Stephen, you’re doing an amazing service with this channel, and you’re beautiful personality is fitting to be the host! I’m a parent of a newly diagnosed son who’s about your age, actually still in a recovery program for young adults, working part time there,etc. He’s on the same med as you and thankfully progressing well. Your story gives me hope. Your families’ support grounds me. Your sharing humanizes everything, helps us non sufferers understand so that we can help and to rid the ignorance around the illness. For that, thank you! Keep up the great work! You have found your calling, advocacy and maybe it has different faces in your life. As for this specific video, you touched on some subjects that infuriate me. The identity… all people are valuable, unique, special people in their own way, God doesn’t make mistakes, and as a neurologist once told my son “there is no such thing as a perfect human, everyone has strengths and weaknesses, you need to learn to use your strengths”, one of the best doctors we ever saw! . The reference of referring to someone as schizophrenic I hate it, no one is their illness. We don’t say “she’s lupus”, “he’s MS” “they’re cancer”, it’s a bad, old, phraseology that I hope evolves with sensitivity training from folks like you. The violence thing is simple ignorance and media enhanced, sadly. Refer to the treatment advocacy data, it’s an organization fighting for mental health progress. They state 29% of homicides are by “untreated” mentally ill, their intent is positive to eliminate with more available treatment. You know what grabbed my attention? That means 61% of homicides (the clear majority) are horrifyingly executed by people NOT suffering a biological brain disorder! Who’s afraid now? What’s truth, illicit drugs can make ALL people dangerous, which is known to be a contributor in violence. You’re doing an amazing job reaching people and balancing education, advocacy with human compassion and creating a community, huge fan!
Hi Stephen. I like to think of your channel as a classroom, and you're the professor. What makes this classroom different than most, is that you, the professor, has experienced the subject(s) you're teaching about. Many thanks to you for letting us see your day to day life, and the ups and downs you experience. It helps me to better understand my son. as he doesn't like to talk very much about his feelings. I'm so happy to see your bright countenance and to hear you dispel the myths that others believe about schizophrenia. Many thanks to you and your dad for caring enough for others to start this channel. You are loved!
My husband was diagnosed with late onset schizophrenia, 5 months on, he seems calm. He’s highly medicated & plodding along. I appreciate your videos so much you’ve no idea how helpful they are. Thank You guys Stephen your a pure soul.❤️❤️
Good talk Sephen. I love your honest and open affection with your Dad, too. I hope policy makers and healthcare professionals are among your listeners so that they can learn too. This type of podcast should definitely be used as a learning tool. You are providing personal feedback on a weekly basis telling of your highs, your lows, your ups and downs. You explain your medication history, side effects, coping strategies, interactions with therapist, etc.. The strategies that worked and that didn't. You give case history / background. We have seen you physically improve over time. Keeping a diary / records certainly seemed to help in your case . Perhaps all family members should keep a diary? Though I suspect that this would be difficult during the throws of psychosis. Medication alone is not sufficient. People need purpose, human interaction, understanding, and feedback as you say. I hope policymakers will listen and intervene. I just listened to Psychiatrist Paul Conti being interviewed on the Lex Fridman podcast. It is worthwhile listening to. Many people are suffering badly. The current mental health system is far from ideal. New approaches are needed, and more psychiatrist . People are turning to podcasts for a reason. They are trying to help each other in the absence of proper alternatives. How beautiful.
I’d like to add that having intrusive thoughts does not make you violent. They are just thoughts and nobody has ever acted on intrusive thoughts. They are even caused by my antipsychotic meds!
sunny4lafy. I believe that there are people who worried that something bad was going to happen to themselves instead of themselves doing something wrong.
sunny4lady. I hope that you are doing fine and that the intrusive thoughts are not bothering you. I believe we all had are get intrusive thoughts whether we take antipsychotics are not. We don’t have to be mentally I’ll to have intrusive thoughts. My grandfather fought in World War One. I read his memoir. The war sounded incredibly scary. And the thoughts it could have caused my grandfather to have. Can you imagine being in a foxhole for three years during a bloody war?
My grandfather was not violent. I bet he only shot people with his gun when his life was in danger. But you know what bothers me. He was Russian and drafted and the racist Americans say that means he was bad.
Thank you so much for the clarification about the non-violence. My younger son is currently diagnosed with autism, bipolar disorder with psychosis and suicidal ideation, anxiety, and ADHD. Early onset schizophrenia and autism would, honestly, fit better with the same treatment. He is sixteen and has never been violent with others since starting to experience psychosis years ago, except once hitting his step-sister when he was eleven. He did not hurt her, and it was one strike. 11-year-old boys sometimes fight anyway.
Stephen you are a part of my 1 in 100 family. I think you know what that means. What you are doing is so great for our community. I think you understand that you have the ability to share and educate. Gotta love your dad. Stephen virtual hug.
