BRONCHIECTASIS AND ME
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- Опубликовано: 17 сен 2024
- This is now on replay.
I have bronchiectasis and asthma and I explain a little about what they are and how those both affect my breathing and life. Doing it as a single video just helps me to explain in one go rather than answering everyone's individual comments.
Thanks for everyones suggestions - I have been an asthmatic all my adult life and know that one inside out. The bronchiectasis is a newer diagnosis and I learn a little more about it each day through personal experience and my own research.It is a life long condition. Everyones experiences with the disease is different and I do have a respiratory nurse that I converse with and Im well medicated. I hope that it helps everyone understand the little known disease a bit better. Im not a medical person this is just my own experience since diagnosis.
I have a playlist about Bronchiectasis if you wish to know more about it and Thanks for watching xxx
Good morning Carol. My husband and I both have lung issues as well and unfortunately understand your circumstances. We too have been under "stay at home orders" for our protection. We are in our seventies. For me keeping quiet sitting in my craft room and watching tutorials like yours is keeping me from going bonkers, so "thank you" for helping me to keep my sanity. Much love, hugs, and prayers from Donna, in California.
I'm glad you explained all this. I have googled the condition of yours. I cannot spell it. Lol. Asthma I know about as I have had it for 65 years. I think the fact you get on to do videos is just such an inspiration for us all even when I know you arent doing well. Life with breathing problems is much harder to navigate. It's like you said a struggle to even walk a hallway at home let alone having to shop for food or other items. So yeah I fully understand how hard this is Carol. But please don't feel like you have to apologize every time you cough. We understand why and we feel so badly that you are coughing when you do a video. But so happy when you can get on here to show us your talents so we can try to someday be as good at making things as you are. Take care and rest rest rest. Hugs and much love, Marlene
You are such a wonderful designer and teacher. To be able to do this whilst dealing with chronic illness is such a challenge, yet you do so with grace, dignity and a wicked sense of humour. Much love to you. Hugs Janie xx
Hi Carol, just watched your Asthma and bronciectasis video, ( I struggled to spell that) 4 months on.
Firstly thank you so much for sharing, that was kind and brave of you. You raised awareness of your fear for yourself and those who are also self isolating from covid, to stay alive . It needs to be said, and sadly said again.
You looked very tired at the end and I am sure your 'nana nap' was just what the doctor ordered.
Living a life with an illness, carries a inner perspective of how you see yourself and that in turn goes to colour how others see you. I have used a phase in the past, 'walk a mile in my shoes', then comment. I learnt so much from the video and can only imagine the struggles you have both mentally and physically. KBO (Keep buggering on) Carol. That is a saying by Winston Churchill, I see you very much as a fighter.
You have a generous heart and a lovely sole. Bless you. Big hug.
Thanks for taking the time out to watch and for your kind words too
My mum suffered with this her whole life, you do wonderful things, thankyou so much
Carol, you are simply precious! I wasn't aware of this live broadcast today, but that's water under the bridge now. I, too, deal with 'chronic crap' and it, in a word, sucks bug time! OK, three words but... whatever. "Day by day" they tell me... Really?!?! I have to navigate an entire day from this moment right here? I'll give ya' five, maybe ten, minutes cuz' right now that's all I can muster up. Oh Carol... I laugh, I cry, some days mostly I cry but every day I'm exhausted. My issues aren't respiratory - I think I'd find that most difficult - but they are "issues" that allow me to empathize with you. Thank you for sharing all of this with us, it must've been quite difficult. Friends love and care and pray, at least this friend does, so consider yourself prayed for 🙏. I think you are the bees knees! Please know that you are very loved and I'll bet I speak for all of your followers when I ask you to take care of yourself before you take care of us. Love and hugs from the Southern California desert, MK. ❤️🌞🌵. Oh! And when people - out of the goodness of their hearts, I get that - tell me I "should" do this and I "should" do that, I simply tell them that I'm handling this and gently request that they stop "should-ing" on me. If you think it'll help you are more than welcome to use that line. 🤭😁❤️
Such a sweet lady you are! My heart goes out to you! I love your humour and your perseverance! AND your creativity. I live with a couple chronic diseases - fibromyalgia, type 2 diabetes, hypertension - and get so tired of people making suggestions for my treatment. Flares are awful.... but I keep moving on. It is what it is!
