He's very fortunate to be diagnosed as a child. At 37, I'm just discovering there is a name for these life-long struggles. It's emotionally taxing having everyone think you're so smart and faking struggles with simple tasks. When in fact you're trying your best and failing, but you sound smart, so no one believes you. I'm relieved to have learned there's a name for these life-long challenges.
Yes! I feel your pain, being diagnosed at 39, now 61! I used to think God hated my guts. I've learned part of the problem is that we are missing white matter. Every day is taxing!
“You’re so smart. You’d be so successful if you just applied yourself.” So many kids that could’ve been helped have been overlooked with that one statement.
So can NVKD kids talk? The other aspects are interesting but after the issue came up with Tim Walz son at DNC, I'm seeing it everywhere but no one will simply say if kids can or can't speak. When you say " non verbal "- it's just very confusing
Yeah, it is stupid that it's called non verbal learning disorder. What it actually means is that it is a learning disorder that is not verbal in nature. So it affects everything else besides the person's ability to talk. They really should change the name.
Same here. Research is lacking big time with NVLD and there's almost nothing that anybody can tell us about it. In 1995 it was said to be caused by damage to white matter in the right hemisphere of the brain. For 25 years after that, no further effort was made to dig into it. In 2022, a new study found that low hippocampal volume was another defining characteristic of the condition. Those causes closely resemble diseases such as Alzheimer's and MS, and would ordinarily meet the criteria of a brain injury. Targeted treatment approaches urgently need to be developed because there is no telling whether this becomes worse over time or is a static condition. At the moment the best treatment is memantine. My psychiatrist has prescribed it to me as an off label treatment for ADHD, which evidence is becoming stronger for and of which I also meet the criteria. It has improved my memory significantly and helped with cognitive processing speed. Fundamentally, I view NVLD as a memory problem first and foremost, and think we need to treat it as such.
I was diagnosed at 39 & only God in heaven kept me on this earth! My childhood was "Everyone hates Kathy." My relatives made fun of me, my brother hated me, & still hates me. God has really saved me. I had two failed marriages, very few friends, but good friends. The 21st Century is extremely difficult to live in. People like us are really a Helen Keller of sorts. It was extremely comforting when Chris Rock came forward. I don't have any talent, but I'm glad he's successful & most of all respected.Glad for these young kids, who seem to have great parents, who are helping them succeed.
It’s a shame that I wasn’t diagnosed with NVLD until I was 40. I am a terrible driver, I have zero sense of direction, I was a poor student, I process everything slowly, I’m a clumsy, butterfingers, I have a poor working memory I would be a complete failure but I am a smooth talker with a stellar vocabulary and a strangely powerful long term memory and I’m artist. Most of my corks ,I believe,come from my NVLD.
I understand this is a frustrating disorder but I do hope you aren’t driving. Often time people with NVLD have poor visual spacial awareness. I’m not trying to be rude, I’m saying this because I care.
I've got it too guys! I have an incredibly difficult time with math! I am trying to get my school to approve a credit from another university because I can't pass the math at Public universities! Don't quit anything, keep trying Even if you fail, it's better to fail time and time again than quit and never try again. I was actually able to pass hospital corpsman navy training before I was aware I had the disability. That is incredibly visiually spiritually oriented. I had a difficult time with relationships, but now I'm married. I had a hard time making friends, but now I have a great friend. Life works itself out for you! Keep your head up and grind and life will turn out great 👍
I learned how to read when I was three. When it comes to writing, sometimes I can get the letters in the spaces without the words going one direction or the other, but other times, not so much. The summer before I started my senior year of high school, my mom was watching a special about ADD, so she got herself evaluated and was diagnosed. She spoke to my childhood neurologist (since I have hydrocephalus, I see one), and he ordered me to undergo some neuropsych testing, and the diagnosis I came away with was NVLD. I also have some savant abilities. In fact, when I was in first grade, I saw my dad write the wrong year on a check (as so many of us do in early January, and I've even caught myself doing it a few times), so I corrected him. Since then, he's called me his "walking calendar", and I've also been able to tell people what day of the week their next birthday would be on.