Awesome video Stephen. It was also nice to see your Dad in the video too. 🙂 I have to agree with your Dad too when he said schizophrenia can be on a spectrum with more effected by the affliction than others (although I'm not a health professional etc, but I like to think I have a little understanding of the affliction, and a lot of that has come from you Stephen with the information you give in your videos). 🙂 In the case of psychosis I think a lot of it is state of mind, coupled with perhaps hallucinations and outside influences which have more of a dramatic effect when someone is trying to make sense of what they are experiencing. What I learned was the importance of presence in mind of noticing a decline in mental well-being, with a direction of further decline. The earlier it's addressed, the sooner someone can be on a path to recovery and hopefully avoiding all manner of really drastic mind-sets in the process. Personally I believe there is a real need to educate this, especially as mental health seems to be on the decline for the many. I also think there is another misconception and it's one of psychological impairment (psychosis being the exception here), but we are talking about schizophrenia and not psychosis per se. Personally I see schizophrenia as primarily a biological affliction. Now the stigma around the diagnosis (both the perceptions of others and also the perception of the one diagnosed) can have a huge detrimental effect on someone's mental well-being and as it was said in this video it's important someone doesn't allow that diagnosis to define them. I interpret mental well-being with healthy outlook on oneself, healthy outlook on others and a healthy outlook on life in general (this is positive thinking). When I think back in terms of maturity, what really made a difference is being secure within oneself to express/exert one's opinions in trying situations and also building upon our understanding of others and what motivates them, while being in touch with their emotional security/maturity in tow. Strength in upholding values, strength in oneself to correct peers (pausing their mind-set, while delivering a education in correct thinking from a place of wisdom - being right, but the only emphasis is on forming correct understandings for their benefit and for the benefit of others) and when someone knows we are acting in their best interest it tends to engage their minds more, although they might not agree with what we are saying. Being exposed to trying situations can really be the making of us, and expressing our thoughts and opinions on-line can be a great tool in nurturing inner strength and maturity, and should we get things wrong, have the character to apologise, but from a place of "I thought I was helping, but I was wrong", rather than demeaning ourselves. Having a understanding of others also allows for correct approaches and deliveries of opinions in those trying situations too. The more we get involved in discussions (online or otherwise), the quicker we grow in understanding, and gain inner strength to stand on our own two feet etc. (not saying you don't stand on your own two feet Stephen, I am just generalising here). Just to add maturity doesn't come from being independent or isolation, but from understanding others, their lives, their emotional and psychological state and being able to bring value into their lives while still being true to our own boundaries. It's a ever ending learning process, but unless we spread ourselves we are limiting our learning potential. Hope these comments have been of some help. 🙂
Your an amazing guy Steven everything will be alright me my self I am suffering from schizophrenia..it been 10 year long I will pray for u and for ur dad God bless
Thanks for making this video and for being so honest. I learned a lot about this disease from your videos and your honesty and willingness to share is impressive. I do not have nor do I know anyone with schizophrenia (at least that I am aware), but I find the subject very interesting. The part about people thinking that people with schizophrenia are aggressive, I think they mean when they are under psychosis. Not that they are inherently more aggressive but because of the delusions, hallucinations, maybe they feel threatened if they are paranoid, it would be hard to predict how they react. I think that is where the fear comes from. Keep up the good work with these videos! Cheers
Thank you so much for making these videos! They are very helpful and educational. I would like to put in a request if you don’t mind. Can you make a video talking just about your very first psychosis episode, what were your symptoms, how was your behavior, days leading up to your psychosis episode did you feel any different? Thank you so much for being here and being so honest. I look forward to watching more of you. Have a great day!
I am excited to see your video. I hope that I learn something new. If you want to know that I talked to myself when I was by myself which I am shocked that it’s a symptom of dissociative disorder which I believe has to do with a head injury. Recently, an MRI showed that I had a blood clot in my brain. That maybe I have been misdiagnosed. I talk to myself. When I sleep, I snore and I have sleep apnea. So I also have trouble falling asleep. I already know that people with schizophrenia are not violent and that people with schizophrenia are more likely to hurt themselves or be a victim of a violent crime. If only my doctor understood my brain injury. That dissociative disorder is the mental illness that comes closes to being like having multiple personality, but I don’t see myself that way. I believe that multiple personalities doesn’t exist. Dissociative disorder, I believe is like amnesia. That it is a highly confused disorder. Roseanne Barr was hit by a car. She was hospitalized and made a friend in the hospital. People ought to realize that everyone is human.
Thank you so much for this channel and for your work, and for helping others to understand schizophrenia. Honestly, I thought the definition of schizophrenia was a split personality. It is very helpful to all of us to have this type of educational series available. Please don’t put too much stress on yourself in making these videos. Continue to take care of yourself!
