Adhesion Removal + Kidney Surgery Changed My Life | Let's Talk IBD
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- Опубликовано: 25 авг 2024
- Zak and I take you on our Thursday & Friday and I talk a bit about how thankful I am to feel so much better after pyeloplasty surgery and adhesion removal!
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I found your channel by accident in the algorithm and even tho I’ve got no experience similar to yours, I am so invested in you and your content. You’re a really interesting and awe-inspiring person. Thank you for sharing yourself with the world. 💜
diagnosed with colitis 25 yrs ago, you are a brave woman and an inspiration for all of us that suffer from crohns and colitis....thank you earth angel
I have Lupus. My Dad had Crohn’s disease and so does my uncle. My Dad’s side of the family lost the genetic lottery (50% of us have autoimmune diseases). I can’t say that I understand what it’s like to have Crohn’s disease, but I understand what it’s like to have horrible stomach pain. I can really sympathize. I’m so sorry that the pain is coming back.
I do not have an experience like yours but I can relate to having to explain strange medical equipment and having to explain my health conditions all my life. I have cerebral palsy. I have through surgeries, castings, and weird devices.... the whole nine yards. It is amazing to see someone like you navigate a medical situation with such grace, joy, and self acceptance. It is so inspiring to see and encourages me. seeing your marriage with Zak, who is so caring and considerate of you, gives me hope that I can have that too. Thank you for sharing your story. I respect you for having the courage to be so honest and real with complete strangers to shed light on crohns. The education and message is spot on. Keep doing what you are doing.
Thank you so much for your videos...I am a 30 year diagnosed crohn’s disease patient who just got a total colectomy, protectomy & end ileostomy still recovering from my surgery. Your videos are quite helpful for my new ileostomy. Happy holidays to you and yours 🎄❤️💚
cool trick for watering your christmas tree. Give it an iv bag on a slow to medium drip!
You're a beautiful warrior...God bless you and your new outlook
I have primary progressive MS I watch your videos they give me hope. Your a warrior . Inspiration from heaven. You just make life better. Thank you
I am in nursing school! And I was diagnosed with IBS 3 years ago because they have no idea what’s going on! But the burning stomach aches are all too familiar to me so I understand that. I love following your story because I haven’t felt good for years but your story gives me some hope even though IBD and IBS are completely different
My husband has IBS. Dairy, especially cheese, is a big trigger food for him. I've been a vegetarian since I was a teenager and he decided to become one too when we got married. It helped his IBS a lot, but he would still get flare-ups sometimes. Most of the time, what causes a flare-up for him now is stress. Anxiety is a big factor in IBS, almost as much as the food triggers. As you probably already know, the good news is that unlike IBD and related disorders, IBS does not leave scarring, so it will never cause you to need surgery for it. There are medicines that can help. My husband takes hyocyamine, which relaxes the smooth muscles in the intestinal tract. It works fast and helps a lot.
@@mygirldarby Yeah i know all of that! And sadly none of the medicine has really helped me. I’ve tried all the ones for IBS and nothing! Pain....
I'm sorry to hear about the Chrons symptoms returning.
I just love hearing about you and Zak. I always enjoy your videos.
Maggie, you & Zak are exactly whom I wish could be part of my friends-circle, you guys are fantastic and especially you, who is just conquering the world day after day! Your page mysteriously popped up for me one day, which is amazing because I have a very close relatively going through something that required her to have a temporary bag, that was literally removed just this past Thursday. But you’ve helped me understand a lot of things related to that, and I’m forever grateful. I’m going to continue viewing your lives together because you guys are just awesome personalities, without crohns even being an issue to teach about!
Beautiful video! I am so happy you are feeling much better Maggie! Zak is wonderful and I love your dogs!
I love your tenacity and resilience Maggie. Best wishes to you and Zak.
You, Zak and the doggos are a lovely family and cute couple! I came across your channel at the weekend. Im a nurse with an autoimmune condition which resulted in kidney failure. I had a transplant feb 2019. Im not cured but live each day as it comes. Your a beautiful strong warrior! Thank you for a great informative channel! X ❤️
Ellie m... God Bless you! I have chronic kidney disease after losing a kidney to renal cell carcinoma! I will pray for you!
