I made the appointment out of necessity, there was a 3 month wait to see a neurologist in network but I was desperate for answers. I should have cancelled the appointment when his office assistant called the day before my initial appointment to try and make it Teldoc. He never gave me time to fill out my medications list before scrolling over my mri, reading the report provided with the image. He said "it is not MS or you would have big lines and spots here before dusting his hands. Leaving me standing dumbfounded in the exam room I read the online reviews of my him after. I should have spent that money on booze
I saw a strange old man in the waiting room. Then I'm in the exam room and that guy comes in, I told him what was going wrong and he said "what do you want me to do about it?" I really did question is he was for real.
I had a surprisingly emotional response watching this video. Being newly diagnosed and told to go out and do the research to decide on which treatment I wanted to start was so overwhelming. It just made me feel hopeless. Thankfully, I now know that this just means I need to find a better provider who is knowledgable about the options. Thank you so much for all you share with our community in a country where our healthcare system is so convoluted you give me hope.
Very good that you know what you need to do now. Your six sense already told you actually. 😉 I have been MS diagnosed recently as well. As a 58 year old woman it was a confirmation for me. I have had so many health problems and always been in search for an answer to what was going on. Diagnoses as RSI, neuropathy and fybromialgia never satisfied me. I new there was more to it. So, it turned out they overlooked MS. Now that I know, for me it is easier to give my health issues a place, and to take my energy level better into account instead of crossing the line all the time. A ergotherapist has been a great help to me to bring back balance (work/private) in my life. It is bc of this therapy that I can work for an employer again.
Great advice. Unfortunately many of these red flags are unavoidable in our struggling NHS in the UK though. But we should certainly be striving for better care and monitoring.
Emma, I totally agree. It’s like care for MS in U.K. has not changed since the 90’s. My friends dad was diagnosed in the early 90’s, I was diagnosed in 2020, nearly 30 year gap and when we talk it’s like we were diagnosed at the same time.
I told my neurologist physicians assistant, that she needed to watch me walk, so she did. Then I said I’d like to try Ampyra. I also had to ask for an new MRI. We must self advocate to be well.
Hello, I have such a great wonderful MS Dr. Every appt with him he covers all of these red flag items. I’ve been with him over 20 years and I’m doing great. His name is Dr Barry Hendin in Arizona. Thank you Doc for all these videos.
I am 58 year old and MS diagnosed a few months ago. Point 10 is exactly the reason why I changed from neurologist. The difference is huge. My new neurologist is interested in me and bc of his positive attitude I can open up easily and feel at ease to do my story and ask questions. The neurologist I left felt like he did not like his job, as if he was done with it. No heart for his job and/ or me.
Hi Dr. B I have had “MS type symptoms“ for 20+ years which keep getting worse. I am currently waiting to see my seventh neurologist because I just continuously get dismissed and literally verbally insulted. All of those red flags such a crying shame. Although I haven’t been diagnosed with anything to date, I do find comfort in your videos as they help me to understand many things to which I thank you for taking the time to show your God given heart to the world.❤
Dr. Boster, One of my passions is to help MS patients with mental health comorbidities manage what they are experiencing through psychoeducation and therapeutic support. I use you as a resource often alongside the awesome powers that neuroscience provides, because the brain is a magical place! I just want to thank you for being a resource for Therapist's like myself that have a heart for the mental health of those on their journey with MS. Everyone has the right to understand what's happening to their body, expectations help manage stress and reduces the feeling of being out of control...knowledge really is power and it shouldn't be so mysterious. Normalizing the experience has brought peace, so thank you for unintentionally partnering with me lol!! Mental health and MS are intertwined ❤️ treat the whole person: mind, body and spirit! I have told many of my own clients this, Drs and Therapist's are like shoes, don't be afraid to try a few out until you get the perfect fit. 😉
At 75 years old my symptoms are worse! Doctors have never taken me seriously for some reason, l still do not have a diagnosis of MS even though l have had many problems for years, l have been quite frankly been suffering Praying to God for Stamina to go on , l was taught as a child many times to suck it up , my parents somehow managed to get me medical care when l needed it , l was always having problems with pain and numbness in my body even as a child but didn’t know how to describe the problem to anyone! I have had in my life the Ebsteen Bar virus and rheumatic fever, from lots of Streptococcal infections! I feel so bad now and l have talked to Doctors till l am talked out , they have recently given me a nerve conduction test , n EMG test plus labs but stated that l have severe carpal tunnel in both hands and pinched nerve in neck and back l asked about my numbness that doctor asked me if they have given me a spinal tap? I said no , l wonder if l can get that done at my age ? Thank You Mr Boster l wish l had you years ago for a Doctor ! You seem such a caring and thorough DR! God Bless You For What You Do ! 🙏❤️👍
Wow!! I was Recent diagnosed, January of 2024, and received a phone call from my neuroimmunologist saying I had MS and then she emailed me 5 choices to pick from for my Meds. Needless to say I have no idea how to pick and haven't yet! It is now mid May. During my initial and only in person visit last October, she also told me we didn't want to focus on my symptoms! I definitely need to kick her to the curb!
Number 9 drives me crazy! It was the strangest part about being diagnosed, and is absurd. Just as you described sending a patient home to make their own decision without much clinical explanation and support is quite frankly, lazy medicine in my opinion. I experienced this, and it led to a small delay in starting treatment for fear of selecting the wrong medication.
I was given a package outlining DMDs, side effects scared me so went with a lightweight med when the MS continued to get worse. Thankfully I got scared and chose to switch DMDs, the possible side effects scary but disability even scarier! Guess that comes with experience and wisdom 🤷♀️
Maybe I should just drive the 2 hours to see you. I have 4 new lesions just this year and was given the choice of 3 meds to choose from. I still haven’t decided because I’m afraid I’ll make the wrong choice for myself. And I don’t know what to do. I also have to schedule my appointments 4-6 months in advance just to be seen. I’m currently on the cancellation list and still waiting to get in. I was diagnosed 4 years ago, or should I say, someone missed my diagnosis in 2008. I currently have 15 lesions. I’m afraid, yet still very blessed to be able to function at almost full capacity! The anxiety, pain, depression, and fear are probably not helping!
I dumped my old neurologist based in large part on this advice and saw an MS specialist for the first time this afternoon. The difference is night and day. My new doc checks all of the boxes you've mentioned here and I couldn't feel more vindicated right now. Thank you for the excellent advice.
If not for the red flags, I never would have been desperate and started to search on RUclips, finding you. It’s empowering to have this access to wisdom and support outside of an office and hearing it when you’re at such lows.
The Neurologist who made my diagnosis gave me 4 options for treatment and asked me to look into them and choose. However, from day one he was up front about not being an MS specialist. He also told me that anytime I wanted to find a specialist, he would help me find one and refer me. Fortunately I have an acquaintance who likes her MS Neurologist and recommended the clinic where she goes. That's where I am now. Different doctor than her, but same clinic. Looks like Dr. Boster would give me the thumbs up on these Red Flags with my neurologist.
Thank you for sharing. My neurologist asked me to choose between two medicines but just because I'm a young female and she wanted me to think about wanting to have children or not in the future, which can be impacted by certain medicines. Unfortunately most people I know with MS have been given the choice between quite a lot of meds, the only thing the doctor decides usually is if giving a first or second line med, then it's up to you, which of course is very confusing for us and also scaring, because if the med doesn't work we feel like it was our fault cause we picked the wrong one...