Thank you for your work on your channel. You are a remarkable young man with a caring and supportive father. You have helped me to understand my son's serious mental illness better which helps me support him better too. I wish you a long long time with good health and stability.
Thank you for very nice and informative video! I know schizo means split and phrenia, mind, if I'm not mistaken, and I really wonder why the psychiatrists chose to name our disorder that. Perhaps it's because when we experience positive versus negative symptoms we may appear as different persons, mentally wise (think is just me speculating, take it with a grain of salt). And I'm really glad and hopeful for myself when I look at your father and you, you guys make such a good team, and it proves to me that with appropriate medication and good support by your loved ones we can not only survive, but also thrive, such as in your case Stephen. Thank you again and best wishes to you and your community :)
I love this episode so much. Your videos are so educational and uplifting to me. Thank you! Doctors, psychiatrists, counselors and other mental health professionals should be watching as well to learn more and challenge their own personal biases. God bless you Stephen. God bless your Dad and Mom, too. Thank you💓
Hey Stephen I love this channel! My wife has schizophrenia and I have one question? Have you ever ran out of medication? My wife has been and I love her very much and don’t want her to hurt herself
You look wonderful. How do you keep your weight with the psychotic medication? My son is on clozapine now. I hope his life gets better. Thank you for all the information. God bless you and your family 🙏🏼
I love ur channel i totaly can relate and i am glad some body is saying the things i myself have never voiced out because i am so mind broken and totaly self unaware and beyond rock bottom😢
A doctor told me schizophrenia usually shows up before the age of 30 and usually not after that. I believe that is roughly the age the doctor said. My father had schizophrenia, I think it hit him in his early twenties.
Steven, how much do you feel Clozapine has helped you? I know some of the new meds being developed utilize some of the muscarinic receptor mechanisms that clozapine has a part in. Just wondering I guess if you find that med useful. Thanks!
My fiancé has paranoid schizophrenia, too. November he was hallucinating. He wound up in the behavior center. He lives with his mother, but she is 76 years old. I have a Bachelor’s in math, minor is psychology. Then I went to Texas Tech for a master’s is electrical engineering. I love psychology though. There are 2 types: positive and negative. You are positive: depressed, suicidal, and hallucinating somebody to take you life. My fiancé is positive: hallucinating, worried about somebody following him, etc. Negative schizophrenic is stalking, takes your life from you, hallucinating but evil. The movie, A Beautiful Mind, describes a math professor (I wanting to be a math professor) who has schizophrenia. You should watch it. I have watched it 2 weeks ago.
Hey Steven my son was diagnosed with Bipolar I am trying to understand psychosis so that I can help him and myself thank you for helping us learn about mental illness I greatly appreciate it 😊
@@matthardy1344 From my experience with psychosis the greatest takeaway was learning to have foresight in noticing the decline of my mental well-being (thoughts closing in on me, taking a focus away from what was going on around me in the present moment to inner dialogue and inner thoughts), then also having the presence of mind in noticing a direction of further decline. Time to seek the help of professionals. This knowledge can make the difference in terms of self-care. There is also the need for healthy communication. Judgemental and opinionated comments are barriers to honest dialogue. In terms of losing touch with reality, agreeing to not agree shows respect and validation of opinions. It's not taking someone down a road of buying into further thoughts of irrational thinking, but instead keeping lines of healthy communication open, allowing care givers etc. to stay in touch with thoughts and state of their mind etc. It also prevents triggering someone in psychosis as they still feel valued and respected. These are just my thoughts based upon my own experiences. Always take and seek the advice of health teams etc, but I hope some of this has been of help. 🙂
@@matthardy1344 I myself am bipolar, that's why I take clozapine. It's not always used in this context but it turned out to be right for me because my bipolar was really severe - my life is completely different without the intense destabilizing shifts (and the thought issues that you describe). Clozapine has a ton of side effects, but I've actually found the side effects, on balance, to be better than those of mood stabilizers. There's definitely a real pacifying effect, but it's too complex to summarize, and a lot of fatigue, but not this same foggy feeling I would get with other meds. If anything it makes me feel more lucid (definitely thanks to the antidepressant I take as well, I also take Remeron and I'm sure that I would not be doing as well without it. It balances out the Clozapine without causing any mood issues.) Anyway - in regards to what you asked - my advice would be to remember that bipolar disorder is an affective disorder, NOT a personality disorder. Meaning that it is not about who your son "is" but rather something that happens to him. More than anything he needs to know that the shifts do NOT define him and CAN be overcome so he can go on to do whatever he wants to do and not be defined by BD. When he is dealing with scary things try to be present for him and hopefully he has a really great doctor who can figure out the medication aspect. It's different for everybody, but once you find the right combo he will be so glad to have something he can actually derive benefit from. Nobody with BD, especially severe BD really wants to deal with the disorder but finding the right meds are key because some serious research is needed in the field to improve treatments and for the moment, it can be difficult. Clozapine + an AD is a really good option, IMO! The side effects are dose-dependent, too, so you can work with his doctor to make sure he gets what he needs and no more. idk how much this applies to you and your journey but I think it's just good advice in general for people with severe BD as well
I have a question: what are your thoughts on keto diet as a potential treatment or even cure for schizophrenia. I been watching interviews with Dr Chris Palmer and he talks about keto being a very good treatment for schizophrenia even in people that are not responding to available medications. So I’m very intrigued by it. And I was wondering what are your thoughts about it if you heard about it.
