Life After Craniotomy

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  • Опубликовано: 31 дек 2024

Комментарии • 125

  • @Stillaways2go
    @Stillaways2go Год назад +111

    I was admitted to the ER on June 23rd for emergency craniotomy brain surgery. I was brought back to life by doctors and woke up 3 days later in the ICU. All I remember is severe migraines, vomiting, and blacking out. All I know is I stayed in the ICU for 9 days, two days in a regular room, and I'm back home now. The symptoms after my surgery include loss of memory, hard time concentrating, loss of balance, etc. By the grace of God, I have all my physical and mental abilities, and I'm here to use this as a part of my testimony. Idk what God has in store for me. I plan to continue to ask for strength from up above

    • @dereksavastano
      @dereksavastano Год назад +2

      Good luck & Always keep fighting💪

    • @Victor-li5mq
      @Victor-li5mq Год назад +4

      Hi my brother is going through the same thing right now.. What can I do to help his recovery process?

    • @Stillaways2go
      @Stillaways2go Год назад +1

      @Victor-li5mq Not sure. I've been going through the process. I completed radiation on my brain, went to appointment after appointment. Now I start chemo tomorrow

    • @Stillaways2go
      @Stillaways2go Год назад +3

      @Victor-li5mq wish I had more information to provide you in regards to helping your brother but my process and situation is out of my control. All I can do is trust God and be grateful for everyday I awake

    • @amanvibhash
      @amanvibhash Год назад

      ​@@Stillaways2gogod is with you my brother, god is about to bless you and believe me you're never alone brother, I'm with you, everyone's with you, and the supreme god is with you, always.

  • @jeanc6295
    @jeanc6295 Месяц назад +4

    I just had a craniotomy on oct 25 i was out the hospital in 2 days up walking and talking. I am 57 years old i am already back to work in less than a month. I am still taking it easy but i am grateful i am still here.

  • @BananaZen7
    @BananaZen7 Год назад +37

    Recovery time depends on many factors: the type of operation, age of the patient, immunity strength, etc...5 years after my brain tumor surgery and long difficult period of revalidation i still haven't fully recovered...the best is to go with the flow, stay optimistic and live as healthily as possible...

    • @krishnapriyal5118
      @krishnapriyal5118 8 месяцев назад

      How is your health now

    • @BananaZen7
      @BananaZen7 8 месяцев назад +2

      @@krishnapriyal5118 Fragile...low energy for walking and talking..low stamina...oversensitive for too many impressions like in church and in the supermarket...

    • @TM-nq4tt
      @TM-nq4tt 3 месяца назад

      Have you tried stem cell

  • @rahulramesh1611
    @rahulramesh1611 Год назад +13

    I met with an accident at October 28 .my surgery ( craniectomy)done on same day . I was ventilated an have no sense for 3 days .further I was in ICU for 4 days and 8 days at normal room .I feel little pain on back side of head and nerves of my neck side .
    After one month I was under gone cranioplasty . After cranioplasty surgery I feel much better and no any pains on the back of head . Thanks for all doctors

    • @Lifeofayuu
      @Lifeofayuu 5 месяцев назад +1

      Hi @rahulramesh1611
      Did you go to physiotherapy after 1st and 2nd surgery ?

    • @Zaibii_here
      @Zaibii_here 3 месяца назад +1

      Bro how are you now?
      Any difficulties or challenges?
      I want to know coz i had craniotomy after accident for haematoma a month ago....

  • @teresacabrera8694
    @teresacabrera8694 6 месяцев назад +7

    I am 5 days post-op craniotomy for MVD for hemi facial spasms.
    I am 64 and am home recovering.
    Because of my keto-carnivore lifestyle, I am feeling amazing and moving around with little to no pain. I am consuming lots of water, bone broth, and animal foods. I dont consume sugar, grains, vegetables, or seed oils. I am using ice packs and will be encouraging blood flow on the incision area as soon as I get the okay. My health is so good because I don't have any underlying conditions. I don't take any medication for anything. I am just on Tylenol for pain and remainder of steroid prescription. My surgeon and hospital staff were amazed at my quick recovery. I am blessed beyond words!!

