Thank GOODNESS for good anaesthetists/doctors that LISTEN!!! Those emus-oh my!! WAY TOO CUTE!! Thankyou for showing us!!!! U have an awesome partner in Tom!!! I hold out hope I will find someone special that can handle all of my issues!!
You are spot on about going in the hospital. I feel the same way. My family and friends will say, when I’m in a flare or need a procedure “YOU NEED TO GO TO THE HOSPITAL!” Ugh.... no, please, let me sort this out at home, in my own bed. Yes they are great nurses who help but.... sometimes it’s just a downer which reminds you that you do have a chronic illness. Stay strong 💜
I wish I could give you a hug, Amy. I know that feeling of needing someone to talk to 'now' and you just can't for whatever reason. I've had gastro pain for a month and the doctors don't know why. Can hardly eat anymore and I thought that was bad enough! So sorry you're having such a rough time. Sending love and prayers xx
Amy, I get night sweats also and it's my pain meds that I take. I hope you find out what is causing your night sweats soon. I'm praying for you hun and I hope you feel better soon. Take care!!!!
Stay strong Amy.I'm another multiple chronic illness person. FS is second home too. I hear you loudly and clearly, am SOOOO over it. Last time was Monday this week. Had enough,need a break. Onwards and upwards girl..not much choice atm. At least beautiful Spring is on its way. 💕
I'm so sorry your not getting good sleep. I know what that's like. Its 5 am and I'm watching your vlog because I feel like crap and have been up all night. I'm in the US by the way. I'm going to pray that both of us start feeling a little better and can get some sleep.
Hello friend 👋🏾🎈🧸 I have several rare conditions also... I spend alot of time between the hospital doctors appointments or home so I totally get it... I Im glad your procedure went well and I pray you start feeling back to your normal soon! Cheers to less pain less medical drama and more fun laughter in filled days!
Not on TPN but my fridge gets extra cold at the back and stuff freezes there. (It’s an old fridge so the back wall regularly freezes/defrosts) but I think it’s not uncommon to get cold spots in the fridge
Hi doll. I've been watching your videos for ages and just wanted to sincerely thank you for shining light on the reality we go through. I have eds type 3, lupus, gastroparesis, diabetes, necrobiosis lipoidica, etc. I'm in the US in Kentucky & am having no progress in finding help. Some of the best places have straight up told me they just cannot help me. Anyway watching your videos helps me feel not so alone and less discouraged. I need to find help asap but I just wanted to take the time to thank you. I wish I had a way to talk to you one on one in chat form or something. So many questions just to try to help myself until I can find the true help I need. Anyway this comment is way too long as it is so sorry for rambling. Just please know you're helping people across the world. I love you hun. Take care~
Hi. I know you wrote this a year ago, but if you have any questions then feel free to message me on IG. I don't have many of your conditions, but I have gastroparesis, spinal cord defect, peripheral neuropathy as well as many more chronic illnesses and disabilities. I'm a full time electric wheelchair user too. So yeah, I don't post often, but I'm always here if you need advice/ need someone to talk to xxx
Happy to see you. Sad you’re not feeling 100%. Wish I could make your pain go away. I too have my own chronic illnesses and have pain all day everyday. I know the feeling. You want to cry, but need to be strong. Sending hugs. ❤️ and much love
So sorry you are feeling bad hunnie, I know what it's like not sleeping... I have three little ones 6, and a set of 15 month old twins, they sleep but my fibromyalgia wakes me up all the time, last night I slept from 8pm till 115 am and I have been up since with pain, I also go back and forth with sweating and freezing cold while i am sleeping so I totally understand. Please dont every feel like you are alone. I and many other people are with you all the time, I always send you good vibes every night! You are part of my prayers every day🤗 here is a super gentle hug for you and know we all love you Amy hopefully sleep will come soon for you..
I was in the hospital for almost four months with a small bowel blockage. I lost 50 pounds in that time frame and 12 inches of bowel. Now I’m having elevated ACT and AST and awaiting to see if they will still do a full hip replacement on July 22. I’m not sure if my numbers constitute putting off a much needed surgery. I have right hip dysplasia and end stage osteoarthritis so I’m in constant pain and walking causes my hip to bounce in and out. I’m sure my pain is nothing compared to yours. I love watching your videos and following your story. God bless and I pray your pain has lessened.
If it’s a mini fridge the back part of the fridge will freeze if there not a lot of things in there. I do get some freezing when I don’t have a lot in the fridge at once. I just turn the freeze down one unit
Take it easy and recoup from the surgery. If you are having issues you may want to talk to the dr and see if they can help you. I have been thinking about you lately and been praying that things are good. Please take care.
