Maggie, All your videos help me so very much! I look forward to watching them daily! So thanks so much for sharing all your information with us! I wanted to ask you which drainable pouches have worked better for you? I’ve been using the 2 piece Hollister drainable pouch system but lately I’ve had over 2dz. pouches that have had leaks in them right after I put them on! I’m to the point that I don’t want to use their bags or anything by Hollister! And what do you use to get your pouch stick to your skin? Mine practically do not stick so I have to end up using waterproof tape & tape them on but the tape ends up getting blisters around and under it! It can be very painful! My skin has never liked bandaids or anything sticky cuz it all irritates my skin! Also, what is your favorite deodorizer & liquid you use in your pouches? Thanks for all your help! Love, Kim🤗💕
I have actually been able to share what I've learned by Maggie & our community with my surgeons and my primary physician - I was astonished about how much they didn't know! But all have been appreciative of input, too. I thank our good Lord for people like Maggie & in our community very much!❤
I have done the same thing. When I talk to someone in the hospital about my stoma and I see that the doctor or nurse shows interest, I always recommend this channel.
I had a permanent colostomy in April and am doing well! I do have problems staying hydrated because I’m a senior. I do have some pancaking. The hardest thing for me to deal with is that my ostomy is sitting on a hernia. My surgeon says we’re not to do anything as well as it is working. This of course makes it harder to hide in my clothes. I have to say this is still better than then the way I was living! Thanks for all the help you give us!!
@@jeannettebourett8407 you are right Jeanette! My hernia also was from surgery. I noticed it immediately. We are blessed to be alive! This is a result of cancer 18yrs ago and I nearly didn’t make it. To be alive today is by the grace of God and a fine surgeon!
I have a colostomy and urostomy from having bowel cancer (twice) I also have a hernia at each stoma, with the urostomy one being much bigger and more noticeable. My colorectal surgeon said they won’t operate unless it’s an emergency. But I am doing fine.
I had a permanent colostomy in April and am doing well! I do have problems staying hydrated because I’m a senior. I do have some pancaking. The hardest thing for me to deal with is that my ostomy is sitting on a hernia. My surgeon says we’re not to do anything as well as it is working. This of course makes it harder to hide in my clothes. I have to say this is still better than then the way I was living!
Thank you so much! It is so ironic that so often your videos apply to a question I have literally the day I see the video! Today I want a salad so bad but have not tried lettuce. I had a pan proctocolectomy in May and ended up with an ileus and an obstruction in the first 6 weeks. My stoma was moved due to a hernia. Before I could eat almost anything but had never tried lettuce with that stoma either. That one was high output and now this one is starting to be also. Salmon goes right through me too so sweet potatoes are heaven! This one is now an end stoma and the other was a loop. Today I made a “salad” with grilled chicken , strawberries, blueberries, grapes, granola, and raspberry vinaigrette. Everything except greens because I am so scared of them. I guess we will see how the rest of this goes down and go from there. Salad is the food I miss the most!
I have uc and what made all the difference in the world to me was to avoid vegetable oils like the plague. I'm now at a point where I don't even need medication anymore.
Thank you for sharing what works for you. I’ve had diverticulitis for years and was told next is a resection and possibly permanent stoma so I enjoy your videos. I definitely cannot consume certain foods and fluids. My electrolytes have been out of balance at times. Thank you again.
Wow! I looked at several of your video's, They are all amazing, informative, encouraging and helpful. I was told I had the worst case of Ulcerated Colitis and Chrons disease the doctor had ever seen. I was misdiagnosed, as just being anemic, for many year. I wasn't properly diagnosed until I ended up in the hospital weighing 60lbs, a blood count of 3 and severly dehydrated. I did diet modification and am still alive. Thank you for your video's. No one tells you the whole story when they say you need a surgery. Even if they do inform you, you loose some of your hearing when you are not feeling. I have learned so much from your videos.
Avocado can be tough on your pancreas. Issues are new to me as well. So if the Sphincter of Oddi gets blocked (where the pancreatic fluids flow into your intestine) you can get severe stomach pain.
Thanks so much for this posting. I do not have an ostomy but had a rt. hemicolectomy for colon cancer about 2.5 years ago. Dr. told me that things would settle down in a short period of time. Ha! I have found a number of things I can eat and a few that I shouldn't even consider. Your video showed me that I'm not alone.