Verse 36 from surah Al-Isra ﴿وَلَا تَقْفُ مَا لَيْسَ لَكَ بِهِ عِلْمٌ ۚ إِنَّ السَّمْعَ وَالْبَصَرَ وَالْفُؤَادَ كُلُّ أُولَٰئِكَ كَانَ عَنْهُ مَسْئُولًا﴾ [ الإسراء: 36] English - Sahih International And do not pursue that of which you have no knowledge. Indeed, the hearing, the sight and the heart - about all those [one] will be questioned. Surah Al-Isra Full
Verse 36 from surah Al-Isra ﴿وَلَا تَقْفُ مَا لَيْسَ لَكَ بِهِ عِلْمٌ ۚ إِنَّ السَّمْعَ وَالْبَصَرَ وَالْفُؤَادَ كُلُّ أُولَٰئِكَ كَانَ عَنْهُ مَسْئُولًا﴾ [ الإسراء: 36] English - Sahih International And do not pursue that of which you have no knowledge. Indeed, the hearing, the sight and the heart - about all those God is responsible of that Surah Al-Isra Full
This my translation The psychatrics are lieing They don't believe that God is doing whatever he want on people and that he's the the owner of their ears and their heart and their vision
I would like to see a cure for schizophrenia to be honest. It could be our next step as humans. I look at the Holy Ghost is the third member of the godhead. He is a personage of spirit, without a body of flesh and bones. He is often referred to as the Spirit, the Holy Spirit, the Spirit of God, the Spirit of the Lord, or the Comforter. Adam and eve storyline. The biggest mistake humans made was in the garden of eden. Good and evil.
I think mosh people doh understand that what be going on in your head that is why schizophrenia is a mental illness that no one cares about I have schizophrenia and dyslexia and ADHD,DID because It is hard me to be myself because we is one😶
Yeah man is very hard to live with four mental disease it done hard with dyslexia and schizophrenia ADHD and DID and people in Trinidad people doh have no understanding mentally ill people are is more nicer than normal people I was in a mental facility and the mentally ill was more supportive than normal people them people make me feel to stay but when I realize that I have my mother and brother waiting on me I say I would go back home I can even talk self my talking rate is 10% to 20% It have time when I say better kill my self because I can't communicate or not I believe one all of we schizophrenic would have we head rise high but thanks for replying👍
I'm so glad to see your channel is growing. People are listening.
Thank you Pauline!
I am too Your story is going a lot of people clutching hope again thank you Paul
Stephen, you’re doing an amazing service with this channel, and you’re beautiful personality is fitting to be the host! I’m a parent of a newly diagnosed son who’s about your age, actually still in a recovery program for young adults, working part time there,etc. He’s on the same med as you and thankfully progressing well. Your story gives me hope. Your families’ support grounds me. Your sharing humanizes everything, helps us non sufferers understand so that we can help and to rid the ignorance around the illness. For that, thank you! Keep up the great work! You have found your calling, advocacy and maybe it has different faces in your life. As for this specific video, you touched on some subjects that infuriate me. The identity… all people are valuable, unique, special people in their own way, God doesn’t make mistakes, and as a neurologist once told my son “there is no such thing as a perfect human, everyone has strengths and weaknesses, you need to learn to use your strengths”, one of the best doctors we ever saw! . The reference of referring to someone as schizophrenic I hate it, no one is their illness. We don’t say “she’s lupus”, “he’s MS” “they’re cancer”, it’s a bad, old, phraseology that I hope evolves with sensitivity training from folks like you. The violence thing is simple ignorance and media enhanced, sadly. Refer to the treatment advocacy data, it’s an organization fighting for mental health progress. They state 29% of homicides are by “untreated” mentally ill, their intent is positive to eliminate with more available treatment. You know what grabbed my attention? That means 61% of homicides (the clear majority) are horrifyingly executed by people NOT suffering a biological brain disorder! Who’s afraid now? What’s truth, illicit drugs can make ALL people dangerous, which is known to be a contributor in violence. You’re doing an amazing job reaching people and balancing education, advocacy with human compassion and creating a community, huge fan!
