I am in the middle of my radiation treatment and I'm already feeling so tired. Everybody around me has a sort of an expectation of me that I need to stay positive all the time. It creates so much pressure and anxiety. I feel like if I'm not "listening to their advice to stay positive" then I'm failing. I am fatigued and honestly I'm so tired of hearing " Stay positive look for positive etc. I'm not complaining or sharing my feelings and emotions with my family and friends because I know I'll be judged by them.
Hi, thanks for your comment. The reaction of people around can be the complete opposite of what you need or want to hear. It can be very frustrating. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform, and the other women in this group are wonderful support as they know what you're going through. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Sunny, I hear you. Throughout my journey I too have heard about "staying positive" and how it could have been worse than it's been. I really didn't want to hear it. Hope you're OK, Sunny! We can do this, girl!
Feeling judged is the worst. No one in my life has said anything but I still feel like people are secretly judging me for being so tired all the time. The little rebel in me, though, says, 'Screw that!' I hope you have a little rebel to say this too 👍️
This is one of the most empathetic, affirming, down-to-earth acknowledgments of the breast cancer treatment experience I’ve seen. Very helpful suggestions too. Thank you, thank you. ❤
Thank you so much for your very kind feedback! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
This has helped me understand why after chemo surgery and radiation I am struggling with debilitating fatigue and now depression Which has hit me out of the blue When I thought once everything was finished my life would return to some sort of normal It was good to hear I will get my life back Thank you for this video 😊
Hi Sandra! So sorry for my delayed reply. I am so pleased this video gave you some hope. Things will improve but you do have to go after it. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Im so glad I discovered your videos, Jen. They are extremely helpful. Unfortunately, I dont get a lot of information like yours from my doctors. Just the basics- your skin will feel like you've got a sunburn,use Aquaphor on your skin. You may feel tired, or lose weight. But watching your videos has been the extra information and support I really need. Thank you, you are a blessing.
Thank you for your lovely feedback Susan! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Thank You for this I just finished my 4 weeks of radiation and my first day at home without having to go anywhere was a relief but I was so tired during the middle of the day and took a nap but still didn’t feel energetic afterwards. Your video was very informative and touched on things that wasn’t told to me by my team. I was truly searching to find something that will explain this tiredness and what to do. So thank you and I will be keeping up with you for more info.
Months after radiation had stopped, I still felt drained and getting worse. I found out I had developed a B12 deficiency that the oncologist did not look for.
Hi Sue, I have definitely heard of this happening before. Thank you for sharing your story. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
It really turns your world upside down but becoming educated on how to manage the side effects of treatment is the real key to empowering yourself and moving forward. Thanks for commenting and watching! Jen x
@@zoeymckeown3194 I’m really well thank you. I think it took me two to three months to stop feeling very tired. You will feel better, your body is using your energy to heal. I wish you well
Iam With You 100% I Have Never Been Sick A Day In My Life But Soon As I Turned 65 NY PSA Started Climbing I Was Disgniswd With Prostate Cancer.I Just Had My First 2 Doses Of Radiation And So Far I Feel Nothing At All .Hope It Stays That Way.
I just finished 6 weeks of radiation for prostate cancer and I am blown out beyond ex- hausted. I also have a brain injury and emphysema, so no wonder I am wiped out. Your message helped me get through the night, thanks and apologies if your posting was intended only for breast cancer... I imagine there are a lot of things in common to all radiation patients..
Thank you for your comment and it is great to know this video helped you. If it's possible for you definitely consider getting referred to an Exercise Physiologist. Jen x
Your comments are a relief to me. I found your videos only yesterday. Post bilateral mastectomy. Thought I was over with it but now am facing radiation. And I know so many other women have not been as fortunate as I have. But hearing you say, the radiation fatigue that may come on after the last treatment is often the big cadence of a series of stressful events is well, reassuring. Thank you.
Yes, I felt mental and physical fatigue for about 6 weeks after radiation. Physical activity is very helpful, I lift for a living at work 4hrs a day 5 days a week, it was painful at times and hard to push through my work day, but I truly believe exercise helped me heal quicker and helped me mentally focus on something besides treatment. We are all stronger than we think and resilient when faced with breast cancer.
