Vegal Nerve Stimulation - 93% Reduction in Seizure activity! -
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- Опубликовано: 3 авг 2016
- 93% reduction in Seizure activity after 2 years of Vegal Nerve Stimulation! It's officially been two years after I received surgery and have been living with VNS therapy since then. I'm ecstatic to share that after being on a toxic 3,000 mgs of Anti-Epileptic Medication I am 100% drug free and living an incredibly productive seizure-less life! In the coming days I will continue to share my journey, as well as the things I have been doing every day to achieve goals that I can only attribute to recovering from a battle well fought.
I just wanted to give you a big hug.❤️ and thank you for making videos... I have to get up and fight for myself too🤨💪🏼
Amazing, just starting the journey to ty and get this for my 14 yr son here in NZ. Awesome to see how much of a difference this has made for you!
You make me so exited for my own VNS journey to begin! It’s been a long road but I’m looking forward to new possibilities! Not being able to go back to school because of my epilepsy makes me the most discouraged- so thank you for sharing and showing that life is still ours to conquer!!
Thanks so much for this video! I’m watching from the EMU, testing to see if I’m a candidate for VNS and so far it looks good 👍🏼🙏🏼 really appreciate your insight, gives me so much to look forward to!
Thank you Bryan - my son is 16 and had VNS surgery approximately 5 weeks ago and appreciate your words of encouragement and your messages - we are still working on the settings to get to that place where you are . Congrats to you !
wow so happy to see this helped you! Keep on trucking man.
Watching your video really gave me hope man, I’ve been taking care of my mom who has uncontrollable seizures and weighs 82lbs soaken wet. She takes maybe 4000mlgs every damn day & it breaks my heart to never see her get better and have maybe 4 seizures a week. I wanna see her not be worried about getting out of bed, using glass or ceramic cups/plates, urinating, public humiliation, etc. thank you for sharing your story man so glad to hear you’re doing good!!
Thank you for sharing! Your videos have helped my daughter and myself with her epilepsy journey.
Well done!!! I’ve had mine over 12 years and just recovering from a battery replacement. My seizures have eased up but I still have them every day . Like you - my VNS was a life saver - i can live a life! ( and. Just about to finish my degree ... finally!)
Congratulations in your journey . My niece had the implant 2 weeks ago. Thank you for sharing your journey.
Thanks so much! I’m glad you are doing well! You’ve been very helpful!
I just got my vns implant and I'm excited to slowly get my life back together ....I'm impressed of what you've done and progressed of.
SIR i been living with epilepsy since i was 6 now im 20 drop out of school sitting at home for 5 years now i want my life back please help me i switched to a lot of meds too. please tell me the name of doctor sir please
I'm about to have VNS done in a few weeks. I'm nervous but grateful. Congratulations to you. I tried 8 meds..including the ones you used. How Wonderful your life is. 😊
After watching you videos. I had mine put in 5yrs ago. Seizures have slowed down alot. From 5-7 a day now 1 every 3-4mo. I just had my new battery replaced a few months ago. Still going strong!!
I just got went through the surgery for VNS. Thanks for the inspiration B.
Thanks for the video great man! I can feel u. And felt like to give a big hug to u man ♥️♥️.
I am going to see soon if I can be a candidate for VNS I am however conscious during almost every seizure I've had since I was 13 y/o and am hoping for the best since I have so many problems too many to count, but I pray this time it will work and great videos bt-dubs!
Bryan, thank you so much for sharing. My son is a 21 year old college baseball player. He had to take a medical red shirt from baseball this past season because of his seizures. He had his VNS placed 8 days ago. Your video has been a true encouragement to all of us. God bless you and we are so happy to hear of your great success with VNS.
Thank you so much! Good luck with the process. Stay positive. Stay consistent. Everything will turn for the better with some steady fighting!
I am watching your videos as my 17 year old son is recovering from his VNS surgery. Nor the ideal way to spend your first day of senior year. Your story is inspiring. When he is up to it, I am going to have him watch your video. Thanks for posting.
Thank you Connie. I know especially as a 17 year old it's not the way you want to spend your time. I hope that I can at least provide a little inspiration and information. Good luck with everything, it takes a lot of work sometimes to change the way we live to compensate for our differences, but we are better for it in the end! I'm sure that your son will develop some healthy habits through the rough time and come out a better man!
