Man what an awesome father. A lot of us don't have family support let alone a father that cares so much. I'm sure you guys are aware but sadly most cases go undiagnosed with people ending up in the streets.
True. Not a lot of families understand mental illness. My family since my sister and In were both single and not married treated me like my sick sister. They just didn't want to be involved leaving it to me.
A very supportive dad,which every child needs.This looking at any possible causes,such as being in some cold water,a ball hitting you on the side of the head,is totally fanciful.They surely know this,from interaction with the psychiatrist.This soul searching maybe gives some comfort,but to me seems non-sensical.
Drugs deffo don’t work it side effects are shocking it’s all a money making thing the amount of money these ppl doctors think they know everything what works for one patient deffo won’t work for the next
I so respect this family for sharing their story. And thankyou to Steven’s parents for being devoted to his health, and not shutting him away from family life during this terrifying and difficult experience. Maximum respect to you all, especially Steven Junior for sharing your journey.
It’s amazing that you’re in a family with a calm and supportive dad. I love how he respects you so greatly and is obviously allowing you to be a man. God bless you all.
Besides high functioning autism, I also have schizophrenia. I didn't know I had schytz til I was an adult. My mom, who's in heaven, also had schizophrenia as well. You're not alone, bud. God's with you :)
there is a high correlation with gut mirobiome issues with both , as well as gluten. Both also have high ( 20-30% ) of patients incorrectly diagnosed with one or the other, where it turns out their symptoms were all actually a gluten related disorder. A blood test, and/or elimination diet can help see if you are part of that high group of people whose symptoms reduce or go away.
I care for my adult son (48) in Britain and am so grateful to you for this video. My son came off his meds 4 years ago and I can see the symptoms returning. Your video has helped enormously in that I realize it is time for me to take action again. Best wishes to you all. You are a lovely family and Stephen, carry on with what you're doing because it is really good. Well done.
What kind of symptoms if I may ask? If I remember it shouldn't take 4 years for "symptoms" to "come back" because there are always symptoms: when the individual is in the prodromal phase I believe, they experience residual symptoms, the "positive" symptoms of schizophrenia (in this case, "positive" does not mean "good", but rather, refers to a class of symptoms) I ask because I was unruly diagnosed and from the stories I've seen, it doesn't seem like I have it. (stupidly enough not thinking you have it is a symptom in itself, which is the stupidest thing I've encountered. How is someone to get a differential???)
Ms. Elizabeth, I wish you the best for you and your son. We all wish it will go away without meds. Unfortunately, we have to take our meds so we can somehow live a normal life. Please, tell your son he has to take his meds!!! Lots of love from Istanbul.
@@ashleyriblet2326 hi hope you are doing well my brother had undiagnosed schizophrenia for 4 years he was living away from us and we didnt know when he dropped out of unviversity and started doing nonsense stuff.. So my parents took him home he was absoultely a nightmare to deal with but somehow we conviced him to take meds now he is taking meds regularly his symptoms has decreased but he is still not normal he just sleeps and watches video games and movies all day will he recover please reply
Hi to both of you. My husband who is 60 had onset of schizophrenia at 18. He too was a very good and involved student, learning physical education in wrestling. But one thing struck me on listening about the hypothermia you had Stephen. My husband at one point ran away in winter and would sleep outside then go to his high school and experience feeling as if in an oven and this seemed to have occurred at onset of schizophrenia. The extreme cold and extreme heat. Also, schizophrenia ran in his family, so genetics also. You are brave Stephen and im glad you have such a supportive dad and good care as a patient. Clozapine was also my husband's saving grace as far as positive symptoms. Thank you Stephen for your videos!
Stephen I hope u continue to have a wonderful life keep taking ur medication never ever give up u can do this positivity keep going to ur physc doctor and write a journal
Yes. And in our lifetime, people will realize this as spiritual gifts. You see? Feel? Hear? Multiple timelines at once. It can be exhausting… know that there is nothing wrong with you. You are actually more advanced than the rest of us and given a lot to swim through. JUST KERP SWIMMING.
Wow. I was diagnosed with schizophrenia at 19, and I lived in hell for years. That was as an adult. To have had that as a child would've been beyond insanity, and I can't imagine not to have been broken beyond repair. I'm amazed just hearing this story. Wow. Good for you. You have great parents. Support is so essential to recovery. They're your pillars. Good for you Stephen, in coming back from that nightmare.
God bless you just believe Jesus says anything is possible for the one who believes I couldn't even function all I had to do was believe and put my Faith in trust in him and he helped me
I'm not a doctor , but I have had my battle and found out gluten was destroying my brain . Gluten on some people causes a wide range of mental illness , and I have found out that a lack of vitamin B1 also can effect the brain. For me I had to stop bread and pasta . Wheat crackers that I thought was healthy impaired me so much .
Your father and mother are amazing. They did nothing wrong and everything right to help bring you back to reality. I want you all to keep doing what you are doing, bringing understanding and compassion to people who have to live with and manage psychotic illness.
I discovered that a loooot of times, my "thoughts" was not mine, I mean...I was able to hear/feel the thoughts from other people's mind. So... I had to learn how to CLOSE my own mind/channel/brain to not feel/hear intrusive thoughts. Hyper Sensitive people don't know about this at the beginning so, we look for answers in the common field of sciences (psychologists, Psiquiatrics, etc). I started getting better from 2012 to 2020, because I new different scientists with new waves of knowledge, quantum physics, neurosciences, holistic psychologists, etc.
I'm so glad I happened upon your videos! My brother's twin sons apparently had early/childhood onset schizophrenia. This was back in the 1960's and it was a very challenging time for the kids and my vrother and his wife. I felt so sorry for the whole family. It took years and years to find some kind of therapy that could restore some semblance of a "normal" life. Then there were multiple episodes of either or both boys deciding to quit their meds and the whole rollercoaster commenced all over again. They would get arrested, once 9that I'm aware of) they beat the crap out of my brother because they were convinced he was the reason they were so unusual. They had an older sister who somehow managed to have a regular life for a teenaged girl. Oh, btw, the boys evidenced their condition at 13 years of age. As twins, they baffled and fascinated the neuropsychiatric community. So, they received a lot of different treatment modalities but they also became "lab rats" because at that time schizophrenia in twins was extremely rare. Long story short here, they finally managed to find some medication and supportive therapy that allowed them to have a decent young adulthood. Until one of them was killed immediately when a pickup truck hit him alongside a rural road one morning while he was jogging. They were around 25 at the time. While tragic and so sad, it was also wierd because the surviving twin started behaving and even looking like his now deceased brother. He grew a bierd, starting dressing more like he did. . . Well, now the one of the twins is living on his own, has a long term girlfriend and a full time job. He still doesn't do well when the whole family gets together for the holidays but he can sit at a big table for dinner, etc. But then he discreetly disappears to a bedroom to just be by himself. He s a very intelligent and interesting man; gentle and thoughtful and finally seems to have found some peace ithis life. What a whirlwind it all was, though. This felt so good to just get the story out. Thank you both so much for your candor and openness.
Thank you Anna-Lisa for your incredible comment. I appreciate you sharing your story. Thank you for your encouragement and support. It means a lot to me. Thank you for being here.
Thank, you Stephen--and your /dad, of course. I sure hope continued research can pin down the origins of this phenomenon soon. There are still too many wonderful, bright lights in our human family who are tormented by it all. Again, thank you for providing a place for other schizophrenics and those who love them to sort a lot out snd not feel so alone.
My daughter was diagnosed at a young age with Schizophrenia. I had a very hard labor with her and sometimes I think that caused it. Also, we had a few family members with the same illness. So it definitely is a genetic disorder. Your lucky to have very supportive parents
I'm glad your parents are so supportive Stephen, and that you've found the right combination of medications. I work in residential care, and supervise the home. I work with individuals with schizophrenia, bipolar disorder, ADHD, PTSD, major depressive disorder, anxiety, etc. Most of the residents symptoms are extremely debilitating. I am saddened because one of the residents is currently not stable, and has been in a state of psychosis for the last 2 months. I hope that they find this person the right combination of medications. I think that the hospital released the resident too early. The person currently thinks that there are a group of people out to kill them. I couldn't imagine going through that every day! Your channel is very informative. My mom was diagnosed with schizophrenia when I was young. I didn't know much about it then. I remember some of her odd behaviors when she was in a state of psychosis. She's probably part of the reason that I got a job in mental health care. Anyway, you and your family have a wonderful day! 😊
It's hard when a parent is exhibiting odd behavior when there is no name or explanation for it and moreover a person gives the impression of being normal outside the home. I discovered by gradually putting pieces together years after a living hell with my mother that she was not only narcissist but paranoid. I carried around an inordinate sense of guilt simply by being around her and blamed for things I didn't do. Later on, when she finally got everything she wanted in life mainly by swindling and using out others, she accused her live-in lover of hiding guns in the attic (also accused my adult son of stealing jewelery several years before). If she did not progress to outright psychosis towards the end of her life, no one would have believed me about the abuse I suffered from her. I had no idea what normal was, so proceeded into marrying a person who also seemed to be functional in the sense he was able to work but would suddenly blurt out provocative and even outlandish things. He was impulsive (he was never able to drive on account of this) and used to enjoy taking risks (that may have given him a dopamine high). His behavior and cognition took a dive after his stroke of 2013. Finally, an MRI in December 2019 revealed he had and OLD temporal lobe injury. This corroborated MY OWN diagnosis when reading about FTD, or Frontal Temporal lobe Dementia two years before and after joining a support group. Indeed, my mother and husband were able to pass back and forth between normalcy and otherwise dysfunctional behavior.
Hi my name is linda my adult child thinks people are wearing mask sometimes he punches me an calls me names i liv in dallas county his diagnosis as paranoid schizophrenia he refused meds at home but wen he in the hospital he takes meds ..;he was prescribed olanzanpine 20 mg and he keep saying he want go to vatican and rome and gets mad wen i cabt get him there i wish i could find a residential care center for him in dallas
Prodrome, not "predrome". I have that word tattoed on my thigh because I went through a really severe panic disorder (derealization, depersonalization) and was terrified/convinced I was in the prodrome. Approximately 7 years later I've been diagnosed with bipolar, and have now experienced some significant psychotic features. It was my biggest fear in life, and I've overcome it. Stephen, thank you for making these. We NEED to talk about this shit. It's no joke. People who are lucky enough to be healthy need to lift us up as opposed to making it worse. I wish everyone had to experience mental illness just to have an idea of the hell it can be, and the strength it takes to come out alive. Opinions would shift QUICKLY
Your story has touched my heart and gave me more hope than I can ever express. My so is 19 but we finally got a diagnosis 8 weeks ago. It's been a dark horrible journey that has just begun. As a mom I want to help my son and it feels helpless but your channel has brought me understanding and hope for the future.
