Why Worse? A Multiple Sclerosis Neurologist Explains
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- Опубликовано: 12 май 2024
- In this video, I share the four reasons people with Multiple Sclerosis get worse. People seem to only talk about the 1st reason...
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NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos. They are just to help educate you about the condition guys!
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Finally a doc that gets it. Everything you said is 100% true. My left hand has gotten a lot worse, but my doc says the MRI & Neuro exam hasn’t changed. I keep telling him there’s no way because it’s hard for me to grip & pickup things up, and when something is in my hand I can’t feel it and I drop things a lot. You have to listen to the patient because they’re the ones living in the body that has MS. Thanks for the great info!!!
Thank you for this information. I am newly diagnosed at my older age. I knew something was wrong but couldn’t get anyone to listen to me. I also have arthritis so that was blamed.
I feel you. It took multiple doctors and years to get a diagnosis.
This was a very good and informative video. We feel like we are over reacting or not sure if things are MS related at times. Doesn’t help that our providers aren’t always listening when we tell them. You talking about it is very validating.
I have seen a total of six "M.S. Specialists", and I use that term very, very loosely. Only two of them were worth a damn. I am very grateful for them but the frustration, anger, hurt and trauma that the other four have caused me, is extremely unfair.
Please tell us where the other doctors failed to give you adequate information please it would be very helpful😊
Thank you very much for sharing all your information. Baclofen and Santa, Alex though cause muscle weakness so that is quite contradictory in the long run if one wants to continue to be able to walk
I have lived with a diagnosis of MS for more than 20 years
@kittywhite2026 I had a doctor I hated. He knew my symptoms. He gave me no meds and told me to see you in a year. Needless to say, I fired him.
I have been binge watching your channel for the past two days while I recoup from Covid. I am learning so much. You are fantastic at explaining things and I’ve been diagnosed for 20 years!
hello doctor, thank you for your efforts, i have been suffering from MS for nearly 30 years and have experienced so many symptoms, however the weirdest happened to me about 3 times with few years in between, the symptom was MS suddenly disappearing, i was like suddenly back to 100% with no fatigue, spasticity numbing etc... it only lasted for a few minutes but was an unbelievable feeling, like i was tied to chains and it suddenly disappeared
Maybe it wasnt a symptom but some neuroplasticity stuff, I would assume.
Omg same! I had this too and it was an amazing feelings but it didn't last long😢
SAME, but different. Sometimes it’s like the disease is gone. I can walk fast and straight.. I can go all day without my fatigue meds. Then.. the next week I am back to my inability to walk in a straight line or stand up for longer than a minute. It really messes with me and can’t make sense to the people around me. I may as well be lying or grossly exaggerating my experiences the other 80-90% of the time.
I will be so thankful for the reprieve, and so mad that I do not look disabled to other people in the exact same moment. 😑
Nice video. The story at 5:00 is very common in MS. The same phenomenon can happen in other diseases too. One of my attendings in medical school was a cardiologist, and she told me she had a patient who was a competitive runner presenting with a complaint of, "I can't run a marathon as fast as I used to." It turned out they had significant heart failure.
📍please doctor answer me!!!
year ago i notice a double vision only when i look at the right side i went to my doctor and he didn’t care that much, i went to an eye doctor got check out my eyes never and movement he said my right eye muscle are little bit weak i said why i can’t have a Cortisone maybe it’s MS flare he said we don’t give Cortisone at this point and I still have it since a year it’s not gutting worse but i’m just not feeling comfortable with it what should i do!!!! Please help me 📍📍📍📍📍
I’m watching you while going through the Ocrevus crap gap. The fatigue is in charge of me…I feel physically and emotionally drained, cannot tolerate noise, smells or food. My crying is constant and I have no strength to do anything but breathe. Even breathing is an effort. I’m used to the symptoms, I know it’s MS. I wait, that’s what I do, wait for the infusion.