Oh Amy, I hope you start to feel better. Those night sweats are terrible, I've had them before. You're doing your best & that's all you can do. I've often felt like you do about back and forth to the doctor or hospital or surgery...it wears you out. I know you're not big on the whole "God" concept, but I am and I'll be praying for you to feel better & stronger. I hate to see you feeling poorly. So glad you've got Tom and he has you. What a blessing ✨💕
Watching this after literally JUST getting home from the ER less than an hour ago and wow I've never related more to anything in my life than what our sweet Amy was saying about hospitals; I'm currently lying in my bed with a heating pad trying to deal with mad exhaustion and new flare that has been caused by going to the ER to deal with the symptoms of another different flare .. fucking chronic illness .. Love and spoons to everyone who sees this
Amy, I truly wish I could do something for you, just remember it won't last forever, you're strong and will get through this. Sending all my love and positive thoughts your way. Love you so much! ♥️♥️💖💖
Amy, I understand and don't blame you Hospitals are not fun.🙏 for you and hospital princess, Mary Frey and all who are chronically ill. You amaze me all of you who can be sick and still find it to be kind. I didn’t start to get sick until I was 50 and had colon cancer now I have chronic pain and a number of autoimmune diseases, I’m 70 years old and wheelchair-bound but you guys keep me going You don’t complain your informative and your beautiful I pray for you and Thomas to. have a long happy life together. I’ve been married to my husband my soulmate for 53 years, he’s is insulin-requiring juvenile diabetic, And I’m low blood sugars and high blood sugars like as high as 900 to low as under 20. Now he takes care of me and it’s hard because I was always was the caregiver and it’s hard to accept that I need help, he’s wonderful but it’s hard to accept help for me. 🙏💙💫
The best thing I did for night sweats was to keep a cold pack and ice water in a lunch box cooler next to my bed. That way when I woke up sweating I had something to help instantly cool me down. I hope this helps.💗
Hey Amy, I am on the same pain patch as you but I am on 35mg and I get really bad night sweats with them so it may be just your body reacting to that, just thought I would let you know that could be why. X
I know it’s a little late since I’m just seeing this vlog but sending much love from the USA! I know how hard it is to sleep sometimes especially when your body doesn’t cooperate. Post on Instagram next time you need some love from your virtual fam! We got your back 💕💕💕
Awe love.... this video made me tear up when you were saying that you wished we could be here now when you needed us. I feel that way so many times as well. Well I know you don’t know me and we live on different continents but if you ever want to exchange numbers or emails I’d love to be able to help talk you through the hard stuff and we can help each other keep fighting too. You are such a sweet and beautiful person inside and out and I feel so blessed by coming across to your page ❤️❤️ so lovely following your stories so thank you so much for doing this for us. You’re so strong and amazing fighter!! ❤️
One day the universe is gonna bless me so that I'm able to bless you... I've been watching your journey for a while and I can see how expensive it is. One day.
I got horrible night sweats after two surgeries last summer for a solid couple of months. They eventually went away. Nothing you can do about it. Time fixed it. It has to do with the anesthesia not the pain medicine that much I do know for sure
💖💖💖 was fridge high my fridge has frozen things and it was when temp was to high feel better soon you are a beautiful strong young woman we are here for you to talk to and you focus on you i know it cant be easy to vlog when feeling bad take it easy sending hugs from uk
I don't have gastroparesis, but I have type 1 diabetes so i totally understand your view on going into the hospital! Like yes, you are technically better when you leave, but it's not a "one and done" deal and you're not "cured", since it's a chronic illness.
Amy always looks so beautiful and I have to admit that I really look forward to how and what colours she be wearing today. A few months ago Amy talked abot a banana mask/conditioner.....well the next day I went on the hunt for it. And it truly is amazing and smells good enough to eat.
Hi Amy,just wanted to say that I have a lot going on physically,and mentally,I love watching your vids and I wait very impatiently for your vids every week 😁😀❤💜💙💚💖
I think I can speak for most of your subscribers but if you ever need to talk to someone like you said that you did I’m sure anyone on here would be honoured to help!! ( stay strong girly your the best! ) ❤️
I just had food that froze in our fridge and our freezer is a completely separate door just adjust the temp and maybe keep a few thermometers in there to monitor the temps
Thank you for posting and I’m so glad you are doing better. Get lots of rest to get those blood numbers back up. You do look great and pink is a pretty color on you. Love, love, love to you 💜❤️💜❤️ And Happy Birthday to your sister 😊
Sometimes after I have anesthesia I end up getting the sweats and have a really rough time of trying to sleep after. Usually takes me about a week or two to shake it off. 💔 esp, after period. 😞 I really hope you feel better xx you’re not alone, so never think that. As for rushing to do uploads & apologizing (I saw your msg) don’t! You come first. Your health. Your body etc. I’m still recovering from my surgery from the 5th and it’s going to take until October till I’m semi human again... but I’ve had the sleep and sweat stuff on and off as well as just feeling meh. Sending well wishes and lots of love 💕
some of my TPN froze when i got a new fridge and accidentally set it to way too low of a temperature haha and i was told not to use it! i can’t remember exactly what they said, but they were worried about something to do with the filter, what to do if an icy chunk were to get in the tubing, and they weren’t sure if/how the formulation of the TPN would change after freezing, if that makes sense? sending you loads of love!💛
Hope you are feeling better! Night sweats without an associated fever can be from excess fluid. It happens to me often and my doctor said it is likely due to the fluid I retain. Hope that helps!
