Answering Viewers Questions: Ocrevus
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- Опубликовано: 22 май 2024
- In this vid I answer viewers questions about Ocrevus. If you want to better understand this powerful DMT, then start watching right now!
The Boster Center for Multiple Sclerosis accepts all major insurance carriers and accepts consults from around the globe, both in office and via telemedicine. www.BosterMS.com or call 614-304-3444 to schedule!
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COMMENT with your thoughts and questions below! I look forward to reading and responding!
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NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. This channel consists of a collection of formal lectures and informal video clips about MS to help education others. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos. They are just to help educate you about the condition guys!
Diagnosed PPMS in 2008 (16-years ago), Ocrevus is the most effective treatment I have recieved.
As 92 yr MS patient find it hard to find meaningful MD care. Was in remission about 40 yrs but relapse in 2015. Donny own proactive self care by eating organic foods, eliminate processed foods, appropriate yoga & meditating. Biggest problem is balance & fatigue. Fatigue greatly limits amount of exercise I can do. But do a LOT of isometrics, Overall health is good & keep good strength.
Thanks Dr B. Excellent as always.
Very informative! Thank you
Awesome video! Thanks for all the information!
Great questions and video!
Good morning Dr. Boster! Thanks
Thanks for always doing your best to make our village up their game! U rock Dr.B!
You are welcome Carla!
Thank you so much for doing this video. I had many questions regarding ocrevus and you answered a couple of them.
Very informative👍. Congrats on 15,000 subscribers😀
Great info! Very helpful. Thank you.
You are amazing. I love that you break it all down in all your videos. You make it so easy to understand. It’s very appreciated!!! ❤️😊
Thank Aaron very informative
Another brilliant informative video delivered in such a passionate, humorous and empowering way - thank you Dr Boster 😊
Hi from Ireland 🇮🇪, tnx so much for your easy to understand web chats. DX with PPMS 5 yrs. Started Ocrevus last Dec so early days but doing ok. Glad for your insight (onwards and upwards 🌻)
Thank you👌
Hi Dr. B, awaiting my sixth full Ocrevus next week, so thought I would brush up on my Ocrevus education. Thanks for all you do! Have a great day🙋♀️
Thank you for Ocrevus video. Doug coffee in hand with a GLB Eliot Ness tonight instead. Go Browns!
Hey there everyone.
+Scotty Rosencrance Hey there Scotty!
Scotty Rosencrance
Good morning!
Good morning 😀
Hey Doc, they finally diagnosed me after 2 years with PPMS and was really scared about Ocrevis, you always calm me and I am so grateful to you and this community, am waiting for approval since I can only afford part of it and it costs so much I suppose....thank you again, with appreciation from NY
Hey to all, and thank you for the video as always Dr. B. Sincerely appreciated sir.
You are more than welcome Cameron. I hope you and yours are healthy and well.
Thanks for providing and explaining how O works. I’m in Canada and have been approved for O. I’m currently taking Tecfidera and Fampyra. My quality of life has improved but I’m looking forward to starting O. once again thank you for the information provided 🙏🏽
Well, I'm after my third Ocravus treatment, and I can now bear witness to a definite improvement. Especially in my thinking, which is always top priority: Thinking calmly and clearly puts EVERYTHING in perspective and makes the cup half full. I attribute the improvement to eating like a human, D and Omega and a slew of anti-inflammatory supplements, and the LDN, on which you still didn't do the video you promised me! Waiting impatiently in Jerusalem. 🎥
Is it covered by state insurances I wonder?
THANK YOU SOOOO MUCH!!! I have had MS for 30 years, diagnosed in 1990...and research and medications are ever-evolving! I am about to start Ocrevus after Techfidera. I REALLY appreciate your videos so much. They help me understand my treatments & help calm certain fears that I have. :) I only wish I lived closer to your office to be seen by you in person! Thanks again Dr B!
Such a long period of MS..can i ask u how much stable is ur MS
I just found this channel on Twitter and body going through it 😢😢 and I Love Ocrevus (3yrs and my next infusion is on OCT 17)…. Thank you for this channel 🎉
Very helpful and informative, thank you. I am on Ocrevus, so it is helpful to send these to my family when they have questions. I have used your birth control analogy multiple times with people when they have asked if it has "fixed" my symptoms of my attack. it is a very relate-able and easy to understand analogy, so thank you.