Awesome. My daughter had her VNS therapy 2 years ago and it's works great.
I love your channel..thank you for your effort and everything you do to help others who are under this epilepsy..my son is 18 when this seizure attacks him but it only comes during his sleep and please do message me the steps to his recovery especially without taking medications..Love this courage and effort in helping out those out there who undergo the same as you.
I have had epilepsy for 4 years and am on the highest dosage of meds. They still don’t work. I’m about to be having the VNS surgery and I’m nervous....I’m glad someone is here to talk about it. Help me ease my mind. Thank you. 🙏
We are about to get the VNS for my daughter I am thankful for your video it helps us see if this will be good.
Congrats man I wish it would have stopped my seizures like yours! I still have them once or several times a month, but every time its me thinking this time!
Thank you so much for this video... My daughter has had the VNS for 16 years and her quality of LIFE is so improved... She is still on AntiEp. Meds but dose is much smaller that in the past.... She is unable to verbalize how she feels and any side effects.... God Bless your BUSY LIFE!
Thank you and God Bless you and your daughter. I am happy to hear of improvement! All the Best :)
Thank you Bryan.. Seizures will NEVER get the best of her life!
Wow God is good.
Happy for you . Glad to hear you testimony.
It's great to hear a story like yours and know that there is possibilities of being seizure free and no longer medicated. I hope that if I get the VNS, I have the same success. Best of luck!
Thank you! It's always going to be a long battle, and it's the grit and grind day by day that continues to make us strong. We fall a little harder than most upon our mistakes but it's only more reason to battle harder to reach that utopian day. Good luck with your journey as well, the fight is always worth the growth in the end GOOD LUCK! I know you will be strong. It's comments like these that give me the drive to keep moving and keep working towards those goals. THANK YOU SO MUCH! :)
i appreciate these videos because I am looking into possibly getting a VNS.
Thank you for your share... I am in the process of looking at options for my daughter and VNS has been mentioned by our specialists.
Helped a lot ❤️
Bryan. Thanks so much for your testimony. My son has complex seizure disorder know as Lenox-Gastaut Syndrome (LGS). He is 32 and been on 3 anti-epileptic meds since a year old. He has complex disorder from partial-complex to Grand Mal (tonic clonic). He is very mentally impaired, some from his seizures, some from neuro damage at birth. His Mom and I are considering VNS even more but are in truth find it scary for him to go thru. I so much want to improve his quality of life and try to reduce the toxic meds if a VNS will help. Your video gives promising hope and inspiration.
Don't be scared, I'm also grand mal partial siezure i have in prove so much..now on less medicine low dose you barely know you got it on ,doesn't bother or hurt
Did you follow through with the vns? My son has exactly what your son has. Hes scheduled for vns placement soon. Hopefully you still get notifications from this video.
Wow.. you really touched my heart with your videos.. I recently had another seizure Sunday in the bathroom at a restaurant.. I have focal epilepsy. Had one this past Christmas night couldn't drive for 6 months. I had 2 weeks left before I could drive and had a seizure so now I'm back to 6 months of no driving I'm also on Keppra 2000 MG. I'm on anxiety medicine also because I just live in fear I have 2 kids and just get so scared of having another one and not surviving it.. my older brother passed away a year ago from seizures..
So happy for you. !! PTL!
When you get this message I just seen my specialist today at the hospital and hopefully I could be getting what you got which is the epileptic pacemaker I have done my research as well and I found your videos very helpful and I did say to the doctors at the hospital.
Am I scared of getting this operation done yes I am a little bit scared but the doctors did say this is very mild operation.
4 brain surgeries down. Luckily just got VNS thank you for the video. Keep fighting brother.
God bless great journey!
Thanks I just had my vns surgery yesterday I've had seizures for 8yrs hopefully it works thanks B
Jommore Pitts what is your own experience after a year?