Hospital is the worst place to get well mentally in my opinion I was there for asthma with nebs every 3 hours including over night another bed on a different time every 4 hours plus observations every 4 hours or so. So have had no sleep for days and I'm so tired
Dear Beautiful Amy, I can relate to what you are saying about the horrible night sweats and the malaise they cause!!! Please get more REST for your body to recover from these times!!! That is my main concern for you...that you are not resting enough!!! Your body is GOING THROUGH SO SO SO MUCH WITH THE HEALING FROM THE HIP SURGURY AND ALL THE ONGOING ASSALTS THAT COME WITH YOUR ILLNESSES!!! Those night seeats are like taking a bath in your own "bodie's water" and PJs and bed sheets...so draining of energy and FLUIDS!!! I WORRY FOR YOU, as i do about myself when this happens to me, about a viral or bacterial infection or an imbalance of nutients (???) that the body is trying to flush out?!?! I FEEL AND KNOW YOUR MENTAL FATIGUE FROM THIS STRESS OF NOT KNOWING WHY along with EBERYTHING ELSE!!! I feel your pain and gripping confusion about this exhosting night body storms, drenching "bathes"! Have you BEGGED your DOCTORS for a REASON for this? Have you told them how draining, exhosting and worrisome they are? My body goes through this at times. I have severe gastroparisis and illnesses very similar...the formulas kerping me alive etc. and SO JUST WANT TO EAT NORMAL HEALTHY FOOD AGAIN!!! But my body would do this at times even befor the extreme gastroparisis began... I wish i could give you more comfort in dealing with this!!!♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡ Please know I'm sending LOVE to YOU DEAR LOVELY ONE!!!♡♡♡♡♡♡♡♡♡♡♡♡ I PRAY THIS ALL GETS BETTER SOON!!! BUT FOR NOW, GIVE YOUR BODY THE REST YES REST THAT IT NEEDS! ! ! ! AND DO NOT FEEL GUILT OR SHAME FOR ALLOWINH YOUR BODY THIS VERY E S S E N T I AL MEDICINE CALLED R E S T! ! ! ! ! ! ! I'm 60 years old now....have gone through so so so much and regret not allowing my body the rest it truly needed. I pushed myself too hard and became much worse because i didn't give my body the healing time ...the cleansing tecovery time it needed to right itself to its best potential after times of great body stress like the hip surgery!!! That was such a major MAJOR CRISIS for your already struggling body!!! So, i love and respect you so much for pushing for the best & fastest recovery, but my intuition tells me, AMY NEEDS TO SLOW DOWN AND REST AND ALLOW HER BODY THE ENERGY TO FOCUS ON HEALING RATHER THAN FEARING POOR GRADES FROM THE HARSH SCHOOL OF LIFE!!! You are allowed to have radical vacation of recuperation!!! Too much is going on at once for you to rest and recover properly, is what I truly feel. With the GREATEST LOVE and RESPECT for YOU!!!♡♡♡♡♡♡♡ YOU MUST NOT FEEL DEFEAT FOR ALLOWING AS MUCH REST AS YOUR BODY IS BEGGING FOR!!! LOVE LOVE LOVE TO YOU!!! I hope I've said helpful things for you !!!♡♡♡♡♡♡♡♡♡♡♡♡♡ LOVE YOU!!!♡♡♡♡♡♡♡♡♡ (Sorry for repeating myself so much, but i really do love you and hope and pray you feel no guilt for getting some extreme REST NOW! YOU have inspired and helped so many....time for a bit of JUST YOU HEALING from major surgury!!!)
You're an amazing inspiration, I'm just wondering about your piercings and how you went with healing when you got them done, especially with your condition, could you do a tattoos and piercings video please?
