Warning about MRIs with Contrast - Breast Cancer Screening Struggles, Forgotten Lumpectomy
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- Опубликовано: 4 сен 2024
- The challenges of breast cancer screenings for women with dense breasts: sharing my story. If you're thinking about getting an MRI with contrast gadolinium, be aware of the potential side effects. I'm hoping this will help raise awareness about certain screening methods and issues, so you can avoid these problems. I believe cancer screening is very important, and I also believe it's equally important to be aware of any potential risks. We should be told those things so we can make an informed decision. Here I share my real personal experience with this. - Holly
Part 2 Update: • Breast Cancer Screenin...
Links to all the studies and articles mentioned are down below.
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STUDIES & SOURCES⤵
Lookup doctors, hospitals & companies to see how much they've paid or have received in payments: openpaymentsda...
Radiation Exposure from Imaging Tests:
www.ncbi.nlm.n...
DNA Damage Seen in Patients Undergoing CT Scanning
med.stanford.e...
2020 Systematic Review on Low Dose Radiation and Organ-Specific Side Effects
www.frontiersi...
Gadolinium Deposits Into Your Brain
www.ncbi.nlm.n...
Sofia 3d Breast Ultrasound System: social-innovat...
Delphinus Softvue 3d Breast Ultrasound System: www.delphinusm...
Contrast Caution, Gadolinium: hsc.unm.edu/ne...
Article, Gandolinium Deposition in Early MS Brains:
www.technology...
Article, GE's Own Safety Team Urged Company to Restrict MRI Drug (Gadolinium). This was an issue back in 2010: www.propublica...
#breastcancer
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A very personal subject, sensitively handled. Very brave, thanks for sharing. If it helps just 1 person, so worth it ❤
Thank you so much, Vince! 🙏
Thanks for sharing, it's so odd that medicine allows so many harmful and unoptimized treatments. Makes you question their intentions $$.
I agree!
YES...! Beware the $-Profit Motive - and also the "GROUP THINK" Dogma in MUCH of the Medical and "Nutrition" Establishment : (
All The Best, -70SomethingGuy
It's important to balance the risk-to-benefit of these tests. This is not a 'routine' screening. You have a mass that needs to be biopsied or removed. That should be your first priority. Either the biopsy or lumpectomy are the most accurate and don't involve radiation or contrasting agents.
Thanks, Robert. At this point, I am not sure if I still have a mass, though it's very possible, but I need an updated scan, so I am going to get an ultrasound asap. I should have included more info in the video about efficacy and safety of ultrasounds as there's been some really good research on it. It's been a very effective screening tool for me in the past, until the VA stopped doing my direct referrals for ultrasounds, and asked me to find a breast specialist to manage that. I think the problem area has been the same problem area for years and it was previously biopsied and fine, so that makes me feel a little better. Thankfully the 2nd opinion doctor said it looked fine and if he had been super concerned at the time, he would have done a biopsy. So these things put me a little at ease, yet I will still find a way to get in to get checked out soon. They will do an ultrasound and if it's highly suspicious, then they'll likely do an ultrasound-guided biopsy. I appreciate your comment.
I’m 63 and currently going through these test your talking about as I have had swollen lymph nodes under my arm pit and now we are doing the biopsy. I don’t understand why they just don’t do that first. Thanks for bringing this up, but I’m one for no vaccines past childhood. Some times we have to bite the bullet to stay alive.
I hope the biopsy goes well and that it's just benign. I had one biopsy in the past and it wasn't too bad, though it was intimidating. It can give you the peace of mind to know exactly what's going on instead of waiting. I know some people would prefer this.
Lumpectomy is best if you decide to get it manually checked .. if it is cancer you don’t want it to seed/soread with the biopsy puncture. Thermograms are great as well.. if you get a thermogram and that area doesn’t show over warm that also points to it being ok.
I was told that because of my family history I have to have a mammogram and a breast mri every year. Should I be concerned?
I am a doctor and I agreed 100% with your video. We should not blindly follow recommendations from health care systems that are moved by money. Our health and life matter.
Thank you! 🙏
Holly, I’m really grateful for people like you who are sending this message out in the world 🙏…not doing everything right away what doctors recommend to you without doing research about the potential side effects of procedures. Thanks a lot. I wish you all the best. Greetings from Germany 😘
Thank you so much! 🙏 I appreciate it. It's so important to research these things. :)
I’m a retired MRI technologist specializing in breast imaging. First technicians/ technologists NEVER read imaging so that’s that. When we are looking for cancer of any kind, we always use contrast first because cancers are very easy to miss and second the RADIOLOGIST will not read a breast MRI without contrast due to the possibility of missing a cancer. We have to look at risk vs benefit here. Many times a cancer is seen on MRI and mammogram only. Sometimes it’s seen of ultrasound. You absolutely have the right to choose what exams you choose to refuse but thats your personal risk. Personally, I wouldn’t risk it. If your initial mammogram was a birad4 you definitely should have had a biopsy. Then you wait years for a follow up? Please! I can’t even imagine a doctor saying to do a lumpectomy when they haven’t even confirmed a cancer! How would they know where to go? How would they get clear margins? Imaging does come with some minor risks. Radiation is accumulative and should be used with caution. Cancer survivors can get CT scans as often as every three months for the first year and more if there’s something questionable. Contrast agents come with risks as well. Once again risk vs benefit. I can’t say that enough! Something isn’t right here! Yet you are scaring the shit out of people who may absolutely need life saving imaging. Shame on you!
I agree with you that each person should weigh out the risks/benefits. There's no shame in sharing my situation, my story & some extra information that some doctors and other medical personnel fail to tell people. Those people should be ashamed if they are not properly informing patients. Example: I was told the scan with the contrast would be "super safe." I was not asked about the state of my kidneys, or told about any potential safety concerns with gadolinium. I know some places do bloodwork prior to this, to check eGFR. My doctor didn't tell me about the type of injection at all, so I was only told it was gadolinium after calling and asking about the injection.
In 2015 I had a biopsy due to a suspicious area. The findings were normal, showing benign breast tissue. I continued to get exams. They continued recommending mammograms but in 2017, I was told to followup with ultrasounds going forward due to extremely dense breasts.
In 2018 I had an ultrasound that showed a solid lesion, likely representing a fibroadenoma. Further evaluation with a biopsy is suggested. Birads 4a: suspicious. Later in Aug went for the biopsy & got all prepped and ready and they said that the area was previously biopsied, no need to do another one as it was previously benign and not a concern. Birads 2.
In 2019 I went outside for a consult and they recommended the lumpectomy for "slightly enlarging cystic mass," same as previously evaluated and biopsied. No birads noted. I met with a surgeon there and his first recommendation was surgery. So I wanted another opinion. This hospital also has a lot of lawsuits and issues.
Later in 2019 I got a second opinion and the ultrasound showed the cysts previously noted on past scans, including the benign-appearing solid area previously noted. Likely consistent with a fibroadenoma. Birads 2 benign. This was the last time I was checked.
I have an appointment this week so I can get further screening done.
Princess, Why intimidate others for using critical thinking skills? “When debate is lost. Slander becomes the tool of the losers”.
@@LifeDIY It’s the suggestion beneath that upsets me. I apologize, but, concerned that people who really need these types of exams will be too afraid. I lost my best friend because she wanted to “skip” protocols with her breast cancer. As for the contrast injection, we do check the Egfr in anyone over 50 or with a history of kidney disease that may be sent into failure. It will not send healthy kidneys into failure. With that said, your doctors probably know very little about what contrasts that are used. That responsibility was the technologist that was doing the exam. Even we are learning new things every day and it is our responsibility to keep up with that education. Most contrast (gad) is excreted within 24 hours. Studies have shown trace amounts can be retained not only in the brain, but, liver and kidneys, bones. Thus far, they have not recognized and health issues associated with said deposits. It could be months or years before it dissipates, if it even does.
@@LifeDIY if you were not asked or filled out a questionnaire for safety, I would never go back t9 that facility again for anything
Thank you for this follow-up response and I understand. I am so sorry about your friend and I appreciate where you're coming from. I will do another video and post to really clarify things. I am all for screenings, bloodwork and testing for all health issues. I made a lot of mistakes in my past and had an absurd number of CT scans as I had a lot of health issues over a decade ago, so I am now really careful. A few of the scans I had were necessary but most others were not. I just had no idea about radiation. When it comes to mammograms, I mentioned in the video that I am not against them overall or in all cases, I just want to be careful in my situation as I've been told to do ultrasounds and I do have concerns of excess radiation. I'm open minded to many things, but it depends on the situation and weighing out the risks and benefits.
I have seen some comments where people are saying they will never do any of the tests offered for breast screening, and that's not good. That's a good point about doctors not knowing about the contrasts being used, but I think they should be aware of what they're recommending, especially when recommending these things to be done so often. Many patients just don't know that there are any risks, when there really are. For some people, it's more of a risk to not do it. I just wish people were informed properly and that's my main issue. I also wish there were more options available. Sometimes doctors treat you terribly when you seek out another option, instead of offering guidance, knowledge, etc. In the end, I think choices should be offered and the patient can decide, with the help of their doctor.
I am a man and listening to you was a learning experience in domain of critical thinking and responsible personal research.
It sounds weird but sometimes even the most serious issues can just get pushed out of your head when other issues pop up. I totally get it.
