An Overview of Vestibular Migraine
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- Опубликовано: 21 янв 2020
- Vestibular migraine remains highly under-recognized and under-diagnosed. Dr. Beh is the founding Director of UT Southwestern Medical Center's Vestibular Neurology and Neuro-Visual Disorders Clinic.
Definitely fits my description of dizziness,brain fog, nausea, while turning my head. Was diagnosed w occular migraine and neuro put me on migraine meds that did not work. I have clear "swirls" in my vision about 20x per day, everyday in only rt eye for four+ years. These swirls are painless, but are different than a classic migraine aura. Used to have headaches as a kid, but do not have the headache pain now. Very frustrating. Thanks, doc
Thank you so much for this video! I recently purchased your new book and am looking forward to reading it as soon as it comes in the mail. I have suffered from vestibular migraine for 19 years. Because I don't get the terrible migraine headaches, it took 10 of those 19 years before anyone knew what was wrong with me. I had constant, non-stop vertigo or feelings of motion for the past two and a half years. I am a little better now but lately, my stress level has triggered a rise in symptoms. It is a bit of a comfort to me to be able to listen to talks like yours. I feel better the more educated I am about my condition. Thanks again!
Wow. Been seeing specialists for 7 years for migraines/cluster headaches - this is the first time I've heard of a connection between migraine and vertigo...
Nice description !
im 22 years old and vestibular migraines have robbed me of my life for the past two years. i just want my life and normality back :(
How do you feel omg I think I have this everyday
@@emmababakhanova7212 ive started a medicine called Verapamil. The first week and a bit i felt awful and worse.. today i feel a bit better. so fingers crossed it helps me. hope youre doing okay :)
@@chiaray6050 hey I'm in a similar situation. How did you get on?
@@James-ip8xs verapamil ended up making me worse 😂😭 so I’m about to start a new med. there needs to be a cure for this mess 😖
@@chiaray6050 sorry to hear that. Have you bought Dr.Beh's book? I literally just bought it and it's been so useful. Also this link: thedizzycook.com/
I'm a lot newer to this Vestibular migraine stuff but there's so many ways it can be treated you just have to have faith in yourself. I'm avoiding medications for now as I've already tried two and it went badly. But supplements are a big help already (especially magnesium for sleep). Do you live in the UK? Contact the national migraine centre ASAP they're suppose to be amazing, I'm due an appointment with a migraine specialist in a few months. Otherwise you may have a similar organisation in your own country!
I literally screamed with joy when I watched your video! I spent nearly two years in a horrible cycle of complex migraines which resulted in pretty significant blood pressure spikes, and subsequent lacunar infarcts. I have had incidents that could not be diagnosed, and I blew them off as the side effects of the infarcts. No! You described them to a tee! Thank you so much. I have kept them to myself, fearful that I may have another TIA. I have so much peace because of your video.
Launar Infarcts! Good name for my new thrash metal band✌🏿
I have had all my life aura migraine with a mild headache, as well as a very bad case of motion sickness, but 8 years ago I began to have attacks of vestibular migraine (disorientation, dizziness, vertigo, nausea, violent vomiting and after that a full-blown headache - and all the time I have to be completely motionless and my eyes closed to try to ward off the horrible vertigo and nausea). Some triggers: bad sleep, stress, motion sickness. But all my attacks have come after looking at the screen of a laptop or a phone. My neurologist found me one medicine which I can take immediately and it works: hydroxyzine in a liquid form.
You might want to look at GERD and Eustachian Tube Dysfunction connection which can kick off vertigo and migraines due to gastric juices causing inflammation in the Eustachian tube. Just putting that out there to consider. It is one issue I discovered is either over looked or ignored by ENT’s as a possibility…but it is very real. I just wish you doctors could find a true cure to this vestibular migraine issue overall instead of just tossing pills, promises and endless diets and other things that just don’t work. This condition is literally life altering in the worst way. It has messed up my life and lead me to experience unimaginable depression, frustration and thoughts of just wanting to give up. Being dizzy, feeling like I am going to puke at any moment due to sudden unexpected vertigo attacks and being in pain due to constant migraines is not my idea of living. I once had a life. A good life. I want it back. 😢💔
What would one do for this?