Hi Amy I have stage four liver cirrhosis and I have problems eating sometime the only thing that makes my tummy feel better is eat soup oatmeal crackers a jello and pudding. I can't get enough nutrition from foods so I drink nutrition
If the TPN bag is touching the back of the fridge or if it's too close it can get frozen. I think that you didn't have this problem before because the liquid in the bags were less. Unfortunately it's a common fridge issue.
Yeah, there's a spot in the middle top rack of our fridge that freezes stuff too. It must be that it's just sitting close to the cooling vent for the fridge 🤔
Ligit wanna be come a doctor so I can somehow cure everything it breaks my heart when I see anyone suffering and am so sorry for the bad things you go through my love is with you 24/7 💜
The word you guys use for the person that gives you meds to make you go to sleep for surgery I cannot even begin to say. We call those people anesthesiologists. I am so glad you've got your tube fixed properly and that all went well this round. The gastric bleed you experienced would have freaked me out so much, I'm sorry you have to deal with things like that. I am sending well wishes that you won't have to have an iron infusion again. I know you've mentioned how painful those are. Happy Birthday Ellie!!! I hope you had fun celebrating with her. Also, so so glad you've been able to start driving yourself again. I know how it can behaving to depend on others for things.
I had a lot of tests and stuff yesterday. Pretty bad health day all together, but I wore your merch all day yesterday and today (not the same shirt of course) lol.
Seems like a very patient and upstanding guy ,he doesn't talk much ,does he ,or maybe it just when he on video ? I bet you are glad you are home hospitals tires me out ,and I get so bored ,If they don't have Wi-Fi it suck even more .
I see my GP today and dreading it. Since our Government has gotten on the cut back of opioids, GP's attitudes to chronic pain sufferers sucks. My last appointment was a major set too. It didn't matter that I'd had major surgery and only half way through my healing period. I really worry about our future, as an aged patient with 48 surgeries behind me, just what is the Government going to enforce on us chronic patients?
القوة نعمة و هبه من الله وربنا يحب الإنسان المليئ بالأمل وهذي الفتاة مفعمه بالحيوية والأمل والسعاده ونحن نعلم أن الإنسان يخبئ داخله الكثير من الحزن الخوف بعض الأحيان انكسار ولكن هولاء الناس مثل هذي الفتاة تخرجه من داخلها و تدفنه تحت التراب و يسقونه بماء الحياة كي يخرج ورود ويسمين كوجهها 🌼 🌹انتي فريده وجميله انت تشعرِين من يشاهدك انت أكثر حياة من الذين أضاعو حياتهم بأشياء غبيه وهم يملكون الصحه نحن المسلمون يعلمون أن المرض اختبار مدى الصبر وعلى قدر الصبر يكون الفرج والسعاده
this is an example of how through pain, illness and suffering, to remain a kind, bright and happy soul! thank you 🙏🌼🌾
Thank GOODNESS for good anaesthetists/doctors that LISTEN!!! Those emus-oh my!! WAY TOO CUTE!! Thankyou for showing us!!!! U have an awesome partner in Tom!!! I hold out hope I will find someone special that can handle all of my issues!!
The night sweats could be related to pain meds especially the strong ones. I find if I’m having a bad run of break through pain I get night sweats.
I’ve noticed that too. Of course they have taken me off of the stronger pain meds.
You are spot on about going in the hospital. I feel the same way. My family and friends will say, when I’m in a flare or need a procedure “YOU NEED TO GO TO THE HOSPITAL!” Ugh.... no, please, let me sort this out at home, in my own bed. Yes they are great nurses who help but.... sometimes it’s just a downer which reminds you that you do have a chronic illness. Stay strong 💜
I wish I could give you a hug, Amy. I know that feeling of needing someone to talk to 'now' and you just can't for whatever reason.
I've had gastro pain for a month and the doctors don't know why. Can hardly eat anymore and I thought that was bad enough! So sorry you're having such a rough time. Sending love and prayers xx
Amy you inspire me i am in toronto canada just in hospital at 61 with heart and stomache acute problems. Thank u for your strengh. God bless you.💜
Amy, I get night sweats also and it's my pain meds that I take. I hope you find out what is causing your night sweats soon. I'm praying for you hun and I hope you feel better soon. Take care!!!!
I always get so excited when I get a notification saying you posted 💕
Alicia Halley me too! Haha!
I love how positive you always are, I can understand the hospital feeling! Love you
Stay strong Amy.I'm another multiple chronic illness person. FS is second home too. I hear you loudly and clearly, am SOOOO over it. Last time was Monday this week. Had enough,need a break. Onwards and upwards girl..not much choice atm. At least beautiful Spring is on its way. 💕
I'm so sorry your not getting good sleep. I know what that's like. Its 5 am and I'm watching your vlog because I feel like crap and have been up all night. I'm in the US by the way. I'm going to pray that both of us start feeling a little better and can get some sleep.
