My Thyroid Cancer Story - It's In My Bones - 26/01/2022
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- Опубликовано: 4 окт 2024
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Well sh*t, here we are a video series I didn't think I would have to make, on 03/10/2016 I was diagnosed with thyroid cancer.
I will be vlogging my treatment, thoughts and recovery when I can. If you are watching this and have any questions please ask.
I hope someone finds these useful.
If you like you can subscribe to follow my story.
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Twitter @asksenseiplater @meettheplaters
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You poor love, such a lot to deal with. Best of luck to you.
You shouldn't be ashamed of morphine? i can hear it in your voice. anyway how's Clive?
@@adrianeyre3630 I'm not ashamed of having to take morphine, it's just not great that I do, given that its addictive to the body and causes yet more digestive issues.
Clive died almost 2 years ago, he had to be put to sleep because of his heart condition getting worse.
@@JoePlater Oh my bad .Im so sorry to hear about Clive you and wife must have been devastated.,I would be as i too have a cat and wouldn't know what to do if anything happened to her . anyway i think you're a warrior having to deal with cancer. i used to follow dan . C is bitch and i hope you beat it .
Just got a stage 4 lung cancer diagnosis a few months ago. Your story is inspirational.
Sending you best wishes. x
I hope everything goes well
Are you still alive
Best wishes. I cant stop me from asking, how long does it take to get diagnosed stage 4 lung cancer? Is it after years of coughing?
🙏🌷🙏 sending you my prayers
Hi Joe, you are amazing and strong. I would like to tell you about my daughter, Michelle’s thyroid cancer journey. My husband died of osephagus cancer and then his own dad died from the same cancer. Then my sisters husband died of liver cancer. I thought that was the end until Michelle was diagnosed with follicular thyroid cancer when she was 21. She had the operation and all went well but the consultant refused to back the treatment up with the usual radio iodine treatment because he said they had caught it all, and I believed him. Five years later it was in her hip bones. She has had so many radio iodine treatments that she can’t have any more. It was now a wait and see. She then had a tumour on her spine which was operated on and successful. She still has pain in her hips and spine but she is doing well. She is very anemic and recently had two bags of blood and will be going for an iron infusion soon. She has accepted everything and is looking forward to seeing her dad in heaven. She is now 36 and doing good for now. I wish you all the best and will keep you posted on my Michelle. xx
How if she now? So sad.
Black Cat - White Hair… welcome to the “White Hair Family” although I have a good 15 years on you! Thank you for the strength and tenacity you show, but most of all for advocating through your experience for people with our cancer. Your friend always, (emotional) Marc x
Well said. I'm in the same boat 9yrs. Hope all is well?
Hi Joe. I'm with you. I've been fighting stage 4 cancer for two years. Thankyou for your videos. Makes me feel someone understands. I wish you didn't have to go through all this. Your so brave. Stay strong. Stay stable. Lots of love 💕💞💕....oh yeah...black cat
Black cat!! Hi there, I’m on a cancer journey myself & never comment on what I read but I felt compelled to try & help lift your spirits. Briefly, I had breast cancer in 2013, then 5 years free and it metastasised out of the blue into EVERY identical area you have just mentioned…. Even the rib side and number. Again, like you I was handed to palliative care (mine was St Peter’s and they were luckily great) went through 16 weekly gruelling chemos and a zap of radio to my pelvis and lower back, and then put on Exemestine and imbrance as a drug regime along with the dreaded slow release morphine. That was FOUR years ago, and thankfully during a recent PET scan it showed no activity and no new areas, and the legion on my liver had gone. So, keep fighting the fight, I really never expected to be here now but we CAN (god willing) live with cancer and not just die from it. I wish you all the absolute best, your storey resonated and touched me hence I was compelled to hit the keyboard. Good luck! Ps, I couldn’t do the white hair thing, get a beard and hair dye and get back to looking like YOU if that’s what you want, certainly helped me! Take care.
Hi Susan how you are doing. Well I hope.
When you have been diagnosed with a life changing situation, you learn to take one day at a time. Your wife sounds like a wonderful lady. Sending you lots of 💜
My Mum has thyroid cancer. After her case was re-reviewed by a national tumour board meeting, it was decided that she wouldn't be offered any further treatment, because of her age, and other factors that I won't go into, here. She is pragmatic about the decision, but it isn't within her nature to simply give up, either. She was also widowed at a young age by cancer, so she's not oblivious to what may still be ahead for her. You strike me as being very articulate and self-aware - both characteristics that will continue to serve you well in your advocating for your own health, I'm sure. My heart is with you.
