Shi Ma same! It made me so happy when she said she has psoriasis in her hair care video because I’ve struggled with it since I was little and no one ever talks about it.
Me too but unfortunately most of the people who are willing to speak about such things do it only for attention and not to educate. I'm so happy Susan took the latter approach.
I likely had undiagnosed Hashimoto's for years. For about 5 years I was feeling so awful, fatigued constantly, and so many other symptoms. I went to a few doctors in the beginning until one doctor literally yelled at me that there was nothing wrong with me. I was so affected that I never brought it up with another doctor, until 2 years ago when my throat swelled up. My wonderful current doctor made me get an ultrasound. I had developed thyroid cancer. Moral of the story. Find a doctor who will listen and take you seriously.
I hope you at the very least reported the doctor who yelled at you. Edit: I also wish you well! I have a thyroid issue currently and am waiting on appointments still. I've had so many bad doctors. My mom has too, now she has stage 4 colon cancer after surgery and treatment for stage 2 colon cancer because of a multitude of doctors not treating her properly and not testing her properly.
Why am I not surprised this story comes from a woman. Medical gender bias is the worst. Also women with issues like endometriosis can sing a song of that
It's hard though, finding a good doctor. After gaining almost 20 kg (44 lb) in 3 months with no major life changes, i decided to seek help. This was 4 years ago, and i went to 5 different specialists and no one cared enough to give me a diagnosis. Most of them made me feel bad for complaining and told me to loss the weight. I felt so defeated. I have many other symptoms, but for them, they weren't important. At the end, I gave up. I've just learnt to live with my symptoms and my chronic pain. UPDATED: One doctor even try to give me Diazepam (i was 23 then) because as he put it ''i was probably dealing with anxiety and snacking all the time''.
@@k.t202 Thank you for asking! No idea, the only thing that was abnormal on my blood tests (but apparently not troubling enough to do more tests on me) was that i had high Prolactin (the hormone that enables us to produce milk when lactating). I have no children and to this day no doctor has given me an explanation for it. In a period of 3 months i gained 44 lb and doctors just said it was probably because i was living in NY and was stressed out (which they assumed when i told them i was doing my thesis at that time). But whenever i asked for the cause, they had no explanation. They treated the weight gain as the disease instead of the symptom. They just thought i was lying when i told them about my diet and exercise. It was very frustrating. It's been 4 years, I'm an active person and i have a very good diet (i live in Spain) and i still can't get rid of the weight. Everything that worked for me to loose weight in the past, doesn't work anymore. And honestly, i don't even care about the number on the scale, i care that i can't control it and that it is probably a sign that something else isn't right.
Diagnosis when you are a young person in your 20s is such a joke to doctors. They always tell you "oh you're fine, you have time, you're too young", it's such a slap in the face. I'm glad you are feeling better now Susan! Thanks for sharing 💗
Yep. Diagnosed in my 20s but I was suffering so bad with bad digestion, hair loss and bad brain fog. They kept blowing me off until one old and old school Dr. - the kind that actually touches you to do a proper physical, noticed my swollen thyroid and ordered the right bloodwork.
Noor Chamberlain that’s soo true I’m 24 and I went to the doctors and voiced that I didn’t feel right and that I had gained weight unexpected and couldn’t lose it and they basically told me that i didn’t feel right because I was fat and then I pushed for labs and after a month I found out that my thyroid levels 10.30 and then they finally listened 🙄🙄🙄
So true! At 26, I went to the doctor because I had severe stomach pain after I ate anything. I had insane cramps and nausea after taking a bite of cucumber. I was rapidly losing weight when I was already thin and had sunken in eyes and gray skin. They kept telling me to just eat toast for a week and I would be fine because I’m young. I finally pushed for an upper endoscopy and they found the entirety of my stomach and esophagus was severely inflamed and I had IBD.
Took me from the age of 16-23 to get a proper diagnosis. I have a benign tumour on my pituitary gland that caused my reproductive health to be totally whack and also have thyroid issues due to the tumour as well.. 7 years of complaining about my period later and a university doctor almost knew immediately based on previous labs and physical exam that I had a tumour and sent me for an MRI. Crazy. It’s frustrating that the younger generations are rarely taken seriously with health concerns, it’s always relayed back to anxiety
Hi Everyone! Just a note, we shot this video way before self-quarantine and Covid-19 were in the news. I posted it because what happens internally can affect how we look externally. I’m healthy and happy, and this does not make me more at risk with this current pandemic. I’m safe at home and I hope you are too. Also, my current doctor is Dr. Nancy Evans at Holtorf Medical. She gets a big thumbs up from me!
Susan Yara just glad you’re able to share this with us and that you didn’t let this affect you long term and you chose to be healthy and embrace it! Thank you for sharing!!! You’re fantastic! Sending love and good vibes to you and your family 🤍😘
I'm glad you spoke about this. I have hypothyroidism and type 2 diabities. Unfortunately, contrary to popular belief, for me both are hereditary for me. Literally, no two days are similar. I'm at a very high risk especially for the current environment ☹️☹️.
I have Hashimoto's as well and I can soooooo relate to everything you have said. I wish doctors would listen to us and poopoo us. Stay safe through all this craziness.
Susan Yara they said that to me for many years also, you are high from the media but not very high to be on a medicine until a few years later I change my obgyn and she find out my levels were super off so I was diagnosed with hypothyroidism so... a few years after I sill feel sick and I cannot control the weight gain and many many other things
I never noticed any of that, but rather your beautiful hair and skin. Some people are just plain RUDE. You are so pretty, and your videos are so helpful.
For everyone struggling with Hashimoto's, please ask your current practitioner about Selenium supplementation. There are a lot of studies backing the benefits of selenium in Hashimoto's disease!! Take care everyone
So true! It is so important that your thyroid gets enogh iron, zinc, iod -for example from a kelp supplement and selen. Otherwise the thyroid is not able to do a proper work
Have Hasimotos, iron deficiency anemia, and PCOS. The hard part is that all doctors have their own knowledge of the topics and some just don't know enough.
@@paintbynumber9493 anaemia is an after effect on the iron deficiencies. So when your thyroid does not process any kind of vitamins or supplement it can lead to it
Wow I have all three too, I’m taking metformin 500mg a day and supposed to go up to 1000mg but I can’t manage more than 500 😔I’m also TTC & I’m on levothyroxine for my thyroid 25mg dailt
I learned too late in life that if a doctor doesn't want to listen to you, ask them to document in your chart that they are refusing to treat. They will change their tune pretty quickly or you should find another doctor.
I’m so thankful for this video. My two year anniversary of feeling sick daily is coming up this month. I went to the doctor and was told I was peri menopausal at the age of 37 and there was nothing I could do about being lethargic, having hot flashes and hair loss and thinning along with many other symptoms. I started researching how to fix my symptoms and spent $1,000’s on supplements and skincare products. I started following skincare pages on RUclips in desperation of how to correct my dehydrated skin and that’s actually how I started to follow you. Then I saw this video and it all made sense. My doctors never tested me for anything other than TSH. After seeing this video I immediately requested a full thyroid lab panel and sure enough I have Hashimoto’s. Thankful doesn’t remotely describe how I feel about putting a name to this condition but it’s the best I’ve got so thank you! This video was literally life changing for me.
I was diagnosed with Hashimoto’s when I was sixteen years old and I wanted to thank you for making this video. I also struggled with obtaining an accurate diagnosis and wanted to thank you again so much for spreading awareness for hypothyroidism and indirectly, for all autoimmune diseases. My hope is that spreading knowledge about these diseases will make diagnoses more efficient and accessible in the future. I’m also happy to hear you’re doing better with your treatment!
Cristina A I found out that I had Hashimotos because I was diagnosed with Vitiligo by my dermatologist and they suggested that I get my thyroid checked out.
I have hashimotos as well! Thanks for sharing your journey with it 💜 I struggled for years with extreme chronic fatigue in high school to the point where I had to be home schooled, depression, and my hair started falling out! I told my doctor all of these things and she never tested my thyroid and told my parents it was a behavioral issue. Finally in college I told my psychiatrist all of this and she sent me for blood tests and my TSH was critically low, the lowest she had ever seen! So ever since then I’ve always researched my doctors before seeing them and I strongly advocate for my own health and body! 💜
I have Hashimoto's as well. I wasn't diagnosed until I was 20, despite my mom and I begging doctors to test for it since I started showing symptoms in my teens *and* my mother having the disorder as well. I finally found a doc who was willing to fully test me and he confirmed my suspicion that I'd probably had it for years. But even my situation could've been worse - it took my mom almost 20 years to get a diagnosis for the same reason. Doctors kept saying she was "too young" to have thyroid problems when symptoms presented in her early twenties. It's frustrating to hear and read about how so many of us experience this issue with doctors. Youth doesn't automatically equal a lack of health issues.
I have hashimoto's as well! Thank you so much for sharing this! Got diagnosed with it my junior year in college.. energy wise I felt like I was dying. I was sleeping enough and eating really well, yet I could barely do anything without feeling like I was going to fall asleep. Also lost sooo much hair, and everything about my body became dry. And all of this came to a head during finals week, yay! Terrible to go through, but thankful I have answers now and medication to help me
Hi! could you share what your routine is now as of supplements, medications etc? :) I'm really trying to figure out how to keep my hair :/ I have breakage, thinning and my hair is getting brittle. Thank you so much!
@@victoriarose7625 ofc! so if im being honest the main thing was just getting on the medication and letting it work its course. My endocrinologist also said that my blood work showed I was low in vit D and B12 so I still supplement with those, but frequently check my blood to make sure that my body still needs to me take it! Also I take collagen peptides but I am not too sure if that has made a difference at all in my hair even though people say it will. I found that taking my medication at the exact same time & never missing, along with eating a well balanced diet helped my whole hair situation improve... I hope that helps
@@katrinalynn5093 Thank you so much for replying! Helps with my perspective on how to take this on. Really had no idea at first on how to go about treatment and after this video, your comment and reply, I feel a lot better. I wish there was more study on all of this, so many women.. people are not diagnosed with it and some (like myself) are just at the beginning of it. I hope you see more improvement in your hair and overall health! :) Take care
@@victoriarose7625 same to you! And if I am being honest, some days I struggle more than others. I find it helpful to just remind myself that this is an autoimmune disorder so I shouldn't be hard on myself. Just trust in the fact that each day I am trying to improve my health and that is something to be proud of... some people say don't consume gluten, and on that I also don't have an opinion, kind of varies from person to person what ignites the antibodies
@@victoriarose7625 Hey girl, I suffer from hashimotos hypothyroidism too. I was diagnosed 9 years ago during my final year of college. Over the course of these years I have found that eating diet with higher percentage of vegetables and fruits and seafood helped me feel the best.i also take an adaptogen herb called ashwagandha as a supplement. It helps to bring the body in to a balanced state. And my diet is grain free. I had tried a lot of different approaches to improve my thyroid health like the keto, vegan, and even paleo... what I'm currently on and working the most for me is a modified pescetarean paleo...I figured it by going on an elimination diet of trial and error..:)
I was diagnosed with hyperthyroidism at 18, got radio active iodine, I’m currently 31 and have now had hypothyroidism for years now. Wish people knew more about this sickness❤️
@@cocoreo89 I have hypothyroidism as well but I'm not on any medications because I guess my levels aren't too off so the Doctors say....I'm always tired never feel fully rested my weight has gone up tremendously from when I was in my 20's I haven't had it checked in awhile or had blood work done because of my career but I talked 2 my doctor on Wednesday and going 2 do everything 2 see where I stand totally thinking about getting it removed
Doesn't radioactive iodine basically destroy your thyroid? If you don't have one then you get automatically hypothyroidism (because without thyroid you can't produce t-hormones), and just have to take the thyroid hormone substitute
Susan, I've watched you for the last 6 months while learning how to care for my 38 yr old aging melasma mess of skin. Just today I got my diagnosis of hoshimos and never dreamed you would pop up while doing my research. Thank you for sharing your story.