Thank you mate for sharing such fruitful information. As an chrons-ibd- and ileostomy patient I've ideidentified alot that's common. I too has had these painful mouth sores and they look exactly with what reappeared on the end of my stoma- well the g.i.t Ibd doctors worked it quickly. Yeah I totally agree chrons does always resurface itself- that's one hint my surgeons advised me especially when people forcefully wanted a reverse. Am at peace now and I do love my stoma it took me out of the misery pain and gave me decency. 😊❤
Hey Maggie, I did a video on my channel and I had to give you a shout out in it… I hope it’s ok… I always appreciate your videos as a fellow ostomy person myself. I’ve learned a lot and wanted to mention your channel. Thank you for sharing your information and life stories as an ostomy wearer. Much respect from here in Canada :) cheers… watching this video now..
I will probably have it up august 30th… and I want to share a link to LetsTalkIBD and Maggie, because I’ve learned so much living with an ostomy and it’s really changed my life from a new ostomate 5 years ago till now. I’m not a big channel but I wanna give credit to Maggie for inspiring me to tell my story finally on my channel. Thanks Maggie, it hasn’t been easy but even tho I have never met ya, this channel has really helped me in my struggles and I know many others like me :) thanks you
Hi Maggie I love the way you put people's minds at rest.that is so important.looking at you so healthy looking puts a person's mind at rest about having an ostomy ❤❤
I have a latex allergy and eat avocados without any problems. I have a colostomy and all my doctor said was to avoid popcorn and to peel apples. I go 1 step further. I don't eat any peels. I love nectarines and peaches. I cut them into wedges and peel them with my tongue.
Thanks again for a great and informative video. I had UC and IBS before my surgeries (ostomy) and I could hardly eat anything. Now I can eat most things, but some allergies remain, for example shellfish. I can't handle onions either. That's the only thing that's a big no for me. If I eat onion, it runs straight through. I try to cook carrot and those kind of vegetables. Cucumber, tomato and pepper I can eat the peel if I chop it finely. I notice with certain things such as mushrooms that it comes out in the same consistency as it goes in. Certain foods such as peppers or lettuce I chop into mini pieces so that it doesn't stick, then it works. If I have chewed too badly on something hard, I get pain in the stoma when it is about to pass out, so I try to avoid that. But it's like you say, it works differently for all of us. However, the doctors told me that most food allergies are in the large intestine, so if you get rid of it, you often get rid of your food allergies.
Raw onions and green peppers will be the death of me lol. I avoid them at all costs. Garlic is not the friendliest either. I don’t have an ostomy or IBD but I have IBS and SIBO and have some food intolerances. Raw broccoli and cauliflower do not like me much either. I try to limit simple carbs as they can bloat me.. It’s all trial and error.
I do not have a stoma, but I do have Crohn’s Disease - diagnosed in 1999. The food that I miss the most is corn. I love the smell and taste of corn! Small amount occasionally are o.k. and don’t usually cause issues. But, as an actual full side during events like Thanksgiving and Christmas are absolutely forbidden. I found this out the hard way many years ago. A few hours after eating a lot of corn, it felt like sand paper going through my intestines. Talk about paying a huge price for just a few moments of pleasure. It is very difficult for me to pass the corn along at the table without taking any during the holidays. 🙁
I do not have any of these problems but I can't eat corn or anything corn, wheat, oats, dairy, nitrates, artificial colors or any seed oils. It constipates me like crazy. I use organic olive oil, it's pricy, but it has made a world of difference for me. I don't know if it the chemicals on the food or what.
As a ostomate since 1985, I have had 1 episode of constipation. I ate a good portion of rocky road ice cream one evening. Needless to say, I was in the ER by 1 am for IV and muscle relaxant. I find that I must avoid mushrooms at all costs, but can eat bell peppers to my hearts content. Milk is a no no. So I allow myself a bit of ice cream when I am home all day. I have more issues with supplements. Potassium creates a lot of excess liquidity, and gas.. Also, magnesium. So I take these at night after supper. I have a bit of a citrus allergy, oranges, lemons or limes. I eat these in Moderation!!! All in all I do really well. I guess I'm really lucky my ileostomy behaves fairly well.
Hey Maggie is there any update on your fertility journey, you did a video about the 1st appointment after the ectopic pregnancy but haven't seen anything else. Hope its going well
Strangers are praying for you, sending healing vibes and keeping you in their hearts. You have such courage, folks look up to you. You may not know or believe it now, but with time you'll learn and then you will help others. Keep connecting with others. Best wishes! 🙏💛
You have every reason to be miserable . I will pray for you and promise to keep you in my mind each day for your healing and peace of mind. Please feel strength and love flowing through you.. I have had many bowel blockages needed NGT for extensive periods of time. Stay strong and know there will be many people holding you close in their heart .