Thank you very much Sunny for your incredibly kind and insightful comment!
Hi Stephen. I like to think of your channel as a classroom, and you're the professor. What makes this classroom different than most, is that you, the professor, has experienced the subject(s) you're teaching about. Many thanks to you for letting us see your day to day life, and the ups and downs you experience. It helps me to better understand my son. as he doesn't like to talk very much about his feelings. I'm so happy to see your bright countenance and to hear you dispel the myths that others believe about schizophrenia. Many thanks to you and your dad for caring enough for others to start this channel. You are loved!
Thank you very much Cheryl! That means a lot to me!
My husband was diagnosed with late onset schizophrenia, 5 months on, he seems calm. He’s highly medicated & plodding along.
I appreciate your videos so much you’ve no idea how helpful they are. Thank You guys Stephen your a pure soul.❤️❤️
Thank you Penny for your very kind comment and for sharing! Have a happy and healthy rest of your day!
check EEG, CSF for inflammation and autoantibodies. if you can... and MRI
yes please get him checked for auto immune encephalitis. Late onset is very rare there may be an underlying medical condition
Steven, you are a good man. And you are verry lucky to have such a good father. Bless you both.
Good talk Sephen. I love your honest and open affection with your Dad, too.
I hope policy makers and healthcare professionals are among your listeners so that they can learn too. This type of podcast should definitely be used as a learning tool.
You are providing personal feedback on a weekly basis telling of your highs, your lows, your ups and downs. You explain your medication history, side effects, coping strategies, interactions with therapist, etc.. The strategies that worked and that didn't. You give case history / background. We have seen you physically improve over time.
Keeping a diary / records certainly seemed to help in your case . Perhaps all family members should keep a diary? Though I suspect that this would be difficult during the throws of psychosis.
Medication alone is not sufficient. People need purpose, human interaction, understanding, and feedback as you say. I hope policymakers will listen and intervene.
I just listened to Psychiatrist Paul Conti being interviewed on the Lex Fridman podcast. It is worthwhile listening to. Many people are suffering badly.
The current mental health system is far from ideal. New approaches are needed, and more psychiatrist . People are turning to podcasts for a reason. They are trying to help each other in the absence of proper alternatives. How beautiful.
Thank you very much Noreen for your incredibly insightful comment and your very supportive encouragement! Have a happy and healthy rest of your day!
I’d like to add that having intrusive thoughts does not make you violent. They are just thoughts and nobody has ever acted on intrusive thoughts. They are even caused by my antipsychotic meds!
Thank you for sharing your insightful comments! Have a happy and healthy rest of your day!
sunny4lafy. I believe that there are people who worried that something bad was going to happen to themselves instead of themselves doing something wrong.
sunny4lady. I hope that you are doing fine and that the intrusive thoughts are not bothering you. I believe we all had are get intrusive thoughts whether we take antipsychotics are not. We don’t have to be mentally I’ll to have intrusive thoughts. My grandfather fought in World War One. I read his memoir. The war sounded incredibly scary. And the thoughts it could have caused my grandfather to have. Can you imagine being in a foxhole for three years during a bloody war?
My grandfather was not violent. I bet he only shot people with his gun when his life was in danger. But you know what bothers me. He was Russian and drafted and the racist Americans say that means he was bad.
People have and do act on intrusive thoughts. It's silly of you to claim otherwise.
Thank you so much for the clarification about the non-violence. My younger son is currently diagnosed with autism, bipolar disorder with psychosis and suicidal ideation, anxiety, and ADHD. Early onset schizophrenia and autism would, honestly, fit better with the same treatment. He is sixteen and has never been violent with others since starting to experience psychosis years ago, except once hitting his step-sister when he was eleven. He did not hurt her, and it was one strike. 11-year-old boys sometimes fight anyway.
Stephen you are a part of my 1 in 100 family. I think you know what that means. What you are doing is so great for our community. I think you understand that you have the ability to share and educate. Gotta love your dad. Stephen virtual hug.
Awesome video Stephen. It was also nice to see your Dad in the video too. 🙂 I have to agree with your Dad too when he said schizophrenia can be on a spectrum with more effected by the affliction than others (although I'm not a health professional etc, but I like to think I have a little understanding of the affliction, and a lot of that has come from you Stephen with the information you give in your videos). 🙂
In the case of psychosis I think a lot of it is state of mind, coupled with perhaps hallucinations and outside influences which have more of a dramatic effect when someone is trying to make sense of what they are experiencing. What I learned was the importance of presence in mind of noticing a decline in mental well-being, with a direction of further decline. The earlier it's addressed, the sooner someone can be on a path to recovery and hopefully avoiding all manner of really drastic mind-sets in the process. Personally I believe there is a real need to educate this, especially as mental health seems to be on the decline for the many.