Thanks, that makes sense. I wonder if it's a protective mechanism by the brain, when there's just too much going on.
Thanks for sharing. Patients are NOT given all the information they need to make decisions.
I have realized (just like you) that I have to research all treatment myself. Doctors don’t explain options and risks well enough. I have taken too many mammograms. No cancer just same size calcification. Mammograms are not without risks. I thought my doctor was taking super care of me. But she was taking care of herself.
I'm happy I came across listening to you. I'm suppose to have the mri Jan 26.I didn't know anything about the dye.I always thought it was colored water.This makes it much different. I'm 63yrs old and as I age I worry more about my health. ❤Thank God .I met you today. There's a reason for everything.
Ugh this scares me. I have the palb2 mutation as well as my mom and her sister. Both of them have had breast cancer already. My aunt had two different kinds at different times. I went ahead and got a preventative double mastectomy and reconstruction bc I didn’t want to alternate having an mri and mammo every 6 months as they suggested and with my personality, I would be worry daily about cancer so I wanted to lower my chances. I had to do an mri with contrast before surgery. Then since it was a 12 hour surgery, I got pulmonary emboli and had a total of 3 ct scans with contrast within 3 months. The first 2 were in the same week. Knowing how bad it is for my body makes me wanna cry but I was told I had to have them bc of the blood clots.
I wish money wasn’t prioritized over health but I think that’ll always be the way unfortunately. Also angers me that insurance companies dictate our healthcare and what doctors can and can’t do or in what order. My insurance company didn’t want to pay 2 hospital bills bc that said blood clots in my lungs wasn’t serious enough to stay overnight in the hospital!! How can insurance companies determine that? That’s a doctor’s job. Pisses me off!
I am so sorry for what you've gone through and I understand the stress when looking back at the past scans we've had done. I cannot imagine a 12 hour surgery. With the blood clots and CT scans, they might have used an iodine-based contrast dye instead. So, you may have only had the MRI with gadolinium that one time. I know it's still stressful though, so I am sorry. Recently I gathered up all my past medical records and created a doc to document all the scans I had done - mostly the CTs. I had such a ridiculous number of them and most of them were not necessary at all. I had enough radiation equivalent to 25-30 years of background radiation living on earth. It freaks me out but at the same time, I just need to not think about it (yet be extremely careful going forward). I made a lot of mistakes. I am hoping those ones don't catch up to me anytime soon. I really hope you're doing alright now and thank you for sharing a little of your story. Someone needs to make a documentary on this topic. 🙏
Excellent video, Holly!! You are so kind to share all of this-I’m just so sorry for all you’ve had to go through up until now dealing with this! :( I hope you’re able to get closure and peace soon. 🙏🏻❤️
Thank you so much! 🙏
As a breast cancer survivor in my 70s I do wonder sometimes if the 30 years of mammograms contributed to my cancer. However mammograms, MRIs and ultrasounds find different things and I think you are right to fight for an ultrasound if you are not going to have mammograms and MRIs. I also think that it’s understandable that the radiologist wants the dye- if they miss something many patients would be the first to sue them if a cancer is missed because the scan isn’t that good without it. You’re younger so I can understand that you don’t want to be exposed to these risks for many years to come but one MRI with contrast, to have a baseline, and relieve your mind, wouldn’t be that risky. Also- is there some reason why you can’t say “Covid” and instead say “an illness was going around?” Does RUclips not allow you to say “Covid?”
I am 65 and I have never had mammogram.. I remember when i was about 16 seeing on the News that Canadian doctors had put out a report saying how dangerous mammograms are. The news that even said that the report was saying they can cause cancer but that a high percentage is false diagnosis. Later in life around 30's when my doctor said i should have one - I just didn't say anything.. few years later i was told i should have one every couple of years now , I just didn't . A couple of years ago on social media reading though posts , someone in another country talked about how Canadian Doctors discovered how dangerous mammograms were but they were hushed up. I had just determined it is unnatural and through the years i heard to many stories of false diagnoses . I determined somewhere in my 30's if i get Cancer i will deal with it and accept what ever comes but i was not going to go for any testing because it did not feel instinctively right.
I'm so sorry that you had to go through such an upsetting search for answers. We don't know what we need to know until we are thrown into a situation. I admire your strength when you questioned the safety and need for using the contrast.
I am a MD and I list gadolinium as a drug I am allergic to as I refuse to have an MRI with it. It stays in your brain tissue.
Thank you for sharing this! I too told my past doc I had a reaction to it, which I did previously. I'm going to add it to my allergy list next time I'm seen, so it's in my record forever.
This was a very informative presentation. I am a man, but relate to everything you are sharing, especially being a veteran. I have also been exposed to things in my long military career and left with some type of autoimmune/challenged immune system. It is so good the VA supported some second opinions, etc. When I first exited the military, there wasn't the community care there is now. I also received some excess radiation exposure (VA doctors, cat scan etc.). I ended up getting one operation (knee) that was definitely not good. Recently, I fought to get a second opinion of a colonoscopy exam (the first doctor definitely didn't check all my boxes for competence). Anyway, you are on it and that is a good thing. I hope you have the support sometimes when you go through these things. It can really wear on our minds/bodies to just "find" the right doctor and treatment as to prevent more issues.
God Bless you and I wish you a healthy New Year!
Thank you for your service. And, thanks for taking the time to watch this and comment. I can imagine you must have been exposed to a lot of things if you were in for a long time. I bet you have a lot of interesting stories from your time in. I know they're now offering disability to more veterans for issues like autoimmune problems/fatigue/etc. due to past exposures or Gulf War Syndrome. Hopefully you have a good VA doctor. It's difficult to find them sometimes. And, sorry to hear about the bad knee surgery. Maybe you can get it looked at or fixed outside of the VA. I know what you mean about the community care as I remember when they just started the program. It's really great to have as an option as there are many things I'd prefer to get done outside of the VA too. I don't honestly have much support in any of this. But, God is with me so you can't get much better than that. :) I need to remember that sometimes as I get too caught up in everyday life. You are right, that it's really stressful just trying to find a decent doctor. I really hope you have a wonderful week and happy healthy New Year too!
@@LifeDIY Thank you sister and thank you for your service also! You hit the key word for all of our trials in this life, God. I will keep you in my prayers.
Thank you so much! That means a lot. 🙏
I had a breast MRI with and without contrast in July of 2022. Th reason was I was diagnosed with invasive globular carcinoma ( breast cancer) in my left breast it was recommended I get a lumpectomy to remove the cancer which was fortunately very small and stage one. I did have surgery and radiation and have been NED , no evidence of disease since.
Thank you for sharing I did not know about the dye. The breast MRI ended up in costing me $5000 out of pocket. The surgeon ordered it and its standard before a lumpectomy.
Thank you for sharing this. I am sorry to hear about the cancer, but happy to hear about NED now - no evidence of disease since! I had no idea the MRI was so expensive. In my case, the recent MRI recommendation wasn't for suspected cancer, just a routine exam. I found my last record when I was seen in 2019 and they said it was likely a fibroadenoma, birads 2. I really do need a followup now, so I am trying to get it done asap.
The ONLY imaging I will consent to is ultrasound which seems to be non-destructive testing. I don't take anyone else's word for it / anyone else's lead regarding my heath since the stuff that happened starting around 2020. I'm in the driver's seat for my health - anyone else sits in in the passenger seat, if not the back seat.
LOVE IT! "I'm in the driver's seat for my health - anyone else sits in in the passenger seat, if not the back seat" - yes!
Our medical system is officially broken and now fully based on corporate profits with little to no concern for patient care. Wise move to research and school yourself to better advocate for your own health.
I found a large lump and told my doctor I wouldn’t do a mammogram so she booked an ultrasound. But when I got there they tried to convince me to do the mammogram. Three people tried to change my mind but I stuck to my guns. You have to be tough
I hope everything turned out ok. 🙏 Good for you for staying strong with what you're comfortable with! Some people are getting upset with my video here but people should have the right to make informed decisions. You should not be pressured or treated badly because of things like this, and that seems to happen a lot. They need to properly inform people of the risks associated with different procedures so you can make a sound decision. The testing and screening is really important, but people need the full picture, and more options.
About 40 years ago I found a lump in my breast. My doctor went straight for an ultrasound without a mammogram (because the lump was very evident by touch) and I got a lumpectomy without any biopsy. The analyzed the tumor and it turned out to be noncancerous. I’m glad I was able to swiftly resolve the issue and get the growth out of my body. There was no disfigurement, just a small centimeter sized scar which faded so it’s imperceptible.
I also am careful with radiation. I have never had a mammgram and I refuse routine dental xrays (unless a procedure needs to be done).
I wouldn’t be afraid of a lumpectomy. Get the #% lump out! If it is cancerous better to skip the biopsy because inserting a needle unto a cancerous tumor has a risk of letting cancerous cells break away and spread to other parts if your body.
Thank you for sharing this and it's good to hear yours was not cancerous! That's a good point about the biopsy and I've heard that a lot in the comments. My previous biopsy was a vacuum-assisted one and I've read that those put you at a lower risk for spreading any cancer. I did followup for a second opinion/scan after the recommended lumpectomy, and they said it was likely benign (fibroadenoma), birads 2, and no longer recommended the lumpectomy. They noted that it was the same area of concern as I had years back - same spot, same issue, and it was previously biopsied and benign. So, that makes me feel better, but I have an appointment for this week to see someone so I can get another ultrasound done.