Hi Christine, I agree - exercise is king for recovery after Breast Cancer. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
This video is spot on, Jen. My naturopath concurs and said to consider this time as convalescence. I just want to add that, in my experience, recovery is not a straight line graph. I will be fairly active for a couple of days and starting to think I am through this, then the next day I will have what I call a floppy day, where I can't even think, let alone be physically active. Thanks for another helpful video, Jen.
Totally agree Libby. The lack of a "non-linear recovery line" after Breast Cancer deserves it's own RUclips video!! We might have to discuss this idea AND the book!! xx
You have no idea additional side effect you have after radiation for colon cancer. All get colonoscopy,please. And more often than recommended 10 years. Safe yourself.
Thank you so much for this video, it has helped as a sanity check as I'm sooo tired and sleeping a ridiculous amount I feel like I'm losing my mind! Totally makes sense now you put it like this. Radiation feels like double-dipping the fatigue that is continuing after the chemo, but I know that it will pass and very much look forward to that! Also having some really annoying hot flashes which I guess the chemo has triggered, so sleeping at night can get awkward since that's when they are worst. Videos like this are so helpful in knowing I'm not just losing my mind 😊👍️
Hi Finn, thank you for your lovely feedback! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Got a flue straight after Radiation treatment.Kept me in bed for 2 weeks.probably a good thing as I know I would have been doing other things and not looking after me.Now I've had time to think things through.mourn.cry.celebrate my life and start again.The journey in life has its highs and definitely its lows.Am learning to take each day as it is,and so after Radiation,and various treatments take care of your self first.
So important to take care of yourself after such a traumatic period Nic. I've launched a new Private Group on Facebook - The Compass Community - a global online Breast Cancer Education & Support Network with free weekly live education sessions. I will be able to provide more interaction with everyone on this platform. If you would like to join please click on this link: facebook.com/groups/breastcancercompasscommunity
I've had lumpectomy 2 months ago and I'm on the last session of radiation which lasted 3 weeks total. No real side effects from the radiation. A bit more tired but it's more likely from being diagnosed with breast cancer, surgery 2 weeks after that, and then the radiation. Not to mention the shock of it all. Too much to assimilate all at once. I have not been feeling more tired than usual considering all that. I hope my experience helps someone.
Thanks for sharing your story Dana, it will absolutely help other women. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
@@TheBreastCancerPhysio Thank you for the invite Jen, but I am not on FB. Done with the radiation now for almost 3 weeks and will be starting on Aromatase Inhibitor this Sunday. This is the one I really, really fear. A LOT!
@@same5952 I'm holding an online Workshop on How to combat side effects of Hormone Blocking Medication (Mon 24 April) if you're interested I can email you the link? This will be done via Zoom so you don't need FB.
Thank you for your lovely feedback! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
THIS IS ALL TRUE. I am living my second BC occurrence. It isn't easier the second time around but I am better prepared. I HIGHLY suggest seeking out a therapist if you are able to, esp one that deals with PTSD and grief. This journey will hit you hard mentally AFTER all the treatments. you are not alone, we just need to process.
Hi, thank you for your lovely feedback! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
I would also add the drop in hormone levels for many of us. I was feeling great on Natural Hormone Therapy when I was diagnosed and had to stop cold turkey. Luckily I am in my early 60's so menopause itself has probably behind me. I am , however, having some hot flashes, experiencing major brain fog and just feel worn out on most days. There is so much going on it is no wonder we feel exhausted. I find myself laying down all the time and it really upsets me that I cannot do what I was doing just over a month ago.
Hi Tony, I agree with you. The topic of menopause and chronic fatigue post treatment is really under addressed. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Excellent video and totally on-point. I just finished radiation on Friday and this has been my experience and feeling as to why it’s happening. Our body, mind and soul have been through so much in the past year we really need to be kind to ourselves 👍💖🙏
Hi, I'm so sorry for my delayed reply. Radiation can be very tiring but slowly returning to exercise can help combat these symptoms. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. There is much more interaction on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Thank you so much. Your words are real and affirming. I finished radiotherapy three weeks ago. You outlined the psychological and emotional contribution to fatigue extremely well. I got through treatment with a lot of positivity and once finished, the recognition of the journey came into the picture! Yet friends and family feel it is all over! I think self compassion and self care is so important at this time and giving ourselves affirmation for what we have been through and acknowledging it is life changing. Many thanks for your empathy and solid guidance.