Thanks, Dr. B! I’m struggling with PIRA now, and it’s quite scary at times.
Me too! Tace care!🙏🏼
Even with yearly checkups, everything is the same, but things worse in the vision.
We have a rug, a large carpet with a huge M and S woven into it here in the uk. Its the one neurologists and nurses use to brush symptoms under, saves time and paperwork.
I'm a potter, I have to do incredibly fine and complex motions with my hands daily, I can see my hand and finger dexterity and strength is going down, however on exam it's perfectly normal and doesn't show any signs of worsening. My neuro said that the tests aren't detailed enough to spot it, but they agree with me that my dexterity has deteriatoed because I know my own ability. They gave me exercises to do to help prevent further worsening. Hopefully I will be able to continue in my career for many decades.🤞
I always leave frustrated… from a standard science point of view all is well but the real stuff is there and dismissed often
Thanks for the fireside chat! I have been to many neurologists and remain frustrated with the “looks good” basing everything on the MRI when in reality I know when something feels off. Also, please remember menopause treatment for women. I feel so much better on HRT now when all my general/ neuro MDs were blaming the extreme fatigue on MS. The baseline fatigue is still present but not magnified with the HRT.
Great video, newly diagnosed in Oct 2023 but I been suffering for many years with no diagnoses and misdiagnosis. Great info. Thank you Dr.
This is an exceptional educational video Doc…
I think EVERYONE who has MS needs to watch this.
❤
Re education for me as I forget this stuff as the years go on.
Ty for the reassurance.
#SharingIsCaring
Hi Doctor B, thank you for highlighting this issue that we face with a lot of junior MDs when they say that you are OK. I remember I had one who was fighting with me that I am imagining that I'm getting worse (8 years ago). Also I tried 2 years ago to change my treatment, I had alot of trouble with those junior MDs until I saw the main MD of the centre and he was shocked how I got worst in just 2 years. Immediately, he recommended a new treatment.
New Jersey hospital by chance? I am serious when I say, I think you’re talking about my “specialist.” This guy is a joke.
After a time span of YEARS, where my symptoms developed, I would have them addressed by different specialists, and I would continue on, trying to live my healthiest life, I reached a point where I knew something OVERALL was just not right with me. My imbalance, my struggle to find a word, my falls, my frustration were all related. My earnest journey this past year to find out what was going on involved my PCP, ophthalmologist, podiatrist, spinal specialist, and finally, my neurologist, who diagnosed me with MS. I was referred to my local MS clinic and a neurologist who specializes in MS care. I see him soon to try to decide what medicinal course of action to take. Thank you for ALL of your valuable information!! You have been and will be a great resource to me.❤❤❤
Another great video! Its such a struggle when your symptoms are feeling worse and like they're getting on top of you...
Omg yes. My left hand had increased in tingling, not just my thumb. I was experiencing pain in my elbow and wrist. My neurologist wanted to conclude that it might be my diabetes. I insisted that they check my latest MRIs. Boom! I had a new lesion in my neck. We are THE expert on ourselves!
Didn't realize pain in my right elbow could be MS related. I have so much to learn 😮
When I hear people talk about no lesions on their MRI, it’s makes me chuckle a little, because they think that’s everything about MS. Yes you can still progress. It’s just finally excepting you have MS. It won’t define you completely. Then your life gets better mentally. 🧡🎗️🧡🎗️
Awesome as always👍
Great video doctor.
Hi Dr. B , Thank you for sharing this video. Have a great day.
Thank you Dr..much appreciated! Merry Christmas
You just answered 10 questions I had been wondering about. Thank you!
I want to thank you Dr.Boster for your tireless commitment to sharing your knowledge of this truly baffling condition that I and many others are living with...It seems it takes and act of God to get an appointment with my neurologist other than the once of year scheduled appointments ...The only other interaction I have is my once every 6 month Rituximab infusion treatments. .I was diagnosed 3 years ago and I am still very confused about what I experience and what I should be expecting..The only knowledge I receive that makes sense are your videos which are done with passion and professionalism so I just want to thank you sir...