❤️ ❤️❤️
DW-MRI is in clinical trail now. It is slated to be the first contrast-free, radiaiton free scan for breast monitoring. It is already approved for monitoring prostate cancer. We all need to be advocating for this!!!
Yes, thanks for sharing this! I hope it becomes available soon.
Oh there are so many risks with cancer treatments I have a lot of permanent damage it so hard to decide your not negative it’s totally your choice and what your saying is valid ❤
So glad you listened to your intuition & got the 2nd opinion! I’m a PA & work solely with breast cancer patients so when you said they recommend going straight to lumpectomy without biopsy, I was like 🤔😥.
Dr. Vinay Prasad has a good video on the use of mammograms for screening 😊.
Thank you! I agree regarding the biopsy. And, I really like his content. I watched his video a while back but will check it out again.
I watch him! He has good covid vids too
I always said that they should have a bra-like mammogram machine, with different (or adjustable) cup sizes, to take 360° images of the breast tissue. 🤷♀️
I chose a preventative double mastectomy because I didn’t want a mammogram and mri and I could not be happier. I’m wondering if you considered that option . I don’t have to have any screening anymore and I lowered my risk to less than 1 %
I did this too! I am palb2+ and have a few close family members that are positive and have had BC already.
Wtf why would she do that?
Have you heard about Thomas Seyfried? After listening to him(and after seeing what conventional medicine did to my moms gastric cancer) I can’t come up with a reason to do screenings. It will just not change anything for me. I’ll continue doing what I’m doing and eating what I’m eating. Ketogenic carnivore.
Also careful w the biopsy.
Was just listening to an interview of him
today. He is great-
If you can afford it you can look into thermoscans it's completely safe. Good luck and prayers for the best outcome for you.
👉Thermography👈is the answer. This is what they use in Europe. It doesn’t use any radiation. The machine picks up any abnormal/excessive heat in your breast, if there is any. Insurance may not cover it but it’s only around $300 (in LA). Advantages: 1. No radiation 2. Much more accurate than Mammography and 3. Early detection; it detects any abnormality very early comparing to mammography.
I hope you read this asap and find a Thermography center near or far from you and spend you best $300. Then make a video about it so all your subscribers and viewers know about this option. ❤❤❤
Thanks for sharing this!
I had a breast MRI with contrast in 2017.
A few days later I had horrendous diarrhea and an unexplained rash all over.
The MRI was of no value as it contradicted what the ultrasound showed.
What??
Nothing conclusive.
Excuses, excuses...I was too thin to get good results or something ???
Very confusing.
This was after I refused 5 breast biopsies.
Went a year later and my 3D mammogram was NORMAL.
That sounds like a stressful ordeal.I am glad to hear it all came back normal in the end.
I can understand your frustration. I was diagnosed with NON-ATYPICAL HYPERPLASIA via an ultrasound and endometrial biopsy. Doctor wants me to get a hysteroscopy under general anesthesia to look at my uterus more thoroughly. I've researched and found that most hysteroscopies in the UK are done in office without anesthesia. I don't want to be put to sleep, but my doctor insists i need anesthesia; which I feel is risky for me at age 55. I don't understand why a gynecologist wouldn't be willing to try the method with the least complications first. ❤
I am really sorry you're going through that. I wonder what his reasoning is that he won't do it with twilight anesthesia. You'd still be knocked out and not remember anything if you had this type of anesthesia. I looked the procedure up and it turns out, my mom has had this done in the past a couple of times. I know it's a huge hassle, but maybe you can get a second opinion. Some doctors are so set in their ways, without thinking about the patient's feelings. Sometimes they have a good reason behind it, but if your doctor does, he should tell you. I've had similar issues where the doctor just prefers to do things a certain way and that way is their only way.
@@LifeDIY I believe that is the case with my gynecologist. I have an appointment with her tomorrow, so hopefully she will listen to me. I don't mind iv sedation, but she's concerned about the pain. ❤️
I hope your appointment went ok. 🙏
I completely agree with you to do your research. However if you had a birads 4 mammogram that is a very abnormal result. 5 is strongly suspect cancer and 6 is known breast cancer. I am the mother of a 28 year old chek2 positive daughter who has breast cancer. Please don't think just because you look healthy and feel healthy you can't have cancer. A biopsy is the only way to confirm cancer. I would not skip that step. That being said I am 66Year old chek2 positive and I only do a mammogram one year and a contrast MRI the next year. So far nothing has been abnormal but if it was I would take every step necessary to get a diagnosis. Please follow up!
Correct, abnormal result and some of these responses from ppl that seem willing to delay tests based on youtube info are scary. Dye is bad but not as bad as delaying testing and treatment until its in bones & liver. I promise the treatments at that point are worse than the dye :(
Nancy, thank you so much for this comment. I am so sorry about your daughter's breast cancer. I was a little bit off on my timelines of events I shared in this video, plus I didn't explain it all in depth. Basically, the last time I was seen it was a birads 2 and they said it was likely a fibroadenoma (2019). Sorry I didn't mention that in the video, as I just figured it out when looking back at records.
In 2015 I had a biopsy due to a suspicious area. The findings were normal, showing benign breast tissue. I continued to get exams. They continued recommending mammograms but in 2017, I was told to followup with ultrasounds going forward due to extremely dense breasts.
In 2018 I had an ultrasound that showed a solid lesion, likely representing a fibroadenoma. Further evaluation with a biopsy is suggested. Birads 4a: suspicious. Later in Aug went for the biopsy & got all prepped and ready and they said that the area was previously biopsied, no need to do another one as it was previously benign and not a concern. Birads 2.
In 2019 I went outside for a consult and they recommended the lumpectomy for "slightly enlarging cystic mass," same as previously evaluated and biopsied. No birads noted. I met with a surgeon there and his first recommendation was surgery. So I wanted another opinion. This hospital also has a lot of lawsuits and issues.
Later in 2019 I got a second opinion and the ultrasound showed the cysts previously noted on past scans, including the benign-appearing solid area previously noted. Likely consistent with a fibroadenoma. Birads 2 benign. This was the last time I was checked.
I have an appointment this week so I can get further screening done.
I’m glad you clarified a Holly that you are keeping a close eye on your issue. I was brief about my daughters breast cancer at age 28, but I want to also point out that she had a breast lump and swollen lymph nodes, and over the course of 18 months had three ultrasounds and two mammograms read by three different local radiologist, all of them who gave it a birads three reading, and said she had a fibroadenoma and it didn’t require a biopsy.
Those ultrasounds and biopsies were every six months and so at 18 months she went to a large hospital for the next recommended follow up mammogram and ultrasound, and they took her straight to surgery for a biopsy that showed this “fibroadenoma” was actually cancer all along. So she wasted a year and a half with cancer and no treatment. My point here is, please anyone who reads this realize that doctors often aren’t perfect or could care less about what they’re doing. All her films and ultrasounds were read by a general radiologist instead of a breast specialist, and if I had known we could’ve taken her film for a second opinion, we would’ve done that no matter what the cost. After she was diagnosed with cancer, they did the genetic screen and found she has a Chek2 mutation.
Because of the delay in treatment, she had six rounds of chemo and 12 rounds of immunotherapy, as well as a double mastectomy . Glad that the MRI tech said your breast surgeon had specific people she wanted to read the MRI because the skill of your radiologist can make a difference in your life.
Wishing you the best !
Nancy, thank you so much for sharing this and I am so sorry about that horrible situation your daughter and your family has gone through. I truly appreciate you sharing this as it is a wake up call for anyone reading (myself included) to really advocate for proper screening and care. I'm basically in that same situation where they keep saying the area is a fibroadenoma, without biopsying it since 2015. So, at the very least, I need a biopsy to truly know it's benign. Mine was previously biopsied, but if there's any question about what is going on with the area, I think I need to do another one as it's been so many years now. Thank you again as I believe your comment can will help others. I wish you and your daughter and family the best too! 🙏
Thanks for sharing that website, there is WAAAAAY too much financial conflict of interest going on in our medical system, I really try to avoid it. We have allowed illness to become dangerously profitable in this country.
For sure!
Great information! Thank you for sharing. For me, Thermography is the way to go.
Thank you! I have heard of this recently, so I will look into it more.
@@LifeDIY
Yes!! Thermography scans are what my naturopath recommends too! ❤
Thanks!
Your mammogram info is spot on !!!! Great job ! Love this !
Thank you!
Very informative video! Have you looked into thermography?
My VA doctor ordered an MRI for me with contrast and I simply refuse the MRI I will talk to her again in the spring and see about getting it without the contrast
Contrast isn't dangerous though
Omg, thank you so much for this info! It’s been 2 years since I went through radiation treatments and chemo and surgery for endometrial cancer. I had a few MRIs with contrast. Nobody can tell me why my arms and legs shake all the time now, and I have horrible balance problems…I had no idea about the contrast. Also, I know what you mean about scare tactics. I realize now that first they make you fear for your life and tell you that you need to start things quickly. They then can inflict any type of painful torture on you, before you can research that there are things they can do differently to make it better, but it might take a little effort on their part. Instead you’re told not to look things up on the internet, that they’re saving you from being confused by too much info. I realized afterward that they don’t want you to look things up because you might question things instead of following along like good little sheep. They totally downplayed any effects, including long term ones which leave you disabled. There are awful long term effects from chemo which I was never told about. Imagine finding out you might have never even needed the chemo at all. Imagine finding out too, that oncologists are the only doctors who are allowed to get kickbacks. They make enormous amounts in bonuses from chemo drug companies. The radiation destroys you too. I refuse CTs now because I am so sick from the radiation they subjected me to, and I’m afraid to have more put in my body. I am way more sickly now than when I had cancer, and in way worse pain. I lost all trust in doctors for hiding the truth. They presented my treatments as all sunshine and roses, and chuckled at my fears for agreeing to them. I was told to sign the “informed consent” papers or die. I gave the consent but was never given the informed part. I admire you for being smart and strong. I learned too late.
