly like you have no idea and then boom it hits like lightning and it’s an intense swaying sensation that makes me feel super disoriented and have a little derealization to the point where i feel like i need to sit down right away and grab onto something. and nothing ever triggers it commonly, it’s at the most random times. whether im in bed, whether im washing my face, whether im talking to someone or just walking its always different. i’ve had this for 8 months now and i haven’t been diagnosed but i have every single symptom you said in the video. these little episodes make me feel off balanced at times, affect my vision (i see microdots like tv static u said) and the violent swaying that comes like a bolt of lightning lasts for about 30 to 45 seconds and then it slows down and stops eventually but even after it stops, I just feel super off afterwards for a while. I always noticed I get this after I eat in restaurants and out at stores (not the episodes, but the feeling of just feeling disoriented and feeling like I’m gonna fall over) it’s so scary. And it’s so hard to explain to people. I fully convinced myself. It was a brain tumor for a little bit, but this sounds like exactly what I’m dealing with. it started in October and I had one episode, then the next month around the same time I had another one for the second time ever, then it was on and on like that once a month for a couple more months until it started happening more frequently around twice a month, to now once a week or once every couple days. it’s the weirdest thing ever.
It sure is weird! Do you have a diagnosis yet?
Thank you I have all of them except the twitches and breathing. But the worst one is the derealisation. I feel like I'm going through life watching a video of myself. There but not. I've had it since I was 15. Now I'm 50 and I've only just been diagnosed.
Bloody hell! But better later than never. Hopefully you can at least get some treatment and get better :)
Do you need room spinning vertigo for it to get diagnosed? I have all the symptoms and I do have dizziness every day but not like the room is spinning, more like I'm constantly swaying if it makes sense it's so hard to describe.
No - I didnt ever have room spinning vertigo! And yes it is hard to describe because it isnt room spinning vertigo (for me anyway, some folks get it).
Thank you ! Just wanted to ask you, did you have TMJ pain ? Or u feel like one of your side cheeks hurts ?
What is TMJ, Mohammed? I've not heard of that term? I get cheek/face twiching at times....
Do you feel self motion in bed when your eyes are closed?
Yes, I have felt that at times. Also that my head is being gently rocked.
How curious. I was diagnosed with vestibular migraine a few years ago and yet do not exhibit any of the symptoms you have described. This further reinforces my belief the diagnosis i was given was incorrect.
Hmm - could be - what symptoms did you have?
Do you Think that alcool 🍷 is responsable ? Do you drink alcool 🍸!?
I do - I honestly dont know. I aint quitting a few beers on a Friday though - life is too short to rid all your vices for VM!
The Blunt Yorkshireman thank you, check with my Orl, one of the best in France, he said that it can come back in winter, but now it's
Did you have tinnitus?
No, fortunately, I did not.
Yes to all of these!! Are you finding any meds to help? I can’t get a dr to diagnosis VM because my symptoms are 24/7. 🙄
Hi L. Yes, they have helped. Does the Dr understand that VM is 24/7, particularly in the first few months?!?!
Matthew Cheetham all my doctors have said VM is episodic- I even went to the Mayo Clinic. It’s so frustrating. Mayo diagnosed me with PPPD
@@lyndseymilligan1612 Hmm but we know it's not necessarily episodic - or rather episodes last a bloody long time!
I have mine 24/7 to
Mine are also 24/7
I get all of this. Bit I also get some violent spins lasting a minute or so. Anyone else. Also head turned to left or looking down. Example trying to look in a filing cabinet? Main issue lights though, movement and loud noise.
Yeah, the top ten will vary for different folks. For example some people get tinnitus whereas I didnt. I hope some people on here get back to you on the spins!
Bro I never thought I’d find somebody who deals with the same struggles I do. I’ve always had migraines but they would only happen early morning upon waking. And this last year or 2 has been so bad it’s happening all day most days
Well you found me and many others! You’re not alone 😊
I’ve visited my physician he diagnosed me with migraine but was puzzled when I informed him about the
Eye floaters, puking, sharp piercing pain on both or one of my eyes.
The worse experience was one with the vertigo, it lasted for the whole night.
I’m wondering what are the triggers, and what are some home remedies that could curb it!
God bless !