Poor kiddo. So sorry that you're having a rough time of it lately. Sending you all kinds of love from Dallas, Texas. xxx
Hello friend 👋🏾🎈🧸 I have several rare conditions also... I spend alot of time between the hospital doctors appointments or home so I totally get it... I Im glad your procedure went well and I pray you start feeling back to your normal soon! Cheers to less pain less medical drama and more fun laughter in filled days!
I'm sorry to hear you're having a rough week Amy. I hope things smooth out in the coming week.❤
Not on TPN but my fridge gets extra cold at the back and stuff freezes there. (It’s an old fridge so the back wall regularly freezes/defrosts) but I think it’s not uncommon to get cold spots in the fridge
Your literally my favourite RUclipsr. You live such an interesting life ❤️❤️❤️❤️
Oh sweetheart, it is so sad to see you in pain. Sending prayers and love
Hi doll. I've been watching your videos for ages and just wanted to sincerely thank you for shining light on the reality we go through. I have eds type 3, lupus, gastroparesis, diabetes, necrobiosis lipoidica, etc. I'm in the US in Kentucky & am having no progress in finding help. Some of the best places have straight up told me they just cannot help me. Anyway watching your videos helps me feel not so alone and less discouraged. I need to find help asap but I just wanted to take the time to thank you. I wish I had a way to talk to you one on one in chat form or something. So many questions just to try to help myself until I can find the true help I need. Anyway this comment is way too long as it is so sorry for rambling. Just please know you're helping people across the world. I love you hun. Take care~
I hope you can find the help you need. Stay strong!
Hi. I know you wrote this a year ago, but if you have any questions then feel free to message me on IG. I don't have many of your conditions, but I have gastroparesis, spinal cord defect, peripheral neuropathy as well as many more chronic illnesses and disabilities. I'm a full time electric wheelchair user too. So yeah, I don't post often, but I'm always here if you need advice/ need someone to talk to xxx
Happy to see you.
Sad you’re not feeling 100%. Wish I could make your pain go away.
I too have my own chronic illnesses and have pain all day everyday. I know the feeling.
You want to cry, but need to be strong.
Sending hugs. ❤️ and much love
So sorry you are feeling bad hunnie, I know what it's like not sleeping... I have three little ones 6, and a set of 15 month old twins, they sleep but my fibromyalgia wakes me up all the time, last night I slept from 8pm till 115 am and I have been up since with pain, I also go back and forth with sweating and freezing cold while i am sleeping so I totally understand. Please dont every feel like you are alone. I and many other people are with you all the time, I always send you good vibes every night! You are part of my prayers every day🤗 here is a super gentle hug for you and know we all love you Amy hopefully sleep will come soon for you..
I was in the hospital for almost four months with a small bowel blockage. I lost 50 pounds in that time frame and 12 inches of bowel. Now I’m having elevated ACT and AST and awaiting to see if they will still do a full hip replacement on July 22. I’m not sure if my numbers constitute putting off a much needed surgery. I have right hip dysplasia and end stage osteoarthritis so I’m in constant pain and walking causes my hip to bounce in and out. I’m sure my pain is nothing compared to yours. I love watching your videos and following your story. God bless and I pray your pain has lessened.
Oh my goodness that pink eyeshadow look is freaking awesome!
If it’s a mini fridge the back part of the fridge will freeze if there not a lot of things in there. I do get some freezing when I don’t have a lot in the fridge at once. I just turn the freeze down one unit
Take it easy and recoup from the surgery. If you are having issues you may want to talk to the dr and see if they can help you. I have been thinking about you lately and been praying that things are good. Please take care.
