I have seen so many different doctors after my breast cancer diagnosis. I'm in my first week of radiation therapy, after the first day my radiation therapy started the pain returned. I was miserable also my breast was very red before the radiation therapy starded. I was told I wouldn't feel anything from the radiation therapy, except for being tired. after the third week!!! Thank you for this video, I was starting to think I was crazy.
Thank you Jen. I'm in California USA and just had a lumpectomy w/lymph node removal 5 days ago. Will be starting Radiation in the next few weeks. This is amazing information that I will arm myself with when treatments start. I feel empowered already. We can never be too well informed. 💕
Hello Kat from Cali! Lovely to hear from you. Thank you for watching and commenting. You are right - if you are seeking information to empower yourself AND you can access it, it will give you a greater sense of control over a tough situation. I hope everything goes well with your Radiation. Jen x
hello, I have been looking all over for info about scar tissue/ radiation since a lumpectomy and radiation. it seems the pain is worse, stabbing under left breast ,it hurts so much it takes my breath away. I have to be very careful about how I turn to the left esp driving. I live near Atlanta ga, North. Atlanta. can u rec anyone who can help me with this. this is going.pn 8-10 yrs
Thank you for taking the time to make this video❤ I wish I had some of this information sooner in my treatment, but I am still grateful to apply it now.
Thanks for the comments on the prevention of this condition. I'm 10 sessions in on radiation, I've been doing lotions and strengthing exercises prior to radiation, and now I can do message to help prevent fibrosis. I'm all about doing what may prevent problems. Being passive is not positive, and we need to be super-positive to recover. Thanks for your videos!
My pleasure Jayne! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Thank you so much for this video! The best I have seen yet, not only in content, but also in positive encouragement for improving this condition. From the bottom of my heart, thank you.
You are so welcome!! Thank you for your lovely feedback - really appreciate it. I have a Private Group on Facebook 'The Compass Community' - a global online Breast Cancer Education & Support Network with free weekly live education sessions and Q&A. There is much more interaction on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
I FOUND THIS VIDEO WONDERFUL. I WISH THAT IN CANADA WHERE I LIVE THAT BOTH OUR SURGEONS AND OUR RADIOLOGY ONCOLOGISTS WOULD ADVISE PATIENTS LONG BEFORE THEIR SURGERIES AND RADIATION, IN PARTICULAR ABUT THE POSSIBILITY OF THE FIBROSIS. I AM ALMOST COMPLETELY UNABLE TO LIVE A NORMAL LIFE DUE TO, NOT ONLY THE PAIN AT THE TIME I AM IN PHYSICAL MOTION BUT DUE TO THE NUMBER OF DAYS THAT THE PAIN IS EVEN WORSE AFTER I HAVE DONE ANY PHYSICAL ACTIVITY THAT MOVES MY UNDERARM, BREAST OR RIB CAGE. IT IS ACTUALLY MUCH WORSE IN THE EVENING AFTER ANY PHYSICAL ACTIVITY AND THE NEXT DAY THAN IT IS WHILE I AM MOVING AROUND. ALONG WITH LIGHTNING BOLTS AND STABBING PAIN WHILE I MOVE THE NEXT DAY IT FEELS LIKE MY RIBS HAVE BEEN HIT BY A SLEDGE HAMMER. SO THAT AS I SIT UP OR LIE DOWN IT IS EXCRUCIATING. IF I RAISE MY ARM, THE DAY AFTER ANY PHYSICAL ACTIVITY SUCH AS JUST WEEDING A SMALL PATCH OF GARDEN THE PAIN THAT I HAVE JUST DESCRIBED WENT ON FOR 21 DAYS, ALMOST CAUSING ME TO CANCEL A VACATION THAT WE HAD BEEN PLANNING FOR MONTHS. I AM MAKING THIS COMMENT BECAUSE I BELIEVE THAT THE MOBIDERM THAT YOU RECOMMENDED IN YOUR VIDEO COULD REALLY HELP ME BUT IT DOESN'T SEEM TO BE AVAILABLE IN CANADA. I TRIED TO ORDER IT FROM THE AUSTRALIAN WEB SITE BUT THEY ONLY SEEM TO SHIP WITHIN AUSTRALIA. CAN YOU DIRECT ME TO A COUNTRY THAT WILL SHIP INTERNATIONALLY, PLEASE ?
Hi Shannon, I can help you with the Mobiderm issue. I am not making any further RUclips Videos but I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform with Mobiderm alternatives and we discuss Radiation Fibrosis frequently. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Wish my radiation oncologist would have given me this information, instead they just make you sign something and when you ask him side effects oh none of my patients ever had side effects
I hand a lumpectomy yesterday. I could agree with you more that the more knowledge the professionals can impart the better. Thank you for this well presented information.
After my lumpectomy , because tissue had been “moved around” , I had a lumpy area . When scar healed I decided to massage my breast to see if I could disperse the lumps a bit. It was with surprise that I found lumps did reduce .... now I have just finished radiation... so thank you for this information... I’m feeling a slight pain along the side of my breast on ribs... will wait to see if I get very much burn on my skin ... at present still have Mepitel in place , recommended to leave it on for a few weeks by radiology nurse.. I will massage again when breast has recovered!
Thanks so much for your comment Carole! Re-commencing the breast massage once all burns and skin tenderness have settled is the best way to go. Scar tissue is usually quite responsive to just simple massage. Message me if you have any dramas! Jen x
@@TheBreastCancerPhysio I have come thru with very little side effects.It is now 3 weeks since I finished radiation... a slight patch of rash appeared one week ago... treating it with creme. .. otherwise I’m fine... no swelling , or discomfort! Thank you for enquiring!
I should mention , I had a one week treatment ... instead of gold standard of 3 weeks... following British plan ... which can be done if there are no health issues ... higher dose of radiation per session ... 26 gray over the one week.
Thank you Jen. My doctor is very happy with my healing progress. It is directly attributed to what I have learned on your videos. As many have said before this would have been great information to get ahead of the surgery.
Hi Fran! So sorry for my very slow reply. Lovely to hear the videos have helped you so much! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Hello from Oregon, USA. Thanks for this great educational channel. I’m a massage therapist trying to help a new client dealing with radiation fibrosis. You refer to demonstrations of you applying massage techniques on a patient but I am unable to find them in the list of your videos. Any videos of actual demonstrations of self massage would be helpful also. Thanks so much Jen!
Hi Eliza! Thanks for your comment. Unfortunately my editing skills were not up to scratch when I filmed this video many months prior! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A (Health Professionals welcome!). I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Thank you Amalia! So good to hear! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Thank you I am experiencing pain that has started a year after lumpectomy and two months after radiation. I have a large seroma in the lumpectomy site. I also have lots of fluid in breast.
Hi Yael, thank you very much for your comment. Have you had the seroma aspirated (drained?). I believe seromas can still cause chronic breast pain (although some Health Professionals would disagree with this). I would discuss aspiration under ultrasound guidance as I have had a number of patients who have had seromas drained for successful pain relief. Jen
@@TheBreastCancerPhysio Thank you so much for your reply. I have not had it aspirated as my surgeon thinks it would get infected. She feels that the fluid will go back into my body and be disolved. I myself have been putting compression on the breast and it feels as if the seroma has gone down quite a bit. I will see my surgeon day after tomorrow and will ask her about this. I appreciate your kind words. Connie~
Another extremely informative and educational video on managing and understanding what the doctors and care team dont tell you. I am visiting the Sunshine Coast after my radiation finishes and considering booking to see you if you are taking new patients (I live in Gladstone)
Thank for your informative video. I'm learning a lot about what I can do after treatment. I'm surprised there's not more information provided to the public with what I've just learnt, that 1 in 8 women get breast cancer. Much appreciated.