Whet do you do for this I have GERD TO
@@thankyouforsmoking157 In my personal experience with GERD, I have used Manuka Honey 15+ UMF (organic) and a probiotic called VSL #3 ( make sure to order it directly from the company because they know how to package it to keep the good bacteria cold which is very important), along with extra virgin coconut oil and black walnuts. But always check with a doctor and/or research things before doing stuff. GERD is typically caused by a bacteria we all carry called H. Pylori. For most people, H. Pylori stays in check. But for others, it gets out of control sometimes and can cause a lot of issues like GERD and even bleeding ulcers if left untreated. This bacteria really thrives in a low acid environment. One way to find out if your GERD is being caused by low acid and not high acid production is to drink a glass of water with just enough sea salt in it to make it a little bit salty. If you feel better after, even hungry, chances are you actually are low acid producing… which, in my case meant that the H. pylori was in full swing and having a heyday on my stomach. There are antibiotics that can kill H. Pylori if you test positive for an overgrowth. A G.I. doctor can order the test. I had to literally beg for the test. It was ridiculous. I decided to treat it naturally once I tested positive because the antibiotics were too rough for my stomach to handle. It takes a little time, but eventually a healthy bacterial balance will be restored to your stomach. And as long as you maintain a healthy diet, including a good probiotic like Manuka honey or VSL #3 and do not allow the H. pylori to get out of control, then the GERD issues should not be as frequent. I hope that helps. And I hope that you find answers for your GERD issue and get it fixed. 🙏🏻
@@TheLifeTidy Please see my reply to @thankyouforsmoking2797 . I hope it helps and I hope your GERD issues get resolved. 🙏🏻
The cure for me: read the gospels. Pray to the Holy Spirit to lead me to a specific solution. Cawthorn cooksley exercises. During a Vertigo attack stare gently at a fixed point (on the wall for example a door handle). Cut out screen time and bright lights. Focus on anxiety reduction and stress reduction. This condition destroyed me for years before I did these things...now I’m 90% betters. God helps the hopeless...if you ask.
So true anxiety stressing and worrying makes it worse listening to good Christian praise and worship music lying quietly helps too.
Praise music is bullshit
Hello Dr. Beh. Great video! Can you describe effective medications and how effective they are statistically?
Crazy stuff! Severe headaches for almost 3 years, AIW symptoms, vertigo and supermarket syndrome, bvd and more. On my third neurologist 😢 I think we’re onto something. I have an arachnoid cyst in my cavernous sinus and mekels cave that they say may be causing my headaches 😮 what a long journey!
Do VM patients always get more dizziness with head movements or not necessarily?
I was diagnosed with vestibular migraine 3 years ago , but I feel that I have meniere disease because I have in my left ear and I lost like 60% of my hearing
Thanks for doing this presentation. I've had chronic vestibular migraine for 7 years. In the past 3 years I've also developed chronic pain migraine as well.
Is there another part to this video as it seemed cut off?
I thought VM was episodic attacks and couldnt be chronic...? Im so confused with all these vestibular disorders (im diagnosed with pppd)
Guys I have dizziness without (ear tintus or hearing issues or headache at all ) for more than 1 year. Sometimes getting with dizziness light sensitivity, can vestibular migraine without headache at all?
So whats the difference between VM and PPPD then? They sound like one in the same.
What medications do you find are most effective in treating vestibular migraine?
Can the ear pain associated with one of these last for 4 solid months with no relief, despite ibuprofen, acetaminophen, butabitol, Norco, and IV migraine treatment? Because that's what my doctor is trying to tell me is possible and I call BS.
Was told I had Ménière’s, but new ent says vestibular migraines. But I do have hearing loss.
Have had all these symptoms not to mention all the anxiety!
This disease stinks!! Chronic, I never feel normal!! We need help and solutions, have tried so much!! Any suggestions??
Deanna R. Thank you! I will try for sure!!
@@deannar.7670 Thankyou Deanna this gives hope
I've been battling this since 2004.
@@jerryseinfeld5713 yes. The only cure for me is time and sleep. Usually lasts for days.
Dr Beh what are my chances of seeing you? I'm so desperate.. I live in the Dallas area. I've heard there's a waiting list.. I've been watching your videos and some people in my groups have recommended you..😇 thank you for being so compassionate..