Thank you for your lovely feedback! I appreciate the time you took to send me this. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
I've been a bit numb from date of diagnosis. I've just finished my chemotherapy and have had a lumpectomy. Due to start my radiation therapy soon. This is such good advice and hearing I'm normal is reassuring. Thank you
Well done for getting through! But as I often discuss, the hard work does start after treatment finishes. It is a wild journey and a tough one for sure. Jen x
I'm so tired..... I'm at the end of my radiation. I started radiation 4 weeks after bilateral mastectomy and before this six months of chemo. I"m also on letrozole for the next 10 years. I'm also starting Verzenio for next two years. I had a bone scan and CAT scan last week (all negative for mets). I'm having a dexa scan in two week. I have worked full time during all of the treatment thanking two weeks off after the mastectomy. Writing this message to you has even helped me. Thank you for the reassurance.
Hi Lisa, it's such a long journey and your fatigue is a very common side effect, particularly when you are maintaining work at the same time. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Thank you for your lovely feedback Lisa! Fatigue is the pits :( I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Thanks for posting this! .. Just started Radiation on Monday: will be having it every day..... Chemo was very exhausting, but got through it.... Taking one day @ a time.. This was so very informative & so very helpful.... He'd my Surgery on May 8th.... Praying for complete Healing!... Having much Faith in God.. Praying for all of us too!!! 🙏💖
I am getting ready to begin radiation treatment and am thankful for this advice. I struggles with people telling me i am strong when I felt like jello. People think they are being positive for you but it was upsetting for me.
Struggling with the chemo tab after surgery was successful and cancer gone had 15 sessions of radiotherapy now on another chemo tablet which is like a strong weed killer keeps giving me infection and blood count wrong white cells well off so stopped it i never realised that a small tablet could make me so ill off it so on monday more blood tests and if ok go on a lower dose on Wednesday thank you for your help in explaining the situation and hope the tablets work two years ahead of chemo tablets and then eight of just one hopefully its a tough journey but you are giving me hope and comfort thank you so much ❤
Hi Carol, Thank you for your lovely feedback! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
I've been dealing with my cancer for over 4 years, having had 60 rounds of radiation and 20 months of chemo. It reappeared a half year ago and I had to get more radiation. The fatigue is the hardest factor for me to adjust to. I had been able to exercise with aerobics, mini-trampolines, weights, machines and recently I started red-light therapy over the last couple of months. I can go for 10 days or so, but then I hit a wall and all I can do is sleep. I simply can't do anything. But, after a week, I rise up and restart the battle again. I don't know if I'll recover back ever, but I don't want to give up yet. My friends, relatives and spouse still don't understand why I can't spring back and participate in activities like before, but I have given up trying to explain things to them. They really can't grasp the full impact and I guess I can't expect them to.
I am just going to start. Just the set up having to keep my head and neck totally still for 10 min ins stressful. I HAVE claustrophobia. and having not to move an inch for ten seconds is unbearable.
@@TheBreastCancerPhysio When I have an MRI I ask for a valium to take prior to the procedure. I think a low dose to relax her is a great idea as long as she has someone to drive her.
Thank you Jen, This topic was great timing for me as l only completed radiation last week and it has helped me understand how l am feeling today. Joan Holley
ok i dont know if i am taking this the wrong way but this video didnt help me one bit. I was expecting to hear the actual science behind the raditation that is making us fatigued, not our mental state of mind. smfh i was not fatigued at all before starting radiation, im an active person and now i cant even sweep my floors without stopping in between to sit down because im exhausted. I cant even cook a meal or do my laundry without being physically exhausted!! So to make a video saying its because we went through all these treatments and blah blah blah thats why were fatigued instead of explaining what the radiation is doing to us, shows you really dont know! It is literally the radiation being put into our bodies that is causing this extreme fatigue!!!!
Hi, sorry this video didn't meet your expectations. I think I was trying to approach it from the angle that many factors contribute to the fatigue during / following Radiation, not just the Radiation itself. Jen
I am half way through radiation and only just beginning to experience some minor side effects. I have found the side effects to be brushed aside, just use cream! The other problem for me is covid. My life is so limited because I cannot risk catching it and delaying treatment. It would extend it another 7 days but that seems an eternity. I cannot do all the normal activities. This has made it so much harder for me.
