Dr Boster...question. Is it possible to have a strange sensation negatively impacting gait, but only temporarily? Ex. #1 Heavy feeling in legs and knees folding, but only for a few minutes? After the episode the only residual is feeling tired all over the body. Ex.#2 blurry spot in only one eye not in any particular quadrant of the eye, no pain at all just pulling or pressure, that goes away in a few days?
Don’t you wish your Neurologist explained things to you this way, had this knowledge, cared just a little bit, and even had a clue? I do. Does anyone else see the detrimental patterns in their healthcare, even after switching neurologists several times? Man, I wish I lived in Ohio near Dr. Boster.
Finally a doc that gets it. Everything you said is 100% true. My left hand has gotten a lot worse, but my doc says the MRI & Neuro exam hasn’t changed. I keep telling him there’s no way because it’s hard for me to grip & pickup things up, and when something is in my hand I can’t feel it and I drop things a lot. You have to listen to the patient because they’re the ones living in the body that has MS. Thanks for the great info!!!
This was a very good and informative video. We feel like we are over reacting or not sure if things are MS related at times. Doesn’t help that our providers aren’t always listening when we tell them. You talking about it is very validating.
I have seen a total of six "M.S. Specialists", and I use that term very, very loosely. Only two of them were worth a damn. I am very grateful for them but the frustration, anger, hurt and trauma that the other four have caused me, is extremely unfair.
Thank you very much for sharing all your information. Baclofen and Santa, Alex though cause muscle weakness so that is quite contradictory in the long run if one wants to continue to be able to walk I have lived with a diagnosis of MS for more than 20 years
I'm a potter, I have to do incredibly fine and complex motions with my hands daily, I can see my hand and finger dexterity and strength is going down, however on exam it's perfectly normal and doesn't show any signs of worsening. My neuro said that the tests aren't detailed enough to spot it, but they agree with me that my dexterity has deteriatoed because I know my own ability. They gave me exercises to do to help prevent further worsening. Hopefully I will be able to continue in my career for many decades.🤞
Nice video. The story at 5:00 is very common in MS. The same phenomenon can happen in other diseases too. One of my attendings in medical school was a cardiologist, and she told me she had a patient who was a competitive runner presenting with a complaint of, "I can't run a marathon as fast as I used to." It turned out they had significant heart failure.
📍please doctor answer me!!! year ago i notice a double vision only when i look at the right side i went to my doctor and he didn’t care that much, i went to an eye doctor got check out my eyes never and movement he said my right eye muscle are little bit weak i said why i can’t have a Cortisone maybe it’s MS flare he said we don’t give Cortisone at this point and I still have it since a year it’s not gutting worse but i’m just not feeling comfortable with it what should i do!!!! Please help me 📍📍📍📍📍
We have a rug, a large carpet with a huge M and S woven into it here in the uk. Its the one neurologists and nurses use to brush symptoms under, saves time and paperwork.
I’m watching you while going through the Ocrevus crap gap. The fatigue is in charge of me…I feel physically and emotionally drained, cannot tolerate noise, smells or food. My crying is constant and I have no strength to do anything but breathe. Even breathing is an effort. I’m used to the symptoms, I know it’s MS. I wait, that’s what I do, wait for the infusion.
I have been binge watching your channel for the past two days while I recoup from Covid. I am learning so much. You are fantastic at explaining things and I’ve been diagnosed for 20 years!
After a time span of YEARS, where my symptoms developed, I would have them addressed by different specialists, and I would continue on, trying to live my healthiest life, I reached a point where I knew something OVERALL was just not right with me. My imbalance, my struggle to find a word, my falls, my frustration were all related. My earnest journey this past year to find out what was going on involved my PCP, ophthalmologist, podiatrist, spinal specialist, and finally, my neurologist, who diagnosed me with MS. I was referred to my local MS clinic and a neurologist who specializes in MS care. I see him soon to try to decide what medicinal course of action to take. Thank you for ALL of your valuable information!! You have been and will be a great resource to me.❤❤❤
I want to thank you Dr.Boster for your tireless commitment to sharing your knowledge of this truly baffling condition that I and many others are living with...It seems it takes and act of God to get an appointment with my neurologist other than the once of year scheduled appointments ...The only other interaction I have is my once every 6 month Rituximab infusion treatments. .I was diagnosed 3 years ago and I am still very confused about what I experience and what I should be expecting..The only knowledge I receive that makes sense are your videos which are done with passion and professionalism so I just want to thank you sir... God Bless you and your work...
Hi Doctor B, thank you for highlighting this issue that we face with a lot of junior MDs when they say that you are OK. I remember I had one who was fighting with me that I am imagining that I'm getting worse (8 years ago). Also I tried 2 years ago to change my treatment, I had alot of trouble with those junior MDs until I saw the main MD of the centre and he was shocked how I got worst in just 2 years. Immediately, he recommended a new treatment.
Thanks for the fireside chat! I have been to many neurologists and remain frustrated with the “looks good” basing everything on the MRI when in reality I know when something feels off. Also, please remember menopause treatment for women. I feel so much better on HRT now when all my general/ neuro MDs were blaming the extreme fatigue on MS. The baseline fatigue is still present but not magnified with the HRT.
Thank you for this information. I am newly diagnosed at my older age. I knew something was wrong but couldn’t get anyone to listen to me. I also have arthritis so that was blamed.
When I hear people talk about no lesions on their MRI, it’s makes me chuckle a little, because they think that’s everything about MS. Yes you can still progress. It’s just finally excepting you have MS. It won’t define you completely. Then your life gets better mentally. 🧡🎗️🧡🎗️
This is an exceptional educational video Doc… I think EVERYONE who has MS needs to watch this. ❤ Re education for me as I forget this stuff as the years go on. Ty for the reassurance. #SharingIsCaring
hello doctor, thank you for your efforts, i have been suffering from MS for nearly 30 years and have experienced so many symptoms, however the weirdest happened to me about 3 times with few years in between, the symptom was MS suddenly disappearing, i was like suddenly back to 100% with no fatigue, spasticity numbing etc... it only lasted for a few minutes but was an unbelievable feeling, like i was tied to chains and it suddenly disappeared
SAME, but different. Sometimes it’s like the disease is gone. I can walk fast and straight.. I can go all day without my fatigue meds. Then.. the next week I am back to my inability to walk in a straight line or stand up for longer than a minute. It really messes with me and can’t make sense to the people around me. I may as well be lying or grossly exaggerating my experiences the other 80-90% of the time. I will be so thankful for the reprieve, and so mad that I do not look disabled to other people in the exact same moment. 😑
As always, your videos open the world of MS not only to PWMS but their families and friends too, to help them understand and in turn help their loved one/friend. Great video Mr B 👍🏻
Very informative and validating video. I just started using a CPAP machine and it has definitely helped combat fatigue and increased mental clarity. A few months ago I had a neurologist basically refuse to fill out a jury duty medical excuse form, as he said based on my most recent neurological testing- in office eye, balance, walking, coordination etc- I was “normal”. I was stunned. I felt like crying, because I certainly don’t feel normal. My body betrays me. This video really validates how I feel. Thank you.
