I was in Remission but My Cancer CAME BACK a Month Later | Sam's Hodgkin's Lymphoma Relapse Story
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- Опубликовано: 23 фев 2023
- Sam was diagnosed with Hodgkin’s Lymphoma at 38, which relapsed within a month after ending treatment. In today’s conversation, she shares how she reached remission but felt her body relapsing, the emotional challenges during and after her diagnosis and how at times, she felt unheard by her doctors.
Full story & transcript → www.thepatientstory.com/patie...
Watch Segment 1 of Sam's Story:
My Hodgkin Lymphoma Story: My First Symptoms that Led to My Diagnosis | • My Hodgkin Lymphoma St...
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Medical gaslighting is so real! I’ve been through it so many times.
You are doing so good. You are your own advocate. My Dad had stage 4 Hodgkin's Disease. He relapsed 6 months after his first chemo and then couldn't complete the 2nd round because his blood counts were so low. Yet he prayed and went on to live another 26yrs. So don't give up. There is always hope. Just keep putting one foot in front of the other, one day at a time. I will pray for you.
I’m so happy for you ❤️🙏❤️
Here is the complete protocol of Maurice ISRAEL popularized by Guy TENENBAUM (who was cured of a stage 4 prostate cancer, metastasized) and Eric BERG. Maurice ISREAL, Guy TENBAUM and Eric BERG have published 2 scientific papers that attest to this protocol.
Summary of the protocol resulting from Guy TENENBAUM's healing only for information purposes (all the details are in his books as well as on his website and his youtube channel):
- Taking precise dietary supplements (available over the counter to the general public) that Guy TENENBAUM named TCC (The Cancer Cure) which corresponds to his 5 essentials, with the dosage that he took:
* Melatonin in high doses (Phycocyanine or Lithothamnium but the most powerful would be melatonin but the best is to take melatonin as the main ingredient and to complete during the day with phycocyanine and lithothamnium): inhibition of SCOT
* Allicin (either as a pill or with crushed raw garlic, the best is crushed raw garlic): inhibition upstream or downstream of SCOT
* Matcha green tea: upstream or downstream inhibition of SCOT
* Metabolic treatment (the metablock): Alpha Lipoic Acid (or Sodium R Lipoate) + Garcinia Cambodgia (Hydroxycitric Acid) + CoQ10 (the transporter)
* Omega 3, DHA - EPA (500/200): to fight against the keto paradox
- long youth followed by short youth and intermittent youth (he shows how to do it for skinny people too) + taking nutrients and minerals to avoid deficiencies in youth phase
- his low carb diet outside the fasting period (complete absence of carbohydrates and sugars) with lots of raw cruciferous vegetables, raw garlic, raw onions, avocados and small fatty fish such as sardines and anchovies for omega 3
Did he die from lymphoma?
Thanks for sharing it will give people a lot of hope
@@jacksonboy7432 no he did not die from lymphoma
This is way too common, the patient asking questions and being labeled as anxious and treated like an annoyance.
As a person who has had chronic medical conditions, I have experienced this. I’m also a nurse and have been on the other side of this. It’s humiliating and unnecessary. We have a right to be informed participants. We are the customer! Paying customers!
I’m sorry you had to go through cancer and feeling like you are not liked.
It’s good to hear you are getting well. Thank you for sharing.
This may seem very odd but I’m a cancer patient and live 20 minutes from Stanford (plus it’s a beautiful drive) you are welcome in my home anytime for visits that may be leaving you too tired to drive or without a drive. Reach out if you need. I’m just a regular mom.
We are the best judge of our bodies.
My sister has a friend with lymphoma for a long time. More than 13 years ago thought she was going to die and today she is still struggling but alive. So there is hope!
Proud of you!! My husband has stage 4 prostate cancer diagnosed 2 years ago. He is doing well with some ups and downs but as his caregiver I feel so alone and scared. You are an inspiration.
