I’ve gone through so many meds that they only have me on Seroquel to help me sleep, the other meds didn’t work they only caused more issues, I’m at the point I do not leave my home, I sit in the same place everyday all day because it makes me feel safe.
Jess! Thank you for this video! The med journey is always a journey. I would say to those struggling with medications to don't give up you might have to try several before you find the right one.
I went off all of my meds, not just mental health, but my lupus and fibro meds as well during a manic episode. I had been put on three different anti depressants which threw me into my first full blown manic episode. I've had numerous hypomanic episodes before this but never knew what was happening so I had been misdiagnosed as major depressive disorder. I tore my life apart during my first manic episode and stopped all my meds. The result was horrific. Lost my job, my home and contact with most everyone I knew and just disappeared. I am now back on my meds with something a little different but I am much better for being on them and grateful my new psychiatrist is working with me and listens to what I want for me. I am working on rebuilding myself and am trying to be patient with the process. Thanks for sharing your story!
Thank you so much for sharing this. I've had some experience with stopping meds over the last 28 years of my life. I was misdiagnosed as having depression alone but by the time I was 20, it was evident that I had bipolar 2. During both of my pregnancies- although I could have taken some medication and been closely monitored, I opted not to take anything. Then I stopped in another time in my life, I can't even say why I really stopped, probably just feeling like, oh I'm fine without it...Later on this proved almost disastrous as a medication for one of my autoimmune diseases immediately threw me into mania. So I recognized the need to have something balance the chemicals in my brain.
Wow! This explains a lot. I was diagnosed with Hashiomotos Thyroiditis in 2013 and they gave me synthroid. I didnt know I had Bipolar yet. I had, what I know now, was a mixed episode. my wife did't know either and told me, "I didnt marry a menopausal woman!" because i was all emotional and crying (it's ok, we talk like that to each other). I actually quit after 2 weeks and never went back. I was diagnosed with BP1 in Jan this year, so I'm still connecting the dots. Thank you so much for this- its super crazy coincidental.
im 16 and have just been diagnosed with bipolar 1 w/ rapid cycling. They just put me on mood stabilizers but its had the opposite effect and I just really hope this gets better and they figure out my meds
After 3-6 months of trying, tell your dr you would like to try something else. We all have to be our own advocates. I waited much too long to speak up. Good luck!
When I was first dx"d, I played fast and loose with med compliance which obviously didn't help. The BP dx was a journey though. I think I had like half a dozen other diagnoses before they settled on BP.
Wow. So many diagnoses. That must have been difficult. I was first misdiagnosed with depression but I hadn’t had mania yet so seemed like an honest mistake.
@@ourbipolar Tez tak mam. Widać wyraźnie że leczenie depresji powoduje manię prędzej czy później. Gdybym znał skutki SSRI nigdy bym tego nie bral, ale lekarze tego nie mówią wcześniej dopiero kiedy dostaniesz manii wtedy powiedzą że niektórym tak sie dziejee.
Hello, thank you for your video. I was diagnosed at 38 with bipolar 1. I have been struggling with finding the right combination of meds for 11 years now. I just went to the doctor yesterday and was put on another one to try and help with side effects from the abilify. I have been on so many of them, i am very sensitive to meds and the side effects from them are debilitating and a few of them have caused pretty serious physical effects too. Im kinda at my wits end. I feel like i just want to give up and stop taking them but i know i can't. I did in the past and it ended in a very bad manic episode and a week in the psych unit. I promised my husband and my family i would never do it again. I just dont know what to do. Ill try taking this new pill tonight. It is originally for high blood pressure so my psych wants me to take my blood pressure every day to make sure it doesnt go to low. I guess im just tired from the Rollercoaster that is bipolar. Its just comforting to me to find your videos to let me know im not alone. Thank you again for listening and have a good night.
I went off of my meds and ended up in the hospital. Then i went back on them. Then stopped them again and went back to the hospital. Im now on zyprexa relprevv injection. Now i cant just stop my meds without them knowing right away.
We were misled and given once preparations that are no drugs only stimulants. If we lived in clay houses in Africa, no one would have ever given us such drugs, at most we would have been in danger of starvation or being eaten by a lion. Unfortunately, we have been eaten by the prez of the pharmaceutical industry. Because we live in the western world.
If i stop medication , the suicide will come sooner or later, taking lamotrigine for type 2 and still have cyclothymic episodes but they are somewhat manageable, with some mild manic episodes, no lows whatsoever. The only good thing is that I can financially support my overlaps and of course accepting the life under those conditions. I also have childhood trauma PTSD, where I witnessed human slaughter during war in Yugoslavia, 2 of my family members were killed and several friends under 12 years of age. In conclusion, I know that my triggers are aligned with human betrayal and specific times of the year.
