Dr Boster, I found your YT channel shortly after being dx’d 2 years ago. You were just starting your channel! Your channel has grown so much since then! So has my MS knowledge because of you 😊 thank you immensely for being there for me, even if you don’t know it haha. I will contact your office today to set up a telemed appt. Think I’ve decided to go on dmt...it’s scary!
I notice when the ground I am walking on is not lever like ramp or sidewalks where a root or something pokes up from underneath. It is hard for the brain to figure out weight distribution then the next step is off and so on. I find it best to stop get your composers breath and continue. People dont realise how much your brain does when doing simple movement and not have to think about it.
I've noticed walking in the dark is now significantly harder and my balance feels next to non-existent when outside at night. When I get up off a chair in a dark room I lose my balance and can fall over too. It's extremely validating to watch your videos and know it's not just in my head but there is an explanation for it.
Robyn C isn’t it great that we get validated, over and over. Walking in the dark causes a whole host of problems with our balance. A couple recommendations. Have you used trekking poles? That are much wiser to use than a cane and it helps our walking in the dark or anytime. . The next thing, are you a member of The MS Gym on FB, Instagram, The Membership(an absolute world changer) or following it on RUclips? My body and life are not the same, not even close than Before the MS Gym. I couldn’t walk in the dark, uh, 🤔 I couldn’t walk at all prior to meeting Trevor Wicken online and The MS Gym. . He’s the miracle MS has been waiting on. We can improve any symptom by using MS specific movement and exercise to build new neurological and neuromuscular pathways to work around our lesions and demyelination. I could go on all day and if you are already a member, sorry lol Well, have a great day!! And, Keep showing up here! Dr Boster will never steer us wrong!
@@Scotty.Rosencrance I'm sure interested in the sites you mention. I am researching for my Father. I found "the MS Gym" on FB, but what is The Membership? What site is that or how do I access? Thank you in advance.
The thing with the lights and the noises is very true for me. I have difficulties to process all that information and walk at the same time. Crowds are very difficult too. Calculating how to move to avoid people is very complicated for me. Sometimes I can get very overwhelmed and I need someone to guide me.
Haghenveien , I’m glad to see you here! Boy you are right, Our brains can’t process all of the noise, lights and in crowd if you were unlucky enough to add that to the equation. You shoukd look at my comment that is a couple comments above you about walking in the dark. I know it’s hard to believe, but it is possible to improvethese things, you just have to know what to do and led by the right person. I have 2 idols. My MS specialist, DR AARON BOSTER #1 and the creator or The MS Gym, Trevor Wicken(if you don’t know of him, an easy way to get introduced is on RUclips. My team of people to help me heal is unmatched. Please join on FB and when you are ready to take your healing to the next level please join The Membership at themsgym.com. I’ve got to go for the moment, but please have a great day and know that help for the MS community had arrived! We got this
I had big big walking problems and severe weakness in my legs for years. I use to work out to be healthy. I changed it to working out to be strong. Made a big difference and with other methods, I now walk fairly well and have a much easier time walking.
I was diagnosed with relapsing/remitting MS in 2004, and my father was diagnosed with Devics disease at the same time. I only discovered you and your videos recently, and I have found them very informative and useful in considering my current challenges and approaches to discuss with my neurologist. Thank you for all of your hard work for your patients and the MS community at large.
Dr. Boster, what are your thoughts on MS and genetics? When my dad and I were diagnosed, we were told then that it wasn't a genetic disease (I realized MS and Devics aren't exactly the same thing, but I think they can be considered related?)
What is a polite way to tell a neurologist that he/she should just suggest your RUclips channel for people to learn more about MS? I was dx 6 years ago, and have learned more from your videos in the past couple days than I have from 4 different Neurologists.
I’d like to add also the walking that you did was how I walk I have foot drop and I sling my leg so guess hip issues!! 😂And that’s why you’re a great doctor because I have yet to see my own doctor talk about this!
I was shocked by how much my leftover “permanent” eye issues (post INO) contributed to my gait difficulties, and started targeted graduated eye exercises rehabbed both my long term lagging right eye (optho shocked!) AND my gait. This is a great comprehensive lists of “all the things” that contribute, most of which can be managed or rehabbed. Thank you Dr. B.!
I had double vision for along time before I was diagnosed. I get it when I am tired and of course the other usual triggers cause it . I don't see well at night so I don't drive when it is dark. I also have bad depth perception on my right and left side. I will trip or even have run into doors and really any object on my sides. I used to get foot drop alot. I don't so much anymore. My thigh muscles were locked up and so tight I thought they could rip. PT and a tens unit finally loosened up. I cried happy tears when I felt them loosen. 20 years of frozen tight muscles. Cronic Pain kills. Thank you Dr. B. I told my neurologist about the video about watching people walk. Honestly Dr. B you are one of my life savers. Watching your videos about the consequences of not being on a DMT. Because of you I started Gilenya on June 4th. My neurologist said that if he didn't know I had MS he wouldn't think I had it! And my eyes are stable. If it wasn't for you I really don't think I would have started taking it. I am on some Facebook MS support groups and I advocate for everyone to be on a medication. I tell them the things you have taught me. I know that I am not the only one who is so thankful for you. If I have a problem I look through your videos and usually get my answer. Thank you Dr. B 🧡🤗
Great video Dr. Boster! I was diagnosed in 2014 at the age of 58 ! Yup, I was a late bloomer! LOL... While away, doing some camping and fishing earlier this month, and did a bit more walking than normal. I suffer occasionally from MS hugs, if I do a lot of walking, like in a grocery store without scooters. I get a sudden stabbing pain in my mid back with some problems breathing, then poof... my legs turn to jelly and down I go if I can't grab on to something! I don't know how many times I have ended up hanging on to a shelf or meat cooler crying because of the pain and fear of going down! During this trip, I started to experience leg spasms at night that kept me up half the night! I spoke with a MS nurse after getting home, and she said it was my bodies way of telling me I have been too much, and to slow down! After a urine test I found out that I have a UTI, seems I am on antibiotics more than off these days!