I'm so sorry you have experienced the dreadful side effects and weren't told of both the positive and negative aspects of treatments/scans. I had BC and did allow CT's but no MRI's. I had surgery but refused radiation after I asked the oncologist what the effectiveness rate was and was told it was only 10-15%. This was only 2 years ago. I refused chemo also because my late husband developed heart disease from either or both radiation and chemo when he had cancer. He died from a heart attack. He had no heart problems before his cancer treatment. Of course, on his death certificate it listed heart attack not cancer treatment. We must each decide how we want cancer treated and that should be respected by our doctors. I wish doctors in the US would be more open to both natural and conventional treatments.
@@rochelles.8387 I’m sorry you went through cancer too. I’m glad you asked the right questions and declined what you felt wasn’t in your best interest. I’m sorry about your husband. I found out about chemo causing heart issues after I had my last chemo treatment and was sitting in the radiation waiting room. Another patient started talking to me that she was there for a recurrence of her cancer but they wouldn’t put her through chemo again because when she first fought cancer, the chemo damaged her heart. I was shocked. My chemo damaged my kidneys forever. Pelvic radiation damaged my bladder and intestines. I am now having to get an mri because I have horrific pain in my hip, and my doctor said pelvic radiation can cause little hip fractures. Ugh…we’ll find out soon. Stay well! ❤️
I am grateful that you shared this information 🙏
I actually finally got my breast biopsy after three months of waiting and then telling me they wouldn’t do the biopsy if I refused the breast marker. I stood my ground and finally got it done yesterday.
I am so happy to hear this. Good for you! I really hope it all went well. I wish I would have known about the breast marker before they injected that into me without my knowledge. It's not right. I would never have allowed it either. I am so happy for you. 🙏
What about Gadopiclenol for MRI contrast? They say it is better.
Yup screw mammograms & ct scans. Its so disappointing all these less damaging options are so expensive 😢❤ nice video thanks
Wow, Holly! I got what you're going through. You are doing all the right steps with your research. Keep doing that and agree to no procedure until you are convinced it is correct. Every MD in the country will tell you "It is safe" but NONE will correlate past cases to future difficulties. Even the ones that occasionally do rarely take full responsibility for even a slight possibility of future complications as a result of THEIR actions still would deny culpability as it brings up possible litigation and Medical Malpractice lawsuits that raise their Insurance rates sky high to the point most have to end up giving up their practice. Full responsibility lies with you. Make no mistake, radiation is cumulative in the body (particularly in the fatty tissue) and does not leave unless forced to leave with a highly sophisticated specific regimen. Hang in there. Feel fully free to call anytime.
Hey Paul! Thank you so much. 🙏 🤗
Hi! This was my first time watching one of your videos. First, I want to say I'm sorry about any experiences you've had negatively in the past with medical people/testing. Some people have absolutely no bedside manner when it comes to these things. I can totally relate to the gene mutation stuff because I recently found out I have PALB2. Just fyi, if you have these mutations, your insurance might pay for the MRI, they just have to request it ahead of time and use the correct codes. I am not a medical person, I am just going through all of this right now so this is my experience. About the ultrasound, I think that it's difficult to "only" do an ultrasound (especially with dense tissue). Usually they do the mammogram first, then the MRI (or with gene mutations they say both is better, once a year or each test alternating every 6 months), so that when the tech finally does the ultrasound, they have an exact area to pinpoint to find the suspected issues. I imagine it's like trying to look by themselves for a needle in a haystack vs. someone saying hey there's the needle, and pointing to it. Does that make sense? That's how I took it when I had all 3 of those tests recently. Ok, back to my point. When I found out about the gene mutation, I mentally prepared myself for extra screenings and it had been almost 2 years (oops) since my last mammogram (pandemic, deaths in the family, etc.) so we did both MRI and mammogram. Unfortunately, they found multiple suspicious areas on my left side, and one possible area on the right. It was also Birads 4. I was shocked. I had no lumps or pain or anything. And nothing showed on the mammogram from 2 years ago. When they did the ultrasound, she said the areas were very hard to find because it was hiding in little pockets of tissue. They did a biopsy that day, and it did come back as cancer. They also biopsied a lymph node (which thankfully did not show cancer). I did not need any additional scans after that (like pet scans or anything). I decided to have a double mastectomy and reconstruction (using my own skin/fat tissue) and it's scheduled 2 weeks from today. The doctors agreed it was probably the best thing to do because of the gene mutation. And.. the best part.. no future MRIs or mammograms!!!!! I think that although the testing might seem bad/scary/like too much, in my case I'm glad I did it because if I would have waited any longer, the cancer probably would have spread. As of right now because of the type of cancer it is, they don't think I will need chemo or radiation. But if it spreads, they almost always need to do chemo. I'm not sure how I ended up watching this video (I think it was just the algorithm), but I'm glad I did. And I totally hope your suspicious area ends up just being a cyst.
My husband, his sister and their mother all have Chek2. The sister had ovarian cancer at 41. The mother had breast cancer. My husband's doctor told him Chek2 in males most often increases risk for colon cancer. So he gets colonoscopies more often than normal.
No one should feel pressured to get procedures..
100% agree!
I wont do Mammograms or contrast. Nor will I do chemo or radiation if I ever get cancer. All of these things are just huge money makers and do alot of harm. And I am 61.
You should absolutely watch the Brigham buhler episode of Joe Rogan. It's fascinating and eye opening to how the medical industry, insurance, and medical safety really works
Thanks, I will check it out!
DOCTORS...! Having had basically a LIFETIME to "Observe" the conduct of the Medical Profession, I believe it is IMPORTANT To - ALWAYS - Get a Second Opinion (or even a Third) before doing ANYTHING Serious Or Premanent : ( Stay Well. -70SomethingGuy
I 100% agree!
3Dor 4D mammogram work fine for dense breasts!
Thank you, but in my case, it didn't. The physician specifically stated I need to get ultrasounds due to the density, difficulty in detection with the mammorgram/3d mammogram.
It doesnt. It even states on my paper work. Mammagraphy can miss cancer due to your dense breasts.
I totally respect you for saying no and I just told the hospital no about putting a breast marker in that has many lawsuits against and they tried to tell me they wouldn’t do the breast biopsy without putting the metal marker in and I told them I will contact an attorney. I have waited over a year for a biopsy because two hospitals have gone back and forth with putting my referral for biopsy off. The medical industry is mostly all
About money and not about truth and patients being first anymore. If you question anything they label you and try and make you a problem, that’s not ok. Just as I didn’t get the 💉and I didn’t care what anyone thought it’s my body my choice. Also, most people don’t do their background research on medical issues or drugs, you must look for everything, google everything so you know your risks because they aren’t going to tell you, and pray about everything. I hope you get help and properly diagnosed.❤
Thank you so much, Kerri. Sorry for my late reply. I saw this days ago and lost track of it. I totally understand what you're saying about how if you question things they'll label you and try to cause problems. I've experienced this myself recently. You are right that it's your body and your choice to get things or not - 100% agree! I also agree about doing extensive research on everything - and to pray about everything. This is such good advice. I wish I knew this when I was younger. I really hope your recent appointment went well. 🙏
@@LifeDIY I just got a call from the nurse at the breast center Thursday saying I have breast cancer. I’m really upset because they took over a year refusing a biopsy saying it wasn’t cancer. I go this Tuesday to get diagnosis and information from the same nurse practitioner instead of the breast oncologist I’m supposed to be seeing. We are planning to go to md Anderson asap.
@@kerrimontgomery8732 I am SO sorry to hear this. And, they should have got you in much sooner. I'm sure you're already doing this, but be sure to document everything. Later, if I were you, I'd contact a lawyer about this. I'm praying for you.
Good for you getting a 2nd opinion
Thank you!
I had an allergic reaction the last MRI with contract. So...I dont plan to ever have it again.
Thank you sooo much for sharing this.
You are so welcome!
I completely agree with you! I have gone to different doctors and they wanting to do mammograms and I feel the same way as you! We need better options! I learned about iron based mri contrast perhaps better? Not sure! Maybe you can look into that one. People with high iron levels can’t get that procedure.
Thank you! You might be thinking of iodine-based contrast dye? From what I've read, they don't normally use it with breast MRIs. I am not sure why that is though.
They use or can use it for CT scans. You could have a thermogram done but you might have to travel a distance for one.
@@LifeDIY
You are very smart.