I really can’t thank you enough for making these videos Jen. You are concise, incredibly informed and most of all you make women all around the world feel a sense of empowerment over their bodies post breast cancer. As a 31 year old undergoing radiation therapy currently, I am so appreciative of all this amazing content. When I am feeling overwhelmed by side effects your videos give me a sense of clarity and hope. Thank you so very much.
Hi Laura! So very sorry for my delayed reply. I am playing catch up on comments. Thank you very much for your lovely feedback, I really appreciate it! Jen x
When is it too late to try to obtain benefit from massage therapy? I am 15 years out from lumpectomy and radiation and have worsening pain. It is not constant, however when the pain occurs it can literally bring me to my knees. Thank you, Shirley
Hello Jen, thank you for your informative videos. One thing would be nice to see is your replies to others comments because most of us share the same kind of symptoms and when one person asks a question, others can benefit by reading the answer. Thank you
Hi Mary, thank you for your feedback. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform and there is a lot more interaction on there between members. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
This is so informative : you are indeed so correct re HP not really being proactive with treating breast pain . I completed my radiotherapy mid February and indeed would have been so good to have had this approach before commencing . Fining your videos so useful
Hi Jen just finished watching the video, it,s great and so are you. I,am so happy Emma found you results were good on first day. Thank you. Patricia Rogers
Thank you for your lovely feedback Trish! Really appreciate you watching the video and so glad you found it helpful. Look forward to seeing you again soon! Jen x
Hello thank you so much this is so informative. I had a lumpectomy and 20 rounds of radiation 1 year ago and I have started getting these spasm like sensations that makes me stop in my track. Have you had any of your patients describe the pain as such? I am going to order the microderm. I am stomach sleeper and I am still unable to sleep on my stomach is this common? Thanks again for all the information
Hi, yes all of your symptoms are very common after Radiation. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
I just had a lumpectomy today with radiation to follow in about 4 weeks. I was wondering how much mobiderm to order. There smallest order is 9 feet long. Do i need that much and do you know if they ship to USA? I appreciated your video so much as i have been wondering about these issues.
Hi, so sorry for my delayed reply. Yes, medical grade compression bras like Prairie Wear can be really beneficial. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
I just had my 4 week check up with my radiation oncologist and it was the first I heard of hardening of the skin or fibrosis that can happen after radiation. He said to massage for a year or so once to three times a day to prevent it but nothing else. Thank you for this information.
Thank you for your lovely feedback! Such a shame so many women don't get informed about this side effect. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Thank you for this information! I wish I would of known all this 5 yrs ago. Can I still do massage therapy or is it to late? I was told it was something I would have to live with.
Hi Karla! Yes you can still start massaging now. I've launched a new Private Group on Facebook - The Compass Community - a global online Breast Cancer Education & Support Network with free weekly live education sessions. I will be able to answer your questions and provide more interaction with everyone on this platform. If you would like to join please click on this link: facebook.com/groups/breastcancercompasscommunity
Thankyou for your lovely feedback Amber! I've launched a new Private Group on Facebook - The Compass Community - a global online Breast Cancer Education & Support Network with free weekly live education sessions. I will be able to provide more interaction with everyone on this platform. If you would like to join please click on this link: facebook.com/groups/breastcancercompasscommunity
Hi Nic! So sorry for my delayed reply. I recently did a product review video on the MooGoo Skincare range which ships worldwide. Also discuss with your Radiation Nurses and Oncologist. I've launched a new Private Group on Facebook - The Compass Community - a global online Breast Cancer Education & Support Network with free weekly live education sessions. I will be able to provide more interaction with everyone on this platform including treatment demonstrations. If you would like to join please click on this link: facebook.com/groups/breastcancercompasscommunity
I've launched a new Private Group on Facebook - The Compass Community - a global online Breast Cancer Education & Support Network with free weekly live education sessions. I will be able to provide more interaction with everyone on this platform. If you would like to join please click on this link: facebook.com/groups/breastcancercompasscommunity
My pleasure! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
@@sallysmith2467 sorry about that, it should have gone through. You can try sending it again: enquiries@thebreastcancerphysio.com OR through my Facebook Page The Breast Cancer Physio. Let me know if you can't get it through again Sally. Jen x
I just completed 30 days of radiation after having two chemo treatments. My skin became very red, and then darkened under the armpit, and around the scar for a lymph gland removal. My doctor gave me a topical cream to help with the redness. Yesterday and today it looks as if some of my skin has rubbed off. Like a second-degree burn. I can't stand to wear a sports bra because it sights too much pressure on the burned 👀 ng area. What do recommend to heal this sore wound? Thank You.
Hi Alma! Thanks for your question. I can help you better if I know which country you're in. That way I can recommend appropriate creams within that country. Jen x
Hi there, I also find this video to be very helpful and assuring that I am not alone with my pain. I had 2 lumpectomies in the same left breast in a matter of year and a half. Then chemo and radiation. I am already going for a lymphatic massage and I am not so surprised from the pains (exactly as described in this video) in the operated breast but I want to ask - is it common to have same pains in the other breast that never been operated? My doctors are puzzled by it and are just watching it now by MRIs every 6 months. I would appreciate your feedback! Thank you in advance! Roumi (Canada)
My pleasure Sim Lee! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
How about lymphatic massage wouldn't that clear it a little bit better than the breast massage itself the lymphatic system massage? Please we need answers I need answers
Hi Trudy, lymphatic massage can assist when breast swelling is part of the problem. But if the breast is painful and or tight due to scarring from radiation then scar tissue massage I find is most helpful.
Needed information on the sun after Radiation and Surg and chemo. I had burning five months after radiation by sun bathing and extreme heat in Florida. Its runes my vacation. Thanks Sheil
Hi Sheila, so sorry for my slow reply! Sorry to hear your vacation was ruined :( I've launched a new Private Group on Facebook - The Compass Community - a global online Breast Cancer Education & Support Network with free weekly live education sessions. I will be able to provide more interaction with everyone on this platform. If you would like to join please click on this link: facebook.com/groups/breastcancercompasscommunity
Thanks. Home now and feel better. Sun number 45 needed to be put on breast under my bathing suit. I didn’t know that. The heat remain in my breast for days hot to the touch. Sun and radiation don’t mix well for me. Not like it used to be. Thank Sheila
Hi Carolyn, I always tend to use the big blocks of Mobiderm. Sometimes we use the small blocks for a more subtle appearance under shirts if women are going out. Hope this helps! Jen x
Thank you Theresa! Apologies for my slow reply. I have a Private Group on Facebook 'The Compass Community' - a global online Breast Cancer Education & Support Network with free weekly live education sessions and Q&A. There is much more interaction on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Hi Kary, you should be safe to use Mobiderm up until skin changes (redness, burns, skin irritation etc) start to occur due to Radiation. I assume you're using it on surgical scarring or areas of fluid retention following surgery? Jen
Hi there, just found your videos and am so glad. I am still experiencing pain in my breast though my surgery was in may 2020 i was told that this may happen as i had a lot of fluid at the early stages which has now subsided in the most part but still experiencing tingling and burning sensations pretty much every day and was wondering if massage would help with this and do you have a video to explain how to do this properly
Hi Carol! So pleased you have found the videos helpful. I definitely need to do a RUclips Video to show women how to perform breast massage. It is such a common problem. In the meantime would you like to do a video consultation with me to cover the massage technique? Jen x
This has been my problem i had my op 1 year ago then radiotherapy ( 10 days) lymph node removal and a lumpectomy. I have a burning or stinging pain every day and iv notice my arm has got stiffer and cant lift it up high .im due to see my consultant at end of January, iv heard this can happen but i still worry. Iv to take pain killers every day x
Im in the US and I'm hoping you see this. I'm actually 2.5 years out from radiation and the radiation fibrosis has caused capsular contracture after mastectomy and reconstruction. I've been to 2 different therapists as well as my radiation oncologist and no one has ever mentioned Mobiderm or the Medi lymph pads you mention in another video. I'd like to try the mobiderm, just to see if it works, but I'm wondering would you recommend the small block (5x5 mm) or the large block (15x15 mm) for the breast and underarm area? Thanks in advance! Just binged several of your videos!