@@marygagliardi5315 awh bless you. Thank you. Hope your keeping well. X ❤️
I use a Netty Pot to clear the mold and dust from my irritated sinuses. The trick is read the directions carefully, such as if your drowning stop! Hahahaha. Hope this helps darlin.
My family has crohns- mom ,uncle, sister,brother. Me and my little brother have not been diagnosed- mom was diagnosed after she gave birth to me and my sister was not diagnosed until she gave birth to her 2nd daughter. For my family no one has gotten an ostomy bag. But several months spent in icu’s years home from school my mom probably lived off cans of ensure for more than a year. I’m terrified. I’ve had symptoms but nothing to alarming. I haven’t had any kids yet(not for lack of trying) but it seems in our family it really seems to flair up after child birth. I think my phone must have heard me talking about crohns- and boom your channel showed up 😂. I love that this disease is talked about and people such as yourself as open. Because when someone says oh what is crohns and you start talking about it. It’s not exactly a conversation you can have over lunch 🤷🏼♀️
I’m so happy that you’re feeling better and that you’re able to do more things! That is such a wonderful feeling to know that you can become more active which leads to having more fun and of course a more fulfilling life with you and Zak! Many blessings to you both! 🙏🏻❤️🙏🏻
The wedding pictures are amazing!
Lucky you. In New Mexico, those kind of places haven't been open since the initial shutdown in April.
I like your lollipop earrings! I’m glad your surgery is feeling successful! I hope you get approved for the medication to help with your flare ups!
You must tour Fonthill mansion. Take a guided tour when you can and learn the history. It’s very, very interesting. I’ve visited at least six times! I enjoy your videos so much as I was (mis-)diagnosed with Chrons over twenty years. I have other issues though and find your straightforwardness refreshing and informative. I live in Allentown and shop occasionally in the Quakertown area. I feel like we’re neighbors!
Loved coming along with y'all. Seems the only time I leave the house these days is to pick up groceries curbside, or for dr's appointments for myself or my mom. Texas has just been slammed with virus cases and we don't want to tempt fate by going anywhere.
Totally understand! Luckily where we live it has been fairly quiet, although numbers are picking up again in PA so we are reducing our outings):
You are such an incredible person! I love your positive spirit and amazing attitude! Your so beautiful! I hope you heal quickly and feel better. God bless you
Every time I see you two in your new intro. video, I LOVE IT ! So beautiful !!
You look very happy for your marriage intro. Probably said a millions of times, but probably always fresh as for feelings.
Hi Maggie❤ those burgers look delicious, aww nice Christmas music 🎅 your husband doing a little happy dancing
I am very interested. U know spent also many month in hospitals. MY motto is when u think it can’t get worse, be sure it always can;) always found a new 10 on the pain scale;) I am happy it worked this time 4 u.
Guidence and protection to 🙏
Omg I love your wedding dress!!!!!!!
I love your spirit....
I hear you about nasal allergies! I have to take Alavert everyday. I was also prescribed Nasonex, but I hate putting anything up my nose. I have asthma, so I take my inhaler every day or so. It helps just a little with that ragged noise in my throat. All you can do is drink lots of water. Stress will affect your health hon. You have to decide which things are worth having in your life, so you can get rid of the stress factors. *hugs* Stress can magnify pain, increase stomach acid, increase cortisol. Meditate when you can.
You and your husband make a sweet couple! You have to keep in keeping on!
On
I love walking through Christmas trees. Love the smell. I too kill poinsettias, that’s why I don’t buy real ones anymore. They’re beautiful but I have a brown big thumb!
Have y’all tried the beyond burger yet? We love them....we pretend they are little hamburger steaks....I have not traveled in Pa. the scenery y’all show while out driving around is so very pretty....especially those shots along the Delaware River when y’all are driving along it. When COVID is over.....
Love the lollipop earrings ❤️❤️
Woo Cherry Hill. Gotta go to Ponzios.