Winter actually feels better than summer. But I’ve had relapses yet the MRI still shows no new activity. I was still treated with IV steroid because my legs and strength gave out the end of 2018. That was scary. My first hospital stay, which was 8 days and then 2 weeks of advanced rehab. I was able to walk after inpatient rehab and then I did outpatient rehab. But rehab with nerve pain was awful. I’m so glad Jesus took the never pain from my body a few years ago. I still deal with spasticity and muscle pain but it’s nothing like nerve pain. I should have asked for all pain to be taken lol oh well. I deal with my dogs keep me going. I have my pain med and my regular medicines but it’s not as much as before. I still wake up tired. I wake up in the middle of the night. But, sometimes if I do too much my legs feel like they’ll give out again and I have to take a break. There’s the rare day where I wake up energized and ready to do some projects. I get maybe a lot done and then I need a break or a break for the next day or more. MS is so weird and strange.
I find PIRA a far more logical way to look at MS than the current categories. I find it reasonable to assume we are all undergoing some amount of PIRA, via atrophy, smoldering MS, subtle changes not visible on MRI where perhaps those younger in the disease have more visible relapses that punctuate PIRA if inflammation happens to hit a sensitive CNS spot. As we age and our immune systems chill out a little more whilst the atrophy and PIRA continue with less visible /fewer attacks. We are left with atrophy that keeps eating away at our reserves and may exacerbate prior inflammation areas where reserves could once compensate for. In this sense I find the categories a bit strange as they all blur into one and the same but may impact us differently at different times and ages. Interesting talk :)
Thank you so much Aaron, you're a very gifted teacher. My sick brother has come to live with us, 59 years old has lost his job, struggling to walk after years of neglecting his health, never formally diagnosed, so I've started that ball rolling and he has an appointment with a neurologist coming up. I'm trying to learn as much as possible. He is apathetic about life and health. I'm so grateful to you for all you're teaching me.
Sometimes it is almost nice to see a new lesion after noticing mild worsening. Almost like there's a reason and can point and say this is why I feel worse.
You are very articulate, informative, and entertaining. My Dad sends me your videos because we both have MS. We hope you become famous and we thank you for being a doctor who really gets it!
Wow the example you used is exactly what happened to me - left eye 20/200, permanent blindness - it's horrible. It was my first relapse :( I can only distinguish objects vaguely and only at short distance. Everything is also in black and white.
Yep. Many, many years of being told "no interval change" on the MRI yet progression slowly accumulating. "Smouldering MS" is the best way to describe PIRA. Fire not fully extinguished.
Have to say, at minute 12, we, he talk about fatigue. I hear the word fatigue and automatically, my brain goes to how cold water changed my world. First of all, CPAP changes things and it was Boster who referred me to sleep doctors, and probably the best treatment there is. Besides that, I’ve been in multiple medicines and ate better, drank my water. But it was when I discovered that once I could handle to cold water, cold showers or ice baths, it is an automatic fix to fatigue and weakness for me. I can hardly move out of bed. So I shower or bath, and get to start my day with a clear mind and energized body. I get to have my body in position to get the most out of my exercise that I can. Which in and off itself, may be the second or third most important thing we could do for fatigue. And then, if I wanted, I could go be on my feet for mac time, til I could t stand if needed, and afternoon I can do cold water again and instantaneously, my fatigue starts at it’s best possible baseline. Sorry, not sorry, but when I’m passionate about something as much as I am cold water therapy, I’m gonna share it. You don’t need just go from taking warm showers to taking ice cold showers but turning the water to colder and colder over time in at the end of the shower. So if you get a chance, first of all, find out idbyou have sleep apnea and also investigate the power and benefits of cold water therapy. Oh yeah, ice baths are an automatic fix for most of the day at least, no matter how bad my back pain is. I use it for that as much as anything. Whatever it is, hope you all can find a treatment to stop your MS disease progression, don’t be afraid of the overrated side-effects maybe, and give yourself to get 7 years of complete hault in disease progression and think outside the box to treat individual symptoms. Cold water works for me, but having Boster in my corner cheering me on, helping attack symptoms in ways besides just medicine, is everything. He’s my MS Neuro, but I’m my own doctor and am the only one daily that can extend that 7 years and remission even longer. Oh yeah, haha, I just saw that Boster has 738 videos. Wow. Just wow
I have progressive ms and everytime I go to neurologist ,I go with info and express my findings and I'm told sorry nothing can be done ,and at 53 I'm told medicare is going to stop medication at 60,I wouldn't want your job of telling people there's no cure and nothing can be done
Hey Dr Boster. Today's sucked pretty bad. Thanks for being around. Friendly face on a tough day is enough. Can you do another video on the ways MS plays with your mind? AITAH or are they? Is MS causing me to feel, think and act different? I'd love to hear your thoughts. Thanks again Dr B
We finally got to the point my mris are stable. However, constant decline. I. 2 years, i mow have to have a cane all the time and a walker at times. Have to use a motorized cart in the store. Memory loss and cognitive issues enough my family doesnt even like me going alone anywhere. Im spms as of last year. I have steadily gotten worse for 2 years straight. I dont even bother attemtping to leave most the time cause im too tired, too sick, and my symptoms flair so fast i can only manage an hour or 2 with help anyways. I just turned 37. My Dx 5 years ago this week. Its already takinh my whole life, but no new lesions. Im afraid to even go in when things get bad. If its not my 2 specific doctors, no one believes me.
I would like to have some more information about numbness. My neurologist told me I have to live with it and there is no way to solve this problem and on the other hand I had another neurologist before him who expected the numbness to go away! What can be done for numbness? Thanks for your videos.
I have had MS since 1997 and have not had an actual attack since 2002. I have been diagnosed as secondary progressive sinse about 2005 and, through PIRA, I progressed through a cane, walker, and now a wheelchair where even transfers to a vehicle or toilet is a challenge. I am currently on Gilenya and it has dramatically slowed progression. I wish I had turned to disease modifying therapies much sooner but I resisted taking the risk.
Haven’t hopped on and watched for quite a while and this was just the video I needed. Thanks for taking the time to do this video. Explains a lot of what I’m going through and now I feel validated and better. 🧡
In MS, being validated that what we are feeling is REAL is so important! I can accept it if validated that I’m just not trying hard enough or it’s all in my head. No one makes me feel that way usually, but We can be very hard on Ourselves! Thank you Dr Boster for the validation. ❤❤❤
I don't know why, but it tickles my funny bone when he points at himself and says "....with me...! " -- I find it adorable! ☺ Thank you for making these videos ((diagnosed in October 2023)! They are very informative. If you find the time: What's your puppers name?