That on-air personality needs to learn the difference between offering sympathy and invalidating what someone is saying. When a person with a disability/deficit explains how that disability affects them, the worst thing a neurotypical person can do is minimize it by saying, "Don't we all?" (This was in response to the young woman who said she has difficulty reading maps.) That kind of remark doesn't help the person with a neurological deficit to feel included; rather, it insinuates that the person sharing doesn't really have a disability. Like: if we're all like that, then how is she disabled or different? How insensitive and ignorant. Her job was to listen and affirm, not to stumble around trying to make the person feel better, and in the process, really stepping where she shouldn't.
I have it and its terrible I have never held down a job and was diagnosed late and its like playing catching up daily. Glad that this is being discussed more.
Thank you for this. I feel like I have a form of this, and it's a struggle to explain. Many of the symptoms are similar to ADHD- memory and organization problems, difficulty with motivation, etc. But it's different in subtle ways.
I have both ADHD and NLD (adult). I can understand every aspect of ADHD, but I can't understand NLD... It's not a official diagnosis and it's more like a set of cognitive disabilities, but not even scientist can agreed on exactly what they are and agree on them. So that means that "NLD" is just a theory really... Cognitive issues are there, but the explanatory model ("NLD") is insufficient.
@@GrayderFox He's talked about how and why he went for a neuropsych evaluation, because he often misses social cues and doesn't realize when he's not responding to people appropriately. If you Google videos about it, he discussed it around the time he disclosed (I think it was 2019).
An incompetent teacher tried diagnosing me with this after my grades started spilling in the 5th grade. I was at a new school in a bad neighbourhood full of mean and violent children so I became isolated. No teachers helped just diagnosed me with stuff. Wasn't until I met some nice kids the next year that my grades turned around.
How can I even get people to listen to me about my child that I suspect has this? No one seems to know anything when I even ask them about her having it and in my gut I know this is what she is dealing with but I cant get help for her and I am lost on what to do because they all just want to say she is just ADHD but I know I KNOW as her mother it is not ADHD but no one wants to listen to me its aggrevating ! I cry daily and scared for her future I worry myself to death and I just want someone to listen. She is in 3rd grade now and I just want to help her the best I can and to ensure that she has the best chance at a happy future as she deserves and as all other children and parents who are going through the same as me, deserve as well. What can I do ?
Talk to the guidance counselor at her school. They can point you to a psychiatrist who can do the testing. That’s what we did and how we got answers. They don’t test for NVLD specifically, they test for all learning disabilities and use the results from that information to make a diagnosis. The testing is expensive and generally not covered by insurance but it’s ultimately worth it. There may be a way to find a test that isn’t as expensive. I’m not sure but the guidance counselor is a good place to start. Good luck.
He's very fortunate to be diagnosed as a child. At 37, I'm just discovering there is a name for these life-long struggles. It's emotionally taxing having everyone think you're so smart and faking struggles with simple tasks. When in fact you're trying your best and failing, but you sound smart, so no one believes you. I'm relieved to have learned there's a name for these life-long challenges.
same but at 22 years old.
Yes! I feel your pain, being diagnosed at 39, now 61! I used to think God hated my guts. I've learned part of the problem is that we are missing white matter. Every day is taxing!
“You’re so smart. You’d be so successful if you just applied yourself.” So many kids that could’ve been helped have been overlooked with that one statement.
So can NVKD kids talk? The other aspects are interesting but after the issue came up with Tim Walz son at DNC, I'm seeing it everywhere but no one will simply say if kids can or can't speak. When you say " non verbal "- it's just very confusing
Yeah, it is stupid that it's called non verbal learning disorder. What it actually means is that it is a learning disorder that is not verbal in nature. So it affects everything else besides the person's ability to talk. They really should change the name.
I have it. Been diagnosed. I keep looking it up every once in a while to see if it’s more known. Hopefully one day people will know more about NVLD
I have NVLD, too! I have been diagnosed as well by a psychologist.
I have NVLD too. Along with OCD and ADHD. Glad to know I'm not alone. :)
Same here. Research is lacking big time with NVLD and there's almost nothing that anybody can tell us about it.
In 1995 it was said to be caused by damage to white matter in the right hemisphere of the brain. For 25 years after that, no further effort was made to dig into it.
In 2022, a new study found that low hippocampal volume was another defining characteristic of the condition.
Those causes closely resemble diseases such as Alzheimer's and MS, and would ordinarily meet the criteria of a brain injury.
