Lindsay I hope you feel better. I just heard about your PICC line and I can understand your frustration and that you're scared and I love Simon he is a gorgeous dog I'll pray for you that you get better and I'll keep watching your channel keep me updated to how you're doing and when you get out of the hospital love ya😘😘😘❤️❤️❤️
Mannn i felt so bad for you when you started crying like that getting your picc line out, i have pots and eds too, ivs SUCK with eds, my sister went to the hospital and she has it too, they had to keep finding places to stick her cause her veins keept blowing she was stuck like a pin cushion, and I've had contrast blow a vein, and it always hurts SOO bad when i het any needle stuck in me, its TERRIBLE so i really felt that pain 😭💔
Lindsay, I just came across your channel as this video was suggested to me by the algorithm. I have an incomplete spinal cord injury, EDS, gastroparesis, am hard of hearing and other issues. I have a port implanted in my chest for IV hydration and antibiotics as needed (I get frequent UTIs). I’ve had several PICC lines and ports get infected, so I unfortunately understand too much of this video. I am currently self task training a 2.5 year old black lab/Great Dane mix to help pull my manual wheelchair (my shoulders sometimes don’t enjoy going up inclines, even if they are very small), help me balance if I am walking/standing, assist me with fall recovery when I end up on the ground, and alert me to knocks on the door/kitchen timers, etc. I like the “watch me” command you gave Simon before putting his food down. I am going to start using that with Woody (my dog). I currently just have him sit, stay and then tell him OK (his release word). I like Simon’s harness/handle combo. I have a vest for Woody, but no handle and have been looking for a harness or vest with a stable handle bc Woody is a bit too short for me to properly use him for balance without one. Did your school provide that for you, or did you purchase it on your own. If your school provided it, do you know what brand it is so I can try to search for it? I have subscribed and will watch more of your videos. Hope you are doing a lot better now! Amanda
I know that I’m late replying to this video. But dang girl! That’s a lot to go through, especially in one week! I’m so sorry that you had to deal with this. But I’m very grateful for your support system, and that you/your body powered through all of that. I also want to let you know that, it’s okay to cry and be emotional! Especially when you feel like you’re not in control, or if something changes. And if you need to take some time off of RUclips/social media, that’s completely understandable. Know that if you need time to rebuild strength physically and emotionally, it’s okay to rest. We will all be here and cheering you on, whenever you feel ready to continue filming your journey. (And I’m not trying to put pressure on you when I ask/suggest this.) Maybe you can share what it’s like for you and your family on thanksgiving, and if you have any traditions. Sending love, strength, and support your way! -Gracie
Thank you so much for your kind words Gracie! It was definitely a lot to cope with physically and mentally all at once, I’m so appreciative of your love and support! And it is okay to cry! I try to keep my videos on the more upbeat side but life’s not always just smiling it comes w ups and downs which I try to showcase ❤️ and I’m already planning on vlogging today/first thanksgiving with Simon! I’m doing much better now and trying to get back on a more normal filming schedule as my energy allows ❤️ so much love to you!
I just had sepsis too. I unfortunately ended up in the ICU because i wasn't aware of the symptoms of sepsis. It was hard and emotionally and scaring as hell. I had to wait two weeks before i could get a new line. They will help you. It will suck and it will be hard. Im here if you need support or advice. Praying for you.
Stay strong I been there I had blood infection and blood clot from my picc line back in September now am getting a port next week after so many poke they try to replace picc line for me but it didn’t go well and go in the right place for me only options was medi port it hard to have chronic illness I understand
I hope you are much better now! So glad you had Simon with you. I found your channel after being diagnosed with POTS earlier this year. Thank you for sharing your journey!
Linsay, I know I’m a bit late, and I don’t know if this is going to help at all, but I have IBS & cyclical vomiting syndrome. I end up in the hospital a few times a year, some years more than others just to simply be hydrated & to get IV meds since I can’t take them by mouth at that time. I’ve never once been offered a picc line or at home hydration even though I have asked. I don’t know how to go about it, anyways, that’s a story for another time. My point beautiful, is that you are so strong, you have strength inside of you that you don’t even realize. My mom used to hold my hand as I’d sob every time I went, and then C happened and I had to incoherently do it on my own while having panic attacks. Now, I still do, however, I never in a million years thought I would survive losing my mom. It’s been almost two years and I’m still here, struggling a lot but I’m still fighting. My mom gives me strength everyday and I know she will do the same for you. I know it’s scary and hard and painful, I avoid the hospital and let myself get worse sometimes because of the fear, but we must remain strong. Take the amazing love from your family and let that make you stronger. My instagram is @anjkxix if you ever wanna talk, I’d absolutely love to. But my love, you are so strong and powerful and you will get through this and whatever else is thrown in your path and I believe in you. Please, keep being an amazing role model to me, working through all of this and keeping your positivity. Thank you for lifting me up and I hope that you get better soon and stay strong beautiful! It’s okay to cry, just remember how strong you really are!