Hi Rayray, I'd recommend the large blocks. I am available for Telehealth appointments. If you're interested just email me enquiries@thebreastcancerphysio.com. I also have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
@@TheBreastCancerPhysio go right ahead! Just so you know, still waiting on both the mobiderm and the medi lymph pads, but I've been putting some smaller waffle weave lymph pads (that I use in my lymphedema glove) in my bra, and notice some difference, so I really cannot wait for the other stuff to get here!!
can this massage be used after radiation treatments start, but before the skin is too sensitive to touch? I'm experiencing breast pain from my first 2 treatments and am interested in massaging. Thanks.
Hi Karyn, if you're experiencing pain within the first 2 treatments it is most likely something other than radiation fibrosis, such as a skin reaction to the radiation. I would discuss this with your Oncologist prior to performing any massage. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Glad I found you. I am about to start radiation treatments after lumpectomy and trying to find something comparable to mobiderm in the US but no luck so far. If I do find it, would I use it during or after treatment? Also, would I use lymphodema therapist during of after treatment? Thank you!
Thanks for your comment Maureen, I can ship some Mobiderm to you. If you are happy to email me your postal address here is my email enquiries@thebreastcancerphysio.com I encourage women to use Mobiderm for as long as they are comfortable through Radiation. If you get radiation burns in the last week or two of radiation it may only be this period that it it too tender to use Mobiderm. Definitely try to get to a good Lymphoedema Therapist during Radiation. Jen x
@@maureenreeder Hi Maureen! I did receive your email. So sorryI haven't replied yet, just had a very busy week. Will get the Mobiderm shipped to you ASAP! Jen x
@@Flipper86 Thanks for your comment. The RadiaPlex RX Gel is used whilst the skin is recovering from radiation burns. Maureen is describing a product that assists with breaking up the scar tissue that forms as a result of radiation (after the burns have settled, some weeks to months following). Since Maureen wrote the comment above I have found a similar product sold in the US. Here is the link if you're interested: www.brightlifedirect.com/products/mediven-lymph-pads
Hello Jen, I 've been watching and communicating with you. I live in the U.S. and I am looking for the Mobiderm product. Do you know of anywhere in the U.S. I can order it? I looked up your link and I'm thinking it will take quite a while to get here? Any suggestions?
Hi Jean! SO sorry for my slow reply. There is a similar product you can purchase online - look up Brightlife Medi Lymph Pads. This product is very similar to Mobiderm. Let me know if you can't find it. Jen
Hi J.T! Thank you for your comment and for subscribing! The moisturizers I recommended in the video are Sorbolene, QV and MooGoo. I'm assuming you're from the US? Not sure if you can purchase these in the States but if you asked for Sorbolene in a Chemist they should have an equivalent. Hope this helps! Jen x
I am not cutting this video down I'm just trying to say what is the difference between radiation fibrosis and pulmonary fibrosis or thickening and scarring
What has been done for those on the extreme rare cases of radiation fibrosis scarring? My mother has been dealing with this after her cancer and radiation treatment and it makes me so frustrated and sad that I have to watch her go through this with seemingly no treatment. She's pretty much done everything under the sun and nothing is working. I am looking for any support groups or resources on how to treat this so she can have some sort of quality of life back.
Hi Jenna, I am hearing you and sadly see cases like your Mum's all the time. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity I also do Telehealth consults anywhere in the world. If you'd like to arrange on please email me: enquiries@thebreastcancerphysio.com
Hi Jenna, I received an email from your Mum and I have replied to her email but I haven't heard back from her since. I appreciate life can get in the way sometimes but I just wanted to make sure you were aware I have replied. Jen
Thank you for this information. Finally an explanation and a diagnosis for the pain that I have been feeling since July 2019. I tried to order the Mobiderm but I live in the USA. They don’t ship there. Any suggestions as to where I can order this. I did a Google search but the products are similar but not the same.
Hi Lynelle, thank you for your lovely feedback. A very similar product you can purchase in the US is MediLymph Pads. Here is the link: www.brightlifedirect.com/collections/bandages/products/medi-lymph-pads
Also, I've launched a new Private Group on Facebook - The Compass Community - a global online Breast Cancer Education & Support Network with free weekly live education sessions. I will be able to provide more interaction with everyone on this platform. If you would like to join please click on this link: facebook.com/groups/breastcancercompasscommunity
Hi..thank you for the information..such a very helpful.i diagnose of stage3a ..i did a mastectomy surgery with breast reconstruction.i almost finish my chemo cycle..and after my chemo..i will do my radiation.i want to ask is your product where to buy..because i want to be prepared for my radiation. Can i ask for guidance..because i dont have any idea. Thank you.
Hi, I am so sorry for my very delayed reply. I assume you may have completed your radiation now. I can ship Mobiderm to you. What country are you located in? If easier, you're welcome to email me. Jen
My pleasure Ana! During this time just let your skin heal - avoid massage / Mobiderm. The burns usually heal up within 2-3 weeks. You can still apply creams to assist with healing such as Sorbolene, MooGoo or QV, these creams are available in Australia so if you're not sure what to purchase just let me know. Jen x
@@TheBreastCancerPhysio Hi, how to get atleast one of the creams here in UK? Had lumpectomy and Radio Theraphy last Dec. and my armpit is so burn and experiencing excrutiating shooting pains and the Breast nurse is saying these are normal side effects of Radiotheraphy instead of looking into the real concern. So please your help and advise will be highly appreciated. Love all your videos by d way. Thanks
The fact that she could state that inverted hairs cause Orange Peel type of skin on the breast and it's quite common scares me because that's the first sign of breast cancer or cancer coming back a recurrent cancer in the same breast as orange peel skin, and and a statement like this to really deter a woman of thinking it's not cancer, when the first signs of cancer is Orange Peel looking breast a lump or nipple oozing or a plain old rupture ulcer eyes type of injury on the breast
Hi Trudy, thanks for your comment. Good point - it is a sign of breast cancer. Peau d'orange is also very common following radiation treatment and when patients present with this symptom they will often assume cancer has come back. Health Professionals should always scan patients if there is any suspicion of cancer. Patients should also ask their Medical Professionals if they're unsure.
Hi Jen, Your video is so interesting and educational! However, I am a bit confused:in Hungary where I had my surgery it is totally forbidden to do any massage on the body -and especially on the part of your body where the tumor was removed- to be sure to not spread cancer cells all over trough the lymphatic system.(they suggest to avoid massage for 2-3 years after surgery) This might be a completely outdated view I really don't know just would like to be sure I am not making more harm with massage...
