I am a first year med student. thank you for framing this condition in terms that are so easy to understand. Your video was a perfect companion for the material my professor has offered. thanks!
i am a seconed year med student and i just took Thalassaemia. in my first year we didnt take that much of information .. we just take the principles of pharmacology , biology ,histology, micro,physiology,embryo .pthology.and we took muscloskeletal system . during that time i didnt feel iam medicine student now iam happy becouse ifeel it now (:
A much need video.Excellent, should have been done many years ago. I lost my 11 year old daughter after a bone marrow transplant to cure her thalassemia major .
This video is highly informative, and it makes this scary condition easily understandable for young children. I was never aware that so many young people had thylassaemia and it's an eye opening experience to learn about more it. Came here from Girly_Wolfgamer's gacha.
I got Thalassemia :( And I feel weak and tired sometimes, get headaches when I get up too fast, and have sleeping problems. I hope I can get rid of it. :/ And hopefully I won't pass it down to my children.
Got thal minor ( it's not minor you can't live normal life!). Might be long here or maybe make video about it. Gona mention how I feel symptoms in young age & now how people/family react to it, what works & what hasn't for me. I've had this for years but never really took anything for it until recently. Now in late 30s i feel its affects a bit more. Young age I was like any other kid I didn't know about it till in my teens. Dr's either didn't know about it or just brushed aside. I was given a small card by my dr to carry I remember with my condition mentioned on it. Said need to show incase I'm admitted to hospital. But never thought much of it really tbh. It didn't bother me. But recently 2 3 years ago had a couple blood test after feeling fatigued a lot. According to my dr my iron was low can't remember exactly what it was but prescribed iron tablets to take over a month. They didn't do anything & I know too much iron is not good to. Someone mentioned here the dr say the word "crash" to them. Basically you will crash. That's exactly how I feel on occasions unable to get up. Thank God mentally in strong which is how I overcome this.
Hi this video is super educative, i’d love to find a similar video regarding sickle cell disease. The language is simple and easily understood by children.
dear joshi my daughter she is just 4 month and I found Beta Thalassemia Major ,I heard first this name and surprise,i have elder son but I was check he don't have beta thalassemia,since how long you are suffering this problem and what I want to do for her.please advise me.
Please go to www.thalpal.com You'll get better advice and help. Please refer to a well versed Haematologist for medical advice. 請到www.thalpal.com 你會得到更好的建議和幫助。 請參考一個深諳血液病的醫療諮詢。
I was born with beta thalassemia minor and my little brother was completely healthy. He ended up being the perfect match for me to have a bone marrow/stem cell transplant. I ended up having it twice because the first one didn't work due to a partial dosage of chemo and radiation. with the full chemo and radiation, the transplant was successful. This happened when i was 11 and 12 years old. I'm 29 now and healthy as can be. Wishing your family the best.
Does anyone else experience pain in their limbs from lack of oxygen or their limbs fall asleep easily. I've been having these problems for years and I talk to doctors. All they told me was that I shouldn't have each symptoms because it's minor.
im beta thalla minor, 2 years passed i fell breathlessness, dizziness/virtigo, my mcv 63, mch 20, heamo 13.5... Doctors said minor is nothing! But i feeling not good at all.i fell my blood cant catch my breath when i breath & like every breath.
thanks for such a informative video.. I am also thalessemia major patient .. I'm 20 years old and before 5 6 months I was not feeling so active I don't know why? I'm confused about that but I always take all meds time to time and complete treatment whatever I need after 14 days I go for blood transfusion.. but mostly I'm feeling so tired and weak when my h.b going less i feel so weak i couldn't do anything i think my body needs more blood ? my doctor recommended me hydrea medicine but afer 6 7 months I didn't see any changes and my ferritin also not going down still in 7,600 maximum :/ what should i do for it now in this stage I'm totally disappointed guide me something which really works im fed up with my lazy condition ..
Hi hira, I am 17 years old with beta thalasemia major and I completely understand where u are coming from. Are u using chelation therapy enough because i used to not use it often (bad I know but I had a lot of pain with the pump) and my heart began to fail which caused me to be tired and my body wore down. After I began using the chelation therapy properly (I do it five days a week, the pump) I feel better and am healthier but still kind of always tired. This blood disorder sucks :/
Hello! There are some mistakes here. This is Iron deficiency anemia, and not Thalassemia. If your MCV (The size/volume of your blood cells) are low, and MCH (The Hemoglobin that lives inside your blood cells which carries the Oxygen to the rest of your body) is low, then you have Iron-deficiency anemia. If you have Thalassemia, then MCV and MCH must be low in your blood test results, plus an increased amount of RBC (Red blood cells) and normal RBW. So not everybody here has Thalassemia. Iron deficiency anemia isn't that dangerous, so don't be concerned about it. Iron deficiency anemia is the most common anemia, and it can be cured without taking medicines by eating healthy food.