Thank you very much for these videos I have been having seizures for about 6 years now. Happened out of nowhere while I was driving… Never knew about this device until today at my new neurologist appointment I’m not really to sure what to do. I slept on it had some weird good and scary dreams about it and my life in the future. The really weird thing is I don’t ever dream I’m not really to sure what to do now I was leaning towards it’s but now I’m not really to sure I understand the foggy feeling from the medicine I get the same thing and It’s just making everything that much harder not being able to drive and live on my own it’s definitely setting me back. I would appreciate anyone’s comments thank you 🙏🙏🙏🙏🙏 ☀️☀️☀️☀️🤟🏽
Thanks so much
3 thousand mg a day? That's so much! D: I only have about 1 thousand mg a day! Congrats, dude! On everything you've accomplished thus far! I'm happy for you! I'm going into surgery in 5 days for the VNS. Nervous, but excited! I hope things continue to look up for you!! =)
I hope everything went well! Honestly just being off those meds has changed everything and cleared the mind tremendously. VNS has it's side effects but nothing like the meds. It's well worth it and I hope you will always know that you've made a positive decision.
Hey Bryan I have strictly absence seizures I grew out of my grand mals. Im currently having 1 absent seizure every 3 seconds. Really hoping for the best. I have a consultation appointment with my surgeon this Friday!
I'm on 3600 mgs total with kepra lamictal and topamax. Been on this stuff for 17 years since I was 13. After they took a tumor out a few years ago still having siezures. Meeting another surgeon next month about this implant. Hope it works.
I’m on my way now ✈️ to consult with a neurosurgeon!! Hopefully she can give me the VNS implant. I think my life is about to change!! Happy heart.
I’m so happy for you , when we are on so much med we don’t have a life I couldn’t get VNS because I wasn’t a Candidate ;(
me too.
I just got the VNS. I’m currently on 4,000 mg of keppra and 400mg of vimpat a day. I sure hope this gets me where you are. I am home most of the time now. I have partial complex epilepsy
ya im impressed by you i feel like we share alot if the same story.
i am happy for you please put us video for us
Thanks for the video. I can really use the name of ur doctor. I have been having since 14 years old n done tried every med the came out with for epilepsy. I just want to live a normal life with no more episodes. Like i said meds not working n the limitions i have on my life are really starting to get to me. I have been up n down the east coast looking for a good doctor. So the name of ur doctor who did ur vns may really help
Good for u. I'm still on one of those medications u just named and I'm always tired always sleeping. I feel terrible a lot from being tired and I wanna have the operation for the vagus nerve but my cousin told me there are side affects sometimes because i could lose one part of my brain like for example my sight or hearing for example if i had the implant. Is she right about that? I don't have seizures every day but i did have my first one in a long time this month i used to have them all the time when i was younger but i don't want them at all.
Did you still have your VNS device in you after 2 years ago ? I have a VNS device in me and im getting it turned on in a week and thanks for your videos!
Thank you for your video. We are considering VNS for our son. I have a question for you, do you feel the actual device under your skin and is it uncomfortable.
Hi Bryan thank you so much for this video, I wanted to know how does VNS machine actually stop the seizure? Does it send a signal to the rest of the nerves before they start to react? And I also want to know how much of a difference it makes on the rest of the body (what percentage) of pain is reduced by having a seizure with this machine in comparison to when you normally use to use seizures? I am asking these question because I have decided to get a VNS implanted, I been suffering from sleep seizures (tonic-clonic) since the past 12 years, and now I have two children and I just can't deal with it anymore. Medicine doesn't help at all and I really want to live a normal life. But I am a little scared about if the machine will help me or not. Someone also told me this device over time gives you more energy to function better would you consider that true?
Thanks,
Arefa Sajjad
when the vns goes off and you dont have a seizure, can you feel the shock?
I had a friend a few years ago who ended his life because the seizures wouldn't stop. This makes me wonder if he or his doctors didn't know about this. Maybe this would have saved his life.
Hi sir congratulation for seizure free, can you tell doctor name and how much of cost for surgery
Hi. Can I ask how bad was your epilepsy? How many seizures in month? How many seizures in one time? How many years you have had epilepsy?
I am asking this because I have plan also for VNS stimulator. I have lived 8 years already with epilepsy.
Man congratulations live it all up to maximum limts , my suecires are different and less intensisty but I know exactaly what your talking about , I want to ask you how you can be nominated for VNS surgery?
You have to speak with your doctor and usually have to be resistant to at least 2 types of anti-epileptic drug, and also not be a candidate for brain surgery for insurance to cover it. Sometimes exceptions can be made.
Hi!your 2.5 amperage is set for 30 seconds each 5 minutes or each 3 minutes?!