Thank you so much for addressing the adhesions and scar tissue. Broccoli I suspect was what landed me into emergency surgery due to peritonitis and rupture. I LOVE Broccoli but now I cook it almost mushy and eat just a little
Hmmm…. Mushrooms are my ‘new’ downfall after my colostomy…. my intestines flow like a river. Never an issue before. Also, something in Asian cooking causes my colostomy to flow like Niagara Falls. Thank you for sharing your issues, Maggie. My colostomy is due to cancer surgeries and my digestive toleration changed.
My Granddaughter she is 16 went thru this, now the specialist are going to try and build her a new colon, idk how there going to ya, my heart goes out to her having to go thru this being so young, she has had this like you with the poop bag around the same place as yours is for about 2 years I think, she went to the Specialist yesterday to talk about her surgery, it may help her to listen to some of your videos. Im going to show her n see. Makes me sad she is having to do this..Many Blessings
I always remind people to not drink just water all the time if they're exercising, it's very warm, if you're sick or whatever that causes you to sweat or lose more fluids than normal. Only water can dilute your electrolyte balance even more, so it's very important to replenish those electrolytes in one way or another. I don't do well with electrolyte drinks that you mix yourself with water, I had to drink a lot of it in 2018 when Sweden had a long time of unusually hot heatwaves. As much as I love really hot weather (so yes, I was loving it in the summer of 2018), I do need to be careful and make sure I stay hydrated and keep my electrolytes in balance as I have hEDS and quite likely POTS. Anyhow, after all that "mix at home electrolyte" I started getting pain in my mouth when drinking it, like it felt raw and irritated in my mouth. These days I stick with salty snacks and make sure I drink enough, and if I have electrolyte/isotonic drinks, I get the readymade kinds like Powerade. I also find that I feel better if I limit my intake of plain water, and drink flavored, carbonated mineral water (as in mineral water from special wells with higher mineral content than regular tap water) or soda, or even just home made soda I make in my Sodastream with my tap water as base. There's just something about carbonated beverages or juice that makes me stay hydrated better than just plain water. It's so weird, but it works for me.
Been pretty lucky I really don't have many problems with foods except corn which kinda just passes thru. After my initial surgery I had a stricture in my throat where I would try and eat and end up spitting it back up. They stretched out my esophagus over several appointments and that solved the problem.
Hi Maggie! I think I’ve watched everyone of your RUclips and Instagram videos. I have a colostomy scheduled for Sept. 9. Filled w anticipatory anxiety. I have a question- why are disposable bags not used very often?
I had my colostomy July 14. It was an emergency surgery. Your hospital usually starts you on what they have in stock. Some limit to certain brands. Drainable pouches are generally what you start on these days. Your WOCN may be the person to talk to about this.
This video was so informative! I got my colon removed and my ostomy because of C-diff that nearly cost me my life. I’ve had it a little over a year now and it works great! I’m so thankful! I can eat raw veggies and even popcorn with no problem. I’ve only had one blockage after eating artichoke dip! I was literally pulling the artichoke fiber out of my stoma! It was crazy! But I guess it’s better than Nate’s chicken bone story! 😂
I had c diff 4 years ago after surgery from a bowel resection. Horrible illness that even doctors don’t appear to comprehend. I found Maggie’s channel while in/out of the hospital. Happy you are doing well.
I eat a greggs sausage roll and I'm not even eating any more! But I have food allergies and intolerances, so I have to be careful the only food I can't eat today that i could have before is spinach, so bad. ❤
BEEN THERE WITH THE URETER BECOMING BLOCKED. VERY painful. My intestines are piled up at the bottom of my pelvis as the sac tore or burst at some point. I don't have crones byt touchy colon. AVOIDING carbs helps a lot/ TY
Gracie has gotten a lot better since I got her last June. I don’t care how I cook broccoli or how much I chew it passes through Gracie like a tree. When I fix broccoli I chop it up in the blender.
@@LetsTalkIBDI will try it at some point but since yesterday was literally 3 months since my surgery I will probably give lettuce a little longer of a wait. Also thanks for the LMNT recommendation. Some flavors a little salty but tolerable. Watermelon great! The temperature makes a big difference also. Drinks must be cold!
@@cgomez77I’ve had my colostomy since 2/7/2023! I’m still having a lot of issues with mine! But I’ve found that salads have not bothered me since having my surgery! Matter of fact they gave me a small salad while I was in the hospital & it was so good! Good luck with your colostomy! I’m praying yours works a lot better than mine has!🤗💕
Iceberg can cause all kinds of issues, especially gas. My nurse told me that iceberg is very hard for anyone to digest and it has little nutritional value. I find baby greens to be easier to live with, and still chew really good!