❤️❤️❤️❤️
praying
As an older person in my 80s I was recently hospitalized for a case if salmonella poisoning in an HMO hospital and I never saw a doctor during the week I was flat in bed with nausea and diarrhea except on admission and discharge. A week of basically being warehoused with no changes in my treatment was so discouraging. I had a broken bedside potty which left bruises because it pinched my inner thighs never got replaced. I only saw a nurse once when the ungraduated student nurses could not find a vein for fluids. All my veins had collapsed. I was so ill that I couldn't advocate for myself and actually didn't have the energy to care that I was getting substandard care.
After a week with no improvement in the diarrhea but vomiting had stopped I was sent home with a huge bag of medications and instructions but nobody to take care of me until a social worker came to visit a couple of days later.
When you talk about doctors not caring or giving up on a patient, and nobody advocating for you, that is what it feels like. I recovered after a month or two but now I am afraid to get hospitalized again because these institutional health care HMOs don't think there is life to be lived for the oldest patients.
Happy you surviv😂d. I also am in my 80 's and had a recent scare - dropped thru the cracks and no one would acknowledge responsibility - sad - think it's sorted out now, they thought i was going to sue them even tho i never spoke the word.
@@nancyp2992 I believe that there is often an assumption that elders are useless once they begin to have geriatric problems. But we elders have a lifetime of experience and knowledge without which the younger generations cannot progress. Book knowledge is not the same as lived experience handed down to the next generation. Doctors forget that sometimes. We must remind them that we aren't "washed up flotsam" but a valuable resource worthy of protection and acknowledgement in our society.
Hi Mrs. Helen, I just read your experience at that hospital, and I totally disagree with the way things have change, no words. I just want to say that You are never alone cause there is God 🙏 always right next to you, always ! I have all my respect for wiser people like You. I pray for peace in your heart, and comfort with the company of our Almighty God, in Jesus name 🙏
Helen I am praying for you. I know it seems like you've been abandoned but God will never forsake you. I hope you get the help you need. I am sending you a hug. Please don't give up.
Prayers your way !
And you’re a medical doctor. Imagine how so many of us who aren’t are dismissed so easily. I’ve had chronic conditions for 45 years now and they don’t even listen anymore. It’s sad and terrifying honestly.
Praying that you have a full and great recovery from cancer.
I pray that you're still with us 🙏❤️🙏❤️🙏❤️...
Dr. Sam; I am a former patient of yours . I really like having you as my primary. Last time I saw you we were at Morse passing between the ER and cat scan. I was diagnosed and referred to Dr A and then you were diagnosed , myheart hurt. I can't tell you how happy I am to see that you are doing so better. I think having a speciality to deal with cancer patients at all stages would be great..I could use a Dr. like that. Take care of yourself and keep fighting the battle. We are warriors. JULIE L
Your perspective as a doctor and understanding how the patient feels is so important, I hope you will consider writing a book about your personal journey through cancer. Especially the relationship you had with your cancer team. The feelings you had are often what non- medical patients have and the anxiety that your questions are not taken in the spirit you expected. There is so much there that would benefit both the doctors charged with the care and the patients going through the most traumatic experience of their lives. Thank you for telling your story. I’m not a cancer patient but I think I will remember a lot of what you said and incorporate being willing to advocate for myself and ask the questions I need to understand the treatment being provided for me. Best wishes.
What a lovely lady you are, lucky patients who come to you. Wishing you well for many years to come and thank you for being such an inspiration to others. 💛
It’s very interesting to hear your perspective as a doctor and a patient. Having knowledge as a doctor about cancer is either a good thing for advocating for yourself or the devil on your back because you no more of what can go wrong. I would love it if you considered writing a book about your experience I’m sure it would be very successful. Good look on your journey and I hope for your complete remission one day ❤❤❤
The pressure to be liked by your doctors is REAL. Thanks for addressing this. I have thought your thoughts and felt your feelings so many times. You can start to question your sanity sometimes when you don’t feel your concerns are being taken seriously. And then you’re afraid to “nag”. I have heard quite a few doctors who have gone through cancer say that they had a difficult time advocating for themselves. I wonder if it isn’t harder somehow for medical professionals to go through the protocols, blindly trusting their oncologists. It seems that the more you know the scarier it is! Thank you for your story. Hope that you will soon be completely restored and that cancer will always be in your rear view mirror. Blessings to you and your beautiful family.