I got my very first Ocrevus five days ago and today is the first day when I am feeling like myself again. Still very happy to have received it, just wanna share my rather unique experience: I have slept through the whole infusion, so everything was great. About 1 hour after I experienced the strongest kick of flu-like symptoms ever, my general appearance was scary. Flu-likes got more intense, so I took Paracentamol and went to sleep. During the next 4 days there were no flu-likes, but I was feeling strange, my oral cavity was super-sensitive and eating was pretty painful.
Thanks Doctor Boster! Hey your actually my doctor for my MS! Hated hearing about you leaving Ohio Health Riverside Methodist Hospital! Honestly don't understand why you left but after seeing much information! I've believe it's their lost because of all the patients you've helped including myself! You've had me on Tysabri hit a huge bumpy road but fought back with Ocrevus! I've had issues you've explained in this video about it being given to MS patients! You told me that maybe should be placed every 5 months! Agree with you especially after seeing this video! Thanks Dr. Boster! Let me know where you land your MS care at because I'll be right with you!!!
Oh my God I truly love your analogies doctor
Fried okra is one of my favorite veggies so love the abbreviation
Being stressed or worried or nervous makes my walking entirely worse and breathe harder
I agree with what some people are saying about symptoms being worse in the last month before treatment. I was due for treatment last week. I was unable to have it due to an infection. I am re scheduled for the end of the month. My symptoms have been extremely apparent this week.
Fantastic Aaron, this came at just the perfect time for me. I'm hoping to be starting Ocrevus at the end of the month, I'm in the UK and stopped Tysabri in May. You have answered all the questions I had, thank you.
Hi wendy,did tysabri help you at all?were you hapy with it?thanks
Howdy back! So helpful. You're appreciated! Question? What might happen if you do have an infection (not knowing) while receiving an Ocrevus treatment? Thank you!
Thank you, so much. I’m looking forward to beginning rituximab and had questions about PML risk.
Thank you for another in depth discussion this morning relating to Ocrevus, I appreciate your sharing both your experience and knowledge. Knowledge is such a powerful tool when it comes to fighting MS.
Dear Dr Boster
Since I started to watch all your videos (1 year ago) I feel you bring me a lots of luck here in my country where many MS patients don't have a therapy. My health provider approved me OCREVUS and yesterday I received my 2/2 of first dose... I feel so lucky and just wanted to share this with you regardless we are in different continents!
Cheers 😄
WOW! That makes me feel so happy to read this. Thank you for sharing! #StrongerTogether
I'm switching from Copaxone to Ocrevus treatment. I find answers all my doubts & questions thanks to your videos. Thank you very much Dr. Boster
Hows it going with Ocrevus?
How do you find it?
Interested in the influence of stress on relapses question. I had 3 flares-ups and each followed a season of stress, so I am a little weary of stress factors.
Dr Boster:
THANKS FOR YOUR EASY T UNDERSTAND EXPLANATION OF O-
Awesome video Dr. B! I will be starting Ocrevus soon as my WBC’s rise more. Do all of us have B cells? If so are they bad cells that our body creates? If yes, I wish and hope that there will be a drug that comes along 1 day where we can permanently kill those bad B cells that are causing chaos in our bodies and our health.
Hi Dr. B! Thanks for responding to my Rituxan/Ocrevus question. Please let me know how I can become a patient of yours. I can road trip out to you from Chicago! Thanks!!!
Howdy Jknskj! I'd love to see you here in sunny Columbus, Ohio! Best way to contact you?
@@AaronBosterMD excellent!
Email please.
karoline07@hotmail.com
hi there did you switch from rituximab to ocrevus? and if so how was it ? any difference?
thank you for breaking it down for me. something my neurologist didnt do for me. he just handed me a pamphlet. i didnt know it killed my b cells untill i got my bloodwork afterwards. i was very confused
I have wanted ocruvas since I found out about my ms about a year and a half two years ago.but my insurance and dr wouldn’t do it said they couldn’t untill I failed 3 other meds.im so very annoyed as im in a flare now and if I would of been started on ocruvas 6 months ago i would not have my hands and feet numb right now.i probably would not be going thru this flare either.I had my first half of my infusion a few days ago and it went very well the other 3 meds I tryed made me feel very sick and even having thoughts of hurting myself because of one of them.I’m so happy to be on it now tho.I’m praying my numbness leaves and I’m very tired of walking with a limp and my hands and feet always feeling frozen even when they are warm.love your videos btw,you have helped me so very much.