I have become a carnivore since my surgery 3 years ago because it digests so well. I have an inverted ostoma and I pancake always if I eat fibers and fats
With the fruits it sounds like oral allergy syndrome, have you ever discussed that as a possibility? My dad can’t eat any raw fruit at all since he was 16, they all have to be cooked or canned in some way for him
This is called "latex-fruit syndrome" or "latex-food allergy syndrome". About 30 to 50% of people with a latex allergy have latex-fruit syndrome. Other foods that may cause reactions in people with latex allergies include: Bananas, Chestnuts, Kiwifruit, Passionfruit, Plums, Strawberries, Tomatoes, Bell peppers, Figs, and Peaches.
I have an Ostomy my GI Doctor told me that marshmallows help slow down the output but it doesn’t work for me. I want to shower more without my bag on but it leaks too often for me to do so. Anyone have any suggestions?
You should try a different brand of bags as some others may be better.I never leak unless I pancake .I use one piece bags and change the bag every other day prior to eating ,at which point the Stoma is inactive.
My doctor just brought up with me getting an ostomy. I'm confused though, because she said I wouldn't be able to eat any raw fruit or vegetables, nuts, seeds, or popcorn. Is that true or does it just depend on what I can tolerate?
What are you confused about? Even the foods you listed will cause you problems with colostomy. Popcorn will cause a blockage just as eating raw vegetables and fruit will.
Very dumb question, but I've always wondered...You've mentioned constipation on your channel a few times. Normally when one has constipation, a lot of active "pushing" is involved to get yourself to go. With an ostomy, there is no pushing ability or having that control. How would one get it to pass?
There is a little bit of pushing you can do with your abdominal muscles.. definitely not as effective when there's no rectum! But I have been able to massage my belly around my stoma and tense my abdominal muscles to help get my stoma going!
Wow it shows you how different everyone is. Apples pass through my colostomy very quickly. I can also massage my abdomen if I have eaten something that binds me up a little.
Not sure if you've been asked/done a video about this but I have to ask: What do you do in a disaster/grid down/end of the world type situation? How would you prepare for a natural disaster? Especially in a situation where sanitation might not be very great.
Wow great question!!! Holding off getting an ileostomy myself but in major situation or even being stuck somewhere like an airport for multiple days getting supplies would be a serious problem. And the difficulty with good choices. Thinking of New Orleans and Katrina, no vehicle and moved to the Superdome
I’m not surprised that you were allergic to Latex Maggie, rubber gloves are highly indigestible. Not only that, they would taste terrible. 👋🖐️ 😝 🐨 🦘🦘 🧡
Dos dogs understand ostomy as normal part of You or do they understan ostomy as wound=? And sri if myquestion is not polite but I am dog person aND IT INTEREST ME.
I have 2 dogs and I think they think it is part of me because they don't have any reaction to it. They don't react to noise or any smell because their sense of smell is so strong. I hope this helps!
Thanks to LMNT for sponsoring this video! Head to DrinkLMNT.com/LETSTALKIBD to get your free sample pack with any purchase.
Maggie,
All your videos help me so very much! I look forward to watching them daily! So thanks so much for sharing all your information with us!
I wanted to ask you which drainable pouches have worked better for you? I’ve been using the 2 piece Hollister drainable pouch system but lately I’ve had over 2dz. pouches that have had leaks in them right after I put them on! I’m to the point that I don’t want to use their bags or anything by Hollister! And what do you use to get your pouch stick to your skin? Mine practically do not stick so I have to end up using waterproof tape & tape them on but the tape ends up getting blisters around and under it! It can be very painful! My skin has never liked bandaids or anything sticky cuz it all irritates my skin! Also, what is your favorite deodorizer & liquid you use in your pouches? Thanks for all your help! Love, Kim🤗💕
Thanks Maggie. I’ve told multiple nurses about your channel, because it’s helped me so much in the last year since I had a colostomy.
Sometimes, listening to someone with it is better then listening do a doctor who knows about it. Experience is way better then just knowing about it.
I have actually been able to share what I've learned by Maggie & our community with my surgeons and my primary physician - I was astonished about how much they didn't know! But all have been appreciative of input, too. I thank our good Lord for people like Maggie & in our community very much!❤
I have done the same thing. When I talk to someone in the hospital about my stoma and I see that the doctor or nurse shows interest, I always recommend this channel.
I had a permanent colostomy in April and am doing well! I do have problems staying hydrated because I’m a senior. I do have some pancaking. The hardest thing for me to deal with is that my ostomy is sitting on a hernia. My surgeon says we’re not to do anything as well as it is working. This of course makes it harder to hide in my clothes. I have to say this is still better than then the way I was living! Thanks for all the help you give us!!
Barbara
I have a urostomy bag and hernia from surgery. It has grown some and noticeable now but I don’t mind, I’m alive and don’t have well.
