After 4 years, I’m still trying to get my vns implant. All insurance denied me. My neurosurgeon actually ended up donating surgery to me! And the vns device is being donated too!! I just need prayers that the hospital also allows the surgery to be donated to me. It’s crazy expensive. Plz pray for me. I get my answer around Monday. 5/20/2024 🙏
I had my entire VNS system removed and replaced with a MRI compatible lead and generator yesterday. My initial VNS was implanted in 2004. While VNS did not completely control my epilepsy I did have some benefit from its use. It did decrease my postictal time, it helped me lose weight and I did feel less depressed. My new device is much smarter and has so many more programmable parameters.
Hey Bryan, thanks for sharing your story. Im considering getting a VNS. Can you show us how the scars and implant now? Have you had any joaesene of voice or physical discomfort from the device?
I just had mine installed two days ago. It’s pretty tender still, but I’m hoping it will subside soon. Your post is 9 years old. I’m wondering what kind of success you’ve had?
hi bryan im thinking of getting it done i have suffered fits since i was born iv had 2 brain surgeries none worked and on so many meds over the years cant remember them all i just wanted to know before i take the plunge when the vns goes off do you feel a shock and if so does it hurt
Bryan Did you loose your Glue that the surgion put on your incision during the healing process when you had to bath just asking cause i lost alot of my glue when bathing wondering if that is normal but my scare looks ok had my surgery on the 20th thanks Bryan
I have been having seizures since 2017 and there was so bad and I was on so much medication and I was having seizures every other day and I had a bad experience last year in September that I had to be Medevac to Wichita Falls from Oklahoma from a really bad seizure and later on that year I learn about vns and now I’m getting surgery at the end of may or in June and I use to be on so many medicine when I first started them and I had seizures all the time every other day they were grand mal and absence seizures I had them so all the time I had lost of weight because of my seizures because I didn’t have a appetite I was depressed from all the medicine I use to take and now i only take keepra my seizures as of now are not as bad as they use to but I still have grand mal seizures like 2 twice a month and absences like 2 two times a week but I’m getting surgery any times soon and I was looking into this as a after math of what happen after the surgery
tylersmyler please keep me updated. I’m considering getting it done because my medication I’ve been on for 10 years isn’t stopping my seizures. Please let me know how it’s going for you.
I go in in the morning for my VNS. Thank you for the encouraging talk.
After 4 years, I’m still trying to get my vns implant. All insurance denied me. My neurosurgeon actually ended up donating surgery to me! And the vns device is being donated too!! I just need prayers that the hospital also allows the surgery to be donated to me. It’s crazy expensive. Plz pray for me. I get my answer around Monday. 5/20/2024 🙏
How is everything going? I go in for my VNS next month.
I had my surgery. You made it look easy.
I'm 16 years old and have had my VNS for about almost 2 years so i'm glad someone can relate :)
You’re so brave!
Thanks Brian my Doc(s) are encouraging me to get the VNS and I am still unsure about the device and the surgery. Thanks for your comments.
I had my entire VNS system removed and replaced with a MRI compatible lead and generator yesterday. My initial VNS was implanted in 2004. While VNS did not completely control my epilepsy I did have some benefit from its use. It did decrease my postictal time, it helped me lose weight and I did feel less depressed. My new device is much smarter and has so many more programmable parameters.
Nice video
Thanks you've helped me out a lot. I now can understand more about getting this done. I'm wanting to know how the wire is ran. ?
Hey Bryan, thanks for sharing your story. Im considering getting a VNS. Can you show us how the scars and implant now? Have you had any joaesene of voice or physical discomfort from the device?
I just had mine installed two days ago. It’s pretty tender still, but I’m hoping it will subside soon. Your post is 9 years old. I’m wondering what kind of success you’ve had?
It has made me foggy for over 30 yrs. Getting this done in a few weeks. Drug resistant with 8 meds.
hi bryan im thinking of getting it done i have suffered fits since i was born iv had 2 brain surgeries none worked and on so many meds over the years cant remember them all i just wanted to know before i take the plunge when the vns goes off do you feel a shock and if so does it hurt
im in the middle of getting scan before i get the vns but doctors dont seem to interested in giving it to me
I got 5 days before the VNS goes in
Bryan Did you loose your Glue that the surgion put on your incision during the healing process when you had to bath just asking cause i lost alot of my glue when bathing wondering if that is normal but my scare looks ok had my surgery on the 20th thanks Bryan
How are you now?
Are you able to move around the same 2 years into it , for working out reason.
It doesn't sound like you've had seizures very long....how were you able to get VNS so soon?
I have been having seizures since 2017 and there was so bad and I was on so much medication and I was having seizures every other day and I had a bad experience last year in September that I had to be Medevac to Wichita Falls from Oklahoma from a really bad seizure and later on that year I learn about vns and now I’m getting surgery at the end of may or in June and I use to be on so many medicine when I first started them and I had seizures all the time every other day they were grand mal and absence seizures I had them so all the time I had lost of weight because of my seizures because I didn’t have a appetite I was depressed from all the medicine I use to take and now i only take keepra my seizures as of now are not as bad as they use to but I still have grand mal seizures like 2 twice a month and absences like 2 two times a week but I’m getting surgery any times soon and I was looking into this as a after math of what happen after the surgery
Just got mine done 2 days ago..
How has it been? I'm getting mine next week.
tylersmyler I’m getting mine Monday! Hru doing?
tylersmyler please keep me updated. I’m considering getting it done because my medication I’ve been on for 10 years isn’t stopping my seizures. Please let me know how it’s going for you.
She gave me the go ahead, haha she didn't really give me the go ahead lol
Is it Noticeable