Hi Karen, I too was diagnosed later in life at age 57 (1 year ago) and am encouraged to hear that you are still walking 8 years later. I used to go bushwalking but can only manage flat paths these days which make me feel sad. But hey, I can still drive, my hands and eyes are fine and I am maintaining my independence, thanks Lord.
Wow I get those mid back stab feelings too! Completely debilitating! I always fight back pain ever since. I cycle everywhere and always get stronger. I might be in the best shape of my life with MS! I am 37.
This is an AN ABSOLUTELY INVALUABLE VIDEO and should be shown to every single MS patient that is newly diagnosed or like me was diagnosed 10 years ago!! NONE of my MANY (at this point in the game) neurologists has never ever talked about nor taught me any of this, not to mention impressed the importance of how VITAL it is to ACT VIGOROUSLY and consistently to mitigate or even prevent many of these issues for a person with MS ... I SURE WISH SOMEONE WOULD HAVE LET ME IN ON THIS SHIT 10yrs ago in a consistent way... I really do believe it would have made a big difference for me.
Hi Dr. B🙋♀️, great topic again 👍. What about brain or spinal cord lesions affecting walking ? Walking has been a struggle for me ever since my first attack. Progressively worsening😕. Thanks for all you do!😊
Great information as always!! It has been nearly a year since starting Lemtrada, and I have seen improvements in balance. This has helped me stand longer and walk more safely. Aside from my fatigue and cog fog, the MS symptoms seem lessened, no attacks whatsoever. You inspired me to give the treatment a chance. 💕This may have been the best treatment decision I’ve made since diagnosis. Thank you for providing so much information about the option. It helped me navigate a major decision. My doctors recommended the treatment, but this channel was a major help during a scary situation. Scary because my disease was throwing huge temper tantrums and the lesion load was exploding. Both calmed down after maybe the first month after Lemtrada. Thought you might appreciate hearing how you impacted someone’s journey through your generosity. I really appreciate you, Dr. Boster! Maybe next I can get inspired to take better care of myself. Fatigue is a beast! 😬 Motivation seems to be a massive challenge as well.
Sounds like I have the same problem!? Have had uti for many years.. started to drink excessive lemonade and it seems to have gone away! can this really happen? I hope so!
Here is my strange walking problem. I have had MS for twenty years. For work I walk back and forth on a platform dispatching trucks. Recently I am only comfortable walking when equipment is nearby, or I am walking next to a wall. Wide open spaces make it uncomfortable to walk without a cane. Have you ever heard anything like this anyone?
Good Morning Dr. Boster. Another Monday morning great video. This certainly helps an individual to determine the type of walking problems they may have. Have an awesome week.
Thank you for this. I found it very interesting. I was diagnosed with MS in October 1991 when I was 18. Live in the UK. I do not have 100 % sensation in my arms and legs. Been taking glatiramer acetate for about 17 years and it seems to help. I don't always lift my leg high enough when walking. But I also have an unstable ankle (it is also hypermobile) so that doesn't aid my walking. I have found that heat makes the symptoms worse, but occasionally I get improvements in very cold weather. The legs always seem to feel heavy and are stiff when I stand up and start to walk. Also get muscle spasms, but take Tizinidine for this. What I find annoying is that I used to walk a lot because I found it relaxing. Now I can't even walk half the distance I used to. Thank you for your work. Best wishes
I have ms n I walk 12.000 steps a day I have done this for about 1 years it's makes me feel better no other problems so far but it's life n I'm happy living my life 😊
Thank-you so much for the work and time you give to increasing knowledge. I have been told I do not have MS (spinal fluid is perfect, only have lesions on my brain that haven’t changed in 6 years, auto-immune panel is negative, onset at age 60) I just have the symptoms of MS! I watch you because I learn ways to manage the symptoms, and it’s just nice to hear about others like me. I don’t want MS, or whatever it is I have, but I wish I could have you for a doctor! I have a precious NP right now who actually listens to me and tries various meds to manage my symptoms. ❤ Right now she has me on Prozac, Gabapentin, and Nuvigil. I seem to be having more days where I function! I love your presentations!❤
Wow so much information- thanks for sharing. I’ve had MS for 10 years now. I’m on Techfidera. Unfortunately I have a good 50% of these symptoms Best wishes everyone Take care 🙏🏾
I am newly diagnosed and have a lot of trouble walking. This helped me be able to articulate the struggle as in the past that has been difficult. When I see a specialist (soon) I will be better prepared. That you, 😃
Great video!! I think you've covered all issues about walking, I have almost all of them !! I usually improve a lot when I start physiotherapy using the "Bobath concept", it can maximise neuroplasticity !
Thanks for the comprehensive video Dr. For me out of these, Vision (Double/Foggy/Depth perception), Numbness, Foot-drops, Frozen shoulder, Heat, Bladder/Bowel, seem to be the current irritants for me. Think, I can expect others you have listed, in the future too 🤨 Wisdom tooth decay, in times of Corona, Am scared to go to a dentist, hoping the home remedies will help for now
Your info is great thanks. In walking my right leg gives me problems. My right knee moves side ways when walking. Just ware a knee brace with metal on both sides
Excellent Excellent video as always. I love the way you break it down so all of us MS warriors can understand exactly what's going on and understand. Ty Dr B
Thanks again for another great video. You’ve described so well all the problems with gait, balance and coordination caused by MS. Cannot wait to talk or have a visit in your office.