Honestly watching your videos helped me find a better doctor. I found out two years into care that they were a general neurologist and not one that specialized in MS. I can say hands down that I makes a huge difference in care and overall treatment. I finally got to be on a DMT that I wanted and that didn’t make me feel worse. Got diagnosed with something I didn’t realize was an MS issue and had my first MRI that didn’t have new lesions. I appreciate your content and attitude on MS.
OMG! I have seen several neurologists over the last twenty years (not my choice, they just move on), and the best one only succeeded in one half of one of those red flags! I didn't know any better back then, so your advice is monumentally important to recently diagnosed people. I am sharing this video everywhere I can and will continue to do so every few weeks. If it can save someone from what I; and many others, have experienced, it is worthwhile. Thank you.
Nice video. Incredible production value too. Maybe you could do another video on "green" flags. #9 is essentially a critique of the so-called "McDonaldization" of medicine ("would you like fries with that" etc). I have had patients tell me they were literally handed a stack of brochures (i.e. drug-company marketing materials) and asked to tell the doctor which drug to prescribe.
Greetings from Bosnia and Herzegovina! Unfortiunately, I can recognize all red flags you stated regarding the doctors in my city hospital. That's why I drive 500km once-twice a year to Croatia, to see a doctor who really dedicates herself to her patients. Wish she was a little closer, so I could visit her more often, but once a year is better than nothing at all. Your videos are great and thank you very much for caring for patients via youtube!
Thank you for putting this up, even tho it was a couple years ago. My neurologist is guilty on all of these, how sad. I fired him a few months ago after my first annual Mri was overdue by 18 months, in addition to the above. I justified that no doctor was better than a bad one.
I’m confident my current neurologist is one of the best where I live, EXCEPT I haven’t had a full neuro exam in years, and last year when I had deteriorated due to spasticity he was totally shocked. Mind you, he’s fully aware of the team of rehab physician, pain management etc I’ve organised around myself to take care of those issues. He once commented that I know “how to work the system” because I had organised some accommodations. I’m very good at downplaying any MS issues I have, but get exasperated when I actually raise my hand to say I’m not ok, only to have to convince him. Much better than the diagnosing neurologist 9 years ago who got her secretary to hand me a bag of pamphlets & said come back next week & tell me which one you want. I was shocked (behind my copious tears). Her whole diagnosis speech was a red flag… “if it looks like a duck & quacks like a duck, it is a duck. You have MS”. We joke that this was the day I found out I was a duck. Thank goodness for my non-linear ADHD brain - in that crappy moment I was still amused at how awful her bed manner was. 🦆 🦆 🦆.
My old neurologist hit 8 of the 10 red flags. The last nail in the coffin happened when I called 1 month early for my 6 mo. checkup to complain about doing worse with walking and was told 'he had not available appts. to advance my appt.. So I am now going to an MS Center and she is so much more thorough with the interview and switched me to a more effective infusion med. And she mentioned that she'd seen other patients from my doc even though it's about a 70 minute drive from the former neuro's office. I've also informed my GP about my experience with old neuro and have encouraged her to refer anyone with suspected MS to an MS Center.
Another great video. I didn't hear one red flag so I think I'll stay with my Neurologist, ha, ha, you're not getting rid of me. I'm not going anywhere. You are the best Dr. Boster. Oh, btw, you answered a question on my list for my February appointment. See you then.
Thank you so so much for this video. I didn't have a great relationship with my first neurologist a live in a small town so not to choose from. My husband and I decided to go to Cleveland clinic for the care although it's a 3 hour drive I feel alot better. I still have to keep my first one on because I love in PA and with my insurance I need a local doc on to prescribe ocrevus. He's not happy he has to follow their orders and he has said that what Cleveland ordered wasn't necessary my Primary orders what Cleveland wants. I'm very thankful for my primary he's more involved and does more than the neurologist and will order anything Cleveland wants. I also feel that I get better care thru a telemed with Cleveland than in person with my local neurologist. He hit all the red flags.
Thank you for this video. My first neurologist had many of these red flags. I finally switched when he aggressively yelled at me for not getting into a trial (for what later was named Tysabri) because I didn't have insurance and couldn't afford MRIs and they would be free in the trial, but I was too afraid. I literally left the office sobbing. I like my neuro now, but I'm still terrified to go to appointments or report issues I'm having. I'm glad to see this video so patients can evaluate their quality of care based on these red flags.
I had a neurologist literally say "boy you walk funny, now walk right!" and then proceeded to ask me what my symptoms were and after I told him he said "geez the patient just before you was complaining of the same thing!" And my response was "what are you trying to say" he said "you know like, financial gain!" I was appalled to say the very least!!!!
Dr. B, I've visited many neurologists over the years, and very few of them would have received a passing grade according to your list. The timed walk is the only one that's been done consistently. I haven't had an MRI for...um...6 years, maybe? It feels like once I was diagnosed with secondary progressive MS, I fell off the radar.
Yes, it appears that when a neurologist decides you have SPMS, they believe there is nothing more that they can do, so you have to get on with it, not bother them and wait to die! Not the practical ideas you need or help, the monitoring of the symptom drugs, etc., you've got to figure it out yourself and hope your general doctor will amend your prescription because you know more than him/her, which has so far been the case.
THAT is exactly how I feel. They've seen the diagnosis, and decided without hesitation that I was a lost cause, unfixable, and therefore, bad for their stats! At age 55, I suddenly lost the feeling in my legs, and I felt like an elephant was sitting on my ribs. Straight to the ER via 911, panicked that I was having a stroke or heart attack! The next day my lumbar puncture confirmed MS. Probably had it for years without symptoms. To make it worse, I treat at the Veterans Administration, so we "get who we get" and are supposed to be grateful. He "looks through me" and bitches if the nurse intake goes longer than 10 minutes. If it does, I only get his time for 40 minutes, maybe. It depends on his mood. The next time someone casually thanks me "For my service" as a veteran I'm going to tell them I'm sorry I stood up for my country. My country is NOT standing up for me or any service member. I am abandoned by the very people who are supposed to serve "those who served". That's BS! I'm so grateful Dr. Boster has this knowledge he's willing to share. This channel is where I'm learning about my SPMS, Certainly not from my "team".
Thank you, Dr Boster! You have mentioned do many of the red flags that have been making me worry about the level of care that my son's neurologist is providing. You are a star!
Thank you for more great content! I switched neurologist in May, and this confirms what I was thinking. He had 6 of these red flags. I wasn't getting the care that I needed. Thank you for all you do!
Thanks for this Dr B, it’s incredibly helpful as I’m due to see my neurologist soon and they tried to offer me Rebif after I had to stop Gilenya, I’m glad I made the right choice there! 🚩 It’s just a shame that specialised MS neurologists seem quite rare over here. So all of your videos help me understand more what I need to look for and ask to get us all on the same page. Truly thank you for everything!