Hi Szilvia! Thank you so much for your question. Avoiding massage is definitely an outdated concept. I massage breast tissue / chest wall / shoulders / necks / scars etc on all of my Breast Cancer patients. The blood flow stimulated during massage is probably similar to walking or having a hot shower, which we don't usually tell people to avoid. Hope this helps! Jen x
@@TheBreastCancerPhysio Hi Jen, Thank you so much for your quick answer,I really appreciate it! If you have time, could you please guide me on where to find new research results on the matter? (I mean the overall concept of massage on cancer patients)Each article I found in Hungarian is almost forbidding whole-body massage or being very cautious and allow it on the face or limb. Also, that is the point of view on personal consultations with oncologists.
What's the difference between pulmonary fibrosis from radiation to the left breast as to breast fibrosis from radiation so how come there's a cure for the breast fibrosis and not pulmonary fibrosis from the breast???
Hi Trudy, sorry for my slow reply. Pulmonary fibrosis is scarring on the lung tissue itself. Breast radiation Fibrosis is scarring on the skin and superficial lymphatics of the breast. There are no cures for either condition. I hope this information is helpful. Jen
Thank you for this, but is radiation fibrosis any different than pulmonary fibrosis? And if there's no difference in pulmonary and radiation fibrosis and that means it's really like a death sentence or is it never going to spread but obviously if this is progressing after radiation 2 years I'm assuming it's the same thing as pulmonary fibrosis but now there is an actual fault that we all signed a letter that stated we will well informed when which they never inform you this they just rush you into radiation sign here and of course they all say oh none of my patients had a side effect this is ridiculous.
Hi Trudy, pulmonary fibrosis is different from radiation Fibrosis. I've answered your question in another comment reply. It is true that most women treated with radiation do not get informed about the long term side effects of radiation, which is devastating. Radiation Fibrosis is not lethal but can heavily impact quality of life.
Okay most people I know cannot stand to have any hand on their breasts and breast massaging how will this deplete the scarring underneath and also I can't even wear a bra it's suffocates me and the indentation it's just ridiculous because I think I'm lung disease I want to know the difference between radiation fibrosis and pulmonary fibrosis because I happen to have plural thickening plural scarring actually with scarring and then thickening way before my breast radiation but seated a PET scan in October 22 radiation fibrosis to the radiation. Really!?
Lightening bolt yes, or just plain gross feeling that makes you hesitant to touch your own breast and we know we have to do that constantly for new masses lumps etc. But I have spoken to so many people and sometimes it actually feels like somebody grabbed your boob it's just gross feelings that's so much pain the bolts will make you grasp because you're like him I having a heart attack specially because you get the radiation on your left side and your left breast it's right there in your heart but why am I feeling it after I biopsy on my right side now I don't know what led to the edema but it's ridiculous is it the radiation and it just took a couple of lymph nodes out. I didn't take an astrosol because I have lung disease I have macular holes in my eyes in an ostrichol is a researched done clear data on it it causes traction on the retina, so I could only contribute the pain the odd irritating feeling constantly on the boob the lightning bolts have not stopped and it's been 3 years since my lumpectomy and it'll be 3 years in October since my radiation and only creeped up it creeps up on you.
Hi Trudy, I agree - there is definitely a range of symptoms that bring on uncomfortable feelings. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Hi, to keep the Mobiderm in place you may have to consider wearing a crop top / sports bra, or a firm singlet. There is not really another way to keep the Mobiderm against your tissue otherwise sorry. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
A well fitted bra is definitely a help, whether it's a sports bra or otherwise. But usually to resolve breast pain it takes a combination of massage, Mobiderm and a well fitted bra.
@@TheBreastCancerPhysio thank you. I’ve just been diagnosed today. So I am gathering information so when I meet with the surgeon I will have a teaspoon of knowledge. 🙂
@@happyface5143 great idea to start learning as soon as you can. There is a lot of Information to know. I hope the appointment with the Surgeon goes well. Write down a list of questions to ask! And if you can, take someone with you to help recall info. x
Are most of these largely connected to appearance, or are there future problems if the swelling and so forth aren't addressed? I'm 67. At my age, I don't care about what my boobs look like. No one will ever see them except healthcare professionals.
Hi D O, there can be future problems with radiation fibrosis if left unaddressed. In some cases the condition can worsen over time without treatment. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
The orange peel happened on the nipple only and it dissapears when I use oil. As for the difference is size the breast that was operated upon is slightly smaller than the other normal breast.
Your information is SO different from what the Drs tell us: mild sunburn for a week or so, a bit of fatigue, slight decrease, hardly noticeable, of the breast. BS!
I agree with you. With holding information is wrong. Radiation specialists don’t seem to have a clue except to say moisturize your skin. Maybe as soon as radiation is done, we should go to a dermatologist.
Thanks for watching the video Kathy and for your comments. Unfortunately this is still a culture we desperately need to see change. You just inspired a video "why one Session of Physio after Radiation is vital!" Jen x
Thank you for your lovely feedback! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
I hand a lumpectomy yesterday. I could agree with you more that the more knowledge the professionals can impart the better. Thank you for this well presented information.
![Seungmin "그렇게, 천천히, 우리(As we are)" | [Stray Kids : SKZ-PLAYER]](http://i.ytimg.com/vi/kAzmhLHePqU/mqdefault.jpg)
I have seen so many different doctors after my breast cancer diagnosis. I'm in my first week of radiation therapy, after the first day my radiation therapy started the pain returned. I was miserable also my breast was very red before the radiation therapy starded. I was told I wouldn't feel anything from the radiation therapy, except for being tired. after the third week!!!
Thank you for this video, I was starting to think I was crazy.
Thank you Jen. I'm in California USA and just had a lumpectomy w/lymph node removal 5 days ago. Will be starting Radiation in the next few weeks. This is amazing information that I will arm myself with when treatments start. I feel empowered already. We can never be too well informed. 💕
Hello Kat from Cali! Lovely to hear from you. Thank you for watching and commenting. You are right - if you are seeking information to empower yourself AND you can access it, it will give you a greater sense of control over a tough situation. I hope everything goes well with your Radiation. Jen x
hello, I have been looking all over for info about scar tissue/ radiation since a lumpectomy and radiation. it seems the pain is worse, stabbing under left breast ,it hurts so much it takes my breath away. I have to be very careful about how I turn to the left esp driving. I live near Atlanta ga, North. Atlanta. can u rec anyone who can help me with this. this is going.pn 8-10 yrs
thank you so much. so glad I found u😊
I am looking these vedios from Sri Lanka thank you verymuch dear mam
Thank you for taking the time to make this video❤ I wish I had some of this information sooner in my treatment, but I am still grateful to apply it now.
Thanks for the comments on the prevention of this condition. I'm 10 sessions in on radiation, I've been doing lotions and strengthing exercises prior to radiation, and now I can do message to help prevent fibrosis. I'm all about doing what may prevent problems. Being passive is not positive, and we need to be super-positive to recover. Thanks for your videos!
My pleasure Jayne! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Thank you so much for this video! The best I have seen yet, not only in content, but also in positive encouragement for improving this condition. From the bottom of my heart, thank you.