Dear thalasemia patients’ body is unable to produce blood because of the weak bone marrow and also not able to get rid of iron so they need to take medicine or desferal injection to get rid of iron that stored in their body parts esp heart, spleen and liver.
there is the transplantation of bone marrow but as I heard is a lil bit dangerous and also there is the gene therapy but it's in an experimental stage as I know.. :)
I'am a BSN graduate and I'am watching this for my upcoming board exam. Hahaha stupid me. But it's cute i'll let my future daughter watch this kind of videos someday :)
I have a thalesmia minor .............I feel weak and tired and i have headaches everyday and every times and have sleeping problems................and I used to drink energy supplement for the less effect of thalesmia ............
ma petite fille de onze ans décédée tumeur cérébrale, elle avait la thalassémie MINEURE et la médecine minimisait son cas me disait toujours que sa fatigue chronique et maux tete et troubles vue etaient pas graves ! honte à eux ils ont pas soigné mon enfant et l'ont emportée a coups de traitements lourds ; si vous avez la thalass"mie meme mineure, méfiez vous ! n écoutez pas les docteurs ! ca peut être grave !
dont get dissapointed and dull... nothing happens .. all you use to do is having a strong will power and drinking lots and lots of water. quit regular smoking and regular alcohol.
Doctors do really suck at helping nowadays. All what they care is to have a fast-talk and then get to the other patient as fast as possible to earn more money.
This is so incredibly sad! :'( I hope that all the children with Thalassemia get a lot of support and love!!
that was so sweet
ZivaIsNotATraitor I have it
Stay strong gurll👊👊
I have the same issue as Stupid63422
I have it and was born with it because my mom has it, grandma has it, uncle has it, and grate grandma and possibly so on
I am a first year med student. thank you for framing this condition in terms that are so easy to understand. Your video was a perfect companion for the material my professor has offered. thanks!
i am a seconed year med student and i just took Thalassaemia. in my first year we didnt take that much of information .. we just take the principles of pharmacology , biology ,histology, micro,physiology,embryo .pthology.and we took muscloskeletal system . during that time i didnt feel iam medicine student now iam happy becouse ifeel it now (:
I have a question i am 14 and have beta thalesimia what is that? And how is it different?
Best ever content on thalassemia and easy to understand for children.
I love this! Just found this a couple years later but really great way to educate kids about thlassemia. Great job!
I'd like to see other conditions explained so easily, so well done! Multiple Sclerosis or Type 2 Diabeties
I also thalassemia patient
But I don't feel that I am different from others I love my self very much 😍😘💕😊
A much need video.Excellent, should have been done many years ago. I lost my 11 year old daughter after a bone marrow transplant to cure her thalassemia major .
I'm so sorry to hear that.
My prayers go to you and your family.
May your little angel rest in heaven❤️
❤️❤️🙏🏾
This is me reviewing for my exam. Thank you for this simplified explanation although now I am sad to know that people live with this condition.
Glad it was helpful!
This video is highly informative, and it makes this scary condition easily understandable for young children. I was never aware that so many young people had thylassaemia and it's an eye opening experience to learn about more it.
Came here from Girly_Wolfgamer's gacha.
I got Thalassemia :( And I feel weak and tired sometimes, get headaches when I get up too fast, and have sleeping problems. I hope I can get rid of it. :/ And hopefully I won't pass it down to my children.
Do you have major or minor?
It's minor.
Me too and i pretty much have exact same problems.
Stoned Jesus Yeah, it sucks but it's not as bad as it could be, thank God! And we can prevent it too :)
there is a bone marrow transplant . i dont alot about it but it may help u .
Got thal minor ( it's not minor you can't live normal life!). Might be long here or maybe make video about it. Gona mention how I feel symptoms in young age & now how people/family react to it, what works & what hasn't for me. I've had this for years but never really took anything for it until recently. Now in late 30s i feel its affects a bit more.
Young age I was like any other kid I didn't know about it till in my teens. Dr's either didn't know about it or just brushed aside. I was given a small card by my dr to carry I remember with my condition mentioned on it. Said need to show incase I'm admitted to hospital. But never thought much of it really tbh. It didn't bother me.