Yes that's true the more people know the scarier it is. But you can't cure diseases when you keep being told lies. Gaslighting and other methods of control happen in other sectors of society as well. The truth hurts alright but its still betting than the alternative which is often based on lies and corruption.
Bless your heart dear one
Beautiful Children
Warm Hugs
We all know our bodies better than any Doctor
😊
What a beautiful testimony. I love how you talk about the emotional side of recovering, because it's so often just not talked about - people are afraid to bring it up and like you said, you were afraid to disturb the status quo. Thank you so much. I hope you remain in remission FOREVER!
Wow that was a fast relapse but glad it was resolved. I had non Hodgkins lymphoma, chronic and had retuxinab and bendamustine and was in remission for 5 years. Recent scan shows 2 kidney bean size under arm and several pea size in abdomen. My dr will rescan in 6 months, Long wait. I didnt know tetuxin can be given on its own. Maybe that will be my option. Was not offered transplant but that's a hard process. Congrats on doing that and going into permanent remission. 👏
You’re amazing, I admire you very much. My diagnosis of chronic lymphatic leukemia ruined my life 5 years ago. I developed health anxiety and I’m a hypochondriac. I miss the old me. It’s a battle everyday just to think this beast is inside me.
I find so much comfort listening to people talking about their experiences such as this. I got my diagnosis about a month ago and these accounts are like a guiding light to me. They make outlooks appear so much more hopeful. Thank you for sharing.
I was diagnosed with non Hodgkin’s lymphoma in 2021 and completed my second chemo treatment in June of this year, I just so happened to turn my neck and rub and felt my lymph nodes growing larger again. Of course I started freaking out in my mind but I just talked/calmed myself down, told myself to keep faith no matter what, and to get in front of it, and I’m guilty I go to RUclips for pretty much everything idk. After seeing your video and hearing someone feel everything I’m feeling and have a successful story to share really motivates me and is gonna help me cope with the fact I relapsed so quickly! I’m finally to the point where I don’t think I’m going anywhere soon so for me to continue to get sick is mind boggling, I just don’t understand but this video helps me realize I’m not alone and I can get through this episode as well ❤
Hey how are you know
You are a warrior and have come through👍🏻 May your health continue in the right direction❤️ I was diagnosed with Ovarian Cancer late stage and thus far have made it through 3 rounds of chemo(s), abdominal surgery to remove all….and HPEC(topical chemo during surgery) and headed into 3 more rounds of chemo. It is so hard to relinquish control and deal with your emotions and take care of yourself in full. You are fortunate to have family that surrounds you in love. I am alone, no family but have had people just come through when I have needed it most. Keep on keeping on it what I believe and the universe will provide. Sleep when your body wants to and eat organic and sugar free. For me this makes a great difference. Bless you🦋🙏🏼👼🏻🌺 Thank you for sharing your story. It has helped me today!
I wish I were there to help you, sweetheart!
Mum age 38 stage 3c high grade serious ovarian cancer. No brac or hrd etc.. I keep seeing this hipec can I ask the recovery to you and effects and has it took ca125 down to normal ranges and eaten the cancer? I'm very desperate and also which organic things to eat and u say no sugar does also mean no carbs which go into sugar? Thank you for any reply in advance
Aloha Julia, I had surgery in Oct of 22 for Stage 3 low grade ovarian cancer. I, like you have no family but good people who love me. Are you in the US?
I feel for you as I too am doing treatment for OC and actually now for a recurrence. I also had the big hipec surgery after 6 rounds of chemo and am now on a maintenance treatment of Zejula and monthly infusions of Avastin, which has made my BP go way up. I's been hard on me mentally even more than physically. I've cried so much I can't even tell you, but trying to stay positive. Prayers to you Dear and hoping for your complete healing!