Doing well 😅
@@jeannettebourett8407 you are right Jeanette! My hernia also was from surgery. I noticed it immediately. We are blessed to be alive! This is a result of cancer 18yrs ago and I nearly didn’t make it. To be alive today is by the grace of God and a fine surgeon!
I have a colostomy and urostomy from having bowel cancer (twice) I also have a hernia at each stoma, with the urostomy one being much bigger and more noticeable. My colorectal surgeon said they won’t operate unless it’s an emergency. But I am doing fine.
I had a permanent colostomy in April and am doing well! I do have problems staying hydrated because I’m a senior. I do have some pancaking. The hardest thing for me to deal with is that my ostomy is sitting on a hernia. My surgeon says we’re not to do anything as well as it is working. This of course makes it harder to hide in my clothes. I have to say this is still better than then the way I was living!
During my worst GI problems, I found tofu and soy milk to be reliable sources of nutrition.
Thank you so much! It is so ironic that so often your videos apply to a question I have literally the day I see the video! Today I want a salad so bad but have not tried lettuce. I had a pan proctocolectomy in May and ended up with an ileus and an obstruction in the first 6 weeks. My stoma was moved due to a hernia. Before I could eat almost anything but had never tried lettuce with that stoma either. That one was high output and now this one is starting to be also. Salmon goes right through me too so sweet potatoes are heaven! This one is now an end stoma and the other was a loop. Today I made a “salad” with grilled chicken , strawberries, blueberries, grapes, granola, and raspberry vinaigrette. Everything except greens because I am so scared of them. I guess we will see how the rest of this goes down and go from there. Salad is the food I miss the most!
I have uc and what made all the difference in the world to me was to avoid vegetable oils like the plague. I'm now at a point where I don't even need medication anymore.
Thank you for sharing what works for you. I’ve had diverticulitis for years and was told next is a resection and possibly permanent stoma so I enjoy your videos. I definitely cannot consume certain foods and fluids. My electrolytes have been out of balance at times. Thank you again.
I thought at first you said Presbyterian, even the second time you said it. Don’t judge me! Hahaha
Wow! I looked at several of your video's, They are all amazing, informative, encouraging and helpful. I was told I had the worst case of Ulcerated Colitis and Chrons disease the doctor had ever seen. I was misdiagnosed, as just being anemic, for many year. I wasn't properly diagnosed until I ended up in the hospital weighing 60lbs, a blood count of 3 and severly dehydrated. I did diet modification and am still alive. Thank you for your video's. No one tells you the whole story when they say you need a surgery. Even if they do inform you, you loose some of your hearing when you are not feeling. I have learned so much from your videos.
Avocado can be tough on your pancreas. Issues are new to me as well. So if the Sphincter of Oddi gets blocked (where the pancreatic fluids flow into your intestine) you can get severe stomach pain.
Thanks so much for this posting. I do not have an ostomy but had a rt. hemicolectomy for colon cancer about 2.5 years ago. Dr. told me that things would settle down in a short period of time. Ha! I have found a number of things I can eat and a few that I shouldn't even consider. Your video showed me that I'm not alone.
Thank you mate for sharing such fruitful information.
As an chrons-ibd- and ileostomy patient I've ideidentified alot that's common. I too has had these painful mouth sores and they look exactly with what reappeared on the end of my stoma- well the g.i.t Ibd doctors worked it quickly. Yeah I totally agree chrons does always resurface itself- that's one hint my surgeons advised me especially when people forcefully wanted a reverse.
Am at peace now and I do love my stoma it took me out of the misery pain and gave me decency. 😊❤
Hey Maggie, I did a video on my channel and I had to give you a shout out in it… I hope it’s ok… I always appreciate your videos as a fellow ostomy person myself. I’ve learned a lot and wanted to mention your channel. Thank you for sharing your information and life stories as an ostomy wearer. Much respect from here in Canada :) cheers… watching this video now..
I will probably have it up august 30th… and I want to share a link to LetsTalkIBD and Maggie, because I’ve learned so much living with an ostomy and it’s really changed my life from a new ostomate 5 years ago till now. I’m not a big channel but I wanna give credit to Maggie for inspiring me to tell my story finally on my channel. Thanks Maggie, it hasn’t been easy but even tho I have never met ya, this channel has really helped me in my struggles and I know many others like me :) thanks you
Pretty dress or top. It's an awesome pattern. With all those awesome colors.
I'm glad you said that, I feel the same. Maggie has a great eye for fashion.
I can listen to you talk all day ❤love your videos . Love from Newfoundland
Love to Newfoundland. Have you ever been to St. Shott's ?