I’ve always had eczema and it was only until my teenage years where it first was starting to be recognized as an autoimmune disease. I’ve gotten so many tests done and my allergies are crazy, my skin is drier than a desert and just flares up whenever. That’s why this channel has been so informative for me and watching this video makes me feel so much better that there’s so many people like you dealing with the uncertainty, people asking and constant ups and downs
I get the struggle of being turned away everywhere you go. You're saying you have a problem and these healthcare professionals can just declare that you don't without any testing or analytics? How is that fair? especially when you're paying them and as a woman, we're seen as dramatic but that doesn't mean we don't have an issue. It took dozens of doctors and specialists to find one that really wanted to look into my health and he was the one that ultimately put my PCOS to rest. I'm glad you shared.
This is so sad. I thought i was only one struggling with this problem in my country but seems like it's everywhere same... I have been battling with all doctors for years to find a solution. As far as i remember i always had all those symptoms and it was getting worse especially blackouts and hair loss. Only at yhe afe of 25 i got my diagnosis and medicine...
ikr like doctors(especially when they're older male), they tend to dismiss your symptoms if you're young women. It is really frustrating and it made me take so long to be diagnosed.
my mom, my grandma, and i all have hypothyroidism! my mom unfortunately didn’t find out until after she had two stillborn births. i’d truly recommend that everyone get their thyroid checked before trying for a baby, especially if you’re feeling any of the hypo symptoms. thanks for the vid, susan!
I have hashimotos so I’m super happy you made this! For me it’s effected my hair a ton. I had very straight silky red/blonde hair all my life until a couple years ago when I discovered I had hashimotos after my 2nd pregnancy. My hair became so wirey and course on the top of my head , as well as a lot of hair loss before I was on the right medication. As far as other ways aside from my appearance it affected me, extreme fatigue, weight loss, loss of appetite, anxiety and I developed fibromyalgia which I still with now. Every woman in my family on my mothers side has hashimotos unfortunately.
I got diagnosed with Hashimoto’s Thyroiditis and hypothyroidism about 3 years ago. Multiple doctors including my dentist who commented on my enlarged thyroid. I thought it was normal to sleep 12-14 hours at once. I’m still trying to figure out the right dosage to balance my thyroid hormones... I didn’t know gluten free diets could help!
The structure of gluten molecule is virtually identical to thyroid tissue so every time you consume it, it triggers an auto immune response. Same with dairy.
I also have Hashimoto’s/hypothyroidism so I understand this completely. It can be very frustrating but our bodies do have the innate capacity to heal itself. Anthony Williams (Medical Médium) talks greatly on the true case behind autoimmune diseases, his book is amazing (Thyroid Healing). Also, Dr Izabella Wentz, has a book called Hashimoto Protocol with good information. Sharing is caring for anyone who needs it :)
I too have Hashimoto’s...it took a very savvy neurologist to figure out that I had almost no vitamin D or B12 in my body. Countless trips to doctors... and now, I am starting the road to “recovery” aka maintenance care. Thank you so so much for sharing this; it made me cry happy tears to have someone talk about this on their platform.
I am someone who has Hashimoto’s disease. I was diagnosed when I was around 4 or 5 years old. I was sick for over a year before I was diagnosed. What cause them to diagnose me? I was in heart failure! So then they had to determine what caused that. Low and behold it was my thyroid and it was no longer working. I am 25 now and still trying to find balance with this disease and have now come to terms that I will always be on medication to keep me alive. It is amazing to me to hear stories about people that were much older than me still being passed up on the possibility of having thyroid problems because of age. I am glad that people who have been passed up are getting diagnosed before it gets to the part of heart failure and no working thyroid like me.
Same thing that happened to @ClaireAngel. Developed in her when she was 6, went undiagnosed until 12. Still suffering now at 27. Crazy how young you were. Glad they figured it out.
@Gen Thank you for the tip. Unfortunately I will never ever get my thyroid back, it is dead and will never work again due to being caught so late and it wasn't caused by an infection. But I am sure someone will read this comment and be able to use it. This is a disease that I will have for the rest of my life.
My mom has hashimoto's as well she went through the ringer, my poor mother would work out sometimes 3 times a day and only consumed 1000 kal a day and was still 200lbs, she would cry. When she finally got the right medicine she would lose weight so fast....its crazy how much your thyroid affects so many other things. She has hair loss and dry skin as well, before her thyroid basically died my mom was a healthy 140-150lbs with thick long curly hair...I was actually shocked when I saw photos of her when she was younger I had never seen her hair like that
I’m getting close to 300 pounds and I always thought I was going crazy when I would keep track of what I ate during the day and the calories would add up to 1,000-1,200 calories. Despite that I’m still gaining weight and I always hate telling doctors that I don’t overeat anymore because I assume they won’t believe me based on my weight. I had blood work done recently and it turns out my thyroid levels are higher than normal (hypothyroidism) and I’m honestly relieved. I’d rather not have it, but at least I know I’m not crazy and overeating even though I don’t think I am.
It's an awful disease. I was diagnosed in 2017 and have lost 70 percent of my hair. Doctors are not there to advocate for you - one has to be our own advocate. I know from experience. It's so unfortunate this disease can be easily diagnosed and many doctors fail to do so.
I was diagnosed with one of the worst cases of Hashimoto’s at a very young age. So rare the hospital I went to had no clue and had to document the first case they have ever seen based on me. I was 7 and started my first menstrual cycle. I don’t have a thyroid a working thyroid anymore, it’s basically dead. I did grow from age 5-7 I gained weight at a rapid pace. And it took about a year for me to balance it out after taking medication for it. I was thought to have cancer for a while but thankfully I didn’t, and I’m so thankful everything worked out in the end. Every year or so I have to get a higher dose of medication since I was so young being diagnosed with this. I also had a very low vitamin D which played a big part at the same time. For reference you want at least a level of 20-60 and mine was 9. At the end I realize how grateful I am it all worked out. I always like to feel that I’m not alone with medical struggles. Good luck with everyone I hope your 2022 goes amazing.
I know the feeling of wondering if you will ever find the answer. I was diagnosed with multiple sclerosis at 19 and at 23 I’ve finally found my treatment that has me feeling like me again!! Glad to hear you’ve got a treatment and life style that works in your best interest!
Hello Susan I also have both hashimotos and hypothyroidism. I love that you make these videos and talk about this. Listening to your story it’s similar to mine. I was recently diagnosed a little over a year ago and am just getting my levels back to where they need to be which means I am finally starting to feel better. I was and am still experiencing the same symptoms as you. I am anemic and have a deficiency in vitamin b12 and vitamin D. I am glad to see that I am not the only one going threw this and I love and watch all your videos. Knowing that you experience the same as me makes me like you even more. Thank you for talking about this. What did you do about your itchy scalp because I can not figure out why all of a sudden my scalp itches so badly.
You’re not joking when you said it took the course of a decade to get through your medical journey. I’m only just now finding myself on the path of investigating my thyroid as a possible cause of all my symptoms after 7 years of worsening struggles. From the sebum/dandruff on my scalp that’s now disrupting my quality of life, to severe dry eye and skin dryness, severe anemia during my last pregnancy, the same ice cravings that eventually caused one of my molars to crack on half, the weight fluctuation.. ugh! Here’s hoping for a speedy diagnosis after my most recent ultrasound of my thyroid. 🤞🏻
Wow. This is eerie because my experience is almost exactly the same. I mean, almost to a tee! I was very unwell and diagnosed with Hashimotos at 25 and followed the same journey with testing and finding the right doctor and compounds, etc. Thank you for sharing. I know how challenging it can be to have an illness that people don't really understand, and having to advocate for yourself to doctors who don't really seem to care or take it seriously (and then finding out the doctors who do are 💸💸). It's a struggle.
i have hypothyroidism and i was diagnosed when i was 19!! honestly a gf diet helped me so much i lost most of the weight that i gained bc of my thyroid!! love that you shared this :)
@@dino9607 look into the book called fiber fueled, i loosely follow that! the dr that wrote the book also has an ig: theguthealthmd where he shares a lot of useful information. although he does say that you should be able to have gluten if you don’t have celiac disease but it still doesn’t really work for me. i also run which helps too
I have hashimoto's as well! I was diagnosed at 17 years old. It was rough. I lost a lot of hair and gained a ton of weight. It's still a struggle if I dont have the right dosage of medication. Stress is also a huge contributing factor!
I was basically diagnosed by my OBGYN after a miscarriage after years and years and YEARS of symptoms and doctor after doctor. Never once was given a lab work script just told over and over that I was “probably depressed”. So glad you made this video of your experience!
You were not too young at all, I got diagnosed with Hashimoto at 16, but I had also previously been diagnosed with Lupus at 11. Im so grateful my mother was a doctor and didn't stop taking me to specialists even if they made fun of her for being a hypochondriac parent. I also want to be a mom one day, you inspire me Susan! In college, my psychology-mayor roommate thought she had depression thanks to her lethargic attitude and it turns out she actually had hypothiroidism! She thought she was in for at least a year long struggle with depression and turns out she was feeling great in less than two weeks thanks to well-dosed medication. This is why health insurance is so important, but even if you have to pay with your own money, your health is the best investment you can make.
I have an incurable bladder disease called Interstitial Cystitis as well as endometriosis, anemia and gastroperesis. While I certainly believe medical doctors are essential, I also think that finding a good naturopath can be very helpful! I wasn’t getting anywhere with my regular doctor so I found a naturopath who did a live blood analysis. You can literally see your blood right there on the screen. It was thanks to her I found out I had severe anemia and needed an iron infusion immediately. Unfortunately there are many scammers out there but it’s worth looking for someone you trust. My life used to be miserable. I still have bad days but now I know how to care for the illnesses I have and it makes a world of difference! Also if you don’t feel right, never let anyone tell you differently. You know your body the best. Be strong in your ability to stand up to your doctors. I was only 16 when I got diagnosed with my first illness and when you’re that young it can be even harder. But don’t give up! ❤️
This spoke to me on so many levels I have an autoimmune disease and thyroid problems too. The struggle is real. I appreciate you sharing such a personal part of your life. Thank you!
Traditional endocrinologists put a lot of stock in the labs so your thyroid literally has to shut down to get a hypothyroid diagnosis. Having had both hyperthyroidism and hypothyroidism in the past decade and all the physical and emotional challenges you described that come along with it, I am thrilled you shared your experience. Thanks.
I was diagnosed with Hashimoto's disease around age 26 and hypothyroidism at age 27 (a few months later) and I'm 30 now. I kept going to my doctor saying I was really, really tired all the time but my anemia wasn't the issue and he just had a hunch that it was something to do with my thyroid so he kept checking it regularly about every 3-4 months up until it came back that I had Hashimoto's and then a few months later it had gotten bad enough to give me hypothyroidism. I had to get an ultrasound on my thyroid and was started on levothyroxine. As everything started to ramp up for me I started getting the hair loss (I've always had dry skin) and the levothyroxine felt like it was making things worse so I talked to a few of my family members that have hypothyroidism and all of them said to get Synthroid because levothyroxine doesn't work as well so I asked my doctor about it and he said yes, that's pretty common and switched me to Synthroid. I still kept feeling pretty tired but from what my doctor was checking everything seemed okay so he sent me to an endocrinologist and that was the worst experience ever. They did not listen to me at all. I was tried on liothyronine for my T3 (Synthroid is T4) for about 6 months I think and felt zero change so my endocrinologist put me back just on Synthroid. I saw an endocrinologist for 12-18 months, can't remember since it's been a while, and didn't feel like I was getting any sort of specialized care there that I couldn't get from my GP so I went back to just seeing my regular doctor (which was actually a new doctor cause the old one went to a new practice). My current GP has been really great at helping me manage the hypothyroidism, I am also pretty in-tune with my body and can tell when I think it needs to be checked and if I ask he'll check and both times that's happened I was right and needed my dose upped. When I first started seeing him I was on the border between which dose I would need and he started me on the low one but after a few months I felt no change so I asked to go to the higher one and it helped tremendously. It's all about finding the right doctor. Idk if it's just being in quarantine or if I need to be checked again but I've been sleeping a lot again and have had very low energy (to be fair even when my levels are balanced I'm pretty low energy/mellow). This video was still very helpful to me because I don't know if my antibodies have ever been checked since I was diagnosed so when I'm able to make a "non-essential" doctor's appointment I'm going to ask about that and my anemia cause that hasn't been checked in a very long time either. Thank you for sharing all this Susan (if you read this very long comment LOL)!
