This short video describes some of the more commonly experienced symptoms by actual patients. For more info on hypoparathyroidism, please see our site at www.hypopara.org
total thyroidectomy patient here. three years post op I still have not found out what causing my muscle and bone pain, spasms, numbness and tingling. UNTIL NOW I HOPE!!! This video is giving me inspiration that I can feel good again maybe. watching this made me cry.
well if they took out completely you should be dead, no pth mean death or close to it dockters have known since 1950 that thyroid gland not only makes t4 t3 but also pth wich you can not take in a pill so you wont live long if they took it out completely im on my way out to im fkt i have hight phasphates with very high pth and low thyroid fucktion dock said he dont know whats wrong as a result my livers fkt he shoud get a mri on my thyroid and run more test but still no avail.
u can get the hormone replacement if u went TO natural doc.just take calcium and vit d daily n u should feel better.i have my thyroid but it does not work due to ebv and steroids causing it to kill my thyroid function.not 1 doc has told me my thyroid also makes this calcium reg hormone!!!IM NOT HAPPY BUT THANK GOD THERE IS THE NET.
@@maliaraee yes I know. I didn’t explain it properly my bad. I don’t even remember typing this lol. I didn’t know much about it back then but i do now. I’m on calcitriol now too, my god has it helped me so much 🙏
I had all those symptoms plus I would get double vision and blurry vision, I was tired but I would only sleep a couple of hours a day, also my voice box or larynx would spasm and I couldn't breathe, I found out I could hold my breath for over 2 and a half minutes. Now I take 10 600mg calcium pills and 2 calcitrol pills every day. or at least I am supposed too
Thank you for this. I've dealt with this for more than a decade. This past March it progressed to hyperparathyroidism. Seeing an ENT for the first time in 5 days. Doctors at multiple hospitals, including UCSF, missed basic signs like severe vitamin D deficiency, which is in the bloodwork as low as 5 ng/ml in 2011 when it should have been no less than 30 ng/ml (I had a duodenal switch weight loss surgery which affects what the level needs to be at). This has been a nightmare and I can't wait for it to be mostly over. Sadly, I now live with permanent damage to my spine.
they told me i have lupus for 15 years my calcium was well below the normal level after having 2 kids they are both mini adults now feel like i have not been here at all the last 15 years calcium was around 1.65 then they made it go up treating me for lupus nearly killed me back to 2 now
For short time at the beginning for me as a man was the total loss of all emotions god it was horrible thankfully it lasted only for a few days swiftly followed by extreme tiredness I've a great doctor who made the first suspicion that it was this condition l could taste bone in my mouth as well and blood pressure went through the roof! It was the one on the lower right heavily infected and pumping out calcium and slowly killing me I'm on record as having the highest blood calcium level ever seen in a human being apparently I'm wondering if any one had the same first symptom as l did?..l was operated on and said gland was removed ..day later l felt OK again hope your OK too oh just for the record Viking king Ivor the Boneless may ? Have had this condition too!
My doctor suspects I have adult acquired (not post surgical) hypoparathyroidism. I have many of the symptoms. But while my PTH is low, calcium and vitamin D are normal; don't know about phosphorous and some of the other minerals. Is it possible to have hypoparathyroidism and have normal calcium and vitamin D (so far, I have only had the general calcium test, not the ones that segment out the two diff. calcium types)?
Yup. I suffer from this due to total thyroidectomy. Its very tough to live with. I can relate to everyone in the video. At 1 point, my pth and calcium was undetectable after my surgery. Boy, was that the worst feeling I have ever had. Good times lol....
what causes high phosphate with high pth if its not kidney desase i also have a low functioning thyroid and are on thyroxine i have been very sick i need help i have bave bad mussel pain i find it hard to write right now my memory has not been good for a 6long time.
if you have muscle pain try taking magnesium. if you are having cramping it is either magnesium or potassium you are needing and since you are low thyroid i would suggest taking a calcium supplement as well one with vitamin D3 in it.