Hi Joe, You have a wonderful talent for discussing the difficult experiences that you are going through with such fluency and honesty. You really do seem to have a herd of black cats working in your favour - that's what witches have helping them with their spells, isn't it? Lets hope that the Marsden can cast a spell over your liver. The Platers are behind you..
Black cat- I hope the vacation Joe selected was fun for Kim. Massages and spa treatment is a great thank you.
Joe, we haven't heard from you in awhile. Just wanted to let you know how much your story helps A lot of people check up on you, and hope you're feeling better
Hair donation a wonderful gift.
My best friend died aged 47 from cancer and my daughter started her hair growing quest.. she had the most beautiful lush thick hair dark chocolate brown and copper and just kept growing it 7 years growing she set her wedding date got her hair done for big day and announced thet following morning back to hairdresser and 18 inches cut off what a gift...it is commitment to work keeping and maintaining hair in good condition, no colouring but it makes such a difference.
My daughter embraced short hair for 3 years multi coloured it but now starting to grow it again with aim of 2nd donation... I am a proud mum.
You are a fucking amazing human. I've been following you story for a while. you haven't made a video recently but I hope its because you are living life to its fullest.keep fighting, stay strong and just know that your bravery, sassy humor and information is helping so many people. lives will be saved because of you.
I just heard that our friend and fellow Cmdr Joe Plater sadly passed away last night.
My thoughts are with his family.
I'll always remember you Cmdr Plater o7
This was pretty difficult to watch so I can only imagine how tough it was to cope with.
I'm glad things appear to be stabilising now - it wouldn't surprise me if they end up having to rewrite the medical books with your case.
One silver lining (excuse the pun) is that you can make some money next Christmas as a young Santa!
Well done team Plater and great shout-out for Bertie's excellent fundraiser - much respect. o7
*#BlackCat* 🐈⬛
Just checking in on you and family ❤️ Hopefully you r still stable ❤️‼️
I really hope you're doing well please update us you're always in my prayers.
You’re so strong! I am just recuperating from my thyroid cancer surgery. Thank you so much for sharing, you’re so strong and brilliant, it’s so heartbreaking that you’re in pain. Looking forward to hearing more from you!
My best wishes to you, Joe. You're a warrior!
Joe, thank you as always for your articulate, extremely powerful vlog of your experience of thyroid cancer. We're so sorry to hear the cancer has spread further and just what a rough ride you've been having. Pleased to learn you're still on the TKI (cobazantinib) and that it has helped you to stablise. Black cats always make an impression. Very best wishes from us all.
Hi Joe. I was thinking where you had been and really had you in my thoughts that everything was going well. I can't even begin to understand how you must be feeling but you come across so well in terms of explaining everything scientifically balanced with describing your emotions. I wish you stability, calmness and you are in my thoughts. Thanks for giving this update my friend.
Your outlook and attitude toward all this is indicative of your discomfort. Sorry for what you're going through. I can only imagine how much it takes each day to continue to fight for your life. But you fight your way - keep hope alive~ Your wife is a saint and deserves a spa trip!
Well done Black cat I admire your strength 👏🏼 keep us updated 👍🏻
I was 21 when I was diagnosed with thyroid cancer. I did have to get it removed and now I've been taken Levothyroxine for the last 9 years. Keep up the fight! The way I got through it was not giving in to depression. I know its hard but I also relied on God to help me through it all prayer helps it might not fully heal you but it helps!
Hi Joe. I’m sending prayers for you and your family. I hope that the new treatment is keeping things at bay.
Black cat from Texas. Wishing you the best under such tough circumstances. Bone pain scares me the most. I'm a fellow stage 4 also living life between scans. Have you ever looked into Care Oncology Clinic in London? They prescribe repurposed drugs like Mebendazole, Metformin, Atorvastatin, Doxycycline that target cancer metabolism and the drugs are taken alongside standard treatments. Maybe they'd have a positive impact? I had a grim prognosis when I started the Care Oncology Protocol 2 years ago when my cancer came back the 2nd time to stage 4 and now my pet-ct scans have been clear for 18 months. I'd encourage you to check it out. Hoping the liver ablation is successful too.💙
Black cat!! Thank you so much for sharing your story. I hope that you and your wife get to go on a very warm vacation soon. God bless you both!
Lots of Prayers to you and your family. So glad you are thinking holiday with your wife. Helps to refresh even when there aren't life altering events.
Black Cat. I’ve been thinking about you and really glad you updated. You’re in my thoughts ❤️ I’m so glad you have your support from your wife. She sounds awesome!