You are so welcome!! Thank you for your lovely feedback - really appreciate it. I have a Private Group on Facebook 'The Compass Community' - a global online Breast Cancer Education & Support Network with free weekly live education sessions and Q&A. There is much more interaction on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
I FOUND THIS VIDEO WONDERFUL. I WISH THAT IN CANADA WHERE I LIVE THAT BOTH OUR SURGEONS AND OUR RADIOLOGY ONCOLOGISTS WOULD ADVISE PATIENTS LONG BEFORE THEIR SURGERIES AND RADIATION, IN PARTICULAR ABUT THE POSSIBILITY OF THE FIBROSIS. I AM ALMOST COMPLETELY UNABLE TO LIVE A NORMAL LIFE DUE TO, NOT ONLY THE PAIN AT THE TIME I AM IN PHYSICAL MOTION BUT DUE TO THE NUMBER OF DAYS THAT THE PAIN IS EVEN WORSE AFTER I HAVE DONE ANY PHYSICAL ACTIVITY THAT MOVES MY UNDERARM, BREAST OR RIB CAGE. IT IS ACTUALLY MUCH WORSE IN THE EVENING AFTER ANY PHYSICAL ACTIVITY AND THE NEXT DAY THAN IT IS WHILE I AM MOVING AROUND. ALONG WITH LIGHTNING BOLTS AND STABBING PAIN WHILE I MOVE THE NEXT DAY IT FEELS LIKE MY RIBS HAVE BEEN HIT BY A SLEDGE HAMMER. SO THAT AS I SIT UP OR LIE DOWN IT IS EXCRUCIATING. IF I RAISE MY ARM, THE DAY AFTER
ANY PHYSICAL ACTIVITY SUCH AS JUST WEEDING A SMALL PATCH OF GARDEN THE PAIN THAT I HAVE JUST DESCRIBED WENT ON FOR 21 DAYS, ALMOST CAUSING ME TO CANCEL A VACATION THAT WE HAD BEEN PLANNING FOR MONTHS. I AM MAKING THIS COMMENT BECAUSE I BELIEVE THAT THE MOBIDERM THAT YOU RECOMMENDED IN YOUR VIDEO COULD REALLY HELP ME BUT IT DOESN'T SEEM TO BE AVAILABLE IN CANADA. I TRIED TO ORDER IT FROM THE AUSTRALIAN WEB SITE BUT THEY ONLY SEEM TO SHIP WITHIN AUSTRALIA. CAN YOU DIRECT ME TO A COUNTRY THAT WILL SHIP INTERNATIONALLY, PLEASE ?
Hi Shannon, I can help you with the Mobiderm issue. I am not making any further RUclips Videos but I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform with Mobiderm alternatives and we discuss Radiation Fibrosis frequently. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
I only wish my surgeon had given me this information prior to surgery . Thank you for your help x
Thanks for your lovely feedback Angela! Glad this video resonated with you. Jen
Wish my radiation oncologist would have given me this information, instead they just make you sign something and when you ask him side effects oh none of my patients ever had side effects
I hand a lumpectomy yesterday. I could agree with you more that the more knowledge the professionals can impart the better.
Thank you for this well presented information.
So sorry for my slow reply Maureen! Thankyou very much for commenting and watching! Jen x
Excellent and extremely helpful information!!! Thank you!
After my lumpectomy , because tissue had been “moved around” , I had a lumpy area . When scar healed I decided to massage my breast to see if I could disperse the lumps a bit. It was with surprise that I found lumps did reduce .... now I have just finished radiation... so thank you for this information... I’m feeling a slight pain along the side of my breast on ribs... will wait to see if I get very much burn on my skin ... at present still have Mepitel in place , recommended to leave it on for a few weeks by radiology nurse.. I will massage again when breast has recovered!
Thanks so much for your comment Carole! Re-commencing the breast massage once all burns and skin tenderness have settled is the best way to go. Scar tissue is usually quite responsive to just simple massage. Message me if you have any dramas! Jen x
@@TheBreastCancerPhysio....thank you ...I live in New Zealand ... have had good care , but great to get your info!
@@carolechapman7857 Hi Carole, how is your recovery going following Radiation? Jen x
@@TheBreastCancerPhysio
I have come thru with very little side effects.It is now 3 weeks since I finished radiation... a slight patch of rash appeared one week ago... treating it with creme. .. otherwise I’m fine... no swelling , or discomfort! Thank you for enquiring!
I should mention , I had a one week treatment ... instead of gold standard of 3 weeks... following British plan ... which can be done if there are no health issues ... higher dose of radiation per session ... 26 gray over the one week.
Thank you Jen. My doctor is very happy with my healing progress. It is directly attributed to what I have learned on your videos. As many have said before this would have been great information to get ahead of the surgery.
Hi Fran! So sorry for my very slow reply. Lovely to hear the videos have helped you so much! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Hello from Oregon, USA. Thanks for this great educational channel. I’m a massage therapist trying to help a new client dealing with radiation fibrosis. You refer to demonstrations of you applying massage techniques on a patient but I am unable to find them in the list of your videos. Any videos of actual demonstrations of self massage would be helpful also. Thanks so much Jen!
Hi Eliza! Thanks for your comment. Unfortunately my editing skills were not up to scratch when I filmed this video many months prior! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A (Health Professionals welcome!). I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Thank you ms jen. Your videos really help my recovery after operation. Watching you from Philippines
Thank you Amalia! So good to hear! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Thank you I am experiencing pain that has started a year after lumpectomy and two months after radiation. I have a large seroma in the lumpectomy site. I also have lots of fluid in breast.
Hi Yael, thank you very much for your comment. Have you had the seroma aspirated (drained?). I believe seromas can still cause chronic breast pain (although some Health Professionals would disagree with this). I would discuss aspiration under ultrasound guidance as I have had a number of patients who have had seromas drained for successful pain relief. Jen
@@TheBreastCancerPhysio Thank you so much for your reply. I have not had it aspirated as my surgeon thinks it would get infected. She feels that the fluid will go back into my body and be disolved. I myself have been putting compression on the breast and it feels as if the seroma has gone down quite a bit. I will see my surgeon day after tomorrow and will ask her about this. I appreciate your kind words.
Connie~
Another extremely informative and educational video on managing and understanding what the doctors and care team dont tell you. I am visiting the Sunshine Coast after my radiation finishes and considering booking to see you if you are taking new patients (I live in Gladstone)
Thank for your informative video. I'm learning a lot about what I can do after treatment. I'm surprised there's not more information provided to the public with what I've just learnt, that 1 in 8 women get breast cancer. Much appreciated.
Thank you so much for watching and commenting Karen! So pleased the videos are helping you! Jen x
Hi. I am trying to find the link to the mobiderm
@@nancyj46168 hi there, sorry for not getting back to you. I ordered directly from Jen at Breast Cancer Physio.
I really can’t thank you enough for making these videos Jen. You are concise, incredibly informed and most of all you make women all around the world feel a sense of empowerment over their bodies post breast cancer. As a 31 year old undergoing radiation therapy currently, I am so appreciative of all this amazing content. When I am feeling overwhelmed by side effects your videos give me a sense of clarity and hope. Thank you so very much.
Hi Laura! So very sorry for my delayed reply. I am playing catch up on comments. Thank you very much for your lovely feedback, I really appreciate it! Jen x
Thank
Thanks much appreciated 🙏❤
When is it too late to try to obtain benefit from massage therapy? I am 15 years out from lumpectomy and radiation and have worsening pain. It is not constant, however when the pain occurs it can literally bring me to my knees. Thank you, Shirley
Thank you, this video is, what I needed at the right time!! I'm doing my breast massage as you speak!😊
Thank you Jen, I wish I knew about your channel months ago.
Thank you so much. So helpful.
Hello Jen, thank you for your informative videos. One thing would be nice to see is your replies to others comments because most of us share the same kind of symptoms and when one person asks a question, others can benefit by reading the answer. Thank you
Hi Mary, thank you for your feedback. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform and there is a lot more interaction on there between members. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Very informative
This is so informative : you are indeed so correct re HP
not really being proactive with treating breast pain . I completed my radiotherapy mid February and indeed would have been so good to have had this approach before commencing .