Targeted treatment approaches urgently need to be developed because there is no telling whether this becomes worse over time or is a static condition.
At the moment the best treatment is memantine. My psychiatrist has prescribed it to me as an off label treatment for ADHD, which evidence is becoming stronger for and of which I also meet the criteria. It has improved my memory significantly and helped with cognitive processing speed. Fundamentally, I view NVLD as a memory problem first and foremost, and think we need to treat it as such.
same bro
I was diagnosed at 39 & only God in heaven kept me on this earth! My childhood was "Everyone hates Kathy." My relatives made fun of me, my brother hated me, & still hates me. God has really saved me. I had two failed marriages, very few friends, but good friends. The 21st Century is extremely difficult to live in. People like us are really a Helen Keller of sorts. It was extremely comforting when Chris Rock came forward. I don't have any talent, but I'm glad he's successful & most of all respected.Glad for these young kids, who seem to have great parents, who are helping them succeed.
It’s a shame that I wasn’t diagnosed with NVLD until I was 40. I am a terrible driver, I have zero sense of direction, I was a poor student, I process everything slowly, I’m a clumsy, butterfingers, I have a poor working memory I would be a complete failure but I am a smooth talker with a stellar vocabulary and a strangely powerful long term memory and I’m artist. Most of my corks ,I believe,come from my NVLD.
You mean “quirks”?
I understand this is a frustrating disorder but I do hope you aren’t driving. Often time people with NVLD have poor visual spacial awareness. I’m not trying to be rude, I’m saying this because I care.
@@Autumn_Forest_ lol thanks for your unsolicited correction.
@@triggeredcat120 oh I can drive and I do have a car, I just don’t go very far, as of yet I haven’t run over anyone.
@@messiahsgate1172 For sure! Just as long you’re safe and that others are safe.
I've got it too guys! I have an incredibly difficult time with math! I am trying to get my school to approve a credit from another university because I can't pass the math at Public universities! Don't quit anything, keep trying Even if you fail, it's better to fail time and time again than quit and never try again. I was actually able to pass hospital corpsman navy training before I was aware I had the disability. That is incredibly visiually spiritually oriented. I had a difficult time with relationships, but now I'm married. I had a hard time making friends, but now I have a great friend. Life works itself out for you! Keep your head up and grind and life will turn out great 👍
Diagnosed at age 16, happy to see more people recognizing this disability.
I learned how to read when I was three. When it comes to writing, sometimes I can get the letters in the spaces without the words going one direction or the other, but other times, not so much. The summer before I started my senior year of high school, my mom was watching a special about ADD, so she got herself evaluated and was diagnosed. She spoke to my childhood neurologist (since I have hydrocephalus, I see one), and he ordered me to undergo some neuropsych testing, and the diagnosis I came away with was NVLD. I also have some savant abilities. In fact, when I was in first grade, I saw my dad write the wrong year on a check (as so many of us do in early January, and I've even caught myself doing it a few times), so I corrected him. Since then, he's called me his "walking calendar", and I've also been able to tell people what day of the week their next birthday would be on.
I have NVLD thank you for covering this!
Me too :)
same! im glad there are videos about it since not a lot of people know about it
I really wish I'd had this much understanding about the condition when I eas in school! I had to figure out my diagnosis for myself at age 43!
I'm going through ASD testing rn at 47
Testing is really the only way to know for sure. There are a lot of subtleties in diagnosing NVLD vs. ADHD vs. Aspergers, etc.
I don't think the school counselor in Alabama knew what NVLD was in 1984.
@@Historian212what are the differences?
That on-air personality needs to learn the difference between offering sympathy and invalidating what someone is saying. When a person with a disability/deficit explains how that disability affects them, the worst thing a neurotypical person can do is minimize it by saying, "Don't we all?" (This was in response to the young woman who said she has difficulty reading maps.) That kind of remark doesn't help the person with a neurological deficit to feel included; rather, it insinuates that the person sharing doesn't really have a disability. Like: if we're all like that, then how is she disabled or different? How insensitive and ignorant. Her job was to listen and affirm, not to stumble around trying to make the person feel better, and in the process, really stepping where she shouldn't.
I have it and its terrible I have never held down a job and was diagnosed late and its like playing catching up daily. Glad that this is being discussed more.