I also think there is another misconception and it's one of psychological impairment (psychosis being the exception here), but we are talking about schizophrenia and not psychosis per se. Personally I see schizophrenia as primarily a biological affliction. Now the stigma around the diagnosis (both the perceptions of others and also the perception of the one diagnosed) can have a huge detrimental effect on someone's mental well-being and as it was said in this video it's important someone doesn't allow that diagnosis to define them. I interpret mental well-being with healthy outlook on oneself, healthy outlook on others and a healthy outlook on life in general (this is positive thinking).
When I think back in terms of maturity, what really made a difference is being secure within oneself to express/exert one's opinions in trying situations and also building upon our understanding of others and what motivates them, while being in touch with their emotional security/maturity in tow. Strength in upholding values, strength in oneself to correct peers (pausing their mind-set, while delivering a education in correct thinking from a place of wisdom - being right, but the only emphasis is on forming correct understandings for their benefit and for the benefit of others) and when someone knows we are acting in their best interest it tends to engage their minds more, although they might not agree with what we are saying. Being exposed to trying situations can really be the making of us, and expressing our thoughts and opinions on-line can be a great tool in nurturing inner strength and maturity, and should we get things wrong, have the character to apologise, but from a place of "I thought I was helping, but I was wrong", rather than demeaning ourselves. Having a understanding of others also allows for correct approaches and deliveries of opinions in those trying situations too. The more we get involved in discussions (online or otherwise), the quicker we grow in understanding, and gain inner strength to stand on our own two feet etc. (not saying you don't stand on your own two feet Stephen, I am just generalising here). Just to add maturity doesn't come from being independent or isolation, but from understanding others, their lives, their emotional and psychological state and being able to bring value into their lives while still being true to our own boundaries. It's a ever ending learning process, but unless we spread ourselves we are limiting our learning potential. Hope these comments have been of some help. 🙂
Thank you very much for sharing this detailed and insightful comment! Have a happy and healthy rest of your day!
Your an amazing guy Steven everything will be alright me my self I am suffering from schizophrenia..it been 10 year long I will pray for u and for ur dad God bless
Thank you for sharing and your kind words!
How do you cope
Thanks for making this video and for being so honest. I learned a lot about this disease from your videos and your honesty and willingness to share is impressive. I do not have nor do I know anyone with schizophrenia (at least that I am aware), but I find the subject very interesting. The part about people thinking that people with schizophrenia are aggressive, I think they mean when they are under psychosis. Not that they are inherently more aggressive but because of the delusions, hallucinations, maybe they feel threatened if they are paranoid, it would be hard to predict how they react. I think that is where the fear comes from. Keep up the good work with these videos! Cheers
I wish this would have been available 10 years ago! Thank you so much!
I love how the your father is supportive and share your journey with you.
Thank you very much! That means a lot to me. Have a happy and healthy rest of your day!
I wish you all the best Stephen, good health and strength!
Thank you so much for making these videos! They are very helpful and educational. I would like to put in a request if you don’t mind. Can you make a video talking just about your very first psychosis episode, what were your symptoms, how was your behavior, days leading up to your psychosis episode did you feel any different? Thank you so much for being here and being so honest. I look forward to watching more of you. Have a great day!
Thank you very much Maria! That is a great video idea. Thanks for watching!
I love you guys.and what a supportive father.wow well done dad.
Thank you very much!
Well done to you both for your positivity and honesty, it's genuinely inspiring.
I am excited to see your video. I hope that I learn something new. If you want to know that I talked to myself when I was by myself which I am shocked that it’s a symptom of dissociative disorder which I believe has to do with a head injury. Recently, an MRI showed that I had a blood clot in my brain. That maybe I have been misdiagnosed. I talk to myself. When I sleep, I snore and I have sleep apnea. So I also have trouble falling asleep. I already know that people with schizophrenia are not violent and that people with schizophrenia are more likely to hurt themselves or be a victim of a violent crime. If only my doctor understood my brain injury. That dissociative disorder is the mental illness that comes closes to being like having multiple personality, but I don’t see myself that way. I believe that multiple personalities doesn’t exist. Dissociative disorder, I believe is like amnesia. That it is a highly confused disorder. Roseanne Barr was hit by a car. She was hospitalized and made a friend in the hospital. People ought to realize that everyone is human.
Thank you for sharing Laurie!
Thank you so much for this channel and for your work, and for helping others to understand schizophrenia. Honestly, I thought the definition of schizophrenia was a split personality. It is very helpful to all of us to have this type of educational series available.
Please don’t put too much stress on yourself in making these videos. Continue to take care of yourself!