Thank you for creating & sharing this information!
total thyroidectomy patient here. three years post op I still have not found out what causing my muscle and bone pain, spasms, numbness and tingling. UNTIL NOW I HOPE!!! This video is giving me inspiration that I can feel good again maybe.
watching this made me cry.
well if they took out completely you should be dead, no pth mean death or close to it dockters have known since 1950 that thyroid gland not only makes t4 t3 but also pth wich you can not take in a pill so you wont live long if they took it out completely im on my way out to im fkt i have hight phasphates with very high pth and low thyroid fucktion dock said he dont know whats wrong as a result my livers fkt he shoud get a mri on my thyroid and run more test but still no avail.
hang in there tony. live the best life you can manage.
u can get the hormone replacement if u went TO natural doc.just take calcium and vit d daily n u should feel better.i have my thyroid but it does not work due to ebv and steroids causing it to kill my thyroid function.not 1 doc has told me my thyroid also makes this calcium reg hormone!!!IM NOT HAPPY BUT THANK GOD THERE IS THE NET.
@@NMW80 your parathyroids sit on the back of your thyroid, like 4 little buttons, it is not your thyroid that makes PTH
@@maliaraee yes I know. I didn’t explain it properly my bad. I don’t even remember typing this lol. I didn’t know much about it back then but i do now. I’m on calcitriol now too, my god has it helped me so much 🙏
I just deal with it all day..this is so sad,I wish we could get more help more answers 😭😪
same with me i thought this was normal after 40 plus year the pain is horrible lack of sleep
Totally true
I had all those symptoms plus I would get double vision and blurry vision, I was tired but I would only sleep a couple of hours a day, also my voice box or larynx would spasm and I couldn't breathe,
I found out I could hold my breath for over 2 and a half minutes.
Now I take 10 600mg calcium pills and 2 calcitrol pills every day. or at least I am supposed too
Thank you for this. I've dealt with this for more than a decade. This past March it progressed to hyperparathyroidism. Seeing an ENT for the first time in 5 days. Doctors at multiple hospitals, including UCSF, missed basic signs like severe vitamin D deficiency, which is in the bloodwork as low as 5 ng/ml in 2011 when it should have been no less than 30 ng/ml (I had a duodenal switch weight loss surgery which affects what the level needs to be at). This has been a nightmare and I can't wait for it to be mostly over. Sadly, I now live with permanent damage to my spine.
they told me i have lupus for 15 years my calcium was well below the normal level after having 2 kids they are both mini adults now feel like i have not been here at all the last 15 years calcium was around 1.65 then they made it go up treating me for lupus nearly killed me back to 2 now
For short time at the beginning for me as a man was the total loss of all emotions god it was horrible thankfully it lasted only for a few days swiftly followed by extreme tiredness I've a great doctor who made the first suspicion that it was this condition l could taste bone in my mouth as well and blood pressure went through the roof! It was the one on the lower right heavily infected and pumping out calcium and slowly killing me I'm on record as having the highest blood calcium level ever seen in a human being apparently I'm wondering if any one had the same first symptom as l did?..l was operated on and said gland was removed ..day later l felt OK again hope your OK too oh just for the record Viking king Ivor the Boneless may ? Have had this condition too!
.
My doctor suspects I have adult acquired (not post surgical) hypoparathyroidism. I have many of the symptoms. But while my PTH is low, calcium and vitamin D are normal; don't know about phosphorous and some of the other minerals. Is it possible to have hypoparathyroidism and have normal calcium and vitamin D (so far, I have only had the general calcium test, not the ones that segment out the two diff. calcium types)?
What is your pth level??
Similar is in my case. My pth is low , while calcium, vitamin d and phosphorus are normal.
Yup. I suffer from this due to total thyroidectomy. Its very tough to live with. I can relate to everyone in the video. At 1 point, my pth and calcium was undetectable after my surgery. Boy, was that the worst feeling I have ever had. Good times lol....
HOW DO U TREAT IT?HORMONE REPLACEMENT OR CALCIUM AND VIT D?HOW MUCH VIT D AND CALCIUM SHOULD WE TAKE IF WE ARE PARATHYROID DEFICIENT.
soz caps were on
It says hypo but talks about hyper.
what causes high phosphate with high pth if its not kidney desase i also have a low functioning thyroid and are on thyroxine i have been very sick i need help i have bave bad mussel pain i find it hard to write right now my memory has not been good for a 6long time.
same here I think I have hypoparathyroidism too cos my thyroid hasn't worked for years
if you have muscle pain try taking magnesium. if you are having cramping it is either magnesium or potassium you are needing and since you are low thyroid i would suggest taking a calcium supplement as well one with vitamin D3 in it.