My son is 14 and being referred to a Neurosurgeon for a VNS implant do you have any advice for me when we go see him.
My Doctor has been urging me to get a VNS i have been on pretty much everything and still having many seizures and drop seizures are there any side effects
Im 26 and I have terrible terrifying seizures and im in a wheelchair because of it and im on keppra 1500mg keppra and 300 mg of trileptal please help me get this I need help this is terrible i need to live a healthy lifestyle and work on physical therapy
But now that you have the vns can you drive by law?!Because if you have epilepsy there are driving restrictions.
At what rate were you doing the keto diet and then also weening off of your drugs? And also, how were those two seizures? Were they super scary ?
Thanks SO much for making these videos. My neurologist has been speaking and suggesting this for a long time but I am never fully interested. First, I had brain surgery in 1995 without success. With that I had to learn names again, read, and my memory was not as good anymore...and I still have seizures. Usually 5 or so...or more a week. I have tried many meds, natural approaches, etc. But I am scared to try this. I also feel like wearing this is going to be a constant reminder of my situation and letting others know about it and my situation. Not exciting. But, I did want to ask. You have had 2 grand mal seizures in the last two years. Had you ever had grand mal before vns? Did you just then have petit mal? I have never had a grand mal. Thanks for your help =) I really appreciate it.
Hi Maureen! I appreciate your support. Brain surgery seems pretty intense and I'm sorry to hear about that brutal recovery process. I have always had Grand Mal seizures, and never had a partial seizure. Because of my generalized epilepsy, I wasn't a candidate for brain surgery. I was tested with the week-long EEG and they found that seizure activity occured in my entire brain all at once solidifying the Grand Mal diagnosis. My seizures were unpredictable, and sporadic without any response other than side effects from medication. My decision for VNS came from the ineffectiveness and debilitation of Seizures and medication. Previous to my surgery I would have 5-6 grand mal seizures in a given week and be recovering due to the nature of the seizures sometimes an entire week afterwards. I was forced to drop my classes at University and essentially drop my entire life. The medication on top of that made it hard to think. It wasn't soon after it seemed like I had lost everything to make the decision for VNS. I really just wanted to actually be able to pursue my dreams which I couldn't do in bed all day. By no means is VNS a cure, but it has helped me tremendously. I also was hesitant in being reminded daily and outwardly reminding others of my ailment by having a lump in my chest. However, I have used that reminder in positivity to remind myself every day how much harder I need to work. To remind me to ensure that I am properly taking care of my mind with proper sleep and nutrition. To remind me that my situation is not that of the average person, so my strategies must be refined and enhanced. It reminds me every day how greatful I am that things turned out the way they did with all the close calls I've had. It reminds me to be motivated every day. Hope this helps. Good luck with your journey!
Hello again Byran, I wanted to thank you again for all your posts and your encouraging words. I have finally decided that I am ready to accept and have the VNS put on. I am a still a little nervous but also excited to see a positive change in my life and situation. I have only heard positive words with the VNS. So, Dec. 8th! That's my day!
I am excited for you and wish you all the best! I'm sure the process will be great. It's ALL about your mindset. You choose your own journey. Best of luck Maureen :)
please bryan tell me after how long time the vns started to work
I’m epileptic for 6 years and since then I was not able to work & drive my neurologist ask me to try VNS but I’m scared.Can you drive now & do you still take medicine?
Hello Bryan, we have been watching your videos because we have a son 28 years old with same problem from he was 6 year old, someone offer us this technology to improve our son life but i do have a questions. I know that everybody is different but have you seen any short term memory problems in your life after any seizure? this device help in the part? we are not trying to recover memories but for our son this is a challenge. we will wait for your comments.
what about the side effects:
Voice changes , Hoarseness, Throat pain, Cough, Headaches, Shortness of breath
Difficulty swallowing, Tingling or prickling of the skin, Insomnia, Worsening of sleep apnea
I have VNS implant but doesn't work...😥😥😥
are you able to drive again?
Hi Bryan, I also had the vns therapy for about 2 years now and I am so happy to hear your success! I am still taking about 3,000mgs of keppra and 600mgs of lamictal about how far along was it before they decided to take you off your meds and how did they decide that it was time?