Thanks for sharing I to suffer from hypothyroidism, my doctor checks me every 6 months just to make sure my thyroid levels are normal. I was surprised to read that you get checked whenever you begin to feel the symptoms. Have you had your vitamin D checked as well? I have a deficiency due to the thyroid issue according to my doctor. You need to motivate yourself to do at least 30 minutes of some kind of exercise, I had to go out and jog because I too was feeling tired all the time time, it's hard but once you start it really makes a big difference.
I can’t thank you enough for sharing. I have Hashimoto’s thyroiditis and it’s been undiagnosed for 7 years until just a year ago. I still haven’t figured it out and am having such a hard time finding the true root cause. Im exhausted and have the worst brain fog and mood swings. I’m so glad to hear there is a light at the end of the tunnel. Thank you for sharing!
I can totally feel this! When I was diagnosed with hypothyroidism my doctor didn't want to believe it. I only weighed 106 pounds and was 27 years old. He said I was pretty young to develop this and usually a symptom of hypothyroidism is weight gain but I was so small. I got a second opinion and sure enough, it was hypothyroidism. I've been on medication since to regulate it. I started feeling better after a while - less fatigued, my hair loss slowed down. But then I started to gain the weight. A small price to pay to be healthy! Thank you for sharing, Susan!
what were your levels? I'm also slim and 30 years old but losing hair and I have celiac (or gluten intolerant as I disnt get diagnosed cause these Drs are a joke).
@@rses916 yes, sorry, TSH. Once I started on the medication I gained weight. I started too feel better too - less tired and less hair loss. It affected my heart rate too and the medication regulated that too.
14 years after being diagnosed with celiac disease I learn that other autoimmune diseases that are related are thyroid diseases and the first doctor to prescribe me thyroid tests has been my current gyno, even after having multiple cases of thyroid disease and autoimmuse diseases in my family... I'm of the camp of trust your doctor, but also don't be afraid to get a third and fourth opinion if you don't feel like they're helping you.
Thanks for talking about this. I was diagnosed with hypothyroidism when I was 20 and have been dealing with it for roughly a decade. When I first went on hormone replacement it immediately made such a difference-- felt like such a simple fix, but in time I realized dealing with hormones can be such a lifelong process. Also, it's really nice to know I'm getting skincare wisdom from someone whose skin is affected by the same condition as mine is!
I went through this so much with my endocrinologist. He kept saying my thyroid was fine and it turned out it to hypothyroidism when I finally went to another doctor.
I can’t thank you enough for this video. I was diagnosed with hypothyroidism when I was 22. So about two years ago. Looking back I’m pretty sure I started to develop symptoms of hypothyroidism around 20 years old. Regardless of my symptoms my (ex)GP never once thought to check my thyroid. I didn’t know what a thyroid was or what it did. For two years i had almost all the textbooks symptoms for hypothyroidism, but my doctor claimed my symptoms were due to anxiety and depression. I gained 50 pounds in a span of 6 months without changing my diet like eating more than usual and I was still strength training. Up until then I never had any issues with losing weight. Idk how that didn’t raise suspicion of something else going on with my then GP. My OBGYN was the only doctor who thought to check my thyroid. I got a call a couple days later and was diagnosed with hypothyroidism and prescribed 25 mcg of Levothyroxine. It took awhile to feel a difference in my health. Now I see an Endocrinologist and my levo dose is now at 100mcg. I’m really surprised your doctor decided to check your T3 and T4. Normally doctors only check your TSH levels. It was like pulling teeth to get them to agree to get my T3, T4, and check for Hashimotos. Healthcare in America is such a pain to deal with. Thankfully I don’t have Hashimotos, but I was over diagnosed for a couple of months which caused my TSH levels to dip down and cause my thyroid to be hyper. this is pretty recent.. so I’m still experiencing a weird mixture of symptoms for both hypo and hyper.
Omg can we be friends! Wait this is my life , Susan I’m not kidding! Without writing my personal whole life story on here do you have a platform to send an email? I don’t have Facebook, just Instagram. I literally had the same (but different) story with my health. Long story short I was severely hyperthyroid, I ended up having mine removed and it was cancerous, twice, and I am STILL trying to feel better. I lost my entire twenties from serious thyroid disease. It’s been over 14 years. I’m 36 now, I want to have kids soon, but I feel like s**t. I’ve lost count of the doctors I’ve seen and no one really can figure it out. I am willing to fly across the world to see a good dr. I hope this reaches you!! I am so happy for you that you are feeling better, and that you are your own advocate for your health , I know the struggles. Thank you for sharing your story! @Susan Yara
On a sick Hashimoto's day, I found this video and it so intrigued me! Today, I just saw a functional medicine doctor and got prescribed LDN! Also doing a detox program through the doc. So excited to feel better, because I know I will. Thanks for this video Susan!
I’m so glad you made a video on this. I’ve always tried to spread knowledge about hypo because it really does affect my life more than people think ! This makes me feel normal ❤️
Ps I found out I had hypo at 12 !!! I gained about 50 pounds within 2 months, my skin was extremely dry everywhere, and I was so sluggish.. so glad I found out and got on some meds !
I was diagnosed with Hashimotos when I was around 13 so I feel you ❤️ currently in between insurances so I can’t wait to be back on my meds and feeling normal again ❤️
@@faceofglam how long has it been for you without meds? Are you taking levothyroxine usually? What dosage? I'm scared what if i skip it for like month or so someday...what would happen... Been taking for like 5 years now
Usually you can get prescribed Levothyroxine or thyroid medication without insurance like through Walmart or a drug store for a really affordable price. Like $4 per refill. You should call and check. It’s important to stay on it! Lots of prayers to you.
So happy you were able to navigate treatments that worked for you, Susan! Thank you for being so open about your struggles-and how not privileged you were at the time you pursued alternative treatment. It's so important to listen to our guts, and also to remember that everyone is dealing with different and unseen issues! Sending much love.
I work for a hospital. I had my youngest almost nine years ago (in my early 30’s) and had struggled to lose all of the weight gained with him. I too tested right on the cusp for a thyroid condition at my yearly physicals. It took 8 long years for me to finally get someone to pay attention to me, to help me. Remember, I work for a hospital. I was finally diagnosed with Graves’ disease (opposite of Hoshimodo’s), my levels are now on normal range and in ten months, I’ve lost 93 lbs without extreme diet or exercise. It is important to advocate for ourselves and not wait for someone to finally do something. I learned this the hard way after many years of suffering in silence.
@Gen I don’t have constant infections, I have Graves’ disease. A condition that can’t be cured and if left untreated - can lead to thyroid cancer. While I appreciate the recommendation and everyone needs to do what is personally best, holistic or alternative medicine would not be effective in my circumstance. Thanks.
I have hypothyroidism as well 🥺 I experienced hair loss, infertility, weight gain, my lymph nodes were always swollen too. I was constantly tired as well and had very dry hands and feet. There’s sooo many different types of symptoms but those are just the most that stood out to me :) I was diagnosed at 16 and I’m almost 21 now
Oh, my god. This is almost exactly my story. I went to Endocrinologist for years to try to fix my Hashimoto’s. They even suggested putting me on anti-depressants. Eventually I got discouraged and gave up. Struggled with fertility issues. Earlier this year I researched alternative options, found my way to Holtzorf. They tested me for so many things that the Endocrinologist never did. Found out I had iodine deficiency and a bunch of food insensitivities. I’m right at the beginning of my journey. And yes it is expensive being out of pocket, but it’s first time in 15 years I feel like I’m on the right path. Thank you for this video.
I have hashimotos as well and after years of symptoms finally being diagnosed feels so reassuring, knowing I’m not making up these symptoms. However it took going to three different doctors and having one of them test my thyroid antibodies and not my T3 to get diagnosed. It’s under control now however stressful situations really triggers my thyroid, my eczema goes crazy, Fatigue comes back, and my acne goes crazy.
My mom has been battling Hashimoto’s for ages. I am a recently graduated doctor but I completely agree when you say that the Endocrinologists don’t dive too deep into these autoimmune diseases and don’t give much information. I have read that on all forums and that’s mainly because there’s very vague and limited study on this topic. I have completely learnt the disease from my mom. If anybody is reading this, please do take your thyroid medicines properly, don’t miss your dose, get a lab test done every 3-4 months or so, so you can adjust your medications accordingly and also, PLEASE take care of what you put into your body too. That is extremely important. Gluten free diets help many, so does cutting lactose and eating raw food(veggies) for some. For more information, please read Dr. K’s food list of what to eat and what not to eat under Hashimoto’s. :)
Thank you so much for this video. My daughter was diagnosed with Hashimoto’s disease last summer and she is experiencing so many of the symptoms you mentioned. Her hair is falling out, flaky scalp, fatigue, mood swings and her skin is dry and broken out. We are in early stages of medication treatment. At times, I feel like there’s nothing I can do to help her. It seems like a uphill battle and she is only 15. My heart breaks for her.
Thank you for talking about this. We have to advocate for ourselves in healthcare and keep going to different doctors until we find one who will listen and believe us, and actually treat us. Women are so often not believed, and under treated. I’m a fellow autoimmune patient. Sending love and healing vibes to you and everyone else out there! ❤️
I've probably had this problem all my life without knowing. I sleep a lot, have no energy, easily gain weight, feel weird but since i'm not on my death bed, I don't really go see a doctor. I was diagnosed with slight hypothyroidism but not that bad...and the possibility of Hashimoto. Thanks for sharing your experience. I will need to make a doctor's appointment as soon all this mess is over.
You are stunning. My eyes get the same way. I started with one autoimmune disease. Fast forward to 38 years old with 5 of them. Finally on low dose naltrexone and it has changed my life. I feel so much better now. Thank you for honest video!
I go to Holtorf as well! The only place that was able to diagnose my Hashimoto's after 11 YEARS of 17 other doctors misdiagnosing me. Now I'm on compounded T3 and still working through finding the right levels. Hair loss, cracking heels, poor sleep, fatigue, weight gain, it's all so frustrating and is still ongoing. I agree that you have to question your doctors, hold them accountable. They can go on auto-pilot and don't always stay current with the latest findings. And a GF diet is really helpful. Thanks for sharing, would love to hear updates on your thyroid journey.
I’m so excited I decided to watch this video. I just started LDN 6 weeks ago for the same reasons mostly to tsp down inflammation from the hashimotos. So far so good.
I had the same experience. Trying to get diagnosed with hypothyroidism took almost a decade. I started to have symptoms at 19. By age 27 my symptoms were debilitating. An ND was the first doctor to FINALLY believe me, diagnose me, and treat me. Unfortunately, I moved to a new state at age 29 where NDs aren’t licensed and couldn’t get my prescriptions renewed because endocrinologists didn’t believe me and I had to go through the process all over again. I lost the majority of my hair, had every symptom in the book, but my bloodwork was “normal.” Finally, was able to get diagnosed again at age 34 because I had a goiter (bloodwork was still “normal”). It was a torturous journey and I’m grateful I’ve finally found the right combination of lifestyle changes and treatments to stabilize my thyroid. It’s a shame the medical community is in such denial that this is an issue. People like you and me are not rare, they are just untreated. I’m glad I fought as hard as I did and didn’t let clinicians gaslight me into believing I was crazy. You know your body better than anyone else. If something feels off, don’t let anyone tell you it’s all in your head.
I totally understand where you’re coming from. I’m going to be 25 and I have Hashimoto and RA.... it’s been hard but baby step at a time. Kudos to you for speaking out. No much people y’all about their health. Hugs from me to you!!
Wow! Susan, I am in tears as I write this because I am feeling very validated and finding so much I relate to in this video! I discovered your channel while looking for experiences and advice dealing with hormonal acne and just really appreciate your sweet spirit and honest/very helpful reviews! I am 33, diagnosed with Endometriosis and Fibromyalgia (taking LDN for Fibro) and still not feeling like don’t quite have my whole health picture. My husband and I have had 2 miscarriages and are trying again this year. I also find it very disheartening that Naturopathic doctors cannot take insurance and because I am unable to work, I have only been able to see my naturopath 1-2 times a year If that. I have felt (for several years now) that Hashimoto’s puts a lot of a lot question marks together and will be pursing bloodwork to confirm or deny this gut feeling. As a fellow autoimmune warrior, I hesitate to bring ideas to my doctors so as not to sound like a hypochondriac, but your journey has really given me the courage:) I had never consider how high antibodies might affect the ability to carry after conception and this gives me so much hope and a place to start from! Thank you for your honesty and kindness in sharing your experience and I’m so happy you are doing well and are able to have your family!💕
Wow, I've been watching your channel for years and never knew you had it! I have it too and wasn't diagnosed until this year when I finally found the right doctor, but have known I had problems with it since high school and doctors had always sent me away saying I was too young.