My journey started at 16 started with IBS then depression/anxiety till this day. Almost ten years. Walked in the psychiatric ward at 20, diagnosed with schizophrenia/schizoaffective/major depression in that year. I am lucky to finish highschool and two years of college before finally dropped out. I went to therapy for two years after the week of hospitalization. I have the psychiatrist and the right combination of medicine just to function daily chores in my parents home. Still struggling with suicide thoughts and illusion if things got serious. I write poetries and am currently working on a novel. Thank you Stephen and Stephen's dad sharing for your story. These things are so precious. (I recalled having similar possible head injuries at 13 and 17, maybe caused my seizure) I still believed in God. My family and my pastors support me a lot. God bless you🙏🙏
Hi Stephen & Stev I thank you for being so candid. My son started with schizophrenia at the age of 18, the early symptoms were he starred to isolated himself, we as a family were clueless. Elliott's Sister separated from her husband, it upset us all but he took it very hard as it affected his relationship with his nice & nephew. Then a few months after that he developed epilepsy & schycosis that was back in 2010. It took us until 2018 to get a diagnosis he started on clozapin it was as if someone turned a light switch on, we could see an improvement on a weekly basis, unfortunately we didn't get to see the full impact of the treatment because he passed away only a few months later, nothing to do with the diagnosis. I was a freak reaction to one of his otherr meds. While he was sleeping he suffered a gastric hemorrhage, they didn't get to him on time. Stephen, you are so lucky to have such a supportive family. I find myself thinking of all those people living on the streets without anyone to back them, and my heart bleeds. I will pray for you all to stay close and strong All my love Sue Mac
Thank you for sharing your story! It is inspiring. I have a 20 year old son who was diagnosed with schizophrenia back in 2019. It has been devastating to our family, but we are learning to move forward and have faith. Acceptance is very important and your videos help so much! Thank you again!
Back in the 1980's I began to have severe, terribly disabling panic attacks. They came on after a long period of extreme stress when I was caring for my husband who then died. I wasn't on any drugs or anything other than the exhausting level of stress I had been under. I appreciate you and your father doing these videos to help educate us.
@barbh1 the kind of stress a caretaker can experience (especially if they are under attack) can cause extreme biochemical changes resulting in out of range mineral levels and ratios to other minerals. This was documented through repeated hair tissue analysis in my case. This biochemical alteration alone affects mental perspective, distortion and responses without question. PS hair tissue analysis is not a modality utilized by mainstream medicine however it has been invaluable in providing answers they couldn’t! Blessings
@@barbh1 many cases of mineral imbalances/deficiencies are MISDIAGNOSED as “mental” disorders. It’s something mainstream docs aren’t allowed to acknowledge as they are only exposed to a few hours of nutritional information. Even a good auto mechanic knows what fuel is required for optimal performance of his “patient”. May God bless you richly for your service to others at great cost to yourself 🙏
I went thru something similar when I was taking care of my mother in law. Whenever, the phone would ring in the night or early morning hours, my heart would race and I couldn't breathe. Try telling this to my husband but he wouldn't listen. Would just complain as if I wasn't doing enough. Due to visiting the ER so often, I got my lungs lining inflamed. Developed pneumonia two times. Got bronchitis a few nights. It's like my body couldn't handle it anymore. This is taking care of a woman I didn't like. One day I just had to say enough and told my husband he would have to take care of her. I was done. The stress of caring for someone can lead to illness. Hope you are doing well now.
Yes, thank you, I'm doing well now. I think it weakened my system because I contracted Chronic Fatigue Syndrome. I"ve learned I have a certain amount of energy and can't use up too much or I'll get a flare, but I'm used to it now, and it's okay.
As a mental health nurse, i commend you both. What a brilliant video, its both informative and gives people insite into what its really like living with this. Youre both beautiful peoplem i even learned from this. Much love from england xx
I’m a school nurse and any type of TBI concerns me. Early treatment for concussions is necessary and so many times my students/parents just brush off these injuries. I’m so sorry you are experiencing so much in your young years. You’re a fine young man with great parents. I’m praying for you now.
@@ST-yc7ujIn my experience there is no treatment, but the person needs to be kept under observation in case they suffer delayed effects such as coma, etc. Once when I was a teenager I was taken to hospital and had to lie in bed for hours with a nurse coming to take my pulse, temperature, etc every ten minutes. When I got home I became very ill; turned out I had caught a nasty virus from the nurse!
So many people have this disease and are unable to get the help they need. So glad you did, and maybe getting it at a younger age they had some time to figure out what was going on. These videos will help others with this illness. ❤
What do you think about idea that schizophrenia and most of the mental illnesses are form of possession by parasitic entities that we cannot perceive with out 4-5 dimensional thinking and observations? Like higher dimensional parasitism that feed on hosts energy.
I’m so glad you didn’t go to residential care in Utah. Staying with people who love you is profound medicine. This will be devastating to parents who love you. Such periods of stress, uncertainty, anxiety & certainly fear. And loneliness, undoubtedly. I was thinking, “I wonder if Montessori would be a helpful option for Stephen” (as a young child) & right then dad mentions that you did do some Montessori. I think Montessori would’ve been good for me but there was none where I grew up in Appalachia. Sounds like you have access to excellent resources for healthcare. Thanks for a great video. 👍🇺🇸✅
Thank you for sharing this video. I’m on a journey to learn more about schizophrenia. We have a close friend that suffers with it. Grew up with him and it manifested in his late 20’s. He has basically lived two lives. One of health, marriage and a college degree, successful career. But then of psychosis, hospitalization and recovery. It’s very hard for family and friends to know what to do. Anything that is shared is valuable because we just want to love and help them. I wish there was more study into this condition but watching this video helps in understanding another journey. What worked for you. Wishing you the best.
I am so proud of you Stephen. My entire family was and is in mental illness. I had and I came out of it, by being alone for 13 years doing mediation, eating vegan food, working out and work on my buiness. sending you so much love and hugs. You are a brave soul. Keep giving us knowledge, it helps us to deal with our family. ❤
It's so nice to see how a persons can live a happy productive life when the family is present. Steve videos are amazing! My sister in law has schizophrenia, these videos are helping me a lot to understand how she might feel. You're doing an amazing job with your videos by helping about a subject that can be hard to understand. You are making a big difference in people's lives!
My son was diagnosed 30 years ago. It took over a decade and I finally found a doctor that suggested genetic testing. My son has Chromosome 22 Deletion. Testing specifically identified medications that would work with no side effects.
Hi my son also has this its also known as de George syndrome and had a diagnosis of schizophrenia in early 2022 after suffering from delusions voices and disturbing visions its under control now and long may that last sending my regards from the UK
Hey can you please let me know what medication did you give him. How is he doing today. I have similar problem but never went for gene testing. Thank you any response will be appreciated. Thanks again. I am a mother facing same situation.
@tinaghengis6497 hi my son takes 15mg of aripiprazole since he was diagnosed with schizophrenia after a few hit and misses with a few other drugs he is doing amazing now and no more voices or visions he doesn't have a mental health issue at all the psychiatrist has said he actually can't guarantee that the drug he is still taking is keeping his issues at bay or it could have been a one off incident that may have righted itself anyway 😕 I hope that helps
My adult son was diagnosed with autism at 3 yrs old and also deals with misophonia and synesthesia, so sensory overload happens pretty quickly for him. I grew in grace towards others so much faster because of his struggles for, as you said, I realized that a person can appear perfectly normal on the outside and not be. You just don't know what people are dealing with behind closed doors.
Hi dear Stephen! Just have on my heart to tell you that I had sleep paralysis and some other problems that almost took me to hospital. Maybe you are not religious and thats good, because I was and it didn't help. But when I found out about Jesus Christ i found that religious people hated Him and that He sad things that nobody sad in whole history. I start to read New Testament and I tell you now that He is answer for every need for all of us. His Word is alive as He is! I bless you and your family in Jesus name!
My son (grandson I'm raising ) has been diagnosed with very early onset childhood schizophrenia. He was unofficially diagnosed at age 5. The official diagnosis then was childhood psychosis with a feeding disorder. He at age 8 was officially diagnosed with schizophrenia, anxiety and a feeding disorder. He had to have a feeding tube placed a little over 2 years ago. Your story has given me hope that maybe he doesn't have to be in a placement. How did you get all that in home care? I have no help. I'm raising 2 grandchildren and my daughter just died so a 3rd arrived. To get any more evaluations I have to travel 4 and 5 hours one way. Having in home help would be awesome.
May God Bless you. Those grandchildren are so blessed to have you to step in and love and care for them. What a difficult walk you have. I am a Christian. If you feel inclined, please contact me for prayer for your family. 🙏🏻
19:05 Im diagnosed with schitotypal PD. My mother always says "you are normal and you look good, why do you go to a psychotherapist" she can't handle it... I think she feels kind of guilty... You have a great dad.. you're a good team. Wish you al the best
Invisible chronic illness is the same way. I look so healthy, but I am unwell, chronically ill and cannot work. People discount my condition when they find out I am ill.
Most common connection is CTE (chronic traumatic encephalopathy) which can occur from head trauma. I’m an HHP taking on the medical system over huge errors in my fiancé’s ALS which came from a car accident. Don’t let the corrupt med system steer you wrong. All med dx have CAUSES and often symptoms are misnamed. I have someone in my family with your dx and it was caused by the hospital NICU at birth.
I know what you all going through! My Grandson has it. I felt the same way about putting him in a home. We didn’t and he’s doing better now. My grandson was young also. They said for years he was Autistic. But he won’t take meds. He always have headaches and shoulder pain. It is hard people don’t understand. Thank-you Stephen for doing these videos! It is a dark time for all going through it!
My fraternal twin became ill with schizophrenia at 12 as well. Scary stuff. That was 20 years ago. She’s better now, unfortunately we didn’t have overly supportive parents that encouraged her to do “more”. She was hospitalized quite a bit which is also traumatizing for kids. She doesn’t drive much and still lives on SSI. I recently was diagnosed ptsd, very borderline traits combined w psychosis. So 20 yrs later I finally understand her symptoms, altho I am grateful they weren't as long term as hers. She and I both had god related “delusions”. She however had hallucinations and voices as well
I was first ill when I was 16, I had my drink spiked with a drug, probably Amphetamine. I recovered from psychosis but from that point onwards when ever I drank alcohol I wouldn't remember what happened, but instead would believe my thoughts as memories. Stress caused me to become psychotic few times during my life. Now at 49, I have finally given up alcohol 2 and a half years. Giving up alcohol has only helped only slightly. I have been on Zyprexa 26 years, which I know is a long time, during that time I tried to come off it once, a month later was in hospital. I can say I'm not what you would call happy with my life, but I am content. It's not over yet. Just thought I'd say sleep is the key to being well.
True, you never know what is going on in a person’s head. You cannot see it. but we can talk about it. So thank you again Steve and father, you are both helping and quite amazing.
My Son was 14yrs old was diagnosed at 15yrs old he's now 37 and still going in and out of hospital we still support him, he does live in supported accommodation , but it's the hardest Illness, if u break your arm you can see it but not the same for mental illness, so good to see this for us my boys taking the same meds, we didn't choose this life for him or us but we're doing the same, me and my husband support him and always will wasn't the life we wanted for him but we must go on we love him dearly, and also we don't really now how it happened take care and all the best ❤
You have remarkable courage to present your illness with such candour. I hope you are able to manage your condition and you are doing well. You have a wonderful, supportive father. Good luck to both of you.