Dr. Boster, thank you for all you do. I know these videos take time and thought. You explain everything in a way that everyone can understand. Thank you for making MS less scary. Here is to making MS boring
Wow Dr B once again your right on point!! Thank you for all your education you truly do love what you do and care for ur pts.! You described my first neurologist glad I went looking for another one. And if can believe that neurologist, my first neurologist, is still doing the same thing to other patients and still going to rebif as first meds. My friend stay with him because of lack of health ins n she still as to beg for once a yr MRIs crazy. Thank you Dr B
I love my neurologist. This video make me respect them even more. The only red flag was not seeing my scan myself (although I just got diagnosed last year, so that will change now). Thank you again for such an informative video.
Great video. I absolutely love my MS neurologist, unfortunately he’s hitting some of those red flags 🚩. I’ll bring up some of your advice in my notes when I have my next appointment in March. Thanks for this advice. Appreciate all you do for our MS community. 🧡
Thank you Dr B - as always, you've managed to highlight quite a few 'red flags' I'm guessing in a lot of MS patient/neurology care! My thoughts have always been that we should have access to regular meet ups to ensure various levels of support and care. It wasn't until after newly diagnosed, did I come to learn that this wasn't the case in the UK. Especially if you're are not experiencing any new symptoms or MS activity (according to your tests). Such as shame, as I believe relationships & patient education about the disease, should be about building one that can help support you through your lifetime. Here's to raising awareness and trying to change the way we currently do things in the UK :)
GREAT vid. My neuro is at a huge massively-funded research clinic on the US west coast with thousands of patients.For people with subsidized health insurance in huge metropolis’ there can be grey areas and the self advocacy part is much more than 50%. 4ys ago he rec’d first-line injection, but also gave homework with a specific list of his #1,2,3 recs for me, for discussion based on my comfort with protocols and risks. Then, viewing past MRIs and events (which I did drive), he zeroed in on Tysabri. He is intense about adherence, especially JCV antibody screening. Overall onboarding at this place was quite bad. For more vulnerable patients, I feel that is another red flag. But now my neuro will spend hours with us if we need it. And he is a great teacher. Your list really helped in reviewing my situation. It helped to clarify things I need to push hardest on in my situation. Thank you for your time and generosity.
I am unable to edit the above comment but wanted to add that it is not easy to switch neurologists. I don’t know if you have a video about navigating that, but it would certainly be useful. I am not being rhetorical or sardonic here - it’s just that telling a MS patient to leave their neurologist should be backed up by, “after you’ve found another one.” Just like switching jobs only maybe more important…THANK YOU AGAIN
As usual Dr. Boster... you're phenomenal and the info is so specific and easy to follow! My r was doing well till it got to ....I should walk for her...never been done!🙄🤔🤔 Thank you 👍🏽🥰
Thank you, Dr Boster! I have idiopathic intracranial hypertension and I think that these points for MS can relate to IIH (idiopathic intracranial hypertension). I've had a VP Shunt and have been experiencing so much vision loss, I'm getting a white cane soon. I've been using a walker and I'm only 32. On another note, my neurologist ordered an EMG because I've been having my hands and feet go numb. Thank you for the video. It clarifies a lot about my neurologist
It all starts here, and I try to instill in all the newly diagnosed people that I come in contact with HOW important this is. This choice can absolutely determine how well you do with managing this disease. Unfortunately so many people who are newly diagnosed feel like they just had all their choices taken away, and it's a traumatic experience. Or they were "assigned" someone who IS probably a knowledgeable and good neuro but isn't explaining the difference in efficacy between these meds. I tell people "if *I* was on that med in 2004? You're going to want the UPGRADED options- trust me! Thanks for another great video- love following your tech evolution, too, in addition to your great content! 🔥🔥🔥
I am visiting my neurologist for the first time since diagnosis a week or two ago. This list will be in my hand (along with many other bullet notes collected from your videos) - Thank You!
I have no relationship with my neurologist...or my ms nurse...if been put on some serious medication for my mental health which required the 'home treatment team ' if it wasn't for them I don't think I would be here now.I am very angry with the people who should be helping me.
While my neurologist is a nice and very knowledgeable man, I can tell he has been in the game for a bit and is getting to the end of his career and thinking more on retirement. He came highly recommended in the area, and pulled the whole "here are some pamphlets, pick your med. I suggest Tysabri or Ocrevus." I have learned how to advocate for myself with him, and he never fights me when I bring up issues. Honestly I have had more of a struggle with the office staff between his clinic and the infusion center sending paperwork in a timely manner to each other and insurance, but I digress. I know I will have to find a new provider soon, be it because we move from our current area or he retires. These are good things to keep in mind when I have to try and select a new player on my MS fight team. Thank you for posting.
Thanks for the video, been diagnosed May last year, since that time I've seen my neurologist exactly 3 times, and for like 1-3 minutes max. I've been trying to change my neurologies or at least get a consultation, but it's not so easy in my country, as I must jump through several hoops to achieve that (Estonia). But I did want to leave the office as they offered me copaxone (red flag), saying my MS is "mild" (ultra red flag), and the only person taking my labs and prescribing pills is my nurse, who works alongside that neurologist. It really takes a toll on me mentally, as it feels that they truly don't give a single f about my condition. But I'm super grateful for this channel and your work, it gave me a lot of insight into what MS is and how to cope living with it.
Geez All my Neuro’s including the current one have these red flags. 🙁I’m limited to military medical care, and you get what you get. I’ll bring a list of questions that you’ve prompted to my annual appointment. Thank you for another informative video that highlights how much people with MS have to fight for their medical care.
Fantastic content and explanations. Patients need to be better empowered in their discussions with their doctors. This is great content to help patients achieve better empowerment.
Thanks Dr Boster, you are so right about the first line med thing. My old neuro prescribed copaxone in 2018 and it was a complete waste of time, my MS got worse and I went elsewhere. My new neuro has me on Ocrevus and it’s working (no disease progression). I sometimes think that if I went on Ocrevus in 2018, I’d still be working! I’ll never know!
Geez All of my Neuro’s, including the current one has these red flags. 🙁 limited to military health care and you get what you get. When I go in for my annual visit I’ll bring in my list of questions. Excellent info. Thank you
Excellent explanations on why they are red flags… luckily MY neurologist is spot on and willing to have conversations about my MS and offer up joint solutions. Thank God I’m a “ Bosterette”. #wehavems #Sharingiscaring
This is by far one of the best MS videos. I was a little bias coming from the Cleveland Clinic. One of the local hospitals started dispensing Ocrevus. It was a no brainer a 20 minute drive versus an hour and a half. I had to sign a consent knowing each visit is an instructional session with residents present in the room. The doctor took well over half the time with the residencies than talking with me the patient. There was a constant jaw drop over the things he said while sitting there. I always felt you just don't say things like that about people if its about them to other people. Fortunately he's retiring in the next visit will be with the new neurologist. We'll see how things go. Thank you Doctor Boster.
This is my favorite Boster video! I was fully reassured about my neurologist because he didn't do ANY of the red flags! My neurologist and I had a good laugh about this way of evaluating my neurologist. And this video also reassured me about the Diseae Modifying Therapy that I use. I've been on Copaxone for 23 years, and I haven't had a flare since 2008. No discernible disease activity! Gotta love the shots! Thanks, Dr. B!
I'm so grateful that you made this video! I am newly diagnosed with MS to be specific PPMS/ SPMS and I know almost nothing about the disease or that there were different variations. Now at least I know what to be on alert for...