Amy you are so strong! i am finally getting a blood pressure moniter
on friday, after so long of suffering, STAY SAFE MY LOVE 💜💜💜💜💜💜
Oh Amy, I hope you start to feel better. Those night sweats are terrible, I've had them before. You're doing your best & that's all you can do. I've often felt like you do about back and forth to the doctor or hospital or surgery...it wears you out. I know you're not big on the whole "God" concept, but I am and I'll be praying for you to feel better & stronger. I hate to see you feeling poorly. So glad you've got Tom and he has you. What a blessing ✨💕
Watching this after literally JUST getting home from the ER less than an hour ago and wow I've never related more to anything in my life than what our sweet Amy was saying about hospitals; I'm currently lying in my bed with a heating pad trying to deal with mad exhaustion and new flare that has been caused by going to the ER to deal with the symptoms of another different flare .. fucking chronic illness .. Love and spoons to everyone who sees this
You are excellent at explaining medical problems
Amy, I truly wish I could do something for you, just remember it won't last forever, you're strong and will get through this. Sending all my love and positive thoughts your way. Love you so much! ♥️♥️💖💖
Amy, I understand and don't blame you Hospitals are not fun.🙏 for you and hospital princess, Mary Frey and all who are chronically ill. You amaze me all of you who can be sick and still find it to be kind. I didn’t start to get sick until I was 50 and had colon cancer now I have chronic pain and a number of autoimmune diseases, I’m 70 years old and wheelchair-bound but you guys keep me going You don’t complain your informative and your beautiful I pray for you and Thomas to. have a long happy life together. I’ve been married to my husband my soulmate for 53 years, he’s is insulin-requiring juvenile diabetic, And I’m low blood sugars and high blood sugars like as high as 900 to low as under 20. Now he takes care of me and it’s hard because I was always was the caregiver and it’s hard to accept that I need help, he’s wonderful but it’s hard to accept help for me. 🙏💙💫
The best thing I did for night sweats was to keep a cold pack and ice water in a lunch box cooler next to my bed. That way when I woke up sweating I had something to help instantly cool me down. I hope this helps.💗
Betty Armontrout - that’s interesting.... I am freezing when I get the night sweats!! I can’t imagine ice!!!
Hey Amy, I am on the same pain patch as you but I am on 35mg and I get really bad night sweats with them so it may be just your body reacting to that, just thought I would let you know that could be why. X
What pain patch? I’m on Buprenorphine 20 mcg/hour.
That pink makeup look is on point!💗
I know it’s a little late since I’m just seeing this vlog but sending much love from the USA! I know how hard it is to sleep sometimes especially when your body doesn’t cooperate. Post on Instagram next time you need some love from your virtual fam! We got your back 💕💕💕
I'm glad everything went okay foryou
Awe love.... this video made me tear up when you were saying that you wished we could be here now when you needed us. I feel that way so many times as well. Well I know you don’t know me and we live on different continents but if you ever want to exchange numbers or emails I’d love to be able to help talk you through the hard stuff and we can help each other keep fighting too. You are such a sweet and beautiful person inside and out and I feel so blessed by coming across to your page ❤️❤️ so lovely following your stories so thank you so much for doing this for us. You’re so strong and amazing fighter!! ❤️
One day the universe is gonna bless me so that I'm able to bless you... I've been watching your journey for a while and I can see how expensive it is. One day.
You are not alone sweetheart. I've going thru hell of my own & I send you my love.
One crutch is also sensible when out of the house for safety as well.
You are so strong. I get sweats I hate them and sleeping can be so hard.
I got horrible night sweats after two surgeries last summer for a solid couple of months. They eventually went away. Nothing you can do about it. Time fixed it. It has to do with the anesthesia not the pain medicine that much I do know for sure
💖💖💖 was fridge high my fridge has frozen things and it was when temp was to high feel better soon you are a beautiful strong young woman we are here for you to talk to and you focus on you i know it cant be easy to vlog when feeling bad take it easy sending hugs from uk
I don't have gastroparesis, but I have type 1 diabetes so i totally understand your view on going into the hospital! Like yes, you are technically better when you leave, but it's not a "one and done" deal and you're not "cured", since it's a chronic illness.
Tall like a beanstalk 😂 wasn't expecting to laugh out loud
Amy, you look wonderful in that shade of pink. I'm so sorry you're on The struggle bus right now and i really do hope everything gets better.
Amy always looks so beautiful and I have to admit that I really look forward to how and what colours she be wearing today. A few months ago Amy talked abot a banana mask/conditioner.....well the next day I went on the hunt for it. And it truly is amazing and smells good enough to eat.
Hi Amy,just wanted to say that I have a lot going on physically,and mentally,I love watching your vids and I wait very impatiently for your vids every week 😁😀❤💜💙💚💖
"You're so tall..like a beanstalk!" LOL
Sorry things are rough right now. Sending love!💙💙💙
I think I can speak for most of your subscribers but if you ever need to talk to someone like you said that you did I’m sure anyone on here would be honoured to help!! ( stay strong girly your the best! ) ❤️
Sorry you’re feeling so bad. May God Bless you
Girl you go through so much god bless and Tom is a sweetheart you are lucky you have him
I just had food that froze in our fridge and our freezer is a completely separate door just adjust the temp and maybe keep a few thermometers in there to monitor the temps
Sending love and hugs.. Im sorry your going threw this..