God Bless you and your work...
Thank you Dr. Boster for everything you do for the MS community!
Amazing info
I wish you were my son’s doctor. His last neurologist told him sleep had nothing to do with MS and to go to his PC.
Thank you Dr Boster
Great video .
I love this video. Since I was diagnosed in 2020, you have been so helpful. Thank you so much
Oh my goodness Dr Boster, this explains so much! I'm in my early to mid forties and experiencing things I have never experienced. This makes so much sense! Thank you❤
Thank you for this one very informative.
I learn so much from watching these videos. Thank you!
Simple and clearly presented as always. Thanks Dr Boster Xx
So informative and this has shed a lot of light on my symptoms
I find PIRA a far more logical way to look at MS than the current categories. I find it reasonable to assume we are all undergoing some amount of PIRA, via atrophy, smoldering MS, subtle changes not visible on MRI where perhaps those younger in the disease have more visible relapses that punctuate PIRA if inflammation happens to hit a sensitive CNS spot. As we age and our immune systems chill out a little more whilst the atrophy and PIRA continue with less visible /fewer attacks. We are left with atrophy that keeps eating away at our reserves and may exacerbate prior inflammation areas where reserves could once compensate for. In this sense I find the categories a bit strange as they all blur into one and the same but may impact us differently at different times and ages. Interesting talk :)
Thanks, just the question that I had noted for my next appointment. You are doing a great job!! Greetings from Colombia❤❤!!!
Thank you Dr Boster for the excellent fireside chat so informative and empowering! Love River in the background ❤. 🔥🔥🔥🔥🔥
Thank you for another great presentation full of important information and insights into MS❤❤
Wow the example you used is exactly what happened to me - left eye 20/200, permanent blindness - it's horrible. It was my first relapse :( I can only distinguish objects vaguely and only at short distance. Everything is also in black and white.
Prevoditelj na hrvatski
Thank you so much Aaron, you're a very gifted teacher. My sick brother has come to live with us, 59 years old has lost his job, struggling to walk after years of neglecting his health, never formally diagnosed, so I've started that ball rolling and he has an appointment with a neurologist coming up. I'm trying to learn as much as possible. He is apathetic about life and health. I'm so grateful to you for all you're teaching me.
Sending you strength & prayers 🙏 @janclebro6997
Sending strength to deal with this your way. Not easy but I admire the love you have for your brother 🤗
Very informative and validating video. I just started using a CPAP machine and it has definitely helped combat fatigue and increased mental clarity. A few months ago I had a neurologist basically refuse to fill out a jury duty medical excuse form, as he said based on my most recent neurological testing- in office eye, balance, walking, coordination etc- I was “normal”. I was stunned. I felt like crying, because I certainly don’t feel normal. My body betrays me. This video really validates how I feel. Thank you.
Thank you so much Dr Boster ❤ I know I speak for everyone, when I say, we wouldn’t know what to do without you 🥰
I'm glad there is at least one doctor our there who listens. Heavens know mine don't.
I wish all ms dr would be like you
Most unfortunately they say your okay and it’s not ms I been going trough this for 4 years still not diagnosed but when I listen you and the way you explain everything I know what I have ! I’m just sick of not being able to find someone who diagnosis me and I’m getting worse each day
Thank you.
Any thoughts Dr. Boster on parasites and MS I appreciate all your videos. Thank you~
Merci énormément Dr. B!! Vos vidéos me sont d'une grande aide. C'est difficile, même après 2 ans de diagnostic, de trouver des repères, de comprendre la Sclérose et vos vidéos m'aident à mieux démêler se que je vis à chaque jours
You are a God sent to us Doctor Bostor 🙏🏼
Thank you for this. I knew I wasn't crazy. I quit my neurologist because he brushed my concerns off.