I appreciate the video but am very confused and conflicted. You went a year being 100% normal after going off and still recommend going back? At the end, you said "made all the difference", but what it seems to me made a difference was you getting off initially. What more should we look for than complete normalcy? I just came off and, after watching this, I'm honestly not going to take my meds anymore. I was only on Seroquel. I'm more alert, happier, and feel like I did when I was young, before this BS. I experienced like a tingling in my head when I went off, and I believe that was a release of stress or something Regardless, thank you! I sincerely appreciate your viewpoint. Just think I have less faith in doctors. We're not all as lucky, and some of us will get crappy ones until they kill us
First, my experience is my own. I was shocked that I went a year without symptoms. I don’t think most people would. And yes, I definitely went back on meds because I was having severe mania and psychosis symptoms. It wasn’t simply going to go away. It’s scary to think where I would be if I hadn’t gone back on meds.
My pdoc took my zyprexa down to5 mg and I couldn't sleep so I asked for 10 mg. In the past I was always on 20 mg. As far as mania goes I've had only a few big manic episodes in my life and mood stabilizers never helped. I also take a low dose of lexapro. I want my zyprexa reduced again for fear of TD but I have a new doctor and she doesn't want me to. When I can't sleep I am psychotic, an angry psychotic. I have been taking psychiatric drugs for thirty years and I don't think I need them. My family is behind me. I could go to another doctor but I've been at this clinic thirty years. I am tempted use a pill cutter. And I have had devastating experiences going off my meds before but my bad energy has dissipated now.
I think if I were you, I would probably talk to that doctor about the med change again and then maybe seek a second opinion. What was her reason for not lowering the zyprexa?
My dad would go off his meds all of the time. But it was back in the 70s and 80s and even in the 90s. I do not blame him though, but it would throw him into mania after being off them. So he would get a manic episode once a year in the late 70 and a lot of the 80s. In the 90s he would stay on the them longer though. He had to be court ordered to go to locked psych wards a few times in the late 70s and 80s which was horrifying for him and my mom and siblings seeing him there. It actually gave me PTSD which at 55 years old I still have from it. So that brings me to anxiety. I still have a lot of anxiety off and on.. I am not bipolar though, but remember my dad did have anxiety too. Do you have anxiety? I mean everyone does to a certain extent, but mine can get bad. Shaking and all that ugh. You look really young, but are you in your mid 40s now? Also, hormonal changes with peri-menopause had made my anxiety worse. I am thinking of doing a video about my anxiety on my channel. Their are not very many RUclipsrs my age with videos about suffering from anxiety.
I’m 45. ❤️ I have diagnosed performance anxiety so I take meds before speaking in large meetings for work or about bipolar. Yeah, if not I experience shaking, sweating, rapid heartbeat, etc. I also have high anxiety at times but not GAD. You should do a video!
@@ourbipolar Yeah, I have GAD, oh joy! 😂 Well since you are 45 you probably are in Peri-menopause now. Some people sail through it but some struggle. I struggle. And I am post-menopause for seven years. I went into meno-pause at 48. It is so weird because Menopause is only one day lol The one day that one has not had a period for up to 12 months, so before it is peri and after that day it is post.
@@ourbipolar well they cannot measure Peri and you being 45 you probably are in it. It probably will go okay for you. Just don't google anything medical. I had to stop that. Go on HRT if you can.
I’ve gone through so many meds that they only have me on Seroquel to help me sleep, the other meds didn’t work they only caused more issues, I’m at the point I do not leave my home, I sit in the same place everyday all day because it makes me feel safe.
❤️❤️❤️
Jess! Thank you for this video! The med journey is always a journey. I would say to those struggling with medications to don't give up you might have to try several before you find the right one.
Steph! Excellent advice.
I went off all of my meds, not just mental health, but my lupus and fibro meds as well during a manic episode. I had been put on three different anti depressants which threw me into my first full blown manic episode. I've had numerous hypomanic episodes before this but never knew what was happening so I had been misdiagnosed as major depressive disorder. I tore my life apart during my first manic episode and stopped all my meds. The result was horrific. Lost my job, my home and contact with most everyone I knew and just disappeared. I am now back on my meds with something a little different but I am much better for being on them and grateful my new psychiatrist is working with me and listens to what I want for me. I am working on rebuilding myself and am trying to be patient with the process. Thanks for sharing your story!
I’m so glad you’re doing better. Your story and mine are so similar.
Thank you so much for sharing this. I've had some experience with stopping meds over the last 28 years of my life. I was misdiagnosed as having depression alone but by the time I was 20, it was evident that I had bipolar 2. During both of my pregnancies- although I could have taken some medication and been closely monitored, I opted not to take anything.