Spasticity can also worsen when exercising in cold water! For me 80-83 degrees, as is recommended for MS water exercise, really ramps up the spasticity. I do best in water 87-90 degrees. Any warmer and Uthoff's kicks in but I have found that sweet spot.
Thanks Doc and keep up the good work! This helps explain the weakening in my left leg. This was the spot that brought my diagnosis. I can't walk far with or without aid. Short tips into a store, I might just limp it but longer walks, still short for most people, I will use a cane. Then a outdoor walk, I can maybe do 1km with two hiking sticks but then I need to rest. I am hitting the weight room and my strength increases if I keep at it. My neuro also explained that everyone gets weaker with age but unfortunately, I have a head start.
Brilliant Doc! PIRA. Yes! When I see my consultant (annually, UK), I always say "I know it's progressing!). That seems amd sounds exactly like PIRA. And as for RAW... 👏 Thank you. And winter sucks!
" Symptoms Suck "was unexpected and I spit my coffee out laughing. You add a personable side of you.Moves the Doctor to see the person, it's nice. Love ya
I have not been diagnosed with MS my vertigo issues and no strength at 68 is becoming a real challenge! My hyperthyroidism since 2018 I just can't reach out and stay ahead of this monster that's attacking me!!!
Omg yes. My left hand had increased in tingling, not just my thumb. I was experiencing pain in my elbow and wrist. My neurologist wanted to conclude that it might be my diabetes. I insisted that they check my latest MRIs. Boom! I had a new lesion in my neck. We are THE expert on ourselves!
Once u have diabetes, they think everything is caused by diabetes. I had eye exam and I know for certain my script is incorrect. Ia almost failed my test 2 times at the drivers license place and eye dr said I was near sighted. I tried my husband's readers and they used to be blurry for me 1.25 and now they work for me. Ive had my whole left side of my left eye went blurry and thank god it went away. No answers yet from the drs. WHY, is the question.
Great video! I always feel downhearted when I have an unchanged MRI and EDS because my neurologist says that I am doing really well - when really I feel like I am struggling more and more. Great explanation. Thank you :)
Oh my goodness Dr Boster, this explains so much! I'm in my early to mid forties and experiencing things I have never experienced. This makes so much sense! Thank you❤
I wish my primary care clinic watched this channel (clinic in a teaching hospital), almost any problem I have is written off as MS despite no current evidence of ms, unless it is an obvious physical injury.
Hi, there. I am not diagnosed with MS. I am nearly 63 years young. 😊 Several times the past 2 years I’ve wondered if I might have it. I have had inflammation on my eyes since I was 12. On and off. I have several diagnoses; at the age of 19; Crohn’s desease. I have had 100% of my thyroid glands removed. I have Huntington. And that is an issue; I am not a regular patient with HD, nor was my mum. But I have balance problems. Walking problems. I drive a car, though. Walking with a cane or a walker. Cannot do without. My knees are buckling beneat me. I am a chronic pain patient. Having cramps, specially in my legs and sometimes in fingers/hands. I have been diagnosed with eye-migraine. My eyes always hurts. And when this is going on; it is like someone is inside my head trying to push out both eye apples. Horrible! Sudden pain in my jaw or teeth. Resulting in half my face paralysed and num from pain. In up to 20 hours. I fall. I have great memory. And am doing brilliantly on cognitive psychology tests. Over and over. But sometimes I cannot find normal day-to-day words. I am norwegian and earlier on - not finding the words - I found the English word for it in my head, and had to translate it to norwegian 😀😅 It’s true😅. I have bowl and urine problems. I have fatigue I have little strength in my hands. I am inactive because of pain and disability. I live alone I have some really sharp pain on top of my head. Like a bolt going from the top of my head, to half way down my scull. Really painful. I cannot stand for long. All thing I need to do inside the home; I have to sit down. I start having shortness of breath just trying to move over a short distance. Or being in the market, I almost lay half way over the trolley. Any advise??? I guess it is not something my neurologist even will listen to, - me already having Huntingtons…. Please, point me in the right direction!
Hi Dr Boster. I know the main goal that we have at our disposal right now is to slow progression bc there’s no cure. However if the medication we take wipes out our immune system why don’t y’all add something on top like medication or treatment of vitamins to help with the hump we experience after infusion. We can take all the vitamins orally and we get a small fraction of the benefits due to maybe the gut not working properly bc of MS. Is there a way to give our DMT with a bag of Vitamins or something to help? Not only does MS take from us but so does DMT’s. Sorry about the rambling. Thanks
I was diagnosed 11 years ago, have 3 sons, 11, 8 and 7. Im a busy mom, wife, oncology RN, and I truly feel great. If i didnt know i had MS, I would'nt think I did. I did copaxone on and off for 6 years and just changed to ocrevus, because new neuro thought it would provide better long-term results. My question is what is my long term prognosis, if at 11 years, there is no clincal worsening ???
I’m going through all of this now and my symptoms have been worse. I have been diagnosed with Progressive Multiple Sclerosis after being diagnosed in 2017 with Relapsing Remitting Multiple Sclerosis and taking the wrong medication for six years.
Aaron! Thanks for the videos! Super valuable, I was diagnosed recently with MS. I can also see a lot of people regard you and your work very highly. You mean a lot to people, giving hope through easy to understand facts, in easy to watch videos. Keep it up, have a great day, and all the best! /John
Hey there! Welcome! So you got your diagnosis!? Did it take a while, we’re you dealing with unexplained symptoms big time before it got narrowed down and diagnosed? Man, I’m pumped you found Dr AaronBoster. If I would have met him, even learned about him, in th first years of diagnosis, my prognosis and outlook and the ultimate results would have been much better. I was lucky to have an amazing ms doctor for 15 years. We tried and tried and never could get my MS under control and was almost always in a wheelchair at this point. My doctor, at this point, desperate for me to live a better life, threw his hands up and said he couldn’t help me, but felt he knew someone who could, though I’d have to have a ride to 5 hours away. I obviously couldn’t drive The prospective doctor went to med school with my neuro and they were bffs and had a self proclaimed Bromance haha I proceeded to begin care with his bff, Dr Aaron Boster and he had ideas, that not only got and kept me out of the wheelchair, he helped put a stop to my disease progression. 7 years later, I have had zero damage or disease progression. I’m in remission. I guess my point is, if, when maybe, your disease shows it’s ugly face and it just seems to never cooperate, a neuro you see may not be what you need. I just want you to stay on top of your MS game, knowledge and options. If you ever feel like you are having progression at a rate you aren’t comfortable with, don’t be afraid to change any and everything, including DMT and doctors. One last advice(I’m in no place to advise but like to run my mouth sometimes hehe,) is if you have an attack, new damage in brain or spinal cord, maybe take Bosters advice and think about switching treatments! Just becasue one works for sone doesn’t mean it will work for us. I went on Lemtrada 7 years ago, along with a newly diagnosed friend named Jamie. We have done super amazing since Lemtrada, but she was starting off her new MS remission she went into, with perfect mobility and mine was when I was sun a wheelchair. Stay proactive. I never was, taking care of myself awful, and I had an opportunity when I was diagnosed 1, 2 or even ten years to be proactive. I wasn’t. I’m wheelchair free now, but it was the hardest thing I’ve ever done. So this comment was not just for you I don’t think But I saw newly diagnosed, respects Boster, and felt the need to go long long winded into, take care of your mind, body, especially your mind maybe. And your future is brighter than you can even imagine. Boster, and @drbrandonbeaber knowledge will bring ease to your mind. Take care and do what you do. You’ve got this!