Love your videos. I have RA and am on Humira. I HATE it! And it’s not helping at all! I’m glad it helps you though.
I have had adhesion removal 7 times due to pain, bowel obstruction..not a fun surgery my biggest one was 7 hours it was all over my liver, diaphragm area close to heart and total small intestine fun fun ...Very painful before and after surgery....
No entiendo nada de inglés pero cómo me gusta los blogs Maggie hermosa.
Have you or your specialist looked into using Entivyo or its cousins instead of Humira because of its specificity towards Chrohns or U/C and thus may have less side effects than the more broad based Humira?
Your intro is beautiful!💕
Great video! Where did you get your satiny pink mask? It’s so cute!
I got it on Etsy! TeriChooseDesigns is the shop name :)
@@LetsTalkIBD Thank you so much!
Does Zak know anything about foundation footing drainage? Ask him what soil to use for me just beneath the footing.
LOVE the new intro!!!!
My daughter’s boyfriend works at Monster Mini Golf in Cherry Hill. You were in my neck of the woods!!
I'm from Mount Laurel NJ, so I bet we were close by for awhile!
To prevent kidney/bladder infections I cannot recommend D-mannose sugar enough. I had similar Uti problems in my late teens (then surgery). All was great until the menopause. Now half a teaspoon of D-mannose daily and I've been healthy for 2 years.
Has Bruno got a shock collar on - banned in the UK?
He does! We don't use the shock portion of it. It also vibrates and beeps, so we have trained him to come right to our side with the beep :) don't worry, we don't shock them!
I have one for my dog and I live in Wales, he's well trained but has a high prey drive.
Please add closed captioning to all of your videos!
You can turn on captions. Go to the three dots top right of screen to turn them on.
Hi want to know if crohn will ever gone
Crohn's at this point in time is not curable, so I will have for the rest of my life.
You look like Emma Stone. I bet you hear that all the time!
Nice intro... You and Zak are a nice couple... I hope your new stomach pain subsides.
The new intro is growing on me...
I think it should say Maggie and Zak... it s all basically about you Maggie and your illness so Zak should be ok with changing the title
? what do you say Zak???
Maggie and Zak ?
Oh those burgers look good but Oh damn, Sesame seeds my arch nemesis.
OMG my mom always talked about Bucks County( she was from Philly) when I was little, I was born in S.F. and never got back to where she grew up. Thank you🐾🐾❤
Do you have any information for someone who is looking like they're going to have the same surgery as you've had, but also has had gastric bypass 20 yrs ago and is also lactose intolerant and has ibs? I have stenosis in my sigmoid, I am prone for hernias and have had 4 hernias repaired and think i have 2 more developing where I have had laparoscopic surgery and the trochar sites seem to herniate easily. I am losing my hair like crazy. Any advice would be appreciated. I don't have chrones,but I do have colitis. Thanks for all of your upbeat help and support.
If you're lactose intolerant, you could try cutting all dairy products out of your diet. Eliminating meat can help for some people too. I hope you won't need the surgery!
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First Comment at last let's gooo
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Ok, so OMGOODNESS...Maggie, I have a huge most important question to ask you. One, being your a nurse you will know, two, I just saw what I thought was a huge no no with having an ileostomy. Down to the question..lol
I noticed your vegan burger had sesame seeds on top the bun, is that safe to eat the seeds? I was told I couldn’t eat seeds. Dr. Told me could cause a lot of problems, also said I can’t eat fresh fruit only canned fruit, same with vegetables..no fresh, only canned. All because of having an ileostomy. Maggie, please be honest as I know you may think your stepping on Drs feet or something, it fine..can you eat these things? Thanks so much! I will be honest, I’m afraid of about everything because I don’t want a bowel obstruction. Ok, I’m done going on and on about it,.lol
Peace and Love 💗
Many many medical professionals will say you should not eat that kind of thing. I, being a terrible patient of course, have pushed the limit and found no issues with them!
How many dogs do you have?
4! Bruno, Holly, Dixie, and Nanners :)
@@LetsTalkIBD that’s great. I unfortunately can only have one because she is so ill behaved with other dogs!