    • @QuiltBeadKnit
      @QuiltBeadKnit 6 месяцев назад +1

      Congratulations on the quick recovery. How did you handle the hospital food?
      During a recent hospital visit they gave me the “low carb tray”. Someone’s idea of low carb differed from mine since they served stuffed shells and sugar-free pudding. Packing keto-bricks, LMNT, dried berries and jerky for an upcoming surgery.

    • @teresacabrera8694
      @teresacabrera8694 6 месяцев назад +1

      @@QuiltBeadKnit Oh my, I was on liquid diet for two days. Broth, jello, lemon ice, coffee, tea. I was nauseous and threw up the small amount of broth. I did not eat much. On second day I asked for bacon and eggs and had that twice. Black coffee and that was all till I came home. I had a ribeye as soon as as I got home. I made bone broth and have been sipping on that for two weeks each morning. The collagen is helping me heal quickly. Good luck with your hospital stay.

  • @jumyjumy5075
    @jumyjumy5075 10 месяцев назад +11

    Life after craniotomy is very difficult n different but very huuuge thanks to god that he saved my life for my only daughter n my small cute family😊

  • @justinhunstad1760
    @justinhunstad1760 2 года назад +18

    I'm in week two of recovery and I'm happy as the resection was a life saver and bought me more time. I can't express how difficult recovery is without excercise. I really wish there was more I could be doing than just laying in bed.

    • @ItsJoey571
      @ItsJoey571 5 месяцев назад +1

      Did you need the bladder one? I'm asking bc I'm going through this surgery next week

    • @ZakariyeMaxamed-vj5ot
      @ZakariyeMaxamed-vj5ot 7 дней назад

      How are u now bro ​@@ItsJoey571

  • @lilianmukabana7465
    @lilianmukabana7465 Год назад +14

    My brother died while undergoing brain tumor surgery 😥😥😥I lost a great friend of mine.. rest in peace brother

    • @517renise
      @517renise Год назад

      💙💙💙 Hugs

    • @ianstewartorr8455
      @ianstewartorr8455 Год назад

      My love from Scotland 🇬🇧🇬🇧🇬🇧 it was a blood clot on the brain for me I was thirteen it was 1977 and eight years as an outpatient I feel your sadness

    • @Stillaways2go
      @Stillaways2go 7 месяцев назад +1

      Sorry to hear this. My condolences

  • @teresacabrera8694
    @teresacabrera8694 6 месяцев назад +1

    I had a craniotomy 13 days ago for MVD (micro vascular decompression) due to hemi facial spasms. I am doing great and I owe it to my keto- carnivore lifestyle. My diet consists of eating eggs, meat, bacon, some dairy. I don’t consume sugar, grains, seed oils or vegetables. I eat some berries but very little. I drink water, tea and coffee (black). I am doing great, and am off
    all pain meds and drugs. I felt good immediately after surgery and had side effects
    from all the pain meds, including morphine, steroids, oxycodone. I had nausea,
    constipation, but as I weaned off everything, I started feeling better. I drove yesterday
    on day 12, and did fine. The surgeon and hospital staff were amazed at how quickly I bounced back.
    The way I eat has much to do with my speedy recovery. I am 64 years young and am
    looking forward to my continued healthy recovery.

    • @JHADERAGHAVENDRARAO
      @JHADERAGHAVENDRARAO 8 дней назад

      my father has undergone POSTERIOR CRANIOTOMY surgery on 19th of this month. Currently he is in doctor’s observations in ICU, after 4th days EVD , tracheotomy done .i dont know what will happen when he will come to home.

  • @calebmichael8054
    @calebmichael8054 Год назад +2

    I had this after a bad case of bacterial meningitis, I was in the hospital for 3 weeks, 1 week of NICU and another 2 weeks learning to walk and then a month of antibiotics through a picc line. Through Emory university

  • @jumyjumy5075
    @jumyjumy5075 10 месяцев назад +3

    Yes i also having severe head aches n lso depressed many timez but i always go to the way to god n had a patience on that way😊

  • @rayisnumbaone
    @rayisnumbaone 2 года назад +9

    I was about to drive after 10 days. Obviously, everyone is different, but, waiting until 8 weeks to drive or work is abnormally long per other medical posts.