Thank you for this. I haven't seen my neuro in 3 years. I'm just finished my 4 years of blood after lemtrada. I've had shingles, 1 new symptom, and 1 old symptom return in the past year, but a clear MRI. It's very frustrating.
Thanks! I am glad the doctors begin to talk about it. Bau WHAT can be done now against it? This smouldering MS..😢 I am newly diagnosed and my neurologist only wants to give me the interferons or gilenya. 😢
Winter is my true personal hell. All of it. I also had problems this summer I never had before; like bending my knees, dizzy & smashing my head a few time, swollen feet - then there’s the pseudobulbar heat rage. I’ll take it over the winter. I also freeze sweat, but only once it’s 45 or under. Especially under. I’m getting worse. Wasn’t dx until I was 45 last year to the date of my dx, new things have happened, I’m DEFINITELY having the PIIRA, I think. I still remain on no DMT due to my lack of a stable living situation FOR getting MS. Divorced after 15 years. Good, but it’s been a year & I still have no home again & still remain untreated with anything but maintenance meds. I can barely walk, cognition is a joke, I have a cervical & thoracic syrinx & was dx with CRPS1 in March. I literally could not stand 2 days last week when it was in the 30’s. All good bc 60 tomorrow & 32 at night. I rarely have access to food anymore. I’m not working because of this & I know I won’t make it much longer. Not everyone CAN get help.
Very good information. However, what about those of us that can’t handle the side effects of medications for all the horrible symptoms of MS & can’t afford things like massage. I do everything possible like stretching, being as active as possible, healthy diet, & Ocrevus. But when your on SSI income, things like message that could help a lot are not possible. I’m suffering & no meds are helping, & alternative treatments not affordable. Please don’t make it sound like there are always options to living your best life with MS. Because that’s not always possible no matter how hard you try!
Merci énormément Dr. B!! Vos vidéos me sont d'une grande aide. C'est difficile, même après 2 ans de diagnostic, de trouver des repères, de comprendre la Sclérose et vos vidéos m'aident à mieux démêler se que je vis à chaque jours
Thank you.... My issue is with spasticity....and the heat...lol...Botox doesn't work, seems my body got used to it, and bad reaction to baclofen...but not worry cause I'm still breathing and forcing myself to find something else. Seriously great video and something to talk about my to my neurologist.
I wish all ms dr would be like you Most unfortunately they say your okay and it’s not ms I been going trough this for 4 years still not diagnosed but when I listen you and the way you explain everything I know what I have ! I’m just sick of not being able to find someone who diagnosis me and I’m getting worse each day
I seen my rheumatologist yesterday. He and his NP agreed something is happeneing that my neurologist hasnt seen. So the rheumatologist order a basket load of new extensive blood work. I told the NP i just wished my rheumatologist, neurologist, opthamologist, pcp and digestive health specialist could all be in 1 room with all my medical files and have a pow wow session to tey and figure out my issues. She said that can happen, we can get you into the Mayo clinic in Jacksonville. But first lets do the labs. I do have a lesion on my pons with active demylenation and have many clinical signs and symptoms, but the neuro says i need more than 1 lesion to say it's MS. Im getting worse and still no answers as to what and why. Everything went into over driver after my bad case of covid in 2020. Then i took 2 moderna covid injections. My body went crazy after that. Hoping to get some sort of answers soon.
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Dr Boster...question. Is it possible to have a strange sensation negatively impacting gait, but only temporarily? Ex. #1 Heavy feeling in legs and knees folding, but only for a few minutes? After the episode the only residual is feeling tired all over the body.
Ex.#2 blurry spot in only one eye not in any particular quadrant of the eye, no pain at all just pulling or pressure, that goes away in a few days?
Don’t you wish your Neurologist explained things to you this way, had this knowledge, cared just a little bit, and even had a clue? I do. Does anyone else see the detrimental patterns in their healthcare, even after switching neurologists several times? Man, I wish I lived in Ohio near Dr. Boster.
Finally a doc that gets it. Everything you said is 100% true. My left hand has gotten a lot worse, but my doc says the MRI & Neuro exam hasn’t changed. I keep telling him there’s no way because it’s hard for me to grip & pickup things up, and when something is in my hand I can’t feel it and I drop things a lot. You have to listen to the patient because they’re the ones living in the body that has MS. Thanks for the great info!!!
Feel sorry for you, the doctor won’t listen
This was a very good and informative video. We feel like we are over reacting or not sure if things are MS related at times. Doesn’t help that our providers aren’t always listening when we tell them. You talking about it is very validating.
I have seen a total of six "M.S. Specialists", and I use that term very, very loosely. Only two of them were worth a damn. I am very grateful for them but the frustration, anger, hurt and trauma that the other four have caused me, is extremely unfair.
Please tell us where the other doctors failed to give you adequate information please it would be very helpful😊
Thank you very much for sharing all your information. Baclofen and Santa, Alex though cause muscle weakness so that is quite contradictory in the long run if one wants to continue to be able to walk
I have lived with a diagnosis of MS for more than 20 years
@kittywhite2026 I had a doctor I hated. He knew my symptoms. He gave me no meds and told me to see you in a year. Needless to say, I fired him.
Finally getting an answer to the question I've asked my neurologist for years without getting any clear answer
I'm a potter, I have to do incredibly fine and complex motions with my hands daily, I can see my hand and finger dexterity and strength is going down, however on exam it's perfectly normal and doesn't show any signs of worsening. My neuro said that the tests aren't detailed enough to spot it, but they agree with me that my dexterity has deteriatoed because I know my own ability. They gave me exercises to do to help prevent further worsening. Hopefully I will be able to continue in my career for many decades.🤞
Nice video. The story at 5:00 is very common in MS. The same phenomenon can happen in other diseases too. One of my attendings in medical school was a cardiologist, and she told me she had a patient who was a competitive runner presenting with a complaint of, "I can't run a marathon as fast as I used to." It turned out they had significant heart failure.