Then I stopped in another time in my life, I can't even say why I really stopped, probably just feeling like, oh I'm fine without it...Later on this proved almost disastrous as a medication for one of my autoimmune diseases immediately threw me into mania. So I recognized the need to have something balance the chemicals in my brain.
It’s a really difficult decision whether to take meds or not during pregnancy. I had to be convinced by my dr over several month to take them.
A lot of people will have a story like yours.
It's the SSRIs that cause CHAD after a while.
Also autoimmune diseases.
Wow! This explains a lot. I was diagnosed with Hashiomotos Thyroiditis in 2013 and they gave me synthroid. I didnt know I had Bipolar yet. I had, what I know now, was a mixed episode. my wife did't know either and told me, "I didnt marry a menopausal woman!" because i was all emotional and crying (it's ok, we talk like that to each other). I actually quit after 2 weeks and never went back. I was diagnosed with BP1 in Jan this year, so I'm still connecting the dots. Thank you so much for this- its super crazy coincidental.
Definitely makes sense. Menopausal woman lol. I’ll be one of those for real soon. 😂
im 16 and have just been diagnosed with bipolar 1 w/ rapid cycling. They just put me on mood stabilizers but its had the opposite effect and I just really hope this gets better and they figure out my meds
After 3-6 months of trying, tell your dr you would like to try something else. We all have to be our own advocates. I waited much too long to speak up. Good luck!
When I was first dx"d, I played fast and loose with med compliance which obviously didn't help. The BP dx was a journey though. I think I had like half a dozen other diagnoses before they settled on BP.
Wow. So many diagnoses. That must have been difficult. I was first misdiagnosed with depression but I hadn’t had mania yet so seemed like an honest mistake.
@@ourbipolar Tez tak mam. Widać wyraźnie że leczenie depresji powoduje manię prędzej czy później. Gdybym znał skutki SSRI nigdy bym tego nie bral, ale lekarze tego nie mówią wcześniej dopiero kiedy dostaniesz manii wtedy powiedzą że niektórym tak sie dziejee.
Hello, thank you for your video. I was diagnosed at 38 with bipolar 1. I have been struggling with finding the right combination of meds for 11 years now. I just went to the doctor yesterday and was put on another one to try and help with side effects from the abilify. I have been on so many of them, i am very sensitive to meds and the side effects from them are debilitating and a few of them have caused pretty serious physical effects too. Im kinda at my wits end. I feel like i just want to give up and stop taking them but i know i can't. I did in the past and it ended in a very bad manic episode and a week in the psych unit. I promised my husband and my family i would never do it again. I just dont know what to do. Ill try taking this new pill tonight. It is originally for high blood pressure so my psych wants me to take my blood pressure every day to make sure it doesnt go to low. I guess im just tired from the Rollercoaster that is bipolar. Its just comforting to me to find your videos to let me know im not alone. Thank you again for listening and have a good night.
I’m so sorry. It can be such a roller coaster. It’s a grind. I really hope the new combination works. 🤞🏼🤞🏼🤞🏼
@ourbipolar thank you so much. The fact that you are going thru so much right now and you took the time to respond to me means alot!
So relatable. ❤
😘❤️😘
I also stopped taking mine at one point. Luckily I was advised to take them again. It's so hard I never sit still for long. My dogs are my saviour
Doggos are good medicine as well ❤️
@@ourbipolar absolutely I adore them ❤️🩹
Same. Just got back from a walk with my Lucy. ❤️🩹
How did you do it? ANd how long exactly were you on Seroquel?
I just stopped all meds cold turkey. Not smart. I’ve been on Seroquel probably 10 years.
I went off of my meds and ended up in the hospital. Then i went back on them. Then stopped them again and went back to the hospital. Im now on zyprexa relprevv injection. Now i cant just stop my meds without them knowing right away.
Sounds like it’s for the best. Proud of you. 👏🏼👏🏼👏🏼
We were misled and given once preparations that are no drugs only stimulants.
If we lived in clay houses in Africa, no one would have ever given us such drugs, at most we would have been in danger of starvation or being eaten by a lion.
Unfortunately, we have been eaten by the prez of the pharmaceutical industry.
Because we live in the western world.
Good to know zyprexa relpyevv injection exists. I occasionally take zyprexa when I can't sleep or am too manic.
Have bp1 too. But I rapid cycle too. I'm on meds but feel high or anxious. I'm also on benzodiazepines.
I don't know how you stopped meds but glad you did
I’m not glad I stopped meds, but doing so pushed me to change psychiatrists (again) and advocate for myself.
Would you please look into tampering off benzodiazepine. I was forcibly stopped off of clonazepam and the withdrawal is hell.