Can u send a clone of you to Australia please !!! Seriously though, my newly diagnosed daughter (30 years old) was sent home to choose between Tysabri, Ocrevis and Kesimpta. She doesnt know what to choose for herself. We have watched your videos, with amazing information, many times but deciding as a lay person is impossibe. Creates profound and overwhelming anxiety. She just can't choose. I hope we end up with the right one. Thankyou so much for all your wisdom.
This was very help. My new neurologist did the things you said not to do and didn't do the things you said they should do. I left feeling very frustrated. I got diagnosed last Tuesday and have spent I'd guess a hundred or more hours since then learning the lingo, studying all the types of treatments, then comparing 20-30 specific treatments. I have a friend who has had ms for 15 years and she said I'm already teaching her things she's never understood. But my dr comes highly recommended, reportedly the best from some ivy league school somewhere or did an internship at some wonderful place. I had a 3.5 hour mri with dye and she showed me four pictures. I have a masters degree and started studying the brain in the 90s trying to figure out what was going on with me and how to keep my brain healthy. I think all my self care is likely what has kept me from getting diagnosed all these years and I've put myself through immense measures of nutrition, supplements and moderate exercise since I was 14...35 years. I'm just getting diagnosed at 48 and they found it by mistake because I was having some memory problems. Anyway, I haven't started treatment but have chosen Ocrevus. I was sent home with a stack of books too. Wondering if I should switch doctors before I start. However she's been answering all my questions this weekend with wonderfully developed answers as if she's better in print than verbally which is fine with me too, and she encouraged me to pick the treatment that satisfies me and she'll find the funding no matter what, so those are two advantages. I appreciate your videos. Ty.
Yes. I switched neurologists and glad I did. My last 1 refused to scan my spine when I started experiencing spasticity- a year later my new neuro scanned my spine and bingo - signals in my spinal cord. Now I'm on meds.
I am fortunate to have a Neuro that I love and trust. The reason I trust him so much is bc you and he are on the same page all the time. I have learned so much from watching almost every one of your videos that I am confidently armed with the knowledge you have shared. I have a tremendous amount of comfort knowing that you are a short flight away if my circumstances ever change and even though we've never met, you are a part of my team and my ms journey. THANK YOU for that! ❤❤❤🔥🔥🔥🔥🔥
You nailed it again - I wasted years with two Neurologists- when I finally saw my current Dr - he wanted his own MRI’S and I returned a week later . First words he said to - he couldn’t believe I hadn’t been on D.M…T’s . My Neuro said he has met you ..
Wish I knew this years ago. When I was first diagnosed I was going through a relapse. Three neurologist later in a four year span none of them did a MRI. By the time I found my forever Nuro they immediately did a MRI. My relapse was still active and I developed a black hole in my brain. Since then I switched to Ocurvus and I've been stable ever since.
Thank you so much, I wish that I would have known so many of these things earlier. I had an awesome Neurologist in the 90’s-early 2000’s, and I have a good one now. But in the middle I went untreated, had drs that didn’t ask me/or do any of these tests.
Congrats! Great video! I have been diagnosed with MS for 16 years but I never have seen the result of an MRI, I am not an expert, the neurologist is... I do trust on what she sees because I have no idea what I should be looking for. About the treatment I couldn't agree more with what you say I was sent home at the beginning with like four options of treatment and I came back to my doctor and said to her that I had no idea so it was her decision
Thank you for a very informative session. Fortunately for me, my MS neurologist passes this test with flying colors! It’s good to periodically take a look at your relationship with your physician to make sure you are being treated with the latest standards available. Great video, Dr. Boster.
I've not seen a neurologist in two years, he did ring and conduct a phone review a year ago, is it just excuse due to covid? I do live in England, but do feel a bit over looked. Your videos are brilliant! Thank you 😊🇬🇧
Mine too, especially since I'm still, after reading 22 years with Copaxone, still on t his first line medicine. Butt I'm a super responder! My symptoms continue to improve and I haven't had an episode in fourteen years. AND m y general neurologist hit only one red. Flag! Thanks for the reassuring news, Dr Boster!
Ah that's the NHS for you! I was asked if I was ok skipping the annual MRI cause I'd had Lemtrada and had a bad ms vent and when I pushed for an MRI, that saw disease activity and now booked in for 3rd round of Lemtrada!!
I am sorry I am just watching this now but it makes a load of sense and my late Mum was adament that I wasn't getting the proper care. My neurologist will only see me once a year and then that is in his private rooms, not when I am in clinic every month for Tysabri. Initially at first diagnosis, the neurologist asked me to read up on all the varied medicines and then asked me to choose which therapy I wanted!! My first line was Aubagio and after three months switched to Tysabri and been on it over 5 years while JC+. I do get an MRI every six months but the results are never discussed with me and if when asked by the MS Nurse if I have any sympthoms, if they are considered "old" sympthoms, then I am completely ignored. Think there are too many red flags!! Thank you for discussing this DR B.
Hi Doc. My wife has been following you for years. From back in the day when you talked from your vehicle or your farm. Today, I sent your link to a friend. I thought I should "like" and "subscribe" to your channel. Have a Safe Day from Canada.
My husband had 2 neurologist for 2 years upon diagnosis that fit the bill for ALL of these red flags. And their nurses were no better. It was copy and paste every appointment. Thank you Lord he found a wonderful doctor at UNM and when we moved to TX he has found another fantastic Dr!! He took Copaxone for 18 months with no improvement at all, and wasn’t even properly diagnosed with Primary Progressive until we found a Dr. with integrity, knowledge and compassion. Thank you for sharing this vital information on how treatment should be expected.
I'm thinking perhaps the last neurologist I saw was not a neurologist at all but five red flags wearing a white coat 🤔
🚩🚩🚩🚩🚩🥼
They can be incognito 🚩🚩🚩🚩🚩
I made the appointment out of necessity, there was a 3 month wait to see a neurologist in network but I was desperate for answers. I should have cancelled the appointment when his office assistant called the day before my initial appointment to try and make it Teldoc. He never gave me time to fill out my medications list before scrolling over my mri, reading the report provided with the image. He said "it is not MS or you would have big lines and spots here before dusting his hands. Leaving me standing dumbfounded in the exam room I read the online reviews of my him after. I should have spent that money on booze
Relatable. haha
I saw a strange old man in the waiting room. Then I'm in the exam room and that guy comes in, I told him what was going wrong and he said "what do you want me to do about it?" I really did question is he was for real.
Wish I'd seen this years ago 🙄
I had a surprisingly emotional response watching this video. Being newly diagnosed and told to go out and do the research to decide on which treatment I wanted to start was so overwhelming. It just made me feel hopeless. Thankfully, I now know that this just means I need to find a better provider who is knowledgable about the options. Thank you so much for all you share with our community in a country where our healthcare system is so convoluted you give me hope.
Very good that you know what you need to do now.
Your six sense already told you actually. 😉
I have been MS diagnosed recently as well. As a 58 year old woman it was a confirmation for me. I have had so many health problems and always been in search for an answer to what was going on. Diagnoses as RSI, neuropathy and fybromialgia never satisfied me. I new there was more to it. So, it turned out they overlooked MS.
Now that I know, for me it is easier to give my health issues a place, and to take my energy level better into account instead of crossing the line all the time.