📍please doctor answer me!!!
year ago i notice a double vision only when i look at the right side i went to my doctor and he didn’t care that much, i went to an eye doctor got check out my eyes never and movement he said my right eye muscle are little bit weak i said why i can’t have a Cortisone maybe it’s MS flare he said we don’t give Cortisone at this point and I still have it since a year it’s not gutting worse but i’m just not feeling comfortable with it what should i do!!!! Please help me 📍📍📍📍📍
We have a rug, a large carpet with a huge M and S woven into it here in the uk. Its the one neurologists and nurses use to brush symptoms under, saves time and paperwork.
Thanks, Dr. B! I’m struggling with PIRA now, and it’s quite scary at times.
Me too! Tace care!🙏🏼
I’m watching you while going through the Ocrevus crap gap. The fatigue is in charge of me…I feel physically and emotionally drained, cannot tolerate noise, smells or food. My crying is constant and I have no strength to do anything but breathe. Even breathing is an effort. I’m used to the symptoms, I know it’s MS. I wait, that’s what I do, wait for the infusion.
Is it the ocrevus that makes you like this
I have been binge watching your channel for the past two days while I recoup from Covid. I am learning so much. You are fantastic at explaining things and I’ve been diagnosed for 20 years!
After a time span of YEARS, where my symptoms developed, I would have them addressed by different specialists, and I would continue on, trying to live my healthiest life, I reached a point where I knew something OVERALL was just not right with me. My imbalance, my struggle to find a word, my falls, my frustration were all related. My earnest journey this past year to find out what was going on involved my PCP, ophthalmologist, podiatrist, spinal specialist, and finally, my neurologist, who diagnosed me with MS. I was referred to my local MS clinic and a neurologist who specializes in MS care. I see him soon to try to decide what medicinal course of action to take. Thank you for ALL of your valuable information!! You have been and will be a great resource to me.❤❤❤
Even with yearly checkups, everything is the same, but things worse in the vision.
I want to thank you Dr.Boster for your tireless commitment to sharing your knowledge of this truly baffling condition that I and many others are living with...It seems it takes and act of God to get an appointment with my neurologist other than the once of year scheduled appointments ...The only other interaction I have is my once every 6 month Rituximab infusion treatments. .I was diagnosed 3 years ago and I am still very confused about what I experience and what I should be expecting..The only knowledge I receive that makes sense are your videos which are done with passion and professionalism so I just want to thank you sir...
God Bless you and your work...
Hi Doctor B, thank you for highlighting this issue that we face with a lot of junior MDs when they say that you are OK. I remember I had one who was fighting with me that I am imagining that I'm getting worse (8 years ago). Also I tried 2 years ago to change my treatment, I had alot of trouble with those junior MDs until I saw the main MD of the centre and he was shocked how I got worst in just 2 years. Immediately, he recommended a new treatment.
New Jersey hospital by chance? I am serious when I say, I think you’re talking about my “specialist.” This guy is a joke.
Thanks for the fireside chat! I have been to many neurologists and remain frustrated with the “looks good” basing everything on the MRI when in reality I know when something feels off. Also, please remember menopause treatment for women. I feel so much better on HRT now when all my general/ neuro MDs were blaming the extreme fatigue on MS. The baseline fatigue is still present but not magnified with the HRT.
Thank you for this information. I am newly diagnosed at my older age. I knew something was wrong but couldn’t get anyone to listen to me. I also have arthritis so that was blamed.
I feel you. It took multiple doctors and years to get a diagnosis.
Good morning 14:02
Same here. 😢
The neurologist would literally tell me I don’t know why you’re worse your mri is stable. Wasn’t till you when I learned why I was worst lol
When I hear people talk about no lesions on their MRI, it’s makes me chuckle a little, because they think that’s everything about MS. Yes you can still progress. It’s just finally excepting you have MS. It won’t define you completely. Then your life gets better mentally. 🧡🎗️🧡🎗️
This is an exceptional educational video Doc…
I think EVERYONE who has MS needs to watch this.
❤
Re education for me as I forget this stuff as the years go on.
Ty for the reassurance.
#SharingIsCaring
Great video, newly diagnosed in Oct 2023 but I been suffering for many years with no diagnoses and misdiagnosis. Great info. Thank you Dr.
hello doctor, thank you for your efforts, i have been suffering from MS for nearly 30 years and have experienced so many symptoms, however the weirdest happened to me about 3 times with few years in between, the symptom was MS suddenly disappearing, i was like suddenly back to 100% with no fatigue, spasticity numbing etc... it only lasted for a few minutes but was an unbelievable feeling, like i was tied to chains and it suddenly disappeared
Maybe it wasnt a symptom but some neuroplasticity stuff, I would assume.
Omg same! I had this too and it was an amazing feelings but it didn't last long😢
SAME, but different. Sometimes it’s like the disease is gone. I can walk fast and straight.. I can go all day without my fatigue meds. Then.. the next week I am back to my inability to walk in a straight line or stand up for longer than a minute. It really messes with me and can’t make sense to the people around me. I may as well be lying or grossly exaggerating my experiences the other 80-90% of the time.
I will be so thankful for the reprieve, and so mad that I do not look disabled to other people in the exact same moment. 😑
As always, your videos open the world of MS not only to PWMS but their families and friends too, to help them understand and in turn help their loved one/friend. Great video Mr B 👍🏻
Very informative and validating video. I just started using a CPAP machine and it has definitely helped combat fatigue and increased mental clarity. A few months ago I had a neurologist basically refuse to fill out a jury duty medical excuse form, as he said based on my most recent neurological testing- in office eye, balance, walking, coordination etc- I was “normal”. I was stunned. I felt like crying, because I certainly don’t feel normal. My body betrays me. This video really validates how I feel. Thank you.
Winter actually feels better than summer. But I’ve had relapses yet the MRI still shows no new activity. I was still treated with IV steroid because my legs and strength gave out the end of 2018. That was scary. My first hospital stay, which was 8 days and then 2 weeks of advanced rehab. I was able to walk after inpatient rehab and then I did outpatient rehab. But rehab with nerve pain was awful. I’m so glad Jesus took the never pain from my body a few years ago. I still deal with spasticity and muscle pain but it’s nothing like nerve pain. I should have asked for all pain to be taken lol oh well. I deal with my dogs keep me going. I have my pain med and my regular medicines but it’s not as much as before. I still wake up tired. I wake up in the middle of the night. But, sometimes if I do too much my legs feel like they’ll give out again and I have to take a break. There’s the rare day where I wake up energized and ready to do some projects. I get maybe a lot done and then I need a break or a break for the next day or more. MS is so weird and strange.