Hallo Aaron, well, walking is a topic that is really hard for me. Since my diagnosis 8 years ago I ahve experienced all different kinds of walking issues: foot drop, balance issues and many more. Most disturbing are trigeminal neuralgia and spasticity in my legs on both sides. I got a new medication called Tizanadine, which doesn't seem to work at all. My neurologist refuses to prescribe Baclofen, cause she thinks this medication might me the last option and if Baclofen doesn't work, there's nothing more she can do. Well, I partly agree with her, but I am really suffering from spasticity. My walking is poor, the distance is maybe 5 steps but with a walker. I used to walk everywhere...it is a bigchallange for me to be so dependant on my husband who is helping me with everything. Thanks for your time and work you put into educaing your community! I hope someday I can come visit you in your office! Sending my best regards, Britta
Thanks for the list! It helps my family and friends understand why I have difficulty or am unable to walk. You are a very generous Dr. and so helpful!! Again, THANK YOU!🧡
I found that when my bladder is full, my walking deteriorates. One time at the Neuro, I did the 50' walk, realized that my bladder might be full, emptied my bladder and did drastically better on the 2nd try on the 50' walk. On a similar note, due to a fall, I broke a bone in my hand. My walking quality was slowly getting worse over the next 4 weeks. After I got surgery to repair the hand, my walking 'magically' improved.
It would be the best decision you could make with your MS in my opinion. It was fir me. I’m 5 hours away but would drive(ok, so ride lol) 12 hours to be able to do it. I hope your having a great day!
I've been bitten by a dog before and thus don't want to walk around my neighborhood. This prevents me keeping up my fitness as I'm very scared of falling over again. Thanks for this go to site🙂
When I walk if I look right/left my body goes in that direction. If I look at a plane or helicopter my body wants to fall. If I look at the ground my body want to fall forward.
Hi Dr. B. Me I have like a rush of low blood pressure. Makes me walk like I'm drunk or I pass out. RRMS since 1997 (first attack) 64 y. F NB Canada ❤❤❤
Dr. B, Blacklights cause a difficulty with walking for me, even our buglight in our yard causes me problems. I get nauseous, have feelings of vertigo and cannot walk without assistance. Jeni B.- South Dakota
I have severe vertigo, muscle spasms, blurry vision with black spots, issues walking on my right leg (if feels so heavy), issues with my right foot, heal tendon so tight it's hard to flex the foot, and lots of arm and leg jerks. I have loss of sensation in one of my toes. I also get a lot of pins and needles in my feet and hands. I get something like a zap in the spine usually when I'm sleeping and it wakes me up, my shoulders are hunched into my neck and it feels like a loud bang and pain. I'm awaiting an initial MRI of my cervical and thoracic spine in December. We suspect it's MS.
This is exactly what I have! Even getting dressed is a challenge. Putting blue jeans on is hard when you can’t lift your leg up high enough, plus it hurts! Thank you for taking the time to explain all of this.. I can certainly relate, but I have never been diagnosed.. I’ve never been on medication for it.
I think when you may be forgot to mention, was when it is too bright. I have to have things extremely dark in my house! I can only go outside at night because the brightness bothers me so badly .they’re not sure if it’s due to optic neuritis or another issue yet oddly, the back of my eye looks healthy! But my retina is damaged and they don’t know why it’s a mystery to me too but I’m in Hawaii were medical care is horrific.
Wow..I have all of these especially hip weakness and quad weakness. As soon as I fell the first time with my cane then I knew I wouldn’t trust it as my mobile device anymore. It makes me so angry to know that I pushed myself to use the wrong mobile devices in order to seem more normal. Good gracious, I’m so thankful for these videos.
So I’m glad I found your channel..though this post is 2 years to late..I’m being tested for vertigo currently and I was already told by a Dr I have that..but I have so many other symptoms that you’re talking about..balance, walking, brain fog (it’s getting worse) lack of concentration, over active bladder (peeing in bed and bowl problems too) numbness etc..but I had an MRI done by another Dr and immediately referred me to a neurologist, just told changes in my brain..I can’t get a report from them at all..I’m already frustrated and I feel I’m already being run through the ringer..what should I do?
OK I’ll add to what you may have left out. If the ground uneven. Like being on a sandy beach or a muddy environment. Or even being barefoot and without shoes and you’re on the grass or ground. Environment like that makes stabilization of walking difficult.
I’m wheelchair bound because of foot drop including weakness. It hit me fast and I wish there was an MS clinic in Idaho, because I don’t think I would be this bad.
Thank you Dr Bostor. You know and explain the struggles I/we have with MS. I was dx 11/96. Still positive attitude, faithful, walking (thankfully) w/ an aid. I also strive to practice gratitude by recognizing the many blessings MS has given- such as the absolute necessity to be very mindful when walking so as not to loose balance and gf fall. :D
#51 = hand drop, part 1 (when you are walking and your MS-clunsy hand drops something right in front of you and you trip over it) ... #52 = hand drop, part 2 (when you are walking and your MS-clumsy hand drops something moderately heavy on your foot and injures it)
Thank you for showing examples through out the video it helps to connect a name to what's happening. You also mention noise is a factor. I notice I get fatigued and disorientated with my walking when trying to work with music on.
Dr Boster, since November I have been off sick and went through the ill health retirement process at my work successfully. During the time the UK was on COVID-19 lockdown and with my wife home working she seen a massive decline in both my physical and mental abilities. For the last 2 months I’ve been taking 12,000IU of vitamin D3 daily and my wife has seen a massive improvement in both my physical abilities and my mental health. I start my Ocrevus next week so my theory is Ocrevus to stop disease progression and vitamin D to make me feel better. Is there any information from your experience to support the vitamin D benefits to MS?
This was great thank you. I am getting tests done to see if I have ms I hate foot drop i have had it 3 times my ankle is always a dull pain in it slowly getting worse I walk alot I don't drive so I have always enjoyed walking there's been days I cannot physically take my son to school the tiredness overwhelms me soreness pain also my right hand been bad pain in my fingers and wrist shoots us to my elbow never had that before and my fingers when I relax them go inward. I have had carpel tunnel before when I was pregnant it's sort of the same pain especially in pinky shots right down even twitches. Also always had a hand tremour that's never before affected my life sometimes was noticeable but I was used to it now I can't barly do things as shaking so bad in both hands sometimes feel my legs shake really bad esp walking down a set of stairs. It's very noticable I had vertigo 3 years ago I recently had it again but went away didn't stay long this time 1st time having it my left eye was moving but I didn't know like a shaky way. This was very interesting and helpful 🙂
Super interesting. Daily walking has helped me improve my fatigue so much. I can manage an hour now, which I am thrilled with. Little and often is my motto. Xx
Thank you for this informative video, Dr Boster. I live in Russia and I have MS since 2010. My walking worsens much when I see somebody's looking at me, is that a kind of psychological issue? Thank you.