Have to say, at minute 12, we, he talk about fatigue. I hear the word fatigue and automatically, my brain goes to how cold water changed my world. First of all, CPAP changes things and it was Boster who referred me to sleep doctors, and probably the best treatment there is. Besides that, I’ve been in multiple medicines and ate better, drank my water. But it was when I discovered that once I could handle to cold water, cold showers or ice baths, it is an automatic fix to fatigue and weakness for me. I can hardly move out of bed. So I shower or bath, and get to start my day with a clear mind and energized body. I get to have my body in position to get the most out of my exercise that I can. Which in and off itself, may be the second or third most important thing we could do for fatigue. And then, if I wanted, I could go be on my feet for mac time, til I could t stand if needed, and afternoon I can do cold water again and instantaneously, my fatigue starts at it’s best possible baseline. Sorry, not sorry, but when I’m passionate about something as much as I am cold water therapy, I’m gonna share it. You don’t need just go from taking warm showers to taking ice cold showers but turning the water to colder and colder over time in at the end of the shower. So if you get a chance, first of all, find out idbyou have sleep apnea and also investigate the power and benefits of cold water therapy. Oh yeah, ice baths are an automatic fix for most of the day at least, no matter how bad my back pain is. I use it for that as much as anything.
Whatever it is, hope you all can find a treatment to stop your MS disease progression, don’t be afraid of the overrated side-effects maybe, and give yourself to get 7 years of complete hault in disease progression and think outside the box to treat individual symptoms. Cold water works for me, but having Boster in my corner cheering me on, helping attack symptoms in ways besides just medicine, is everything. He’s my MS Neuro, but I’m my own doctor and am the only one daily that can extend that 7 years and remission even longer. Oh yeah, haha, I just saw that Boster has 738 videos. Wow. Just wow
мне так нравится, что благодаря автоматическому переводу видео на русский язык, я могу смотреть вас.
спасибо!
Я рад, что вы можете получить доступ к моему контенту с помощью автоматического перевода, это здорово! Спасибо!
وانا ايضا استفيد من خلال الترجمه العربيه
I have PIRA. My neuro said I'm in SPMS just because I was DX 30 yrs ago. Everything has stayed stable for 10 yrs and still is.
I wish you were still in Detroit. I wish Dr Nigro was still alive.
As always, your videos open the world of MS not only to PWMS but their families and friends too, to help them understand and in turn help their loved one/friend. Great video Mr B 👍🏻
Thank You for this video. You help explain things since I never had a relapse and only getting worse for the last 5 yrs.
Finally getting an answer to the question I've asked my neurologist for years without getting any clear answer
Brilliant Doc! PIRA. Yes! When I see my consultant (annually, UK), I always say "I know it's progressing!). That seems amd sounds exactly like PIRA. And as for RAW... 👏
Thank you.
And winter sucks!
Hey Dr Boster. Today's sucked pretty bad. Thanks for being around. Friendly face on a tough day is enough. Can you do another video on the ways MS plays with your mind? AITAH or are they? Is MS causing me to feel, think and act different? I'd love to hear your thoughts. Thanks again Dr B
I absolutely LOVE your straightforwardness and I look forward to your videos. They are always helpful. Thank you.
That's a good video, Dr B. I'm so tired of ms and the near pointlessness of seeing doctors that I want to just get my meds for the year and be done 😢
Good vid, doctor! Thank you. I love and appreciate all you do and the content you provide. I do feel some medications can cause new issues. I recognized that when switching from one medication to another symptoms can start or resided, but don’t fully recover. Who knows… Thank you. 😊😊😊
Very informative video, Dr. B! Thank you
Glad it was helpful!
