Accused of FAKING symptoms?!
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- Опубликовано: 25 июл 2024
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8:21 - Thoughts on Provigil for fatigue
16:22 - Should MS patients get flu and covid vaccines?
21:19 - Once diagnosed with MS, when do you see your primary care doctor vs your neurologist?
24:34 - Remyelination
26:03 - Vitamin timing
27:51 - What does the name Multiple Sclerosis come from?
28:52 - If MS is an autoimmune disease, why is the primary doctor a neurologist and not an immunologist?
32:38 - Spinal tap
36:14 - Ok to stop medicine after being medicated for a year?
37:22 - Switching Plegridy to Kesimpta even if patient is stable
41:07 - Latent TB and on Kesimpta, should patient be treated?
43:03 - Why is there disability progression while on a DMT?
46:15 - Scared to take meds and the side effects?
54:50 - What do I do when people think I’m faking symptoms?
1:01:39 - Newly diagnosed and feeling overwhelmed.
1:05:00 - Can’t fight anymore
1:06:23 - What does positive spinal fluid mean?
1:08:25 - If lumbar puncture comes back negative but there are lesions on brain that indicate MS, when do you get another lumbar puncture?
1:09:16 - How often do you test for oligoclonal bands?
1:10:18 - Foot pain from MS after a few years, will it go away?
1:11:20 - Why is Mavenclad not more popular?
1:14:24 - After five years on Mavenclad had an attack but no new lesions. Should switch to another DMT?
1:16:28 - Can you get copay assistance if you have Medicare and another insurance?
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Fatigue and Depression is real for me!!🖐🏾
This is a good one Dr Boster.
Others cant see or feel All of our invisible symptoms. All I hear is, how do you feel, you look so good.
I get people ask me that all the time
Sometimes I feel okayish, but then when I get stressed or even just leaving the house the symptoms get worse . I'm always afraid people will wonder why .
That how I feel sometimes and I have to tell myself it will get better.
Thank you Dr. Boster...you have no idea how many of my family members (there are 7 of us and then spouses and nieces and nephews) accused me of faking symptoms for attention. Some thought because my older brother and an older sister just went through cancer that I was just seeking attention. I waited to tell my family about things till after I had a diagnosis because there were "happy" things planned for my brother that I didn't want to interfere with. I had one sister who knew everything and took me to doctor appointments. I ended up telling a few more on christmas, and I regret it. I did not expect the negative reactions. The bad part is I couldn't drive and could not leave right away. It hurt so much. To think about it still hurts incredibly bad.
The family part I feel is the absolute worse.
I can completely relate to you.
My mil is a nurse.... need I say more there
Yes, it is terrible when people we love think that we are faking or overdramatizing our symptoms. It's worse when it's my MS neurologist who thinks I'm overdramatizing bc MRIs don't show progression.
When I got irritated with the “oh you do not look sick” statement from the same person over and over again I just get very nasty and tell oh, you do not look stupid either. That takes care of the repeated questions.
There are different types I was told. All we know is what we feel. Fatigued and pain being touched at times. Vision and paralysis. Amen
@mariavaradi3169 my response to this is always, "unfortunately, that's one of the challenges of an invisible disease like MS. Others can't see it so they struggle to understand it. I'm happy to explain more if you'd like to learn". Usually they don't but they also shut up. If/ when it comes up again I repeat my answer and sometimes add, "you don't have to see it for it to be true".
@@mariavaradi3169 I love that!!
Sadly I have experience most of this. Yet my doctors continue to argue. spine specialist says MS. neurologist says it’s your spine. Rheumatologist says they don’t know.Many years of pain and not able to walk or work 😢. And nobody knows why 😬😬😬. They can all kiss my ass💯
I got DXed at 39. My dad and 2 cousins have MS and 1 past away. Amen 👍 it's a spinal tap and mri. Truthful ✅️ 👍 your spinal fluid carries the ms cells thru your body and destroying the Mylan sheeth.. thats truth 💯 AMEN. It's a struggle and it effects everything in your body. Amen 👍 brain fog. Muscle cramps and tremors. Truthful ✅️ 👍 counseling if you can't understand the basics of ms. This effects your ability to urinate normally you pee all the time and often have battles with controlling it and bowl movements. Amen 👍 truth 👍 they have meds that work great for some people but everyone's ms is not the exact same. It's neurological and they are still learning about the disease. Truthful ✅️ 👍. Counseling helps but it's a struggle and we try our best but some days just really suck. Amen 👍 1 neurologist said to move as much as you can without face planting the ground and that's a struggle. We try. Amen 👍 there are diseases that mimick ms and that's why testing is necessary to prove or disprove it. Amen 👍 it's a don't judge because you dont understand and just know that if they could cure it we would be happy to give it a go. MS SUX. AMEN 👍
Every time I tell that they say me too I am tired ……..it’s Not the same.
My own mom accused me of faking my symptoms
Been there, mine told me I was attention seeking. 😔
😢 😭 ❤️ 🤗
My mom said the same thing when I was diagnosed with PTSD 5 years ago and havent talked to her since. They dont hand out these diagnosis to just anyone!
Lhermitte's Sign 😫😞
I just end up telling them to go talk to my doctor. Clearly, their argument is with the the doctor who has verified all of this
This certainly needs to be addressed, thank you Dr.
Thank you I need my 8 year old grandson to listen to this episode😊
I get it. My 9 yr old grandson thinks I'm lazy and take to many naps.💕
I explained it like this, Look into the parking lot and tell me which car has a dead cell in their battery. I kept telling my doctor my brain isn't working right, instead of "I can't communicate concisely or track conversations"
I am not in pain sitting here, but if I try any physical activity, confusion increases, blurry vision , I am a literal melt down .They recently found 87% stenosis of my carotid bulbs. More testing to do but those 'non-specific white spots may have been saying TIA
Great video! So many more symptoms and pains to label but you got a few good ones here!
I had the biggest problem with this in the work setting. Symptoms could be so variable - I think my manager had a hard time believing. How could I be doing well one day and then terrible the next?
For me it's everything you described. The face pain is a rough one.
I’m trying to educate myself on MS because my boyfriend has MS. I came across your channel.
I’m understanding your way of explaining the symptoms. Also would like to know where can I get a t-shirt to support the cause?
So very True 😣 -love your videos 🤗🥰
Absolutely sir, so so glad you said this, and the symptoms. I had 75% of them before Tysabri, now 50%. The spinal fornom I always found funny, worrying but Intresting. However proves I have Ms. Yours sincerely Mark Samuel. MS X
I have all the above u mentioned and lesions on frontal lobe and one on the right back.. and yet I'm told to wait cause my spinal tap was negative.. so I deal with it on my own. I'm allergic to steroids so they Said only one or 2 meds I can have for Ms. So no dr will do anything..
Also trigeminal neuralgia is not fun it's worse than child birth and I had 5 kids. So yes alot of pain it's horrible.
Which 2 meds?
I'm 6'4 " and 275. Nobody tells me shit about my symptoms. 😆
Gracias por el mensaje educativo ❤es muy interesante saber 💥Dios me los bendiga y ilumine siempre Amén 💥gracias gracias
GAPS diet? Completely reset the body and gut. I'm going on a broth only fast for three days, but if I had a disease on that level, I would completely reset my gut and body.
Most of people doesn't understand our symptoms just because they cannot see it..😕
🤗💯🥰
Invisible 🫥 illness = Invisible 🫥 symptoms
#StrongerTogether