This young man is doing great despite all the challenges that he has been dealt with!! Good luck with everything and may you be successful in all your endeavours!! Never give up on believing in yourself ❤
i cant lie, this is really hard to watch as someone who has struggled with a more extreme version of the same thing but without the support system or caring doctors around. It makes me wonder what my life could have been if someone had just believed me early on.
Thank you so much for sharing your experiences - my sister is Schizophrenic and so was my Dad though he remained undiagnosed until late in adulthood. You're both amazing - wishing you all the best.
Great parents bring up great kids … Steven is proof! What an intelligent, empathic, and kind person. And what a journey you all have had since the early onset of his disease. It must have been absolutely heartbreaking to see the changes and not know what was going on. I just found your channel but Steven looks like he is handling it well now. I know psychosis can come but he has such insight I think he would have more clues now. I pray that you all will find peace and comfort and healing from the trauma you have been through. ❤️🇨🇦🙏🙏🙏
Thank you for sharing your experiences. My cousin has schizophrenia, he has a different history than yours. I find comfort in hearing other people stories.
Stephen, you have taken wonderful care of Steve and you continue to do so. None of this is your fault. Nor is it Steve's fault. Please ease up on yourself. This is a marathon, not a sprint.
Stephen, you have such a great dad. No matter our circumstances, I believe that is one of the great best starts in life. Thank you and your family for your openness, sharing your story, vulnerability and all. 🇦🇺
I believe my schizophrenia or hearing voices. Is by being a targeted individual. And what I mean by that is if you are targeted by a bully. You then get into a paranoid state of mind. You always think people are talking about you. Then you listen in to conversations and think they are talking about you. Some of its a coincidence but some of it is definitely being targeted. That's from my experience anyway. I would definitely like to know the cause to schizophrenia aswell.
I would rather argue that schizophrenia and its counterparts are simply a product of an imbalanced psyche, which is basically when your ego or identity don't match up with who you really are deep down. This is why when people get schizophrenia from trauma, it is far more the trauma that is not allowing them to be who they once were, and schizophrenia is simply the minds way of trying to equalise that unbalance in the mind (using so much dopamine that you begin to hear voices, hallucinate and become paranoid). As to why our brains do this in the first place is still very unknown, although I feel that these aren't to different from dreams and nightmares just now experienced when awake as well as asleep. I've had many dreams where I thought people were plotting against me, or seen spiders and scary people. Although you don't hear voices in dreams, I feel that voices are simply a way for your mind to control you and keep you in your state of psychosis. Either way, I feel that the clues if you never went through serious trauma would be to look at who you wanted to be, or believed yourself to be. Maybe this was someone popular, with good grades or someone who was nicer and more outgoing, the solution should lie within your ego. As the ego is what causes mental illness in of itself.
People please do some entity release session, it's done through hypnosis. People like Laura Whitworth can help, there are others too. In case someone needs, please look up Anthony Mowery, Calogero Grifasi and people like them. They might help you with your issues.
Oh no, serious headaches. I'm so sorry, but this doesn't sound like schizophrenia. I know people who were diagnosed with schizophrenia and bipolar disorder. Not one of them had serious headaches. It isn't even a DSM symptom. I wonder if it's a neurological problem that hasn't been identified. Have you seen the movie 'Brain on Fire'? Susannah Cahalan was misdiagnosed with some psychotic disorder when what she really had was encephalitis. I'm not suggesting that's what you have. But like you, she would have been misdiagnosed with a psychotic disorder and never gotten the treatment that she needed. She's now fully recovered. I truly hope that for you as well. To find a better-informed neurologist who could correctly identify what it is that you have or had.
Ok Ryan the most important thing you need to tell yourself and believe (that I’m sure your therapist has already told you) you need to know this condition does not define you period! It is merely something you have it’s not who you are IT’s a stepping stone and a challenge in your life that you are doing great at! Always and never stop taking your medicine no matter how great or how bad you feel talk with your doc if you are feeling worse! I am so sorry for your struggles but Remember everyone has struggles and if you look around you will definitely start feeling blessed with yours! Ok enough of me being a mother and on to me being a medical professional lol. Ok in regards about why this could have started: two things you had mentioned that stuck out in my head that y’all thought were not a biggy are even most of your providers do not catch for some reason because it’s simple medicine! The fact that you had a 103 temp as an infant could have been the first issue of attack to the brain, but being so young and an infant more than likely this did not affect you but it is always possible! The second is when you were his in the head with a ball hard enough to knock glasses off, this is significant now just not at the time. Note you cannot know or judge how hard certain hits are to the head and how they affect the brain. A hit no matter how small depending on inertia.. whatever causes your brain to jolt back in forth into your skull and hit the skull. You don’t have to be a football player nor be in a crazy accident to have this happen. So , never assume anything no matter how small the event and we are not all built the same. Now my last thing is I’m not saying it has happened to you but you, but people can experience a traumatic event and have amnesia and their brain will react in wild and strong ways to cope. Then later in life they may remember said traumatic event when their brain feels it is ready for them to cope with the event. Our brain is a mystery and I believe will always continue to be. I suggest if you and your family aren’t already please do find God and follow the Bible and pray and this will help you more than things on this earth because this place is just brief and praying you will have peace in paradise with the lord that is the only this that is for sure an answer! This is coming from a beloved mother of three teenagers, wife, and one that has devoted my life to majority of my life to studying medicine and has struggled years of my own physical and mental health. Take care ❤will be praying for you all.
It was very interesting hearing this part of your story, Stephen. Thanks so much for sharing. The two things that struck me was hearing about your hypothermia, but also the headaches. I'll keep watching your videos to continue learning. I trust you're keeping well. 💝
I do not have this illness, a few close people do. I want to thank you so much for sharing your survival with it. I also think it's awesome your dad is included in some videos get to see it from both views, one who has it and the parent.
Life is hard without a disability. Can’t even imagine having to be that strong. I’m glad u are sharing. People need to open up if they can, so others know that aren’t alone and learn knowledge & skills from each other. I was blessed with awesome parents too. Feel for those who are not so blessed as us🌸
What am amazing Father and Son relationship. Fantastic to see parents and son trying to find solutions to his illness. I'm sure you have investigated whether your son got a brain infection from a normal virus/cold? I have read about a situation where a normal virus infects the brain and causes all the symptoms that you son had as a child. The brain infection was treated with specific antibiotics and the person returned to normal after his brain infection was cleared. Just mentioning, just in case you want to look into this. Kind regards to you and your family
I have schizoaffective disorder. I`ve had strange issues all my life that got worse and worse. I went from playing and singing in bands and solo to a paranoid recluse. I`m afraid to go to my mailbox and if I see anyone I go back inside fast.
I am really glad you are doing this. There are many misconceptions about schizophrenia. It is also something people don't talk about. Great information.
In 2012 I had a major psychotic episode that lasted for half a year it was the worst thing that had ever happened to me in my life. I didn't realize before that something so horrific can happen to someone. The videos by Jiddu Krishnamurti talking to theoretical physicist Dr. David Bohm saved me through that rough time and they saved my life.
Wow thank you for this. My son had his first episode at 12 and we are still going thu it. We are in year 3 now. Your words are so encouraging. I wish we could talk with you. ❤Thank you for letting me know I’m not alone. I love my son and we want to do everything possible for him.
Look into fat soluble B1. Significant research indicates abnormalities, anxiety, nightmares, sleep patterns are affected by a lack or low reading. Higher doses than RDA are recommended. Benfotamine in liquid form can have results in a short amount of time. I know someone who had normal blood work, but upon ingesting felt an immediate change. Good luck
I think it's really cool you have such a supportive father who is a part of your video content, too. Seriously, family is what matters the most at the end of the day.
Schizoeffective here (lay man's terms for those who don't know: I have symptoms of schizophrenia with depression and anxiety. I am also dx with psychotic tendencies.) Abilify was a joke. It didn't do anything! I'm going to try Vraylar soon. I'm sick of being in a psychosis. Oh yeah, I've been seeking mental help since 11 years old so it's just a part of me as much as my traumatic brain injury and physical disabilities. I'm so amazed your schools did so much for you! I was denied an iep when I could barely walk. I'm partially paralyzed on my left side. I was in a car accident and had a stroke at 16 years old. I'm lucky to be walking. Invisible disabilities suck.
I feel and understand how confusing and difficult all this can be because of what we have been through. Isolation. Frustration. Lack of activity or interest. Can’t sleep. Three months of not communicating and not coming out of the room. Not showering or cleaning. Hoarding the rooms upstairs. Started @21 for ours
I pray your channel flourishes. My son started to smoke prescribed marijuana to help with sleep problems I think. He lived with his brother. I know he stopped in to mental health places a couple times so he knew something was wrong but he didn't get help for years. I think it was in his DNA. I know my son well and I know he likes money so I offered him 1000 to take an injection when I finally realized he was needing one. It worked. Unfortunately if he decides not to do it anymore there's nothing I can do. He has no insight. His older brother is in denial. That has been a challenge in itself. I thank God every day. It's been over a year now of him continuing to take the injection. I've told him that I'll pay him 1000 for every year. There should be an easier way of dealing with this. It took a lot to finally get him put into a hospital to begin with. I eventually had one of the police officers in the mental health car unit take him and sit for hours with him in Emergency and admit him into the Psychiatric ward. He ended up leaving the city for 6 months after that. He's an adult so there's nothing you can do.
My second born was diagnosed with cannabis induced psychosis in late 2016. He went from being a normal young man to completely out of touch with reality, believing we all were after him and that others were conspiring against him. He ended up being hospitalized, and eventually got better after years of struggling with him to stay on the medication, and stay away from marijuana. In 2019 my third born son was also diagnosed with cannabis induced psychosis, and also was extremely uncooperative with taking his medicine. Its been hellish, dealing with the two of them who wont listen no matter what I say. It doesn't help matters that I divorced in 2020, and their degenerate father who was never there for the boys just left the country and hasn't contacted them since. I think your idea about the money is great. I once paid my eldest money to take ear stretchers out of his ears, and he took the deal. As a mother, I felt I could only do so much, because my ex was always trying to diminish my authority with my sons, who have like him never treated me with respect. Today, my second eldest is in the hospital as I type this. I kicked him out of the house in a last ditch effort to force him to hit 'rock bottom' and finally get control of his life. He has been smoking weed in ridiculous amounts behind my back, went off his medication, cant hold down a job, is heavily involved in porn, vaping, and other things which are destructive to his mental health. He ended up totaling his car, quitting his job, and being brought to the hospital by the police. I still don't know what all happened for them to bring him there. He finally, finally agreed to get help and to NOT LIE about his symptoms so that they would keep him overnight and therefore possibly longer so that he could become stabilized with meds in the hospital. I am currently trying to deescalate conversations through text with him because he is extremely argumentative and will not accept certain facts as reality. He is trying to tell me that later when he is released that all of his addictions are 'part of him' and therefore for me to just accept his behavior when he gets home again. No. I am just so worn out with struggling with these two who will not listen to anything I say, and I curse their father for never being a real dad to them. I feel like so many of my sons issues could have been avoided had I married a good man with a heart. The one good thing is that the hospital has set my son up with counseling and I have made it a condition of him coming home, so he has begrudgingly agreed to go. Best of luck with your son. It is so hard as a parent to watch this happen to them, and heartbreaking for them to not understand they have to stay on the medicine.