Hi Selina! I hope that your current regimen is at least reducing seizures for you. I had been discussing with my doctor alternative treatments for awhile before VNS. The effects were debilitating for me. Each time my stimulator was increased by my neurologist, my medication was decreased inversely. Wean on, wean off. It took about 5 months to completely reduce my intake to null. My doctor put me at a level of stimulation slightly above the "therapeutic" level to mitigate the risk of coming off medication which I have gladly embraced. Simply, the medication was ineffective for reducing seizures in my case and only causing adverse effects. I didn't feel that even a small amount would benefit my health in the long run. I have developed multiple lifelong habits as natural ways to strengthen and enhance the health of my brain along with VNS. I do these things to help mitigate that risk instead of medicate. Check out my video today all about ketosis and how it has vastly sharpened my mind!
Selina Blair hey selina im also on almost the same dose of meds 3500 keppra and 800 lamictal. just recently raised the mg. i dont have the VNS yet but how did it help you ? i have grandmal siezures
thegeneral699 Hi well its been 2 yrs since i had the implant and so far my seizures have decreased tremendously! I have gone from having numerous seizures a month to about maybe 1 every 3-4 months! It has definately changed my life for the better in that aspect but meds wise I'm still having to take the same meds as before but that should change soon hopefully! I have noticed more energy my daily mindset has changed Im happier and when i do have seizures the recovery period is much shorter. I mean there has been a lot of benefits with vns You should for sure look into vns therapy it for me was most certainly the best choice I've made! I also just recently started charlettes web medicine if you've ever heard of it but it's not really legal everywhere yet and I live in colorado but look that up as well see if its legal in your state and just research it check it out. Its trully amazing. Research is really important do as much research on vns therapy and charlettes web. I hope this helped a tiny bit
Congrats Selina! It's awesome to hear another positive Epilepsy story. Keep the fight up! I hope your days are filled with that continual drive and motivation from such improved health. Keep it UP!
Reading a lot of scientific articles all say that the maximum level usually set of output current is 1.5 milliamp.
So watching the story of bryan who became med free with vns with an output of 2.5 milliamp this means that reaching this high level meds can be reduced but the problems with reaching 2.5 milliamp are the side effects which can be really dangerous!
By the way at what output current is set your vns?
My son just got hos 3 weeks ago. He cant tell me how he feels verbally. But i can tell at first it has made him drowsy. Ut hasn't helped the seizures much yet. Question how long did it take to see good results from the vns? So you could wean off meds? He is only on one med now
My daughter was diagnosed with cortical displacia, Petite seisures when she was 5. They started to get worse when they started her on meds, at one point she was on like 5 or 6 different meds and it affected her personality and moods etc very much.
We had the VNS implanted and for us, it was a waste. it has been in for about 4 years now but the seizures never slowed down. She is 14 now
Finally go her off all of the meds (Doctor wanted to increase her kepra on top of the others.) We said NO.
After she was weaned off the meds the seizures reduced a little bit. Her atitude is beeter, her mood is better, she is not as tired, the melt downs went away, she is able to sleep better.
The VNS doesn't seem to work for her, surgery is not an option for her type of seizures as they are not localized.
We tried the charlottes web CBD oil (still have her on it) and still no marked improvement. but still, they are less then when she was on the medicine. One day at school they counted 64 seizures.
The struggle continues.
Please reply me I have 7 years son . He having seizures .
I am scared. I am going to have it soon. I have been waiting to watch someone who has had it. Any advice?
Don't be scared. I'm considering it too. My meds work pretty well but I still have 1 or 2 GTCs a year. You're not at all alone.
Hello Bryan Baker, I am thinking about getting a vns implant and I am still debating whether it would work for me ... what kind of seizures did you have before you had the VNS implanted? Thank you.
Hi Lesiel Sierra, I have grand mal generalized seizures that render me entirely unconscious often with pretty brutal battle wounds to wake up from. Always trying to find little ways to avoid being held mentally captive. So far staying away from alcohol has been a great help!
Ok I see... well I have atonic seizures (drop attacks) and absence seizures (petit mal seizures) and on December I was told that I had Multifocal epilepsy therefore there is not much to do except taking more meds, CBD oil Or VNS? From your experience would you say VNS Would help me?