I hope you're feeling better now. Insurance companies are so infuriating when they want to dictate when medications patients may use.
Interesting. I'd be curious to know your opinion on remyelination treatments coming down the pipe.
Thank you you really explain this very well and easy to understand. I am 65 and because of being missed diagnosed I’m not sure if I’m too old or unable to receive this Ocrevus? Thanks
So I recently got ocrevus infusion and 2 weeks later another. I felt so good after 1st infusion but no change after the next one. Hopefully at six months I notice more.
Dr. B, a wonderful job explaining Ocrevus. I had high hopes for Ocrevus, but I couldn't tolerate it.
hi
me two , may i ask how you couldnt tolerate it? what went wrong?
for me i felt sick all the time
mayby it effect my thyroid im not sure 😔
I just got my first infusion
Thanks for that detailed information. I wonder, is it possible to develop antibodies against Tecfidera? That's how it feels to me. Just how it felt when I developped antibodies against Rebif over 10 years ago. As if the drug is no longer effective. I still take it, of course, but it just feels like a placebo now.
Thank you for this chanel . Very helpful!
I am a gastroenterologist with ms and my neurologist gave me the opportunity of choosing the drug I want to start with. I like the impact Ocrevus has on ms , but I am concerned about the infection risc , like common flu, pneumonia , Zoster , as I already have had some ugly ones without being on immunosuppression. Shoul I wear ffp2or 3mark at work all the time ?
My name is Krissy, I'm 47 and just been finally diagnosed with MS . and I also have Cerebral paisley. I just started taking the DMT Avonex ! Is this Medicine Good for me? I'm also trying to quit Smoking,! Thank you and God bless you! Krissy Fanning Lawrenceburg TN
Hi, Dr. Boster. Can you do a video about hypoglobulinemia on Ocrevus? What do those dropping numbers mean in terms of the risk of serious infection? If your immunoglobulins drop, is it better to discontinue Ocrevus before you start getting infections?
You have a video about menopause but what about women on there periods, does it cause more weakness?
The FDA label for Ocrevus does not seem to mention this 5 to 6 month it simply says ‘given’ every 6 months’. It does state that in the trials it was given at 24 weeks which is two weeks shy of 6 months. I have profound pain in this 5 to 6 month gap. And insurance is balking at letting me take it 2 weeks short of the labels stated 6 months.
❤️
In bigger people, the dosage is the same as with a 12yr old. Should not take a neurologist to figure out that the dosages should be higher for bigger people.
To be honest, I've given up on MS. Having two relapses while on dmd made me feel really weak and doctor has told me to get medically boarded out of my stressful work.
Syazwani Mohd Sabri Hi Swazwani! I understand, but don’t give up. As Dr. Boster has explained to us with the analogy of a home getting battered by storms, you have to continue taking DMT’s to reinforce your walls. Yes, I understand we can have exacerbations and wonder why isn’t this medication working. Please discuss this medication option with your neurologist. I’m posting a comment above about my experience using Ocrevus. Please don’t give up. Best, Cindy
copaxone tried and true
Please don't give up! You're not alone. We do understand and we can be there for one another.
I have mixed convective tissue disorder; was told that it is a b cell agent.
Hi Aron, I1m a SPMS patient , and I1m under Ocrevus, 3 infusion done last month, I Ve been listening about Ocrevus for RRMS, PMMS , how about SPMS ? thank you
Is tysabri a better choice or anything else in your "opinion"!!
Hi Aaron, thanks for this. Could you review Siponimod please? My neurologist has suggested switching me over to it and I know very little and I'm nervous.
Siponimod is a Gilienya "Me Too" drug that, IMO do not offer significant efficacy advantages over the parent compound.
Hi Dr. B- What is it about Ocrevus that can trigger possible cold-like symptoms in some people?
Hi Doc, wondering if you a vlog comparing Ocrevus and Kesimpta…? I was suggested Kesimpta because I’ve been afraid to continue Ocrevus during this pandemic and was told K doesn’t affect as much of our immune system, but I keep hearing conflicting information.