Thanks very informative! I learned a lot! I am 30 and go in for a MRI and Autoimmune testing in a few weeks here and I noticed 3yrs ago the first thing to go for me was my vision on the left eye was very poor and I used to have 20/20 then the second thing was driving or walking at night was very hard now we are 3 yrs in and I get tingly hands and ankles and vertigo and what feels like a dead left knee which throws me off balance real bad and now I can’t even work because of it it’s really flipped my life upside down.
Again another great share by you that is very informative. Doc Hyper knee extension affects my right leg as well as ankle weakness causing my foot to drag
Feel about six times so far how lucky I am every everyone I come across I heard they stopped walking witches movie giving up"well I tell myself I'm not going to give up you have to rely on you do have loved ones around such as your own children God bless them and prepare them for their futures to come and pray that they don't have to go through this Lee Hartman ship"we are Walker's never had opportunity to drive hadn't working seven years dreams seem like it shattered but I keep the faith"so far seven years now and I'm still pushing wow!"
Tremors! The tremors hit my right leg (knee specifically) in April of 2018 and it drastically impacted my ability to walk properly. I had to modify my gait in order to compensate (I have to lock it with each step). I’ve had to modify how I drive and use stairs. It’s a matter of time before the tremor hits my left leg. PPMS dx’d 2017
Is it a form of spacicity, when my legs get stiff after sitting too long and then I have a hard time walking once I stand up?. It almost makes me feel like a tin man without oil.
I have this. Not diagnosed with MS, but have severe Osteoarthritis in both knees, and I think proprioception and unexplained balance problems, I often sway. When I stand without crutches all the muscles in my legs tighten. If I have been sitting for a while and get up I can only walk with a shuffle until I get going.
Hi ther Arron. A quick question pls. Can you explain the sensation I had recently . I was walking when I had to step onto the curb!/ Sidewalk . As I did so it felt strange like I suddenly stepped onto a sponge! And for a few more steps to my home this happend. I was scared and worried thinking what just happened. I have lots of episode with my legs meaning stiffness and weakness .I would be greatfull if you could shed light on to this for me. I also had the electrical zapping down my spine! But that's only happened twice.and it was a while ago now. Thanks .
Thank you for your vblog, I have learned so much. I have had MS since 2002 and haven't had many issues until a loss of insurance due to divorce left me without the Tybsari I was taking for 8 months. I've just recently started taking the meds again but the last MRI showed new damage or a old damage coming back and the issues with my eyes have started again. I don't want to be 'stuck' like this and am worried that I may be. Overall very pleased with my doctor, but what else can I do. I currently don't take any supplements as I don't trust and/or am unsure of exactly what I should take. Any direction is appreciated and thank you again for your vblog.
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Dr Boster, I found your YT channel shortly after being dx’d 2 years ago. You were just starting your channel! Your channel has grown so much since then! So has my MS knowledge because of you 😊 thank you immensely for being there for me, even if you don’t know it haha. I will contact your office today to set up a telemed appt. Think I’ve decided to go on dmt...it’s scary!
Wow, thank you!
I agree 100%!
Oh my gosh so sad . Poor family .
I notice when the ground I am walking on is not lever like ramp or sidewalks where a root or something pokes up from underneath. It is hard for the brain to figure out weight distribution then the next step is off and so on. I find it best to stop get your composers breath and continue. People dont realise how much your brain does when doing simple movement and not have to think about it.
❤ So wish you were my doctor.
I've noticed walking in the dark is now significantly harder and my balance feels next to non-existent when outside at night. When I get up off a chair in a dark room I lose my balance and can fall over too. It's extremely validating to watch your videos and know it's not just in my head but there is an explanation for it.
Robyn C isn’t it great that we get validated, over and over. Walking in the dark causes a whole host of problems with our balance. A couple recommendations. Have you used trekking poles? That are much wiser to use than a cane and it helps our walking in the dark or anytime. . The next thing, are you a member of The MS Gym on FB, Instagram, The Membership(an absolute world changer) or following it on RUclips? My body and life are not the same, not even close than Before the MS Gym. I couldn’t walk in the dark, uh, 🤔 I couldn’t walk at all prior to meeting Trevor Wicken online and The MS Gym. . He’s the miracle MS has been waiting on. We can improve any symptom by using MS specific movement and exercise to build new neurological and neuromuscular pathways to work around our lesions and demyelination. I could go on all day and if you are already a member, sorry lol Well, have a great day!! And, Keep showing up here! Dr Boster will never steer us wrong!
@@Scotty.Rosencrance I'm sure interested in the sites you mention. I am researching for my Father. I found "the MS Gym" on FB, but what is The Membership? What site is that or how do I access? Thank you in advance.
I've had so many falls related to poor lighting.
The thing with the lights and the noises is very true for me. I have difficulties to process all that information and walk at the same time. Crowds are very difficult too. Calculating how to move to avoid people is very complicated for me. Sometimes I can get very overwhelmed and I need someone to guide me.
Haghenveien , I’m glad to see you here! Boy you are right, Our brains can’t process all of the noise, lights and in crowd if you were unlucky enough to add that to the equation. You shoukd look at my comment that is a couple comments above you about walking in the dark. I know it’s hard to believe, but it is possible to improvethese things, you just have to know what to do and led by the right person. I have 2 idols. My MS specialist, DR AARON BOSTER #1 and the creator or The MS Gym, Trevor Wicken(if you don’t know of him, an easy way to get introduced is on RUclips. My team of people to help me heal is unmatched. Please join on FB and when you are ready to take your healing to the next level please join The Membership at themsgym.com. I’ve got to go for the moment, but please have a great day and know that help for the MS community had arrived! We got this
I understand that one!