But recently 2 3 years ago had a couple blood test after feeling fatigued a lot. According to my dr my iron was low can't remember exactly what it was but prescribed iron tablets to take over a month. They didn't do anything & I know too much iron is not good to.
Someone mentioned here the dr say the word "crash" to them. Basically you will crash. That's exactly how I feel on occasions unable to get up.
Thank God mentally in strong which is how I overcome this.
This is so sweet. Thank you for helping children learn about their conditions in such a lovely way
Very awesome informative video. The young boy looked so sad. I'm glad he got a hug at the end. :-)
awesome video, easy, simple understandable; best for public awareness
I'm 2yo and i have a Beta Thalassemia this video is very usefull :) thank you for making the video.
I'm a college student watching this for my nursing school exam...
Wow,that's a perfect short explanation about thalassaemia.I like it....
Hi this video is super educative, i’d love to find a similar video regarding sickle cell disease. The language is simple and easily understood by children.
Your teaching style is v.good sir. I understood easily the whole incident occur during this disease..
I am Beta Thalassemia Major and I just turned 40 this year
dear joshi my daughter she is just 4 month and I found Beta Thalassemia Major ,I heard first this name and surprise,i have elder son but I was check he don't have beta thalassemia,since how long you are suffering this problem and what I want to do for her.please advise me.
my son have beta tal too..how you keep ur ferettine low?
Please go to www.thalpal.com
You'll get better advice and help.
Please refer to a well versed Haematologist for medical advice.
請到www.thalpal.com
你會得到更好的建議和幫助。
請參考一個深諳血液病的醫療諮詢。
I was born with beta thalassemia minor and my little brother was completely healthy. He ended up being the perfect match for me to have a bone marrow/stem cell transplant. I ended up having it twice because the first one didn't work due to a partial dosage of chemo and radiation. with the full chemo and radiation, the transplant was successful. This happened when i was 11 and 12 years old. I'm 29 now and healthy as can be. Wishing your family the best.
+luv2learn so it means your thalasemia is gone???
Very good information about blood and thalassaemia in short video.
Thank you.
With God all things are post I believe in miracles and there is a cure out there just trust and believe in God 🙏🏽
Me at 0:10, "SHUT UP, YOU'RE NOT MY FRIEND! You ALWAYS abandoned me!" Lol
I am in senior high school and this helped me :P
Love this cartoon. Please make more it's great for kids
Does anyone else experience pain in their limbs from lack of oxygen or their limbs fall asleep easily. I've been having these problems for years and I talk to doctors. All they told me was that I shouldn't have each symptoms because it's minor.
im beta thalla minor, 2 years passed i fell breathlessness, dizziness/virtigo, my mcv 63, mch 20, heamo 13.5... Doctors said minor is nothing! But i feeling not good at all.i fell my blood cant catch my breath when i breath & like every breath.
i hope a Vietnamese version video. We need it.
greatly done!!!
Cute but very good video! Thanks!
This was the best and cutest video I have ever seen. I loved it
I'm 15, thalasemia from 6 year's old
thanks for such a informative video.. I am also thalessemia major patient .. I'm 20 years old and before 5 6 months I was not feeling so active I don't know why? I'm confused about that but I always take all meds time to time and complete treatment whatever I need after 14 days I go for blood transfusion.. but mostly I'm feeling so tired and weak when my h.b going less i feel so weak i couldn't do anything i think my body needs more blood ? my doctor recommended me hydrea medicine but afer 6 7 months I didn't see any changes and my ferritin also not going down still in 7,600 maximum :/ what should i do for it now in this stage I'm totally disappointed guide me something which really works im fed up with my lazy condition ..
Hi hira, I am 17 years old with beta thalasemia major and I completely understand where u are coming from. Are u using chelation therapy enough because i used to not use it often (bad I know but I had a lot of pain with the pump) and my heart began to fail which caused me to be tired and my body wore down. After I began using the chelation therapy properly (I do it five days a week, the pump) I feel better and am healthier but still kind of always tired. This blood disorder sucks :/
I've Beta Thalassemia Major.. And I'm 23+ ....!!!
3rd
year nursing student... and this is helping me study for exams..
Best video...!!!!:-)
3:17 kid got hops
Amazing video :)
this video is very usefull :) thank you for making the video.