A ergotherapist has been a great help to me to bring back balance (work/private) in my life.
It is bc of this therapy that I can work for an employer again.
Great advice. Unfortunately many of these red flags are unavoidable in our struggling NHS in the UK though. But we should certainly be striving for better care and monitoring.
It is the same here in Canada Emma. Red flags here are unavoidable and out of our control with our struggling national healthcare system.
Emma, I totally agree. It’s like care for MS in U.K. has not changed since the 90’s. My friends dad was diagnosed in the early 90’s, I was diagnosed in 2020, nearly 30 year gap and when we talk it’s like we were diagnosed at the same time.
I told my neurologist physicians assistant, that she needed to watch me walk, so she did. Then I said I’d like to try Ampyra. I also had to ask for an new MRI. We must self advocate to be well.
Nothing will improve under Starmer
Hello, I have such a great wonderful MS Dr. Every appt with him he covers all of these red flag items. I’ve been with him over 20 years and I’m doing great. His name is Dr Barry Hendin in Arizona. Thank you Doc for all these videos.
I am 58 year old and MS diagnosed a few months ago.
Point 10 is exactly the reason why I changed from neurologist.
The difference is huge. My new neurologist is interested in me and bc of his positive attitude I can open up easily and feel at ease to do my story and ask questions.
The neurologist I left felt like he did not like his job, as if he was done with it. No heart for his job and/ or me.
Hi Dr. B
I have had “MS type symptoms“ for 20+ years which keep getting worse. I am currently waiting to see my seventh neurologist because I just continuously get dismissed and literally verbally insulted. All of those red flags such a crying shame. Although I haven’t been diagnosed with anything to date, I do find comfort in your videos as they help me to understand many things to which I thank you for taking the time to show your God given heart to the world.❤
I’ll add that I’ve been taking Tizanidine for about 7 years now
Me, too. I saw four and gave up.
Dr. Boster, One of my passions is to help MS patients with mental health comorbidities manage what they are experiencing through psychoeducation and therapeutic support. I use you as a resource often alongside the awesome powers that neuroscience provides, because the brain is a magical place! I just want to thank you for being a resource for Therapist's like myself that have a heart for the mental health of those on their journey with MS. Everyone has the right to understand what's happening to their body, expectations help manage stress and reduces the feeling of being out of control...knowledge really is power and it shouldn't be so mysterious. Normalizing the experience has brought peace, so thank you for unintentionally partnering with me lol!! Mental health and MS are intertwined ❤️ treat the whole person: mind, body and spirit! I have told many of my own clients this, Drs and Therapist's are like shoes, don't be afraid to try a few out until you get the perfect fit. 😉
At 75 years old my symptoms are worse! Doctors have never taken me seriously for some reason, l still do not have a diagnosis of MS even though l have had many problems for years, l have been quite frankly been suffering Praying to God for Stamina to go on , l was taught as a child many times to suck it up , my parents somehow managed to get me medical care when l needed it , l was always having problems with pain and numbness in my body even as a child but didn’t know how to describe the problem to anyone! I have had in my life the Ebsteen Bar virus and rheumatic fever, from lots of Streptococcal infections! I feel so bad now and l have talked to Doctors till l am talked out , they have recently given me a nerve conduction test , n EMG test plus labs but stated that l have severe carpal tunnel in both hands and pinched nerve in neck and back l asked about my numbness that doctor asked me if they have given me a spinal tap? I said no , l wonder if l can get that done at my age ? Thank You Mr Boster l wish l had you years ago for a Doctor ! You seem such a caring and thorough DR! God Bless You For What You Do ! 🙏❤️👍
Wow!! I was Recent diagnosed, January of 2024, and received a phone call from my neuroimmunologist saying I had MS and then she emailed me 5 choices to pick from for my Meds. Needless to say I have no idea how to pick and haven't yet! It is now mid May. During my initial and only in person visit last October, she also told me we didn't want to focus on my symptoms! I definitely need to kick her to the curb!
Number 9 drives me crazy! It was the strangest part about being diagnosed, and is absurd. Just as you described sending a patient home to make their own decision without much clinical explanation and support is quite frankly, lazy medicine in my opinion. I experienced this, and it led to a small delay in starting treatment for fear of selecting the wrong medication.
I was given a package outlining DMDs, side effects scared me so went with a lightweight med when the MS continued to get worse. Thankfully I got scared and chose to switch DMDs, the possible side effects scary but disability even scarier! Guess that comes with experience and wisdom 🤷♀️
This happened to me too.
amen Cassie
My clinic did this too. Thankfully, I chose a good med and my research skills are amazing. I researched until there was nothing more to find. 😂
One more thing: please believe in us. Some doctors don't believe in what we are saying as a symptom. This is not okay, we know how we feel.
Maybe I should just drive the 2 hours to see you. I have 4 new lesions just this year and was given the choice of 3 meds to choose from. I still haven’t decided because I’m afraid I’ll make the wrong choice for myself. And I don’t know what to do. I also have to schedule my appointments 4-6 months in advance just to be seen. I’m currently on the cancellation list and still waiting to get in. I was diagnosed 4 years ago, or should I say, someone missed my diagnosis in 2008. I currently have 15 lesions. I’m afraid, yet still very blessed to be able to function at almost full capacity! The anxiety, pain, depression, and fear are probably not helping!
I dumped my old neurologist based in large part on this advice and saw an MS specialist for the first time this afternoon. The difference is night and day. My new doc checks all of the boxes you've mentioned here and I couldn't feel more vindicated right now. Thank you for the excellent advice.
All Dr's should be like you.
Another great one. My first neurologist had most of these red flags, which brought me to find you!
Here in Canada, my neurologist dies not do MRI unless new symptoms appear. Been 6 yrs since last one, I’m in my 60’s
the last time i tried to visit a neurologist he told me "go away, there is nothing i can do for you" that was for me a BIG RED FLAG,
If not for the red flags, I never would have been desperate and started to search on RUclips, finding you. It’s empowering to have this access to wisdom and support outside of an office and hearing it when you’re at such lows.
The Neurologist who made my diagnosis gave me 4 options for treatment and asked me to look into them and choose. However, from day one he was up front about not being an MS specialist. He also told me that anytime I wanted to find a specialist, he would help me find one and refer me. Fortunately I have an acquaintance who likes her MS Neurologist and recommended the clinic where she goes. That's where I am now. Different doctor than her, but same clinic. Looks like Dr. Boster would give me the thumbs up on these Red Flags with my neurologist.
Thank you for sharing. My neurologist asked me to choose between two medicines but just because I'm a young female and she wanted me to think about wanting to have children or not in the future, which can be impacted by certain medicines. Unfortunately most people I know with MS have been given the choice between quite a lot of meds, the only thing the doctor decides usually is if giving a first or second line med, then it's up to you, which of course is very confusing for us and also scaring, because if the med doesn't work we feel like it was our fault cause we picked the wrong one...
Honestly watching your videos helped me find a better doctor. I found out two years into care that they were a general neurologist and not one that specialized in MS. I can say hands down that I makes a huge difference in care and overall treatment. I finally got to be on a DMT that I wanted and that didn’t make me feel worse. Got diagnosed with something I didn’t realize was an MS issue and had my first MRI that didn’t have new lesions. I appreciate your content and attitude on MS.