🐈⬛😊
You are an inspiration!!!
Thank YOU... for sharing your life with others!!! 😔
Mighty Warrior You Are!!!
🙏🕊❤💛❤
Black Cat! Thanks man for being so honest about your journey. I am a fellow stage four Papillary guy as well. I really find your strength and down to earth approach to your cancer inspiring. Best to you.
Black cat! You are so brave and live your life more purposefully than some that are battling a disease like yours. Bravo, you are a hero that inspires many of us to get out of our doldrums!!!
Black cat - and welcome to the White Hair brigade. It always amazes me how up-beat you make these videos as you relay all the trials and tribulations you have gone through over the years. Truly inspirational.
Hi Joe, so glad to see you, your a warrior keep fighting good to learn their still trying different treatments. 💙 You and your lovely wife deserve to be pampered, some warm sun shining on you.
Much respect and regards..
Gosh Joe, this got me. 😢 I’m so sorry to hear this. Glad to hear things are somewhat stable however. Can only imagine what you’re going through. My dad has neuroendocrine cancer so to a degree I do know what it’s like going through it. Your wife sounds absolutely amazing. She’s clearly doing a fantastic job taking care of you. Sending you all the strength & love. Enjoy your holiday! Black Cat 🖤
Black Cat - before I had my chemo back in 2014 for breast cancer I had my waist length hair cut to just below my shoulders so wouldn’t be such a shock my losing it to chemo, and I donated my hair to Little Princess Trust so I could help a young child going through chemo. It’s a brilliant thing to do that’s for sure.
god bless you
Man, you really have been through hell---I'm glad you have your wife at your side through this! I'm sending positive vibes your way...
Hi. I have prostate cancer 4.
Good to see you are better.
Man it's a fight.
We are soldiers left in the front of war.
All we can do is fight.
In the interval of war we try to live.
Be better. Live all you can.
🐈⬛ Black cat - Ive been following you for a few years now Joe, your videos are always so inspirational. You might just think “why im just talking to a camera about whats going down”, but to see someone face what you’re facing with such strength is powerful, and im sure you’re not always this strong which is also fine of course, but we’re here to continue supporting you in the way we can. It’s not much granted, just some text message from people you will never meet, but we all really do care and wish you many more days of happiness
When will we get an update? It’s been an age.
Hi Joe, Black cat! Like you I hadn't heard of the heat ablation type treatment before (you mention at about 12 mins) but a friend of mine had it on a tumour on her spine last month. Like you she was in agony and having a terrible time getting the pain managed. Anyway.... A month or so out from that and she says her pain is great (she feels like a different person now its so much better) It wasn't immediate... as we know radiation carries on working after, so it took about 2 weeks to settle properly (although there were little improvements each day) On first scan shes had since that treatment it now can't be seen at all. I know everyone is on their own unique journey but I think it's nice to hear good things about a treatment you will be getting. Much love to you and the family and heres to happy holidays and super sunshine. Take care :) x
One if the many beauty of redheads. Our hair doesn't turn Grey, it turns silver! Looks good on you my friend.
About four years ago I took in a black cat that had obviously been abandoned by someone who moved out of our apartment complex as he was so tame and sweet....and BIG!!! He's likely a mixed breed but greatly resembles a British Shorthair - he's stocky built with short legs and looks like a miniature panther. However, for such a big, impressive looking black cat, he has the tiniest "meows." I named him Raj.
I've been wondering where you've been! I'm glad you're stable now. It's really sweet to hear about how much your wife loves you, I'm delighted to know you have someone who really cares about you throughout all this. Get that vacation! Get pampered! You two really deserve it : )
I hope things stay peaceful for you two,
Black cat! Black cats are very fat.
Hi Joe - thank you for sharing your life with us. You truly are an inspiration of strength . You face life with courage and dignity. I wish you all the best !
I may be saying black cat but sir, you are looking every bit the silver fox!
I'm a long time follower. Pretty devastating video that's having me lost for words. One day at the time I guess, Joe. Good vibes heading your way.
I wish the news was better but it sure is great to see you! Black cats are awesome!
Had Papillary Thyroid Cancer, checked in April for Pancreatic Cancer, nothing found yet. Off tomorrow for tests for Oral Cancer, its all go but hoping you will keep on track and keep the dreaded C at bay. Send me one of your spare wishes, all the best to you... Black cats all around xx
Black Cat, thank you for your update and your courage
im sorry to hear about recent events. Please keep fighting and wish you all the best! Black-cat!
