Spastic Cerebral Palsy Surgical and Rehabilitation Treatment | Journee’s Story

Поделиться
HTML-код
  • Опубликовано: 6 май 2019
  • Journee, age 4, and her mother traveled from Boston to Baltimore, where Johns Hopkins pediatric orthopaedic surgeon Ranjit Varghese and neurosurgeon Shenandoah Robinson collaborated with the rehabilitation team at the Kennedy Krieger Institute to develop a treatment plan to get her standing and walking the first time since being born with cerebral palsy. #SpasticCerebralPalsy
    Learn more at www.hopkinsmedicine.org/neuro...
    Meet Dr. Robinson www.hopkinsmedicine.org/profi...
    Meet Dr. Varghese www.hopkinsmedicine.org/profi...
  • НаукаНаука

Комментарии • 71

  • @lordblader4505
    @lordblader4505 3 года назад +21

    I live in Jamaica, with my 12 age old son, one of three boys that was diagnosed with cerebral palsy CP. I had exhausted all the resources in my country and I am looking for a human form of divine intervention that will give my son the best help possible.

  • @gutsfield3504
    @gutsfield3504 3 года назад +7

    I had virtually identical rehabilitation and surgical interventions starting in 1964 age 2. My condition (complex spastic quadriplegia) had iatrogenic causation post- birth. Despite achieving an almost normal gait, physiotherapy averaging four hours a day for 52 years, intractable pain and post impairment syndrome left me wheelchair dependent. Pain control during and after two childhood surgeries was not even considered by healthcare workers despite my screaming. Children with CP grow to be adults. I was wrong in assuming PT, etc.would spare me the physical and mental trauma... and the huge hit to my bank account. Unless the Cerebral palsy patient is a millionaire, and has few comorbidities, it can leave a sufferer in bankruptcy. Cerebral palsy is as destructive as any disease in existence. The intractable pain, the post trauma impairment syndrome, and the wheelchair could have been prevented if health care "professionals" had been competent from birth to adulthood. Hopefully, the child presented in the documentary will be treated compassionately throughout life.

  • @gwenwilliams1954
    @gwenwilliams1954 2 года назад +6

    She is beautiful and amazingly strong and blessed.

  • @madelyndennis371
    @madelyndennis371 4 года назад +2

    Kenny Krieger working with Johns Hopkins is fantastic they did wonderful things for me

  • @sahabatbintangsembilan
    @sahabatbintangsembilan 2 года назад +3

    Give inspiration 👍

  • @A.M.A-Attarch
    @A.M.A-Attarch 3 года назад +13

    i'm 14 and i have this hope there will someday be a cure

    • @A.M.A-Attarch
      @A.M.A-Attarch 3 года назад

      @@satan2182 the doctor said in-between 1 and 2. If i train and lose weight again I'm closer to 1, but if i don't do that (like now) my level is 2.

    • @DinaAwd
      @DinaAwd 3 года назад +1

      No cure there brain damage.we can only prevent it

    • @arny625
      @arny625 2 года назад

      @@satan2182 girl what-

    • @satan2182
      @satan2182 2 года назад

      @@arny625 LMAO I WAS LIKE 13 HERE😭😭THANKS FOR REMINDING ME TO DELETE THESE

    • @arny625
      @arny625 2 года назад

      @@satan2182 LMAO

  • @PraveenSrJ01
    @PraveenSrJ01 2 года назад +2

    My younger brother who is 29 years old has cerebral palsy and migraines. He had right spastic cerebral palsy. He got physical therapy when he was 3 years old

    • @shiningstar1608
      @shiningstar1608 2 года назад

      Proven Sriram what about your son now?

    • @PraveenSrJ01
      @PraveenSrJ01 2 года назад

      @@shiningstar1608 I don’t have any children 👦 nor am I married to be bluntly honest with you

    • @shiningstar1608
      @shiningstar1608 2 года назад +1

      @@PraveenSrJ01 oh sorry I want to asked about your brother....please don't mind

    • @DimanaSirenHead
      @DimanaSirenHead Год назад +1

      Can he walk like normal person ? My son diagnosed by doctor that he is CEREBRAL PALSY spastic .. he is 4 years .. still can not walk .. 😢

    • @PraveenSrJ01
      @PraveenSrJ01 Год назад

      @@DimanaSirenHead he is 31 years old and cannot walk like a normal person. He walks at about 0.9 to a maximum speed of 1.2 mph with a walker or a cane 🦯

  • @emmarose4234
    @emmarose4234 3 года назад +6

    Journee is adorable! 💕

  • @MommaBao
    @MommaBao 9 месяцев назад

    Alyssa is in the video. She is an amazing PT

  • @Smithrod12
    @Smithrod12 4 года назад +6

    I have a 9month old baby girl that was diagnosed with cerebral palsy
    Please any help you can give

    • @maryhughton2572
      @maryhughton2572 4 года назад +1

      roda ojo Get her up and standing.....bearing weight... as soon as possible. Work with her constantly. I was really relaxed with my daughter because she went through so much...26 weekend, but I regret it.

