Chronic Illness Weekly: Working with Chronic Fatigue
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- Опубликовано: 18 окт 2024
- This week on Chronic Illness Weekly I have a busy week at work preparing for our first ever virtual art exhibition and also doing my princess outfit for a birthday party. We also spent some time finishing sorting Ian's new flat heading to Ikea and building a dressing table. We also found a lost tortoise/terrapin. No wonder I find myself stuck in a flare of pain and trying to work through my Chronic Fatigue.
Chronic Illness Weekly is, you guessed it, a weekly vlog showing you my life with Chronic Illness. I share my experiences with Ehlers Danlos Syndrome ( EDS ), Postural Orthostatic Tachycardia Syndrome ( POTS ) and Chronic Migraine. I fight chronic pain and fatigue and many other symptoms on a daily basis but I try not to let it stop me.
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This couldn’t have come at a better time. I’m really struggling with pain and fatigue this week. Today I’m just admitting defeat after pushing myself all week sometimes self care is the way to go! Xxx
100% we need to remember how sick we are sometimes and take the rest we deserve!
Found myself actually looking forward to your weekly videos xx keep up the good work xx
Aww thanks Joanna, that means so much! Sorry I've been behind. Back at it now x
Haha I love seeing Ian trying so hard for you on here bless him I love seeing you happy that’s all I ever want for you. Lovely too see you back as Anna too my lovely xxx
Hahah bless him he's great. Thank you lovely! I've missed her SO much! x
So happy I found your channel, it’s so nice to watch someone I can relate to. Hope you are doing well babe ❤️
Aww Welcome Amy! So Nice to have you here! Lots of love x
Hi I love finding others in the same boat it makes us feel less alone. Your amazing.
I love this community too, making videos definitely helps me feel less alone! Thank you so much x
@@ChronicallyJenni totally agree with you it really does. My channel rather new but hopefully it will get as big as rabbit special needs my other one. My bunny is sick too but adorable.
Your channel is awesome. Thanks for doing your thing, I have EDS, CFS, and fibromyalgia and I feel so lost in this world
You likely have chronic Lyme disease plus confections, I was diagnosed with fibromyalgia 20 plus yrs ago, and when I was bit by a tick, on 4 different occasions, I realized I 've had Lyme since my very young teen years. My heart issues, my pain and fatigue issues, no stamina all finally made sense. Find a private lab that offers Lyme borrelia elispot tests as most woman stop producing antibodies rendering antibodies tests useless. You can be tested for cd57, cd3 and other natural killer cells that usually indicate a compromised immune system hindering the ability to fight off chronic infections. Look up chronic Lyme disease plus confections by Dr Steven Phillips and Dana Parrish on RUclips also book chronic. God bless hope you find answers
Hi Jenny, I get the finger burning sensation off and on (I have HEDS, POTS, Pernicious Anemia, and a slew of other things). I do notice it can get worse if I am carrying a lot of heavy things, especially tucked under my arms, as that compresses the nerves that run to your fingertips. It can also flare up when my vitamin levels are low or if my hands are in contact with allergy/toxin triggers. Usually it will resolve on its own and is just an annoyance. The unfortunate thing is that in my experienc ice, heat, or painkillers don't really help. Rest is your best friend in that situation. So sorry you are experiencing this.
Gentle hugs,
Sara
Hi Sara, so weird right definitely sound like it might be a nerve issue then it seems to have settled down again since. our bodies are strange sometimes :P Spoons & Love, Jenni
@@ChronicallyJenni
Thanks! Sorry for the misspelling of your name, didn't notice the autocorrect when I posted it. Love your videos!
Aww no worries at all! Autocorrect is so annoying sometimes. Thank you so mcuh!
Ah this was helpful. I don’t get burning but I get tingling at the tips of my fingers and sometimes numbness
Isn’t life so much easier now the heatwave is over? Have a good week sweetie xxxxxxx
So much easier! Hope you've survived the recent mini one! Thanks Penny ! x
Do you have any root canal?
Why do we do this to ourselves- continuously over due ourselves... never had the finger thing... but constantly getting face rashes- think mine are usually gluten related- always seem to miss some glutten in items.. not so much dairy. But I put Benadryl cream on my face- really helps.
Glad the benadryl has helped before changing my diet I had lots of facial and chest rashes so definitely think it was allergy related for me too but worth getting in checked if it persists too much x
The turtle was a pet? You don’t have lakes etc that he possibly came from?
No we definitely don't have wild turtles was so bizarre hopefully they found its home x
Was that an ikea build? They are murder! Looked good though.
Was a wayfair one actually actually went pretty okay apart from the one bit i originally mad eup back to front 😂
Hi hunni, I also have fibro along with other illnesses. Sending you lots of gentle hugs xx new subscriber ❤️ lets support each other 💛💛 xxx
Hi Diane! Welcome! Great to meet you I look forward to supporting each other x
Hi... r u going to introduce us to ur boyfriend?
He was in last video
Haha he's popped his head in for a few videos but hasn't really had a proper introduction I do admit he will be in more of my norfolk vlog which is coming soon and I'll see about a proper intro he's pretty quiet x