    • @cameronmens8922
      @cameronmens8922 Год назад

      I had a craniotomy to remove an infection 4 months ago and I’m still feeling the effects and have my license suspended due to medical

  • @katthefig
    @katthefig Год назад +9

    I need to have one either this month or next month. This video is very helpful :)

  • @NadineWilliams-l8g
    @NadineWilliams-l8g 8 месяцев назад +4

    I had my craniotomy 6 months ago 14 October 2023 n I'm doing well bt struggling alot with walking, thinking or even concerntrating,the pain in ur head near incision never goes away only becomes milder,life is definitely not the same ..... everything in ur body changes ,,nerves , hormones,moods ,taste n behaviour,,,I cn work either yet cos it's still a long way to go,,,bt this is all things I'm new at n also learning to adjust

    • @eatjinarmy3469
      @eatjinarmy3469 2 месяца назад

      How are you right now? I hope you're doing better

    • @NadineWilliams-l8g
      @NadineWilliams-l8g 2 месяца назад

      @eatjinarmy3469 I'm doing alot better thanks I won't say 100% full recovery bt I'm getting thier 80% have my on n off days bt I'm adapting to my new life,like they say change is good

  • @osirishill23
    @osirishill23 Год назад +3

    My wife had a craniotomy in June after months of severe migraines. She had clotting on the right side of her brain and had it removed. She still suffers from headaches almost daily. If anyone else has been in this situation or is going through it currently is there any advice that you can give me ? I feel helpless watching her go through this on a daily basis and all the nurses say is that it’s normal.

    • @BananaZen7
      @BananaZen7 8 месяцев назад

      Buy the excellent herbal remedy book 'The Complete Herbal Tutor' by Anne McIntyre...it will lead you to herbs that can help in preventing future blood clotting and reduce the headaches...and improve overal health. 🌞

    • @NadineWilliams-l8g
      @NadineWilliams-l8g 2 месяца назад

      @@osirishill23 good day I also had craniotomy on the same place n yes it's very normal bt ur wife must always just rest if the pain starts cos it affects everything,the ear,the eye n even the balance ,u always feel drunk also ,,so wt I do is I drink a pain killer n lots of water n then go slp ,I always use a cold cloth with ice in or ice pack helps with the pain then I massage the spot n my whole side of my head ,,deep breaths also help alot n take ur mind of anything that's bothering u....I pray 🙏 this helps cos it helps me alot ,I've found my own ways of coping n dealing ,, God bless

    • @osirishill23
      @osirishill23 2 месяца назад +1

      @ thank you for your advice and kind words. God bless you as well.

  • @bbb3rry
    @bbb3rry 8 месяцев назад +2

    Help…
    Does a person who suffered a hemorrhagic stroke and underwent Craniectomy surgery, resulting in paralysis and speech loss, still retain their pre-stroke identity? Is the 'old' them still inside but now live in a way where they can’t express the sleeve like they used to ? Or it’s a “ new “ them?
    Edit: I have realised it’s them still. The “old them” is still here and inside them but they lost the ability to express themselves, the thought of it is excruciating.
    Let’s all rmb to be kind, patient and show as much love we have to them 🙏🏻❤️

    • @cathygreen-miner8050
      @cathygreen-miner8050 8 месяцев назад

      Hi! I survived a hemorrhagic stroke by the Grace of God. I can walk, speak clearly, think clearly, no paralysis but I have left eye peripheral vision challenges. I have the blues sometimes but I use positive self-talk & breath work& I listen to music and binaural beats for brain synchronization with headphones. I have a therapist who’s a huge help. May God heal us all ! Thank you Abba. Thank you brother Yeshua♥️ whose name I called over and over nd who rescued me 🙏🏽Thank you sweet brother. 😊I’ve begun to feel like my old self again, today is May 2, 2024. It’s been more than two months since the hem stroke event (February 14,2024. Heart attack was Feb 4, 2024) I say to myself: I am healed, I have a miraculous body. God bless you all!