I also was diagnosed with psoriatic arthritis and am taking meds for that. Most common side effect of the meds is fatigue. I'm a single mom so even if it's butt-kicking hard, giving in to my fatigue is not an option. Mother Nature *is* generous. 🙄
Hi from Israel thanks for the broad prespective information about MS
Thanks! I am glad the doctors begin to talk about it. Bau WHAT can be done now against it? This smouldering MS..😢 I am newly diagnosed and my neurologist only wants to give me the interferons or gilenya. 😢
Thanks Doc and keep up the good work! This helps explain the weakening in my left leg. This was the spot that brought my diagnosis. I can't walk far with or without aid. Short tips into a store, I might just limp it but longer walks, still short for most people, I will use a cane. Then a outdoor walk, I can maybe do 1km with two hiking sticks but then I need to rest. I am hitting the weight room and my strength increases if I keep at it. My neuro also explained that everyone gets weaker with age but unfortunately, I have a head start.
I don't know why, but it tickles my funny bone when he points at himself and says "....with me...! " -- I find it adorable! ☺
Thank you for making these videos ((diagnosed in October 2023)! They are very informative.
If you find the time: What's your puppers name?
My Dog is named River. ;)
Sometimes it is almost nice to see a new lesion after noticing mild worsening. Almost like there's a reason and can point and say this is why I feel worse.
Thx for covering what lots of us are thinking.
Any time
Aaron! Thanks for the videos! Super valuable, I was diagnosed recently with MS. I can also see a lot of people regard you and your work very highly. You mean a lot to people, giving hope through easy to understand facts, in easy to watch videos. Keep it up, have a great day, and all the best! /John
Hey there! Welcome! So you got your diagnosis!? Did it take a while, we’re you dealing with unexplained symptoms big time before it got narrowed down and diagnosed?
Man, I’m pumped you found Dr AaronBoster. If I would have met him, even learned about him, in th first years of diagnosis, my prognosis and outlook and the ultimate results would have been much better. I was lucky to have an amazing ms doctor for 15 years. We tried and tried and never could get my MS under control and was almost always in a wheelchair at this point. My doctor, at this point, desperate for me to live a better life, threw his hands up and said he couldn’t help me, but felt he knew someone who could, though I’d have to have a ride to 5 hours away. I obviously couldn’t drive The prospective doctor went to med school with my neuro and they were bffs and had a self proclaimed Bromance haha
I proceeded to begin care with his bff, Dr Aaron Boster and he had ideas, that not only got and kept me out of the wheelchair, he helped put a stop to my disease progression. 7 years later, I have had zero damage or disease progression. I’m in remission. I guess my point is, if, when maybe, your disease shows it’s ugly face and it just seems to never cooperate, a neuro you see may not be what you need. I just want you to stay on top of your MS game, knowledge and options. If you ever feel like you are having progression at a rate you aren’t comfortable with, don’t be afraid to change any and everything, including DMT and doctors. One last advice(I’m in no place to advise but like to run my mouth sometimes hehe,) is if you have an attack, new damage in brain or spinal cord, maybe take Bosters advice and think about switching treatments! Just becasue one works for sone doesn’t mean it will work for us. I went on Lemtrada 7 years ago, along with a newly diagnosed friend named Jamie. We have done super amazing since Lemtrada, but she was starting off her new MS remission she went into, with perfect mobility and mine was when I was sun a wheelchair. Stay proactive. I never was, taking care of myself awful, and I had an opportunity when I was diagnosed 1, 2 or even ten years to be proactive. I wasn’t. I’m wheelchair free now, but it was the hardest thing I’ve ever done. So this comment was not just for you I don’t think But I saw newly diagnosed, respects Boster, and felt the need to go long long winded into, take care of your mind, body, especially your mind maybe. And your future is brighter than you can even imagine. Boster, and @drbrandonbeaber knowledge will bring ease to your mind. Take care and do what you do. You’ve got this!
thank you doc
Haven’t hopped on and watched for quite a while and this was just the video I needed.