I had big big walking problems and severe weakness in my legs for years. I use to work out to be healthy. I changed it to working out to be strong. Made a big difference and with other methods, I now walk fairly well and have a much easier time walking.
I'm having this same issue. What do I need to do and what should I be eating
I was diagnosed with relapsing/remitting MS in 2004, and my father was diagnosed with Devics disease at the same time. I only discovered you and your videos recently, and I have found them very informative and useful in considering my current challenges and approaches to discuss with my neurologist. Thank you for all of your hard work for your patients and the MS community at large.
Dr. Boster, what are your thoughts on MS and genetics? When my dad and I were diagnosed, we were told then that it wasn't a genetic disease (I realized MS and Devics aren't exactly the same thing, but I think they can be considered related?)
What is a polite way to tell a neurologist that he/she should just suggest your RUclips channel for people to learn more about MS?
I was dx 6 years ago, and have learned more from your videos in the past couple days than I have from 4 different Neurologists.
I totally agree with you. I'm the same.thank God for Dr Boster.
I’d like to add also the walking that you did was how I walk I have foot drop and I sling my leg so guess hip issues!! 😂And that’s why you’re a great doctor because I have yet to see my own doctor talk about this!
I was shocked by how much my leftover “permanent” eye issues (post INO) contributed to my gait difficulties, and started targeted graduated eye exercises rehabbed both my long term lagging right eye (optho shocked!) AND my gait.
This is a great comprehensive lists of “all the things” that contribute, most of which can be managed or rehabbed.
Thank you Dr. B.!
DX 2003, doors slammed in my face, but I opened new ones. Just found your info-site, awesome thank you.
#StrongerTogether
I had double vision for along time before I was diagnosed. I get it when I am tired and of course the other usual triggers cause it . I don't see well at night so I don't drive when it is dark. I also have bad depth perception on my right and left side. I will trip or even have run into doors and really any object on my sides. I used to get foot drop alot. I don't so much anymore. My thigh muscles were locked up and so tight I thought they could rip. PT and a tens unit finally loosened up. I cried happy tears when I felt them loosen. 20 years of frozen tight muscles. Cronic Pain kills. Thank you Dr. B. I told my neurologist about the video about watching people walk.
Honestly Dr. B you are one of my life savers. Watching your videos about the consequences of not being on a DMT. Because of you I started Gilenya on June 4th. My neurologist said that if he didn't know I had MS he wouldn't think I had it! And my eyes are stable. If it wasn't for you I really don't think I would have started taking it. I am on some Facebook MS support groups and I advocate for everyone to be on a medication. I tell them the things you have taught me.
I know that I am not the only one who is so thankful for you. If I have a problem I look through your videos and usually get my answer.
Thank you Dr. B 🧡🤗
Can you tell me what DMT stands for?
Please Dr, talk more about motor fatigue. Thanks 🙏
here you go: ruclips.net/video/W9S-tYMy47o/видео.html
Thank you Dr 🙏
Great video Dr. Boster! I was diagnosed in 2014 at the age of 58 ! Yup, I was a late bloomer! LOL... While away, doing some camping and fishing earlier this month, and did a bit more walking than normal. I suffer occasionally from MS hugs, if I do a lot of walking, like in a grocery store without scooters. I get a sudden stabbing pain in my mid back with some problems breathing, then poof... my legs turn to jelly and down I go if I can't grab on to something! I don't know how many times I have ended up hanging on to a shelf or meat cooler crying because of the pain and fear of going down!
During this trip, I started to experience leg spasms at night that kept me up half the night!
I spoke with a MS nurse after getting home, and she said it was my bodies way of telling me I have been too much, and to slow down!
After a urine test I found out that I have a UTI, seems I am on antibiotics more than off these days!
Hi Karen, I too was diagnosed later in life at age 57 (1 year ago) and am encouraged to hear that you are still walking 8 years later. I used to go bushwalking but can only manage flat paths these days which make me feel sad. But hey, I can still drive, my hands and eyes are fine and I am maintaining my independence, thanks Lord.
Wow I get those mid back stab feelings too! Completely debilitating! I always fight back pain ever since. I cycle everywhere and always get stronger. I might be in the best shape of my life with MS!
I am 37.
Are you on any meds?
bro that intro never gets old
hella rad
TY soon! Credit goes to my wife, who is a baller graphic designer and did me a solid putting that together!
This is an AN ABSOLUTELY INVALUABLE VIDEO and should be shown to every single MS patient that is newly diagnosed or like me was diagnosed 10 years ago!!
NONE of my MANY (at this point in the game) neurologists has never ever talked about nor taught me any of this, not to mention impressed the importance of how VITAL it is to ACT VIGOROUSLY and consistently to mitigate or even prevent many of these issues for a person with MS ... I SURE WISH SOMEONE WOULD HAVE LET ME IN ON THIS SHIT 10yrs ago in a consistent way... I really do believe it would have made a big difference for me.
Hi Dr. B🙋♀️, great topic again 👍. What about brain or spinal cord lesions affecting walking ? Walking has been a struggle for me ever since my first attack. Progressively worsening😕. Thanks for all you do!😊
Great information as always!!
It has been nearly a year since starting Lemtrada, and I have seen improvements in balance. This has helped me stand longer and walk more safely. Aside from my fatigue and cog fog, the MS symptoms seem lessened, no attacks whatsoever. You inspired me to give the treatment a chance. 💕This may have been the best treatment decision I’ve made since diagnosis. Thank you for providing so much information about the option. It helped me navigate a major decision. My doctors recommended the treatment, but this channel was a major help during a scary situation. Scary because my disease was throwing huge temper tantrums and the lesion load was exploding. Both calmed down after maybe the first month after Lemtrada. Thought you might appreciate hearing how you impacted someone’s journey through your generosity. I really appreciate you, Dr. Boster!