Hii Iam aslo suffering from VM . I have muscles twitching and face teachings too much how many days resolve my problem Please let me known..
Hi Sandeep. Yes, the face twitching is really weird isnt it. It's hard to put an exact time on recovery, it can vary depending on diagnosis, treatment etc. I was quite chronically poorly for about four months in total before things started to improve.
I have every single one of these. Only recently did I hear of VM and I’m going to see my doctor Monday. Everything makes so much sense now.
How did you get on, Emma? Sorry I missed your message last year.
Thank you so much for this! I have exactly the same symptoms like literally!!
No worries at all, mate.
Wow!! I’m so sorry anyone else has to deal with these. They are so so hard
It's crap, isnt it!
Nausea and gut problems too.
Yep - defo one that would be in that list now.
Great video, wonder if anyone else experiences numbness and tingling in arms and hands ever? I can get this once in a while as well.
Thanks! They may well do! There are a job lot of symptoms with this bastard condition, right?!
Yes, I've had the tingling sensation in my left arm and hand occasionally when I have a VM attack.
@@joshuacochran9236 how have you been ?
I have the tingling in both hands and feet constantly
Yes! My right foot goes fuzzy/numb - this can be one of my first symptoms of an attack.
This describes all my symptoms the anxiety when an attack comes on is the worst. I feel like my neck gets really stiff too. I get a lot of muscle twitches and breathlessness too and the de-realisation is next level in shopping centres. I also get chest pains sometimes. My head also feels like it's going to explode and I get the tingles down my head and my arm. It took me 9 months to get diagnosed its been horrible.
Thank you for this, exactly how I feel every day! I've had migraine since my childhood, with a lot of VM symptoms over the last few years as well, vertigo made its entrance into my life 3 months ago and it changed everything.
Ah I am sorry to hear that, J. Yeah I am going to do a video soon on how people with regular migraine are prone to VM too. I hope you are getting some treatment?
U had normal migrine in past
No. My Dad has them and my twin used to get them (normal migraines). It clearly runs in the family.
Hi again, Great vid btw. Just a quick question. You mention Visual Snow- is this a symptom you experience intermittently or all the time? I ask because I have VS all the time and all the symptoms of Visual Snow Syndrome, they seem to interweave with my migraine symptoms. Prior to developing chronic VM I would experience the snow here and there. I am awaiting follow up with another Neurologist and I guess the only way I'll truly know what is what, is following testing and finding the right migraine treatment for me...see if the snow sticks around or not.
No, i dont have it all the time - actually, I seem to notice it in whiter rooms?
@@thebluntyorkshireman5161 You're very fortunate in that respect then, most (not all) VS sufferers have it 24/7 along with other visual weirdness! Must be part of your migraine pattern as opposed to having VSS and migraine. Yes, whiter rooms is pretty usual for VS, mine is worse in against white backgrounds or low level light
@@griggleyrock666 Hmm - that sounds like being lucky to avoid being shot but getting radiation poisoning instead....There is no luck with this condition ;o)
The Blunt Yorkshireman Yeh, you’re right! Point taken and apologies 🤦♀️
@@griggleyrock666 Haha - I was teasing you, so no need for apologies x
Hey i have a question i have vestibular migraine and im almost 100% recovered but one thing that keeps bugging me is when ever im reading on a computer or phone the letters start swaying left to right does that happen to you too im hopeless about it because no one knows what im talking about, and its been hard for me to read.
Hello. So, in certain lights or a certain colour combos on screens I can feel a bit funny, and make it hard to read. I only get it in flashes though. I suspect that will go away for you. What is it like if you try reading with sunglasses on?
@@thebluntyorkshireman5161 the sunglasses dont help me for screens only outside when in stores but i notice that i can read way better on a computer screen with darker backgrounds than white backgrounds.
How is your vision looking from side to side? Is it blurry still? How long did it take to leave? Thank you.
It wasnt so much blurry - just off - due to derealisation. Yes, it's mostly OK now, bar odd flare ups. It was bad for about six months x
How did you get relief it's so bad with me makes day to day tasks almost impossible.
See my other reply.
Hi I have been suffering from VM for about 2 years now I only got a diagnosis a couple of months ago.