My daughter was diagnosed in her early 20's. We found out that it ran in her father's side of the family..No shade there, there are probably diagnoses on my side of the family (I do know and have suffered with depression and anxiety as well as other family members). I would like to intoduce my daughter to your channel because i believe she feels cut off from society and I think it would benefit her to watch your channel. I know this video was done a year ago. But I see a lot of newer ones too. Thank you
There are a lot of creators who have really been great about showing us what their lives are like, especially due to spectrum disorders, such as autism and schizophrenia. I've learned a great deal because of their courage.
Thank you both for sharing your story with us. I found it very helpful. You are blessed to have such wonderful support from UCLA and their departments. Tha
Thank you for your bravery and candidness.3 of my siblings have been diagnosed with SZ. One is still on medication, the other two believe religion will cure them.
Two of my friends have sz, and they do follow their treatment plans because they are religious. The Catholic Faith teaches us to love our neighbours so it’s not all about how one person feels. My friends need exercise and a calm environment but they are wonderful parents and friends. SZ is a very difficult illness and I’m so glad my friends get the help and consolations and guidance of God, priests and Christian family and friends.❤
My mother and sister had schizophrenia and eventually took their own lives. I have tried to understand this condition my entire life. I had the mistaken impression the disorder is always genetic, a toss of the dice. I had no idea there were other reasons. I will continue to research it the rest of my life; I will never have peace. The info out there is confusing. Thank you for coming forward to explain your journey.
Sorry to hear about your loss I have it and its horrible :( I can understand why she chose to do that I don't know how much longer I can hold on myself
Hi pal, I am trying to understand it all myself, it seems there are many disorders/infection, disease states and psychological occurances that can manifest into Schitzophrenia, I am researching a lot a would love to work together on an understanding if you want?
My best friend whom I grew up with was the most normal average guy out there. We were best friends. Played sports in leagues together, we ate at lunch together, hung out once or twice a week for play dates, all that. It wasn’t until he was 29 that he got diagnosed with schizo. Ever since then he’s been isolated and hasn’t been the same. I see him once a year for new years and it’s really sad now.
I am really confused. Both my mothers brother, and my paternal grandfather were schizophrenic. I thought I understood it, but everything you are showing/sharing. Makes me question everything.
Hi Stephen, recently there’s been research into the connection of the microbiome and schizophrenia. Maybe you’ll find it interesting and useful. Best of luck to you in your journey. Thank you for sharing your experiences. I’ll certainly follow your story. Thank you for sharing!
I was thinking along the same lines. Either microbes in the gut become out of whack or maybe there's an insect (mosquito) that transmits an undetectable virus or microorganism and the symptoms are masked as the flu or a migraine. But its the headaches that make me think its something attacking the brain. This is just a hunch, I've only read a few research articles about it and had a friend that suffered from it.
I have a cousin with schizophrenia and he constantly eats terrible food and food that he's allergic to. He has these horrible bathroom visits after meals and even though everyone else has made the connection, he refuses to introspect and actually gets mad if this connection is mentioned, becomes defensive, and eats even more food that makes him sick.
There is one report of an older woman who was put onto a strict gluten free diet for some other reason and she was suddenly completely recovered from this after suffering her whole life until then. They haven’t been able to replicate her recovery but that doesn’t mean it couldn’t be from some other gut/nutritional issue. The gut/brain connection is strong. It could even be an undetected parasite that enters the blood and gets into the brain somehow.
In the course if my work, I have come in contact with many people who have been diagnosed with schizophrenia. They are some of the smartest, nicest people I have met.
While they on meds that are working but when it is not its a whole different story. Especially if they see you as an enemy without just cause. Don't under estimate the damage mental illness causes. Nothing to be taken lightly.
Thank you so much for sharing your journey!! Helping us to understand your world is so important! I’m a healthcare provider that has worked with those with schizophrenia and they are just lovely people!
Hi Stephen, listening to your story, especially about the scout camp and "hypothermia symptoms" did you check for Neuro Lyme? You mentioned going to a camp (tick environment) then lyme gives flu like symptoms, headaches and hallucinations. The anxiety and high sensory issues also sound like PANS/PANDAS (PANS is often triggered by lyme mold). Did you do IGenex for lyme plus co infections? Bartonella (psychiatric syptoms) and Strep antibody levels? Also not responding to dopamine blocker but responding to Clozapine tells an immune story (PANS/Lyme). Did you try IVIG or Plasma Exchange? Hope this helps. It isn't too late!
First of all, I want praise ,father and son (Stephen) in their presentations of the diagnosis, experiences and symptoms of schizophrenia. You guys are truly wonderful in helping people unfamiliar, and familiar with the experiences that come with schizophrenia. Thank You both,❤
My friend’s teenage brother contracted schizophrenia following a viral illness and has since been in a secure mental health facility for 30 years. Tragic. Prayers. 🙏
Wow you guys are so brave.. thank you so much for sharing this. I can relate to a black hole period.. I suffered years of depression and then as an adult watched my son get swept under by it and lost him to suicide. Grief is indeed hard. I agree we don’t always realize we are ill, or how ill we are, until we get treatment and feel better.
😢Julia l can also relate, and like you we lost our son to suicide, and the other is in and out of psychiatric hospitals. This causes unrelenting depression on the family. May God keep blessing you Stephen and family. You are such an inspiration 🙏🙏🙏
My husband has bipolar schizoaffective disorder and it hit him at 21 ish. What I understand about these types of mental illness is that it tends to show up in late teens early 20's regardless of trauma, drug use, or not. It could just be genetic disposition or something else.
What a wonderful example of a Father and Son relationship, Dad i am sure it goes without saying, But you Sir must be very proud of your fine Son. His illness can and never will define who he is, He does that himself along whis family upbringing, including friends, and community. Any Mam or Dad would be lucky to have a Son like Stephen. cheers Gabriel
Do you think there’s a correlation with speech patterns between those with schizophrenia? I notice Stephen’s speech is quite slurred. I discovered your channel today and I’ve noticed a few similarities in symptoms between Stephen and I, eye sensitivity, small pupils, eye spots (that I had boiled down to low blood pressure), extreme fatigue even after having done nothing all day, constant anxiety, occasional headaches, my eyes cross over when I’m tired but my speech slurs like Stephen’s does, it’s like the words are just hard to get out sometimes. I have never considered schizophrenia being an issue but I relate a lot to what you’ve mentioned in your videos. Thanks ♥️
Check k diet and get blood tests. D, B1, B12, magnesium, iron. From experience similar to yours, this happened to me. I was so anxious I started drinking. Just 1-2 a night every 4 days. It caused malnutrition, inflammation. And the antidepressant was making me exhausted. I switched to low dose ketamine and an SNRi. I am working on my diet. Fodmap-no gluten. Gluten can cause all those issues, even if you aren't celiac or feeling bloated.
@@jamesbryson9542 that’s really informative actually, thank you! I’ve tried altering my diet to see if that would make any changes but it’s hard to maintain as all my children eat is pasta and a lot of times I can’t be bothered making 3 separate meals 🤣 but I’ll definitely look into this, thanks
Man what an awesome father. A lot of us don't have family support let alone a father that cares so much. I'm sure you guys are aware but sadly most cases go undiagnosed with people ending up in the streets.
True. Not a lot of families understand mental illness. My family since my sister and In were both single and not married treated me like my sick sister. They just didn't want to be involved leaving it to me.
He is blessed to have such a wonderful daddy ❤❤❤
A very supportive dad,which every child needs.This looking at any possible causes,such as being in some cold water,a ball hitting you on the side of the head,is totally fanciful.They surely know this,from interaction with the psychiatrist.This soul searching maybe gives some comfort,but to me seems non-sensical.
I feel for this kid
I doubt he is sctizo but the drugs are awful and can bring in delarium .
He will get very serious and disfiguring side effects..
Drugs deffo don’t work it side effects are shocking it’s all a money making thing the amount of money these ppl doctors think they know everything what works for one patient deffo won’t work for the next
I so respect this family for sharing their story. And thankyou to Steven’s parents for being devoted to his health, and not shutting him away from family life during this terrifying and difficult experience. Maximum respect to you all, especially Steven Junior for sharing your journey.
It’s amazing that you’re in a family with a calm and supportive dad. I love how he respects you so greatly and is obviously allowing you to be a man. God bless you all.
Besides high functioning autism, I also have schizophrenia. I didn't know I had schytz til I was an adult. My mom, who's in heaven, also had schizophrenia as well. You're not alone, bud. God's with you :)
there is a high correlation with gut mirobiome issues with both , as well as gluten. Both also have high ( 20-30% ) of patients incorrectly diagnosed with one or the other, where it turns out their symptoms were all actually a gluten related disorder. A blood test, and/or elimination diet can help see if you are part of that high group of people whose symptoms reduce or go away.
@@wearebornlikestars7706provide evidence or ur just rambling
@@nbome2733 really???
you can't just take the time to check into it yourself
You've been given a great clue and starting point
Be grateful
@@carolmaplesden916The burden of proof is on the preacher. You can’t just talk out of your ass and not back it up with receipts
@@helios8459 no you have to take responsibility for yourself not being child like with your hand out
I care for my adult son (48) in Britain and am so grateful to you for this video. My son came off his meds 4 years ago and I can see the symptoms returning. Your video has helped enormously in that I realize it is time for me to take action again. Best wishes to you all. You are a lovely family and Stephen, carry on with what you're doing because it is really good. Well done.
What kind of symptoms if I may ask? If I remember it shouldn't take 4 years for "symptoms" to "come back" because there are always symptoms: when the individual is in the prodromal phase I believe, they experience residual symptoms, the "positive" symptoms of schizophrenia (in this case, "positive" does not mean "good", but rather, refers to a class of symptoms)
I ask because I was unruly diagnosed and from the stories I've seen, it doesn't seem like I have it. (stupidly enough not thinking you have it is a symptom in itself, which is the stupidest thing I've encountered. How is someone to get a differential???)
Ms. Elizabeth, I wish you the best for you and your son. We all wish it will go away without meds. Unfortunately, we have to take our meds so we can somehow live a normal life. Please, tell your son he has to take his meds!!! Lots of love from Istanbul.
Please try the ketogenic diet Dr Palmer
@@ashleyriblet2326 hi hope you are doing well my brother had undiagnosed schizophrenia for 4 years he was living away from us and we didnt know when he dropped out of unviversity and started doing nonsense stuff..