I really enjoy your content…. Thank you for doing what you do…❤
You are not having mammogram and MRI because you are afraid of radiation and contrast. If you are healthy and no cancer, it is okay. But if someone got cancer the cancer therapy would be brutal. Chemotherapy is a a poison itself, can damage heart, lungs, can cause secondary cancers. Corticosteriods, hormones cause menopause, osteoporosis... Surgery, pain, recovery... The dose of cancer radiation therapy is housands times higher than radiation dose of mammogram, CT scan. Every medical test, every procedure, every medicine has risks. Prevention is important specifically if you have health issues. People need to prioritize...
Thank you. I do agree with you that prevention is important and each person needs to weigh out the pros or cons, risks/benefits. You are right about the cancer therapy too. For me, I have extremely dense breast tissue and I've had many mammograms in the past and they cannot get a proper exam with it, due to the density. So they've recommended ultrasounds instead. Now over the years I've moved or doctors have changed and that's where I've now been faced with numerous issues of them pressuring me to do a mammogram. I also don't want the excess radiation and this is for a good reason for me. Years back, I did not understand the magnitude of radiation from CT scans and I cannot comprehend the number of scans I had done, due to doctor's recommendations (mostly through the VA). I had so much radiation that it's equivalent to 25-30 years of background radiation on earth, and I had it in a short span of years. I regret most of those scans as they were totally unnecessary. Also, I have a genetic mutation on an important tumor-suppressing gene. This gene is there to help prevent cancer and when you get radiation exposure, that gene is supposed to be there to mop up the damage and repair things, so that you do not develop a tumor or cancer. This particular one that I have does not work, so it puts me at an excess risk. In my case, I am supposed to be getting ultrasounds but I am stuck in a situation where my recent doctor would not do it for whatever reason.
In Europe only doctors do ultrasound. It is true thworat ultrasound is operator defended. Mammogram and US complement each other. You shouldn't worry about radiation dose and gadolinium.
Agree with everything you say here and all your concerns 100%! In the past I've had a CT scan or 2, as well as one mammogram for diagnostic purposes, ignorant as to the dangers. The CT scan was because I was paranoid because I had repeated bouts of indigestion and was concerned about esophageal cancer (I get anxiety). Before the scan, they asked if I was pregnant or had cancer, which to me was a big red flag, especially as they tried to assure me that the amount of radiation emitted was negligible and nothing more than you'd get from being outside. Then they told me that contrast dye would be used. I hadn't done any research into the procedure at all, so had no idea about the dye until it was mentioned. I was on the table at this point, so it was a bit too late. I asked if it was safe and they said there was a very small risk of a cardiac event, but that they had defibrillators on standby. That was very reassuring (NOT!), but when I said I'd prefer not to have it they said the results wouldn't be that accurate so I caved. I since found out that the dye used has radioactive particles. The mammogram was because I found a lump in a breast, which turned out to be nothing sinister - just a cyst - but this was yet another time when I had unnecessary radiation exposure. Incidentally, I was diagnosed with uterine cancer in mid-October 2022 and was told by the arrogant surgeon that it was "bad" and I'd need the works (surgery, radiation & chemo) less than a minute after waking from anaesthesia post hysteroscopy & before any pathology was analysed. Post 2020 I'd become very sceptical of the healthcare industry (post experimental jab push) and definitely did my research this time round. It became apparent to me that not only was conventional treatment something I wasn't willing to get, but that the diagnostics were also potentially dangerous. Consequently, I refused not only any 'treatment' but any CT or PET scans due to the high amounts of radiation. I still wanted some idea as to where things were at, so I opted for an MRI, but I specified beforehand that it would be without contrast, or I wouldn't get it done. At first they said this wouldn't be possible, but eventually they said they were willing to do it, however the oncologist wasn't happy with my decision. Over a year on and having made radical changes to my lifestyle and not set foot back in a doctor's surgery I appear to be thriving, despite refusing the standard of care (including surgery). I decided to opt for faith over fear. I have zero regrets!!
So happy to hear that you’re fine! I agree with the lady who made this video (sorry first time I’ve seen her). A one size fits all approach is not the best. This has been true for me. I worked in radiology. I was diagnosed with stage 3 high grade ovarian cancer at the age of 40 - that’s way too young. I did have 2 huge tumors and an ovary and Fallopian tube removed and am very grateful for that surgery. Then I turned to natural therapies (we have many options in Germany, but none are covered by the health insurance and heavily discouraged from doctors). Within a few weeks all my tests were clear of cancer. Despite this the doctors wanted me to have radical surgery and chemo. I refused, with was very hard to do (I have a 5-year old and don’t want to die), as doctors said I would die within 6 months. Well it’s been 9 months, and I have a check up a couple of weeks ago. I did have a CT scan with contrast. I’m still NED. The surgeon was amazed that I’m still alive. He said that I should have died 3 months ago, and I will die very soon unless I go ahead with the surgery and chemo and several years of hormone and targeted therapies. Even then he said I have a 30% chance of survival in 5 years, and I will definitely have a reoccurrence within 2 years after I’ve finished chemo. Honestly, if I go down that route, I’m sure that’s what will happen. So I’ll continue with my healthy lifestyle and natural therapies and keep getting my tumor markers and ultrasound done every 3 months. I can always change my mind if the cancer comes back. But what is the point of having tons of therapy when I’m NED? No, a one size fits all approach does not work for me.
Wishing you’ll the best of health 😁
Thank you, Helen. For me it was actually a very easy decision. I've followed several stories on this platform of people and their C journeys, and those who did everything their drs recommended have either died, are dying or the disease has recurred with a vengeance. My instincts told me that if I was to do what the drs wanted I'd die. Using toxic chemicals and radiation to 'cure' cancer doesn't make sense to me. I've completely lost faith in the system. Also, a serpent is their primary symbol, the agenda hidden in plain sight. Take care & God bless @@helenwiegand6183
I am so happy you are both doing well and Helen, it's so good to hear about NED "no evidence of disease." Your stories are shocking. Helen, do you mind sharing any of the natural therapies you turned to or are using? I am so glad to hear your surgery was a success. I cannot imagine the situation, and with a young son. You are incredibly strong. 🙏 Carmel, you mentioned the radiation and that's a big problem for me too. I looked back at all my records yesterday and created a health log of all my past scans and bloodwork, etc. I was younger and didn't know any better and I had an extreme number of CT scans, which is equivalent to 25-30+ years of background radiation. Some people (myself) also have mutations on tumor suppressing genes, and that can make it harder for the body to repair itself after these exposures. Thank you both for sharing some of your story here. Helen, I also had the same situation with the MRI where they refused to do it. I am so glad you stuck with it and got it done. I was turned away. We have the technology to do MRI scans of the breasts that are more accurate (similar to the accuracy when using contrast dye) but most places won't do them. It might be possible at a teaching hospital, but still seems a bit unlikely. I wish we had better, safer care.
Hi Holly, I encourage you to read a book by Andeas Moritz called 'Cancer is not a disease, it's a healing mechanism'. He goes into the dangers of radiation in his book, claiming that diagnostic scans are partly responsible for the rise in cancer cases. Cancer was rare 100 years ago. Now it's prolific. I wonder if I wouldn't have received the diagnosis had I not had a previous history of scans. I don't go to the doctor anymore. I don't get scans to monitor my progress either. I just trust my body to heal itself over time and detoxified my life of everything that may have contributed to the diagnosis (toxic job, food, pharmaceuticals, lifestyle choices etc) & leave the rest in the hands of God. I feel good, have loads of energy and my symptoms have dramatically lessoned, so going by that I know I'm on the right path. Take care@@LifeDIY
Hi, sorry for my late reply. I don’t know how to turn on notifications…
I’m happy to share what I did, but usually when I post this info it’s taken down! Here goes…
After tumor removal I immediately started juicing (a la Gerson). I then did Sanazon therapy at a clinic in Germany. The therapy includes live blood analysis; lots of ozone therapy followed by injections of several homeopathic substances, many anti-bacterial, anti-virals, and anti-parasitic, as well as homeopathic medicines which worked on detoxing the liver and spleen; Glutathione infusions). After 10 treatments the remaining cancer was gone.
Since my diagnosis I follow a plant based, dairy free, low oestrogen, sugar-free and reasonably alkaline diet. I attend the clinic every 3 months for a “top-up” of Sanazon therapy and live blood analysis to check the status of my cells.
In November 2023 I also started drinking essiac tea (the 8 herb blend) at a dosage of 100ml 3 x day, and started homeopathy about 3 weeks ago.
I wanted to fast, but was advised not to fast for 6 months after surgery, as the body can’t handle it well.
I get an ultrasound and have my tumor markers taken every 3 months, and more often if I have any symptoms. So far, the cancer has stayed away and I’m doing all I can to help it stay that way!
I have Chek 2, my team recommends screening every 3 months, mamo, ultrasound, mri
Still on my research mode
Thanks for sharing this. I thought every six months was a lot! It's good you're in research mode though. I wish you the best!
you should really look into the QT Scan and hope that it comes to an area that is accessible to you! it is a better and safer option!
Thank you!
breast ultrasound doesn't show calcifications, those show on mammograms. ultrasound complement mammogram.
Thank you for sharing this and it's an interesting comment. From what I've read, many calcifications aren't associated with cancer (www.mayoclinic.org/symptoms/breast-calcifications/basics/definition/sym-20050834), although some of them can be. It's good to know though. I think it's important that ultrasounds can detect solid masses, which may be associated with cancer. According to this study, "Ultrasound is significant in differentiating cystic from solid breast masses." pubmed.ncbi.nlm.nih.gov/21918690/. I am sure mammograms are useful, but in my personal situation, I have been told to get ultrasounds as the mammograms I've had are too hard to read due to breast density.