    • @bbb3rry
      @bbb3rry 8 месяцев назад

      @@cathygreen-miner8050 did u go thru craniectomy surgery? I’m really trying to find out. I have a friend that suddenly had a stroke and went thru the surgery where they opened his skull to reduce damage from the blood bleeding. He suffered the whole right body paralysed now and is unable to talk and communicate. I really want to know if he can think like before? Is the brain cells damaged and he doesn’t know or he knows but is trapped in the current body? Isn’t it super hard that he can’t talk and move by himself anymore? It pains me to think about it.

    • @TM-nq4tt
      @TM-nq4tt 3 месяца назад

      Try stem cell

    • @DinaTahuahua
      @DinaTahuahua Месяц назад

      I suffered a hemorrhagic stroke almost 6 years ago. I was left side week and needed 7 months of physical therapy.... I do live a pretty normal life for the most part. My biggest struggle is cognitive... it has affected me with my jobs. I will say my sister has said I've changed in ways she can't explain. Much love and healing...

  • @jumyjumy5075
    @jumyjumy5075 10 месяцев назад +2

    I had a brain hameorhage two years ago n after that had a mojor neuro surgery of aneurysym in my brain after surgery i was in i u for 7 days in very critical situation when i became concious i lost my left side specially legt leg n left hand conciousness , had phsio therapy for six month, leg is back to working but hand is still on his way to work properly 😢

    • @eatjinarmy3469
      @eatjinarmy3469 2 месяца назад

      God bless you. Praying for your full recovery

  • @Andesitoi
    @Andesitoi 10 месяцев назад +2

    Did any one experience depression, anxiety or similar? I don't understand myself tbh I am a live , my family was with me the whole time , and I feel I cannot pass it 😢

    • @tammieprintz3975
      @tammieprintz3975 9 месяцев назад +1

      Yes, I did & it’s very common

    • @circeowaggles
      @circeowaggles 27 дней назад

      ​@@tammieprintz3975sorry your going thru that friend at the time my tumor was growing I felt this exactly, now two weeks after surgery things are much better. I feel love and I see the beauty of life again. My confidence is shattered but I'm so grateful to be alive

    • @Grisss_727
      @Grisss_727 27 дней назад

      Yes. I had a Craniotomy done 5 weeks ago for a level 2 grade Meningioma brain tumor. For the first few weeks the medication Keppra gave me a lot of bad side effects such as, depression, mood swings, anger and suicidal thoughts. My body got used to the medication and now I no longer have these side effects. It gets better, I promise.

  • @JHADERAGHAVENDRARAO
    @JHADERAGHAVENDRARAO 8 дней назад

    my father has undergone POSTERIOR CRANIOTOMY surgery on 19th of this month. Currently he is in doctor’s observations in ICU, after 4th days EVD , tracheotomy done .i dont know what will happen when he will come to home.

  • @bryannicholas2130
    @bryannicholas2130 7 месяцев назад

    I was diagnosed with a cavernoma in 2009 at age 22 went through 5 brain surgery’s and had a vp shunt installed in my 4th ventricle I am 38 today I am mentally and emotionally broken I am physically disabled and wish that the cavernoma took my life I have been barely existing for the last 15 years and pray for death there is no hope if you have a cavernous malformation even if you survive the surgery

    • @kvrao5068
      @kvrao5068 6 месяцев назад +1

      Don't worry brother. Being positive is most effective medicine.
      I was operated 6years ago. Unconscious for 34 days. Now almost ok at the age of 63. Don't worry. Things will take time, sometlimes

  • @TM-nq4tt
    @TM-nq4tt 3 месяца назад

    I had a craniotomy 3 years ago due to an acute subdural hematoma from violence. I have no brain damage and was wondering if my skull was as strong as before and can get into MMA with striking. I am 20 years old

  • @gautamnayak8847
    @gautamnayak8847 2 года назад +9

    Does hair grow normally post the surgery on incision

    • @firsttimeuser5227
      @firsttimeuser5227 2 года назад +1

      Nooo

    • @joojoofoo
      @joojoofoo Год назад +1

      @@firsttimeuser5227 oof. forreal?