Get well soon girl I will pray for you Amy 🙏🤞🥺
Makeup on fleek
Girly, just post on your insta story if you need some love
wishing you all the best and sending lots of love :)
Thank you for posting and I’m so glad you are doing better. Get lots of rest to get those blood numbers back up. You do look great and pink is a pretty color on you. Love, love, love to you 💜❤️💜❤️ And Happy Birthday to your sister 😊
Sometimes after I have anesthesia I end up getting the sweats and have a really rough time of trying to sleep after. Usually takes me about a week or two to shake it off. 💔 esp, after period. 😞
I really hope you feel better xx you’re not alone, so never think that. As for rushing to do uploads & apologizing (I saw your msg) don’t! You come first. Your health. Your body etc. I’m still recovering from my surgery from the 5th and it’s going to take until October till I’m semi human again... but I’ve had the sleep and sweat stuff on and off as well as just feeling meh.
Sending well wishes and lots of love 💕
Get well soon
The night sweats sound like its from the pain meds babe
allinkedup always - yup.... more than likely the pain meds! Coming off the pain meds also causes night sweats!!!
Much love sweetie sorry u r havin a hard time hope u start feeling better soon ♥
some of my TPN froze when i got a new fridge and accidentally set it to way too low of a temperature haha and i was told not to use it! i can’t remember exactly what they said, but they were worried about something to do with the filter, what to do if an icy chunk were to get in the tubing, and they weren’t sure if/how the formulation of the TPN would change after freezing, if that makes sense?
sending you loads of love!💛
Loved the pink outfit and make-up combo!👌
Yayyy so glad to see you back! Hope you are feeling better.
Pleased to hear that you are feeling better xx
Hope you are feeling better! Night sweats without an associated fever can be from excess fluid. It happens to me often and my doctor said it is likely due to the fluid I retain. Hope that helps!
i hope you're doing a it better by now. you deserve a break
Hope you’re feeling tons better beautiful! Sending you loads of love 💕❤️💕❤️ xxxx
Just saw your video and your latest update. Will continue to follow you. You're a living story and I always hope for a happy ending. Stay strong.
Love you amy feel better
I LOVE your nails!
Hospital is the worst place to get well mentally in my opinion I was there for asthma with nebs every 3 hours including over night another bed on a different time every 4 hours plus observations every 4 hours or so. So have had no sleep for days and I'm so tired
Not doing well today either. Hope you start to feel better hun.
Great things went as well as could be. So happy your home
Dear Beautiful Amy,
I can relate to what you are saying about the horrible night sweats and the malaise they cause!!!
Please get more REST for your body to recover from these times!!! That is my main concern for you...that you are not resting enough!!! Your body is GOING THROUGH SO SO SO MUCH WITH THE HEALING FROM THE HIP SURGURY AND ALL THE ONGOING ASSALTS THAT COME WITH YOUR ILLNESSES!!! Those night seeats are like taking a bath in your own "bodie's water" and PJs and bed sheets...so draining of energy and FLUIDS!!!
I WORRY FOR YOU, as i do about myself when this happens to me, about a viral or bacterial infection or an imbalance of nutients (???) that the body is trying to flush out?!?! I FEEL AND KNOW YOUR MENTAL FATIGUE FROM THIS STRESS OF NOT KNOWING WHY along with EBERYTHING ELSE!!!
I feel your pain and gripping confusion about this exhosting night body storms, drenching "bathes"!
Have you BEGGED your DOCTORS for a REASON for this? Have you told them how draining, exhosting and worrisome they are?
My body goes through this at times. I have severe gastroparisis and illnesses very similar...the formulas kerping me alive etc. and SO JUST WANT TO EAT NORMAL HEALTHY FOOD AGAIN!!! But my body would do this at times even befor the extreme gastroparisis began...
I wish i could give you more comfort in dealing with this!!!♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡
Please know I'm sending LOVE to YOU DEAR LOVELY ONE!!!♡♡♡♡♡♡♡♡♡♡♡♡
I PRAY THIS ALL GETS BETTER SOON!!! BUT FOR NOW, GIVE YOUR BODY THE REST YES REST THAT IT NEEDS! ! ! ! AND DO NOT FEEL GUILT OR SHAME FOR ALLOWINH YOUR BODY THIS VERY E S S E N T I AL MEDICINE CALLED R E S T! ! ! ! ! ! !
I'm 60 years old now....have gone through so so so much and regret not allowing my body the rest it truly needed.
I pushed myself too hard and became much worse because i didn't give my body the healing time ...the cleansing tecovery time it needed to right itself to its best potential after times of great body stress like the hip surgery!!! That was such a major MAJOR CRISIS for your already struggling body!!!
So, i love and respect you so much for pushing for the best & fastest recovery, but my intuition tells me, AMY NEEDS TO SLOW DOWN AND REST AND ALLOW HER BODY THE ENERGY TO FOCUS ON HEALING RATHER THAN FEARING POOR GRADES FROM THE HARSH SCHOOL OF LIFE!!!
You are allowed to have radical vacation of recuperation!!!