I find PIRA a far more logical way to look at MS than the current categories. I find it reasonable to assume we are all undergoing some amount of PIRA, via atrophy, smoldering MS, subtle changes not visible on MRI where perhaps those younger in the disease have more visible relapses that punctuate PIRA if inflammation happens to hit a sensitive CNS spot. As we age and our immune systems chill out a little more whilst the atrophy and PIRA continue with less visible /fewer attacks. We are left with atrophy that keeps eating away at our reserves and may exacerbate prior inflammation areas where reserves could once compensate for. In this sense I find the categories a bit strange as they all blur into one and the same but may impact us differently at different times and ages. Interesting talk :)
Thank you so much Aaron, you're a very gifted teacher. My sick brother has come to live with us, 59 years old has lost his job, struggling to walk after years of neglecting his health, never formally diagnosed, so I've started that ball rolling and he has an appointment with a neurologist coming up. I'm trying to learn as much as possible. He is apathetic about life and health. I'm so grateful to you for all you're teaching me.
Sending you strength & prayers 🙏 @janclebro6997
Sending strength to deal with this your way. Not easy but I admire the love you have for your brother 🤗
Another great video! Its such a struggle when your symptoms are feeling worse and like they're getting on top of you...
Thank you, I have been so depressed I did not understand why I am so much worse
Sometimes it is almost nice to see a new lesion after noticing mild worsening. Almost like there's a reason and can point and say this is why I feel worse.
You are very articulate, informative, and entertaining. My Dad sends me your videos because we both have MS. We hope you become famous and we thank you for being a doctor who really gets it!
Wow, thank you!
Wow the example you used is exactly what happened to me - left eye 20/200, permanent blindness - it's horrible. It was my first relapse :( I can only distinguish objects vaguely and only at short distance. Everything is also in black and white.
Prevoditelj na hrvatski
You're an amazing caring doctor i wish I had.
Yep. Many, many years of being told "no interval change" on the MRI yet progression slowly accumulating. "Smouldering MS" is the best way to describe PIRA. Fire not fully extinguished.
Wow. I didn’t know so many of us with the same thing! Again I feel more validated now. Thanks
Have to say, at minute 12, we, he talk about fatigue. I hear the word fatigue and automatically, my brain goes to how cold water changed my world. First of all, CPAP changes things and it was Boster who referred me to sleep doctors, and probably the best treatment there is. Besides that, I’ve been in multiple medicines and ate better, drank my water. But it was when I discovered that once I could handle to cold water, cold showers or ice baths, it is an automatic fix to fatigue and weakness for me. I can hardly move out of bed. So I shower or bath, and get to start my day with a clear mind and energized body. I get to have my body in position to get the most out of my exercise that I can. Which in and off itself, may be the second or third most important thing we could do for fatigue. And then, if I wanted, I could go be on my feet for mac time, til I could t stand if needed, and afternoon I can do cold water again and instantaneously, my fatigue starts at it’s best possible baseline. Sorry, not sorry, but when I’m passionate about something as much as I am cold water therapy, I’m gonna share it. You don’t need just go from taking warm showers to taking ice cold showers but turning the water to colder and colder over time in at the end of the shower. So if you get a chance, first of all, find out idbyou have sleep apnea and also investigate the power and benefits of cold water therapy. Oh yeah, ice baths are an automatic fix for most of the day at least, no matter how bad my back pain is. I use it for that as much as anything.
Whatever it is, hope you all can find a treatment to stop your MS disease progression, don’t be afraid of the overrated side-effects maybe, and give yourself to get 7 years of complete hault in disease progression and think outside the box to treat individual symptoms. Cold water works for me, but having Boster in my corner cheering me on, helping attack symptoms in ways besides just medicine, is everything. He’s my MS Neuro, but I’m my own doctor and am the only one daily that can extend that 7 years and remission even longer. Oh yeah, haha, I just saw that Boster has 738 videos. Wow. Just wow
I always leave frustrated… from a standard science point of view all is well but the real stuff is there and dismissed often
I have progressive ms and everytime I go to neurologist ,I go with info and express my findings and I'm told sorry nothing can be done ,and at 53 I'm told medicare is going to stop medication at 60,I wouldn't want your job of telling people there's no cure and nothing can be done
Thank you so much Dr Boster ❤ I know I speak for everyone, when I say, we wouldn’t know what to do without you 🥰
You are a God sent to us Doctor Bostor 🙏🏼
Hey Dr Boster. Today's sucked pretty bad. Thanks for being around. Friendly face on a tough day is enough. Can you do another video on the ways MS plays with your mind? AITAH or are they? Is MS causing me to feel, think and act different? I'd love to hear your thoughts. Thanks again Dr B
I wish you were my son’s doctor. His last neurologist told him sleep had nothing to do with MS and to go to his PC.
We finally got to the point my mris are stable. However, constant decline. I. 2 years, i mow have to have a cane all the time and a walker at times. Have to use a motorized cart in the store. Memory loss and cognitive issues enough my family doesnt even like me going alone anywhere. Im spms as of last year. I have steadily gotten worse for 2 years straight. I dont even bother attemtping to leave most the time cause im too tired, too sick, and my symptoms flair so fast i can only manage an hour or 2 with help anyways. I just turned 37. My Dx 5 years ago this week. Its already takinh my whole life, but no new lesions. Im afraid to even go in when things get bad. If its not my 2 specific doctors, no one believes me.
I would like to have some more information about numbness. My neurologist told me I have to live with it and there is no way to solve this problem and on the other hand I had another neurologist before him who expected the numbness to go away! What can be done for numbness? Thanks for your videos.
I'm glad there is at least one doctor our there who listens. Heavens know mine don't.
мне так нравится, что благодаря автоматическому переводу видео на русский язык, я могу смотреть вас.
спасибо!
Я рад, что вы можете получить доступ к моему контенту с помощью автоматического перевода, это здорово! Спасибо!
وانا ايضا استفيد من خلال الترجمه العربيه
I have had MS since 1997 and have not had an actual attack since 2002. I have been diagnosed as secondary progressive sinse about 2005 and, through PIRA, I progressed through a cane, walker, and now a wheelchair where even transfers to a vehicle or toilet is a challenge. I am currently on Gilenya and it has dramatically slowed progression. I wish I had turned to disease modifying therapies much sooner but I resisted taking the risk.
Don't resist taking disease modifying drugs. Been diagnosed since 88 and sure wish it had been available. Ticket as soon as available😂
I sure hope this doctor is responding to all these people who need him. Hope these people's questions are getting answered.
Haven’t hopped on and watched for quite a while and this was just the video I needed.
Thanks for taking the time to do this video. Explains a lot of what I’m going through and now I feel validated and better. 🧡
In MS, being validated that what we are feeling is REAL is so important! I can accept it if validated that I’m just not trying hard enough or it’s all in my head. No one makes me feel that way usually, but We can be very hard on Ourselves! Thank you Dr Boster for the validation. ❤❤❤
That's a good video, Dr B. I'm so tired of ms and the near pointlessness of seeing doctors that I want to just get my meds for the year and be done 😢
Thank you for this. I knew I wasn't crazy. I quit my neurologist because he brushed my concerns off.