    • @pinkchaos.
      @pinkchaos. Год назад +1

      No. I had brain surgery when I was 19, I’m 31 now, no hair has grown or will ever grow again on the incision sight, however the piece of skull they remove then put back on will grow hair again.

    • @nayabrehman1112
      @nayabrehman1112 10 месяцев назад

      Ys

    • @krishnapriyal5118
      @krishnapriyal5118 8 месяцев назад +1

      Yes it will my mom had a grade 1 meninigioma surgery . And she is absolutely beautiful with long hair

  • @maxdesignbali1371
    @maxdesignbali1371 Год назад +3

    what if after craniotomy the patient is unconscious? The patients could not move and only sleep about 2 weeks. Please answer my question, Thank you

    • @the13920
      @the13920 Год назад +3

      My mom is 76 was sleeping for 2 weeks or more. The brain needs to rest therefore you need to sleep. After a stroke patients sleep even after recovery 16 hours a day

    • @Ethiopia716
      @Ethiopia716 Год назад

      First weeks u slept deeply in unusual way.
      Check my comment. On top

    • @rajatsingh1375
      @rajatsingh1375 Год назад +1

      Its normal every patient is different

  • @Biochemistryofhealth
    @Biochemistryofhealth 4 месяца назад

    What about testosterone after cranioplasty? Can I use testosterone after cranioplasty or somatotropic hormone?

  • @nilopheri
    @nilopheri 7 месяцев назад

    My sister operated 3 days back... So feared

  • @pasanglhamusherpa4970
    @pasanglhamusherpa4970 Год назад +2

    Still I m not recovered it already takes 3 year 😢😢

    • @BananaZen7
      @BananaZen7 8 месяцев назад +3

      Now 6 years on and i'm still not completely recovered...but glad to be alive and learned to live with the limitations and low energy...

  • @singhking4328
    @singhking4328 Год назад +2

    4/9/23 a brain surgery happened with my brother but after 3 mnth synus released last 3-4 from right side bone implant . Today my brother get admitted again .😢

  • @blackdust992
    @blackdust992 8 месяцев назад +1

    I had a hemorrhagic stroke

  • @lutchieperegil7857
    @lutchieperegil7857 Год назад +1

    The americans left their patient/ father's bills unpaid in the Philippines; and then the Government is conniving.

  • @Jess23May
    @Jess23May 6 месяцев назад

    Anyone else have a colloid cyst? What was your recovery like? :)

  • @mjjames2442
    @mjjames2442 5 дней назад

    The backing track is really awful I couldn’t finish watching.

  • @russelllew1139
    @russelllew1139 Год назад +1

    Had tumor removed from my brain 6 weeks ago. Now the incision on my head is draining fluid. I have called the surgeons line & asked if this is normal, but never gotten a response. Does anybody know if this goes with recovery after brain surgery?

    • @BananaZen7
      @BananaZen7 8 месяцев назад

      A wound that's healing can produce a clear or pink fluid. An infected wound can produce a yellowish, bad-smelling fluid called pus. When fluid seeps from a wound, it is called wound drainage.

    • @nilopheri
      @nilopheri 7 месяцев назад

      For my sis also fliuds leakinh. Undergoing lumba drain treatment in spinal... Dont know the result just now 4 days from surgery

    • @circeowaggles
      @circeowaggles 27 дней назад

      Id like to know the side of my head they cut open is super swollen two weeks later and super annoying it makes my head hevy

  • @Rumpi-mz4co
    @Rumpi-mz4co 11 месяцев назад +1

    Bone flap er kitna din bat firse bone lagayega

  • @Man_in_a_Gucci_Suit
    @Man_in_a_Gucci_Suit 8 месяцев назад +1

    Does anyone know how to prevent brain tingling after surgery?
    My mom has brain tingling and she says it’s extremely uncomfortable