Thank you, Susan. Ditto to my health issues. Currently seeing an endocrinologist, had a biopsy on my thyroid, and, know I am not receiving the correct care. Your video is so informative. I am watching it several more times and taking notes. TY, TY, TY!
Thank you for making this video. I have suffered from this disease since I was 9. My biggest symptoms that I have struggled with are weight gain, hair loss, and seborrheic dermatitis.
I too was 24 when I was diagnosed with pernicious anemia and 25-26 when my doctor expected Hashimoto's. After some VERY VERY crappy doctors, I found a great one. I was on his waiting list since I was 22, and when I finally got in, he was the best. He always wrote down every important detail or our conversations, and when I had mentioned on several appointments that I always felt tired, he ran all the tests. Lack of B12 and autoimmune diseases can present with some really weird symptoms. In my case, I got OCD, could not remember anything I read in my books ("great" when you're trying to get through college...) and at some points had moments when I didn't know where I was or hallucinated. One time, every building around me was light blue, and I KNEW the area, and absolutely couldn't understand what was going on. After treatment with vitamins I was back to being super woman: aced almost all of my subjects, was also taking an additional two subjects each semester, and worked 3 jobs. THAT is how much you can be affected by lack of vitamins.
@Gen This year, after many years, my hormone levels are getting better and th amount of antiodies against my thyroid has decreased. Before, doctors thought that once you got an autoimmune condition, you would continue to have it. Now they know different: both in diabete and in autoimmune thyroiditis the amount of antibodies can decrease with the right diet. There are videos here, on RUclips explaining this :) But yes, reoccuring infections and autoimmune disorders are connected
I have Fibro and it took so long to diagnose. I had to insist that what I was feeling was not normal. I began to feel crazy and was even told it was all in my head and to see a therapist. But then, I ended up needing therapy because of the whole process. I ended up finding a chronic illness counselor who WAS AMAZING. She understood the entire problems people face trying to find diagnosis. It didn't cure my fibro but really helped me cope.
I have hashimoto and psoriasis. I feel like I'm constantly trying to fix one or the other. I'm finally finding balance but its tough. Nutrition has played a huge roll for me.
Thank you so much for this video. I've been suffering from my Hashimoto since college. My skin and weight go crazy from time to time. We need more videos like this
@@Victoria-ot5om i see! I'm taking 25mcg. Once i did test and it showed that it was not enough and doctor prescribed me 50mcg but for me that was horrible. Test was probably wrong and i did not sleep for the whole month waiting for that extra dosage that i don't need to disappear from the body. Have you ever stopped taking medicine for like a week or so? I'm worried what if i had to stop taking it coz it runs out when I'm on a trip etc...what would happen
Ms Pak getting the right dosing can be super tough. A lot of the times the test would say my dose is right but the way my body feels indicates it was still too low. I’ve stopped taking it multiple times because I’ve run out of forgotten it at home. It takes a few days for me to feel any effects and then it’s just fatigue. It’s not awful, but for sure not recommended.
I used pure natural body cleanser and herbs prepared by dr isibor which he sent to me! And I applied and took the herbs for 2 weeks. I can give his contact so you discuss with him directly his herbal supplement works well if taken properly and it's affordable
When my sister was 16, she spent one year completely ill, with fever, headaches, low energy, fatigue,.... She went to see so many doctors, and no one could tell her what was wrong with her. One day my mum was searching on the internet and she read something about thyroid. She got tested and it turned out she had hashimoto's desease and she had her thyroid removed inmediately because the desease made her develop thyroid cancer. Everyone in the family got tested and it turned out all women had the same problem. Me too. I was diagnosed with hashimoto's desease at the age of 12 and I'm taking levogiroxine since then (I'm 24 now}. Two years ago I had my thyroid removed because of thyroid cancer and had a special radiotherapy treatment. Now I'm fine but the synthoms never go away... You have to deal with the fact that you are always going to be ill and that affects your daily life. Sometimes I don't have energy to get up, and I have to get up to go to school and work anyway. You're always keen on getting ill... It's hard... But I have to deal with it. I understand you.
Whoa! I ran into your videos about a week ago and have been watching them a lot, but I kept thinking to myself "sigh. I want to try all of these products and techniques, but they probably won't help my Hashimoto's acne...". I had no idea you're dealing with it too! This gives me hope. Thank you!
I was diagnosed with hypothyroidism when I was 22. I was "lucky" that it runs in my family so that they would check. I found a great doctor right away though. He checked for 4 different thyroid levels. At this point, like you, I know when I need an update lol
@@lillypad4351 how long ago were you diagnosed? It took me almost a year to get my dose right. I take levothyroxine, but my dad takes synthroid because levothyroxine didnt work for him either. I'm not sure why they're a little different, but it might be worth trying synthroid instead.
I was hyperthyroid in college for a while! I was initially misdiagnosed with Graves' disease, but I normalized too quickly for that. Fast forward to a couple of years ago (I'm 27 now) and I was suddenly anemic and my blood tests were coming back with VERY high levels of protein. It took a couple of years, which is a crazy short amount of time for an autoimmune disease, but I finally have a definitive diagnosis of Rheumatoid Arthritis and Sjogren's Syndrome. I saw several specialists before landing in a Rheumatology office because people thought I was too young for my bloodwork to look the way it looked. Honestly, I had a lot of symptoms throughout my life - particularly in college. I don't have any joint or organ damage, but my RA number was really quite high.
Thank you for your testimony! I have finally been diagnosed with Hashimotos and hypothyroidism amongst other things. I’ve gone to private pay clinics only to see zero results. I saw a holistic nutritionist with nothing. I have similar symptoms. My heels are cracked and nothing I do helps. My hands are scaly and dry. My weight has ballooned and it all depresses me. I don’t have spare change for all of these out of pocket labs, supplements, procedures, etc. I just want help. Could you please write the meds/supplements prescribed do that I could have something to ask for? I’m looking for someone new to help. I just finished last yr and spent so much that I’m finally ok to find someone new to help me. Thank u
Hi @SusanYara - this is great video and I came to it because my dear friend was recently diagnosed with Hashimoto's and I thought she'd find it helpful! One thing you said in the video that's not correct though - and I hope you'll consider leaving a note in the description: HIV is not an autoimmune condition. It's caused by a virus that destroys the immune system, not the immune system attacking itself. That's why HIV's last stage version, AIDS, stands for "Acquired," not "Autoimmune" Immune Deficiency Syndrome. Just thought I'd make the suggestion!
My doctor told me that stress and anxiety is causing my symptoms and i should go to therapy.. i just know its my thyroid.. this video just proves it even more..
Jayde C- if you haven't had the chance, I would see an endocrinologist. Make sure they test your TSH, Free T3, Free T4, Thyroid Antibodies, Thyroglobulin
I have hypothroidism by nature ( discovered 6 months) I am 39 years old so I totally understand what you mean. I also have insulin in tolerance meaning it is an ×2 otoimmune diseases. I take my medicine every morning and the dose is arranged every 6 months by my doctor both in Turkey and the Netherlands. I need to watch my weight ( no sugar, min. Fat, no junk food is allowed), my hair loss, my body condition( coldness and dryness in my feet and hands) and even my mental health ( hypotiroidism causes depression and constant neing tiredness) is need to take proper vitamins needed and my hormone functionality need to be balanced every 6 months . T3 T4 and especiallyTSH is very important to watch for. It is a very inspiring, informative video indeed. Thank you!
I just got diagnosed with Hashimoto in August. I was hoping I wouldn’t get it because my mom, grandma, and aunts all have it. I feel awful, it’s affecting my heart, and my moods are all over the place. My TSH is still high. Hoping I can get it up soon. Trying to navigate this new life.
I’m so glad you’ve started this conversation. I have hyperthyroidism which can also effect and weaken the heart. People who are concerned about their thyroid should definitely have blood work done to see how their thyroid is functioning. Thank you for sharing!
I was 26 when I was diagnosed with Hashimoto’s and alopecia, some of the fun autoimmune genes that run in the female line of my family...and it was a car accident that jump started all of this for me. I wish there were easier answers out there and most importantly not having to spend an arm and a leg just to get those answers. Thank you for sharing your story.
Jessica DeMaskey sorry you’re suffering like this. I get it...I’ve got three autoimmune diseases and alecia is one. Have you needed to start wearing a wig or do you still have enough hair?
This video means so much to me. I have Hashimoto's. I've been dealing with it for ten years and have made no improvements because of exactly what you described- Doctor's care but sometimes they just dont know or understand.
I wish more people would be open about their health struggles. This should not be taboo, it’s your well being.
Shi Ma same! It made me so happy when she said she has psoriasis in her hair care video because I’ve struggled with it since I was little and no one ever talks about it.
Me too but unfortunately most of the people who are willing to speak about such things do it only for attention and not to educate. I'm so happy Susan took the latter approach.
It should be ok to talk about, I really hope we get there 💕
Amen!
Unfotunelty with many people with Aspergers out there, most don't have compassion into people's health as i discovered.
I likely had undiagnosed Hashimoto's for years. For about 5 years I was feeling so awful, fatigued constantly, and so many other symptoms. I went to a few doctors in the beginning until one doctor literally yelled at me that there was nothing wrong with me. I was so affected that I never brought it up with another doctor, until 2 years ago when my throat swelled up. My wonderful current doctor made me get an ultrasound. I had developed thyroid cancer. Moral of the story. Find a doctor who will listen and take you seriously.
I hope you at the very least reported the doctor who yelled at you.
Edit: I also wish you well! I have a thyroid issue currently and am waiting on appointments still. I've had so many bad doctors. My mom has too, now she has stage 4 colon cancer after surgery and treatment for stage 2 colon cancer because of a multitude of doctors not treating her properly and not testing her properly.
Why am I not surprised this story comes from a woman. Medical gender bias is the worst. Also women with issues like endometriosis can sing a song of that
It's hard though, finding a good doctor. After gaining almost 20 kg (44 lb) in 3 months with no major life changes, i decided to seek help. This was 4 years ago, and i went to 5 different specialists and no one cared enough to give me a diagnosis. Most of them made me feel bad for complaining and told me to loss the weight. I felt so defeated. I have many other symptoms, but for them, they weren't important. At the end, I gave up. I've just learnt to live with my symptoms and my chronic pain.
UPDATED: One doctor even try to give me Diazepam (i was 23 then) because as he put it ''i was probably dealing with anxiety and snacking all the time''.
@@rachelsanchis do you have any idea what your potentially suffering from? I went through a similar situation but I have an idea of what's wrong
@@k.t202 Thank you for asking! No idea, the only thing that was abnormal on my blood tests (but apparently not troubling enough to do more tests on me) was that i had high Prolactin (the hormone that enables us to produce milk when lactating). I have no children and to this day no doctor has given me an explanation for it. In a period of 3 months i gained 44 lb and doctors just said it was probably because i was living in NY and was stressed out (which they assumed when i told them i was doing my thesis at that time). But whenever i asked for the cause, they had no explanation. They treated the weight gain as the disease instead of the symptom. They just thought i was lying when i told them about my diet and exercise. It was very frustrating. It's been 4 years, I'm an active person and i have a very good diet (i live in Spain) and i still can't get rid of the weight. Everything that worked for me to loose weight in the past, doesn't work anymore. And honestly, i don't even care about the number on the scale, i care that i can't control it and that it is probably a sign that something else isn't right.
Diagnosis when you are a young person in your 20s is such a joke to doctors. They always tell you "oh you're fine, you have time, you're too young", it's such a slap in the face. I'm glad you are feeling better now Susan! Thanks for sharing 💗
Yep. Diagnosed in my 20s but I was suffering so bad with bad digestion, hair loss and bad brain fog. They kept blowing me off until one old and old school Dr. - the kind that actually touches you to do a proper physical, noticed my swollen thyroid and ordered the right bloodwork.