Lesiel, VNS has been a great help in my life though it is imperfect in many ways as you'll hear me describe in some of my videos. One of the reasons I like VNS however, is because it goes off every 5 minutes so it provides me with constant therapy without the need for having to remember to take medications constantly. VNS is unlike AED's becuase it actually provides nerve stimulation RATHER than suppression like other Epilepsy treatments. For me VNS is a winner because I am a graduate student with a double course load and I greatly value my mental clarity and focus. The only issue with CBD oil and many other treatments is that while they reduce seizure risk, there are noticeable "suppression" effects that can have a definitive impact on a work or school day. I do believe the decision is different for each individual depending on your lifestyle and goals. If you have found CBD oil works well in your scenario then I would keep it up however in my case I specifically chose VNS to avoid the tired groggy feel of those treatments. I have found that with medications such as those, the actual "anti-seizure effects" so to speak only last as long as the chemical is in your system, so you have to stay on a daily regimen in order to reduce seizure volume. As soon as you miss a dose by accident or run out of medication you become vulnerable. VNS is not fullproof but it has DRASTICALLY improved and regulated my life and I would recommend it to anybody who has run out of answers. VNS is absolutely a longterm and committed decision, and my opinion is that is should be very carefully considered but it can be a great help. I really hope that this helps, and good luck!
Thank you so much for responding and I see your point of view of both sides and I'll take into consideration. Bryan where are you from?
I've got a question for you, or anyone else who can personally answer this. My surgery is scheduled for the 20th of this month. I'm 5'5, and somewhat muscular (not to brag). When I was offered VNS surgery, they showed me the device, and I had plenty of questions about it. One of my questions is about muscle building around the torso. The device (from the outside) is pretty big around the left side of my chest. Now, when I'm able to continue working out, would continuing push-ups and other exercises that expand my chest have a negative effect on the muscle where it's implanted? I would think it would be pretty painful and/or cause the device to dislodge with my small size, so I'd like to know if this is true or not. My doctor says it would be fine, but I'm not sure if I trust that because it would be attached to that muscle and is a pretty big device for someone my size.
Richard Zell you should be good for workouts. You are going to be sore in the color bone/ chest area but it shouldn't affect you too much as it will go away within 1 month
I worked-out as hard as I could after and it was the best thing I could do. Stretch out and STAY HYDRATED
Bryan Baker thanks for letting me know! I appreciate it! Yeah, I use drinks with electrolytes like Propel regularly since high heat is one of my triggers. But it's good to know that I won't get too lazy haha
I am gonna get VNS for my depression. I would like to ask you if you noticed any changes in your memory and concentration ? Has it improved or has it remained same?
How has it affected your mood?
Have you noticed any changes in you sleep? Do you feel restful on waking up in morning ? How many hours of sleep do you get on an average? Do you have an option to inactivate VNS temporarily yourself.
Thanks alot bro
Are you able to answer those questions since your proceedure? You asked all of the things I really want to know. Especially if feeling rested upon waking is a real thing? I don't remember that anymore. Memory and concentration are in need of dire repair in my brain. Also, after the implant, did you have a decrease in daytime naps? I would be completely happy with just those improvements. I am new to learning about this, if Medicare covers it for me, I'm seriously considering having this done. Hope, there you are my long lost friend, it's been a while, welcome back. Oh darn, I'm already at hope before I know if this is covered.
@@lb1984 have you tried rTMS for depression?. Where do you live?
@@psychiatrist123 no, I'm looking for seizure reduction.
@@lb1984 hope you find the best therapy for your seizures.
@@psychiatrist123 thank you! We share that hope 😊
have you noticed any non-epilepsy related benefits? Mood changes? anything else?
The best benefit would be just not having to deal with the suppression of such high doses of suppression. Definitely puts you in a better mood being able to think without the cloudiness
@@bryanbaker9489 you answered!! Omg I just saw this. You’re so inspirational for me. I watch your videos and just try to manifest this device for myself. I need it for my POTS. I can’t exercise without severe chest pain and tachycardia. Feels like my heart will explode. Very dizzy as well. I wish you continued success! Please make more vns videos 🥰☺️🙏
@@bryanbaker9489can you believe I’m still fighting insurance? 4 years. I gave up and actually cancelled my insurance. So sick of being denied. As I posted in the other video, I got the vns donated to me. I just need the hospital to say yes as well. I hope to god I get this surgery soon. It’s been SO LONG.
