Sound Only Made Things Worse- Brian's Hyperacusis Story
HTML-код
- Опубликовано: 2 апр 2022
- Brian shares his story about developing hyperacusis and provides a warning against activities and certain therapies recommended by his medical providers that worsened his symptoms. He suffers from the even more rare form of hyperacusis called noxacusis, also known as pain hyperacusis. He offers insight, encouragement and describes how he has changed his life to live with it.
To learn more about the hearing regeneration research going on, you can find some information here:
news.mit.edu/2022/frequency-t...
investors.otonomy.com/news-re...
You can read more about Brian's story here:
www.tinnitustalk.com/threads/...
__
Website: hyperacusiscentral.org/
Instragram: / hyperacusiscentral
Facebook: / hyperacusiscentral
Twitter: / hyperacusisc
TikTok: / hyperacusiscentral
Donate to Research: hyperacusisresearch.org/how-t...
Brian is a trooper. Goes through so much. Lots of love.
Thanks man 🙏🏼🙏🏼 much appreciated
@@briannewman3552 when yours started?
So sorry for you Brian. I have severe tinnitus too. Be strong. Keep going. Something will change in the future.
Thank you so much for sharing Brian…we need more leading voices such as yours to move this condition up the agenda. Thank you for being bold enough to do so
Amazing, thanks, can certainly relate to all of this, not least the fact that yes it can get worse and that people don’t realise just how bad it is when it’s severe.
Thank you for sharing.
I know my friend what you suffer because I suffer the same from 11 years now, worsening continuously. Even my voice is now painful. The only way we have is to stay in the silence, try to avoid setbacks, and move forward in our life. To be positive, some researchers, especially in the US (Dr Megan Wood team for example, Johns Hopkins University), progress in understanting the illness. We just have to wait and share our knowledge (I'm European). Take care man ;-)
Do you have noxacusis?
How he can move forward in his life if the only way is to stay in silence??
God bless u my brother u will get better you r strong
Thanks for sharing I totally identify I also notice bad weather magnifies all of it . I actually can get seizure like reactions From certain sounds and it does take hours to recover from 🫤 my blood pressure goes up in certain environments . Hardest part is def the isolation having to find a new path to experience your life in solitude . Stay strong ❤❤❤🙏🏻🙏🏻🙏🏻
I can relate to this . I too had such bad hyperacusis...I made a list of what caused me pain. MOST Sounds perceived amplified by 10 times as well
Running water in shower, sink and in pipes as well. Air passing through ventilation systems ...
Refrigerator ...
Voices...especially female or very low voices The S consonant stabbed my ears far worse.
Automobiles
Television and radio
Squealing brakes
Birds
Silverware pots and pans
Crushing plastic bags sounded like a crackling fire
Fluorescent lights
Gas pipe lines
Shopping carriages sqeaking wheels
Etc...Etc..Etc...
What worked
Relaxation techniques...very soft sound therapies that I created for myself...I also used soft rain sound while sleeping. If I used anything too loud ...my tinnitus would spike.
I also had a very bad case of misophonoa which led me to hate every mouth sound including chewing food..gum snapping..lip smacking . I would get furious and or sick from these sounds.
Thankfully within 5 years I beat all of this .
I can sooooo relate to everything you say. I am currently in crisis because of it. "Normal" people just think we are mad/bi-polar/child haters etc etc etc. It is real and a living nightmare. I'm 67 and have had it almost all my life but it is getting so much worse lately. I have already moved home 33 times to get away from noise. I now would rather be totally deaf
Hope you get better…
My ears also swell up
Hi Brian,
I'm not really sure if I have the samething, I can be in my home with no earplug and I don't really have pain when I ear directly something but if I'm somewhere with a lot of noise, i can have a really big disconfort in my two ears for a long time, I have this since i'm 25 (now 27) and it's just getting worse. At the beggining I was able to go to restaurent but right now I cant do anything. TRT treatment look to work on people with hyperacusis but not with pain but I'm not sure where I am right now. Let me know if at the beggining it was like me. Thank you guys! I don't have any hope for a treatment, it look like we need another 10 000years before finding a real cure lol. It's just sad to have this at this age, I feel like i'm ready to end my life because i cant do the things that I like ...