@@taylorpresley4604 Aloha Taylor, I am in CA, USA. Bless you! Lucky you in Hawaii❤️
Well Sam, you seem lovely inside and out, and have a lovely family too. Wishing you the very best.
Prayers you have a miracle healing. So sorry you are going through so much.
You poor darling🥲 I do have good news with Hodgkin’s - my youngest girl had stage 4 T cell non Hodgkin’s lymphoma and she had one chance🙏🥲🥲a stem cell transplant. Her twin gave his stem cells a 50% match. I lived in hell for 2 years🥲this was my baby. She was 41, with 2 sons🥲🥲🥲 the transplant leaves chemo for dead. This was a horror show. She beat it🙏🙏🙏🙏❤️❤️❤️ but it is foreboding. It was 2 years ago, my sons stem cells took over 100% of my darling girls body🙏❤️❤️🙏🙏 I pray you beat this bastard of a disease. I love you and pray for you ❤️❤️❤️🙏🙏🙏
How wonderful that you are so willing to help others! ❤️
Wow! You are SO strong and I am praying for you ❤️my son went through ALL an passed when he was 7. You and all the fighters are angels ❤❤❤ please keep us posted.
God bless your courage!
Hearing your story from the point of view of a patient who is also a doctor is eye opening. I don’t have cancer, but lost family and friends to various different types. My family doctor knows when I have an appointment, that due to my health issues, I’ll have done my research. He’s always appreciative of the symptoms given and why I researched what I did. So far, I’m 1 wrong for about 30 right. My doctor likes to say, the patient knows their body best. I hope your sweet children and husband have you around for a very long life! ❤
Linda - you are fortunate to have a caring doctor. Stay well.
Yes…YOU know your body the best so don’t let them make you feel bad! Ask all the questions you need ❤🙏🙏🙏
Please keep us posted on how Dr Sam has been doing. Stay strong and sending my blessings!
You are so beautiful and eloquent and sooo strong! I know you are going to have a long life to enjoy your gorgeous family. What an inspiration you are!
Thank you Sam for sharing your story ❤️. I am so proud of you. You are in remission now. Look forward to your full recovery which takes time ⏲️. Sending love ❤️ and support.
God bless you dear doctor Sam!! You're in my prayers ❤🙏
Thank you for sharing your experience & knowledge - I think this will be such an amazing support for people who are going through the same journey but hopefully also great for health professionals to see both sides - praying for you and your family & I really hope you have a beautiful love filled life and you get to be an amazing grandma as you all grow old together ❤xxx
You must always advocate for yourself or have another be your advocate for you when you can't. Rest and recover as much as you need to and enjoy the moments with your children and family. Prayers ♡
Thank you for sharing I now I'm not alone. I call cancer. A ghost. Never in remission. My came back under my arm pits. Twice. Biopsy and all the. Whatever. I had a stem cell transplant. Which I believe let's me live. With God's blessings to be here for my grown children that need me sooo much. It's always there. The. Fatigue. Hate it but I'm a survivor. God bless everyone Struggling. High hope. And determination to fight. All my love.
Thank you for sharing. It is a real rye opener to be in the bed and not standing beside it as the care giver. I am a nurse and can relate to many of the things you have experienced. Take your time, do not push or worry. Go from one day to the next and enjoy the journey to wellness best you can that day!❤❤
Omg, you are amazing! I thank you and will be following you!
Thank you for sharing❤
Thank you for making me feel normal again!
I think your feelings concerning advocating for yourself are very valid. Human nature applies to doctors also. Good luck to you! And happy healing!