Very interesting conversation. I learn so much from you and your dad.
Thank you very much Paul!
Hi Stephen, I see when you were talking about suicidal you got very emotional. You are not alone ❤️❤️❤️
Thank you very much! I appreciate that!
Thank you for your work on your channel. You are a remarkable young man with a caring and supportive father. You have helped me to understand my son's serious mental illness better which helps me support him better too. I wish you a long long time with good health and stability.
Thank you very much!
This is the best chanel about schizophrenia i've ever seen.
Thank you for very nice and informative video! I know schizo means split and phrenia, mind, if I'm not mistaken, and I really wonder why the psychiatrists chose to name our disorder that. Perhaps it's because when we experience positive versus negative symptoms we may appear as different persons, mentally wise (think is just me speculating, take it with a grain of salt). And I'm really glad and hopeful for myself when I look at your father and you, you guys make such a good team, and it proves to me that with appropriate medication and good support by your loved ones we can not only survive, but also thrive, such as in your case Stephen. Thank you again and best wishes to you and your community :)
Thank you very much Little_Ingy! Your comment makes me feel good!
Another stellar video. Keep up the great work!
Thanks again!
Thank you for sharing your experiences! Much Love!
I love this episode so much. Your videos are so educational and uplifting to me. Thank you! Doctors, psychiatrists, counselors and other mental health professionals should be watching as well to learn more and challenge their own personal biases. God bless you Stephen. God bless your Dad and Mom, too. Thank you💓
Thank you very much Jean for your very kind words and support!
Greetings from Venezuela, South America, Stephen. I am diagnosed with schizophrenia too.
Thank you very much!
Hey Stephen I love this channel! My wife has schizophrenia and I have one question? Have you ever ran out of medication? My wife has been and I love her very much and don’t want her to hurt herself
You look wonderful. How do you keep your weight with the psychotic medication? My son is on clozapine now. I hope his life gets better. Thank you for all the information. God bless you and your family 🙏🏼
I love ur channel i totaly can relate and i am glad some body is saying the things i myself have never voiced out because i am so mind broken and totaly self unaware and beyond rock bottom😢
A doctor told me schizophrenia usually shows up before the age of 30 and usually not after that. I believe that is roughly the age the doctor said. My father had schizophrenia, I think it hit him in his early twenties.
Thank you for watching and sharing
Steven, how much do you feel Clozapine has helped you? I know some of the new meds being developed utilize some of the muscarinic receptor mechanisms that clozapine has a part in. Just wondering I guess if you find that med useful. Thanks!
I feel that Clozapine has been the most effective medicine for me.
Stephen you and your Dad are very caring understanding people
My fiancé has paranoid schizophrenia, too. November he was hallucinating. He wound up in the behavior center. He lives with his mother, but she is 76 years old. I have a Bachelor’s in math, minor is psychology. Then I went to Texas Tech for a master’s is electrical engineering. I love psychology though. There are 2 types: positive and negative. You are positive: depressed, suicidal, and hallucinating somebody to take you life. My fiancé is positive: hallucinating, worried about somebody following him, etc. Negative schizophrenic is stalking, takes your life from you, hallucinating but evil. The movie, A Beautiful Mind, describes a math professor (I wanting to be a math professor) who has schizophrenia. You should watch it. I have watched it 2 weeks ago.
Nice Videos keep it up Buddy love ya❤❤❤
Thanks!
Thank you very much Paul for my first super thanks! I really appreciate it! Have a happy and healthy rest of your day!
You are looking good Stephen keep up the good work 👍👍
Hey Steven my son was diagnosed with Bipolar I am trying to understand psychosis so that I can help him and myself thank you for helping us learn about mental illness I greatly appreciate it 😊
@@matthardy1344 From my experience with psychosis the greatest takeaway was learning to have foresight in noticing the decline of my mental well-being (thoughts closing in on me, taking a focus away from what was going on around me in the present moment to inner dialogue and inner thoughts), then also having the presence of mind in noticing a direction of further decline. Time to seek the help of professionals. This knowledge can make the difference in terms of self-care.