Tank, Will the mammogram or ultrasound show a cancer rash under the breasts? Some breasts cancers are rashes only no lumps.
@@LifeDIYultrasound recommended for me as well, for the same reason.
Thank you for sharing!
Thank you for sharing this very important information. I have worked in the US Health system for over 20 years, and the clinicians are often (sadly) quite ignorant of the risks of the treatments that they are pushing. It is a profit-based system, and any treatment or drugs being prescribed or recommended should always be thoroughly researched. Prevention is the goal, of course, and therefore finding a treatment that does not add more risk is paramount. Thank you for leading the way and providing an example of doing your own research :) Can I ask you what tests you used to check to see if you have genes that predispose you to breast cancer, and where you received them (home test vs. in-office)? Thx again
Thank you for such a supportive comment. It means a lot coming from someone who has worked in the US Health System for over 20 years. Do you have any advice for people when it comes to their medical care in the US? I really appreciate your point of view and perspective on this. This video actually offended some people, but my intention was to encourage people to do more research. I've made the mistake of blindly going along with certain procedures due to a basic level of trust in the doctor or nurse, without asking a ton of questions and it's had horrible consequences when I've done that. You can't always prepare for everything though, but it helps when people share their specific experiences on youtube and elsewhere. So, I am going to keep doing that! Regarding the genetic mutations and tests, I would love to share that. The main test I did was by Color Genomics and although it's an at-home genetic cancer-screening test, it is recognized as "medically validated," according to a geneticist I spoke with recently. Invitae is another one that they consider "medically validated." Besides that, out of my completely curiosity I also had my entire genome sequenced through Nebula Genomics. They seem to care a lot about privacy and that was important. That has been incredibly interesting for me and it showed the same mutations as Color, but provided way more information than that alone. But, it's not considered "acceptable as medically validated" to the medical agencies, as they haven't tried to go through that process. I hope this helps!
sorry to hear about your experiences, i know exactly how you feel... i went through similar situation where had an mri done a long time ago when i was young and was already wary about injecting foreign chemicals being injected into the body, mine was contrast called gadavist. i remember clear as day to present that i vowed to myself that would never do that again to my body. i remember severe joint pain, muscle stiffness, rashes, itching and felt like ants were crawling all over my body. currently i staying as healthy as i can by proper diet by eating whole foods, living an active life style day by day and let me tell you its not easy as im sure know and practice yourself. from time to time a get this muscle stiffness on my left arm, my left rhomboid muscle between the left sholder blade and spine and my left hand feels swollen when i wake up. til this day it always sits in the back of my head if that gadavist contrast dye caused this issue but i try and do my best to not thing about it and im sure at some point in time this contrast dye may or may not show up in brain somewhere, i hoping not..lol..but may to much and think about the never ending pursuit on how to optimize my health to the best it can be and live m life to its fullest... which in turn currently lead me on to the path of nmn, nrr, nad+..etc... nac, turmeric..blah blah blah..lol.. Again sorry to hear about your challenges that you face present and future and some times i wish i could help we have so many abus imaging and are pretty top notch according to their reviews. The positive side to all these challenges that happens past, present and future is that we are always always learning. As always Holly i wish you and your son well and great heath and hope you had a great Christmas and all the Best Wishes for the New Year to you and your family! stay humble, stay beautiful and stay healthy.
I'm sorry to hear about your experience too. I know when it was actually injected I felt that burning and itching and just didn't feel well. I can't remember how I was afterwards though. The joint pain and stiffness is concerning. I like that you're working on your endless pursuit to be as healthy as possible though. I love that. I am too! I really hope you had a great Christmas and a wonderful New Year too! 🙏
Imagining methods saved millions of lives, biopsy and CT scans too. It's your choice to deny or accept this diagnostic methods and opportunities to handle on time if it's needed, but to die from cancer is definitely not the best choice.
You said "previously biopsied and fine"...it doesnt sound like the doctors said fine, it sounds like it was graded suspicious and the dr wanted to see if it grew or spread before removing it. If you or any of these other ladies thinking this is great advice wait until its in the bones or liver you cant turn back time and realize why the doctors were recommending the things they were. If zero evidence of problems sure, carefully consider testing but this is not that. I hope nobody delays recommended tests bc they watched a youtube video like this
In this video I am just sharing my experience. I will clarify the timeline and details. Different medical facilities have different approaches and recommendations. People should work with their doctors, do their own research too and then make whatever decisions they are comfortable with. It's often complicated.
In 2015 I had a biopsy due to a suspicious area. The findings were normal, showing benign breast tissue. I continued to get exams. They continued recommending mammograms but in 2017, I was told to followup with ultrasounds going forward due to extremely dense breasts.
In 2018 I had an ultrasound that showed a solid lesion, likely representing a fibroadenoma. Further evaluation with a biopsy is suggested. Birads 4a: suspicious. Later in Aug went for the biopsy & got all prepped and ready and they said that the area was previously biopsied, no need to do another one as it was previously benign and not a concern. Birads 2.
In 2019 I went outside for a consult and they recommended the lumpectomy for "slightly enlarging cystic mass," same as previously evaluated and biopsied. No birads noted. I met with a surgeon there and his first recommendation was surgery. So I wanted another opinion. This hospital also has a lot of lawsuits and issues.
Later in 2019 I got a second opinion and the ultrasound showed the cysts previously noted on past scans, including the benign-appearing solid area previously noted. Likely consistent with a fibroadenoma. Birads 2 benign. This was the last time I was checked.
I have an appointment this week so I can get further screening done.
If you have micro calcifications … they can become cancer and not visible in an ultrasound.
ALWAYS ask for a biopsy. My cancer could have grown to a very serious level because the first radiologist said to wait 6 months and review again in another mammogram.
Thank you so much for sharing this. 🙏
I have never heard of breast ultrasounds! Thanks for the idea!
Sure, no problem!
Caution on MRI with contrast gadolinium. I am a MRI w /Contrast's victim in 2020 : Next day of an abdomen MRI with contrast Gadolinium injection : muscle, joints, nerves pain, feet and hands and fingers tingling electric, fogging memory. The cost of an MRI is about $4,000- $6,000, They order me to a CT scan, then an MRI and an MRI with contrast together. Then more problem to your health, they send you to others specialists to get more treatment , then no cure available.The pain last for ever to today almost 4 years. I have notified FDA, but no help. They did not warn me before the injection, but oblige me to sign on the brochure when I came to pickup the DVD of MRI result. Please FDA help protect our human citizen. The Physician have to warn, explain to patient before ordering MRI with contrast. In Europe they forbid the MRI contrast gadolinium. Date 8/4/2003' ( see Gadolinium Toxicity, Gadolinium Deposition Disease).
I am so sorry to hear this. 🙏
Holly, I like you 👍
Thanks!
Hi, I was set up for a mri with contrast in my hip area but when I heard about the contrast I said i'm allergic to some metals like Nickel so I do not want the contrast. Then they refused to do it saying the dr ordered it... they said the contrast would be ok. I will have to go to a new dr now. I might just have severe arthritis and do not want to add to my problems by taking a chance on the contrast. I don't want to be an experiment... I also have heart issues.
I don't want to be an experiment either. I can relate. I am sorry this happened to you too. I also was turned away when I arrived for my MRI, and declined the contrast. There is an alternative option for the contrast material, which is iodine-based. I need to research it more but it does not seem to have the same safety risks as gadolinium. It seems to only be used for certain procedures or when people cannot tolerate gadolinium, though they won't use it for all types of scans (ie: won't use it for breast MRIs). I wonder if that would be an option. There's also a way you can get a non-contrast full body MRI through SimonOne (Simon Med) at one of their locations. The price varies but it's often around $500 for a full body MRI, plus they provide they go over the results with you. It may not be the best option for everyone as sometimes they need to focus more on a specific area and some docs will say that contrast is needed. But, I just wanted to share it just in case.
Radiation damage is cumulative and the medical profession never talks about that. Mammograms are antiquated and it's time they come up with better methods of treatment. They've been doing the same thing for the last 40+ years and there are so many things they don't tell us. We have to do our own research. Also, be aware that even with a lumpectomy, they will most likely recommend radiation during surgery, which can cause lung, heart or bone damage and increase your risk of getting cancer in the other breast by 30% and radiation will also cause skin shrinkage/deformity.
Well presented.
Have you considered thermography in addition to ultrasound?
Yes, I am lookimg intoi it. Thanks!
I have had many annual breast MRIs with contrast as I have a strong family history of breast cancer (two sisters and mother). I chose MRI over mammogram (dense breast tissue and not wanting the cumulative radiation - same as you). Thanks for reminding me about the dangers of the gadolinium. I had read that there could be negative consequences but I, too, was lulled into thinking that MRIs with contrast were safe by my doctors and the MRI technicians. I thought that it was a safer bet than the mammograms, at least. Now I am going to look into thermograms/ultrasound instead. Such tough choices!! Thanks for sharing your journey.