Thanks for taking the time to do this video. Explains a lot of what I’m going through and now I feel validated and better. 🧡
In MS, being validated that what we are feeling is REAL is so important! I can accept it if validated that I’m just not trying hard enough or it’s all in my head. No one makes me feel that way usually, but We can be very hard on Ourselves! Thank you Dr Boster for the validation. ❤❤❤
Thank you for this. I haven't seen my neuro in 3 years. I'm just finished my 4 years of blood after lemtrada. I've had shingles, 1 new symptom, and 1 old symptom return in the past year, but a clear MRI. It's very frustrating.
Im new but have been following you for a long time . I am . I am trying to get a diagnosis of ms. the longer it takes the more
Dr B - can you do a video for people with MS symptoms but clear scans please 🙏
Yep. Many, many years of being told "no interval change" on the MRI yet progression slowly accumulating. "Smouldering MS" is the best way to describe PIRA. Fire not fully extinguished.
Wow. I didn’t know so many of us with the same thing! Again I feel more validated now. Thanks
Thank you for sharing your knowledge. I might be in this boat. Do you happen to know the % of MS patients who experience these?
Or can you give a link to research on these subjects?
THANK YOU!!!!
🔥🔥🌄🔥🔥
You really hit the point 😕👍
Very informative 😮
Glad it was helpful!
Winter actually feels better than summer. But I’ve had relapses yet the MRI still shows no new activity. I was still treated with IV steroid because my legs and strength gave out the end of 2018. That was scary. My first hospital stay, which was 8 days and then 2 weeks of advanced rehab. I was able to walk after inpatient rehab and then I did outpatient rehab. But rehab with nerve pain was awful. I’m so glad Jesus took the never pain from my body a few years ago. I still deal with spasticity and muscle pain but it’s nothing like nerve pain. I should have asked for all pain to be taken lol oh well. I deal with my dogs keep me going. I have my pain med and my regular medicines but it’s not as much as before. I still wake up tired. I wake up in the middle of the night. But, sometimes if I do too much my legs feel like they’ll give out again and I have to take a break. There’s the rare day where I wake up energized and ready to do some projects. I get maybe a lot done and then I need a break or a break for the next day or more. MS is so weird and strange.
We finally got to the point my mris are stable. However, constant decline. I. 2 years, i mow have to have a cane all the time and a walker at times. Have to use a motorized cart in the store. Memory loss and cognitive issues enough my family doesnt even like me going alone anywhere. Im spms as of last year. I have steadily gotten worse for 2 years straight. I dont even bother attemtping to leave most the time cause im too tired, too sick, and my symptoms flair so fast i can only manage an hour or 2 with help anyways. I just turned 37. My Dx 5 years ago this week. Its already takinh my whole life, but no new lesions. Im afraid to even go in when things get bad. If its not my 2 specific doctors, no one believes me.
The neurologist would literally tell me I don’t know why you’re worse your mri is stable. Wasn’t till you when I learned why I was worst lol
You are very articulate, informative, and entertaining. My Dad sends me your videos because we both have MS. We hope you become famous and we thank you for being a doctor who really gets it!
Wow, thank you!
I’m going through all of this now and my symptoms have been worse. I have been diagnosed with Progressive Multiple Sclerosis after being diagnosed in 2017 with Relapsing Remitting Multiple Sclerosis and taking the wrong medication for six years.
What medication were you taking😮
Great video! I always feel downhearted when I have an unchanged MRI and EDS because my neurologist says that I am doing really well - when really I feel like I am struggling more and more. Great explanation. Thank you :)
I understand this completely. Sometimes when there is no new lesion but you feel awful you start thinking you’re just crazy😢
I enjoyed the arm actions
Do you have any videos on NMOSD?