So my parents took him home he was absoultely a nightmare to deal with but somehow we conviced him to take meds now he is taking meds regularly his symptoms has decreased but he is still not normal he just sleeps and watches video games and movies all day will he recover please reply
Take Aktion
Don't sounds good
Many people don't like this medicine
Hi to both of you. My husband who is 60 had onset of schizophrenia at 18. He too was a very good and involved student, learning physical education in wrestling. But one thing struck me on listening about the hypothermia you had Stephen. My husband at one point ran away in winter and would sleep outside then go to his high school and experience feeling as if in an oven and this seemed to have occurred at onset of schizophrenia. The extreme cold and extreme heat. Also, schizophrenia ran in his family, so genetics also. You are brave Stephen and im glad you have such a supportive dad and good care as a patient. Clozapine was also my husband's saving grace as far as positive symptoms. Thank you Stephen for your videos!
very interesting information!
So having children is not smatrat or kind choice.
Good video u have an amazing support group ur dad is a one prayers to u and ur family I hope u have a successful life
Stephen I hope u continue to have a wonderful life keep taking ur medication never ever give up u can do this positivity keep going to ur physc doctor and write a journal
Yes. And in our lifetime, people will realize this as spiritual gifts. You see? Feel? Hear? Multiple timelines at once. It can be exhausting… know that there is nothing wrong with you. You are actually more advanced than the rest of us and given a lot to swim through. JUST KERP SWIMMING.
Wow. I was diagnosed with schizophrenia at 19, and I lived in hell for years. That was as an adult. To have had that as a child would've been beyond insanity, and I can't imagine not to have been broken beyond repair. I'm amazed just hearing this story. Wow. Good for you. You have great parents. Support is so essential to recovery. They're your pillars. Good for you Stephen, in coming back from that nightmare.
Thank you very much for joining our journey. Be well!
Jesus can help you unlike medication can
God bless you just believe Jesus says anything is possible for the one who believes I couldn't even function all I had to do was believe and put my Faith in trust in him and he helped me
I'm not a doctor , but I have had my battle and found out gluten was destroying my brain . Gluten on some people causes a wide range of mental illness , and I have found out that a lack of vitamin B1 also can effect the brain. For me I had to stop bread and pasta . Wheat crackers that I thought was healthy impaired me so much .
Hope you all the best.
Your father and mother are amazing. They did nothing wrong and everything right to help bring you back to reality. I want you all to keep doing what you are doing, bringing understanding and compassion to people who have to live with and manage psychotic illness.
Thank you very much for the amazing encouragement and support! They are amazing!
@@SurvivingSchizophreniaYou are amazing.
HYPER SENSITIVE children use to develope schizophrenia or psychotic episodes...I was one of those children back in the day....
I discovered that a loooot of times, my "thoughts" was not mine, I mean...I was able to hear/feel the thoughts from other people's mind. So... I had to learn how to CLOSE my own mind/channel/brain to not feel/hear intrusive thoughts. Hyper Sensitive people don't know about this at the beginning so, we look for answers in the common field of sciences (psychologists, Psiquiatrics, etc). I started getting better from 2012 to 2020, because I new different scientists with new waves of knowledge, quantum physics, neurosciences, holistic psychologists, etc.
@@SurvivingSchizophrenia I totally agree. May I ask if you ever had results for autoimmunity and/or microbial cysts and/or mild chronic infections?
I'm so glad I happened upon your videos! My brother's twin sons apparently had early/childhood onset schizophrenia. This was back in the 1960's and it was a very challenging time for the kids and my vrother and his wife. I felt so sorry for the whole family. It took years and years to find some kind of therapy that could restore some semblance of a "normal" life. Then there were multiple episodes of either or both boys deciding to quit their meds and the whole rollercoaster commenced all over again. They would get arrested, once 9that I'm aware of) they beat the crap out of my brother because they were convinced he was the reason they were so unusual. They had an older sister who somehow managed to have a regular life for a teenaged girl. Oh, btw, the boys evidenced their condition at 13 years of age. As twins, they baffled and fascinated the neuropsychiatric community. So, they received a lot of different treatment modalities but they also became "lab rats" because at that time schizophrenia in twins was extremely rare. Long story short here, they finally managed to find some medication and supportive therapy that allowed them to have a decent young adulthood. Until one of them was killed immediately when a pickup truck hit him alongside a rural road one morning while he was jogging. They were around 25 at the time. While tragic and so sad, it was also wierd because the surviving twin started behaving and even looking like his now deceased brother. He grew a bierd, starting dressing more like he did. . . Well, now the one of the twins is living on his own, has a long term girlfriend and a full time job. He still doesn't do well when the whole family gets together for the holidays but he can sit at a big table for dinner, etc. But then he discreetly disappears to a bedroom to just be by himself. He s a very intelligent and interesting man; gentle and thoughtful and finally seems to have found some peace ithis life. What a whirlwind it all was, though. This felt so good to just get the story out. Thank you both so much for your candor and openness.
Thank you Anna-Lisa for your incredible comment. I appreciate you sharing your story. Thank you for your encouragement and support. It means a lot to me. Thank you for being here.
Thank, you Stephen--and your /dad, of course. I sure hope continued research can pin down the origins of this phenomenon soon. There are still too many wonderful, bright lights in our human family who are tormented by it all. Again, thank you for providing a place for other schizophrenics and those who love them to sort a lot out snd not feel so alone.
My daughter was diagnosed at a young age with Schizophrenia. I had a very hard labor with her and sometimes I think that caused it. Also, we had a few family members with the same illness. So it definitely is a genetic disorder. Your lucky to have very supportive parents
I'm glad your parents are so supportive Stephen, and that you've found the right combination of medications. I work in residential care, and supervise the home. I work with individuals with schizophrenia, bipolar disorder, ADHD, PTSD, major depressive disorder, anxiety, etc. Most of the residents symptoms are extremely debilitating. I am saddened because one of the residents is currently not stable, and has been in a state of psychosis for the last 2 months. I hope that they find this person the right combination of medications. I think that the hospital released the resident too early. The person currently thinks that there are a group of people out to kill them. I couldn't imagine going through that every day! Your channel is very informative. My mom was diagnosed with schizophrenia when I was young. I didn't know much about it then. I remember some of her odd behaviors when she was in a state of psychosis. She's probably part of the reason that I got a job in mental health care. Anyway, you and your family have a wonderful day! 😊
It's hard when a parent is exhibiting odd behavior when there is no name or explanation for it and moreover a person gives the impression of being normal outside the home. I discovered by gradually putting pieces together years after a living hell with my mother that she was not only narcissist but paranoid. I carried around an inordinate sense of guilt simply by being around her and blamed for things I didn't do.
Later on, when she finally got everything she wanted in life mainly by swindling and using out others, she accused her live-in lover of hiding guns in the attic (also accused my adult son of stealing jewelery several years before). If she did not progress to outright psychosis towards the end of her life, no one would have believed me about the abuse I suffered from her.
I had no idea what normal was, so proceeded into marrying a person who also seemed to be functional in the sense he was able to work but would suddenly blurt out provocative and even outlandish things. He was impulsive (he was never able to drive on account of this) and used to enjoy taking risks (that may have given him a dopamine high).
His behavior and cognition took a dive after his stroke of 2013. Finally, an MRI in December 2019 revealed he had and OLD temporal lobe injury. This corroborated MY OWN diagnosis when reading about FTD, or Frontal Temporal lobe Dementia two years before and after joining a support group. Indeed, my mother and husband were able to pass back and forth between normalcy and otherwise dysfunctional behavior.
Thank you so much for sharing Melissa! Have a happy and healthy rest of your day!
Thank God your parents are there for you keep your head Steven stay strong.
Hi my name is linda my adult child thinks people are wearing mask sometimes he punches me an calls me names i liv in dallas county his diagnosis as paranoid schizophrenia he refused meds at home but wen he in the hospital he takes meds ..;he was prescribed olanzanpine 20 mg and he keep saying he want go to vatican and rome and gets mad wen i cabt get him there i wish i could find a residential care center for him in dallas
Genetic predisposition can be triggered by life’s stressors and, in worse case scenarios, trauma.
Prodrome, not "predrome". I have that word tattoed on my thigh because I went through a really severe panic disorder (derealization, depersonalization) and was terrified/convinced I was in the prodrome. Approximately 7 years later I've been diagnosed with bipolar, and have now experienced some significant psychotic features. It was my biggest fear in life, and I've overcome it. Stephen, thank you for making these. We NEED to talk about this shit. It's no joke. People who are lucky enough to be healthy need to lift us up as opposed to making it worse. I wish everyone had to experience mental illness just to have an idea of the hell it can be, and the strength it takes to come out alive. Opinions would shift QUICKLY
Well said
❤️🩹💜🌟
Right- if every one in the world experienced someone else’s normal- especially mental issues, that would help us all be able to participate in life!
Had the same thing not panic attacks but fits. I had epilepsy
Your story has touched my heart and gave me more hope than I can ever express. My so is 19 but we finally got a diagnosis 8 weeks ago. It's been a dark horrible journey that has just begun. As a mom I want to help my son and it feels helpless but your channel has brought me understanding and hope for the future.
Please read Brain Energy by psychiatrist Chris Palmer. I think everyone with mental health problems should read it.
My son and his wife are dealing with my grandson's schitzoeffective disorder. It's been a really difficult struggle.
My journey started at 16 started with IBS then depression/anxiety till this day. Almost ten years.
Walked in the psychiatric ward at 20, diagnosed with schizophrenia/schizoaffective/major depression in that year.
I am lucky to finish highschool and two years of college before finally dropped out. I went to therapy for two years after the week of hospitalization. I have the psychiatrist and the right combination of medicine just to function daily chores in my parents home. Still struggling with suicide thoughts and illusion if things got serious.
I write poetries and am currently working on a novel.
Thank you Stephen and Stephen's dad sharing for your story. These things are so precious. (I recalled having similar possible head injuries at 13 and 17, maybe caused my seizure)
I still believed in God. My family and my pastors support me a lot.
God bless you🙏🙏
Hi Stephen & Stev
I thank you for being so candid. My son started with schizophrenia at the age of 18, the early symptoms were he starred to isolated himself, we as a family were clueless. Elliott's Sister separated from her husband, it upset us all but he took it very hard as it affected his relationship with his nice & nephew. Then a few months after that he developed epilepsy & schycosis that was back in 2010. It took us until 2018 to get a diagnosis he started on clozapin it was as if someone turned a light switch on, we could see an improvement on a weekly basis, unfortunately we didn't get to see the full impact of the treatment because he passed away only a few months later, nothing to do with the diagnosis. I was a freak reaction to one of his otherr meds. While he was sleeping he suffered a gastric hemorrhage, they didn't get to him on time.
Stephen, you are so lucky to have such a supportive family. I find myself thinking of all those people living on the streets without anyone to back them, and my heart bleeds.