Noor Chamberlain that’s soo true I’m 24 and I went to the doctors and voiced that I didn’t feel right and that I had gained weight unexpected and couldn’t lose it and they basically told me that i didn’t feel right because I was fat and then I pushed for labs and after a month I found out that my thyroid levels 10.30 and then they finally listened 🙄🙄🙄
So true! At 26, I went to the doctor because I had severe stomach pain after I ate anything. I had insane cramps and nausea after taking a bite of cucumber. I was rapidly losing weight when I was already thin and had sunken in eyes and gray skin. They kept telling me to just eat toast for a week and I would be fine because I’m young. I finally pushed for an upper endoscopy and they found the entirety of my stomach and esophagus was severely inflamed and I had IBD.
Took me from the age of 16-23 to get a proper diagnosis. I have a benign tumour on my pituitary gland that caused my reproductive health to be totally whack and also have thyroid issues due to the tumour as well.. 7 years of complaining about my period later and a university doctor almost knew immediately based on previous labs and physical exam that I had a tumour and sent me for an MRI. Crazy. It’s frustrating that the younger generations are rarely taken seriously with health concerns, it’s always relayed back to anxiety
I got diagnosed age 16! Had to take so many extra tests to confirm. So annoying.
Hi Everyone! Just a note, we shot this video way before self-quarantine and Covid-19 were in the news. I posted it because what happens internally can affect how we look externally. I’m healthy and happy, and this does not make me more at risk with this current pandemic. I’m safe at home and I hope you are too. Also, my current doctor is Dr. Nancy Evans at Holtorf Medical. She gets a big thumbs up from me!
Susan Yara just glad you’re able to share this with us and that you didn’t let this affect you long term and you chose to be healthy and embrace it! Thank you for sharing!!! You’re fantastic! Sending love and good vibes to you and your family 🤍😘
I'm glad you spoke about this. I have hypothyroidism and type 2 diabities. Unfortunately, contrary to popular belief, for me both are hereditary for me. Literally, no two days are similar. I'm at a very high risk especially for the current environment ☹️☹️.
Susan Yara yep stress contributes a lot !
I have Hashimoto's as well and I can soooooo relate to everything you have said. I wish doctors would listen to us and poopoo us. Stay safe through all this craziness.
Susan Yara they said that to me for many years also, you are high from the media but not very high to be on a medicine until a few years later I change my obgyn and she find out my levels were super off so I was diagnosed with hypothyroidism so... a few years after I sill feel sick and I cannot control the weight gain and many many other things
Leave Susan’s pink hands alone! 😂
i'm just shook anyone noticed 😂😂😂
we aren't here for her pink hands... Her hand care routine yes, but not to judge why hers are pink lol
They’re cute! 💖☺️🙌
I never noticed any of that, but rather your beautiful hair and skin. Some people are just plain RUDE. You are so pretty, and your videos are so helpful.
She uses filter
For everyone struggling with Hashimoto's, please ask your current practitioner about Selenium supplementation. There are a lot of studies backing the benefits of selenium in Hashimoto's disease!! Take care everyone
Thank you
So true! It is so important that your thyroid gets enogh iron, zinc, iod -for example from a kelp supplement and selen. Otherwise the thyroid is not able to do a proper work
Brazil nuts!!
I'm currently taking Selenium pills and it is really helping me with my Hashimoto
@@trueblonde89 Yes, but no more than 2 nuts a days as it can give you selenium toxicity.
Have Hasimotos, iron deficiency anemia, and PCOS. The hard part is that all doctors have their own knowledge of the topics and some just don't know enough.
Brittney Lynn try izabella wentz and her program and knowledge..i have hashimotos and this saved my productive life ;)
I have Hashi & iron deficiency anemia too. Wonder what the connection is btw Hashi & anemia?
@@paintbynumber9493 anaemia is an after effect on the iron deficiencies. So when your thyroid does not process any kind of vitamins or supplement it can lead to it
Wow I have all three too, I’m taking metformin 500mg a day and supposed to go up to 1000mg but I can’t manage more than 500 😔I’m also TTC & I’m on levothyroxine for my thyroid 25mg dailt
Highly recommend the book Woman Code by AlissaVitti
I learned too late in life that if a doctor doesn't want to listen to you, ask them to document in your chart that they are refusing to treat. They will change their tune pretty quickly or you should find another doctor.
TheWaterMarbler That’s very helpful! Thank you .
Like refusing to treat in terms of what you want looked into but they refuse saying you are fine?
That seems a little drastic. We always have to document if we are treating someone and why. I'm curious as to what their response was at that time 😅.
Why do the doctors don’t want to treat?
If your doctor isn’t taking you seriously find a new doctor. No point in trying to draw blood from a stone.
I’m so thankful for this video. My two year anniversary of feeling sick daily is coming up this month. I went to the doctor and was told I was peri menopausal at the age of 37 and there was nothing I could do about being lethargic, having hot flashes and hair loss and thinning along with many other symptoms. I started researching how to fix my symptoms and spent $1,000’s on supplements and skincare products. I started following skincare pages on RUclips in desperation of how to correct my dehydrated skin and that’s actually how I started to follow you. Then I saw this video and it all made sense. My doctors never tested me for anything other than TSH. After seeing this video I immediately requested a full thyroid lab panel and sure enough I have Hashimoto’s. Thankful doesn’t remotely describe how I feel about putting a name to this condition but it’s the best I’ve got so thank you! This video was literally life changing for me.
I was diagnosed with Hashimoto’s when I was sixteen years old and I wanted to thank you for making this video. I also struggled with obtaining an accurate diagnosis and wanted to thank you again so much for spreading awareness for hypothyroidism and indirectly, for all autoimmune diseases. My hope is that spreading knowledge about these diseases will make diagnoses more efficient and accessible in the future. I’m also happy to hear you’re doing better with your treatment!
I have Hashimotos disease too. Took them years to figure it out. Once they did, I got on the proper meds and I am doing better now.
me too omg
@S P It's also crazy how the lab range for normal varies from lab to lab. It might be 'normal' but it is certainly not optimal.
What meds are you on? I dont know if i have hasimitos disease but i have hypothyroidism, pcos and im on antidepressants now
@@lillypad4351 I'm on livothroxine and levothorinine
Same here. 10+ years to diagnose me. Functional medicine doctor diagnosed me. Everyone else said I was within normal range :(
I got diagnosed with hashimotos when I was 14 I giggled when your doctor said you were too young in college
Georgia Catherine I laughed at that part too. I ended getting diagnosed with hashimotos at 9.
Same lol
Could you share how you came about finding out, like your symptoms and if they just a basic test yo find it
Ok same ! I was diagnosed at 12 !!!!
Cristina A I found out that I had Hashimotos because I was diagnosed with Vitiligo by my dermatologist and they suggested that I get my thyroid checked out.
I have hashimotos as well! Thanks for sharing your journey with it 💜 I struggled for years with extreme chronic fatigue in high school to the point where I had to be home schooled, depression, and my hair started falling out! I told my doctor all of these things and she never tested my thyroid and told my parents it was a behavioral issue. Finally in college I told my psychiatrist all of this and she sent me for blood tests and my TSH was critically low, the lowest she had ever seen! So ever since then I’ve always researched my doctors before seeing them and I strongly advocate for my own health and body! 💜
I have Hashimoto's as well. I wasn't diagnosed until I was 20, despite my mom and I begging doctors to test for it since I started showing symptoms in my teens *and* my mother having the disorder as well. I finally found a doc who was willing to fully test me and he confirmed my suspicion that I'd probably had it for years. But even my situation could've been worse - it took my mom almost 20 years to get a diagnosis for the same reason. Doctors kept saying she was "too young" to have thyroid problems when symptoms presented in her early twenties. It's frustrating to hear and read about how so many of us experience this issue with doctors. Youth doesn't automatically equal a lack of health issues.
THANK YOU FOR VOICING UP ABOUT THIS QUEEN. WE ARE AUTOIMMUNE THRIVERS. SENDING YOU LOVE
I have hashimoto's as well! Thank you so much for sharing this! Got diagnosed with it my junior year in college.. energy wise I felt like I was dying. I was sleeping enough and eating really well, yet I could barely do anything without feeling like I was going to fall asleep. Also lost sooo much hair, and everything about my body became dry. And all of this came to a head during finals week, yay! Terrible to go through, but thankful I have answers now and medication to help me
Hi! could you share what your routine is now as of supplements, medications etc? :) I'm really trying to figure out how to keep my hair :/ I have breakage, thinning and my hair is getting brittle. Thank you so much!
@@victoriarose7625 ofc! so if im being honest the main thing was just getting on the medication and letting it work its course. My endocrinologist also said that my blood work showed I was low in vit D and B12 so I still supplement with those, but frequently check my blood to make sure that my body still needs to me take it! Also I take collagen peptides but I am not too sure if that has made a difference at all in my hair even though people say it will. I found that taking my medication at the exact same time & never missing, along with eating a well balanced diet helped my whole hair situation improve... I hope that helps
@@katrinalynn5093 Thank you so much for replying! Helps with my perspective on how to take this on. Really had no idea at first on how to go about treatment and after this video, your comment and reply, I feel a lot better. I wish there was more study on all of this, so many women.. people are not diagnosed with it and some (like myself) are just at the beginning of it. I hope you see more improvement in your hair and overall health! :) Take care
@@victoriarose7625 same to you! And if I am being honest, some days I struggle more than others. I find it helpful to just remind myself that this is an autoimmune disorder so I shouldn't be hard on myself. Just trust in the fact that each day I am trying to improve my health and that is something to be proud of... some people say don't consume gluten, and on that I also don't have an opinion, kind of varies from person to person what ignites the antibodies
@@victoriarose7625 Hey girl, I suffer from hashimotos hypothyroidism too. I was diagnosed 9 years ago during my final year of college. Over the course of these years I have found that eating diet with higher percentage of vegetables and fruits and seafood helped me feel the best.i also take an adaptogen herb called ashwagandha as a supplement. It helps to bring the body in to a balanced state. And my diet is grain free. I had tried a lot of different approaches to improve my thyroid health like the keto, vegan, and even paleo... what I'm currently on and working the most for me is a modified pescetarean paleo...I figured it by going on an elimination diet of trial and error..:)
I was diagnosed with hyperthyroidism at 18, got radio active iodine, I’m currently 31 and have now had hypothyroidism for years now. Wish people knew more about this sickness❤️
Tyra S. 💖💖💖
Tyra S. Hi there! How long did you take the iodine for? Are you on medication now? I currently have hyperthyroidism.
@@cocoreo89 I have hypothyroidism as well but I'm not on any medications because I guess my levels aren't too off so the Doctors say....I'm always tired never feel fully rested my weight has gone up tremendously from when I was in my 20's I haven't had it checked in awhile or had blood work done because of my career but I talked 2 my doctor on Wednesday and going 2 do everything 2 see where I stand totally thinking about getting it removed
I got hyper at 19, now Im 26 and I have now hypo 🙁
Doesn't radioactive iodine basically destroy your thyroid?
If you don't have one then you get automatically hypothyroidism (because without thyroid you can't produce t-hormones), and just have to take the thyroid hormone substitute
I haven’t even noticed your hands and I’ve been watching for a few months!
Susan, I've watched you for the last 6 months while learning how to care for my 38 yr old aging melasma mess of skin. Just today I got my diagnosis of hoshimos and never dreamed you would pop up while doing my research. Thank you for sharing your story.
I’ve always had eczema and it was only until my teenage years where it first was starting to be recognized as an autoimmune disease. I’ve gotten so many tests done and my allergies are crazy, my skin is drier than a desert and just flares up whenever. That’s why this channel has been so informative for me and watching this video makes me feel so much better that there’s so many people like you dealing with the uncertainty, people asking and constant ups and downs
I get the struggle of being turned away everywhere you go. You're saying you have a problem and these healthcare professionals can just declare that you don't without any testing or analytics? How is that fair? especially when you're paying them and as a woman, we're seen as dramatic but that doesn't mean we don't have an issue. It took dozens of doctors and specialists to find one that really wanted to look into my health and he was the one that ultimately put my PCOS to rest. I'm glad you shared.