Blessings to you sweet one! You are in my prayers! 💞🙏🏻
Bless you Carol, can't think of words to help, but take one day at a time, and look after yourself and you have to learn how to say no to things that you find difficult or impossible to do! Look after you, you do such a great job with your tutorials and wonderful journals!
It sounds very difficult, I have asthma alongside another autoimmune illness and I can get knocked totally sideways for weeks on end. If I get a cold or flu, it usually turns into pneumonia and it takes me months to recover. I sleep on pillow mountain and I sympathise also with the pant piddling situation! Keep well and - yes - wear your mask everybody!
My RUclips notifications are not working lately and I just now saw this live broadcast. Thank you, Carol, for explaining your issues. I just started watching you so was not aware of your conditions. Since your video the other day I became alarmed at how bad you sounded. I’m so sorry you are so afflicted and admire you keeping up with your crafting. I think I, and all of your fans, will not feel sorry for you but, rather, better understand when you do sound rough. I, like a lot of people, have asthma so understand how tiring it can be when the oxygen exchange in our lungs is not working correctly. I have confined myself to my home since mid-March and have trepidation about leaving the house because of Covid. You hang in there and I sure hope your breathing will clear up soon. Much love.
Hi Carol, I absolutely love your positive attitude and happy demeanor. I too have a couple of 'invisible' illnesses and know how debilitating it can be but am lucky inasmuch as I don't live alone, so do have help when I need it.......but the wonderful thing about your RUclips family, is we can all be here for you if ever you need us..... Please take care of yourself and keep smiling xxx
I am so sorry you have to go through this. On the other hand, you seem to have a very strong constitution and seem to be tough. Stay strong and as hard as it can be, keep your remarkable outlook. You are so creative and talented and hope you find solace in your work. I have lived abroad, being a military family, and actually lived with a wonderful German family (who became our family), and later my son lived and worked in Germany, so am familiar with medical in Europe. It is amazing to me that half of our population want to give our medical up and have the government take over. Stay strong, you are greatly admired and loved. Be careful with working with all the paper products, it does cause some dust. Love, love your work. It was also nice to see your beautiful face and smile. Barb Pacific NW
Nice to meet you carol. It’s always nice to have a condition thoroughly explained. I’ve have heard of circumstances where people have gotten life saving diagnoses from people sharing symptoms and talking with their Dr. about it. Thank You! I always look forward to your beautiful work :-)
I truly am sorry you're going through all of this. I was diagnosed with asthma several yrs ago. They immediately put me on 2 inhalers, nose spray, etc., like you. I couldn't tolerate as much as they told me to inhale and the nasal spray gave me nose bleeds. What gave me a huge turnaround was that I'd always heard that dairy caused a lot of mucus, so I stopped dairy. Within a couple of days the mucus that was blocking my bronchial tubes was reduced greatly. When that surprise happened, I looked into other foods that could cause reactions in our bodies. It is rare now when I need even 1 spritz of an inhaler- usually allergy season, but if I fall off that wagon of not eating irritating foods, I start experiencing more mucus and breathing problems. Dr. Steven Gundry has a wonderful eating program that helped me and my husband. His book 'The Plant Paradox' is very good. My husband's blood sugar went to normal in less than 10 days. He was soon off blood pressure, cholesterol, and diabetes pills. .... Good luck to you. I wish you better health.
Love you Carol, I really look forward to your videos! I'm so sorry for your condition ... but no violins ... so nice to get to know you better. Love listening to you, the coughing doesn't bother me ... thank you for sharing your talents with us!