OMG! I have seen several neurologists over the last twenty years (not my choice, they just move on), and the best one only succeeded in one half of one of those red flags!
I didn't know any better back then, so your advice is monumentally important to recently diagnosed people. I am sharing this video everywhere I can and will continue to do so every few weeks.
If it can save someone from what I; and many others, have experienced, it is worthwhile.
Thank you.
Txs! I have the same experience with neurologists in my area, many of whom advertise themselves as MS specialists.
Nice video. Incredible production value too. Maybe you could do another video on "green" flags. #9 is essentially a critique of the so-called "McDonaldization" of medicine ("would you like fries with that" etc). I have had patients tell me they were literally handed a stack of brochures (i.e. drug-company marketing materials) and asked to tell the doctor which drug to prescribe.
Amen. #WeHaveMS BTW a 2022 collab needs to be planned asap!
@@AaronBosterMD For sure
Greetings from Bosnia and Herzegovina! Unfortiunately, I can recognize all red flags you stated regarding the doctors in my city hospital. That's why I drive 500km once-twice a year to Croatia, to see a doctor who really dedicates herself to her patients. Wish she was a little closer, so I could visit her more often, but once a year is better than nothing at all. Your videos are great and thank you very much for caring for patients via youtube!
Thank you for putting this up, even tho it was a couple years ago. My neurologist is guilty on all of these, how sad. I fired him a few months ago after my first annual Mri was overdue by 18 months, in addition to the above. I justified that no doctor was better than a bad one.
I’m confident my current neurologist is one of the best where I live, EXCEPT I haven’t had a full neuro exam in years, and last year when I had deteriorated due to spasticity he was totally shocked. Mind you, he’s fully aware of the team of rehab physician, pain management etc I’ve organised around myself to take care of those issues. He once commented that I know “how to work the system” because I had organised some accommodations. I’m very good at downplaying any MS issues I have, but get exasperated when I actually raise my hand to say I’m not ok, only to have to convince him.
Much better than the diagnosing neurologist 9 years ago who got her secretary to hand me a bag of pamphlets & said come back next week & tell me which one you want. I was shocked (behind my copious tears).
Her whole diagnosis speech was a red flag… “if it looks like a duck & quacks like a duck, it is a duck. You have MS”. We joke that this was the day I found out I was a duck. Thank goodness for my non-linear ADHD brain - in that crappy moment I was still amused at how awful her bed manner was. 🦆 🦆 🦆.
My old neurologist hit 8 of the 10 red flags. The last nail in the coffin happened when I called 1 month early for my 6 mo. checkup to complain about doing worse with walking and was told 'he had not available appts. to advance my appt.. So I am now going to an MS Center and she is so much more thorough with the interview and switched me to a more effective infusion med. And she mentioned that she'd seen other patients from my doc even though it's about a 70 minute drive from the former neuro's office. I've also informed my GP about my experience with old neuro and have encouraged her to refer anyone with suspected MS to an MS Center.
Love you Doc!❤
Excellent list doctor B! Thanks so much!
Another great video. I didn't hear one red flag so I think I'll stay with my Neurologist, ha, ha, you're not getting rid of me. I'm not going anywhere. You are the best Dr. Boster. Oh, btw, you answered a question on my list for my February appointment. See you then.
Great info. Thanks.
Awesome video, very useful as a trainee as well
Great content as always, plus really slick production. Thank you.
Thank you so so much for this video. I didn't have a great relationship with my first neurologist a live in a small town so not to choose from. My husband and I decided to go to Cleveland clinic for the care although it's a 3 hour drive I feel alot better. I still have to keep my first one on because I love in PA and with my insurance I need a local doc on to prescribe ocrevus. He's not happy he has to follow their orders and he has said that what Cleveland ordered wasn't necessary my Primary orders what Cleveland wants. I'm very thankful for my primary he's more involved and does more than the neurologist and will order anything Cleveland wants. I also feel that I get better care thru a telemed with Cleveland than in person with my local neurologist. He hit all the red flags.
Thank you for this video. My first neurologist had many of these red flags. I finally switched when he aggressively yelled at me for not getting into a trial (for what later was named Tysabri) because I didn't have insurance and couldn't afford MRIs and they would be free in the trial, but I was too afraid. I literally left the office sobbing. I like my neuro now, but I'm still terrified to go to appointments or report issues I'm having. I'm glad to see this video so patients can evaluate their quality of care based on these red flags.
I had a neurologist literally say
"boy you walk funny, now walk right!" and then proceeded to ask
me what my symptoms were and
after I told him he said "geez the patient just before you was
complaining of the same thing!" And my response was
"what are you trying to say" he said "you
know like, financial gain!"
I was appalled
to say the very
least!!!!
Great information!
Thank you doctor Boster, Great advice
Dr. B, I've visited many neurologists over the years, and very few of them would have received a passing grade according to your list. The timed walk is the only one that's been done consistently. I haven't had an MRI for...um...6 years, maybe? It feels like once I was diagnosed with secondary progressive MS, I fell off the radar.
Yes, it appears that when a neurologist decides you have SPMS, they believe there is nothing more that they can do, so you have to get on with it, not bother them and wait to die! Not the practical ideas you need or help, the monitoring of the symptom drugs, etc., you've got to figure it out yourself and hope your general doctor will amend your prescription because you know more than him/her, which has so far been the case.
THAT is exactly how I feel. They've seen the diagnosis, and decided without hesitation that I was a lost cause, unfixable, and therefore, bad for their stats! At age 55, I suddenly lost the feeling in my legs, and I felt like an elephant was sitting on my ribs. Straight to the ER via 911, panicked that I was having a stroke or heart attack! The next day my lumbar puncture confirmed MS. Probably had it for years without symptoms.
To make it worse, I treat at the Veterans Administration, so we "get who we get" and are supposed to be grateful. He "looks through me" and bitches if the nurse intake goes longer than 10 minutes. If it does, I only get his time for 40 minutes, maybe. It depends on his mood.
The next time someone casually thanks me "For my service" as a veteran I'm going to tell them I'm sorry I stood up for my country. My country is NOT standing up for me or any service member. I am abandoned by the very people who are supposed to serve "those who served". That's BS! I'm so grateful Dr. Boster has this knowledge he's willing to share. This channel is where I'm learning about my SPMS, Certainly not from my "team".
Very valuable information! Thank you!
Thank you, Dr Boster! You have mentioned do many of the red flags that have been making me worry about the level of care that my son's neurologist is providing. You are a star!
Good review to think through.
Thank you for more great content! I switched neurologist in May, and this confirms what I was thinking. He had 6 of these red flags. I wasn't getting the care that I needed. Thank you for all you do!
Thanks for this Dr B, it’s incredibly helpful as I’m due to see my neurologist soon and they tried to offer me Rebif after I had to stop Gilenya, I’m glad I made the right choice there! 🚩
It’s just a shame that specialised MS neurologists seem quite rare over here. So all of your videos help me understand more what I need to look for and ask to get us all on the same page. Truly thank you for everything!