Varsha Patibandla RIGHT?!?? Trying to get a referral for an Endocrinologist from my GP was like pulling teeth. 🤬🤬🤬
I think it's the fault off all this people who keep faking diseases and hypochondriacs who get scared because of any possible symptom
This is so sad. I thought i was only one struggling with this problem in my country but seems like it's everywhere same...
I have been battling with all doctors for years to find a solution. As far as i remember i always had all those symptoms and it was getting worse especially blackouts and hair loss. Only at yhe afe of 25 i got my diagnosis and medicine...
ikr like doctors(especially when they're older male), they tend to dismiss your symptoms if you're young women. It is really frustrating and it made me take so long to be diagnosed.
my mom, my grandma, and i all have hypothyroidism! my mom unfortunately didn’t find out until after she had two stillborn births. i’d truly recommend that everyone get their thyroid checked before trying for a baby, especially if you’re feeling any of the hypo symptoms. thanks for the vid, susan!
100% true. I had 2 miscarriages in a row while being 6 and 4 weeks pregnant. Absolutely wrecked me.
I don't have the same issues, but this all sounds like the dismissal women get at the doctor's all the time.
Kay It’s not just woman 🙄 She was a young person, normally you wouldn’t have let’s say cancer with such a young age
@@shouko4218 Yeah but it also is women
I have hashimotos so I’m super happy you made this! For me it’s effected my hair a ton. I had very straight silky red/blonde hair all my life until a couple years ago when I discovered I had hashimotos after my 2nd pregnancy. My hair became so wirey and course on the top of my head , as well as a lot of hair loss before I was on the right medication. As far as other ways aside from my appearance it affected me, extreme fatigue, weight loss, loss of appetite, anxiety and I developed fibromyalgia which I still with now. Every woman in my family on my mothers side has hashimotos unfortunately.
I can relate to the hair problem you mentioned. Did you find anything that works for you?
Same here...my hair has become awful. Any suggestions?
I have lupus and its had the same effect on my hair. Still trying to find things to help.
Did your hair grew back?
I got diagnosed with Hashimoto’s Thyroiditis and hypothyroidism about 3 years ago. Multiple doctors including my dentist who commented on my enlarged thyroid. I thought it was normal to sleep 12-14 hours at once. I’m still trying to figure out the right dosage to balance my thyroid hormones... I didn’t know gluten free diets could help!
Kana Leia I recommend Anthony Williams has a book on the thyroid on foods that make it worse and foods that can help
You should research "goitrogens". It will help you understand what foods impact your thyroid.
The structure of gluten molecule is virtually identical to thyroid tissue so every time you consume it, it triggers an auto immune response. Same with dairy.
AIP -diet
Omg thank you for your video 🙏 I have been diagnosed with hashimoto for over 6 years, and no one talks about it. Take care 😘
I also have Hashimoto’s/hypothyroidism so I understand this completely. It can be very frustrating but our bodies do have the innate capacity to heal itself. Anthony Williams (Medical Médium) talks greatly on the true case behind autoimmune diseases, his book is amazing (Thyroid Healing). Also, Dr Izabella Wentz, has a book called Hashimoto Protocol with good information. Sharing is caring for anyone who needs it :)
I too have Hashimoto’s...it took a very savvy neurologist to figure out that I had almost no vitamin D or B12 in my body. Countless trips to doctors... and now, I am starting the road to “recovery” aka maintenance care. Thank you so so much for sharing this; it made me cry happy tears to have someone talk about this on their platform.
I am someone who has Hashimoto’s disease. I was diagnosed when I was around 4 or 5 years old. I was sick for over a year before I was diagnosed. What cause them to diagnose me? I was in heart failure! So then they had to determine what caused that. Low and behold it was my thyroid and it was no longer working. I am 25 now and still trying to find balance with this disease and have now come to terms that I will always be on medication to keep me alive. It is amazing to me to hear stories about people that were much older than me still being passed up on the possibility of having thyroid problems because of age. I am glad that people who have been passed up are getting diagnosed before it gets to the part of heart failure and no working thyroid like me.
Same thing that happened to @ClaireAngel. Developed in her when she was 6, went undiagnosed until 12. Still suffering now at 27.
Crazy how young you were. Glad they figured it out.
@Gen Thank you for the tip. Unfortunately I will never ever get my thyroid back, it is dead and will never work again due to being caught so late and it wasn't caused by an infection. But I am sure someone will read this comment and be able to use it. This is a disease that I will have for the rest of my life.
My mom has hashimoto's as well she went through the ringer, my poor mother would work out sometimes 3 times a day and only consumed 1000 kal a day and was still 200lbs, she would cry. When she finally got the right medicine she would lose weight so fast....its crazy how much your thyroid affects so many other things. She has hair loss and dry skin as well, before her thyroid basically died my mom was a healthy 140-150lbs with thick long curly hair...I was actually shocked when I saw photos of her when she was younger I had never seen her hair like that
I’m getting close to 300 pounds and I always thought I was going crazy when I would keep track of what I ate during the day and the calories would add up to 1,000-1,200 calories. Despite that I’m still gaining weight and I always hate telling doctors that I don’t overeat anymore because I assume they won’t believe me based on my weight.
I had blood work done recently and it turns out my thyroid levels are higher than normal (hypothyroidism) and I’m honestly relieved. I’d rather not have it, but at least I know I’m not crazy and overeating even though I don’t think I am.
It's an awful disease. I was diagnosed in 2017 and have lost 70 percent of my hair. Doctors are not there to advocate for you - one has to be our own advocate. I know from experience. It's so unfortunate this disease can be easily diagnosed and many doctors fail to do so.
@@kelfern8226how are you doing now?
I was diagnosed with one of the worst cases of Hashimoto’s at a very young age. So rare the hospital I went to had no clue and had to document the first case they have ever seen based on me. I was 7 and started my first menstrual cycle. I don’t have a thyroid a working thyroid anymore, it’s basically dead. I did grow from age 5-7 I gained weight at a rapid pace. And it took about a year for me to balance it out after taking medication for it. I was thought to have cancer for a while but thankfully I didn’t, and I’m so thankful everything worked out in the end. Every year or so I have to get a higher dose of medication since I was so young being diagnosed with this. I also had a very low vitamin D which played a big part at the same time. For reference you want at least a level of 20-60 and mine was 9.
At the end I realize how grateful I am it all worked out. I always like to feel that I’m not alone with medical struggles. Good luck with everyone I hope your 2022 goes amazing.
I know the feeling of wondering if you will ever find the answer. I was diagnosed with multiple sclerosis at 19 and at 23 I’ve finally found my treatment that has me feeling like me again!! Glad to hear you’ve got a treatment and life style that works in your best interest!
Hello Susan I also have both hashimotos and hypothyroidism. I love that you make these videos and talk about this. Listening to your story it’s similar to mine. I was recently diagnosed a little over a year ago and am just getting my levels back to where they need to be which means I am finally starting to feel better. I was and am still experiencing the same symptoms as you. I am anemic and have a deficiency in vitamin b12 and vitamin D. I am glad to see that I am not the only one going threw this and I love and watch all your videos. Knowing that you experience the same as me makes me like you even more.
Thank you for talking about this.
What did you do about your itchy scalp because I can not figure out why all of a sudden my scalp itches so badly.
Hashimoto's means hypothyroidism, it is the same thing.
@@a2aooka it is not. Hashimotos its the autoimmune disease, some people can just have hypothyroidism as a slack on their diet
You’re not joking when you said it took the course of a decade to get through your medical journey. I’m only just now finding myself on the path of investigating my thyroid as a possible cause of all my symptoms after 7 years of worsening struggles.
From the sebum/dandruff on my scalp that’s now disrupting my quality of life, to severe dry eye and skin dryness, severe anemia during my last pregnancy, the same ice cravings that eventually caused one of my molars to crack on half, the weight fluctuation.. ugh! Here’s hoping for a speedy diagnosis after my most recent ultrasound of my thyroid. 🤞🏻
Visit Doctor okouromi channel on youTube, his Herbs freed my niece who was diagnosed with hypothyroidism and hashimotos within 4 weeks ❤……..
Wow. This is eerie because my experience is almost exactly the same. I mean, almost to a tee! I was very unwell and diagnosed with Hashimotos at 25 and followed the same journey with testing and finding the right doctor and compounds, etc. Thank you for sharing. I know how challenging it can be to have an illness that people don't really understand, and having to advocate for yourself to doctors who don't really seem to care or take it seriously (and then finding out the doctors who do are 💸💸). It's a struggle.
i have hypothyroidism and i was diagnosed when i was 19!! honestly a gf diet helped me so much i lost most of the weight that i gained bc of my thyroid!! love that you shared this :)
Pls share what you did
@@dino9607 look into the book called fiber fueled, i loosely follow that! the dr that wrote the book also has an ig: theguthealthmd where he shares a lot of useful information. although he does say that you should be able to have gluten if you don’t have celiac disease but it still doesn’t really work for me. i also run which helps too
I have hashimoto's as well! I was diagnosed at 17 years old. It was rough. I lost a lot of hair and gained a ton of weight. It's still a struggle if I dont have the right dosage of medication. Stress is also a huge contributing factor!
I'm glad you finally got the help that has enabled you to be and feel better. I appreciate your openness. Stay well.
I was basically diagnosed by my OBGYN after a miscarriage after years and years and YEARS of symptoms and doctor after doctor. Never once was given a lab work script just told over and over that I was “probably depressed”. So glad you made this video of your experience!
The same thing happened to me sooo frustrating that i saw 2 female drs before that didnt try to help me after miscarriages
You were not too young at all, I got diagnosed with Hashimoto at 16, but I had also previously been diagnosed with Lupus at 11. Im so grateful my mother was a doctor and didn't stop taking me to specialists even if they made fun of her for being a hypochondriac parent. I also want to be a mom one day, you inspire me Susan! In college, my psychology-mayor roommate thought she had depression thanks to her lethargic attitude and it turns out she actually had hypothiroidism! She thought she was in for at least a year long struggle with depression and turns out she was feeling great in less than two weeks thanks to well-dosed medication. This is why health insurance is so important, but even if you have to pay with your own money, your health is the best investment you can make.
I have an incurable bladder disease called Interstitial Cystitis as well as endometriosis, anemia and gastroperesis. While I certainly believe medical doctors are essential, I also think that finding a good naturopath can be very helpful! I wasn’t getting anywhere with my regular doctor so I found a naturopath who did a live blood analysis. You can literally see your blood right there on the screen. It was thanks to her I found out I had severe anemia and needed an iron infusion immediately. Unfortunately there are many scammers out there but it’s worth looking for someone you trust. My life used to be miserable. I still have bad days but now I know how to care for the illnesses I have and it makes a world of difference! Also if you don’t feel right, never let anyone tell you differently. You know your body the best. Be strong in your ability to stand up to your doctors. I was only 16 when I got diagnosed with my first illness and when you’re that young it can be even harder. But don’t give up! ❤️
This spoke to me on so many levels I have an autoimmune disease and thyroid problems too. The struggle is real. I appreciate you sharing such a personal part of your life. Thank you!
Traditional endocrinologists put a lot of stock in the labs so your thyroid literally has to shut down to get a hypothyroid diagnosis. Having had both hyperthyroidism and hypothyroidism in the past decade and all the physical and emotional challenges you described that come along with it, I am thrilled you shared your experience. Thanks.