@@MsGraciemacie wait really? I thought he did a lot of that testing.
I hope you’ve been able to meet him. He has changed my life….as he is the ONLY Dr. that has truly listened and agreed that my nightmare of a life isn’t “anxiety/panic attacks”.
@@ashleythompson8559may i ask what has helped u?
Can internal tremor (feeling as if you are vibrating inside) be a symptom of VM? Seen a couple of other videos list this as a symptom.
I get the tremors
@@mandyrose5822 Same here, I have vestibular migraine and right ear vibrates all the time at varying intensities from annoying to debilitating
@@mandyrose5822 when you say tremors do you shake like your body shakes kind of like you’re having a seizure ?
I had innertrmore first time so I tried to check glucose level was normal, n
Bp normal! Only 3-5days when I awake in AM only so is it migraine?
I have history of migraines ha , migraine has any stages? Inner tremors is getting worse ?
My vertigo (the feeling of motion when there is none) changes, as in 'it starts' and 'it stops" (if it is going to do either) after sleeping. It's not positional b/c the same is true if I'm sleeping sitting up...Is that a clue? I think it is, and that it points to MdDS vs some of the other diagnoses that have similar symptoms. My symptoms for over 2 years now, are hearing a roaring noise, feeling motion (specifically that the floor is vibrating OR that I'm in a rocking boat) and feeling off balance. I have high pitched tinnitus in my right ear..the roaring noise I hear seems to be coming from both ears. The roaring noise sounds like an engine idling just outside the house. The initial diagnosis was tinnitus...the doc who thought that now thinks it is a vestibular disorder. And the new ENT I'm seeing does too...to date I've had a VNG, a cVEMP, a test for a fistula, an MRI of the head and will have next week a CT scan of the head. I have no nystagmus...the ENT has mentioned the oval window or the round window being kept open due to inflammation in the inner ear, among other things. I have no headaches, but I do have prior history of migraines, started when I was 31 and lasted for almost 10 years and was accompanied by extreme fatigue..I was told it couldn't be migraines b/c I had no aura..I have since been told differently; this was followed by IBS (possible abdominal migraines?) followed by BPPV for almost 20 years, which went away in 2015....My current symptoms began in late Feb. 2020 after I got a virus ( possibly covid but not considered at the time b/c the symptoms were suggestive of the flu). In 2020 I lost my appetite and lost 20 pounds w/o trying, and in 2021/2022 I have had intermittent fevers, and my old normal body temp which was 98.6 is now 97.2, for these past couple of years, and I , in the last year or so, often have body temps of 96.6..I feel cold often but sometimes I feel like I'm burning up inside...generally I feel great except for the vertigo/balance/roaring issue, which I have most days but not every day. The severity of the vertigo/balance is relative to the loudness of the roar. AND if it goes or if it returns, it is always after I sleep. I thought it might be positional, but this holds true if I fall asleep sitting up. When I am having symptoms, they are non-existent with passive motion (riding in the car). I am 'normal' when I'm riding and can drive just fine. The vibrations are driving me crazy and I am looking for answers. Might you have any thoughts/insight? FYI I am now 72. btw: I listened to Dr. Teixido early on, one of his podcasts on youtube, which pointed me to thinking I have vestibular migraines, when the docs were dismissing me telling me I had tinnitus. also, I did have breast cancer in 1991, 30 years ago and have no symptoms of recurrence. I'm most inclined to think I have MdDS b/c the diagnostic criteria exclusions that would dismiss Meniers, and PPPD.
How are you doing now? I am dealing with something similar and believe it is mdds as well...
@@amandar614 Better than I was one year ago.. I was finally diagnosed with vestibular migraine after my doctor, an ent, ruled out other serious issues via an MRI of my brain and a CT scan of my inner ear. I was referred to a neurologist and put on some preventive meds which have helped. I still have chronic vestibular migraine but the intensity of my symptoms is down by half or more making them much more bearable. I still think MdDS could be in play as well b/c I've read that there can be some cross-over.... But of note, people with VM do experience rocking motions which is a form of vertigo.