14:00 yasss! The “power inequality” btw Drs and patients causes so much anxiety, plus waiting weeks & months for appts& tests (the new cancer on my Nov PT/CT still hasn’t been biopsied, 4 months later). I’ve had Stage IV b.c. for 18 yrs, non-stop treatment. I’m an educated patient, but I have to dumb myself down or else get chastised for being on Google too much, or looking like a hypochondriac for using medical terms… one Dr said to me “I can see you need a bit more coddling than I have time for today”…wtf?! It took me a while to understand it’s an 8-to-5 job for them, but it’s a 24/7 life for me. But I’m a number in a long line of patients seen that day. Having been a “professional patient” for so long, I watched the decline into this utterly collapsed medical system today. It wasn’t always this way, but I don’t think we’ll see decent healthcare like that again.
Unbelievably sad indeed.
Thank you for sharing your thoughts. When you say you have been stage IV breast cancer patient for 18 years. Were you on that stage since diagnosed or did your cancer spread somewhere else? I ask because I have metastatic breast cancer, and the cancer spread to my bones, but you didn't mention anything about metastasized. Probably didn't understand, but wow, 18 years gives me hopes! Hope to hear from you. I'm so happy for you!
Good luck on your recovery.
God bless and thank you for sharing your journey ❤
thank you... and God Bless you...
It's interesting to hear this patient experience from the perspective of a doctor - that you also have to tread 'politically' carefully with your treatment team in case they recoil from your self-advocacy and you get worse/ delayed treatment *while you already feel awful from being ill*.
I know it's sometimes just our imagination that they'll avoid us if we make requests but a lot of the time we really are pushed away, denied and belittled.
Sometimes communicating with a medical team feels like communicating with a parent with BPD. Like walking on eggshells the whole time.
I wish you the best!!! I'm still trying to recover from Hodgkin's lymphoma not only physically but also psychologically . when i finished the chemo and was kinda over with pet test I was feeling strong but over the years I was slowly falling into depression and I didn't even realize. It's hard I completely understand and feel this story cause really you have to experience it to understand 100% and ofc everyone is different with how they deal with things.. but guys please reach out, talk to a professional cause at this point i think the psychological damage was far greater than the pain on the body. stay awesome y'all. stay strong!!
Wow very challenging case. I am glad she is doing better. Stanford has a great program, she will be fine. Every case is different but we must fight to keep going.
I relate so much to the asking questions - I have a big surgery coming up and made an appointment to go back and ask more questions before because I like to know and understand. I also worry about them not liking me and then not taking good care of me.
Inspirational ❤️ thoughts are with you xxx
That’s a lot of treatment for such a small person! You must be made of strong stuff.. 🙏 all the while you have a smile for your kids.. I totally agree bring your own advocate for what you need! I was in healthcare so know that Drs don’t know everything and they guess most of the time! I research then see the dr with my thoughts on a situation, they don’t like it but when they know you’ve taken the time to figure things out there’s a level of respect as in team work and not dictated to! Wishing you all the very best 🙏
Keep on fighting, hope you are well. Big hugg from Sweden
Get well soon n 🙏
Some doctors don’t want to listen. You are blown off. I was actually told to take up yoga which means they thought I was imagining my feeling of being unwell. You reach a point where you don’t want to go to the doctor knowing they’re saying here she is again. We need more compassion in the medical field. There are some out there but few and far between. 🙏🏻
''My fear deep inside was I feel like my doctors don't like me and I feel like I'm really starting to piss them off. And if they don't like me and I'm one of their most annoying patients, they're going to start avoiding my room or the person that's tasked with saving my life, maybe they won't try as hard to think about my case or advocate for me if they don't like me''.
As an extremely socially anxious introvert to the point of hikikomori, this is one of my biggest fears in terms of health. Forget about the treatment, I am dreading being shunned even by people at the hospital. I can't even be likable to save my damn life. Thank you for putting it into words.
If you can't get your healthcare providers to like you, focus on getting them to fear you, or more specifically fear you suing them if they don't provide you with the very best care possible. It worked for me.
Also, if you embrace revenge as a mantra, it gives you a great motivation to live as long as possible. You can't get revenge if you are dead, and outliving your enemies is the best revenge there is.
Become the epomis beetle.