Hi Maggie I love the way you put people's minds at rest.that is so important.looking at you so healthy looking puts a person's mind at rest about having an ostomy ❤❤
I have a latex allergy and eat avocados without any problems. I have a colostomy and all my doctor said was to avoid popcorn and to peel apples. I go 1 step further. I don't eat any peels. I love nectarines and peaches. I cut them into wedges and peel them with my tongue.
Oh my that's so complicated. Bless you all that have these colostomy.
Thanks again for a great and informative video. I had UC and IBS before my surgeries (ostomy) and I could hardly eat anything. Now I can eat most things, but some allergies remain, for example shellfish. I can't handle onions either. That's the only thing that's a big no for me. If I eat onion, it runs straight through. I try to cook carrot and those kind of vegetables. Cucumber, tomato and pepper I can eat the peel if I chop it finely. I notice with certain things such as mushrooms that it comes out in the same consistency as it goes in. Certain foods such as peppers or lettuce I chop into mini pieces so that it doesn't stick, then it works. If I have chewed too badly on something hard, I get pain in the stoma when it is about to pass out, so I try to avoid that. But it's like you say, it works differently for all of us. However, the doctors told me that most food allergies are in the large intestine, so if you get rid of it, you often get rid of your food allergies.
You’re looking so good and healthy 😊😊
Raw onions and green peppers will be the death of me lol. I avoid them at all costs. Garlic is not the friendliest either. I don’t have an ostomy or IBD but I have IBS and SIBO and have some food intolerances. Raw broccoli and cauliflower do not like me much either. I try to limit simple carbs as they can bloat me.. It’s all trial and error.
I cannot eat peppers or onions either with IBS. And forget about coffee!!
I had a blockage a couple of weeks ago. Ended up in the ER. What caused it was Skinny Pasta. It made out of a root fiber. Never again for this chick!
Very informative. I have tried LMNT but I seem to retain fluid with that and I put one packet into 40 oz of water.
My husband developed an avocado allergy after we moved to CA. Avocado is much more prevalent than they were in NY.
I don’t have a ostomy but, I’ve had a bowl resection and I have the same issue. I also get dehydrated really quickly.
I do not have a stoma, but I do have Crohn’s Disease - diagnosed in 1999. The food that I miss the most is corn. I love the smell and taste of corn! Small amount occasionally are o.k. and don’t usually cause issues. But, as an actual full side during events like Thanksgiving and Christmas are absolutely forbidden. I found this out the hard way many years ago. A few hours after eating a lot of corn, it felt like sand paper going through my intestines. Talk about paying a huge price for just a few moments of pleasure. It is very difficult for me to pass the corn along at the table without taking any during the holidays. 🙁
I do not have any of these problems but I can't eat corn or anything corn, wheat, oats, dairy, nitrates, artificial colors or any seed oils. It constipates me like crazy. I use organic olive oil, it's pricy, but it has made a world of difference for me. I don't know if it the chemicals on the food or what.
I feel your pain! Holidays are the worst. No pecan pie for me and small portion of veggies, when I really want to pig out
As a ostomate since 1985, I have had 1 episode of constipation. I ate a good portion of rocky road ice cream one evening. Needless to say, I was in the ER by 1 am for IV and muscle relaxant. I find that I must avoid mushrooms at all costs, but can eat bell peppers to my hearts content. Milk is a no no. So I allow myself a bit of ice cream when I am home all day. I have more issues with supplements. Potassium creates a lot of excess liquidity, and gas.. Also, magnesium. So I take these at night after supper. I have a bit of a citrus allergy, oranges, lemons or limes. I eat these in Moderation!!! All in all I do really well. I guess I'm really lucky my ileostomy behaves fairly well.
Delighted to hear all of this valuable info. Thanks so very much Maggi. You didnt mention fluids ...can you tolerate fruit juice ? ❤
You look splendid, Dear😊
Hey Maggie is there any update on your fertility journey, you did a video about the 1st appointment after the ectopic pregnancy but haven't seen anything else. Hope its going well
Just got my Ostomy 3 weeks ago.... my stomach somehow is now blocked so I need more surgery. Been with an NG tube for 3 weeks now, I am miserable.
Strangers are praying for you, sending healing vibes and keeping you in their hearts. You have such courage, folks look up to you. You may not know or believe it now, but with time you'll learn and then you will help others. Keep connecting with others. Best wishes! 🙏💛
You have every reason to be miserable . I will pray for you and promise to keep you in my mind each day for your healing and peace of mind. Please feel strength and love flowing through you.. I have had many bowel blockages needed NGT for extensive periods of time. Stay strong and know there will be many people holding you close in their heart .