I was diagnosed with Hashimoto's disease around age 26 and hypothyroidism at age 27 (a few months later) and I'm 30 now. I kept going to my doctor saying I was really, really tired all the time but my anemia wasn't the issue and he just had a hunch that it was something to do with my thyroid so he kept checking it regularly about every 3-4 months up until it came back that I had Hashimoto's and then a few months later it had gotten bad enough to give me hypothyroidism. I had to get an ultrasound on my thyroid and was started on levothyroxine. As everything started to ramp up for me I started getting the hair loss (I've always had dry skin) and the levothyroxine felt like it was making things worse so I talked to a few of my family members that have hypothyroidism and all of them said to get Synthroid because levothyroxine doesn't work as well so I asked my doctor about it and he said yes, that's pretty common and switched me to Synthroid. I still kept feeling pretty tired but from what my doctor was checking everything seemed okay so he sent me to an endocrinologist and that was the worst experience ever. They did not listen to me at all. I was tried on liothyronine for my T3 (Synthroid is T4) for about 6 months I think and felt zero change so my endocrinologist put me back just on Synthroid. I saw an endocrinologist for 12-18 months, can't remember since it's been a while, and didn't feel like I was getting any sort of specialized care there that I couldn't get from my GP so I went back to just seeing my regular doctor (which was actually a new doctor cause the old one went to a new practice). My current GP has been really great at helping me manage the hypothyroidism, I am also pretty in-tune with my body and can tell when I think it needs to be checked and if I ask he'll check and both times that's happened I was right and needed my dose upped. When I first started seeing him I was on the border between which dose I would need and he started me on the low one but after a few months I felt no change so I asked to go to the higher one and it helped tremendously. It's all about finding the right doctor. Idk if it's just being in quarantine or if I need to be checked again but I've been sleeping a lot again and have had very low energy (to be fair even when my levels are balanced I'm pretty low energy/mellow). This video was still very helpful to me because I don't know if my antibodies have ever been checked since I was diagnosed so when I'm able to make a "non-essential" doctor's appointment I'm going to ask about that and my anemia cause that hasn't been checked in a very long time either. Thank you for sharing all this Susan (if you read this very long comment LOL)!
Thanks for sharing I to suffer from hypothyroidism, my doctor checks me every 6 months just to make sure my thyroid levels are normal. I was surprised to read that you get checked whenever you begin to feel the symptoms. Have you had your vitamin D checked as well? I have a deficiency due to the thyroid issue according to my doctor. You need to motivate yourself to do at least 30 minutes of some kind of exercise, I had to go out and jog because I too was feeling tired all the time time, it's hard but once you start it really makes a big difference.
FOLLOW A LOW CARB HIGH FAT DIET, AVOID GLUTEN, DAIRY, AND STRESS FREE
I can’t thank you enough for sharing. I have Hashimoto’s thyroiditis and it’s been undiagnosed for 7 years until just a year ago. I still haven’t figured it out and am having such a hard time finding the true root cause. Im exhausted and have the worst brain fog and mood swings.
I’m so glad to hear there is a light at the end of the tunnel.
Thank you for sharing!
I can totally feel this! When I was diagnosed with hypothyroidism my doctor didn't want to believe it. I only weighed 106 pounds and was 27 years old. He said I was pretty young to develop this and usually a symptom of hypothyroidism is weight gain but I was so small. I got a second opinion and sure enough, it was hypothyroidism. I've been on medication since to regulate it. I started feeling better after a while - less fatigued, my hair loss slowed down. But then I started to gain the weight. A small price to pay to be healthy!
Thank you for sharing, Susan!
what were your levels? I'm also slim and 30 years old but losing hair and I have celiac (or gluten intolerant as I disnt get diagnosed cause these Drs are a joke).
@@rses916 I believe my level was at 9. Normal being around 4 - if I remember correctly.
@@saraeclipse TSH?
Ok thanks :)
I rather gain weight than lose my hair for sure. You can always wear corsets for more shape.
@@rses916 yes, sorry, TSH. Once I started on the medication I gained weight. I started too feel better too - less tired and less hair loss. It affected my heart rate too and the medication regulated that too.
I’ve been through so many doctors and got so tired of hearing it was just “stress” - THANK YOU for this video. I’m so glad I’m not alone
I clicked so fast as i am suffering with hashimotos for years.
I was recently diagnosed with it! I really appreciate hearing other people's stories and healing journeys.
14 years after being diagnosed with celiac disease I learn that other autoimmune diseases that are related are thyroid diseases and the first doctor to prescribe me thyroid tests has been my current gyno, even after having multiple cases of thyroid disease and autoimmuse diseases in my family... I'm of the camp of trust your doctor, but also don't be afraid to get a third and fourth opinion if you don't feel like they're helping you.
Thanks for talking about this. I was diagnosed with hypothyroidism when I was 20 and have been dealing with it for roughly a decade. When I first went on hormone replacement it immediately made such a difference-- felt like such a simple fix, but in time I realized dealing with hormones can be such a lifelong process. Also, it's really nice to know I'm getting skincare wisdom from someone whose skin is affected by the same condition as mine is!
I went through this so much with my endocrinologist. He kept saying my thyroid was fine and it turned out it to hypothyroidism when I finally went to another doctor.
I can’t thank you enough for this video. I was diagnosed with hypothyroidism when I was 22. So about two years ago. Looking back I’m pretty sure I started to develop symptoms of hypothyroidism around 20 years old. Regardless of my symptoms my (ex)GP never once thought to check my thyroid. I didn’t know what a thyroid was or what it did.
For two years i had almost all the textbooks symptoms for hypothyroidism, but my doctor claimed my symptoms were due to anxiety and depression. I gained 50 pounds in a span of 6 months without changing my diet like eating more than usual and I was still strength training. Up until then I never had any issues with losing weight. Idk how that didn’t raise suspicion of something else going on with my then GP.
My OBGYN was the only doctor who thought to check my thyroid. I got a call a couple days later and was diagnosed with hypothyroidism and prescribed 25 mcg of Levothyroxine.
It took awhile to feel a difference in my health. Now I see an Endocrinologist and my levo dose is now at 100mcg.
I’m really surprised your doctor decided to check your T3 and T4. Normally doctors only check your TSH levels. It was like pulling teeth to get them to agree to get my T3, T4, and check for Hashimotos. Healthcare in America is such a pain to deal with.
Thankfully I don’t have Hashimotos, but I was over diagnosed for a couple of months which caused my TSH levels to dip down and cause my thyroid to be hyper. this is pretty recent.. so I’m still experiencing a weird mixture of symptoms for both hypo and hyper.
Omg can we be friends! Wait this is my life , Susan I’m not kidding! Without writing my personal whole life story on here do you have a platform to send an email? I don’t have Facebook, just Instagram. I literally had the same (but different) story with my health. Long story short I was severely hyperthyroid, I ended up having mine removed and it was cancerous, twice, and I am STILL trying to feel better. I lost my entire twenties from serious thyroid disease. It’s been over 14 years. I’m 36 now, I want to have kids soon, but I feel like s**t. I’ve lost count of the doctors I’ve seen and no one really can figure it out. I am willing to fly across the world to see a good dr. I hope this reaches you!! I am so happy for you that you are feeling better, and that you are your own advocate for your health , I know the struggles. Thank you for sharing your story! @Susan Yara
On a sick Hashimoto's day, I found this video and it so intrigued me! Today, I just saw a functional medicine doctor and got prescribed LDN! Also doing a detox program through the doc. So excited to feel better, because I know I will. Thanks for this video Susan!
I’m so glad you made a video on this. I’ve always tried to spread knowledge about hypo because it really does affect my life more than people think ! This makes me feel normal ❤️
Ps I found out I had hypo at 12 !!! I gained about 50 pounds within 2 months, my skin was extremely dry everywhere, and I was so sluggish.. so glad I found out and got on some meds !
I love how fast she talks in this one! It's so authentic!! 😊
I was diagnosed with Hashimotos when I was around 13 so I feel you ❤️ currently in between insurances so I can’t wait to be back on my meds and feeling normal again ❤️
Jordanna Crosby prayers to you, I feel TERRIBLE without my Thyroid medication, been on it for 13 years now💕
@@faceofglam how long has it been for you without meds? Are you taking levothyroxine usually? What dosage?
I'm scared what if i skip it for like month or so someday...what would happen...
Been taking for like 5 years now
Usually you can get prescribed Levothyroxine or thyroid medication without insurance like through Walmart or a drug store for a really affordable price. Like $4 per refill. You should call and check. It’s important to stay on it! Lots of prayers to you.
Stay strong !!
Without it I get more mood swings and things like excessive sweating but it settles and then I’m just tired
So happy you were able to navigate treatments that worked for you, Susan! Thank you for being so open about your struggles-and how not privileged you were at the time you pursued alternative treatment. It's so important to listen to our guts, and also to remember that everyone is dealing with different and unseen issues! Sending much love.
I work for a hospital. I had my youngest almost nine years ago (in my early 30’s) and had struggled to lose all of the weight gained with him. I too tested right on the cusp for a thyroid condition at my yearly physicals. It took 8 long years for me to finally get someone to pay attention to me, to help me. Remember, I work for a hospital. I was finally diagnosed with Graves’ disease (opposite of Hoshimodo’s), my levels are now on normal range and in ten months, I’ve lost 93 lbs without extreme diet or exercise. It is important to advocate for ourselves and not wait for someone to finally do something. I learned this the hard way after many years of suffering in silence.
@Gen I don’t have constant infections, I have Graves’ disease. A condition that can’t be cured and if left untreated - can lead to thyroid cancer. While I appreciate the recommendation and everyone needs to do what is personally best, holistic or alternative medicine would not be effective in my circumstance. Thanks.
It sounds so frightening that so many doctors didn't believe things were wrong. So glad you found good doctors and treatments that work for you!
I have hypothyroidism as well 🥺 I experienced hair loss, infertility, weight gain, my lymph nodes were always swollen too. I was constantly tired as well and had very dry hands and feet. There’s sooo many different types of symptoms but those are just the most that stood out to me :) I was diagnosed at 16 and I’m almost 21 now
How now about your hair
Oh, my god. This is almost exactly my story. I went to Endocrinologist for years to try to fix my Hashimoto’s. They even suggested putting me on anti-depressants. Eventually I got discouraged and gave up. Struggled with fertility issues. Earlier this year I researched alternative options, found my way to Holtzorf. They tested me for so many things that the Endocrinologist never did. Found out I had iodine deficiency and a bunch of food insensitivities. I’m right at the beginning of my journey. And yes it is expensive being out of pocket, but it’s first time in 15 years I feel like I’m on the right path. Thank you for this video.
I have hashimotos as well and after years of symptoms finally being diagnosed feels so reassuring, knowing I’m not making up these symptoms. However it took going to three different doctors and having one of them test my thyroid antibodies and not my T3 to get diagnosed. It’s under control now however stressful situations really triggers my thyroid, my eczema goes crazy, Fatigue comes back, and my acne goes crazy.
My mom has been battling Hashimoto’s for ages. I am a recently graduated doctor but I completely agree when you say that the Endocrinologists don’t dive too deep into these autoimmune diseases and don’t give much information. I have read that on all forums and that’s mainly because there’s very vague and limited study on this topic. I have completely learnt the disease from my mom. If anybody is reading this, please do take your thyroid medicines properly, don’t miss your dose, get a lab test done every 3-4 months or so, so you can adjust your medications accordingly and also, PLEASE take care of what you put into your body too. That is extremely important. Gluten free diets help many, so does cutting lactose and eating raw food(veggies) for some. For more information, please read Dr. K’s food list of what to eat and what not to eat under Hashimoto’s. :)
Thank you so much for this video. My daughter was diagnosed with Hashimoto’s disease last summer and she is experiencing so many of the symptoms you mentioned. Her hair is falling out, flaky scalp, fatigue, mood swings and her skin is dry and broken out. We are in early stages of medication treatment. At times, I feel like there’s nothing I can do to help her. It seems like a uphill battle and she is only 15. My heart breaks for her.
Thank you for talking about this. We have to advocate for ourselves in healthcare and keep going to different doctors until we find one who will listen and believe us, and actually treat us. Women are so often not believed, and under treated. I’m a fellow autoimmune patient. Sending love and healing vibes to you and everyone else out there! ❤️
I've probably had this problem all my life without knowing. I sleep a lot, have no energy, easily gain weight, feel weird but since i'm not on my death bed, I don't really go see a doctor. I was diagnosed with slight hypothyroidism but not that bad...and the possibility of Hashimoto. Thanks for sharing your experience. I will need to make a doctor's appointment as soon all this mess is over.
Have them test thyroid antibody or they may tell you you're fine. Most Dr.'s don't test for that part which is why it is so under dx
You are stunning. My eyes get the same way. I started with one autoimmune disease. Fast forward to 38 years old with 5 of them. Finally on low dose naltrexone and it has changed my life. I feel so much better now. Thank you for honest video!
Touching my throat while she's explaining.. Susan: don't self diagnose 😂
I go to Holtorf as well! The only place that was able to diagnose my Hashimoto's after 11 YEARS of 17 other doctors misdiagnosing me. Now I'm on compounded T3 and still working through finding the right levels. Hair loss, cracking heels, poor sleep, fatigue, weight gain, it's all so frustrating and is still ongoing. I agree that you have to question your doctors, hold them accountable. They can go on auto-pilot and don't always stay current with the latest findings. And a GF diet is really helpful. Thanks for sharing, would love to hear updates on your thyroid journey.