Hi Susan, it is really tough getting through Breast Cancer treatment particularly with Covid going on as well. I've launched a new Private Group on Facebook - The Compass Community - a global online Breast Cancer Education & Support Network with free weekly live education sessions. I will be able to answer questions and provide more interaction with everyone on this platform. If you would like to join please click on this link: facebook.com/groups/breastcancercompasscommunity
Thank you for your videos - they are very informative and I am grateful. I will be starting my radiation in 2 wks and will definitely keep your points in mind as I am already exhausted post chemo 🙏🙏
Thankyou for your lovely comment! I hope Radiation goes really well for you. Remember to exercise in any capacity you can during Radiation (up until you get any radiation burns). If you need help with how to exercise let me know. Jen x
@@TheBreastCancerPhysio thank you Jen - will do that for sure - for now have also really enjoyed your videos on posture and cording and doing those exercises - looking forward to your pectorals exercises. I have been also referred to physio here in Canada but there is a waitlist. Thank you for all the videos 🙏🙏
@@Nazanin49 I tell you what it is amazing how many women are on a waitlist for Physio after Breast Cancer around the world! If you get stuck and would like to do a Video Consult with me sooner then let me know! Jen x
Hi Alecia, I hope everything goes well for you through Radiation. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Hi Maureen, if you want to talk to me further about those fears I can probably alleviate quite a few! Let me know if you'd like to do a video consult. Jen x
Hi Shymala, thank you for your lovely comment. I've launched a Private Group on Facebook 'The Compass Community' - a global online Breast Cancer Education & Support Network with free weekly live education sessions and Q&A. There is much more interaction on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Thank you for your lovely feedback Ashley! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Hi Lisa, it is a very long road so take care of yourself. Your fatigue is common. I'm doing an online Workshop on how to combat persistent fatigue after Breast Cancer. If you'd like to join here is the link: lymphoedema.jenmckenzie.com.au/pfb
My mom completed radiation therapy about 12 days ago. But everyday body temperature is increased. We consulted with doctor and they give pills for feaver only. And now she is so weak to swallow any food.Dont know what to do now.
Hi Saikat, so sorry for my delayed reply. It sounds like your Mother may have an infection. Diagnosis is the most important first step so keep pushing the Medical Professionals to determine a diagnosis, then the correct medical treatment can be applied. I hope this helps. Jen
Hi Lou Anne! Thank you for your lovely feedback. I've launched a Private Group on Facebook 'The Compass Community' - a global online Breast Cancer Education & Support Network with free weekly live education sessions and Q&A. There is much more interaction on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Great advice, I just about finishing 5 weeks of radiation, before that it was Chemo, and surgery for a mastectomy, I enjoy your sessions it's great advice. 😊 Thanks,
@@mariamaceda4678 Hi Maria, still have pains in my legs and some numbness in my feet, the meds for pain are helping a bit, no one can tell me how long it will last or if I will be like this forever? Anyway I soldier on and keep myself busy, just got a little puppy to keep me focused on my gorgeous fur baby, Hope all is well with You? Cheers Zaira 😊
I am in the middle of my radiation treatment and I'm already feeling so tired. Everybody around me has a sort of an expectation of me that I need to stay positive all the time. It creates so much pressure and anxiety. I feel like if I'm not "listening to their advice to stay positive" then I'm failing. I am fatigued and honestly I'm so tired of hearing " Stay positive look for positive etc. I'm not complaining or sharing my feelings and emotions with my family and friends because I know I'll be judged by them.
Hi, thanks for your comment. The reaction of people around can be the complete opposite of what you need or want to hear. It can be very frustrating. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform, and the other women in this group are wonderful support as they know what you're going through. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Sunny, I hear you. Throughout my journey I too have heard about "staying positive" and how it could have been worse than it's been. I really didn't want to hear it. Hope you're OK, Sunny! We can do this, girl!
Feeling judged is the worst. No one in my life has said anything but I still feel like people are secretly judging me for being so tired all the time. The little rebel in me, though, says, 'Screw that!' I hope you have a little rebel to say this too 👍️
I totally get it! I have stage 4 breast cancer...when someone says stay positive, I know they mean well but I want to punch them
@@TheBreastCancerPhysio k
This is one of the most empathetic, affirming, down-to-earth acknowledgments of the breast cancer treatment experience I’ve seen. Very helpful suggestions too. Thank you, thank you. ❤
Thank you so much for your very kind feedback! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
@@TheBreastCancerPhysio thank you I will look for it!
I agree!!! Thank yoi sooo much!!!