Thank you so much for sharing this. It is a tough place to be in, when trying to get the right care and having limited options. There are other breast MRI methods (Diffusion, or T2) that have work well for breast imaging, but they are not widely used. I hope they will be a thing of the future. There are also some ABUS, automated breast ultrasound options that are used. Some of these tools are now using AI to help read the results, detect cancer. It can be hard to find as it depends on where you live. It's understandable that you were getting the MRIs w/contrast, as many of us aren't told of any risks at all. They need to at least tell patients of all risks so you can make an informed decision for yourself or with your doctor. I think people should do screenings as this is very important, but we should also be properly informed. I really hope things go well for you with your situation. 🙏
And approved by FDA
Take activated characol to remove heavy metals
Unfortunately I had to have an MRI with contrast after my stroke in April 2022. Thankfully everything turned out fine and I am back to 100%. As long as you don't have an allergic reaction, you most likely will be fine. Just drink tons of water with electrolytes and anything else you can do to support your kidneys and liver. BTW, I am in perfect health and been in healthcare for some 30 years and my stroke was caused by a vasodilator I was experimenting with and it dropped my blood pressure upon standing causing a low blood flow infarction. Use caution when taking any pharmaceutical drugs and of course don't get MRIs or CT scans unless it is a life or death situation. Lastly, if you haven't already, do some research on iodine supplementation. It can significantly help women who have dense breast tissue and can also help prevent breast cancer. Happy New Year!
Thanks for sharing this. I am so sorry to hear about the stroke, though I am glad to hear you're back to 100%! That is excellent advice about the iodine for women with dense breasts. I mentioned that in a recent comment too. I will share that in a video sometime. I also appreciate your approach to scans and not getting certain ones unless necessary. I have the same approach with antibiotics and will only take them if deathly ill, which is basically never. :)
I have bladder cancer, and I turned down a CAT scan a PET scan, and was willing to do a MRI but I refused to take 13:58 13:58 the Gadolinium Contrast and did it without contrast I read that that stuff stays in your body and can cause strokes, and is generally not good for you
Wow, thank you for sharing that and I am so sorry to hear about the cancer. Even in a situation like yours, you were clear-minded and strong enough to make that decision for yourself. Did they pressure you to do it? Do you know if you got a diffusion-weighted (DW) MRI? I started reading about these types of MRIs when researching my issue here. And, I just found this study: www.ncbi.nlm.nih.gov/pmc/articles/PMC4374259/ where they compared DW MRIs (no dye used) versus the contrast MRI with gadolinium, for bladder cancer. The DW MRI was considered just as accurate overall.
I was told they couldn't do an MRI without contrast because the contrast made it sharp enough to read. I refused the MRI because of this.
I’m supposed to get a Brain MRI with contrast in January…..
I've been looking at a lot of studies on it this morning and from what I've read, some countries have banned the use of one specific type of Gadalinum (Linear), but some of them are ok with the use of Macrocyclic Gadolinium. The Linear one has been shown to be more of an issue. Here's a paper on the use of Macrocylic only in Japan: www.ncbi.nlm.nih.gov/pmc/articles/PMC6326772/ And an excerpt: "In December 2017, FDA issued a new statement, but there is no new restriction of GBCA usage, and suggested that the kind of GBCA used should be carefully selected in high-risk patients, that is, those likely requiring multiple lifetime doses, pregnant women, children, and patients with inflammatory conditions.25 The restrictions on linear GBCAs are totally different in Europe, America, and Japan, because it is still unclear whether or not the gadolinium accumulation in the brain is toxic."
Some docs recommend asking for Macrocylic at the lowest dose possible, if a contrast scan is needed. From what I've read, many hospitals carry both types.
I’d love an update!
I just posted it today finally! 🙏 ruclips.net/video/GP_v6g709PM/видео.html
40% of women have dense breast tissue. Good to get both the U/S and mammo same day
Do you have c19 vacxc
Hi Holly,
For the radiation exposure, the damage is done to the DNA in your cells. The only way to repair this is dry fasting… plenty of literature in Russia on this in animal studies and in human subjects where they were able to save a lot of them after radiation exposure suffered in Chernobyl. There’s a book called The Phoenix Protocol that outlines all of this. It’s written by a NASA engineer trying to solve the problem of radiation exposure on future trips to mars. There’s no way to avoid it apparently, but he’s confident dry fasting can reverse the damage and outlines a protocol you can follow. It also has many other benefits - autophagy, stem cell release, tissue remodelling, detoxification, anti microbial etc etc. I did my first one 2 weeks ago and will be doing them every 6 months for life.
And with the Gadolinium, good call refusing. It’s a toxic metal with an affinity for thiols (sulfur groups hanging off proteins) which is why we tend to accumulate at least some of it post exposure - we’re sulfury organisms. In the same way we tend to accumulate the other toxic metals that also have an affinity for thiols - namely mercury, lead, arsenic, cadmium, antimony etc etc. there is one way to safely chelate it though. There’s a chelator called emeramide developed by Boyd Haley - a phd chemist from Kentucky university which is fat soluble so will cross the blood brain barrier and chelate the brain (as well as everywhere else) and it also forms an irreversible bond with the metals mentioned above making it safe. You can search Boyd Haley emeramide and watch some of his lectures he’s given on it over the years.
Thank you for sharing this. It's very interesting. I am checking out the book now and will look for more content by the author. It is very interesting to think about the radiation astronauts are exposed to and finding ways to protect against it. I will also check out Boy's content. Thank you!
@@LifeDIY no worries, good luck.
@@LifeDIY oh forgot to mention, August Dunning has a RUclips channel. It’s just his name.
Will the doctors not order an ultrasound? I have extremely dense breasts too and mammograms can’t tell much on me also. They usually follow it with an ultrasound. Since 3-d mammograms have come out, they don’t need to follow up with ultrasound. At least that’s been my experience. I don’t get mammograms yearly tho because I don’t like radiation risk. If I were you and don’t want all the radiation exposure, I’d go straight for the lumpectomy. My husband who is a surgeon says the thing is with the biopsy is that it may come out negative, but there’s the chance that they didn’t get biopsy of the actual cancer that might still be there. But if the do lumpectomy, they can see/remove what’s there so you’ll have peace of mind. I’m one of those who don’t mind having surgery, but I’m very suspicious of medications and don’t like radiation procedures. I wish you well and please followup here. Personally. I think you’re ok, but for peace of mind, I hope you get checked out. Thank you for explaining these risks more, but I find one has to balance risks with real threats in life. My young (23 yo) son had non Hodgkin’s lymphoma diagnosed in 2020 from a routine xray. It took 3 biopsies to find out the type of lymphoma. The first 2 biopsy were negative but doctors knew something was there. They had to open him up to get 5 tissues samples from his chest region. After knowing the type, they proceeded with chemotherapy for 6 infusions. He had CT scans along the way to check progress. He responded well to chemo and cancer free. However, they had him get followed up every 3 months for 2 years. He was supposed to get his last one last March, but hasn’t done it yet. All the other scans were clear.
I am so sorry for what you and your son have gone through. I cannot imagine the stress from that. I hope he's doing well now. I've heard several stories now about doctors saying something is benign and not of a concern (though abnormal to some degree) and then it turns out to be cancer. So, I will be pursuing my situation as much as can and if a lumpectomy is the way to go, I am open to it. I really appreciate you mentioning this. My recent doctor will not do an ultrasound for me, and I couldn't believe it that when I asked, she replied that I should go to a Hers scan location if I want one. I looked into that and it's a mobile ultrasound scanning option you pay out of pocket for, go to a hotel conference room and get it done. I've read absolutely terrible reviews of the service as the images are supposedly low quality and if abnormal, they won't tell you what it is, just "go to your doctor right away!" I find that to be concerning so I am not going to go that route. I made an appointment for tomorrow with a different doctor and different medical system, hoping for help. I am not getting my hopes up though, but I really do need an ultrasound to start with. Thanks also for sharing that about the 3d mammogram.
Just look up on The Truth About Cancer Ep1
Thanks, will do!
You’re smart for doing your research, gadolinium ruined my life.
I am so sorry to hear that. 🙏
I wish I could talk to you.
It's her JOB to make a referral, when needed. What does she mean she “doesn't know anyone”? Either she's incompetent, or not a real doctor. Outrageous, and in such a serious situation. I would email the national breast cancer foundation, and informthem. Keep people accountable by email for a record. I wouldn't bother calling anyone yet.
Yes, I agree. I think sometimes these people are stuck in their way of doing things, but ultrasounds have been most effective for my breast screenings, so I need to find a place to get that done. She really should do the referral. I actually found a place that does the 3d ultrasounds, but it's a 9 hour drive.
@@LifeDIY Im really sorry to hear how hard this has been for you. I have a friend with cancer and its hard to watch, I support her with research. I will share your video with her. The 9 hr drive doesn't sound like fun, but you could take a friend a do a little road trip overnight? Turn a chore into something fun? 💕
I'm sorry to hear about your friend, although it's great she has you as a friend who is so supportive. Yeah I love your idea of the 9 hour roadtrip! :) I may end up doing that. I am going to call them tomorrow and look more into it.
Hi I agree with what your saying but these scans really save many people’s life’s including mine my breast cancer had come back …. You would not have chemo or radiation then ? It causes cancer but also gets rid of it ? ? ? It saved my life and yes I do believe in personal choice suppose you never know … sending love ❤
I agree with you. The breast cancer I have shows up in a mri but not a mammogram. My sister just had the mammogram and by the time they found it she was stage 3.