I don't know why, but it tickles my funny bone when he points at himself and says "....with me...! " -- I find it adorable! ☺
Thank you for making these videos ((diagnosed in October 2023)! They are very informative.
If you find the time: What's your puppers name?
My Dog is named River. ;)
Thank You for this video. You help explain things since I never had a relapse and only getting worse for the last 5 yrs.
Spasticity can also worsen when exercising in cold water! For me 80-83 degrees, as is recommended for MS water exercise, really ramps up the spasticity. I do best in water 87-90 degrees. Any warmer and Uthoff's kicks in but I have found that sweet spot.
Same. I hate getting in a warm pool. Much prefer a cool lake. Even a warm shower can set me off!
Thanks Doc and keep up the good work! This helps explain the weakening in my left leg. This was the spot that brought my diagnosis. I can't walk far with or without aid. Short tips into a store, I might just limp it but longer walks, still short for most people, I will use a cane. Then a outdoor walk, I can maybe do 1km with two hiking sticks but then I need to rest. I am hitting the weight room and my strength increases if I keep at it. My neuro also explained that everyone gets weaker with age but unfortunately, I have a head start.
I notice that my original MS symptoms come back when I'm sick. I get numbness in my leg, face, etc. Can you discuss this on one of your blogs?
They go away? I just got diagnosed and I have constant numbness and mine is extremely mild. Agh
Brilliant Doc! PIRA. Yes! When I see my consultant (annually, UK), I always say "I know it's progressing!). That seems amd sounds exactly like PIRA. And as for RAW... 👏
Thank you.
And winter sucks!
Thank you Dr. Boster for everything you do for the MS community!
" Symptoms Suck "was unexpected and I spit my coffee out laughing.
You add a personable side of you.Moves the Doctor to see the person, it's nice.
Love ya
I have not been diagnosed with MS my vertigo issues and no strength at 68 is becoming a real challenge! My hyperthyroidism since 2018 I just can't reach out and stay ahead of this monster that's attacking me!!!
So true about the cold weather
It’s kicking my butt🥲
Dr B - can you do a video for people with MS symptoms but clear scans please 🙏
Omg yes. My left hand had increased in tingling, not just my thumb. I was experiencing pain in my elbow and wrist. My neurologist wanted to conclude that it might be my diabetes. I insisted that they check my latest MRIs. Boom! I had a new lesion in my neck. We are THE expert on ourselves!
Didn't realize pain in my right elbow could be MS related. I have so much to learn 😮
Once u have diabetes, they think everything is caused by diabetes. I had eye exam and I know for certain my script is incorrect. Ia almost failed my test 2 times at the drivers license place and eye dr said I was near sighted. I tried my husband's readers and they used to be blurry for me 1.25 and now they work for me. Ive had my whole left side of my left eye went blurry and thank god it went away. No answers yet from the drs. WHY, is the question.
Great video! I always feel downhearted when I have an unchanged MRI and EDS because my neurologist says that I am doing really well - when really I feel like I am struggling more and more. Great explanation. Thank you :)
I understand this completely. Sometimes when there is no new lesion but you feel awful you start thinking you’re just crazy😢
Thank you Dr Boster for the excellent fireside chat so informative and empowering! Love River in the background ❤. 🔥🔥🔥🔥🔥
Thank you for this one very informative.
Oh my goodness Dr Boster, this explains so much! I'm in my early to mid forties and experiencing things I have never experienced. This makes so much sense! Thank you❤
I wish my primary care clinic watched this channel (clinic in a teaching hospital), almost any problem I have is written off as MS despite no current evidence of ms, unless it is an obvious physical injury.
Thank you Dr Boster
Doc: you speak my language.
Hi, there. I am not diagnosed with MS. I am nearly 63 years young. 😊
Several times the past 2 years I’ve wondered if I might have it.
I have had inflammation on my eyes since I was 12. On and off.
I have several diagnoses; at the age of 19; Crohn’s desease. I have had 100% of my thyroid glands removed.
I have Huntington.
And that is an issue; I am not a regular patient with HD, nor was my mum. But I have balance problems. Walking problems. I drive a car, though. Walking with a cane or a walker. Cannot do without. My knees are buckling beneat me. I am a chronic pain patient. Having cramps, specially in my legs and sometimes in fingers/hands.
I have been diagnosed with eye-migraine. My eyes always hurts. And when this is going on; it is like someone is inside my head trying to push out both eye apples. Horrible!
Sudden pain in my jaw or teeth. Resulting in half my face paralysed and num from pain. In up to 20 hours. I fall. I have great memory. And am doing brilliantly on cognitive psychology tests. Over and over. But sometimes I cannot find normal day-to-day words. I am norwegian and earlier on - not finding the words - I found the English word for it in my head, and had to translate it to norwegian 😀😅
It’s true😅.
I have bowl and urine problems.
I have fatigue
I have little strength in my hands.
I am inactive because of pain and disability.
I live alone
I have some really sharp pain on top of my head. Like a bolt going from the top of my head, to half way down my scull. Really painful.
I cannot stand for long. All thing I need to do inside the home; I have to sit down.
I start having shortness of breath just trying to move over a short distance. Or being in the market, I almost lay half way over the trolley.
Any advise??? I guess it is not something my neurologist even will listen to, - me already having Huntingtons….
Please, point me in the right direction!
Hi Dr Boster. I know the main goal that we have at our disposal right now is to slow progression bc there’s no cure. However if the medication we take wipes out our immune system why don’t y’all add something on top like medication or treatment of vitamins to help with the hump we experience after infusion. We can take all the vitamins orally and we get a small fraction of the benefits due to maybe the gut not working properly bc of MS. Is there a way to give our DMT with a bag of Vitamins or something to help? Not only does MS take from us but so does DMT’s. Sorry about the rambling. Thanks
I was diagnosed 11 years ago, have 3 sons, 11, 8 and 7. Im a busy mom, wife, oncology RN, and I truly feel great. If i didnt know i had MS, I would'nt think I did. I did copaxone on and off for 6 years and just changed to ocrevus, because new neuro thought it would provide better long-term results. My question is what is my long term prognosis, if at 11 years, there is no clincal worsening ???
I’m going through all of this now and my symptoms have been worse. I have been diagnosed with Progressive Multiple Sclerosis after being diagnosed in 2017 with Relapsing Remitting Multiple Sclerosis and taking the wrong medication for six years.
What medication were you taking😮
I absolutely LOVE your straightforwardness and I look forward to your videos. They are always helpful. Thank you.