Maybe next I can get inspired to take better care of myself. Fatigue is a beast! 😬 Motivation seems to be a massive challenge as well.
Sounds like I have the same problem!? Have had uti for many years.. started to drink excessive lemonade and it seems to have gone away! can this really happen? I hope so!
Here is my strange walking problem. I have had MS for twenty years. For work I walk back and forth on a platform dispatching trucks. Recently I am only comfortable walking when equipment is nearby, or I am walking next to a wall. Wide open spaces make it uncomfortable to walk without a cane. Have you ever heard anything like this anyone?
Thank you so much spacisity is kicking my posterior.
Good Morning Dr. Boster.
Another Monday morning great video.
This certainly helps an individual to determine the type of walking problems they may have. Have an awesome week.
You too John!
Thank you for this. I found it very interesting.
I was diagnosed with MS in October 1991 when I was 18. Live in the UK.
I do not have 100 % sensation in my arms and legs. Been taking glatiramer acetate for about 17 years and it seems to help. I don't always lift my leg high enough when walking. But I also have an unstable ankle (it is also hypermobile) so that doesn't aid my walking.
I have found that heat makes the symptoms worse, but occasionally I get improvements in very cold weather.
The legs always seem to feel heavy and are stiff when I stand up and start to walk. Also get muscle spasms, but take Tizinidine for this.
What I find annoying is that I used to walk a lot because I found it relaxing. Now I can't even walk half the distance I used to.
Thank you for your work.
Best wishes
I have ms n I walk 12.000 steps a day I have done this for about 1 years it's makes me feel better no other problems so far but it's life n I'm happy living my life 😊
This was fantastic info, thanks! I’m always trying to determine the cause of my falls so that I can prevent them, so this should help!
Thank-you so much for the work and time you give to increasing knowledge. I have been told I do not have MS (spinal fluid is perfect, only have lesions on my brain that haven’t changed in 6 years, auto-immune panel is negative, onset at age 60)
I just have the symptoms of MS! I watch you because I learn ways to manage the symptoms, and it’s just nice to hear about others like me.
I don’t want MS, or whatever it is I have, but I wish I could have you for a doctor! I have a precious NP right now who actually listens to me and tries various meds to manage my symptoms. ❤
Right now she has me on Prozac, Gabapentin, and Nuvigil. I seem to be having more days where I function! I love your presentations!❤
Wow so much information- thanks for sharing. I’ve had MS for 10 years now. I’m on Techfidera. Unfortunately I have a good 50% of these symptoms Best wishes everyone Take care 🙏🏾
Thank you sir for sharing your knowledge and wisdom again this week! I look forward to learning each time you post! Have a blessed week!!
I am newly diagnosed and have a lot of trouble walking. This helped me be able to articulate the struggle as in the past that has been difficult. When I see a specialist (soon) I will be better prepared. That you, 😃
Glad it was helpful!
Dr. Boster idk how I stumbled on this video, you diagnosed me in 2013. It’s been a journey yet I’ve made much improvement thanks for everything
These are such great points! So many people don't think about all these various ways their walking can be affected. Thanks for sharing!
I was diagnosed with MS in 1977 and I am learning so much from you ! Thank you!
Great video!!
I think you've covered all issues about walking, I have almost all of them !! I usually improve a lot when I start physiotherapy using the "Bobath concept", it can maximise neuroplasticity !
Thanks for the comprehensive video Dr.
For me out of these, Vision (Double/Foggy/Depth perception), Numbness, Foot-drops, Frozen shoulder, Heat, Bladder/Bowel, seem to be the current irritants for me. Think, I can expect others you have listed, in the future too 🤨
Wisdom tooth decay, in times of Corona, Am scared to go to a dentist, hoping the home remedies will help for now
Also using trek poles to walk for exercise is a great full body workout and gives much support
It also encourages a “correct” walking gait
I find the walking poles brilliant , they def keep you in the right position. And help so much with gait.
Dr. Booster you really listen to your patients. You explained the reason why I walk the way I do. Thanks!
Your info is great thanks. In walking my right leg gives me problems. My right knee moves side ways when walking. Just ware a knee brace with metal on both sides
Your such great doctor , my goal this year is to get teladoc with you . Honestly I wish you where here in Houston! It makes me cry 😢
Another informative video Dr B 🙌🏻👏🏻👏🏻👏🏻 thank you sir
MiKe EcKo as always huh? How are you doing? Feeling?
Another FANTASTIC video Dr. Boster! Thank You for everything that you do for us!
Excellent Excellent video as always. I love the way you break it down so all of us MS warriors can understand exactly what's going on and understand. Ty Dr B
Much appreciated Matt!
@@AaronBosterMD Goes without saying 🙏
Thanks again for another great video.
You’ve described so well all the problems with gait, balance and coordination caused by MS.
Cannot wait to talk or have a visit in your office.
I look forward to it! BosterMS.com
Thanks again for the excellent information.
Thanks. I dont know why I didnt know I had this earlier- 2 years ago. I guess I was just afraid and kind of minor effects to go get it checked out.
Hallo Aaron, well, walking is a topic that is really hard for me. Since my diagnosis 8 years ago I ahve experienced all different kinds of walking issues: foot drop, balance issues and many more. Most disturbing are trigeminal neuralgia and spasticity in my legs on both sides. I got a new medication called Tizanadine, which doesn't seem to work at all. My neurologist refuses to prescribe Baclofen, cause she thinks this medication might me the last option and if Baclofen doesn't work, there's nothing more she can do. Well, I partly agree with her, but I am really suffering from spasticity. My walking is poor, the distance is maybe 5 steps but with a walker. I used to walk everywhere...it is a bigchallange for me to be so dependant on my husband who is helping me with everything. Thanks for your time and work you put into educaing your community! I hope someday I can come visit you in your office! Sending my best regards, Britta
Warm regards and well wishes to you and yours Britta! Thank you for sharing with us! #StrongerTogether
Thanks for the list! It helps my family and friends understand why I have difficulty or am unable to walk. You are a very generous Dr. and so helpful!! Again, THANK YOU!🧡
Great vid as alwayes, take care💕😊lots of love from sweden
Thank you! 😃
I found that when my bladder is full, my walking deteriorates. One time at the Neuro, I did the 50' walk, realized that my bladder might be full, emptied my bladder and did drastically better on the 2nd try on the 50' walk.