Yep, striking a balance between being assertive and being “happy” compliant is such a fine line… Thank you for sharing your experience. You want to be positive to get the most out of treatment, but you also want to listen to your body… which is not easy. Months can go by, while feeling low on energy, and guilt creeps up about not living one’s best life: after all what do we do with the time we’re fighting for?
This is such an insightful, honest and deep comment. Thanks
Your story is amazing and you are doing great! In 1984 I had Stage 4 Hodgkins and unusually my father had also suffered from it 5 yrs before me. We were both treated at St Bartholomew’s in London under Professor Malpas who a great expert in this field of cancer. The treatment seems to have improved a great deal since then which I’m very glad to see! Wishing you the best for a healthy and bright future. ❤
Einhorn in Indiana University is he good in treating germcell tumor
You’re wonderful 💙life is so stinking scary I’m so sorry you went through this and are going through this
Never forget the importance of a healthy diet and juicing especially after any cancer treatments. This will help the body to regain its strength and immunity.
❤
I always wanted to be a brain surgeon (I was in a car accident at the age of seven ) blood clot on the brain, brain damage from a blow to the head. I wanted to make a difference as my surgeon did for me.
I look back, still with a tremor in my right hand ( I'm 50 now ) I think about how I might had been a good one . I would hope I would have made a difference for / to the patients.
I know your story is so different than mine, I wanted to share still.
I send you and your family much love.
I appreciate your words of encouragement. That's what others need, instead of discouragment.❤
Thank you for this I have had my first lot of treatment today
Why isn’t it ok to be anxious when you have cancer? If not then when? You had every right to be anxious and for your docs to understand that and support you during it. They should have asked, is there anything I can do to ease your anxiety? Do you feel heard? Do you feel this is a safe space to ask questions? They also should have asked, how are feeling [emotionally]? Thank you for sharing!
My husband had been so sick for about 4 years. He has so many of your symptoms painful lymph nodes and somehow the Dr says he's the picture of health. He's lost 50lbs can't work. Can't eat but somehow nothing's wrong. I pray I find a good Dr for him please pray for us
Thank you so much for sharing your story I can relate to many of your feelings ie how I may be treated because I'm speaking up about my health concerns etc. Depression, etc My labs every 3 months are flagged low with WBC and neutrophil But I'm told it takes a while for this to come back It's been almost 2 years since my last hospital stay for a week of chemo at a time My diagnosis took almost a year to the day when I went back into the emergency room for help The Dr. thought it was skeletal and I knew something more than that was going on. This was all during covid! Diagnosis was stage 3 large B cell Non Hodgkins Lymphoma. I go in tomorrow for a follow up and always wondering in the back of my mind if something more is going on but each time my Oncologist says she will see me in 3 months I do believe there are not enough Doctors to take care of the amount of cases etc. I could go on and on but at the same time I am very thankful that I was able to get treatment and I know my Life is in the Lord's hands.
Ngl I'm going through the same thing right now but this is giving me hope I had a relapse to with the same cancer I'm young too
I asked my doctor recently if I had the chance to be in complete remission at some point, I have metastatic breast cancer, and she answered with partial remission. I was kind of hopeless. You are amazing at advocating for yourself. We know our body better than the doctors. I love my Oncology, but yeah, I kind of feel that way, I don't want to be that type of patient that annoys doctors so I try to understand my team but then again what about my life! I want to live. I want to be heard when I feel there's something wrong with my body. We shouldn't have to feel that way at all! We have enough going on.
Its so true that the 'annoying ' patients don't get the attention that the patients who are considered the 'nice' ones do get. I worked a hospital for a long time and this is very accurate. It'st especially accurate for the front line workers such as nursing staff and the resident doctors.
As a nurse, I treat all my patients and families the same. As do the vast majority (definitely not all) of my nursing coworkers
Super interesting to listen to your experiences. I am going through Hodgkins at the moment and only on my fourth chemo and already feel like i want to give up. ABDV chemo is so harsh on the mind and body.
you must be your own best advocate. don't let the doctors intimidate you. I know what it is like being in remission and then finding out your cancer has reoccurred and spread. I will refuse to let fear rule me. i won't let despair overtake my better judgment. Cancer is like a "death sentence" lingering in the back of your mind. But by all means advocate for yourself. You are on the right path. We (cancer patients) all are emphathic, We struggle, we laugh, we cry!