Dr. Boster, thank you for all you do. I know these videos take time and thought. You explain everything in a way that everyone can understand. Thank you for making MS less scary. Here is to making MS boring
Wow Dr B once again your right on point!! Thank you for all your education you truly do love what you do and care for ur pts.! You described my first neurologist glad I went looking for another one. And if can believe that neurologist, my first neurologist, is still doing the same thing to other patients and still going to rebif as first meds. My friend stay with him because of lack of health ins n she still as to beg for once a yr MRIs crazy. Thank you Dr B
I’m in the uk. It’s too late for me now. But this makes me weep. Thank you for your online messages. Truly, it helps.
I love my neurologist. This video make me respect them even more. The only red flag was not seeing my scan myself (although I just got diagnosed last year, so that will change now). Thank you again for such an informative video.
Great video. I absolutely love my MS neurologist, unfortunately he’s hitting some of those red flags 🚩. I’ll bring up some of your advice in my notes when I have my next appointment in March. Thanks for this advice. Appreciate all you do for our MS community. 🧡
Excellent advice/suggestions. My last 2 neurologist had the red flag syndrome big time. Thanks for sharing this video. Thumbs up ~John
Thank you Dr B - as always, you've managed to highlight quite a few 'red flags' I'm guessing in a lot of MS patient/neurology care! My thoughts have always been that we should have access to regular meet ups to ensure various levels of support and care. It wasn't until after newly diagnosed, did I come to learn that this wasn't the case in the UK. Especially if you're are not experiencing any new symptoms or MS activity (according to your tests). Such as shame, as I believe relationships & patient education about the disease, should be about building one that can help support you through your lifetime. Here's to raising awareness and trying to change the way we currently do things in the UK :)
Thank You 🙏🏽
Neuro getting to know you... I was thrilled when my neuro started following me on Twitter!
Wow ! Thank you immensely again Dr Aaron 🙏 This video just confirmed my doubts about treatment I received so far 😞
Super helpful and thought provoking to optimize my ms care thank you
GREAT vid. My neuro is at a huge massively-funded research clinic on the US west coast with thousands of patients.For people with subsidized health insurance in huge metropolis’ there can be grey areas and the self advocacy part is much more than 50%. 4ys ago he rec’d first-line injection, but also gave homework with a specific list of his #1,2,3 recs for me, for discussion based on my comfort with protocols and risks. Then, viewing past MRIs and events (which I did drive), he zeroed in on Tysabri. He is intense about adherence, especially JCV antibody screening. Overall onboarding at this place was quite bad. For more vulnerable patients, I feel that is another red flag. But now my neuro will spend hours with us if we need it. And he is a great teacher. Your list really helped in reviewing my situation. It helped to clarify things I need to push hardest on in my situation. Thank you for your time and generosity.
I am unable to edit the above comment but wanted to add that it is not easy to switch neurologists. I don’t know if you have a video about navigating that, but it would certainly be useful. I am not being rhetorical or sardonic here - it’s just that telling a MS patient to leave their neurologist should be backed up by, “after you’ve found another one.” Just like switching jobs only maybe more important…THANK YOU AGAIN
As usual Dr. Boster... you're phenomenal and the info is so specific and easy to follow! My r was doing well till it got to ....I should walk for her...never been done!🙄🤔🤔 Thank you 👍🏽🥰
Good Morning 🔥🔥🔥
Thank you, Dr Boster! I have idiopathic intracranial hypertension and I think that these points for MS can relate to IIH (idiopathic intracranial hypertension). I've had a VP Shunt and have been experiencing so much vision loss, I'm getting a white cane soon. I've been using a walker and I'm only 32. On another note, my neurologist ordered an EMG because I've been having my hands and feet go numb. Thank you for the video. It clarifies a lot about my neurologist
Dude. Awesome post!! Thanks for the information!❤
It all starts here, and I try to instill in all the newly diagnosed people that I come in contact with HOW important this is. This choice can absolutely determine how well you do with managing this disease. Unfortunately so many people who are newly diagnosed feel like they just had all their choices taken away, and it's a traumatic experience. Or they were "assigned" someone who IS probably a knowledgeable and good neuro but isn't explaining the difference in efficacy between these meds. I tell people "if *I* was on that med in 2004? You're going to want the UPGRADED options- trust me! Thanks for another great video- love following your tech evolution, too, in addition to your great content! 🔥🔥🔥
I am visiting my neurologist for the first time since diagnosis a week or two ago. This list will be in my hand (along with many other bullet notes collected from your videos) - Thank You!
I have no relationship with my neurologist...or my ms nurse...if been put on some serious medication for my mental health which required the 'home treatment team ' if it wasn't for them I don't think I would be here now.I am very angry with the people who should be helping me.
You're a god send. Thank you from the bottom of my heart.
Amazing content
While my neurologist is a nice and very knowledgeable man, I can tell he has been in the game for a bit and is getting to the end of his career and thinking more on retirement. He came highly recommended in the area, and pulled the whole "here are some pamphlets, pick your med. I suggest Tysabri or Ocrevus." I have learned how to advocate for myself with him, and he never fights me when I bring up issues. Honestly I have had more of a struggle with the office staff between his clinic and the infusion center sending paperwork in a timely manner to each other and insurance, but I digress.
I know I will have to find a new provider soon, be it because we move from our current area or he retires. These are good things to keep in mind when I have to try and select a new player on my MS fight team. Thank you for posting.
Thanks for the video, been diagnosed May last year, since that time I've seen my neurologist exactly 3 times, and for like 1-3 minutes max. I've been trying to change my neurologies or at least get a consultation, but it's not so easy in my country, as I must jump through several hoops to achieve that (Estonia). But I did want to leave the office as they offered me copaxone (red flag), saying my MS is "mild" (ultra red flag), and the only person taking my labs and prescribing pills is my nurse, who works alongside that neurologist. It really takes a toll on me mentally, as it feels that they truly don't give a single f about my condition. But I'm super grateful for this channel and your work, it gave me a lot of insight into what MS is and how to cope living with it.
Geez
All my Neuro’s including the current one have these red flags. 🙁I’m limited to military medical care, and you get what you get. I’ll bring a list of questions that you’ve prompted to my annual appointment. Thank you for another informative video that highlights how much people with MS have to fight for their medical care.
Thank you for an absolutely spot on things to watch out for.
Fantastic content and explanations. Patients need to be better empowered in their discussions with their doctors. This is great content to help patients achieve better empowerment.
Thanks Dr Boster, you are so right about the first line med thing. My old neuro prescribed copaxone in 2018 and it was a complete waste of time, my MS got worse and I went elsewhere. My new neuro has me on Ocrevus and it’s working (no disease progression). I sometimes think that if I went on Ocrevus in 2018, I’d still be working!
I’ll never know!
Geez
All of my Neuro’s, including the current one has these red flags. 🙁 limited to military health care and you get what you get.
When I go in for my annual visit I’ll bring in my list of questions.
Excellent info. Thank you
7 out 10 red flags 🚩 I am glad you covered this topic. You definitely read our comments 😊
I do!
Excellent explanations on why they are red flags… luckily MY neurologist is spot on and willing to have conversations about my MS and offer up joint solutions.
Thank God I’m a “ Bosterette”.
#wehavems
#Sharingiscaring
This is by far one of the best MS videos. I was a little bias coming from the Cleveland Clinic. One of the local hospitals started dispensing Ocrevus. It was a no brainer a 20 minute drive versus an hour and a half. I had to sign a consent knowing each visit is an instructional session with residents present in the room. The doctor took well over half the time with the residencies than talking with me the patient. There was a constant jaw drop over the things he said while sitting there. I always felt you just don't say things like that about people if its about them to other people. Fortunately he's retiring in the next visit will be with the new neurologist. We'll see how things go. Thank you Doctor Boster.