Thank you for the comment and for sharing this. I am so sorry about your past breast cancer. 🙏 If I did ever have cancer, I will look into all the options to figure out what to do, depending on the situation. I don't I did a great job of explaining all of the situation in the video, so I will share some more details here.
For me, I have extremely dense breast tissue and I've had many mammograms in the past and they cannot get a proper exam with it, due to the density. So they've recommended ultrasounds instead. Only recently this doctor recommended an MRI, as she doesn't like ultrasounds for some reason. But, the ultrasounds have worked extremely well for me for screening and detection over the years. I did have one MRI though years back, which confirmed the same thing as the ultrasound.
Now over the years I've moved or doctors have changed and that's where I've now been faced with numerous issues of them pressuring me to do a mammogram. I also don't want the excess radiation and this is for a good reason for me. Years back, I did not understand the magnitude of radiation from CT scans and I had an insane number of scans done, with the highest amounts of radiation, due to doctor's recommendations (mostly through the VA). I had so much radiation that it's equivalent to 25-30 years of background radiation on earth, and I had it in a short span of years. I regret most of those scans as they were totally unnecessary (not breast related). Also, I have a genetic mutation on an important tumor-suppressing gene. This gene is there to help prevent cancer and when you get radiation exposure, that gene is supposed to be there to mop up the damage and repair things, so that you do not develop a tumor or cancer. This particular one that I have does not work, so it puts me at an excess risk.
So, in my case, I am supposed to be getting ultrasounds. I've just had an issue with the recent doctor. I am going to follow up with someone this week to see if they'll get me in for the ultrasound.
Merry Christmas Holly, lol JESUS CHRIST this is hard core. we are all in danger of having cancer from one point in our life, Jesus, just relax Holly. you are ok, and if you ask me, your genetics are good. good and awesome (well this is my psycho part speaking about your genetics, lol, but you are... excellent) ... ok.... this...sounded better in my head rather than seeing in it writing, but i will not edit that.... because i want you to know that you are just fine.
that aside, i just got up, hangover, i am at my grandmas place and i got around with some of the ppl i used to know here..... and i love it that you uploaded now, idk, your video feels like seeing a friend now, lol. so i really appreciate it. love your voice too. and now i will just.... sleep some more. tomorrow i will go back to my place.
Holly, Merry Christmas again you are just awesome ❗
btw, while watching this and typing i had 5 oranges, lol. i'm at 17:15 now, lol. i am going to place my laptop on my night stand and go back to sleep, don't worry it's on autoplay. btw, that thing with "technicians" reading only certain scans.... you do realize that is wrong and this is a sing of how bad our society became in general.....
all that aside, i think you are ok, your genetics are just fine. tho.... just a thought.... you could.... always come to europe to have a check up, idk😸 i mean i know some pretty nice austrian mountain resorts with snow board and sleigh rides and all that😸 (ok, i am day dreaming here, i am going back to sleep, lol)
ok, came back to say : autoplay gave me a video with wion news channel video. i hate it. terrible accent and .... not news. yuk. lol. how does a normal video takes me to "wion" video ? i hate that and i give them thumbs down so that i don't get it in my feed anymore, yet here they are. PF !
anyway.... sleepy sleep now or else i won't be able to get up tomorrow 🙂
Stephan, thank you! You are the best. And, Merry Christmas to you too! Sorry for this grim video, but I thought I should share these "adventures" in US Medical care. I know our medical care could be much worse, but it could also be better! :)
I agree with you that I think everything will be just fine, but I will feel a bit better after an ultrasound.
Hahah you have some hilariously disjointed comments. Those 5 oranges sounded great. I hope you ended up getting some sleep. And, hopefully you had a nice time at grandma's place. :) And, hey I'd love to visit an Austrian mountain resort!
Awww that's terrible. You don't want to listen to the news as you're sleeping. :)) I hope you get some sleep!
@@LifeDIY just woke up. and it will probably be morning when you read this so GOOD MORNING 🙂
pf... i think i was still drunk when i wrote that comment, ha ha ha. and i am glad you like my "all over the place" comments😅😆 lol. i express the multitude of thoughts that go thru my head at that moment.
and yes, in austria there is such a thing as "medical tourism" like.... you go to a resort, you check into the hospital, they have tests on you the next day, then while waiting for the results you can enjoy the the sight seeing and the resort and what not. it's a relaxing way to have medical exams and it's not that expensive either (tho it depends on what you may need)
i mean the country is nice in general, tho austrians are such smug philistines, lol. i mean they are legendary for it, it's one of those public secrets that we all know but nobody talks about😂also, it is said that austria is the ugly cousin of germany😆
and when it suits them, they say that they are german, and when not, they say "no we are not german we are austrian"🤣 seriously😂
This is too funny. Yeah I am a bit familiar with medical tourism thanks to my mom. She's in Mexico at the moment getting dental work done. She goes there all the time! Sounds like a good idea for me at this point. My doctor is not helping me with my situation. Interesting about the Austrians!
You are not a doctor. Do not give advice as if you are a doctor!!
I am sharing my experience and information. I clearly state it is not medical advice at the beginning.
“Real” doctors are the problem. And she’s bringing awareness by questioning EVERYTHING. Many lined up to get the gene therapy trusting the very same docs you’re referring to and now regret it or are no longer here to warn you about it.
As someone who is significantly older than you and has dense breasts I hope that no one takes your advice. I also think you probably misstate what the physicians meant. Mammogram is usually the first step and then if there’s an issue an ultrasound and then biopsy (if needed) Other options aren’t usually given because you forget to mention those options are expensive.
Then there’s all the misinformation you’ve provided regarding medical care. Yikes
I'm just sharing my personal experience in this video. The main advice I have for anyone is to do your own research and to be informed.
I believe Chuck Norris’s wife had issues with the contrast.
You’re very wise doing your own research, and asking questions before getting things done. At least you get to make a somewhat educated choice for yourself. If the contrast dye is ‘super safe’, why don’t they use it in other parts of the world.?
I guess it’s down to a lack of conclusive evidence that many parts of the world ban things and other parts don’t…I was recently reading about 'glyphosates, a widely used pesticide in the USA, but largely banned in the UK. Glyphosate is patented as an antibiotic, yet spayed on lots of crops, and thus ends up in some foods. Things can get so confusing!
My sister had a breast cyst this year, but thankfully she was checked, and all was OK…It’s in your favour, and good to hear that you don’t have a family history of this. I’m sure it’ll all turn out fine for you...🙏
The comments in your last sleep video were very interesting. Have your sleeping issues improved.?
Hope you had a nice Xmas...Here's to a happy, healthy, new year, Holly! 🥂
Thanks, Joe! I am glad your sister is fine. I am sure mine will be ok too. When it comes to breast cysts, there is research connecting them to low iodine levels. For some women eating certain things (like soy) can contribute to breast cysts and problems. I'm just sharing it in case you want to pass that on. When I stopped having soy, a lot of those issues went away. Hopefully they stayed away, but I will find out sometime in the near future.
That's good you've been looking into glyphosates. I didn't realize it was banned in the UK. It's terrible what's happened to our food in the US. Things are so far from natural and sometimes so toxic with all these sprays and chemicals and pesticides. I believe it's part of why so many young people have chronic stomach issues, food sensitivities, then later autoimmune problems. I think it's all connected.
Since I posted the last video, I am not sure if my sleep has improved, though it may have slightly. Lately I am waking up at midnight, but I tend to go back to sleep for two more hours. So that's an improvement actually because normally I can't fall back asleep! I need to keep experimenting and giving it more time to see what I figure out. Anyway, I hope you have a great New Year! 🙏
Thanks for the info on low iodine levels, Holly! I'll pass it on. My health has improved greatly since I took an interest in all things diet related…One bit of research leads to another, and that’s how I ended up reading about glyphosates…Sadly it’s not a blanket ban yet, but around 80% of UK councils have banned pesticides…It's a step in the right direction, but until it's 100%, that still leaves us unsure about the produce we’re getting.
You’re right about the youngsters. I know many of them that are basically living on sweets, packet food, and takeaways. They know it’s unhealthy, but they’ve got that “going to live forever” attitude at that age.
I know you are strict about sugary things, but do you ever indulge.? I do occasionally, but mainly have healthier options like Dates stuffed with Walnuts...Yum! Having said that, my mum's homemade cake is too irresistible, so I had to have some of that on Xmas day. 😋
That's good to hear about the banning of pesticides. It would never happen here. And if it did, they would probably create a new pesticide and call it natural or by some other name - then continue on with the spraying. Or they have other methods to mutate the food so they can skirt around what they're doing. You have to weigh the possible pros/cons of eating something that is supposed to be healthy, while realizing it's covered in pesticides. So, I don't know what people are supposed to do but we're always told to just eat lots of fruit and vegetables. I know I've said this before in comments but the wild animals won't touch the store fruits or vegetables that we eat. I've tried and the stuff just rots there. They will eat the crab apples from the trees though. :) I haven't indulged in anything too sugary in a long time. I eat a little fruit here and there. The dates and walnuts do sound really good! I used to take some nuts (pecans) and roast them on the stove, then add a little salt and maybe some brown sugar. It was long ago but it tasted great. I'm not sure how well honey or maple syrup would work as a sweetener there. But, sounds pretty good! Your mom's cake sounds like it was great. What kind was it? I haven't had cake in a decade but I used to love red velvet. :)