You are an incredible inspiration Maggie ❤️
You are amazing !!! Bravo👋👋👋👋
Thank you so much for addressing the adhesions and scar tissue. Broccoli I suspect was what landed me into emergency surgery due to peritonitis and rupture. I LOVE Broccoli but now I cook it almost mushy and eat just a little
Hmmm…. Mushrooms are my ‘new’ downfall after my colostomy…. my intestines flow like a river. Never an issue before. Also, something in Asian cooking causes my colostomy to flow like Niagara Falls. Thank you for sharing your issues, Maggie. My colostomy is due to cancer surgeries and my digestive toleration changed.
Peaches… ugh. Same happens to me. Itchy mouth and throat. I steer clear from them; I don’t eat them at all.
Oats speed me ‘up’…
That was interesting Maggie.👍🏻💙
My Granddaughter she is 16 went thru this, now the specialist are going to try and build her a new colon, idk how there going to ya, my heart goes out to her having to go thru this being so young, she has had this like you with the poop bag around the same place as yours is for about 2 years I think, she went to the Specialist yesterday to talk about her surgery, it may help her to listen to some of your videos. Im going to show her n see. Makes me sad she is having to do this..Many Blessings
Very informative
I always remind people to not drink just water all the time if they're exercising, it's very warm, if you're sick or whatever that causes you to sweat or lose more fluids than normal. Only water can dilute your electrolyte balance even more, so it's very important to replenish those electrolytes in one way or another. I don't do well with electrolyte drinks that you mix yourself with water, I had to drink a lot of it in 2018 when Sweden had a long time of unusually hot heatwaves. As much as I love really hot weather (so yes, I was loving it in the summer of 2018), I do need to be careful and make sure I stay hydrated and keep my electrolytes in balance as I have hEDS and quite likely POTS. Anyhow, after all that "mix at home electrolyte" I started getting pain in my mouth when drinking it, like it felt raw and irritated in my mouth. These days I stick with salty snacks and make sure I drink enough, and if I have electrolyte/isotonic drinks, I get the readymade kinds like Powerade. I also find that I feel better if I limit my intake of plain water, and drink flavored, carbonated mineral water (as in mineral water from special wells with higher mineral content than regular tap water) or soda, or even just home made soda I make in my Sodastream with my tap water as base. There's just something about carbonated beverages or juice that makes me stay hydrated better than just plain water. It's so weird, but it works for me.
I'm the same way! Either I'm drinking LMNT or seltzer - it just feels so much more refreshing than plain water!
Thanks Maggie but what about lettuce?
If you research how to use castor oil on your abdomen regularly it can possibly slow developing more scare tissue.
That’s so interesting! My son and I both get itchy inside our ears and throat a lips when we eat avocado, cantaloupe, raw carrots, and bananas.
Been pretty lucky I really don't have many problems with foods except corn which kinda just passes thru. After my initial surgery I had a stricture in my throat where I would try and eat and end up spitting it back up. They stretched out my esophagus over several appointments and that solved the problem.
❤great info maggie you give a lot of hope
Like this video great to knows diff foods
Hi Maggie! I think I’ve watched everyone of your RUclips and Instagram videos. I have a colostomy scheduled for Sept. 9. Filled w anticipatory anxiety. I have a question- why are disposable bags not used very often?
I had my colostomy July 14. It was an emergency surgery. Your hospital usually starts you on what they have in stock. Some limit to certain brands. Drainable pouches are generally what you start on these days. Your WOCN may be the person to talk to about this.
@@lorax_wI had my colostomy 4 days before you! I hope you’re doing well! 🤍
This video was so informative! I got my colon removed and my ostomy because of C-diff that nearly cost me my life. I’ve had it a little over a year now and it works great! I’m so thankful! I can eat raw veggies and even popcorn with no problem. I’ve only had one blockage after eating artichoke dip! I was literally pulling the artichoke fiber out of my stoma! It was crazy! But I guess it’s better than Nate’s chicken bone story! 😂
I had c diff 4 years ago after surgery from a bowel resection. Horrible illness that even doctors don’t appear to comprehend. I found Maggie’s channel while in/out of the hospital. Happy you are doing well.
I have a latex allergy and have also been told to avoid peaches as the stone contains latex- might be the same for avacado!
I eat a greggs sausage roll and I'm not even eating any more! But I have food allergies and intolerances, so I have to be careful the only food I can't eat today that i could have before is spinach, so bad. ❤
Thanks!
Thank you!!
BEEN THERE WITH THE URETER BECOMING BLOCKED. VERY painful. My intestines are piled up at the bottom of my pelvis as the sac tore or burst at some point. I don't have crones byt touchy colon. AVOIDING carbs helps a lot/ TY
Gracie has gotten a lot better since I got her last June. I don’t care how I cook broccoli or how much I chew it passes through Gracie like a tree. When I fix broccoli I chop it up in the blender.