This has helped me understand why after chemo surgery and radiation I am struggling with debilitating fatigue and now depression Which has hit me out of the blue When I thought once everything was finished my life would return to some sort of normal It was good to hear I will get my life back Thank you for this video 😊
Hi Sandra! So sorry for my delayed reply. I am so pleased this video gave you some hope. Things will improve but you do have to go after it. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Im so glad I discovered your videos, Jen. They are extremely helpful. Unfortunately, I dont get a lot of information like yours from my doctors. Just the basics- your skin will feel like you've got a sunburn,use Aquaphor on your skin. You may feel tired, or lose weight. But watching your videos has been the extra information and support I really need. Thank you, you are a blessing.
Thank you for your lovely feedback Susan! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Thank You for this I just finished my 4 weeks of radiation and my first day at home without having to go anywhere was a relief but I was so tired during the middle of the day and took a nap but still didn’t feel energetic afterwards. Your video was very informative and touched on things that wasn’t told to me by my team. I was truly searching to find something that will explain this tiredness and what to do. So thank you and I will be keeping up with you for more info.
Thank you for this video! I am feeling the adrenaline crash right at the end of my radiotherapy treatment. This video was validating
Months after radiation had stopped, I still felt drained and getting worse. I found out I had developed a B12 deficiency that the oncologist did not look for.
Hi Sue, I have definitely heard of this happening before. Thank you for sharing your story. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Thank you, I’m just about to start radiation, I’ve gone from never being ill to being a cancer patient, it’s a real shock to my system, thank you
It really turns your world upside down but becoming educated on how to manage the side effects of treatment is the real key to empowering yourself and moving forward. Thanks for commenting and watching! Jen x
@@zoeymckeown3194 I’m really well thank you. I think it took me two to three months to stop feeling very tired. You will feel better, your body is using your energy to heal. I wish you well
Iam With You 100% I Have Never Been Sick A Day In My Life But Soon As I Turned 65 NY PSA Started Climbing I Was Disgniswd With Prostate Cancer.I Just Had My First 2 Doses Of Radiation And So Far I Feel Nothing At All .Hope It Stays That Way.
Same. Good luck on healing
I just finished 6 weeks of radiation for prostate cancer and I am blown out beyond ex- hausted. I also have a brain injury and emphysema, so no wonder I am wiped out. Your message helped me get through the night, thanks and apologies if your posting was intended only for breast cancer... I imagine there are a lot of things in common to all radiation patients..
Thank you for your comment and it is great to know this video helped you. If it's possible for you definitely consider getting referred to an Exercise Physiologist. Jen x
Your comments are a relief to me. I found your videos only yesterday. Post bilateral mastectomy. Thought I was over with it but now am facing radiation. And I know so many other women have not been as fortunate as I have. But hearing you say, the radiation fatigue that may come on after the last treatment is often the big cadence of a series of stressful events is well, reassuring. Thank you.
Yes, I felt mental and physical fatigue for about 6 weeks after radiation. Physical activity is very helpful, I lift for a living at work 4hrs a day 5 days a week, it was painful at times and hard to push through my work day, but I truly believe exercise helped me heal quicker and helped me mentally focus on something besides treatment. We are all stronger than we think and resilient when faced with breast cancer.
Hi Christine, I agree - exercise is king for recovery after Breast Cancer. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
I have just finished chemo and radiation and you have answered most of my questions😅😅
This video is spot on, Jen. My naturopath concurs and said to consider this time as convalescence. I just want to add that, in my experience, recovery is not a straight line graph. I will be fairly active for a couple of days and starting to think I am through this, then the next day I will have what I call a floppy day, where I can't even think, let alone be physically active. Thanks for another helpful video, Jen.
Totally agree Libby. The lack of a "non-linear recovery line" after Breast Cancer deserves it's own RUclips video!! We might have to discuss this idea AND the book!! xx
You have no idea additional side effect you have after radiation for colon cancer. All get colonoscopy,please. And more often than recommended 10 years. Safe yourself.