As for the veins, I don’t know if you’d mind letting me know why my IV blows within 12-24 hours, I know you can’t just give out medical advice, but the IV is always painful, my veins always roll or if they get it in, it’ll roll. I’ve had to have ulatrasounds to get them in, blood draws are awful, my veins literally give me the worst anxiety of all and it’s awful because the only reason I need it at that time is because I can’t take anything by mouth and so I panic more. I have similar symptoms to you, fainting, dehydration, dizziness, nausea, etc, no seizures. I don’t know what to do. PLEASE!!! Take care of yourself first my dear, and I know I’m just a stranger but please let me know if there’s anything I can do, even just to listen. Thank you for being a bright light in my life. Feel better beautiful, sending love from NY! & loving the puppo 🥺, I have an American bully & absolutely love dogs.
And this is why TPN/ central lines are the last resort. In Australia you would be given a j tube. The risks of sepsis and death with central lines are severe. This is insanity! Unless you have intestinal failure, why in gods name did a doctor allow this.
They tried to place a J tube first and placement failed, they also placed a surgical g tube for draining and venting so I wasn’t throwing up as much. the picc and Tpn was our last resort and it was fine for almost 2 years/has been my treatment for 2 years now bc of my pots gp hEDS and seizures. we use my line for fluids seizure meds nausea meds Tpn, you need to remember that not everyone’s treatment plan is going to be the same & not everyone is going to have a bunch of options. I was severely malnourished it was effecting my organs and my seizure meds weren’t being effective cuz pills + gp doesn’t mix well/can’t break down and absorb the meds properly so we really didn’t have a choice it’s been so helpful for me and this was my first bad experience w it
Wow hes doing GREAT for under 2yrs!! ❤❤
Lindsay I hope you feel better. I just heard about your PICC line and I can understand your frustration and that you're scared and I love Simon he is a gorgeous dog I'll pray for you that you get better and I'll keep watching your channel keep me updated to how you're doing and when you get out of the hospital love ya😘😘😘❤️❤️❤️
Mannn i felt so bad for you when you started crying like that getting your picc line out, i have pots and eds too, ivs SUCK with eds, my sister went to the hospital and she has it too, they had to keep finding places to stick her cause her veins keept blowing she was stuck like a pin cushion, and I've had contrast blow a vein, and it always hurts SOO bad when i het any needle stuck in me, its TERRIBLE so i really felt that pain 😭💔
Lindsay, I just came across your channel as this video was suggested to me by the algorithm. I have an incomplete spinal cord injury, EDS, gastroparesis, am hard of hearing and other issues. I have a port implanted in my chest for IV hydration and antibiotics as needed (I get frequent UTIs). I’ve had several PICC lines and ports get infected, so I unfortunately understand too much of this video.
I am currently self task training a 2.5 year old black lab/Great Dane mix to help pull my manual wheelchair (my shoulders sometimes don’t enjoy going up inclines, even if they are very small), help me balance if I am walking/standing, assist me with fall recovery when I end up on the ground, and alert me to knocks on the door/kitchen timers, etc.
I like the “watch me” command you gave Simon before putting his food down. I am going to start using that with Woody (my dog). I currently just have him sit, stay and then tell him OK (his release word). I like Simon’s harness/handle combo. I have a vest for Woody, but no handle and have been looking for a harness or vest with a stable handle bc Woody is a bit too short for me to properly use him for balance without one. Did your school provide that for you, or did you purchase it on your own. If your school provided it, do you know what brand it is so I can try to search for it?
I have subscribed and will watch more of your videos. Hope you are doing a lot better now!
Amanda
PS: Woody is a rescue, that’s why I am training him at age 2.5.
Make sure he is cleared by a vet for mobility work
My service dog came when you called Simon
I know that I’m late replying to this video. But dang girl! That’s a lot to go through, especially in one week! I’m so sorry that you had to deal with this. But I’m very grateful for your support system, and that you/your body powered through all of that. I also want to let you know that, it’s okay to cry and be emotional! Especially when you feel like you’re not in control, or if something changes. And if you need to take some time off of RUclips/social media, that’s completely understandable. Know that if you need time to rebuild strength physically and emotionally, it’s okay to rest. We will all be here and cheering you on, whenever you feel ready to continue filming your journey. (And I’m not trying to put pressure on you when I ask/suggest this.) Maybe you can share what it’s like for you and your family on thanksgiving, and if you have any traditions. Sending love, strength, and support your way! -Gracie
Thank you so much for your kind words Gracie! It was definitely a lot to cope with physically and mentally all at once, I’m so appreciative of your love and support! And it is okay to cry! I try to keep my videos on the more upbeat side but life’s not always just smiling it comes w ups and downs which I try to showcase ❤️ and I’m already planning on vlogging today/first thanksgiving with Simon! I’m doing much better now and trying to get back on a more normal filming schedule as my energy allows ❤️ so much love to you!