I have all of these issues and became severe in under a year, living in nursing home at 34 years old…was an Air Force captain in 2020, became sick of some UNK infection, and have been mistakenly diagnosed with ALS, MS, Lyme Disease, Myasthenia Gravis…I had positive NMO antibodies (low pos) but my MRI doesn’t show the matching indications. I do have Dysautonomia and Polyneuropathy with all of these things you talk about (MS hug, Trigeminal Neuralgia, hyper-reflexia in knees, and a lot more).
Thank you....
My issue is with spasticity....and the heat...lol...Botox doesn't work, seems my body got used to it, and bad reaction to baclofen...but not worry cause I'm still breathing and forcing myself to find something else.
Seriously great video and something to talk about my to my neurologist.
Thanks so much for explaining this. I’ve had stable MRI for 11 years and no relapse but I’m getting worse with by mobility. PIRA now makes sense but what are the treatment options?
I have had MS since 1997 and have not had an actual attack since 2002. I have been diagnosed as secondary progressive sinse about 2005 and, through PIRA, I progressed through a cane, walker, and now a wheelchair where even transfers to a vehicle or toilet is a challenge. I am currently on Gilenya and it has dramatically slowed progression. I wish I had turned to disease modifying therapies much sooner but I resisted taking the risk.
Don't resist taking disease modifying drugs. Been diagnosed since 88 and sure wish it had been available. Ticket as soon as available😂
I sure hope this doctor is responding to all these people who need him. Hope these people's questions are getting answered.
Hi Dr Boster. Im James from Australia. I suffered extreme disabilities right from my first major ms attacks. I was given a choice of 3 medications. I chose lemtrada as i live 3 hours from the hospital. After the first 2 years of infusions i improved quite a bit. 2 years on and im getting slowly worse.
Strange head pains and im now numb from the waist down. My legs hurt all the time now, pain is constant as before it would come and go. Was told i might need a 3rd infusion but am reluctant to do so.
Is this what you call pira?
Im worried it might be secondary progressive as theres no real remitting anymore.
I love your videos thanks for understanding this chronic condition...😢.
Yes, leave frustrated, exactly. That is what happened 3 months ago after my last visit of MS center. No changes on MRI. I did all that neuroexam gymnastics by myself in 20 seconds and said to the neurologist, that it's absolutely worthless, since it does not address my problems at all. I got EDSS lowered from 2,5 to 2 as "a reward" for my performance. PIRA or prolonged attack still ongoing, worsening, new symptoms...
Tomorrow I have another appointment...and I yes, I am already frustrated again 😅😂
I am on Kesimpta for 12 months and I got 9 g of Solumedrol january-june period without any effect...
I was diagnosed 11 years ago, have 3 sons, 11, 8 and 7. Im a busy mom, wife, oncology RN, and I truly feel great. If i didnt know i had MS, I would'nt think I did. I did copaxone on and off for 6 years and just changed to ocrevus, because new neuro thought it would provide better long-term results. My question is what is my long term prognosis, if at 11 years, there is no clincal worsening ???
New lesions can be a blessing as they can qualify you as having active disease and you can get better treatments. It’s hard to prove you feel worse without that sometimes. Please tell us which drugs can affect PIRA?
Thank youfor this Dr. Boster. I had the same experienced with my neurologist. She just told me it was migraine and light sensitivity but last quarter of 2023. Ihad the worst eye pain on my right eye and had shadow on my vision there nad if I cover my left eye I can see the big difference with my visual field. Hand pain as wellis very severe on the right arm and numbness. Mostly had worst pain on the right side of my body in the morning. Hope you could help me.
This is so true, exactly what’s going on with me right now! But my neurologist says it’s central sensitisation… Have you heard of that Dr. B??
Hello Dr Boster. I have not got a diagnosis yet i go to the neurologist dec 13th, the radiologist saw white matter hyperintensities and mentioned demyelinating disease. The family doctor said possibility of ms. I know they are gonna want and mri with contrast, is there any mri machines in columbus or anywhere else in ohio that are upright? I got horrible vertigo from lying flat. Thanks for the educational videos!