Have always wondered what you look like lol. We tend to picture a person by their voice. I’m so thrilled to meet such a lovely person. I stand in awe of your strength and courage. You’re always in my prayers. And don’t lose that sense of humor. Love you. From Winnipeg, Canada.
I am so sorry about having two breathing conditions! :-( Just keeping it under control and hopefully preventing it from getting worse is most important for you. You have such a good attitude! Keeping taking care of yourself!
Just do what is best for you. Your doctors will do as much as they can for you. I have been lucky with my doctors as they listen to me and I have them explain in easy terms so I don’t go home not understanding. Take care. I think you are an amazing person and felt so lucky when I found your channel. Love your projects plus your personality.💝💝🌸🌸
Yours is a difficult journey. Know you are in many thoughts and prayers. Being able to explain so well helps all of us, it sounds. Thank you.
Dear Carol,
My son has asthma and heart disease. He has had corrective surgery twice for pulmonary stenosis. We have our own nebuliser.
Now that you’ve explained your health conditions and why you cough, please don’t apologise when you cough on camera.
I hope your craft and your Facebook and RUclips friends will see you through. Much love. Xxxxx ❤️😍😘🥰
Hi Carol, I love your creativity and you ARE A LADY in every way. My heart goes out to you and I will keep you in my prayers.
So sorry to hear about your diagnosis. Thank you for sharing what's going on with you. I am fairly new to junk journaling and recently found you on Utube. I have been watching your videos for the last couple days, almost non-stop. You have become my 'journal person'. I enjoy your talents and videos very much. You are an inspiration on many levels. Please know you are cared about. I wish I could do something to make things better for you. Hugs and all good wishes.
Thank you thats very kind of you :) xx
Hello Carol. I am sorry to hear about your difficulties. My husband has COPD and that causes flemme and mucus in your lungs as well as in his throat. His repeartory therapist said that gargling plain club soda helps with bringing up the mucus. It has helped him tremendously with the expelling. Take care and take it easy. Hugs from Canada.
I suffer with asthma and I can’t imagine adding another breathing issue to that! I appreciate you explaining this, I’ve learned so much. It sounds like you are proactive with your health and are doing what you need to in order to manage this. Not being able to breathe is so scary! Blessings to you, love and light! ❤️
I’m sorry to hear how serious your condition is. I want you to know you are a blessing during this time and I am praying for you.
Thank you so much :) xx
I admire you first of all, you are a strong person with great attitude and enjoying life. I am Asthmatic and know it’s not pleasant to have. Yes people are not responsible and most of all don’t have feelings for other people’s life. Thank you for sharing your situation. I will keep you in my prayers for you to have lots of good days. Keep up the great attitude.
Thank you :) xx
Thank you so much for the explanation, Carol. I really appreciate your upbeat attitude with everything that you have to deal with ... you are inspiration!
I hate that you are having so many issues. Try to find things to take you to your happy place. That is very hard, and the journey can be painfully long, but if you keep at it, you will find your way to it. Having a positive, happy mind & heart really helps with the physical issues. Praying for you. Hugs 🤗
Thanks for sharing! Prayers for a speedy recovery ❤️🙏🙏
My heart goes out to you Carol. Wish that one day you will wake up and you will be cured! My prayers to you ! Sending hugs and prayers your way! 🙏🙏🙏❤
How brave you are Carol. Thank you for sharing. Take care. Bless you.
I am so sorry you have to deal with this. My four year old grandson has Cystic Fibrosis and all the treatments and machines that he has to be on daily is frustrating for him. My heart breaks for you. He is fortunate enough to have 5 breathing treatments a day to keep the mucus out of his lungs. I wish with all my heart you had that option in the UK. You are in our prayers. Thanks for sharing. (And your hair is absolutely AMAZING!)