I will pray for you all to stay close and strong
All my love
Sue Mac
Bless your dear son 🙏
Thank you for sharing your story! It is inspiring. I have a 20 year old son who was diagnosed with schizophrenia back in 2019. It has been devastating to our family, but we are learning to move forward and have faith. Acceptance is very important and your videos help so much! Thank you again!
Thank you for joining my journey! Have a happy and healthy rest of your day!
Back in the 1980's I began to have severe, terribly disabling panic attacks. They came on after a long period of extreme stress when I was caring for my husband who then died. I wasn't on any drugs or anything other than the exhausting level of stress I had been under. I appreciate you and your father doing these videos to help educate us.
@barbh1 the kind of stress a caretaker can experience (especially if they are under attack) can cause extreme biochemical changes resulting in out of range mineral levels and ratios to other minerals. This was documented through repeated hair tissue analysis in my case. This biochemical alteration alone affects mental perspective, distortion and responses without question. PS hair tissue analysis is not a modality utilized by mainstream medicine however it has been invaluable in providing answers they couldn’t! Blessings
@@carolyngreen5458 Finally, someone understands. I hope all these terrible mental conditions will soon be understood and alleviated. Thank you.
@@barbh1 many cases of mineral imbalances/deficiencies are MISDIAGNOSED as “mental” disorders. It’s something mainstream docs aren’t allowed to acknowledge as they are only exposed to a few hours of nutritional information. Even a good auto mechanic knows what fuel is required for optimal performance of his “patient”. May God bless you richly for your service to others at great cost to yourself 🙏
I went thru something similar when I was taking care of my mother in law. Whenever, the phone would ring in the night or early morning hours, my heart would race and I couldn't breathe. Try telling this to my husband but he wouldn't listen. Would just complain as if I wasn't doing enough. Due to visiting the ER so often, I got my lungs lining inflamed. Developed pneumonia two times. Got bronchitis a few nights. It's like my body couldn't handle it anymore. This is taking care of a woman I didn't like. One day I just had to say enough and told my husband he would have to take care of her. I was done. The stress of caring for someone can lead to illness. Hope you are doing well now.
Yes, thank you, I'm doing well now. I think it weakened my system because I contracted Chronic Fatigue Syndrome. I"ve learned I have a certain amount of energy and can't use up too much or I'll get a flare, but I'm used to it now, and it's okay.
As a mental health nurse, i commend you both. What a brilliant video, its both informative and gives people insite into what its really like living with this. Youre both beautiful peoplem i even learned from this. Much love from england xx
Would you agree that all of the scitzophrenic patients you see are cannabis users?
I had this illness as a child and only found out i had it when i was 48 had no help or support from anyone so lucky to have such a good Dad
Hey Steve...way to go man on being patient with your dad 😁I think he gets as excited as you making these help videos..
I’m a school nurse and any type of TBI concerns me. Early treatment for concussions is necessary and so many times my students/parents just brush off these injuries. I’m so sorry you are experiencing so much in your young years. You’re a fine young man with great parents. I’m praying for you now.
How do you treat a concussion?
@@ST-yc7ujIn my experience there is no treatment, but the person needs to be kept under observation in case they suffer delayed effects such as coma, etc. Once when I was a teenager I was taken to hospital and had to lie in bed for hours with a nurse coming to take my pulse, temperature, etc every ten minutes. When I got home I became very ill; turned out I had caught a nasty virus from the nurse!
So many people have this disease and are unable to get the help they need. So glad you did, and maybe getting it at a younger age they had some time to figure out what was going on. These videos will help others with this illness. ❤
I have schizophrenia as well and had a brain scan that was normal. Thank you for your openness on this topic. I enjoy your videos.
Thank you, DJ, for joining us. Be well! Post any questions and we’ll try to answer and respond.
What kind of brain scan did you have? Thanks.
What about CRISPR technology?
What do you think about idea that schizophrenia and most of the mental illnesses are form of possession by parasitic entities that we cannot perceive with out 4-5 dimensional thinking and observations? Like higher dimensional parasitism that feed on hosts energy.
Hmmm
Please be kind to these folks. It's extremely painful.... It's a Brian disorder like autism any other brain disorder. Be kind...
I’m so glad you didn’t go to residential care in Utah. Staying with people who love you is profound medicine. This will be devastating to parents who love you. Such periods of stress, uncertainty, anxiety & certainly fear. And loneliness, undoubtedly. I was thinking, “I wonder if Montessori would be a helpful option for Stephen” (as a young child) & right then dad mentions that you did do some Montessori. I think Montessori would’ve been good for me but there was none where I grew up in Appalachia. Sounds like you have access to excellent resources for healthcare. Thanks for a great video. 👍🇺🇸✅
Thank you for sharing this video. I’m on a journey to learn more about schizophrenia. We have a close friend that suffers with it. Grew up with him and it manifested in his late 20’s. He has basically lived two lives. One of health, marriage and a college degree, successful career. But then of psychosis, hospitalization and recovery. It’s very hard for family and friends to know what to do. Anything that is shared is valuable because we just want to love and help them. I wish there was more study into this condition but watching this video helps in understanding another journey. What worked for you. Wishing you the best.
Thank you so much Jennifer. I appreciate you sharing. It’s very meaningful to me
I am so proud of you Stephen. My entire family was and is in mental illness. I had and I came out of it, by being alone for 13 years doing mediation, eating vegan food, working out and work on my buiness. sending you so much love and hugs. You are a brave soul. Keep giving us knowledge, it helps us to deal with our family. ❤
Thank you very much! Your words are incredibly meaningful to me and encourage me! Have a happy and healthy rest of your day!
It's so nice to see how a persons can live a happy productive life when the family is present. Steve videos are amazing! My sister in law has schizophrenia, these videos are helping me a lot to understand how she might feel. You're doing an amazing job with your videos by helping about a subject that can be hard to understand. You are making a big difference in people's lives!
My son was diagnosed 30 years ago. It took over a decade and I finally found a doctor that suggested genetic testing. My son has Chromosome 22 Deletion. Testing specifically identified medications that would work with no side effects.
Hi my son also has this its also known as de George syndrome and had a diagnosis of schizophrenia in early 2022 after suffering from delusions voices and disturbing visions its under control now and long may that last sending my regards from the UK
Hey can you please let me know what medication did you give him. How is he doing today. I have similar problem but never went for gene testing. Thank you any response will be appreciated. Thanks again. I am a mother facing same situation.
@tinaghengis6497 hi my son takes 15mg of aripiprazole since he was diagnosed with schizophrenia after a few hit and misses with a few other drugs he is doing amazing now and no more voices or visions he doesn't have a mental health issue at all the psychiatrist has said he actually can't guarantee that the drug he is still taking is keeping his issues at bay or it could have been a one off incident that may have righted itself anyway 😕 I hope that helps
@@eveeggleston7611
Thank you. it was a great help. Hope and Pray your son will forever be in good health. Best wishes from Katy, Texas.
My adult son was diagnosed with autism at 3 yrs old and also deals with misophonia and synesthesia, so sensory overload happens pretty quickly for him. I grew in grace towards others so much faster because of his struggles for, as you said, I realized that a person can appear perfectly normal on the outside and not be. You just don't know what people are dealing with behind closed doors.
Hi dear Stephen! Just have on my heart to tell you that I had sleep paralysis and some other problems that almost took me to hospital. Maybe you are not religious and thats good, because I was and it didn't help. But when I found out about Jesus Christ i found that religious people hated Him and that He sad things that nobody sad in whole history. I start to read New Testament and I tell you now that He is answer for every need for all of us. His Word is alive as He is! I bless you and your family in Jesus name!
My son (grandson I'm raising ) has been diagnosed with very early onset childhood schizophrenia. He was unofficially diagnosed at age 5. The official diagnosis then was childhood psychosis with a feeding disorder. He at age 8 was officially diagnosed with schizophrenia, anxiety and a feeding disorder. He had to have a feeding tube placed a little over 2 years ago.
Your story has given me hope that maybe he doesn't have to be in a placement. How did you get all that in home care?
I have no help. I'm raising 2 grandchildren and my daughter just died so a 3rd arrived. To get any more evaluations I have to travel 4 and 5 hours one way. Having in home help would be awesome.
May God Bless you. Those grandchildren are so blessed to have you to step in and love and care for them. What a difficult walk you have.
I am a Christian. If you feel inclined, please contact me for prayer for your family. 🙏🏻
@@deborabenedon3255 Thank you. I am a Born Again Christian.
You didn't choose this life, but now you are helping thousands of people with these invaluable videos.
19:05 Im diagnosed with schitotypal PD. My mother always says "you are normal and you look good, why do you go to a psychotherapist" she can't handle it... I think she feels kind of guilty...
You have a great dad.. you're a good team. Wish you al the best
Invisible chronic illness is the same way. I look so healthy, but I am unwell, chronically ill and cannot work. People discount my condition when they find out I am ill.
Most common connection is CTE (chronic traumatic encephalopathy) which can occur from head trauma. I’m an HHP taking on the medical system over huge errors in my fiancé’s ALS which came from a car accident. Don’t let the corrupt med system steer you wrong. All med dx have CAUSES and often symptoms are misnamed. I have someone in my family with your dx and it was caused by the hospital NICU at birth.
Would you be willing to share what happened to he baby? My son was in NICU
that’s very very interesting. I’m curious to know what occurred in the NICU that was a cause of your sons diagnosis 😤😤😞😞can you go into detail ??
I know what you all going through! My Grandson has it. I felt the same way about putting him in a home. We didn’t and he’s doing better now. My grandson was young also. They said for years he was Autistic. But he won’t take meds. He always have headaches and shoulder pain. It is hard people don’t understand. Thank-you Stephen for doing these videos! It is a dark time for all going through it!
So sad for these families. It’s mind boggling for sure . I hope the medical community finds a good answer as to what is happening to our kids 😢
Who would
My fraternal twin became ill with schizophrenia at 12 as well. Scary stuff. That was 20 years ago. She’s better now, unfortunately we didn’t have overly supportive parents that encouraged her to do “more”. She was hospitalized quite a bit which is also traumatizing for kids. She doesn’t drive much and still lives on SSI. I recently was diagnosed ptsd, very borderline traits combined w psychosis. So 20 yrs later I finally understand her symptoms, altho I am grateful they weren't as long term as hers. She and I both had god related “delusions”. She however had hallucinations and voices as well
Bless you both
So sorry
How do you get better its a switch you cant undo
The reality: God exists
Demon possession nothing else
I was first ill when I was 16, I had my drink spiked with a drug, probably Amphetamine. I recovered from psychosis but from that point onwards when ever I drank alcohol I wouldn't remember what happened, but instead would believe my thoughts as memories. Stress caused me to become psychotic few times during my life. Now at 49, I have finally given up alcohol 2 and a half years. Giving up alcohol has only helped only slightly. I have been on Zyprexa 26 years, which I know is a long time, during that time I tried to come off it once, a month later was in hospital. I can say I'm not what you would call happy with my life, but I am content. It's not over yet. Just thought I'd say sleep is the key to being well.
Good for you, you are very brave and I wish you all the best.