I can so relate to what you said about being the good patient. I'm going through lung cancer right now and I try very hard to be the most pleasant and easy patient because I want everyone to like me so they will work really hard for me. I suppose that's a rational, isn't it?
Good luck young lady! Hope you beat this and you at least have age on your side🥰
Thank you for your honesty. Yes - I too feel like my Drs hate me. I dare ask a question or mention more than 2 things during a visit and everything changes. The look, the tone, and/or they just get up and exit even as you are talking. They just want to get in and get out ASAP. They want everything to be textbook. My case is anything but!!! Anything and everything that does not fit, is immediately dismissed or you are told it is because of your surgery, etc., it has nothing to do with the CA - they are just a CA Dr. Then when you later read their notes - you see that what you reported is nowhere to be found. The notes say that things that were never even mentioned are fine/discussed. How can we possibly believe and trust in our team when this happens repeatedly? If my checkup CT looks good (it gets a 30 sec glance) and my labs are good - (again they get a 30 sec glance) - then I am good. They are done. If you try to express that something is not right or bring the Dr up-to-date about other medical things that have gone on.... then they get upset and accuse you of trying to make them responsible for all your care. No - but it is all happening in the same body, like it or not. Things overlap, meds may help one thing yet make other things much worse...., it all matters. I have fired Drs and my one PCP - abruptly fired me. I have lots of examples. I don't know how to better handle this. Smile and be thrilled that you got your 5-10 minutes of their time while overlooking or "forgetting" about an errors or obvious things that are being ignored???
The same happened to me with my B cell Cutaneous Lymphoma. I had radiation treatment at first to melt the tumors on my scalp. Next i had immunotherapy for 4 months and so far so good.
You are going to be fine.
i’m classic HL stage 2 or 4 depends on the oncologist and his opinion of lung involvement. i’m on bv-avd 12 infusions. i’ve had 1. i don’t know how you have done what you’ve done. i feel so hopeless. i feel like i know my doctors hate me. i have a preexisting 15+ year acute panic disorder. if i get panicky i’ve been berated. told to find another doctor. so i try so hard but it’s not in my power. sometimes i can’t stop the attack and im told i need to pull it together. i can’t i wish wish i could. all this and it’s only a week. but it did take 8 months to diagnose so it’s not brand new anxiety
i feel my doctor/s don't like me, too. especially one that i need the most right now
My dad was in remission for about 7 years, large B cell non-hodgkins lymphoma. He had it twice, but realisticly he always had it during those 7 years, just "no evidence of disease".
Hugs ❤️❤️
Time and Time again its proven Women have to be their own advocate, many Drs are dismissive.
Men also absolutely have to advocate. This is absolutely not a gender specific issue
I needed this so bad. I also have hodgkins 12 cycles abvd I cycle with bleo. 30 days radiation finished Nov 2021. Medastinal mass unfavorable bulky with b symptoms. I have a CT scan wed but I have been feeling a heaviness in my chest like a rock is in there. If its back I don't want anymore treatment. I'm 54r years old and this has really broke my body mind and spirit. Plus financially. Just getting the i.v my veins are shot. I'm terrified.
I am so sorry Nicole, I pray you find healing and peace.
I do hope your scan is clear. It sounds like you’ve been through a lot. Do you have anyone to help you?
@nicoledemartino. I'm a 54 year old female that had a terrible cancer scare when my 53 year old sister was dying in 2021( I was 52 at the time). My diagnosis was pulmonary sarcoidosis. It has caused some unfavorable symptoms for me. Lots of prayers have helped. I'm praying for you right now Nicole.❤🙏
I can’t even imagine going thru this with three small children.