I have most of the symptoms you describe, has it affected your sleep pattern?
I used to work 12h shifts, nights, weekends the works and I could sleep for 10 hours straight.
Now I struggle to get 3 hours before I wake up no matter how tired I am and the times are oddly regular sometimes I can roll over and go back to sleep other times my brain won't shut down.
The worst symptom has always been light sensitivity for me. When I am suffering trying to read my computer screen is really hard I just cant focus on text.
Yeah I hear you and sympathize when it comes to the light sensitivity. That was one of my major shitty symptoms. My sleep was messed up yeah - I'd get about two hours a night at my worst. Are you having any treatment?
@@thebluntyorkshireman5161 Hi, thanks for replying. Yes I am taking Nortriptyline(20mg a night). I have a follow-up appointment with a Neurologist in a couple of weeks.
I find my symptoms are very up and down. I will steadily improve for two weeks then it seems to flip and I will get steadily worse until I at some random point a week or so later I start to improve again.
To be fair I think my symptoms are a lot milder than some people that are really suffering it just grinds you down with these cycles.
@@nervousfrog101 Yeah, it sounds like you are on the road to recovery. You just need to stop it from creeping back in - hopefully meds will do that, mixed with a few tweaks to lifestyle etc.
Great video! Are you still suffering? What medications, doctors etc. helped you recover :(((((
Thanks! No I am all better. and you will be too. Have a look at my other videos - sertraline and propranalol are the meds that worked for me x
@@thebluntyorkshireman5161how much is take you to recover since you start to take this medication?
Can you claim any benefits for this in UK?
No, I dont think it is a recognised disabilty given a lot of doctors havent even heard of it....
Hello Matt. This question is for you and anyone else who is going through this. With all the symptoms that goes with this illness does anyone have trouble eating? The dizziness/ head pressure makes it really hard for me.
I'm not sure you quite finished your question there - but in terms of eating- no issues. I do occasionally get the sensation I can't swallow. That is probably the central nervous system (which I believe is the real issue with VM).
Thank you for the reply. I just meant sitting down and trying to eat is really challenging for me with this dizziness feeling. I have had trouble swallowing too. Coming up on six months with this and still haven't gotten a diagnosis. It's been hell :(
@@davids1106 Ah right - I am with you. Hmm - you defo need a diagnosing as that then begins the treatment. Are you in the US?
Yes, I am in the US. I did find a specialist a couple hours away and have a consultation soon so hopefully I will find something out
@@davids1106 Excellent - a diagnosis is a really important step.
What about vomiting
No, I never got that....
Thank you
You are welcome.
Does have nerve pain in hands
No, I didnt get that. I got a facial twitch which was obviously a nerve misbehaving....
You had shoot pain in arms or fingers
@@sinuchocho9519 Nope.
Hii good evening... Facial twitching and muscle twitching problem, is it Leads to hemifacial plasam , brain stroke or big problems? Please let me know..
Hello Sandeep. I have had facial twitching as part of VM. I suspect it's not the VM as such doing it, but more the disturbance of the central nervous system. I can't give you medical advice on strokes as I am not a doctor, but I have never heard of VM causing one.
I have the all the symptoms that u have described.At first i went to a cardiologist he done an echo,ecg,blood test all the stuff and all were normal,he said there is nothing wrong with my heart..Later I went to a neurologist he said everything is fine,then i went to an ent specialist she said this a kind of migraine and prescribed propanolol and flunarizine ...I got better but not much because the anxiety was skyhigh every now and then.Then i went to a psycatrist,she gave some ssri meditations which helped me to a certain extend which reduced my anxiety drastically.I started going gym,playing etc then again it got worse..now Iam suffering again I recently changed the medication to amitriptyline and propanolol but side effects are there.Now Iam going to the next doctor.🥲
Sorry you are suffering, mate. Yeah, my advice is that if you hit upon some meds that work, stick with them. :)
Hari ..I'm a malayalee too .I'm experiencing the same . Is there anyway i can contact you ??
I was diagnosed vestibular migraine and prescribed sibelium 5 mg and betavert 8 mg ..initially it worked a bit but after a while the side effects started to creep in and my ENT suggested to go off meds .
@@arjunramesh9631 I’m on instagram @cordeliassmile