Thank you so much for this video, it has helped as a sanity check as I'm sooo tired and sleeping a ridiculous amount I feel like I'm losing my mind! Totally makes sense now you put it like this. Radiation feels like double-dipping the fatigue that is continuing after the chemo, but I know that it will pass and very much look forward to that! Also having some really annoying hot flashes which I guess the chemo has triggered, so sleeping at night can get awkward since that's when they are worst. Videos like this are so helpful in knowing I'm not just losing my mind 😊👍️
Hi Finn, thank you for your lovely feedback! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
I sleep day and night now and now I’m even more worried that I’ll have the cancer come back because radiation causes cancer
Got a flue straight after Radiation treatment.Kept me in bed for 2 weeks.probably a good thing as I know I would have been doing other things and not looking after me.Now I've had time to think things through.mourn.cry.celebrate my life and start again.The journey in life has its highs and definitely its lows.Am learning to take each day as it is,and so after Radiation,and various treatments take care of your self first.
So important to take care of yourself after such a traumatic period Nic. I've launched a new Private Group on Facebook - The Compass Community - a global online Breast Cancer Education & Support Network with free weekly live education sessions. I will be able to provide more interaction with everyone on this platform. If you would like to join please click on this link: facebook.com/groups/breastcancercompasscommunity
I've had lumpectomy 2 months ago and I'm on the last session of radiation which lasted 3 weeks total. No real side effects from the radiation. A bit more tired but it's more likely from being diagnosed with breast cancer, surgery 2 weeks after that, and then the radiation. Not to mention the shock of it all. Too much to assimilate all at once. I have not been feeling more tired than usual considering all that. I hope my experience helps someone.
Thanks for sharing your story Dana, it will absolutely help other women. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
@@TheBreastCancerPhysio Thank you for the invite Jen, but I am not on FB. Done with the radiation now for almost 3 weeks and will be starting on Aromatase Inhibitor this Sunday. This is the one I really, really fear. A LOT!
@@same5952 I'm holding an online Workshop on How to combat side effects of Hormone Blocking Medication (Mon 24 April) if you're interested I can email you the link? This will be done via Zoom so you don't need FB.
Lovely video ihad 12 sessions already 13 more togo i do feelvery. Tired
Thank you for your lovely feedback! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
THIS IS ALL TRUE. I am living my second BC occurrence. It isn't easier the second time around but I am better prepared. I HIGHLY suggest seeking out a therapist if you are able to, esp one that deals with PTSD and grief. This journey will hit you hard mentally AFTER all the treatments. you are not alone, we just need to process.
Hi, thank you for your lovely feedback! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
I would also add the drop in hormone levels for many of us. I was feeling great on Natural Hormone Therapy when I was diagnosed and had to stop cold turkey. Luckily I am in my early 60's so menopause itself has probably behind me. I am , however, having some hot flashes, experiencing major brain fog and just feel worn out on most days. There is so much going on it is no wonder we feel exhausted. I find myself laying down all the time and it really upsets me that I cannot do what I was doing just over a month ago.
Hi Tony, I agree with you. The topic of menopause and chronic fatigue post treatment is really under addressed. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Excellent video and totally on-point. I just finished radiation on Friday and this has been my experience and feeling as to why it’s happening. Our body, mind and soul have been through so much in the past year we really need to be kind to ourselves 👍💖🙏
Thank you. I finished radiation therapy Oct 18. and now I feel hit by a train. 😢
Hi, I'm so sorry for my delayed reply. Radiation can be very tiring but slowly returning to exercise can help combat these symptoms. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. There is much more interaction on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Brilliant Jen - this is such a true definition following breast cancer treatment and beyond. Well done, very informative and helpful.
Thanks for your lovely feedback Sandy!! Hope you are well hun! x
Thank you so much. Your words are real and affirming. I finished radiotherapy three weeks ago. You outlined the psychological and emotional contribution to fatigue extremely well. I got through treatment with a lot of positivity and once finished, the recognition of the journey came into the picture! Yet friends and family feel it is all over! I think self compassion and self care is so important at this time and giving ourselves affirmation for what we have been through and acknowledging it is life changing. Many thanks for your empathy and solid guidance.
Thank you for your lovely feedback! I appreciate the time you took to send me this. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
I've been a bit numb from date of diagnosis. I've just finished my chemotherapy and have had a lumpectomy. Due to start my radiation therapy soon.
This is such good advice and hearing I'm normal is reassuring.
Thank you
Almost done Jen! 3 more sessions to go! Thank you so much for all of your videos, they have really helped me through this wild journey.❤️
Well done for getting through! But as I often discuss, the hard work does start after treatment finishes. It is a wild journey and a tough one for sure. Jen x
I'm so tired..... I'm at the end of my radiation. I started radiation 4 weeks after bilateral mastectomy and before this six months of chemo. I"m also on letrozole for the next 10 years. I'm also starting Verzenio for next two years. I had a bone scan and CAT scan last week (all negative for mets). I'm having a dexa scan in two week. I have worked full time during all of the treatment thanking two weeks off after the mastectomy. Writing this message to you has even helped me. Thank you for the reassurance.