Fining your videos so useful
Thanks so much for your comments Lynne, and for watching the Channel. So stoked you are finding the videos helpful! Jen x
Hi Jen just finished watching the video, it,s great and so are you. I,am so happy Emma found you results were good on first day. Thank you. Patricia Rogers
Thank you for your lovely feedback Trish! Really appreciate you watching the video and so glad you found it helpful. Look forward to seeing you again soon! Jen x
Hello thank you so much this is so informative. I had a lumpectomy and 20 rounds of radiation 1 year ago and I have started getting these spasm like sensations that makes me stop in my track. Have you had any of your patients describe the pain as such? I am going to order the microderm. I am stomach sleeper and I am still unable to sleep on my stomach is this common? Thanks again for all the information
Hi, yes all of your symptoms are very common after Radiation. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
@@TheBreastCancerPhysio thank you so much will join
I just had a lumpectomy today with radiation to follow in about 4 weeks. I was wondering how much mobiderm to order. There smallest order is 9 feet long. Do i need that much and do you know if they ship to USA?
I appreciated your video so much as i have been wondering about these issues.
I did this with wearing an older soft bra and as you state - I need more support.
Hi, so sorry for my delayed reply. Yes, medical grade compression bras like Prairie Wear can be really beneficial. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
I just had my 4 week check up with my radiation oncologist and it was the first I heard of hardening of the skin or fibrosis that can happen after radiation. He said to massage for a year or so once to three times a day to prevent it but nothing else. Thank you for this information.
Thank you for your lovely feedback! Such a shame so many women don't get informed about this side effect. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Thank you for this information! I wish I would of known all this 5 yrs ago. Can I still do massage therapy or is it to late? I was told it was something I would have to live with.
Hi Karla! Yes you can still start massaging now. I've launched a new Private Group on Facebook - The Compass Community - a global online Breast Cancer Education & Support Network with free weekly live education sessions. I will be able to answer your questions and provide more interaction with everyone on this platform. If you would like to join please click on this link: facebook.com/groups/breastcancercompasscommunity
Thank you!
Great video. Very helpful.
Thankyou for your lovely feedback Amber! I've launched a new Private Group on Facebook - The Compass Community - a global online Breast Cancer Education & Support Network with free weekly live education sessions. I will be able to provide more interaction with everyone on this platform. If you would like to join please click on this link: facebook.com/groups/breastcancercompasscommunity
Thank you, so helpful. I’m just starting my journey in England
Thanks so much for your lovely feedback! It really encourages me to continue making these videos. Jen xx
Do you think mobiderm can be worn where the arm pit is? like a small piece held be our clothing?
Not unless you literally sit still with it under your armpit. It's a very difficult place to keep Mobiderm.
Will follow up on this,thankyou,haven't started Radiation treatment until next week.Wanting to know of natural creams for breast tissue etc
Hi Nic! So sorry for my delayed reply. I recently did a product review video on the MooGoo Skincare range which ships worldwide. Also discuss with your Radiation Nurses and Oncologist. I've launched a new Private Group on Facebook - The Compass Community - a global online Breast Cancer Education & Support Network with free weekly live education sessions. I will be able to provide more interaction with everyone on this platform including treatment demonstrations. If you would like to join please click on this link: facebook.com/groups/breastcancercompasscommunity
Excellent information
Thankyou!! So sorry for my slow reply! Appreciate your support of my Channel. Jen x
Thank you I will be having a lumpectomy on monday
Best wishes for a successful surgery Angelina! x
Jen
I've launched a new Private Group on Facebook - The Compass Community - a global online Breast Cancer Education & Support Network with free weekly live education sessions. I will be able to provide more interaction with everyone on this platform. If you would like to join please click on this link: facebook.com/groups/breastcancercompasscommunity
Thank you so much 👏👏👏👏
My pleasure! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
How long does it usually take for fatigue to set in after radiation and how long does it last? Im starting it in a month after lumpectomy
Jen this video was so helpful as I’m about to start radiotherapy in a few weeks. Where can I purchase the mesoderm sponges in the Uk
Thank you
Hi again Sally - I just replied to your previous comment regarding the Mobiderm product. Please see my reply on your previous comment. Jen x
I tried your email address and it was unsuccessful. I’m desperate to try the Modiderm sponges.
Sally
@@sallysmith2467 sorry about that, it should have gone through. You can try sending it again: enquiries@thebreastcancerphysio.com
OR through my Facebook Page The Breast Cancer Physio. Let me know if you can't get it through again Sally. Jen x
@@sallysmith2467 your email did come through Sal, I will post the Mobiderm to you this week. Jen x
I just completed 30 days of radiation after having two chemo treatments. My skin became very red, and then darkened under the armpit, and around the scar for a lymph gland removal. My doctor gave me a topical cream to help with the redness. Yesterday and today it looks as if some of my skin has rubbed off. Like a second-degree burn. I can't stand to wear a sports bra because it sights too much pressure on the burned 👀 ng area. What do recommend to heal this sore wound? Thank You.
Hi Alma! Thanks for your question. I can help you better if I know which country you're in. That way I can recommend appropriate creams within that country. Jen x
Hi there, I also find this video to be very helpful and assuring that I am not alone with my pain. I had 2 lumpectomies in the same left breast in a matter of year and a half. Then chemo and radiation. I am already going for a lymphatic massage and I am not so surprised from the pains (exactly as described in this video) in the operated breast but I want to ask - is it common to have same pains in the other breast that never been operated? My doctors are puzzled by it and are just watching it now by MRIs every 6 months. I would appreciate your feedback! Thank you in advance! Roumi (Canada)
Thank you!
My pleasure Sim Lee! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
How about lymphatic massage wouldn't that clear it a little bit better than the breast massage itself the lymphatic system massage?
Please we need answers I need answers
Hi Trudy, lymphatic massage can assist when breast swelling is part of the problem. But if the breast is painful and or tight due to scarring from radiation then scar tissue massage I find is most helpful.
Hello dr. Is it normal after radiation another breast has slight y pain there
Needed information on the sun after Radiation and Surg and chemo. I had burning five months after radiation by sun bathing and extreme heat in Florida. Its runes my vacation. Thanks Sheil
Hi Sheila, so sorry for my slow reply! Sorry to hear your vacation was ruined :( I've launched a new Private Group on Facebook - The Compass Community - a global online Breast Cancer Education & Support Network with free weekly live education sessions. I will be able to provide more interaction with everyone on this platform. If you would like to join please click on this link: facebook.com/groups/breastcancercompasscommunity
Thanks. Home now and feel better. Sun number 45 needed to be put on breast under my bathing suit. I didn’t know that. The heat remain in my breast for days hot to the touch. Sun and radiation don’t mix well for me. Not like it used to be. Thank Sheila
Is that small blocks or the big block of the Mobiderm?
Hi Carolyn, I always tend to use the big blocks of Mobiderm. Sometimes we use the small blocks for a more subtle appearance under shirts if women are going out. Hope this helps! Jen x
Thank you . I have learnt a lot how yo massage my radiation fibrosis scarring.
Thank you Theresa! Apologies for my slow reply. I have a Private Group on Facebook 'The Compass Community' - a global online Breast Cancer Education & Support Network with free weekly live education sessions and Q&A. There is much more interaction on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Hi! So we can use the mobiderm as soon as we start radiation treatments? Thank you!