@cathyvice7135. Sarah Grant ( from Idaho)was 37 years old with I believe 9 children after her horrific diagnosis of esophageal cancer. She was given six months to live and only barely made it 4.5 or 5 months, she passed away in March 2023. She had huge tumors necessitating early delivery of her 9th child. I can only imagine what poor Sarah's children and husband went through as well. She passed away and is with the Lord now🙏. This beautiful young doctor is very strong and seems to have a great family as well
Happened to my neighbor. Had a celebration for beating cancer and the next week she was dead. It happened so fast and with a vengeance. Horrible
geezzzz, really....
So sad 🙏🥲💔. R.I.P
More than likely death was not due to cancer since it was sudden. Please post positive things for cancer patients, they know all too well horror stories.
Stage 4 cancer always seems to come back. You go into remission for a while then it stats up again.
My sister had stage 4 non hodgkin and is cancer free 6 years now.
Sometimes this happens 😭 sadly depending which cancer one has!
Iv been told iv got lung cancer I'm not getting treatment had it 9 years ago had my voice box removed I'm near 75 not up to chemo ext I'm just trusting God he can still do miricals today I think chemo ext would fo me in trusting Hod to take it away xx
GOD
I wish you well! I tell as many people especially women not to listen to doctors or gp s but listen to your body! And demand answers and biopsies and procedures until you re satisfied. Stay as respectful as you can toward medical staff, but you are the one sick. Not them! You will always encounter a nurse who really should not be in that industry, but stay true to your feelings. Please pray!
Thanks so much for your thoughtful and deeply moving presentation.
My counts are showing remission. I know that is not the case, but I see no point in challenging the medicos who see only numbers. They have large experience and knowledge, but not in my rare illness, and not in my personal experience.
One of my team asked accusingly if I had a history in the medical profession. Well, I have a sister who practiced in the Sacto area, and a daughter who is an MD, and I spent 12 years working with acutely ill children and their families, but really I just pay attention, and I still have a bit of a brain.
So I ask uncomfortable questions. Too bad! If I'm having to spend the effort, time and money for all of these many visits, I am going to be prepared with information and questions. There is only one of me. Being an elderly and obese woman means I am generally invisible and seen as valueless, but I see over and over again that one has to push for oneself just the way one would push for one's child.
The very best to you.
My Goodness. I just can’t do this again .. I just can’t.
Good good good! Deep inner rest is a vigorous act, too, more than running or meds, & one needs this! Lying in sleeping bags on the ground with kids, dog, leaves, bare trees, sunlight & God, very helpful! Even "well" people need it. Cloud watching, praying, talking to Heaven & the cosmic vastness....medicine! Can pray for the harried docs & nurses too. And the diseased unhappy world.
Absolute words of truth. I just read that the body needs to sleep at least 12 hours to heal and I believe it.
I’m praying for you beautiful Sam!
Jesus got this all! HE will heal you!🙏🏽
You’re on my list for prayers!
Do you know if your ESR was high?
You are offering hope to others, the journey isn't just about overcoming one bump in the road.
Hair or no hair you retained your looks.
🙏🏼❤️❤️
When you mentioned anti histamines was you given Promethezane hydrochloride? I had a Colon full of tumours, the surgeon talked cance the biopsies said otherwise. They was up to 42mm dia. I googled that drug and it stated there had been some trials and it was effective against cancer.
I had been on it for two years.
From iran with love❤
I would literally die if I took all those OTC medicines, I dont see how you did it. I will keep you in my prayers. I’m sorry you felt unliked, it’s probably because you are smart. You seem very likeable, for sure you will be a better Dr because of all this, just make your mind turn off, it’s hard.
I had the privilege to work with Dr Siegel - easily one of the best people I've ever met. So inspirational.
I do HOPE you are doing Keto and or Carnivore and fasting..Also staying away from SUGAR..
God speed...
PS... it would be very interesting to know what diet you are doing....just for my research...
Did your kidney eGFR drop from the chemo ?
Remission is a strange moment in time..hard to understand!