Thank for sharing! I had no idea of this disease! Thanks for explaining it to us! Take good care of yourself! Stay safe🙏🏻 I do wear my mask👍🏻❤️. I’m at a high risk plus I’m 75 so I try really hard to take care of myself too!
Dearest Carol, I got really sick in 2016 and was lucky enough to be seen by some of the best doctors where I live in Minnesota, USA. They found Rheumatoid arthritis, Sjogrens Syndrom, other things but the worst part was the ILD( Interstitial Lung Disease). At first they thought I had what you have, but mine to is just a step down from Cystic fibrosis. It has been life changing and they gave me 10 years to live in 2016. It took me a year to stop crying and then I got serious about living every day. I use oxygen and handicapped plates on my car. Winters are brutal, as are seasonal allergies, season changes and sick people. I have a 10 foot bubble from others and have to so careful just like you. I take afternoon naps and am take slow meanders when I walk. My family gets nervous and anxious when I am not doing well, which can turn on a dime. I always have to laugh when people advise me how to cure my issues. You are brave and doing as well as can be expected at a time like this. Do what you can for yourself, be kind to you and carry on.
I know there are folks worse off than me but hell it changes your life doesnt it when you get the diagnosis. You have to have a complete rethink on everything!! Well lets hope that you can prove their 10 year theory wrong but you have the best attitude as it is about living - big hugs xx
So glad you came on to explain all of this, bless you!
We love you and your wonderful videos, you are a wonderful teacher!!
My granddaughter has CF. Understand the mucus build up! She has a jacket hooked up to a vibration machine to break the mucus up. She's two! So far she is doing well. The best thing she has is a air cleaning machine hospital grade. Spring and fall she stays indoors! So I commiserate with you! I hope you find a combination that works for you! God bless and prayers.
Hi Carol, I love your ability to really teach and getting your point across is truly a talent. You explain things in a way that I can understand and I am very grateful for that. Thank you for sharing your talent I really appreciate you. Seams like all of us in one way or another have these dragons to slay. Much love Jannell
Hello Carol..I love your style! I truly hope you do feel better. We live in a wet environment so breathing issues are very prevalent..my heart goes out to you.
Carol, you are such a nice lady. I so enjoy your videos. Thank you for sharing your condition. I will keep you in my thoughts and prayers.
I'm sorry, Carol. Take care and best wishes.
I just saw this video. Wow girl at least you still got your sense of humor and can laugh. Prayers coming. God bless you.
Thanks - better than crying I reckon lol :) xx
I have included you in my prayers Carol, you sweet lady. Thank you for sharing about your illness. Do take care of yourself and protect your breathing by talking the least you can on your videos. I know you won't stop making videos because they are such a part of you. We can follow what you are doing just by watching you. So please know that you don't need to talk all the time and you know what I mean by that. We love you Carol over here and we want what will make it easier on you. If we don't understand something we can ask and you can answer later by typing it. So please take care of yourself. Don't make me have to come over there..LOL we love you here...Hugs and more Hugs oxoxox..all of us here and lots of love.
Perfectly said!!
!Hello from New Hampshire USA! I found you a few days ago and listened to your video on the "tea Party" series that you did a few years back. I send you many thanks for those "windows" into which I could better understand the love of teas...from the trusty wisdom of a tea lover within the UK. I made a card with multi pages in the "tea time" theme. So sorry for your "asthma" type lung conditions. My very best to you, Carol. You make marvelous junk journals....so exquisite. I will end by saying that many foods we eat produce mucas. That might be the info that could lead to some new details. Once again, I'm a new fan and love what you do, Carol. All the best.
PS: I had cancer 40 years ago and I was told I had less than 5 years to live. I said, no way, I will change the stresses in my and start a new life. I divorced by husband. I'm 74 at this time and pretty healthy, I believe. I'm sending so much love and best wishes for better health. pam kennedy
Ive found it's easier to list the body parts that are fine (toes and left elbow) than the parts that aren't! Asthma here too which is the least of my problems these days. Have a back injury and nerve damage. A nebulizer was a real game changer for my asthma. Hubby has a collapsed lung so we are self quarantined for the duration. I know I can't count on others to keep their germs to themselves, lol.