There is also the need for healthy communication. Judgemental and opinionated comments are barriers to honest dialogue. In terms of losing touch with reality, agreeing to not agree shows respect and validation of opinions. It's not taking someone down a road of buying into further thoughts of irrational thinking, but instead keeping lines of healthy communication open, allowing care givers etc. to stay in touch with thoughts and state of their mind etc. It also prevents triggering someone in psychosis as they still feel valued and respected. These are just my thoughts based upon my own experiences. Always take and seek the advice of health teams etc, but I hope some of this has been of help. 🙂
@@matthardy1344 I myself am bipolar, that's why I take clozapine. It's not always used in this context but it turned out to be right for me because my bipolar was really severe - my life is completely different without the intense destabilizing shifts (and the thought issues that you describe). Clozapine has a ton of side effects, but I've actually found the side effects, on balance, to be better than those of mood stabilizers. There's definitely a real pacifying effect, but it's too complex to summarize, and a lot of fatigue, but not this same foggy feeling I would get with other meds. If anything it makes me feel more lucid (definitely thanks to the antidepressant I take as well, I also take Remeron and I'm sure that I would not be doing as well without it. It balances out the Clozapine without causing any mood issues.) Anyway - in regards to what you asked - my advice would be to remember that bipolar disorder is an affective disorder, NOT a personality disorder. Meaning that it is not about who your son "is" but rather something that happens to him. More than anything he needs to know that the shifts do NOT define him and CAN be overcome so he can go on to do whatever he wants to do and not be defined by BD. When he is dealing with scary things try to be present for him and hopefully he has a really great doctor who can figure out the medication aspect. It's different for everybody, but once you find the right combo he will be so glad to have something he can actually derive benefit from. Nobody with BD, especially severe BD really wants to deal with the disorder but finding the right meds are key because some serious research is needed in the field to improve treatments and for the moment, it can be difficult. Clozapine + an AD is a really good option, IMO! The side effects are dose-dependent, too, so you can work with his doctor to make sure he gets what he needs and no more. idk how much this applies to you and your journey but I think it's just good advice in general for people with severe BD as well
Thank you Ismael!
I have a question: what are your thoughts on keto diet as a potential treatment or even cure for schizophrenia. I been watching interviews with Dr Chris Palmer and he talks about keto being a very good treatment for schizophrenia even in people that are not responding to available medications. So I’m very intrigued by it. And I was wondering what are your thoughts about it if you heard about it.
I don’t know about the Keto diet, but am interested in any info you may have. Thank you!
@@SurvivingSchizophrenia ruclips.net/video/xjEFo3a1AnI/видео.html
Verse 36 from surah Al-Isra
﴿وَلَا تَقْفُ مَا لَيْسَ لَكَ بِهِ عِلْمٌ ۚ إِنَّ السَّمْعَ وَالْبَصَرَ وَالْفُؤَادَ كُلُّ أُولَٰئِكَ كَانَ عَنْهُ مَسْئُولًا﴾
[ الإسراء: 36]
English - Sahih International
And do not pursue that of which you have no knowledge. Indeed, the hearing, the sight and the heart - about all those [one] will be questioned.
Surah Al-Isra Full
I was never afraid of my son.
I can't believe all you have said in this video, different people act differently. I also believe God can heal any illness.
My correction… 71% is from non mental health sufferers!
👍😊
Thank you Susanna!
Verse 36 from surah Al-Isra
﴿وَلَا تَقْفُ مَا لَيْسَ لَكَ بِهِ عِلْمٌ ۚ إِنَّ السَّمْعَ وَالْبَصَرَ وَالْفُؤَادَ كُلُّ أُولَٰئِكَ كَانَ عَنْهُ مَسْئُولًا﴾
[ الإسراء: 36]
English - Sahih International
And do not pursue that of which you have no knowledge. Indeed, the hearing, the sight and the heart - about all those God is responsible of that
Surah Al-Isra Full
This my translation
The psychatrics are lieing
They don't believe that God is doing whatever he want on people and that he's the the owner of their ears and their heart and their vision
I would like to see a cure for schizophrenia to be honest. It could be our next step as humans. I look at the Holy Ghost is the third member of the godhead. He is a personage of spirit, without a body of flesh and bones. He is often referred to as the Spirit, the Holy Spirit, the Spirit of God, the Spirit of the Lord, or the Comforter. Adam and eve storyline. The biggest mistake humans made was in the garden of eden. Good and evil.
Thank you for sharing
I need a cure I am suffering
I think mosh people doh understand that what be going on in your head that is why schizophrenia is a mental illness that no one cares about I have schizophrenia and dyslexia and ADHD,DID because It is hard me to be myself because we is one😶
Thank you very much for sharing!
Yeah man is very hard to live with four mental disease it done hard with dyslexia and schizophrenia ADHD and DID and people in Trinidad people doh have no understanding mentally ill people are is more nicer than normal people I was in a mental facility and the mentally ill was more supportive than normal people them people make me feel to stay but when I realize that I have my mother and brother waiting on me I say I would go back home I can even talk self my talking rate is 10% to 20% It have time when I say better kill my self because I can't communicate or not I believe one all of we schizophrenic would have we head rise high but thanks for replying👍
Big mistake to tell people my sons diagnosis.
MY FALSE BELIEFS INCLUDING BEING RICH AND MANY OTHER FALSE BELIEFS MAKES ME CRY EVERY TIME IT HURTS