True, you never know what is going on in a person’s head. You cannot see it. but we can talk about it. So thank you again Steve and father, you are both helping and quite amazing.
Thank you for sharing your story and your advice about sleep also
Add a bunch of B vitamins, if you haven't. That an low dose ketamine helped me. Sending strength.
My Son was 14yrs old was diagnosed at 15yrs old he's now 37 and still going in and out of hospital we still support him, he does live in supported accommodation , but it's the hardest Illness, if u break your arm you can see it but not the same for mental illness, so good to see this for us my boys taking the same meds, we didn't choose this life for him or us but we're doing the same, me and my husband support him and always will wasn't the life we wanted for him but we must go on we love him dearly, and also we don't really now how it happened take care and all the best
❤
You have remarkable courage to present your illness with such candour. I hope you are able to manage your condition and you are doing well. You have a wonderful, supportive father. Good luck to both of you.
I can certainly tell these two are father and son. Not only does Stephen look like his dad, they share the the same mannerisms and demeanor as well!
This young man is doing great despite all the challenges that he has been dealt with!! Good luck with everything and may you be successful in all your endeavours!! Never give up on believing in yourself ❤
i cant lie, this is really hard to watch as someone who has struggled with a more extreme version of the same thing but without the support system or caring doctors around. It makes me wonder what my life could have been if someone had just believed me early on.
Praying for you Steven, I have a sister that has schizophrenia I understand what it is. You have wonderful parents Steven.
Thank you so much for sharing your experiences - my sister is Schizophrenic and so was my Dad though he remained undiagnosed until late in adulthood. You're both amazing - wishing you all the best.
Great parents bring up great kids … Steven is proof! What an intelligent, empathic, and kind person. And what a journey you all have had since the early onset of his disease. It must have been absolutely heartbreaking to see the changes and not know what was going on. I just found your channel but Steven looks like he is handling it well now. I know psychosis can come but he has such insight I think he would have more clues now. I pray that you all will find peace and comfort and healing from the trauma you have been through. ❤️🇨🇦🙏🙏🙏
Thank you for sharing your experiences. My cousin has schizophrenia, he has a different history than yours. I find comfort in hearing other people stories.
Steven you have amazing parents and im so glad you are healing! How scary for ones who go through this alone.😢
Stephen, you have taken wonderful care of Steve and you continue to do so. None of this is your fault. Nor is it Steve's fault. Please ease up on yourself. This is a marathon, not a sprint.
Very true. Thank you! Have a happy and healthy rest of your day!
Loved your vid. You're amazing Steven and so are your parents. Keep up the great work
Stephen, you have such a great dad. No matter our circumstances, I believe that is one of the great best starts in life. Thank you and your family for your openness, sharing your story, vulnerability and all. 🇦🇺
I believe my schizophrenia or hearing voices. Is by being a targeted individual. And what I mean by that is if you are targeted by a bully. You then get into a paranoid state of mind. You always think people are talking about you. Then you listen in to conversations and think they are talking about you. Some of its a coincidence but some of it is definitely being targeted. That's from my experience anyway. I would definitely like to know the cause to schizophrenia aswell.
Thank you very much for sharing your thoughts!
my wife has schizophrenia bcoz trauma that she had back in 2009,she got adimited
to hospital this jan 24-2023 and she still at the hospital
I would rather argue that schizophrenia and its counterparts are simply a product of an imbalanced psyche, which is basically when your ego or identity don't match up with who you really are deep down. This is why when people get schizophrenia from trauma, it is far more the trauma that is not allowing them to be who they once were, and schizophrenia is simply the minds way of trying to equalise that unbalance in the mind (using so much dopamine that you begin to hear voices, hallucinate and become paranoid). As to why our brains do this in the first place is still very unknown, although I feel that these aren't to different from dreams and nightmares just now experienced when awake as well as asleep. I've had many dreams where I thought people were plotting against me, or seen spiders and scary people.
Although you don't hear voices in dreams, I feel that voices are simply a way for your mind to control you and keep you in your state of psychosis. Either way, I feel that the clues if you never went through serious trauma would be to look at who you wanted to be, or believed yourself to be. Maybe this was someone popular, with good grades or someone who was nicer and more outgoing, the solution should lie within your ego. As the ego is what causes mental illness in of itself.
People please do some entity release session, it's done through hypnosis. People like Laura Whitworth can help, there are others too. In case someone needs, please look up Anthony Mowery, Calogero Grifasi and people like them. They might help you with your issues.
@@therealifejames5887 👏 preach
Oh no, serious headaches. I'm so sorry, but this doesn't sound like schizophrenia. I know people who were diagnosed with schizophrenia and bipolar disorder. Not one of them had serious headaches. It isn't even a DSM symptom. I wonder if it's a neurological problem that hasn't been identified. Have you seen the movie 'Brain on Fire'? Susannah Cahalan was misdiagnosed with some psychotic disorder when what she really had was encephalitis. I'm not suggesting that's what you have. But like you, she would have been misdiagnosed with a psychotic disorder and never gotten the treatment that she needed. She's now fully recovered. I truly hope that for you as well. To find a better-informed neurologist who could correctly identify what it is that you have or had.
Ok Ryan the most important thing you need to tell yourself and believe (that I’m sure your therapist has already told you) you need to know this condition does not define you period! It is merely something you have it’s not who you are IT’s a stepping stone and a challenge in your life that you are doing great at! Always and never stop taking your medicine no matter how great or how bad you feel talk with your doc if you are feeling worse! I am so sorry for your struggles but Remember everyone has struggles and if you look around you will definitely start feeling blessed with yours! Ok enough of me being a mother and on to me being a medical professional lol. Ok in regards about why this could have started: two things you had mentioned that stuck out in my head that y’all thought were not a biggy are even most of your providers do not catch for some reason because it’s simple medicine! The fact that you had a 103 temp as an infant could have been the first issue of attack to the brain, but being so young and an infant more than likely this did not affect you but it is always possible! The second is when you were his in the head with a ball hard enough to knock glasses off, this is significant now just not at the time. Note you cannot know or judge how hard certain hits are to the head and how they affect the brain. A hit no matter how small depending on inertia.. whatever causes your brain to jolt back in forth into your skull and hit the skull. You don’t have to be a football player nor be in a crazy accident to have this happen. So , never assume anything no matter how small the event and we are not all built the same. Now my last thing is I’m not saying it has happened to you but you, but people can experience a traumatic event and have amnesia and their brain will react in wild and strong ways to cope. Then later in life they may remember said traumatic event when their brain feels it is ready for them to cope with the event. Our brain is a mystery and I believe will always continue to be. I suggest if you and your family aren’t already please do find God and follow the Bible and pray and this will help you more than things on this earth because this place is just brief and praying you will have peace in paradise with the lord that is the only this that is for sure an answer! This is coming from a beloved mother of three teenagers, wife, and one that has devoted my life to majority of my life to studying medicine and has struggled years of my own physical and mental health. Take care ❤will be praying for you all.
I love the love you have for each other. ❤
Thank you very much! Have a happy and healthy rest of your day. Thank you for joining my journey!
It was very interesting hearing this part of your story, Stephen. Thanks so much for sharing. The two things that struck me was hearing about your hypothermia, but also the headaches. I'll keep watching your videos to continue learning. I trust you're keeping well. 💝
Thank you for watching! Have a happy and healthy rest of your day!
I do not have this illness, a few close people do. I want to thank you so much for sharing your survival with it. I also think it's awesome your dad is included in some videos get to see it from both views, one who has it and the parent.
Life is hard without a disability. Can’t even imagine having to be that strong. I’m glad u are sharing. People need to open up if they can, so others know that aren’t alone and learn knowledge & skills from each other. I was blessed with awesome parents too. Feel for those who are not so blessed as us🌸
What am amazing Father and Son relationship. Fantastic to see parents and son trying to find solutions to his illness. I'm sure you have investigated whether your son got a brain infection from a normal virus/cold? I have read about a situation where a normal virus infects the brain and causes all the symptoms that you son had as a child. The brain infection was treated with specific antibiotics and the person returned to normal after his brain infection was cleared. Just mentioning, just in case you want to look into this. Kind regards to you and your family
I don't like how the father kept interrupting about this boy "not being abused or molested"..
I have schizoaffective disorder. I`ve had strange issues all my life that got worse and worse. I went from playing and singing in bands and solo to a paranoid recluse. I`m afraid to go to my mailbox and if I see anyone I go back inside fast.
You've suffered Advese childhood Experiences ACEs
I am really glad you are doing this. There are many misconceptions about schizophrenia. It is also something people don't talk about. Great information.
I have read that schizophrenia can be genetic somewhere in the family tree, even a distant relative. I would like to know your thoughts on that.
Thank you Pauline, I believe that is true
It's from social isolation
I’ve never been the same after my psychotic episode, I hope they can find a way to heal the damage
You are an amazing person and we are thankful you are sharing your story!
In 2012 I had a major psychotic episode that lasted for half a year it was the worst thing that had ever happened to me in my life. I didn't realize before that something so horrific can happen to someone. The videos by Jiddu Krishnamurti talking to theoretical physicist Dr. David Bohm saved me through that rough time and they saved my life.
Wow thank you for this. My son had his first episode at 12 and we are still going thu it. We are in year 3 now. Your words are so encouraging. I wish we could talk with you. ❤Thank you for letting me know I’m not alone. I love my son and we want to do everything possible for him.
your empathy for one another is beautiful.
Thank you very much! Have a wonderful holiday season!
Yes it brought tears to my eyes..Beautiful❤
Look into fat soluble B1. Significant research indicates abnormalities, anxiety, nightmares, sleep patterns are affected by a lack or low reading. Higher doses than RDA are recommended. Benfotamine in liquid form can have results in a short amount of time. I know someone who had normal blood work, but upon ingesting felt an immediate change. Good luck
it is very cool to hear people sharing their experiences with mental illness, I appreciate it very much!
I think it's really cool you have such a supportive father who is a part of your video content, too. Seriously, family is what matters the most at the end of the day.
The medical info is so eye-opening!!! Thank you for sharing this🙏
Schizoeffective here (lay man's terms for those who don't know: I have symptoms of schizophrenia with depression and anxiety. I am also dx with psychotic tendencies.) Abilify was a joke. It didn't do anything! I'm going to try Vraylar soon. I'm sick of being in a psychosis. Oh yeah, I've been seeking mental help since 11 years old so it's just a part of me as much as my traumatic brain injury and physical disabilities.
I'm so amazed your schools did so much for you! I was denied an iep when I could barely walk. I'm partially paralyzed on my left side. I was in a car accident and had a stroke at 16 years old. I'm lucky to be walking. Invisible disabilities suck.
I feel and understand how confusing and difficult all this can be because of what we have been through. Isolation. Frustration. Lack of activity or interest. Can’t sleep. Three months of not communicating and not coming out of the room. Not showering or cleaning. Hoarding the rooms upstairs. Started @21 for ours
Gosh , no insight for three years , bless you both .
You are both bloody amazing .