Hi Kary, you should be safe to use Mobiderm up until skin changes (redness, burns, skin irritation etc) start to occur due to Radiation. I assume you're using it on surgical scarring or areas of fluid retention following surgery? Jen
Hi there, just found your videos and am so glad. I am still experiencing pain in my breast though my surgery was in may 2020 i was told that this may happen as i had a lot of fluid at the early stages which has now subsided in the most part but still experiencing tingling and burning sensations pretty much every day and was wondering if massage would help with this and do you have a video to explain how to do this properly
Hi Carol! So pleased you have found the videos helpful. I definitely need to do a RUclips Video to show women how to perform breast massage. It is such a common problem. In the meantime would you like to do a video consultation with me to cover the massage technique? Jen x
This has been my problem i had my op 1 year ago then radiotherapy ( 10 days) lymph node removal and a lumpectomy. I have a burning or stinging pain every day and iv notice my arm has got stiffer and cant lift it up high .im due to see my consultant at end of January, iv heard this can happen but i still worry. Iv to take pain killers every day x
Im in the US and I'm hoping you see this. I'm actually 2.5 years out from radiation and the radiation fibrosis has caused capsular contracture after mastectomy and reconstruction. I've been to 2 different therapists as well as my radiation oncologist and no one has ever mentioned Mobiderm or the Medi lymph pads you mention in another video. I'd like to try the mobiderm, just to see if it works, but I'm wondering would you recommend the small block (5x5 mm) or the large block (15x15 mm) for the breast and underarm area? Thanks in advance! Just binged several of your videos!
Hi Rayray, I'd recommend the large blocks. I am available for Telehealth appointments. If you're interested just email me enquiries@thebreastcancerphysio.com. I also
have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Thank you so much! I’ll check out Facebook group first. I’m ordering the mobiderm now. 🤞🏼🤞🏼
@@Rayray-dk3lb awesome! I do a free Education Session every Thursday AEST 9am and Radiation Fibrosis is a very common topic discussed.
Would you mind if I used your comment as a testimonial Rayray?
@@TheBreastCancerPhysio go right ahead! Just so you know, still waiting on both the mobiderm and the medi lymph pads, but I've been putting some smaller waffle weave lymph pads (that I use in my lymphedema glove) in my bra, and notice some difference, so I really cannot wait for the other stuff to get here!!
Thank you❤
can this massage be used after radiation treatments start, but before the skin is too sensitive to touch? I'm experiencing breast pain from my first 2 treatments and am interested in massaging. Thanks.
Hi Karyn, if you're experiencing pain within the first 2 treatments it is most likely something other than radiation fibrosis, such as a skin reaction to the radiation. I would discuss this with your Oncologist prior to performing any massage. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Thank you!!!!💕💕
You're welcome! Jen :)
How soon after lumpectomy can you massage breast? How long every day?
Glad I found you. I am about to start radiation treatments after lumpectomy and trying to find something comparable to mobiderm in the US but no luck so far. If I do find it, would I use it during or after treatment? Also, would I use lymphodema therapist during of after treatment? Thank you!
Thanks for your comment Maureen, I can ship some Mobiderm to you. If you are happy to email me your postal address here is my email enquiries@thebreastcancerphysio.com
I encourage women to use Mobiderm for as long as they are comfortable through Radiation. If you get radiation burns in the last week or two of radiation it may only be this period that it it too tender to use Mobiderm. Definitely try to get to a good Lymphoedema Therapist during Radiation. Jen x
@@TheBreastCancerPhysio Did you receive my email message?
@@maureenreeder Hi Maureen! I did receive your email. So sorryI haven't replied yet, just had a very busy week. Will get the Mobiderm shipped to you ASAP! Jen x
My doctor prescribed RadiaPlex RX Gel.
@@Flipper86 Thanks for your comment. The RadiaPlex RX Gel is used whilst the skin is recovering from radiation burns. Maureen is describing a product that assists with breaking up the scar tissue that forms as a result of radiation (after the burns have settled, some weeks to months following). Since Maureen wrote the comment above I have found a similar product sold in the US. Here is the link if you're interested:
www.brightlifedirect.com/products/mediven-lymph-pads
How long does it takes for breast be healed
Hi, to help answer your question I need more information. Do you mean how long does it take for wounds to heal after surgery? Jen
Hello Jen, I 've been watching and communicating with you. I live in the U.S. and I am looking for the Mobiderm product. Do you know of anywhere in the U.S. I can order it? I looked up your link and I'm thinking it will take quite a while to get here? Any suggestions?
Hi Jean! SO sorry for my slow reply. There is a similar product you can purchase online - look up Brightlife Medi Lymph Pads. This product is very similar to Mobiderm. Let me know if you can't find it. Jen
Hi, could you write the name of the moisturizers in the description also?
Hi J.T! Thank you for your comment and for subscribing! The moisturizers I recommended in the video are Sorbolene, QV and MooGoo. I'm assuming you're from the US? Not sure if you can purchase these in the States but if you asked for Sorbolene in a Chemist they should have an equivalent. Hope this helps! Jen x
@@TheBreastCancerPhysio ,,, no, I'm not in the USA; am from the Caribbean. Will see if I can order it online. Thank you, Jt 😊
I am not cutting this video down I'm just trying to say what is the difference between radiation fibrosis and pulmonary fibrosis or thickening and scarring
Hi Trudy, I replied to your question in another comment. Thanks, Jen
Best eat a mostly raw ripe fresh organic alkaline produce diet to prevent and even heal disease if you like!
It's what helped me most. And fasting.
What has been done for those on the extreme rare cases of radiation fibrosis scarring? My mother has been dealing with this after her cancer and radiation treatment and it makes me so frustrated and sad that I have to watch her go through this with seemingly no treatment. She's pretty much done everything under the sun and nothing is working. I am looking for any support groups or resources on how to treat this so she can have some sort of quality of life back.
Hi Jenna, I am hearing you and sadly see cases like your Mum's all the time. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
I also do Telehealth consults anywhere in the world. If you'd like to arrange on please email me: enquiries@thebreastcancerphysio.com
@@TheBreastCancerPhysio Thank you thank you thank you!
@@jennaparker9771 My pleasure! x
Hi Jenna, I received an email from your Mum and I have replied to her email but I haven't heard back from her since. I appreciate life can get in the way sometimes but I just wanted to make sure you were aware I have replied. Jen
Thank you for this information. Finally an explanation and a diagnosis for the pain that I have been feeling since July 2019. I tried to order the Mobiderm but I live in the USA. They don’t ship there. Any suggestions as to where I can order this. I did a Google search but the products are similar but not the same.
Hi Lynelle, thank you for your lovely feedback. A very similar product you can purchase in the US is MediLymph Pads. Here is the link: www.brightlifedirect.com/collections/bandages/products/medi-lymph-pads
Also, I've launched a new Private Group on Facebook - The Compass Community - a global online Breast Cancer Education & Support Network with free weekly live education sessions. I will be able to provide more interaction with everyone on this platform. If you would like to join please click on this link: facebook.com/groups/breastcancercompasscommunity
Hi..thank you for the information..such a very helpful.i diagnose of stage3a ..i did a mastectomy surgery with breast reconstruction.i almost finish my chemo cycle..and after my chemo..i will do my radiation.i want to ask is your product where to buy..because i want to be prepared for my radiation. Can i ask for guidance..because i dont have any idea. Thank you.