This is what I was diagnosed with when I was 40 years old. It would be great to find a cure for it.
Hang in there!! 💪
I just an evaluation and learned about this. Boy,do I tick all the boxes.
Go Teddy you are not alone I have nvld too
wat is it
I have nvld thank you for making this
Can you please do a follow up to this story?
Thank you for this. I feel like I have a form of this, and it's a struggle to explain. Many of the symptoms are similar to ADHD- memory and organization problems, difficulty with motivation, etc. But it's different in subtle ways.
ADHD: Bullies
NVLD: Bullied
@@JohnDoe10350 Untrue. Lots of people with ADHD have been bullied, and aren't bullies.
@@JohnDoe10350lots of people with ADHD are the ones who are bullied. i’m (or i was?) living proof of that 🤍
Everything on that list resonates with me.
I have this it has caused me immense pain
I have both ADHD and NLD (adult). I can understand every aspect of ADHD, but I can't understand NLD... It's not a official diagnosis and it's more like a set of cognitive disabilities, but not even scientist can agreed on exactly what they are and agree on them. So that means that "NLD" is just a theory really... Cognitive issues are there, but the explanatory model ("NLD") is insufficient.
chris rock brought me here. that’s crazy he has Nlvd and that’s why he couldn’t read the room when will smith approached him :(
Did he say that?
@@GrayderFox if you search his nvld diagnosis, you'll get to know there
@@GrayderFox He's talked about how and why he went for a neuropsych evaluation, because he often misses social cues and doesn't realize when he's not responding to people appropriately. If you Google videos about it, he discussed it around the time he disclosed (I think it was 2019).
I have NVLD.
If you're reading this, you are not alone. ❤️
dx'd at age 31.
An incompetent teacher tried diagnosing me with this after my grades started spilling in the 5th grade. I was at a new school in a bad neighbourhood full of mean and violent children so I became isolated. No teachers helped just diagnosed me with stuff. Wasn't until I met some nice kids the next year that my grades turned around.
Teachers should not be diagnosing students. As far as I know, this is a uniquely American phenomenon.
@@blk986 It’s actually illegal for teachers in the US to diagnose children with medical illnesses, so no, it’s not any kind of “phenomenon” here.
Sounds like the teacher was trying to help you by sharing her suspicions so you could get it checked out.
How is this different from Social Pragmatic Communication Disorder?
i was diagnosed with nvld when i was a kid, but i keep thinking its wrong cuz i relate alot to my friends with adhd i am 26 now
ADHD is probably overdiagnosed whereas NVLD is underdiagnosed.
I think that some of those ADHD-kids are in fact NVLD or something similar.
The symptoms sound very similar to Irlen Syndrome (Scotopic Sensitivity Syndrome)
How can I even get people to listen to me about my child that I suspect has this? No one seems to know anything when I even ask them about her having it and in my gut I know this is what she is dealing with but I cant get help for her and I am lost on what to do because they all just want to say she is just ADHD but I know I KNOW as her mother it is not ADHD but no one wants to listen to me its aggrevating ! I cry daily and scared for her future I worry myself to death and I just want someone to listen. She is in 3rd grade now and I just want to help her the best I can and to ensure that she has the best chance at a happy future as she deserves and as all other children and parents who are going through the same as me, deserve as well. What can I do ?
Talk to the guidance counselor at her school. They can point you to a psychiatrist who can do the testing. That’s what we did and how we got answers. They don’t test for NVLD specifically, they test for all learning disabilities and use the results from that information to make a diagnosis. The testing is expensive and generally not covered by insurance but it’s ultimately worth it. There may be a way to find a test that isn’t as expensive. I’m not sure but the guidance counselor is a good place to start. Good luck.
Its possible to have both adhd and this
I’m lonely I have poor motors skills I have this
Hope you are alright
@@romanr.4821 thanks I am well
Yo chris rock.
I absolutely hate this i would be happier without it
❤
Mam ye bolta tha
Wilson Patricia Brown Dorothy Rodriguez Donald
wtf!?
More vaccines..this is resold!!
Sound fishy
It isn't its a real thing.
@@butteheadbuttrack4728 Okay, butteheadbuttrack4728 I didn't realize you are qualified to make that assumption.