I just had sepsis too. I unfortunately ended up in the ICU because i wasn't aware of the symptoms of sepsis. It was hard and emotionally and scaring as hell. I had to wait two weeks before i could get a new line. They will help you. It will suck and it will be hard. Im here if you need support or advice. Praying for you.
Stay strong I been there I had blood infection and blood clot from my picc line back in September now am getting a port next week after so many poke they try to replace picc line for me but it didn’t go well and go in the right place for me only options was medi port it hard to have chronic illness I understand
I’m so sorry! Setbacks are so discouraging, but you are so strong! You got this!
Sending love, prayers, and spoons🤍
Then you so much! Sending love and spoons to you as well! 💖
I hope you are much better now! So glad you had Simon with you. I found your channel after being diagnosed with POTS earlier this year. Thank you for sharing your journey!
I’m doing a lot better now thank you!! And yes I’m so thankful Simon was home and able to be with me! Sending love and spoons 💙🥄
I am praying for you. I think of you often! I am glad you have your dog he so sweet. Hope your feeling better each day! Hugs
Hope your feeling better, i had blood infection earlier this year and its for sure rough
I hope you're feeling better Lindsay💙. Also, I agree w/the nurse who said Simon has sweet eyes. I was thinking that throughout the vlog.
The sweetest eyes and boy, I’m doing much better! Thank you ❤️
Sweet Momma !!!
Hope you are better. Simon is so handsome
Much better now, he is so handsome! ❤️
Linsay, I know I’m a bit late, and I don’t know if this is going to help at all, but I have IBS & cyclical vomiting syndrome. I end up in the hospital a few times a year, some years more than others just to simply be hydrated & to get IV meds since I can’t take them by mouth at that time. I’ve never once been offered a picc line or at home hydration even though I have asked. I don’t know how to go about it, anyways, that’s a story for another time. My point beautiful, is that you are so strong, you have strength inside of you that you don’t even realize. My mom used to hold my hand as I’d sob every time I went, and then C happened and I had to incoherently do it on my own while having panic attacks. Now, I still do, however, I never in a million years thought I would survive losing my mom. It’s been almost two years and I’m still here, struggling a lot but I’m still fighting. My mom gives me strength everyday and I know she will do the same for you. I know it’s scary and hard and painful, I avoid the hospital and let myself get worse sometimes because of the fear, but we must remain strong. Take the amazing love from your family and let that make you stronger. My instagram is @anjkxix if you ever wanna talk, I’d absolutely love to. But my love, you are so strong and powerful and you will get through this and whatever else is thrown in your path and I believe in you. Please, keep being an amazing role model to me, working through all of this and keeping your positivity. Thank you for lifting me up and I hope that you get better soon and stay strong beautiful! It’s okay to cry, just remember how strong you really are!
As for the veins, I don’t know if you’d mind letting me know why my IV blows within 12-24 hours, I know you can’t just give out medical advice, but the IV is always painful, my veins always roll or if they get it in, it’ll roll. I’ve had to have ulatrasounds to get them in, blood draws are awful, my veins literally give me the worst anxiety of all and it’s awful because the only reason I need it at that time is because I can’t take anything by mouth and so I panic more. I have similar symptoms to you, fainting, dehydration, dizziness, nausea, etc, no seizures. I don’t know what to do. PLEASE!!! Take care of yourself first my dear, and I know I’m just a stranger but please let me know if there’s anything I can do, even just to listen. Thank you for being a bright light in my life. Feel better beautiful, sending love from NY! & loving the puppo 🥺, I have an American bully & absolutely love dogs.
Simon is so cute💓
Thank you! He’s such a cutie
Wishing you the best lovely ❣️
Thank youu!! ❤️❤️
❤
I hope you are doing much better
hope you feel better Lindsay
Thank you!!
😘
I hope your better !
Doing much better now!
I hope you are feeling better now ❤️
Thank you! All the love ❤️
And this is why TPN/ central lines are the last resort. In Australia you would be given a j tube. The risks of sepsis and death with central lines are severe. This is insanity! Unless you have intestinal failure, why in gods name did a doctor allow this.
They tried to place a J tube first and placement failed, they also placed a surgical g tube for draining and venting so I wasn’t throwing up as much. the picc and Tpn was our last resort and it was fine for almost 2 years/has been my treatment for 2 years now bc of my pots gp hEDS and seizures. we use my line for fluids seizure meds nausea meds Tpn, you need to remember that not everyone’s treatment plan is going to be the same & not everyone is going to have a bunch of options. I was severely malnourished it was effecting my organs and my seizure meds weren’t being effective cuz pills + gp doesn’t mix well/can’t break down and absorb the meds properly so we really didn’t have a choice it’s been so helpful for me and this was my first bad experience w it
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