Hi, I am so sorry for my very delayed reply. I assume you may have completed your radiation now. I can ship Mobiderm to you. What country are you located in? If easier, you're welcome to email me. Jen
jen@themckenzieclinic.com.au
Hi Jen! Thank for the video. Just finished my radiation yesterday - so what can I do until my skin heals? Can I do a breast or scar tissue massage?
My pleasure Ana! During this time just let your skin heal - avoid massage / Mobiderm. The burns usually heal up within 2-3 weeks. You can still apply creams to assist with healing such as Sorbolene, MooGoo or QV, these creams are available in Australia so if you're not sure what to purchase just let me know. Jen x
@@TheBreastCancerPhysio Hi, how to get atleast one of the creams here in UK? Had lumpectomy and Radio Theraphy last Dec. and my armpit is so burn and experiencing excrutiating shooting pains and the Breast nurse is saying these are normal side effects of Radiotheraphy instead of looking into the real concern. So please your help and advise will be highly appreciated. Love all your videos by d way. Thanks
Two months after my radiation I am having sharp gasping pain in my breast. And fluid : (
The fact that she could state that inverted hairs cause Orange Peel type of skin on the breast and it's quite common scares me because that's the first sign of breast cancer or cancer coming back a recurrent cancer in the same breast as orange peel skin, and and a statement like this to really deter a woman of thinking it's not cancer, when the first signs of cancer is Orange Peel looking breast a lump or nipple oozing or a plain old rupture ulcer eyes type of injury on the breast
Hi Trudy, thanks for your comment. Good point - it is a sign of breast cancer. Peau d'orange is also very common following radiation treatment and when patients present with this symptom they will often assume cancer has come back. Health Professionals should always scan patients if there is any suspicion of cancer. Patients should also ask their Medical Professionals if they're unsure.
Hi Jen, Your video is so interesting and educational! However, I am a bit confused:in Hungary where I had my surgery it is totally forbidden to do any massage on the body -and especially on the part of your body where the tumor was removed- to be sure to not spread cancer cells all over trough the lymphatic system.(they suggest to avoid massage for 2-3 years after surgery) This might be a completely outdated view I really don't know just would like to be sure I am not making more harm with massage...
Hi Szilvia! Thank you so much for your question. Avoiding massage is definitely an outdated concept. I massage breast tissue / chest wall / shoulders / necks / scars etc on all of my Breast Cancer patients. The blood flow stimulated during massage is probably similar to walking or having a hot shower, which we don't usually tell people to avoid. Hope this helps! Jen x
@@TheBreastCancerPhysio Hi Jen, Thank you so much for your quick answer,I really appreciate it! If you have time, could you please guide me on where to find new research results on the matter? (I mean the overall concept of massage on cancer patients)Each article I found in Hungarian is almost forbidding whole-body massage or being very cautious and allow it on the face or limb. Also, that is the point of view on personal consultations with oncologists.
What's the difference between pulmonary fibrosis from radiation to the left breast as to breast fibrosis from radiation so how come there's a cure for the breast fibrosis and not pulmonary fibrosis from the breast???
Hi Trudy, sorry for my slow reply. Pulmonary fibrosis is scarring on the lung tissue itself. Breast radiation Fibrosis is scarring on the skin and superficial lymphatics of the breast. There are no cures for either condition. I hope this information is helpful. Jen
Thank you for this, but is radiation fibrosis any different than pulmonary fibrosis?
And if there's no difference in pulmonary and radiation fibrosis and that means it's really like a death sentence or is it never going to spread but obviously if this is progressing after radiation 2 years I'm assuming it's the same thing as pulmonary fibrosis but now there is an actual fault that we all signed a letter that stated we will well informed when which they never inform you this they just rush you into radiation sign here and of course they all say oh none of my patients had a side effect this is ridiculous.
Hi Trudy, pulmonary fibrosis is different from radiation Fibrosis. I've answered your question in another comment reply. It is true that most women treated with radiation do not get informed about the long term side effects of radiation, which is devastating. Radiation Fibrosis is not lethal but can heavily impact quality of life.
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Okay most people I know cannot stand to have any hand on their breasts and breast massaging how will this deplete the scarring underneath and also I can't even wear a bra it's suffocates me and the indentation it's just ridiculous because I think I'm lung disease I want to know the difference between radiation fibrosis and pulmonary fibrosis because I happen to have plural thickening plural scarring actually with scarring and then thickening way before my breast radiation but seated a PET scan in October 22 radiation fibrosis to the radiation.
Really!?
I had surgery but it not cancer...I have pain my arm n in breast
Hi, if you have ongoing pain in your arm and breast then you need to make contact with your Medical Team to discuss your ongoing symptoms. Jen
Lightening bolt yes, or just plain gross feeling that makes you hesitant to touch your own breast and we know we have to do that constantly for new masses lumps etc.
But I have spoken to so many people and sometimes it actually feels like somebody grabbed your boob it's just gross feelings that's so much pain the bolts will make you grasp because you're like him I having a heart attack specially because you get the radiation on your left side and your left breast it's right there in your heart but why am I feeling it after I biopsy on my right side now I don't know what led to the edema but it's ridiculous is it the radiation and it just took a couple of lymph nodes out.
I didn't take an astrosol because I have lung disease I have macular holes in my eyes in an ostrichol is a researched done clear data on it it causes traction on the retina, so I could only contribute the pain the odd irritating feeling constantly on the boob the lightning bolts have not stopped and it's been 3 years since my lumpectomy and it'll be 3 years in October since my radiation and only creeped up it creeps up on you.
Hi Trudy, I agree - there is definitely a range of symptoms that bring on uncomfortable feelings. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
I don't how to use mobiderm product, when I don't wear bra, because I've done double mastectomy.
Hi, to keep the Mobiderm in place you may have to consider wearing a crop top / sports bra, or a firm singlet. There is not really another way to keep the Mobiderm against your tissue otherwise sorry. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Would a good sports bra be good?
A well fitted bra is definitely a help, whether it's a sports bra or otherwise. But usually to resolve breast pain it takes a combination of massage, Mobiderm and a well fitted bra.
@@TheBreastCancerPhysio thank you. I’ve just been diagnosed today. So I am gathering information so when I meet with the surgeon I will have a teaspoon of knowledge. 🙂
@@happyface5143 great idea to start learning as soon as you can. There is a lot of Information to know. I hope the appointment with the Surgeon goes well. Write down a list of questions to ask! And if you can, take someone with you to help recall info. x
Are most of these largely connected to appearance, or are there future problems if the swelling and so forth aren't addressed? I'm 67. At my age, I don't care about what my boobs look like. No one will ever see them except healthcare professionals.
Hi D O, there can be future problems with radiation fibrosis if left unaddressed. In some cases the condition can worsen over time without treatment. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
The orange peel happened on the nipple only and it dissapears when I use oil. As for the difference is size the breast that was operated upon is slightly smaller than the other normal breast.
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Your information is SO different from what the Drs tell us: mild sunburn for a week or so, a bit of fatigue, slight decrease, hardly noticeable, of the breast. BS!
I agree with you. With holding information is wrong. Radiation specialists don’t seem to have a clue except to say moisturize your skin. Maybe as soon as radiation is done, we should go to a dermatologist.
Thanks for watching the video Kathy and for your comments. Unfortunately this is still a culture we desperately need to see change. You just inspired a video "why one Session of Physio after Radiation is vital!" Jen x
Thank you
Thank you for your lovely feedback! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
I hand a lumpectomy yesterday. I could agree with you more that the more knowledge the professionals can impart the better.
Thank you for this well presented information.
Hi Maureen, thanks for your lovely comment. I hope you're recovering well from your surgery. Jen x