Does the VNS magnet interfere with weight lifting at the gym? My son needs one but he fears that he won;t be able to lift weights anymore. Thanks and God bless
I’ve had one for years. Had a battery replacement. Still take some meds, but I can still exercise. No problem
what are you studying now?!I've heard something like it.I have to decide if to study information technology engineer or computer science and I don't know what to choose..
I was just curious:).
My major is MIS (Management Information Systems.) So it's actually a business BBA degree. Somewhat of a cross between CS and Business. I just applied for graduate school however, and instead of going for an MBA I will be going for an MS in cybersecurity. So the plan will be to have my bachelor's degree in business and Master's degree in Science :)! I have learned a lot of vital skills in business school but information security is what I'm passionate about working on and I am hoping to turn it into an exciting career!
does exist actually a bachelor degree in business information technology that mixes business and computer science:)
Also, were the 2 seizures at the beginning of your vns implant?
Both were about a year after surgery. They were also both due to the fact that I had put my body and mind under intense stress because I was unable to sleep. It seems that I really pushed the limits of my mind to a point the VNS couldn't mitigate against. Though it's impossible to eliminate 100% risk, I have since learned from those occurrences and strive to improve my well being.
Thanks for your words and your videos. As I said the neurologist has been suggesting this and it never interested me. The feeling of it and having trouble speaking seemed scary. But I recently had a bicycle accident because of a seizure and had a broken bone in my hand and lots of marks and scars on my face. So I have been thinking maybe this is what I need to prevent things like this from happening. Sometimes you gotta take the good with the bad, right? And you are no longer on meds? You are inspiring!
NO MORE MEDS =)
Hello again Bryan! My VNS is getting a little closer. No official date yet. But, I was wondering about your sleep problem. Was it that feeling of the vns that disturbed sleep?
I've never felt that VNS disturbes my sleep. I find that the more I have on my mind at night, the more difficult it is to sleep. I find that staying on the same sleep schedule of sleep each night. Sleep is much easier
do u notice vns takes ur breath away when u walk fast
It does have an effect on the cardio system during heavy exercise during the time it is going off. I am usually fine as long as I keep up with my excercise
Since you are not taking anymore medications at what voltage or amperage is set your pacemaker?
2.5milliamps
this is an important question: after how much time after the surgery was set your pacemaker to 2,5 milliamps?
it took about 8 months before it was turned up all the way as I had to schedule an appointment with my neurologist each time. Hope this helps!
your 2.5 amperage is set for 30 seconds each 5 minutes or each 3 minutes?!
every 5 minutes!
Hello again Bryan, =) I THINK I have seen your email address at one of your posts but I can't find it again. I have a few more questions and it seems email may be easier. Would that work?
Hi Maureen! Please send me a direct message on Instagram with your email address and I will email you as I cannot send you a message on youtube. I will be more than happy to answer any questions!
What is your instagram name? I couldn't find you.
bbakerlax
And I take 50 mg of trokendi a day
Hi how are you ?? Can I have your personal email please my doctor appointment is coming up by the end of the month and I need more information on the vns before I make my choice. Can anyone please help me I would truly appreciate from the bottom of my heart please.
what drugs were you taking before the surgery and how much dose per day?!
I was taking 3000 mg's of AED's prior to surgery. 1500 Keppra and 1500 Depakote. It was 3 horse pills first thing in the morning every day, and then 3 again before bed.
+Bryan Baker but depakote is like valproic acid(depakin)?!
Yes and it didn't feel too great I can tell you that. The Depakote made my mind very foggy and tired all the time. The symptoms of the medication were a huge drive for me to choose VNS. They also played a big role in making me drop my college classes, and really had a bad impact on my mood.
i wanna take vns too but i'm scared about what I've read on internet about all the mysterious deaths for the heart stopping to beat after the pacemaker was set on.what do you think about it?!
I have heard of cardiovascular issues like this but not as prominently with vns as with actual pacemakers. While I don't know much about the deaths that you are referencing I will say that it is important to cultivate a healthy heart with exercise and nutrition. The stimulation surely has a slight effect on my heart rate during exercise when it goes off, but this is the reason why I hold a healthy lifestyle in such esteem. I wouldn't recommend VNS for somebody who has any sort of pre-existing heart condition they are already worried about