Hey Joe, I've been wondering about you. So glad you caught us up even if it isn't the best of news. You'll be in my thoughts. Hang in there and don't let any Black Cats cross your path.
🤞🏼Got everything crossed for you….lots of love and hope sent to you and your lovely lady, and not forgetting your Black Cat ❤️ xxx
I'm sorry for your cancer and pain. Doctor's can forget to show compassion. Everything that you have to go through with cancer is horrible. I hope you respond to your treatments.
I’ve learnt so much from these videos as a health care provider that works in the intensive care unit. Sigh. 12:50. It’s so often that we do this. Try to bang it in patients’ heads that they are dying. It’s unkind . The patients know. They just want care. There are other ways to offer palliative care or comfort care, than reiterating certain things as if they don’t want you to come back to receive other forms of medical care.
Hello Joe!!! So wonderful to see you. Been watching all your blogs. And am so happy to see you.
Your a warrior...much respect..
Your friend Joey
What a horrible video to hear. But also a such a admiration. I’ve been dismissed
Got 4 years and now just been diagnosed with this im
In constant pain with my back hips for 2 years and rib pain for last 4 months watching your videos is very educational and helpful to me. Thank you for sharing the processes on here and and I wish you all the happiness you can enjoy with your family and close ones cxxxxxx
Black Cat! I hope your stable status continues and your pain free! Sending hugs and good vibes your way!
So lovely for you to update Joe, sorry things haven't been too great but it's good that things are stable.......and from one black cat to another my black moggy Reuben says hi x
Thank you for sharing yourself and your tenacious attitude with the world. Keep inspiring us with your admirable spirit. Love from South Africa
Thank you Joe for sharing your story ,I hope you remain strong and focused.
Anxiously awaiting more videos as always. These helped me get through some of my own thyroid cancer journey and I am so thankful *black cat*
Black cat, glad you joined the white hair club!! Lol. Glad to hear from you again, was getting worried!!! Since I last seem you we have lost Daniel Becker. R.I.P. man. You're missed!!!
My brother designed one of the Radio Ablative Therapy systems, he also does a lot of work with proton therapy. Im so glad his work is doing some good. Wishing you all the best. Fund raising is a virus with no known cure. If its a cat it has to be a Black Cat.
I’m sorry you’ve been suffering. Sending you much love and healing thoughts. 💗
Black Cat, Thank you Joe for updating us on what you’ve been going through. I’m sorry it’s been so rough. I hope you and the mrs have a great holiday.
Black cat ❤️
There is something called Mago7 and it’s magnesium to help with constipation without more meds for your stomach. Also as a redhead your tolerance for pain meds or morphine is higher and well as allergic reactions to things not everyone has a reaction to. Strange but true.
I’ve never seen you before but RUclips sent you my way. You and your incredible wife will be in my prayers-I hope that’s ok.
Much love from Tennessee.
I'm not a red head though, I'm actually dark blonde, my beard was ginger but that is due different genetics to head hair.
@@JoePlater it’s beautiful hair before and now. You have a very gentle, old soul & extremely kind, humble and brave for sharing this journey.
Wondering how you are today. You and your wife have been on my mind lately.
Hi Joe, thank you for explaining to us how you're doing, just great to see you and love your sense of humour. So good to hear you're stable, wishing you the best of luck with it all....black cat....and how lovely your wife is too. xxxx
Good for you with your attitude to the doctor, when you know your situation, you already know, I wish he hadn't been like that with you,. that was the last thing you needed, I'm angry with him on your behalf. God Bless
Hey Joe, good to hear from you. I'm sorry you're having such a rough time right now. Hoping you can take that holiday with your wife and just forget about everything and be spoiled rotten for a little while. You may even run into a black cat. :) Sending you my best wishes.
**Black cat 🐈 *** I'm so sorry to hear your news. I was wondering where you were. I'm so glad you have an amazing supportive wife who clearly loves you 💖
Dear Joe,
So sorry Joe that you have had such a rough time. You and your wife are such an inspiration to us all. What you are going through is what I am so afraid about with my ATC. We hope you and your wife get on holiday as you certainly deserve it. However, we suspect your “Black Cat” will not be happy being left behind while you folks are on holiday.
Take care and hang in there.
Thank you Joe for your update. Black cat. Glad to hear the growths are stable. Best wishes.
Black cat. You’re rocking that look dude! Good luck my friend. Hope you both enjoy your hot holiday, and everything remains stable from here on out! ✌🏻
Black cat! You're a wonderful , strong soul! You're wife is wonderful as well! Many blessings!!!
dear Joe...i am soooooooooooo sooory and wish you all good... all will be ok.