Aaron! Thanks for the videos! Super valuable, I was diagnosed recently with MS. I can also see a lot of people regard you and your work very highly. You mean a lot to people, giving hope through easy to understand facts, in easy to watch videos. Keep it up, have a great day, and all the best! /John
Hey there! Welcome! So you got your diagnosis!? Did it take a while, we’re you dealing with unexplained symptoms big time before it got narrowed down and diagnosed?
Man, I’m pumped you found Dr AaronBoster. If I would have met him, even learned about him, in th first years of diagnosis, my prognosis and outlook and the ultimate results would have been much better. I was lucky to have an amazing ms doctor for 15 years. We tried and tried and never could get my MS under control and was almost always in a wheelchair at this point. My doctor, at this point, desperate for me to live a better life, threw his hands up and said he couldn’t help me, but felt he knew someone who could, though I’d have to have a ride to 5 hours away. I obviously couldn’t drive The prospective doctor went to med school with my neuro and they were bffs and had a self proclaimed Bromance haha
I proceeded to begin care with his bff, Dr Aaron Boster and he had ideas, that not only got and kept me out of the wheelchair, he helped put a stop to my disease progression. 7 years later, I have had zero damage or disease progression. I’m in remission. I guess my point is, if, when maybe, your disease shows it’s ugly face and it just seems to never cooperate, a neuro you see may not be what you need. I just want you to stay on top of your MS game, knowledge and options. If you ever feel like you are having progression at a rate you aren’t comfortable with, don’t be afraid to change any and everything, including DMT and doctors. One last advice(I’m in no place to advise but like to run my mouth sometimes hehe,) is if you have an attack, new damage in brain or spinal cord, maybe take Bosters advice and think about switching treatments! Just becasue one works for sone doesn’t mean it will work for us. I went on Lemtrada 7 years ago, along with a newly diagnosed friend named Jamie. We have done super amazing since Lemtrada, but she was starting off her new MS remission she went into, with perfect mobility and mine was when I was sun a wheelchair. Stay proactive. I never was, taking care of myself awful, and I had an opportunity when I was diagnosed 1, 2 or even ten years to be proactive. I wasn’t. I’m wheelchair free now, but it was the hardest thing I’ve ever done. So this comment was not just for you I don’t think But I saw newly diagnosed, respects Boster, and felt the need to go long long winded into, take care of your mind, body, especially your mind maybe. And your future is brighter than you can even imagine. Boster, and @drbrandonbeaber knowledge will bring ease to your mind. Take care and do what you do. You’ve got this!
Hi from Israel thanks for the broad prespective information about MS
Thank you for this. I haven't seen my neuro in 3 years. I'm just finished my 4 years of blood after lemtrada. I've had shingles, 1 new symptom, and 1 old symptom return in the past year, but a clear MRI. It's very frustrating.
Thanks! I am glad the doctors begin to talk about it. Bau WHAT can be done now against it? This smouldering MS..😢 I am newly diagnosed and my neurologist only wants to give me the interferons or gilenya. 😢
Yep, this is me!!
Thanks, just the question that I had noted for my next appointment. You are doing a great job!! Greetings from Colombia❤❤!!!
Thx for covering what lots of us are thinking.
Any time
Awesome as always👍
Simple and clearly presented as always. Thanks Dr Boster Xx
I learn so much from watching these videos. Thank you!
Great video doctor.
Sleep is a big one also work stress can exacerbate MS symptoms. Im JC positive and I'm looking to switch from tysabri to breumvi but I'm terrified.
Im new but have been following you for a long time . I am . I am trying to get a diagnosis of ms. the longer it takes the more
You just answered 10 questions I had been wondering about. Thank you!
Winter is my true personal hell. All of it. I also had problems this summer I never had before; like bending my knees, dizzy & smashing my head a few time, swollen feet - then there’s the pseudobulbar heat rage. I’ll take it over the winter. I also freeze sweat, but only once it’s 45 or under. Especially under. I’m getting worse. Wasn’t dx until I was 45 last year to the date of my dx, new things have happened, I’m DEFINITELY having the PIIRA, I think. I still remain on no DMT due to my lack of a stable living situation FOR getting MS. Divorced after 15 years. Good, but it’s been a year & I still have no home again & still remain untreated with anything but maintenance meds. I can barely walk, cognition is a joke, I have a cervical & thoracic syrinx & was dx with CRPS1 in March. I literally could not stand 2 days last week when it was in the 30’s. All good bc 60 tomorrow & 32 at night. I rarely have access to food anymore. I’m not working because of this & I know I won’t make it much longer. Not everyone CAN get help.
This is so true, exactly what’s going on with me right now! But my neurologist says it’s central sensitisation… Have you heard of that Dr. B??
So informative and this has shed a lot of light on my symptoms
I am showing symptoms of MS, have had other MS'ERS say that it looks like I have MS, but I have no lesions on my brain.
Amazing info
Very good information. However, what about those of us that can’t handle the side effects of medications for all the horrible symptoms of MS & can’t afford things like massage. I do everything possible like stretching, being as active as possible, healthy diet, & Ocrevus. But when your on SSI income, things like message that could help a lot are not possible. I’m suffering & no meds are helping, & alternative treatments not affordable. Please don’t make it sound like there are always options to living your best life with MS. Because that’s not always possible no matter how hard you try!
Hi Dr. B , Thank you for sharing this video. Have a great day.
Merci énormément Dr. B!! Vos vidéos me sont d'une grande aide. C'est difficile, même après 2 ans de diagnostic, de trouver des repères, de comprendre la Sclérose et vos vidéos m'aident à mieux démêler se que je vis à chaque jours
Thank you....
My issue is with spasticity....and the heat...lol...Botox doesn't work, seems my body got used to it, and bad reaction to baclofen...but not worry cause I'm still breathing and forcing myself to find something else.
Seriously great video and something to talk about my to my neurologist.
Thank you for another great presentation full of important information and insights into MS❤❤
I wish all ms dr would be like you
Most unfortunately they say your okay and it’s not ms I been going trough this for 4 years still not diagnosed but when I listen you and the way you explain everything I know what I have ! I’m just sick of not being able to find someone who diagnosis me and I’m getting worse each day
I enjoyed the arm actions
I seen my rheumatologist yesterday. He and his NP agreed something is happeneing that my neurologist hasnt seen. So the rheumatologist order a basket load of new extensive blood work. I told the NP i just wished my rheumatologist, neurologist, opthamologist, pcp and digestive health specialist could all be in 1 room with all my medical files and have a pow wow session to tey and figure out my issues. She said that can happen, we can get you into the Mayo clinic in Jacksonville. But first lets do the labs. I do have a lesion on my pons with active demylenation and have many clinical signs and symptoms, but the neuro says i need more than 1 lesion to say it's MS. Im getting worse and still no answers as to what and why. Everything went into over driver after my bad case of covid in 2020. Then i took 2 moderna covid injections. My body went crazy after that. Hoping to get some sort of answers soon.