How are you now? I have same problems and symptoms
@@aashimataneja8215 I'm much better than I was. I'm into my 4th year (symptoms began in 2020) and after finally getting a diagnosis, trying some different meds prescribed by a neurologist I've improved greatly. I'm on an SSRI (sertraline) 7and it really helps with the vertigo. I have more good days which I track each day be assigning a number from 0 to 10 with 10 as the worst and 0 as the best...my days now are generally 4 or less vs prior having more 7s, 8s, 9s, and 10's with on average eight zero days per month...I don't have as many zeroes now but I have a lot of 1's, 2's and 3's so overall it is better.
Can a rear ended car accident with concussion all around the head area trigger or cause migraines with vestibular factors.
Yes. Been dealing with it for 12+ years now. 😢
ive had 4 neurologist and they all don't want to diagnose me with vestibular migraine..
at one point when I finally got put out of work I was constantly dizzy for 3 months 24 hours a day and now almost 2 years later im waiting to get disability from this crap.
I been dealing with it for 20 years but as I got older it messes with me more,
I wish your my doctor......
Do you feel nauseous as well
Emma Babakhanova sometimes I do
Do you take any type of medication or supplements
@@taykyl001 yes I’m on medication
@@taykyl001 and I just got awarded my disability finally
Did anybody smells smoke?
I have finally controlled my vestibular migraines after 4 years of searching. Come to find out most of us dealing with vestibular migraines, cluster headaches and vertigo are low on Vitamin D3-K2 as well as magnesium and CoQ10, Omega3. In the first 2 weeks I megadosed taking 50,000IU of Vitamin D3-K2
600mg of magnesium glycinate
300mg of Ubiquinol (coQ10)
2,000MG of Omega3
After 2 weeks I reduced my Vitamin D3-K2 to only 10,000 IU daily for maintenance. Look it up on you tube there are several doctor's talking about the dosage and see if it will work for you as it has for me. Im about 90% better and im so greatful, Sending healing vibes 💓 🙏🏽 to everyone I hope you find relief.
Hi. Do you have any of the links to videos of the doctors talking about Vitamin D3-K2 for vestibular migraine? I can't seem to find them. Thanks!
#DrObahistoricalherbs....
I just took 400 mg of ibuprofen for a headache above my eye and my feeling of being on a boat is almost completely diminished. I've had this for a year and it is hell. Doctors don't know how to help me and I sure can't take ibuprofen every day.
@@8QQ8 It pretty much subsides when I lay down. I will feel it sometimes, but almost strictly when I stand and move around
Megan Henry , lucky you. I feel like im floating/rocking/or if im on a boat even when i’m laying down....
@@8QQ8I feel for you. I understand what hell it is. Do you have a diagnosis? Doctors are baffled by me. Lol. Can't be that hard.
@Megan Henry , tell me about it lol.. most of them didn’t know and just said its stress related. Then i googled my symptoms and found that vestibular migraine can cause shit like this, so i went to an other neurologist and she said yes it could be Vestibular Migraine so ive got Amitriptyline which worked for many , but haven’t tried it yet , coz im afraid so much of that pill (its an antidepressant) and i had this dizziness in the past(not this intense tho) and always went away on its own. Last time I had it for 6months . Eventhough it was never this hardcore...
@@8QQ8 Hi Misha. I'm in your same boat unfortunately. Amitriptyline is next on my medications to try. Currently on sertraline as I've heard that can help too. Only two weeks now
My son had the water tests to diagnose his vestibular condition, unfortunately it created a pulsing in his head and 8 months later it hasn't gone and it's driving him mad alongside the vestibular migraine and neuritis which has got much much much worse since his complete idiot doctor told him to come totally off his meds in a week...... now my son is a thousand times more ill and bed bound. This week the stupid doctor said he can't help and doesn't know what to do
I’m sorry to hear that. I have vestibular migraines and am also bedridden for the most part. Does your son get extreme sensitivity to motion? Like getting easily nauseated?
I've had one over a month
How are you doing now
$595 for a consult. 😢😢😢
The Steafy Coach has a great interview with Dr Howard Schubiner called “chronic dizziness is a treatable and curable mind/body condition.” The Stead Voavh also has a free three-part course on overcoming chronic dizziness. I’m actually going to start that tomorrow. Watch the video. 👍
I had trouble watching this video as he is moving around way to much.
Yes, the head moving.