The love…….. that’s the answer that explains your well being now. Praise God your doing so well. Praying you continue to improve 😊
I pray your channel flourishes. My son started to smoke prescribed marijuana to help with sleep problems I think. He lived with his brother. I know he stopped in to mental health places a couple times so he knew something was wrong but he didn't get help for years. I think it was in his DNA. I know my son well and I know he likes money so I offered him 1000 to take an injection when I finally realized he was needing one. It worked. Unfortunately if he decides not to do it anymore there's nothing I can do. He has no insight. His older brother is in denial. That has been a challenge in itself. I thank God every day. It's been over a year now of him continuing to take the injection. I've told him that I'll pay him 1000 for every year. There should be an easier way of dealing with this. It took a lot to finally get him put into a hospital to begin with. I eventually had one of the police officers in the mental health car unit take him and sit for hours with him in Emergency and admit him into the Psychiatric ward. He ended up leaving the city for 6 months after that. He's an adult so there's nothing you can do.
My second born was diagnosed with cannabis induced psychosis in late 2016. He went from being a normal young man to completely out of touch with reality, believing we all were after him and that others were conspiring against him. He ended up being hospitalized, and eventually got better after years of struggling with him to stay on the medication, and stay away from marijuana. In 2019 my third born son was also diagnosed with cannabis induced psychosis, and also was extremely uncooperative with taking his medicine. Its been hellish, dealing with the two of them who wont listen no matter what I say. It doesn't help matters that I divorced in 2020, and their degenerate father who was never there for the boys just left the country and hasn't contacted them since. I think your idea about the money is great. I once paid my eldest money to take ear stretchers out of his ears, and he took the deal. As a mother, I felt I could only do so much, because my ex was always trying to diminish my authority with my sons, who have like him never treated me with respect. Today, my second eldest is in the hospital as I type this. I kicked him out of the house in a last ditch effort to force him to hit 'rock bottom' and finally get control of his life. He has been smoking weed in ridiculous amounts behind my back, went off his medication, cant hold down a job, is heavily involved in porn, vaping, and other things which are destructive to his mental health. He ended up totaling his car, quitting his job, and being brought to the hospital by the police. I still don't know what all happened for them to bring him there. He finally, finally agreed to get help and to NOT LIE about his symptoms so that they would keep him overnight and therefore possibly longer so that he could become stabilized with meds in the hospital. I am currently trying to deescalate conversations through text with him because he is extremely argumentative and will not accept certain facts as reality. He is trying to tell me that later when he is released that all of his addictions are 'part of him' and therefore for me to just accept his behavior when he gets home again. No. I am just so worn out with struggling with these two who will not listen to anything I say, and I curse their father for never being a real dad to them. I feel like so many of my sons issues could have been avoided had I married a good man with a heart. The one good thing is that the hospital has set my son up with counseling and I have made it a condition of him coming home, so he has begrudgingly agreed to go. Best of luck with your son. It is so hard as a parent to watch this happen to them, and heartbreaking for them to not understand they have to stay on the medicine.
My daughter was diagnosed in her early 20's. We found out that it ran in her father's side of the family..No shade there, there are probably diagnoses on my side of the family (I do know and have suffered with depression and anxiety as well as other family members). I would like to intoduce my daughter to your channel because i believe she feels cut off from society and I think it would benefit her to watch your channel. I know this video was done a year ago. But I see a lot of newer ones too. Thank you
There are a lot of creators who have really been great about showing us what their lives are like, especially due to spectrum disorders, such as autism and schizophrenia. I've learned a great deal because of their courage.
I absolutely adore your relationship with your father. He loves you so much!!
Your courage and willingness to share your story is inspiring and amazing.
Stephen, the power of your personal journey is so encouraging.
Thanks to both you and your dad for sharing your truth.
Thank you both for sharing your story with us. I found it very helpful. You are blessed to have such wonderful support from UCLA and their departments. Tha
My support for being openg about it and not afraid.
Thank you for your bravery and candidness.3 of my siblings have been diagnosed with SZ. One is still on medication, the other two believe religion will cure them.
Thank you very much for sharing and joining my journey. It means a lot to me. Have a happy and healthy rest of your day.
Wow 😳
Two of my friends have sz, and they do follow their treatment plans because they are religious. The Catholic Faith teaches us to love our neighbours so it’s not all about how one person feels. My friends need exercise and a calm environment but they are wonderful parents and friends. SZ is a very difficult illness and I’m so glad my friends get the help and consolations and guidance of God, priests and Christian family and friends.❤
My mother and sister had schizophrenia and eventually took their own lives. I have tried to understand this condition my entire life. I had the mistaken impression the disorder is always genetic, a toss of the dice. I had no idea there were other reasons. I will continue to research it the rest of my life; I will never have peace. The info out there is confusing. Thank you for coming forward to explain your journey.
Sorry to hear about your loss I have it and its horrible :( I can understand why she chose to do that I don't know how much longer I can hold on myself
Hi pal, I am trying to understand it all myself, it seems there are many disorders/infection, disease states and psychological occurances that can manifest into Schitzophrenia, I am researching a lot a would love to work together on an understanding if you want?
My best friend whom I grew up with was the most normal average guy out there. We were best friends. Played sports in leagues together, we ate at lunch together, hung out once or twice a week for play dates, all that. It wasn’t until he was 29 that he got diagnosed with schizo. Ever since then he’s been isolated and hasn’t been the same. I see him once a year for new years and it’s really sad now.
I am really confused. Both my mothers brother, and my paternal grandfather were schizophrenic. I thought I understood it, but everything you are showing/sharing.
Makes me question everything.
Hi Stephen, recently there’s been research into the connection of the microbiome and schizophrenia. Maybe you’ll find it interesting and useful.
Best of luck to you in your journey. Thank you for sharing your experiences. I’ll certainly follow your story. Thank you for sharing!
I was thinking along the same lines. Either microbes in the gut become out of whack or maybe there's an insect (mosquito) that transmits an undetectable virus or microorganism and the symptoms are masked as the flu or a migraine. But its the headaches that make me think its something attacking the brain. This is just a hunch, I've only read a few research articles about it and had a friend that suffered from it.
I have a cousin with schizophrenia and he constantly eats terrible food and food that he's allergic to. He has these horrible bathroom visits after meals and even though everyone else has made the connection, he refuses to introspect and actually gets mad if this connection is mentioned, becomes defensive, and eats even more food that makes him sick.
There is one report of an older woman who was put onto a strict gluten free diet for some other reason and she was suddenly completely recovered from this after suffering her whole life until then. They haven’t been able to replicate her recovery but that doesn’t mean it couldn’t be from some other gut/nutritional issue. The gut/brain connection is strong. It could even be an undetected parasite that enters the blood and gets into the brain somehow.
You are an AMAZING young man and blessed with wonderful parents. Thank you for this channel.
In the course if my work, I have come in contact with many people who have been diagnosed with schizophrenia. They are some of the smartest, nicest people I have met.
While they on meds that are working but when it is not its a whole different story. Especially if they see you as an enemy without just cause. Don't under estimate the damage mental illness causes. Nothing to be taken lightly.
Thank you so much for sharing your journey!! Helping us to understand your world is so important! I’m a healthcare provider that has worked with those with schizophrenia and they are just lovely people!
Hi Stephen, listening to your story, especially about the scout camp and "hypothermia symptoms" did you check for Neuro Lyme? You mentioned going to a camp (tick environment) then lyme gives flu like symptoms, headaches and hallucinations. The anxiety and high sensory issues also sound like PANS/PANDAS (PANS is often triggered by lyme mold). Did you do IGenex for lyme plus co infections? Bartonella (psychiatric syptoms) and Strep antibody levels? Also not responding to dopamine blocker but responding to Clozapine tells an immune story (PANS/Lyme). Did you try IVIG or Plasma Exchange? Hope this helps. It isn't too late!
I was tested years ago through UCLA but not IGenex. We are looking into it now and having me retested using IGenex
First of all, I want praise ,father and son (Stephen) in their presentations of the diagnosis, experiences and symptoms of schizophrenia. You guys are truly wonderful in helping people unfamiliar, and familiar with the experiences that come with schizophrenia. Thank You both,❤
My friend’s teenage brother contracted schizophrenia following a viral illness and has since been in a secure mental health facility for 30 years. Tragic. Prayers. 🙏
So sad 🙏🙏🙏
🙏
God bless you. What a courageous young man for sharing your story. This is how the stigma will get removed.
Wow you guys are so brave.. thank you so much for sharing this. I can relate to a black hole period.. I suffered years of depression and then as an adult watched my son get swept under by it and lost him to suicide. Grief is indeed hard. I agree we don’t always realize we are ill, or how ill we are, until we get treatment and feel better.
😢Julia l can also relate, and like you we lost our son to suicide, and the other is in and out of psychiatric hospitals. This causes unrelenting depression on the family. May God keep blessing you Stephen and family. You are such an inspiration 🙏🙏🙏
These videos will help so many people. Stephen is a very bright, wonderful young man and his father is amazing. Keep up the good work.
My husband has bipolar schizoaffective disorder and it hit him at 21 ish. What I understand about these types of mental illness is that it tends to show up in late teens early 20's regardless of trauma, drug use, or not. It could just be genetic disposition or something else.
What a wonderful example of a Father and Son relationship, Dad i am sure it goes without saying, But you Sir must be very proud of your fine Son.
His illness can and never will define who he is, He does that himself along whis family upbringing, including friends, and community.
Any Mam or Dad would be lucky to have a Son like Stephen. cheers Gabriel
Do you think there’s a correlation with speech patterns between those with schizophrenia? I notice Stephen’s speech is quite slurred. I discovered your channel today and I’ve noticed a few similarities in symptoms between Stephen and I, eye sensitivity, small pupils, eye spots (that I had boiled down to low blood pressure), extreme fatigue even after having done nothing all day, constant anxiety, occasional headaches, my eyes cross over when I’m tired but my speech slurs like Stephen’s does, it’s like the words are just hard to get out sometimes. I have never considered schizophrenia being an issue but I relate a lot to what you’ve mentioned in your videos.
Thanks ♥️
People with bad English slur what do u mean
Check k diet and get blood tests. D, B1, B12, magnesium, iron. From experience similar to yours, this happened to me. I was so anxious I started drinking. Just 1-2 a night every 4 days. It caused malnutrition, inflammation. And the antidepressant was making me exhausted. I switched to low dose ketamine and an SNRi. I am working on my diet. Fodmap-no gluten. Gluten can cause all those issues, even if you aren't celiac or feeling bloated.
@@jamesbryson9542 that’s really informative actually, thank you! I’ve tried altering my diet to see if that would make any changes but it’s hard to maintain as all my children eat is pasta and a lot of times I can’t be bothered making 3 separate meals 🤣 but I’ll definitely look into this, thanks
@@eggbenedict-gt7mw as in, when I speak, my speech sometimes comes out as a slur. I stumble over my words or they just come out as a load of nonsense.
@@eggbenedict-gt7mw slurred words more than the average person.