Thanks Maggie, but what about lettuce? Does that cause blockages?
It doesn't for me but can for some! With any food, it depends on the person.
@@LetsTalkIBDI will try it at some point but since yesterday was literally 3 months since my surgery I will probably give lettuce a little longer of a wait. Also thanks for the LMNT recommendation. Some flavors a little salty but tolerable. Watermelon great! The temperature makes a big difference also. Drinks must be cold!
@@cgomez77I’ve had my colostomy since 2/7/2023! I’m still having a lot of issues with mine! But I’ve found that salads have not bothered me since having my surgery! Matter of fact they gave me a small salad while I was in the hospital & it was so good! Good luck with your colostomy! I’m praying yours works a lot better than mine has!🤗💕
Iceberg can cause all kinds of issues, especially gas. My nurse told me that iceberg is very hard for anyone to digest and it has little nutritional value. I find baby greens to be easier to live with, and still chew really good!
I have become a carnivore since my surgery 3 years ago because it digests so well. I have an inverted ostoma and I pancake always if I eat fibers and fats
With the fruits it sounds like oral allergy syndrome, have you ever discussed that as a possibility? My dad can’t eat any raw fruit at all since he was 16, they all have to be cooked or canned in some way for him
This is called "latex-fruit syndrome" or "latex-food allergy syndrome". About 30 to 50% of people with a latex allergy have latex-fruit syndrome. Other foods that may cause reactions in people with latex allergies include:
Bananas, Chestnuts, Kiwifruit, Passionfruit, Plums, Strawberries, Tomatoes, Bell peppers, Figs, and Peaches.
❤
Do you still have a colon and can you tell me about dealing with mucus discharge. Plus, Is the discharge effected by what you eat.
I don't anymore but have videos on my channel that talk about this!
I have an Ostomy my GI Doctor told me that marshmallows help slow down the output but it doesn’t work for me. I want to shower more without my bag on but it leaks too often for me to do so. Anyone have any suggestions?
You should try a different brand of bags as some others may be better.I never leak unless I pancake .I use one piece bags and change the bag every other day prior to eating ,at which point the Stoma is inactive.
I limit my food in the 3 hours before I shower. It seems to slow my output during a pouchless shower. It seems to help manage the situation.
Popcorn
I'm sorry 😞
My doctor just brought up with me getting an ostomy. I'm confused though, because she said I wouldn't be able to eat any raw fruit or vegetables, nuts, seeds, or popcorn. Is that true or does it just depend on what I can tolerate?
What are you confused about? Even the foods you listed will cause you problems with colostomy. Popcorn will cause a blockage just as eating raw vegetables and fruit will.
Very dumb question, but I've always wondered...You've mentioned constipation on your channel a few times. Normally when one has constipation, a lot of active "pushing" is involved to get yourself to go. With an ostomy, there is no pushing ability or having that control. How would one get it to pass?
There is a little bit of pushing you can do with your abdominal muscles.. definitely not as effective when there's no rectum! But I have been able to massage my belly around my stoma and tense my abdominal muscles to help get my stoma going!
Wow it shows you how different everyone is. Apples pass through my colostomy very quickly. I can also massage my abdomen if I have eaten something that binds me up a little.
Where do you live??? Country is enough 💯
you look Great
How many LMNT do you have a day
Recipe apple muffin
So sorry!! Here it is! addapinch.com/cinnamon-apple-muffins-recipe/
Odd, I have a latex allergy but I eat avocado
Not sure if you've been asked/done a video about this but I have to ask: What do you do in a disaster/grid down/end of the world type situation? How would you prepare for a natural disaster? Especially in a situation where sanitation might not be very great.
I've thought that same exact thing.
Putting Ground coffee in with anything that has an odor will eliminate the odor. Promise.
Wow great question!!! Holding off getting an ileostomy myself but in major situation or even being stuck somewhere like an airport for multiple days getting supplies would be a serious problem. And the difficulty with good choices. Thinking of New Orleans and Katrina, no vehicle and moved to the Superdome
@@StoryThyme100quite naturally you would carry emergency supplies with you anyway in a daily basis.
Baby corn is an absolute no-no for me.
I’m not surprised that you were allergic to Latex Maggie, rubber gloves are highly indigestible. Not only that, they would taste terrible. 👋🖐️ 😝 🐨 🦘🦘 🧡
Dos dogs understand ostomy as normal part of You or do they understan ostomy as wound=? And sri if myquestion is not polite but I am dog person aND IT INTEREST ME.
I have 2 dogs and I think they think it is part of me because they don't have any reaction to it. They don't react to noise or any smell because their sense of smell is so strong. I hope this helps!
My dogs worry about either of my ostomies but my dog knew I had cancer before I did.
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