On a similar note, due to a fall, I broke a bone in my hand. My walking quality was slowly getting worse over the next 4 weeks. After I got surgery to repair the hand, my walking 'magically' improved.
tbh going to your ms center is a life goal of mine😭
We see folks via telemed and in office!
It would be the best decision you could make with your MS in my opinion. It was fir me. I’m 5 hours away but would drive(ok, so ride lol) 12 hours to be able to do it. I hope your having a great day!
Scotty Rosencrance noted thank you!!
Wonderful , I have all m s issue but they called it FND , CRPS as I don’t have any lesions .
I was diagnosed with exactly the same thing , and Ehlers Danlos syndrome … turned out when investigated properly I have MS
I've been bitten by a dog before and thus don't want to walk around my neighborhood. This prevents me keeping up my fitness as I'm very scared of falling over again. Thanks for this go to site🙂
When I walk if I look right/left my body goes in that direction. If I look at a plane or helicopter my body wants to fall. If I look at the ground my body want to fall forward.
Hi Dr. B.
Me I have like a rush of low blood pressure. Makes me walk like I'm drunk or I pass out.
RRMS since 1997 (first attack) 64 y. F
NB Canada ❤❤❤
Thank you so much Dr. Boster...you mentioned it all! 🧡🧡🧡🧡🧡🧡🧡🧡🧡🧡🧠 Jersey girl here..
Dr. B, Blacklights cause a difficulty with walking for me, even our buglight in our yard causes me problems. I get nauseous, have feelings of vertigo and cannot walk without assistance.
Jeni B.- South Dakota
I have trouble starting to walk after having been seated for a while. Getting adjusted to my surroundings takes a while before I can start to walk.
TY for sharing Janet
I have severe vertigo, muscle spasms, blurry vision with black spots, issues walking on my right leg (if feels so heavy), issues with my right foot, heal tendon so tight it's hard to flex the foot, and lots of arm and leg jerks. I have loss of sensation in one of my toes. I also get a lot of pins and needles in my feet and hands. I get something like a zap in the spine usually when I'm sleeping and it wakes me up, my shoulders are hunched into my neck and it feels like a loud bang and pain. I'm awaiting an initial MRI of my cervical and thoracic spine in December. We suspect it's MS.
Your intro is such a signature vibe. I groove it.
Dr. Boster, your videos are such a treasure. Thank you.
This is exactly what I have! Even getting dressed is a challenge. Putting blue jeans on is hard when you can’t lift your leg up high enough, plus it hurts! Thank you for taking the time to explain all of this.. I can certainly relate, but I have never been diagnosed.. I’ve never been on medication for it.
I think when you may be forgot to mention, was when it is too bright. I have to have things extremely dark in my house! I can only go outside at night because the brightness bothers me so badly .they’re not sure if it’s due to optic neuritis or another issue yet oddly, the back of my eye looks healthy! But my retina is damaged and they don’t know why it’s a mystery to me too but I’m in Hawaii were medical care is horrific.
Wow..I have all of these especially hip weakness and quad weakness.
As soon as I fell the first time with my cane then I knew I wouldn’t trust it as my mobile device anymore.
It makes me so angry to know that I pushed myself to use the wrong mobile devices in order to seem more normal.
Good gracious, I’m so thankful for these videos.
So I’m glad I found your channel..though this post is 2 years to late..I’m being tested for vertigo currently and I was already told by a Dr I have that..but I have so many other symptoms that you’re talking about..balance, walking, brain fog (it’s getting worse) lack of concentration, over active bladder (peeing in bed and bowl problems too) numbness etc..but I had an MRI done by another Dr and immediately referred me to a neurologist, just told changes in my brain..I can’t get a report from them at all..I’m already frustrated and I feel I’m already being run through the ringer..what should I do?
Thank you for this video. I will be attending the MS views and news on November 11th, I look forward to meeting you.
I found this very informative and helpful. Thank you so much Aaron.
Sharing is caring
Awesome video
Thank you
Went to a neurologist once… they told me to come back after a few months. Having a lot of balance problems right now. It gets worse every day
Dr Boster's videos are super helpful, so glad I've found it. Newly diagnosed with a million questions, will keep watching!
OK I’ll add to what you may have left out. If the ground uneven. Like being on a sandy beach or a muddy environment. Or even being barefoot and without shoes and you’re on the grass or ground. Environment like that makes stabilization of walking difficult.
I’m wheelchair bound because of foot drop including weakness. It hit me fast and I wish there was an MS clinic in Idaho, because I don’t think I would be this bad.
road trip? telemedicine?
Aaron Boster MD
I can’t afford to go anywhere and I’m now unable to drive. I’m not sure how to do telemedicine.
Thank you Dr Bostor. You know and explain the struggles I/we have with MS. I was dx 11/96. Still positive attitude, faithful, walking (thankfully) w/ an aid. I also strive to practice gratitude by recognizing the many blessings MS has given- such as the absolute necessity to be very mindful when walking so as not to loose balance and gf fall. :D
#51 = hand drop, part 1 (when you are walking and your MS-clunsy hand drops something right in front of you and you trip over it) ... #52 = hand drop, part 2 (when you are walking and your MS-clumsy hand drops something moderately heavy on your foot and injures it)
Thank you for showing examples through out the video it helps to connect a name to what's happening. You also mention noise is a factor. I notice I get fatigued and disorientated with my walking when trying to work with music on.