    • @tropicapahpel9667
      @tropicapahpel9667 3 года назад +1

      Therapy!!!! Therapy helps.

    • @physiotherapistsushmeet7648
      @physiotherapistsushmeet7648 2 года назад

      You can contact me for free consultation and online therapy :) dm for further inquiries on my Instagram page paediatric_movement_

    • @jeff7764
      @jeff7764 2 года назад

      Get her moving and keep her busy. Best advice I know of. My nephew has pretty severe CP

    • @arny625
      @arny625 2 года назад

      @@tropicapahpel9667 not always

  • @yogtherapyshobhasoni6637
    @yogtherapyshobhasoni6637 5 лет назад +4

    Main yoga therapist hun aur aur in hi Tarah Ke bacchon ka ilaj Yog dwara Karti Hoon

    • @AttiaVlogs
      @AttiaVlogs 4 года назад

      Ap kaha se ho kis country se? Reply me

  • @jeannieves6275
    @jeannieves6275 2 года назад +1

    Adorable 🥰

  • @murtazalaghari3122
    @murtazalaghari3122 Год назад +1

    My son has been suffering same issue please help me jam from Pakistan

    • @ahadalam7218
      @ahadalam7218 2 месяца назад

      Bhai apka beta sahi howa mera beta bhi 15 months ka hai apne kis ko dikhaya

  • @growingwithpodrey6744
    @growingwithpodrey6744 11 месяцев назад

    Will this work for quadriplegics

    • @JohnsHopkinsMedicine
      @JohnsHopkinsMedicine  11 месяцев назад +1

      For questions around medical advice, we suggest talking to a doctor or healthcare professional.

  • @manobaloch1166
    @manobaloch1166 3 года назад +1

    Plzzzz help me my child is seven year old and she is c p child plzzzzz help me plzzz

    • @JohnsHopkinsMedicine
      @JohnsHopkinsMedicine  3 года назад +2

      Hi, Please reach out to inquire about a new appointment by calling 855-695-4872. Please note, many of our offices are reaching out to patients to reschedule appointments as video visits; this will depend on visit type and currently, these are only available for existing patients. Please call the above number to learn more about what options may be available for your specific situation. You can see more on our patient and visitor guidelines at www.hopkinsmedicine.org/coronavirus/index.html#patient-visitor-alerts

  • @user-ww7iq7tw5s
    @user-ww7iq7tw5s 4 года назад +1

    😭😭😭 The girl is so pretty. What a sad story

  • @arny625
    @arny625 2 года назад

    Why did my doctors do surgery than ignore me no physical therapy at all

  • @CpMotherWorld
    @CpMotherWorld Год назад +1

    ❤❤❤❤

  • @dr.rahulbharat8210
    @dr.rahulbharat8210 4 года назад

    Nice 👍👍

  • @gitanjalipuri3824
    @gitanjalipuri3824 2 года назад +1

    Anusha 475A

  • @Guitartutorialsandcovers
    @Guitartutorialsandcovers Год назад +2

    bro's from ohio

  • @yogtherapyshobhasoni6637
    @yogtherapyshobhasoni6637 5 лет назад +2

    Sir Meri therapy Thodi Si different hai par main UN bacchon ke liye bhi kuch karna chahti Hoon

    • @ibrahimurwa2896
      @ibrahimurwa2896 4 года назад

      Meri beti ko b bohat c problems ha kindly ap mujy koi yoga batain

    • @AttiaVlogs
      @AttiaVlogs 4 года назад

      Ibrahim Urwa ap kaha se ho sis.. Mera baby b cp chaild hai. Reply me

    • @AttiaVlogs
      @AttiaVlogs 4 года назад

      Varsha Srivastava apka baby kitny Year ka hai?

    • @AttiaVlogs
      @AttiaVlogs 4 года назад

      Varsha Srivastava mera beta 3 sal ka hai.. Mai threpy krwa ri hn Mai Pakistan se hn

    • @AttiaVlogs
      @AttiaVlogs 4 года назад

      Varsha Srivastava dear kia kia activities kr leta ap ka beta or ap kia treatment krwa ri ho. Mery channel pr mery bety ki video hai. Ap b dikhao apny baby ki pic

  • @lucindawinehouse2002
    @lucindawinehouse2002 3 года назад +3

    I have Cerebral Palsy and I hate it

    • @A.M.A-Attarch
      @A.M.A-Attarch 3 года назад +2

      same

    • @gutsfield3504
      @gutsfield3504 3 года назад

      Same

    • @satan2182
      @satan2182 3 года назад

      Hopefully there will be a cure one day

    • @lucindawinehouse2002
      @lucindawinehouse2002 3 года назад +1

      @@satan2182 What I hate most about it is the physiotherapy

    • @PraveenSrJ01
      @PraveenSrJ01 2 года назад

      My younger brother has cerebral palsy and migraines and I have high functioning autism

  • @majormajor7925
    @majormajor7925 3 года назад

    Ah aadyathey doctor malayali aayirikum ley

  • @venusuragan2286
    @venusuragan2286 2 месяца назад

    ⛷️🛼