I am in the same boat like you. I am 25, and its my first year with this disaster. I dont have hope too.....
There’s always hope. Every problem has a solution. But I am truly sorry for all of you young people.
i am facing the same thing no pain but discomfort with loud sound it started 1 week ago i am not sure what it is,lets connect plz
@@b3rkolas235 Ive had it for 12 years
@@shresthificationhow do you feel now??
i heard cold lazer therapy helps alot. and cranial sacral therpay i have it in my right ear,, it went away and my friend sneezed so loud in my car today that it all came back and now my right ear feels like hot burning pain .. i am going to try the crainal work and lazer
Sexyitaldude I want more info on this laser? What state are you in? I’m in OK.
Did you get it done?
One misconception is that there is Permanent damage to the inner ear hair folicles. Not true. I believe these very hairs can get traumatized but over time can regain their normal function . How else can I recover from the same excruciating condition?
Hey there felliow HyberQ from NZ 🇳🇿 yeah WAVE(s) 🌊🏄♀️
Think about creating your very own YT channel a connection real with likekind HyperQ(s) out there.
Yes, the increase space of sound can be overwhelming... it(s) something overwhelming.
There are positive quality(s) expand (s) the researcher(s) out there fully get or comprehend to the complexity(s) relative to this space Hyperacusis.
Create your very own HyberQ YT channel... share that space real daily all the good and all the not so good.
Be that voice YES 👍🏻💯
I damaged by ears listening to headphones 24 7 for years....I think I have this...im watching this on my phone and the volume hurts my ears...mines 24 7 pain
Same I have developed noises sensitivity now I've been using earphones for years like 5-6 years continues with high volume now I developed buzzing in ear when I hear some noise like washing dishes in home vehicle horns etc i can't able to take those noise I made lots of mistakes in my life but this is the biggest mistake that i have ever made that's has no excuses I'm just hoping not to worsen from here
@@user-yb7fj2jl4psame story here, has yours gotten any better?
Mine is similar to yours except mine got worse overtime
How did you get your Pain Hyperacusis? Acoustic trauma
Man, i am 24 years old. I have painful H. IT'S VERY DEBILITATING.
In my case it all started after some stretching of my neck. Its getting worse. I don't really know what to do. I am in depression and isolated.
Hey man you see an upper cervical chiropractor? Sounds like your c1 and c2 could be out of wack that can cause ear pain too
@@briannewman3552 i have EDS and retroflexed odontoid, i highly suspect craniocervical instability. Yeah so mechanical csuse makes sense
@@b3rkolas235 ahhh that sucks sorry to hear. I think there was a place in ft myers Florida called caring medical. Could be something to check out. I have some neck issues too but nothing like yours. I hope you get better
I have EDS too, but though I have neck issues, I am more inclined to think my H&T is due to neurological issues e.g glutamate hyperarousal.
@@symbolistartist This was discussed a lot in Phoenix Rising ME/CFS community forum. Most probably this is the root cause for me tol since i havent had any acoustic trauma.
Its been 5 months im in this. It got better to the degree where i go out without pain. But the pain starts when i talk. Very interesting and weird.
What about yours?
Are you cured
Try vertigen
I got news for you. I have hyperacusis for 30 years. No cure
Er zijn mogelijkheden om met hyperacusis te leven maar je moet goed zoeken bijvoorbeeld zoek naar homeopatische medicatie mocht je gezondheidsproblemen hebben door hyperacusis probeer knoflook pillen (gezond voor het hart) en gingko biloba en oordoppen op maat succes !!
It’s all about the hair cells in the cochlea. Regenerate those cells and hearing problems being reversed
Not possible at the moment sadly, gotta wait for years