I wish so much your videos have subtitles n Spanish, your information is great, simple easy to understand, thank you for your great work.❤❤❤
I'd love that but I don't know spanish ;( Wish I did!
Thanks Dr Boster for the information i have problems for walking 🚶♀️ but i a walking 😊 happy Christmas 🎄 Dr. Thanks
Dr Boster, since November I have been off sick and went through the ill health retirement process at my work successfully. During the time the UK was on COVID-19 lockdown and with my wife home working she seen a massive decline in both my physical and mental abilities. For the last 2 months I’ve been taking 12,000IU of vitamin D3 daily and my wife has seen a massive improvement in both my physical abilities and my mental health. I start my Ocrevus next week so my theory is Ocrevus to stop disease progression and vitamin D to make me feel better.
Is there any information from your experience to support the vitamin D benefits to MS?
This was great thank you. I am getting tests done to see if I have ms I hate foot drop i have had it 3 times my ankle is always a dull pain in it slowly getting worse I walk alot I don't drive so I have always enjoyed walking there's been days I cannot physically take my son to school the tiredness overwhelms me soreness pain also my right hand been bad pain in my fingers and wrist shoots us to my elbow never had that before and my fingers when I relax them go inward. I have had carpel tunnel before when I was pregnant it's sort of the same pain especially in pinky shots right down even twitches. Also always had a hand tremour that's never before affected my life sometimes was noticeable but I was used to it now I can't barly do things as shaking so bad in both hands sometimes feel my legs shake really bad esp walking down a set of stairs. It's very noticable I had vertigo 3 years ago I recently had it again but went away didn't stay long this time 1st time having it my left eye was moving but I didn't know like a shaky way. This was very interesting and helpful 🙂
Did you end up having MS if you don't mind me asking.
Super interesting. Daily walking has helped me improve my fatigue so much. I can manage an hour now, which I am thrilled with. Little and often is my motto. Xx
Very informative!👍👍
Glad it was helpful!
THANK YOU DR. BOSTER
Just fantastic..thanks Aaron
Excellent vlog bro 🤔🤔🤔🤔🤔
Thank you 😀
Miraj Walk Vlog absolutely!! I bet a ton of people are going to feel much more educated on the topic
Thank you for this informative video, Dr Boster. I live in Russia and I have MS since 2010. My walking worsens much when I see somebody's looking at me, is that a kind of psychological issue? Thank you.
Wow great video! Thanks!!
Glad you liked it!
Glad you are an advocate thanks!
Yessir footdrop is my struggle I have a brace to help .... mswarrior 💪
Thanks very informative! I learned a lot! I am 30 and go in for a MRI and Autoimmune testing in a few weeks here and I noticed 3yrs ago the first thing to go for me was my vision on the left eye was very poor and I used to have 20/20 then the second thing was driving or walking at night was very hard now we are 3 yrs in and I get tingly hands and ankles and vertigo and what feels like a dead left knee which throws me off balance real bad and now I can’t even work because of it it’s really flipped my life upside down.
Thank you for your videos! I have learned so much since being diagnosed in Dec.
Again another great share by you that is very informative. Doc
Hyper knee extension affects my right leg as well as ankle weakness causing my foot to drag
Feel about six times so far how lucky I am every everyone I come across I heard they stopped walking witches movie giving up"well I tell myself I'm not going to give up you have to rely on you do have loved ones around such as your own children God bless them and prepare them for their futures to come and pray that they don't have to go through this Lee Hartman ship"we are Walker's never had opportunity to drive hadn't working seven years dreams seem like it shattered but I keep the faith"so far seven years now and I'm still pushing wow!"
I have cerebellum ataxia which makes me feel like I am on a boat ride. I have balance and walking issues I use a cane
I wish I could see you. I live in Macedon Ny
thank you!
You're welcome!
Tremors! The tremors hit my right leg (knee specifically) in April of 2018 and it drastically impacted my ability to walk properly. I had to modify my gait in order to compensate (I have to lock it with each step). I’ve had to modify how I drive and use stairs. It’s a matter of time before the tremor hits my left leg. PPMS dx’d 2017
Thank you for sharing ❤
Great description!
Glad you think so!
I have damage to my foot after not feeling a curb and falling on my ankle, top down butt first!
Very helpful, thank you 😊 🙏
I don’t have Ms but my best friend does. I watched this as a way to understand the best I can what she goes thru. TY Dr.
Your friend is very fortunate to have someone like you in their corner ❤
Is it a form of spacicity, when my legs get stiff after sitting too long and then I have a hard time walking once I stand up?. It almost makes me feel like a tin man without oil.
I have this. Not diagnosed with MS, but have severe Osteoarthritis in both knees, and I think proprioception and unexplained balance problems, I often sway. When I stand without crutches all the muscles in my legs tighten. If I have been sitting for a while and get up I can only walk with a shuffle until I get going.
Hi ther Arron. A quick question pls. Can you explain the sensation I had recently . I was walking when I had to step onto the curb!/ Sidewalk . As I did so it felt strange like I suddenly stepped onto a sponge!
And for a few more steps to my home this happend.
I was scared and worried thinking what just happened. I have lots of episode with my legs meaning stiffness and weakness .I would be greatfull if you could shed light on to this for me. I also had the electrical zapping down my spine! But that's only happened twice.and it was a while ago now. Thanks .
Thank you for your vblog, I have learned so much. I have had MS since 2002 and haven't had many issues until a loss of insurance due to divorce left me without the Tybsari I was taking for 8 months. I've just recently started taking the meds again but the last MRI showed new damage or a old damage coming back and the issues with my eyes have started again. I don't want to be 'stuck' like this and am worried that I may be. Overall very pleased with my doctor, but what else can I do. I currently don't take any supplements as I don't trust and/or am unsure of exactly what I should take. Any direction is appreciated and thank you again for your vblog.