Hey LeeLee, what did you recieve Ocrevus or kesimpta ?
hello sir thanks for the valuable information....can we use rituximab instead of ocrelizumab for preventing SPMS and preventing a Relapse(Attack) after usage of fingolimod nd there was a 2nd attack
Hi I love you videos thank you so when I took over this ocrevus 3 * all three times I lost the ability to walk ocrevus put me in a wheelchair I was barely using one Kane when I started can you explain
Hi Dr Boster, I was wondering which labs you do routinely for people receiving ongoing Ocrevus infusions? Does this differ with kesimta? Thank you!
Is there a rebound effect if you stop Ocrevus? It's as if when you stop (or as soon a it's out of your system) you feel a lot worse than you did at your baseline. I'm not sure I like that idea.
Would you put someone on this with a history of cancer in the family
Hi Aaron. I was diagnosed in Oct 2019. I went onto Ocrevus for 1.5 years so 3 doses. My b cells were never checked prior and never checked before the next treatment. My last infusion was 3 years ago. I have recently found out that I now have no b cells. Have you heard of this before? B cells not repopulating? I am seeing my usual neurologist, a haematologist and now an immunologist. No one really has any idea. My immunologist is doing some genetic testing but my mum has said that I was a healthy child. I also assume that I wouldnt have gotten ms if I didnt have b cells.
Have u ever heard of upping you vitamin d intake ..also godd carbs in abundance and good carbs and also good fiber to sort of reverse lesions and things like that also weathers a few more things it's called the " the mac dougal " kind of diet .. could I please get your opinion I'm interested in natural things PLEASE HELP THE MCDOUGALL DIET!!
Do me a favor: Can you please send me a link to a copy of the Ocravus US label, or anything that says that Ocravus can be given after 5 months? I switched to a new neurologist who LISTENED, BELIEVED me, and wrote a FIRM instruction to administer me Ocravus every 20 weeks instead of every 24 weeks. The insurance didn't budge, and wrote something vague in their refusal about providing medical literature supporting the neurologist's recommendation. Thanks from Jerusalem!
Hi, Dr, Boster, hi everyone,, i judge the state for ocrevus, i need ocrevus, you understead, , missing
Doctor Aaron Boster have you ever been asked about MS and Gastroparesis???????
Please answer
Reshare
If you've ever had cold sores, does Ocrevus increase your chance to getting them all the time?
I’m getting my vaccines and TB skin test today for my first treatment of ocrevus. Nervous, but I’m glad I’m getting it done!
John Neufeld I wouldn’t get any vaccines that are live - you could develop the disease He talks about this at 19m26seconds.
John Neufeld what? You need vaccines to begin?😳
Is it effective in progressive ms?
Can you tell me if HemoHim an all natural and organic Immune booster will hurt me if I am taking Ocrevus.
I've upped my vitamin d significantly...and now my doc isn't even positive if I have rrms or ppms now I'm losing my trust HELP!!
Hi Dr B. I am considering switching from Gilenya to Ocrevus. Is there any special concerns with this switch?
Hey Dr. B ! I have been on Ocrevus for at least 2 years now. I notice that basically I have roughly 3 good months starting about 3 weeks after my infusion, and then it’s like the infusion has worn off, leaving me with roughly 2.5 months of fatigue, brain fog 😶🌫️, moving slower, unable to concentrate etc… is this normal with Ocrevus? Is their a way to combat this ? I am already receiving Ocrevus every 5 month, it’s just so though to work consistently like this.
Can a tens unit help with spasms
Hello. I took Omeprazole for 8 weeks and now I have numbness in my abdomen and my stomach muscles feel tight. I was told it was an adverse side effect from Omeprazole but now I'm starting to think it might be ms.
Hi, Dr. B. I am trying to find info on if it is safe to take Prolia while taking Ocrevus. Do you know of any drug interaction there?
Is it safe to try to conceive while on Ocrevus? What timeline is safe instead of stopping the next round of infusion?
Will ocravus make a lot of strands of my hair fall out, like a huge handful?
Can you please do a similar video on Gilenya ?
This vid was me answering viewers questions. If I get enough questions about gilenya then yes I'd be happy to do so!