🐈⬛ Black Cat. Praying for you. I went through breast cancer and just got over Covid. 🙏🏻❤️
Glad for the update on what you've been going through, Joe.
Three cheers for Cabozantinib - long may it work for you.
I think we're out of sync with our Monday Marsden clinic visits now but I will keep an eye out for you in case I can say hello again in person.
I think you need at least two black cats (or so our Malcolm and Maisy would say).
Keep on.
Paul
Black cat…. I’ve learnt alot about the medical process and especially the thought process to deal with med issues… thankyou for being so open and informative…. Helping me to understand some things that are going on in my world and friends.. xx
So sorry Joe keep pushing forward you’re truly amazing and inspirational I have to give my kudos to you both at being such a stable, close, loving & supportive couple your wife sounds absolutely wonderful! Sending love & thoughts to you both. Really good to have an update from you just not the news you were expecting at all but you’re so very brave and strong again just amazing 🤩 ♥️ love to you both
I caught a bit of one of your gaming livestreams a few weeks back, so this one is actually a more positive video. Hope the liver gets sorted and the rest remains stable. Had a black cat share my life for over 20 years. Wonderful creatures!
Hey Cmdr P. Thanks for bringing us up to date. My thought, As always, are with you & the family & Enjoy the Holiday fella. Pet 'Black Cat' for me. ❤
Black cat 🐈⬛ I’m sorry joe, cancer is devastating. I hope your pain continues to be under control, and enjoy your holiday!
We all have heard the saying "if a black cat walks across your path it ment to be bad luck "but not in this case think you have been quite lucky and I'm hoping your situation gets more manageable stay strong mate sounds like you have a fantastic partner with you to help you get through the bad times stay positive and try to focus on the good things in life I know they are hard to find at the moment but trust they are there.
Hi Joe thank you for updating us with where you are with the treatment and taking the time especially with what you're going through.All my best wishes to you and your dearest wife sending you the best vibes and blessings your a fighter joe try to stay strong I know it's not easy but you are in my thoughts 🙏⭐
Black cat 🐈⬛ Still the same person I loved to watch stream elite. It hasn't taken an inch of your soul. Your an inspiration. ❤
I watch all your videos to the end Joe 😁💙🐈⬛
Black Cat and Firecrackers! Your personality reminds me of a firecracker who stands up for himself when others are trying to push you down with their words. Be strong! I don't have the same type of cancer but ALL cancer sucks. Hugs...
Thanks very much for the clarification Joe.
I can't say i would ever compare to what you're going through. My mom got cancer at the age of 51. That fucking disease ate her away for over two years. She was declared cancer free twice. Then... an artery ruptured in her leg because of all the radiation treatment she's got. A closer examination reveled it had spread (metastases) to all of her lower body. She passed away three days later. Willard1975 on your DC. I really hope you will pull through
Black cat - thank you for sharing your journey - I’m sure not easy to express and honestly not easy to hear but your strong spirit shines through - CMDR looking forward to your next ED video.
I hope your black cat will bring you good luck! but no, I promise I'm not superstitious. I'm so glad you have a lovely fluffy friend - and a wonderful wife! Your comments about the unpleasant palliative doctor reminded me of a youtuber called "Biohazard Girl" and she was in hospital with recent bad news and she said a doctor came and gave her a harsh, stern lecture about how dire things were, like she'd been a naughty girl - and it really hurt her and made her angry. Who knows what weird psychological problem people have when they take their own discomfort out on the patient! They are the sick one!! Best of luck with the treatments (and the tropical holiday!)
Black Cat 🐈⬛...Really admire your courage and strength.I watched many of your Elite videos.You kept my sanity when I was close to losing it.Thank you o7
Been thinking about you often since the last video. Sorry for not checking in. Hope you have a great time on the next holiday, and give the lady behind the greenscreen a hug for me! Black Cat.
Black Cat! Joe. Thinking about you and your wife:) Thanks for sharing your news and the fundraiser with us. It sounds like that palliative care doc was really helpful and informative. Wow. 🙄On an unrelated note, I really love your background picture.
Keep fighting joe. You’re a warrior. Im proud of you 🥰
I'm in awe of your courage and fortitude. I hope you have a great and memorable holiday with your wife in the near future. Black Cat.
You are my hero black cat. Wishing you every positive thing and mostly a peaceful mind. Lovya 😘
Keep your spirits up Joe!
You have no idea how good it is to see you again! 👍👏🌹🙏 Black cat, of course! 👍