    • @TM-nq4tt
      @TM-nq4tt 3 месяца назад

      Try stem cell it sounds like a nerve thing I get it to

  • @Nitinrane-ji6yo
    @Nitinrane-ji6yo Месяц назад

    Is ब्रेन कॅन्सर curable

    • @Vaidam
      @Vaidam  Месяц назад

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  • @catalincatalin3945
    @catalincatalin3945 3 года назад +8

    avoid cranioplasty if possible because: you will have a foreign body sensation in the head, a state of accentuated fatigue, headaches, etc.

    • @FredDeadRedemtion
      @FredDeadRedemtion 2 года назад +3

      Isnt cranioplasty unavoidable??? How are you supposed to live a normal life with a missing section of skull?

    • @catalincatalin3945
      @catalincatalin3945 2 года назад

      @@FredDeadRedemtion it's horrible ... in my situation the diagnosis was wrong ... if possible I recommend you to avoid cranioplasty

    • @FredDeadRedemtion
      @FredDeadRedemtion 2 года назад +3

      @@catalincatalin3945 in my situation it was necessary I had a decompressive craniotomy after my accident and I needed it to have a regular shaped skull again.

    • @sajjadulislam8651
      @sajjadulislam8651 2 года назад

      @@FredDeadRedemtion Did you do the cranioplasty? Is the bone weak for entire life?

    • @FredDeadRedemtion
      @FredDeadRedemtion 2 года назад +1

      @@sajjadulislam8651 Yea I did and no I don’t think so doc just told me to reach out if there’s complications when I’m much older. Im only 23 so for now it’s all good.

  • @TobiasSaint
    @TobiasSaint 5 месяцев назад +1

    Hey this was/is me! 11 years ago when I was living in Florida I was seeing a band in Orlando with a friend from work.
    We were there a little over 2 hours I had 3 beers at this point and I left the bar to use the restroom.
    I'm very thin, but I was not inebriated.
    I went to the restroom. Pissed. I remember washing my hands, and suddenly woke up 2 weeks later.
    I had undergone a craniotomy. A bit of my skull was removed to alleviate a brain-bleed. The skull fragment was replaced and screwed back in place.
    I still have no clue what happened. All that we could put together was via guesses from the physical therapists and my surgeons.
    They explained that the pressure and force needed to cause the level of damage I had done to my head would need to involve an outside force.
    A simple slip and fall would not have caused this damage, unless the fall was from over 10 feet up, and even then I would have needed to land like a jackhammer directly into my head.
    I spend eight months in the hospital.
    I had to learn to walk again. The damage had such weird effects on me. When I was given food I wouldn't notice any food on the left side of the plate, it would have to be rotated by nurses or visiting friends or family.
    Ever so slowly I got better. I could walk though I would slowly drift to the left. My cognitive functions slowly returned.
    They asked me to draw a clock on paper showing a specific time- the left side of the clock was messy but correct, the right side was fucking gibberish. Just symbols, squiggles, and lines representative of nothing. Though while I filled them out it was spot on correct in my head. After the cognitive therapist would look at it they would hand it back and point this out to me. It was fucking mind-blowing.
    Imagine being given paper to write your name, the date, your parent's names, and 3 favorite foods. Which you do, and in your mind see it was correctly done.
    Once it's returned to you and you look again you notice that it's essentially hieroglyphics.
    It took a little over two years to recover. I had to move out of my apartment and back in with my parents for about a year.
    I underwent my cognitive and physical therapy. Relearned to drive. Eventually I was deemed to be as normal as I was going to get, and got to go back to my old life. More or less.
    Beyond that I started having seizures last year. While the TBI isn't specifically why I'm now epileptic, my doctors all explained that it was a contributing factor at the least.

    • @TM-nq4tt
      @TM-nq4tt 3 месяца назад

      Have you tried stem cell

  • @mungogerryjnr
    @mungogerryjnr Месяц назад

    Well
    Safe to say I didn’t do any of that!