Too much is going on at once for you to rest and recover properly, is what I truly feel.
With the GREATEST LOVE and RESPECT for YOU!!!♡♡♡♡♡♡♡
YOU MUST NOT FEEL DEFEAT FOR ALLOWING AS MUCH REST AS YOUR BODY IS BEGGING FOR!!!
LOVE LOVE LOVE TO YOU!!!
I hope I've said helpful things for you !!!♡♡♡♡♡♡♡♡♡♡♡♡♡
LOVE YOU!!!♡♡♡♡♡♡♡♡♡
(Sorry for repeating myself so much, but i really do love you and hope and pray you feel no guilt for getting some extreme REST NOW! YOU have inspired and helped so many....time for a bit of JUST YOU HEALING from major surgury!!!)
I pray you start feeling better.
You're an amazing inspiration, I'm just wondering about your piercings and how you went with healing when you got them done, especially with your condition, could you do a tattoos and piercings video please?
I love your makeup in the video ☺️☺️☺️ you're always so positive, I love your videos and posts on instagram ❤❤
You are starting to develop an Australian accent.
Hi Amy I have stage four liver cirrhosis and I have problems eating sometime the only thing that makes my tummy feel better is eat soup oatmeal crackers a jello and pudding. I can't get enough nutrition from foods so I drink nutrition
You're such an amazing person
If the TPN bag is touching the back of the fridge or if it's too close it can get frozen. I think that you didn't have this problem before because the liquid in the bags were less. Unfortunately it's a common fridge issue.
Yeah, there's a spot in the middle top rack of our fridge that freezes stuff too. It must be that it's just sitting close to the cooling vent for the fridge 🤔
@@IveGotItTwisted yeah our old fridge had the same issue too! The older it had gotten the more it froze. New fridge doesn't have this problem yet! :)
@@SuperCsokiii I hope it won't for a good long while 🤞😊
Always sending my thoughts and prayers sweetheart❣
I liked your Tuesday makeup w/ the pink sweater...cute😍
Ligit wanna be come a doctor so I can somehow cure everything it breaks my heart when I see anyone suffering and am so sorry for the bad things you go through my love is with you 24/7 💜
The word you guys use for the person that gives you meds to make you go to sleep for surgery I cannot even begin to say. We call those people anesthesiologists. I am so glad you've got your tube fixed properly and that all went well this round. The gastric bleed you experienced would have freaked me out so much, I'm sorry you have to deal with things like that. I am sending well wishes that you won't have to have an iron infusion again. I know you've mentioned how painful those are. Happy Birthday Ellie!!! I hope you had fun celebrating with her. Also, so so glad you've been able to start driving yourself again. I know how it can behaving to depend on others for things.
Hope your doing better ❤️
I had a lot of tests and stuff yesterday. Pretty bad health day all together, but I wore your merch all day yesterday and today (not the same shirt of course) lol.
Yes i cant wait for winter i have 2 good sweaters aswell 😃💜 thanks Amy wish u well!
Good luck!
I hope you feel better miss lady!
Sending you a big virtual hug, hope you feel better really soon. Xxx
I hope you feeling better !!!
Seems like a very patient and upstanding guy ,he doesn't talk much ,does he ,or maybe it just when he on video ? I bet you are glad you are home hospitals tires me out ,and I get so bored ,If they don't have Wi-Fi it suck even more .
You are a warrior!❤️
I get night sweats from my pain medication.
You’re so cute!❤️
I see my GP today and dreading it. Since our Government has gotten on the cut back of opioids, GP's attitudes to chronic pain sufferers sucks. My last appointment was a major set too. It didn't matter that I'd had major surgery and only half way through my healing period. I really worry about our future, as an aged patient with 48 surgeries behind me, just what is the Government going to enforce on us chronic patients?
القوة نعمة و هبه من الله وربنا يحب الإنسان المليئ بالأمل وهذي الفتاة مفعمه بالحيوية والأمل والسعاده ونحن نعلم أن الإنسان يخبئ داخله الكثير من الحزن الخوف بعض الأحيان انكسار ولكن هولاء الناس مثل هذي الفتاة تخرجه من داخلها و تدفنه تحت التراب و يسقونه بماء الحياة كي يخرج ورود ويسمين كوجهها 🌼
🌹انتي فريده وجميله انت تشعرِين من يشاهدك انت أكثر حياة من الذين أضاعو حياتهم بأشياء غبيه وهم يملكون الصحه نحن المسلمون يعلمون أن المرض اختبار مدى الصبر وعلى قدر الصبر يكون الفرج والسعاده
You are so brave and so interesting to watch! Love your videos! Sending you love from Queensland and hope your feeling better 🤗