Hi Lisa, it's such a long journey and your fatigue is a very common side effect, particularly when you are maintaining work at the same time. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Thank you for this!!! I work nights 12 hrs fatigue is awful and I missed the Chemo part!
Thank you for your lovely feedback Lisa! Fatigue is the pits :( I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Thanks for posting this! ..
Just started Radiation on
Monday: will be having it every day.....
Chemo was very exhausting, but got through it....
Taking one day @ a time..
This was so very informative & so very helpful....
He'd my Surgery on May 8th....
Praying for complete Healing!...
Having much Faith in God..
Praying for all of us too!!!
🙏💖
I am getting ready to begin radiation treatment and am thankful for this advice. I struggles with people telling me i am strong when I felt like jello. People think they are being positive for you but it was upsetting for me.
Struggling with the chemo tab after surgery was successful and cancer gone had 15 sessions of radiotherapy now on another chemo tablet which is like a strong weed killer keeps giving me infection and blood count wrong white cells well off so stopped it i never realised that a small tablet could make me so ill off it so on monday more blood tests and if ok go on a lower dose on Wednesday thank you for your help in explaining the situation and hope the tablets work two years ahead of chemo tablets and then eight of just one hopefully its a tough journey but you are giving me hope and comfort thank you so much ❤
Hi Carol, Thank you for your lovely feedback! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
I've been dealing with my cancer for over 4 years, having had 60 rounds of radiation and 20 months of chemo. It reappeared a half year ago and I had to get more radiation. The fatigue is the hardest factor for me to adjust to. I had been able to exercise with aerobics, mini-trampolines, weights, machines and recently I started red-light therapy over the last couple of months. I can go for 10 days or so, but then I hit a wall and all I can do is sleep. I simply can't do anything. But, after a week, I rise up and restart the battle again. I don't know if I'll recover back ever, but I don't want to give up yet. My friends, relatives and spouse still don't understand why I can't spring back and participate in activities like before, but I have given up trying to explain things to them. They really can't grasp the full impact and I guess I can't expect them to.
I am just going to start. Just the set up having to keep my head and neck totally still for 10 min
ins stressful. I HAVE claustrophobia. and having not to move an inch for ten seconds is
unbearable.
was told I need radiation tx Daily for 5 mons.!!!
I just need eo get through radiation treatment.
ten minutes
Hi Nancy, have you asked if they can sedate you for the sessions? Jen
@@TheBreastCancerPhysio When I have an MRI I ask for a valium to take prior to the procedure. I think a low dose to relax her is a great idea as long as she has someone to drive her.
Incredible video, well presented, extremely informative with empathy and true understanding - Bless you and thank you
Thank you Jen, This topic was great timing for me as l only completed radiation last week and it has helped me understand how l am feeling today. Joan Holley
So great to hear this resonated with you Joan! I really feel the fatigue is so much more than just the radiation. Jen x
ok i dont know if i am taking this the wrong way but this video didnt help me one bit. I was expecting to hear the actual science behind the raditation that is making us fatigued, not our mental state of mind. smfh i was not fatigued at all before starting radiation, im an active person and now i cant even sweep my floors without stopping in between to sit down because im exhausted. I cant even cook a meal or do my laundry without being physically exhausted!! So to make a video saying its because we went through all these treatments and blah blah blah thats why were fatigued instead of explaining what the radiation is doing to us, shows you really dont know! It is literally the radiation being put into our bodies that is causing this extreme fatigue!!!!
Excellent video and advice❤
Thank you so much for your video. This is so me right now. I appreciate your reassuring words.
Your so right I was like wow I'm dam tired too after eating two tacos😂
You don't really clinically answer your title question
Hi, sorry this video didn't meet your expectations. I think I was trying to approach it from the angle that many factors contribute to the fatigue during / following Radiation, not just the Radiation itself. Jen
I am half way through radiation and only just beginning to experience some minor side effects. I have found the side effects to be brushed aside, just use cream!
The other problem for me is covid. My life is so limited because I cannot risk catching it and delaying treatment. It would extend it another 7 days but that seems an eternity. I cannot do all the normal activities. This has made it so much harder for me.