Hello! There are some mistakes here. This is Iron deficiency anemia, and not Thalassemia. If your MCV (The size/volume of your blood cells) are low, and MCH (The Hemoglobin that lives inside your blood cells which carries the Oxygen to the rest of your body) is low, then you have Iron-deficiency anemia. If you have Thalassemia, then MCV and MCH must be low in your blood test results, plus an increased amount of RBC (Red blood cells) and normal RBW. So not everybody here has Thalassemia. Iron deficiency anemia isn't that dangerous, so don't be concerned about it. Iron deficiency anemia is the most common anemia, and it can be cured without taking medicines by eating healthy food.
Plus, Thalassemia usually comes from your parents (This information is not included in this video so I had to add up here)
Dear thalasemia patients’ body is unable to produce blood because of the weak bone marrow and also not able to get rid of iron so they need to take medicine or desferal injection to get rid of iron that stored in their body parts esp heart, spleen and liver.
I feel weak all the time 😦
I have thalassaemia and i go through all this stuff in this video
me too my friend.. my love and support to you! :)
Mπράβο σας , πολύ καλή δουλειά !!!!!
:(
My friend has Thalassaemia major, doc say it's incurable :'(
I want to know if there is any way to save her.
there is the transplantation of bone marrow but as I heard is a lil bit dangerous and also there is the gene therapy but it's in an experimental stage as I know.. :)
I'am a BSN graduate and I'am watching this for my upcoming board exam. Hahaha stupid me. But it's cute i'll let my future daughter watch this kind of videos someday :)
so cute!
u KISS (kept it short & simple)
Thank u
I'm 10 and I have thalassimia
+Alaina Tedrick Hi Alaina i hope you'll be okay, greetings from philipines!
+dennis valdestamon thanks that makes me feel really good
Lazy Lainy I hope You get Better
You r well.and don't. need blessings..
Just know u are efficient enough
I'm 15 and i have it too .... im crying right now... I'm so sad
Thanks for sharing this video.
I have a thalesmia minor .............I feel weak and tired and i have headaches everyday and every times and have sleeping problems................and I used to drink energy supplement for the less effect of thalesmia
............
Wer from u send me number WhatsApp me tak u
I have the type of thalassemia that doesn't require transfusion, what is that type called?
it's thalassemia minor, your like me, do you feel tired and sleepy too ?
I m umang (female) i am also a thallesimia major warrior
Me too. I fainted last time .
نسال الله السلامه
Le dessin animé est au sujet de l'alpha-thalassémie ou de béta-thalassémie, ou les deux?
my sister had same disease...
I have Thalassemia!
I have the alpha trait and I have to get infusions but I always feel better afterwards but their right it doesn't last forever
ma petite fille de onze ans décédée tumeur cérébrale, elle avait la thalassémie MINEURE et la médecine minimisait son cas me disait toujours que sa fatigue chronique et maux tete et troubles vue etaient pas graves ! honte à eux ils ont pas soigné mon enfant et l'ont emportée a coups de traitements lourds ; si vous avez la thalass"mie meme mineure, méfiez vous ! n écoutez pas les docteurs ! ca peut être grave !
I have this disorder but I've never done any of this in my life
I am prepared for nbde1 great help
God bless
wth just live with it. so trouble some to keep going back to the doctor
i think i have the minor one. im 18 and it sucks
Watching this for a University assessment thanks haha
I am Aditya Singh thalassaemla Pasadent
My 8 year old brother has alpha h constant spring. His currently in hospital for his 6th transfusion.
is Plasmapheresis used for Thalassemia ?
no, u should undergo blood transfusion or bone marrow transplantation
I'm getting tested for thalassemia next week :(
dont get dissapointed and dull... nothing happens .. all you use to do is having a strong will power and drinking lots and lots of water. quit regular smoking and regular alcohol.
from where can i get desferal pump in egypt
Please ask your local patient association. see this website www.thalass-eg.org/
Thanks:-))/
I'm 13 and I have Haemoglobin H disease.
Andrew Sani same man
i have alpha kind of thalisimia
15 day 2 units blood
I have major and it sucks
this is a good video Leroy. Thank you.
ik
my doctor said told I have thalassemia and that my body is likely to crash, and prescribed me iron pills with no more information
Doctors do really suck at helping nowadays. All what they care is to have a fast-talk and then get to the other patient as fast as possible to earn more money.
voULoir VicTOriA
Do you have major or minor? Why on earth did your doctor prescribe iron supplements?
With thalassemia you are not supposed to take iron supplements because it can cause iron overload. Iron overload can become very dangerous.
voULoir VicTOriA dont eat iron pills, its very bad if you have talassemia
please donite the blood i request
:(
This sucks
15 day 2 units blood