Dr. B, I'm currently on Gilenya coming up on three months now. I'd be extremely excited to have you break down your expertise into this DMT. I'm approaching a follow up with my team and still not certain that this is right for me. Or if some activities in my body are results of adjustments to Gylineya or just life/ms in general. Knowledge is power and you have a gift for educating us fighting out here in the trenches, thank you!
Around 12:00 you say cd19 receptor on the tagged video you call it cd20 receptor
my neuro seemed to indicate the persons with a shorter tiime with MS have more of an opportunity to reclaim lost functioning. I was dx in 1996, do I have a chance on Ocrevus? gratefully, my MRIs show no new lesions, no progression, but I hope for more. on another note, I also wonder what you have to say about stem cells~
What happens if I quit using ocrevus because it seems to make my symptoms worse...as if I'm in a constant relapse. (2 full doses so far)
Dr.B What do you do for treatment IF needed post Ocrevus or post Lemtrada,? Is there anything that is a "bigger gun" as far as effectiveness?
We can consider several options including switching to another highly effective DMT (Ocrevus, Tysabri, Lemtrada) or considering off label options.
Hi Dr B. I was all set up to get Ocrevus, however my clinic called me to say that my liver enzymes are high and therefore the only med I can take is copaxone. Sounds like a very safe drug but not as effective as Ocrevus. Would you let one of your patients go on Ocrevus if their liver enzymes went back in the normal range? I am 30 lbs overweight and was diagnosed with a fatty liver when I was 60 lbs overweight. Not sure what I should do diet wise to get this under control. Any suggestions? Thank you for your time. As always, your videos are very educational and fun!
copaxone is great, very tolerable.
So the OCREVUES is whipping out my B12 AND T CELLS that is why I am so tired and weak
I am so for my O infusion 6/10/2020 however, my CD20 is 0% so my neuro canceled my appointment . What exactly does a zero CD20 reading mean? Is that good or not so good? I’ll be retested in 3-4 weeks to see if a July infusion in ok.
and will perform another
Do you see any superiority in ocrevus to rituximab? My doctor doesn't consider the former to be any better, so he prescribes the generic.
İ am on Gilenya- 6th year. İ just changed location and new Doc wants to put me onto Ocrevus. On my last MRİ no active lesions but a lot of old lesions. Does it make sense to switch from Gilenya to Ocrevus when there is no active lesions on MRİ. Dr says my physical test is also very good and incompatible with such accimulated lesions.
In my second year on this but looking at bypass surgery in both legs iliac artery blockage in both legs and a stint placed in right side of heart. How does circulation issues affect ocrevas treatments. Im 57 yo.
Hi, Dr Boster, i have one questions, metformin is good for MS?, one man old 70 years=man 50 years, clinical trials
Hello Corina! I seen on MS society Ireland the following - "The MS Society funded research indicates alternate day fasting, and the fasting mimetic drug metformin, already used worldwide to treat diabetes, could be the answer to stopping MS, through its ability to restore cells to a younger, healthier state." Exciting times! I'm a 31 year old male with SPMS.
@@jamesflange thank you for you ask, James, i, m so sorry for you, i, m ms secondary progresive, i need ocrevus, missing in România, i judge The Romanian state, health for you ♥️♥️♥️♥️♥️♥️✌️✌️✌️✌️✌️, i try, metformin, is clinical trials for mouses, but is good for someone, already
Thank you Dr Boster, i try onkotrone but i must procure with 4000.000 lei for months one perfusions, for 5 years,
Hi,
Thanks for the video. However in Norway Ocrevus is not approved due to its price (we have free health care). Instead they are going to recommend Rituximab.
Cladribine is however approved. Any chance to have an updated video on this?
Is there a difference between an infusion reaction to Ocrevus vs an allergic reaction? I had throat tightness with my first half infusion, but not the 2nd half infusion 2 weeks later. Today I got my first full dose and the reaction happened again, but along with throat tightness and a "scratchy throat" feeling, I also had itching sensation in my ears. Once the infusion was stopped and just IV saline was ran through it went away almost immediately. I got a second dose of benedryl and the infusion was restarted at a lower rate going back u to the full rate again with no problems. How is this possible? Thank you.
It might be a allergic reaction to Benadryl . Something similar to me happened to me like that they prepped me with that and had the worst reaction . They give me clairitin now
my B cells were higher when i got my ocrevus after i had covid a month prior. usually its at 0. is it because i had covid?