Hi Susan, it is really tough getting through Breast Cancer treatment particularly with Covid going on as well. I've launched a new Private Group on Facebook - The Compass Community - a global online Breast Cancer Education & Support Network with free weekly live education sessions. I will be able to answer questions and provide more interaction with everyone on this platform. If you would like to join please click on this link: facebook.com/groups/breastcancercompasscommunity
Thank you for your videos - they are very informative and I am grateful. I will be starting my radiation in 2 wks and will definitely keep your points in mind as I am already exhausted post chemo 🙏🙏
Thankyou for your lovely comment! I hope Radiation goes really well for you. Remember to exercise in any capacity you can during Radiation (up until you get any radiation burns). If you need help with how to exercise let me know. Jen x
@@TheBreastCancerPhysio thank you Jen - will do that for sure - for now have also really enjoyed your videos on posture and cording and doing those exercises - looking forward to your pectorals exercises. I have been also referred to physio here in Canada but there is a waitlist. Thank you for all the videos 🙏🙏
@@Nazanin49 I tell you what it is amazing how many women are on a waitlist for Physio after Breast Cancer around the world! If you get stuck and would like to do a Video Consult with me sooner then let me know! Jen x
@@TheBreastCancerPhysio thanks so much for your offer 🙏will do for sure 🙏🙏🌷🌷
m post chemo and my energy is returning. Dread the radiation tx, see above
going though rotation treatment soon
Hi Alecia, I hope everything goes well for you through Radiation. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
I am about to start and have so many fears. Thanks for all the great information.
Hi Maureen, if you want to talk to me further about those fears I can probably alleviate quite a few! Let me know if you'd like to do a video consult. Jen x
All your content is amazing and useful, but this may be the most important yet. Thank you so very much.
Hi Shymala, thank you for your lovely comment. I've launched a Private Group on Facebook 'The Compass Community' - a global online Breast Cancer Education & Support Network with free weekly live education sessions and Q&A. There is much more interaction on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Thanks so much, Jen, I have clicked to join. Ty for putting together this resource. See you there
Thanks for another great video Jen.
Thanks for your lovely feedback Marie!! Really appreciate it! x
Wonderful video!
Thank you for your lovely feedback Ashley! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
You are awesome !!
Awww! Thank you so much Maha!! Appreciate your comment and for watching my video! x
5 months chemotherapy, DMX and 6 weeks radiation starts next week. Ugh....im exhausted already!
Hi Lisa, it is a very long road so take care of yourself. Your fatigue is common. I'm doing an online Workshop on how to combat persistent fatigue after Breast Cancer. If you'd like to join here is the link: lymphoedema.jenmckenzie.com.au/pfb
Thank you!!!
My mom completed radiation therapy about 12 days ago. But everyday body temperature is increased. We consulted with doctor and they give pills for feaver only. And now she is so weak to swallow any food.Dont know what to do now.
Hi Saikat, so sorry for my delayed reply. It sounds like your Mother may have an infection. Diagnosis is the most important first step so keep pushing the Medical Professionals to determine a diagnosis, then the correct medical treatment can be applied. I hope this helps. Jen
@@TheBreastCancerPhysio thank you so much for your guidance.
🌸🌸🌸🌸🌸🌸🌸🌸🌸🌸🌸🌸🌸
You are absolutely right! Thank you so much for validating this experience!
Hi Lou Anne! Thank you for your lovely feedback. I've launched a Private Group on Facebook 'The Compass Community' - a global online Breast Cancer Education & Support Network with free weekly live education sessions and Q&A. There is much more interaction on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Great advice, I just about finishing 5 weeks of radiation, before that it was Chemo, and surgery for a mastectomy, I enjoy your sessions it's great advice. 😊 Thanks,
Thankyou for your lovely feedback Zaira! So glad the videos are helpful! Jen x
Thank you so much for commenting and watching Zaira! I hope you are recovering well! It's a very tough time. Jen x
How are you now?
@@mariamaceda4678
Hi Maria,
still have pains in my legs and some numbness in my feet, the meds for pain are helping a bit, no one can tell me how long it will last or if I will be like this forever? Anyway I soldier on and keep myself busy, just got a little puppy to keep me focused on my gorgeous fur baby, Hope all is well with You? Cheers Zaira 😊
@@zairascarbrow4956 good things happen to those who wait. 🙏