This is my favorite Boster video! I was fully reassured about my neurologist because he didn't do ANY of the red flags! My neurologist and I had a good laugh about this way of evaluating my neurologist. And this video also reassured me about the Diseae Modifying Therapy that I use. I've been on Copaxone for 23 years, and I haven't had a flare since 2008. No discernible disease activity! Gotta love the shots! Thanks, Dr. B!
I'm so grateful that you made this video! I am newly diagnosed with MS to be specific PPMS/ SPMS and I know almost nothing about the disease or that there were different variations. Now at least I know what to be on alert for...
Can u send a clone of you to Australia please !!!
Seriously though, my newly diagnosed daughter (30 years old) was sent home to choose between Tysabri, Ocrevis and Kesimpta. She doesnt know what to choose for herself.
We have watched your videos, with amazing information, many times but deciding as a lay person is impossibe. Creates profound and overwhelming anxiety. She just can't choose.
I hope we end up with the right one.
Thankyou so much for all your wisdom.
It’s the same here is Sweden 😢
Thank you for the video. I think its time for a change. He has some of the red flags.
I have an awesome neurologist here in NYC
Thanks again for your help!
This was very help. My new neurologist did the things you said not to do and didn't do the things you said they should do. I left feeling very frustrated. I got diagnosed last Tuesday and have spent I'd guess a hundred or more hours since then learning the lingo, studying all the types of treatments, then comparing 20-30 specific treatments. I have a friend who has had ms for 15 years and she said I'm already teaching her things she's never understood. But my dr comes highly recommended, reportedly the best from some ivy league school somewhere or did an internship at some wonderful place. I had a 3.5 hour mri with dye and she showed me four pictures. I have a masters degree and started studying the brain in the 90s trying to figure out what was going on with me and how to keep my brain healthy. I think all my self care is likely what has kept me from getting diagnosed all these years and I've put myself through immense measures of nutrition, supplements and moderate exercise since I was 14...35 years. I'm just getting diagnosed at 48 and they found it by mistake because I was having some memory problems. Anyway, I haven't started treatment but have chosen Ocrevus. I was sent home with a stack of books too. Wondering if I should switch doctors before I start. However she's been answering all my questions this weekend with wonderfully developed answers as if she's better in print than verbally which is fine with me too, and she encouraged me to pick the treatment that satisfies me and she'll find the funding no matter what, so those are two advantages. I appreciate your videos. Ty.
Really like your content, sadly hear in the uk i think 8 of those came up and im in a pretty good dedicated clinic
Thanks Dr B,Great video.I have a great neurologist here in Dublin 🇮🇪
Are they HSE or private? Sorry to randomly ask on here but I’m very interested!
Yes. I switched neurologists and glad I did. My last 1 refused to scan my spine when I started experiencing spasticity- a year later my new neuro scanned my spine and bingo - signals in my spinal cord. Now I'm on meds.
I am fortunate to have a Neuro that I love and trust. The reason I trust him so much is bc you and he are on the same page all the time. I have learned so much from watching almost every one of your videos that I am confidently armed with the knowledge you have shared. I have a tremendous amount of comfort knowing that you are a short flight away if my circumstances ever change and even though we've never met, you are a part of my team and my ms journey. THANK YOU for that! ❤❤❤🔥🔥🔥🔥🔥
You nailed it again - I wasted years with two Neurologists- when I finally saw my current Dr - he wanted his own MRI’S and I returned a week later .
First words he said to - he couldn’t believe I hadn’t been on D.M…T’s .
My Neuro said he has met you ..
Wish I knew this years ago. When I was first diagnosed I was going through a relapse. Three neurologist later in a four year span none of them did a MRI. By the time I found my forever Nuro they immediately did a MRI. My relapse was still active and I developed a black hole in my brain. Since then I switched to Ocurvus and I've been stable ever since.
Thank you so much, I wish that I would have known so many of these things earlier. I had an awesome Neurologist in the 90’s-early 2000’s, and I have a good one now. But in the middle I went untreated, had drs that didn’t ask me/or do any of these tests.
Congrats!
Great video!
I have been diagnosed with MS for 16 years but I never have seen the result of an MRI, I am not an expert, the neurologist is... I do trust on what she sees because I have no idea what I should be looking for.
About the treatment I couldn't agree more with what you say I was sent home at the beginning with like four options of treatment and I came back to my doctor and said to her that I had no idea so it was her decision
I like your videos a lot
Wow! That is amazing doctor! I have never had a neurologist ask me anything more than 'how are you doing?'.
Thank you for a very informative session. Fortunately for me, my MS neurologist passes this test with flying colors! It’s good to periodically take a look at your relationship with your physician to make sure you are being treated with the latest standards available. Great video, Dr. Boster.
I've not seen a neurologist in two years, he did ring and conduct a phone review a year ago, is it just excuse due to covid? I do live in England, but do feel a bit over looked. Your videos are brilliant! Thank you 😊🇬🇧
Mine too, especially since I'm still, after reading 22 years with Copaxone, still on t his first line medicine. Butt I'm a super responder! My symptoms continue to improve and I haven't had an episode in fourteen years. AND m y general neurologist hit only one red. Flag! Thanks for the reassuring news, Dr Boster!
My ex-doctor was great as ms specialist, but we couldn't find a connection with each other. The reason was #10 in this video.
Now I am in great hands!
Ah that's the NHS for you! I was asked if I was ok skipping the annual MRI cause I'd had Lemtrada and had a bad ms vent and when I pushed for an MRI, that saw disease activity and now booked in for 3rd round of Lemtrada!!
I am sorry I am just watching this now but it makes a load of sense and my late Mum was adament that I wasn't getting the proper care. My neurologist will only see me once a year and then that is in his private rooms, not when I am in clinic every month for Tysabri. Initially at first diagnosis, the neurologist asked me to read up on all the varied medicines and then asked me to choose which therapy I wanted!! My first line was Aubagio and after three months switched to Tysabri and been on it over 5 years while JC+. I do get an MRI every six months but the results are never discussed with me and if when asked by the MS Nurse if I have any sympthoms, if they are considered "old" sympthoms, then I am completely ignored. Think there are too many red flags!! Thank you for discussing this DR B.
Hi Doc. My wife has been following you for years. From back in the day when you talked from your vehicle or your farm. Today, I sent your link to a friend. I thought I should "like" and "subscribe" to your channel. Have a Safe Day from Canada.
My husband had 2 neurologist for 2 years upon diagnosis that fit the bill for ALL of these red flags. And their nurses were no better. It was copy and paste every appointment. Thank you Lord he found a wonderful doctor at UNM and when we moved to TX he has found another fantastic Dr!! He took Copaxone for 18 months with no improvement at all, and wasn’t even properly diagnosed with Primary Progressive until we found a Dr. with integrity, knowledge and compassion. Thank you for sharing this vital information on how treatment should be expected.
I dig my Neurologist. He is super brilliant, starting with his Bachelors from MIT...
No one ever screened me for all the invisible symptoms you mentioned!