I’m so excited I decided to watch this video. I just started LDN 6 weeks ago for the same reasons mostly to tsp down inflammation from the hashimotos. So far so good.
I had the same experience. Trying to get diagnosed with hypothyroidism took almost a decade. I started to have symptoms at 19. By age 27 my symptoms were debilitating. An ND was the first doctor to FINALLY believe me, diagnose me, and treat me. Unfortunately, I moved to a new state at age 29 where NDs aren’t licensed and couldn’t get my prescriptions renewed because endocrinologists didn’t believe me and I had to go through the process all over again. I lost the majority of my hair, had every symptom in the book, but my bloodwork was “normal.” Finally, was able to get diagnosed again at age 34 because I had a goiter (bloodwork was still “normal”). It was a torturous journey and I’m grateful I’ve finally found the right combination of lifestyle changes and treatments to stabilize my thyroid. It’s a shame the medical community is in such denial that this is an issue. People like you and me are not rare, they are just untreated. I’m glad I fought as hard as I did and didn’t let clinicians gaslight me into believing I was crazy. You know your body better than anyone else. If something feels off, don’t let anyone tell you it’s all in your head.
I totally understand where you’re coming from. I’m going to be 25 and I have Hashimoto and RA.... it’s been hard but baby step at a time. Kudos to you for speaking out. No much people y’all about their health. Hugs from me to you!!
Wow! Susan, I am in tears as I write this because I am feeling very validated and finding so much I relate to in this video!
I discovered your channel while looking for experiences and advice dealing with hormonal acne and just really appreciate your sweet spirit and honest/very helpful reviews!
I am 33, diagnosed with Endometriosis and Fibromyalgia (taking LDN for Fibro) and still not feeling like don’t quite have my whole health picture.
My husband and I have had 2 miscarriages and are trying again this year. I also find it very disheartening that Naturopathic doctors cannot take insurance and because I am unable to work, I have only been able to see my naturopath 1-2 times a year If that.
I have felt (for several years now) that Hashimoto’s puts a lot of a lot question marks together and will be pursing bloodwork to confirm or deny this gut feeling. As a fellow autoimmune warrior, I hesitate to bring ideas to my doctors so as not to sound like a hypochondriac, but your journey has really given me the courage:)
I had never consider how high antibodies might affect the ability to carry after conception and this gives me so much hope and a place to start from!
Thank you for your honesty and kindness in sharing your experience and I’m so happy you are doing well and are able to have your family!💕
Wow, I've been watching your channel for years and never knew you had it! I have it too and wasn't diagnosed until this year when I finally found the right doctor, but have known I had problems with it since high school and doctors had always sent me away saying I was too young.
I was just diagnosed with Hashimottos, been suffering for years. Thank you for this video, it's helpful.
Hashimotos with hypothyroidism and anemic here too diagnosed late 20s, mostly women based on these comments
Me too!
Thank you, Susan. Ditto to my health issues. Currently seeing an endocrinologist, had a biopsy on my thyroid, and, know I am not receiving the correct care. Your video is so informative. I am watching it several more times and taking notes. TY, TY, TY!
Thank you for making this video. I have suffered from this disease since I was 9. My biggest symptoms that I have struggled with are weight gain, hair loss, and seborrheic dermatitis.
I too was 24 when I was diagnosed with pernicious anemia and 25-26 when my doctor expected Hashimoto's. After some VERY VERY crappy doctors, I found a great one. I was on his waiting list since I was 22, and when I finally got in, he was the best. He always wrote down every important detail or our conversations, and when I had mentioned on several appointments that I always felt tired, he ran all the tests.
Lack of B12 and autoimmune diseases can present with some really weird symptoms. In my case, I got OCD, could not remember anything I read in my books ("great" when you're trying to get through college...) and at some points had moments when I didn't know where I was or hallucinated. One time, every building around me was light blue, and I KNEW the area, and absolutely couldn't understand what was going on. After treatment with vitamins I was back to being super woman: aced almost all of my subjects, was also taking an additional two subjects each semester, and worked 3 jobs. THAT is how much you can be affected by lack of vitamins.
@Gen This year, after many years, my hormone levels are getting better and th amount of antiodies against my thyroid has decreased. Before, doctors thought that once you got an autoimmune condition, you would continue to have it. Now they know different: both in diabete and in autoimmune thyroiditis the amount of antibodies can decrease with the right diet. There are videos here, on RUclips explaining this :) But yes, reoccuring infections and autoimmune disorders are connected
Oh! My friend has hashimoto's disease, but I never fully understood what it was... Thank you for talking about it Susan!
I have Fibro and it took so long to diagnose. I had to insist that what I was feeling was not normal. I began to feel crazy and was even told it was all in my head and to see a therapist. But then, I ended up needing therapy because of the whole process. I ended up finding a chronic illness counselor who WAS AMAZING. She understood the entire problems people face trying to find diagnosis. It didn't cure my fibro but really helped me cope.
I have hashimoto and psoriasis. I feel like I'm constantly trying to fix one or the other. I'm finally finding balance but its tough. Nutrition has played a huge roll for me.
You may have candida as it can go with hypothyroidism and a leaky gut leads to skin issues and intolerances.
Thank you so much for this video. I've been suffering from my Hashimoto since college. My skin and weight go crazy from time to time. We need more videos like this
I have Hashimoto's. I was "too young" to have it as well, but eventually, I was diagnosed... at 14!
Are you still taking levothyroxine?
Ms Pak I am. My doctor’s theory is that, because we caught it somewhat early, we’ve slowed down the progression, so my dose is only 75 mcg.
@@Victoria-ot5om i see! I'm taking 25mcg. Once i did test and it showed that it was not enough and doctor prescribed me 50mcg but for me that was horrible. Test was probably wrong and i did not sleep for the whole month waiting for that extra dosage that i don't need to disappear from the body.
Have you ever stopped taking medicine for like a week or so?
I'm worried what if i had to stop taking it coz it runs out when I'm on a trip etc...what would happen
Ms Pak getting the right dosing can be super tough. A lot of the times the test would say my dose is right but the way my body feels indicates it was still too low. I’ve stopped taking it multiple times because I’ve run out of forgotten it at home. It takes a few days for me to feel any effects and then it’s just fatigue. It’s not awful, but for sure not recommended.
I used pure natural body cleanser and herbs prepared by dr isibor which he sent to me! And I applied and took the herbs for 2 weeks. I can give his contact so you discuss with him directly his herbal supplement works well if taken properly and it's affordable
When my sister was 16, she spent one year completely ill, with fever, headaches, low energy, fatigue,.... She went to see so many doctors, and no one could tell her what was wrong with her. One day my mum was searching on the internet and she read something about thyroid. She got tested and it turned out she had hashimoto's desease and she had her thyroid removed inmediately because the desease made her develop thyroid cancer. Everyone in the family got tested and it turned out all women had the same problem. Me too. I was diagnosed with hashimoto's desease at the age of 12 and I'm taking levogiroxine since then (I'm 24 now}. Two years ago I had my thyroid removed because of thyroid cancer and had a special radiotherapy treatment. Now I'm fine but the synthoms never go away... You have to deal with the fact that you are always going to be ill and that affects your daily life. Sometimes I don't have energy to get up, and I have to get up to go to school and work anyway. You're always keen on getting ill... It's hard... But I have to deal with it. I understand you.
3:02 ''Not a doctor'' sounded exactly like Brooklyn Nine-Nine's ''Not a Doctor, shh''
Whoa! I ran into your videos about a week ago and have been watching them a lot, but I kept thinking to myself "sigh. I want to try all of these products and techniques, but they probably won't help my Hashimoto's acne...". I had no idea you're dealing with it too! This gives me hope. Thank you!
I was diagnosed with hypothyroidism when I was 22. I was "lucky" that it runs in my family so that they would check. I found a great doctor right away though. He checked for 4 different thyroid levels. At this point, like you, I know when I need an update lol
What medication are you taking? I use levothyroxine but i dont feel any better.
@@lillypad4351 how long ago were you diagnosed? It took me almost a year to get my dose right. I take levothyroxine, but my dad takes synthroid because levothyroxine didnt work for him either. I'm not sure why they're a little different, but it might be worth trying synthroid instead.
I was hyperthyroid in college for a while! I was initially misdiagnosed with Graves' disease, but I normalized too quickly for that. Fast forward to a couple of years ago (I'm 27 now) and I was suddenly anemic and my blood tests were coming back with VERY high levels of protein. It took a couple of years, which is a crazy short amount of time for an autoimmune disease, but I finally have a definitive diagnosis of Rheumatoid Arthritis and Sjogren's Syndrome. I saw several specialists before landing in a Rheumatology office because people thought I was too young for my bloodwork to look the way it looked. Honestly, I had a lot of symptoms throughout my life - particularly in college. I don't have any joint or organ damage, but my RA number was really quite high.
Thank you for your testimony! I have finally been diagnosed with Hashimotos and hypothyroidism amongst other things. I’ve gone to private pay clinics only to see zero results. I saw a holistic nutritionist with nothing. I have similar symptoms. My heels are cracked and nothing I do helps. My hands are scaly and dry. My weight has ballooned and it all depresses me. I don’t have spare change for all of these out of pocket labs, supplements, procedures, etc. I just want help.
Could you please write the meds/supplements prescribed do that I could have something to ask for? I’m looking for someone new to help. I just finished last yr and spent so much that I’m finally ok to find someone new to help me. Thank u
Check coimbra protocol
Hi @SusanYara - this is great video and I came to it because my dear friend was recently diagnosed with Hashimoto's and I thought she'd find it helpful! One thing you said in the video that's not correct though - and I hope you'll consider leaving a note in the description:
HIV is not an autoimmune condition. It's caused by a virus that destroys the immune system, not the immune system attacking itself. That's why HIV's last stage version, AIDS, stands for "Acquired," not "Autoimmune" Immune Deficiency Syndrome. Just thought I'd make the suggestion!
My doctor told me that stress and anxiety is causing my symptoms and i should go to therapy.. i just know its my thyroid.. this video just proves it even more..
Read “ Hashimotos protocol” thats how I found out I have it. I knew what tests to ask for, and there it was!
Jayde C- if you haven't had the chance, I would see an endocrinologist. Make sure they test your TSH, Free T3, Free T4, Thyroid Antibodies, Thyroglobulin
I have hypothroidism by nature ( discovered 6 months) I am 39 years old so I totally understand what you mean. I also have insulin in tolerance meaning it is an ×2 otoimmune diseases. I take my medicine every morning and the dose is arranged every 6 months by my doctor both in Turkey and the Netherlands. I need to watch my weight ( no sugar, min. Fat, no junk food is allowed), my hair loss, my body condition( coldness and dryness in my feet and hands) and even my mental health ( hypotiroidism causes depression and constant neing tiredness) is need to take proper vitamins needed and my hormone functionality need to be balanced every 6 months . T3 T4 and especiallyTSH is very important to watch for. It is a very inspiring, informative video indeed. Thank you!
I just got diagnosed with Hashimoto in August. I was hoping I wouldn’t get it because my mom, grandma, and aunts all have it. I feel awful, it’s affecting my heart, and my moods are all over the place. My TSH is still high. Hoping I can get it up soon. Trying to navigate this new life.
I’m so glad you’ve started this conversation. I have hyperthyroidism which can also effect and weaken the heart. People who are concerned about their thyroid should definitely have blood work done to see how their thyroid is functioning. Thank you for sharing!
I was 26 when I was diagnosed with Hashimoto’s and alopecia, some of the fun autoimmune genes that run in the female line of my family...and it was a car accident that jump started all of this for me. I wish there were easier answers out there and most importantly not having to spend an arm and a leg just to get those answers. Thank you for sharing your story.
Jessica DeMaskey sorry you’re suffering like this. I get it...I’ve got three autoimmune diseases and alecia is one. Have you needed to start wearing a wig or do you still have enough hair?
This video means so much to me. I have Hashimoto's. I've been dealing with it for ten years and have made no improvements because of exactly what you described- Doctor's care but sometimes they just dont know or understand.