@@DoreenWeed I'm trying on Klonopin. I can imagine it's hell sorry they did that. But at least you at the other side now. So hopefully you doing well
Interesting
If i stop medication , the suicide will come sooner or later, taking lamotrigine for type 2 and still have cyclothymic episodes but they are somewhat manageable, with some mild manic episodes, no lows whatsoever. The only good thing is that I can financially support my overlaps and of course accepting the life under those conditions. I also have childhood trauma PTSD, where I witnessed human slaughter during war in Yugoslavia, 2 of my family members were killed and several friends under 12 years of age. In conclusion, I know that my triggers are aligned with human betrayal and specific times of the year.
I’m so sorry that happened. Yes I agree about stopping medication. I’ll never do that again.
I appreciate the video but am very confused and conflicted. You went a year being 100% normal after going off and still recommend going back? At the end, you said "made all the difference", but what it seems to me made a difference was you getting off initially. What more should we look for than complete normalcy? I just came off and, after watching this, I'm honestly not going to take my meds anymore. I was only on Seroquel. I'm more alert, happier, and feel like I did when I was young, before this BS. I experienced like a tingling in my head when I went off, and I believe that was a release of stress or something
Regardless, thank you! I sincerely appreciate your viewpoint. Just think I have less faith in doctors. We're not all as lucky, and some of us will get crappy ones until they kill us
First, my experience is my own. I was shocked that I went a year without symptoms. I don’t think most people would.
And yes, I definitely went back on meds because I was having severe mania and psychosis symptoms. It wasn’t simply going to go away. It’s scary to think where I would be if I hadn’t gone back on meds.
My pdoc took my zyprexa down to5 mg and I couldn't sleep so I asked for 10 mg. In the past I was always on 20 mg. As far as mania goes I've had only a few big manic episodes in my life and mood stabilizers never helped. I also take a low dose of lexapro. I want my zyprexa reduced again for fear of TD but I have a new doctor and she doesn't want me to. When I can't sleep I am psychotic, an angry psychotic. I have been taking psychiatric drugs for thirty years and I don't think I need them. My family is behind me. I could go to another doctor but I've been at this clinic thirty years. I am tempted use a pill cutter. And I have had devastating experiences going off my meds before but my bad energy has dissipated now.
I think if I were you, I would probably talk to that doctor about the med change again and then maybe seek a second opinion. What was her reason for not lowering the zyprexa?
What is TD?
My dad would go off his meds all of the time. But it was back in the 70s and 80s and even in the 90s. I do not blame him though, but it would throw him into mania after being off them. So he would get a manic episode once a year in the late 70 and a lot of the 80s. In the 90s he would stay on the them longer though. He had to be court ordered to go to locked psych wards a few times in the late 70s and 80s which was horrifying for him and my mom and siblings seeing him there. It actually gave me PTSD which at 55 years old I still have from it. So that brings me to anxiety. I still have a lot of anxiety off and on.. I am not bipolar though, but remember my dad did have anxiety too. Do you have anxiety? I mean everyone does to a certain extent, but mine can get bad. Shaking and all that ugh. You look really young, but are you in your mid 40s now? Also, hormonal changes with peri-menopause had made my anxiety worse. I am thinking of doing a video about my anxiety on my channel. Their are not very many RUclipsrs my age with videos about suffering from anxiety.
I’m 45. ❤️ I have diagnosed performance anxiety so I take meds before speaking in large meetings for work or about bipolar.
Yeah, if not I experience shaking, sweating, rapid heartbeat, etc. I also have high anxiety at times but not GAD. You should do a video!
@@ourbipolar Yeah, I have GAD, oh joy! 😂 Well since you are 45 you probably are in Peri-menopause now. Some people sail through it but some struggle. I struggle. And I am post-menopause for seven years. I went into meno-pause at 48. It is so weird because Menopause is only one day lol The one day that one has not had a period for up to 12 months, so before it is peri and after that day it is post.
Sorry to hear that. My OB said I’m not in perimenopause but 🤷🏻♀️. Not looking forward to all that!
@@ourbipolar well they cannot measure Peri and you being 45 you probably are in it. It probably will go okay for you. Just don't google anything medical. I had to stop that. Go on HRT if you can.
Do you have insomnia while taking lithium? What are the side effects you are having from lithium?🙏🏻
Typically no, since lithium has a somewhat sedating effect on me. My side effects: impaired word recall, shaky at times, kidney dysfunction.
@ thank you for your videos and answers 🙏🏻❤️you are so helpful ❤️
@astaaiba1796 ❤️❤️❤️
I am afraid of starting taking the meds because I am afraid of gaining weight on them,how did you manage not gaining weight on lithium?
I understand. A lot of people don’t gain weight on lithium. 🤷🏻♀️
Depakote is a big weight gainer.
I think depakote is a terrible med. it’s not helpful and made me lose my hair
Same. It also made me sleep through alarms, yelling, anything. But I know that it works for some people.