Be well, dear friend. Im a pharmacist and it sounds to me like you are doing what you can. Its just hard to see you suffer so we all want to fix you up! Hugs
Hi Carol. I’m new to your channel and it’s lovely to actually put your smiling face to your voice. Sorry you have to suffer with these conditions and hope your bad times get fewer and fewer. Ive yet to get started on your glue book ideas, am hopeless lol. Stay well and stay safe xx
Thank you Carol for sharing your story and for also sending a message about wearing a mask. I am sorry to hear about the health struggle you are now going through. I also have breathing issues and issues with mucus. So, I can understand some of what you are going through. I have never heard of this disease and plan to talk with my pulmonologist about this issue as I have had 15 years of dealing with a chronic cough while the doctors continue to try to figure out what is wrong. So...I really appreciate your sharing your story.
Thank you for sharing your medical situation. You are more severe than my husband, but he shares a lung condition and people are quick to offer their advice. Everyone means well...can be frustrating. It seems every season exacerbates him. He uses a nebulizer at home, along with medication, and measures his oxygen level. I think of you everyday, especially when my husband is having issues, making me aware of your problems. I enjoy your videos and I think you are an excellent teacher. I understand your feelings and wish the best for you.❤️
Oh Carol...my friend I'm so sorry that you struggle with these conditions that (I'm sure) interfere with life. Easy breathing is something we take for granted until it's not so easy. Living with congestive heart failure issues have made me appreciate every day that I'm not struggling for air. I pray for your comfort and strength to continue to enjoy life (as difficult as it can be) and your gift of craft with us. -Pham
You are very brave. Thank you for sharing this information. Get well soon
So sorry ,stay safe keep crafting,you do lovely work .xx
So sorry that you are suffering with a breathing illness. I also suffer with one similar to yours. It’s called Bronchiolitis and I am on oxygen 24 hours a day. I think that oxygen would help you too. Sending prayers your way that you can get your illness under control. Hugs💕
Hi and love from Kansas. Get well, Sister.
Hope you continue to control your systems stay safe Carol 🤗😘
Thank you Carol for sharing your story - I feel with you! I’ve also got issues with my health - so I know yout srtruggle is tough. Try to keep yourself positive - and get better soon! Hugs from Helen 🤗🇳🇴
Hugs for you Carol!
Thankyou :) xx
I have a chronic illness with flare ups so I fully understand, one day at a time, be kind to you x
Thank you so much, Carol for sharing this with us. Take care of yourself and be safe. Much love xx
Thanks for sharing your illnesses. I too have chronic lung disease amongst over things. I have also been at home since March and Covid19 scares me. I’m not sure when shielding will end or when it does will it be totally safe for you and I to go out I know I will very scared to go out when they do say it’s safe for you, me and others with similar conditions. Thank you fir sharing take care and stay safe xx
Carol, take one day at a time.You will be okay. I too, unfortunately, have many ailments that affect my daily life routine two being Sarcoidosis which is an autoimmune disease that affects the lungs along with diabetes so I can relate to your situation somewhat. However, aren't those Nana naps awesome 😂. I won't play the violin for you because I don't like them played for me either but I will pray that you get better soon 🧡.
Hello beautiful lady, Poor love, i know what it is like to have a chronic life long health issues.. ( nothing breathing related thankfully) so i can understand in a small way how frustrating it can be dealing with the daily struggle... Yes it is such a worry when you have illnesses like ours ( mine is an autoimmune disease) but having breathing disorders like yours would be even more frightening 😢 Hopefully medicine will make more advances in the very near future for diseases such as yours (and other related illnesses such as asthma etc) big gentle hugs from Australia and i hope your flare up is over with soon xox 💖
How funny I didn’t think you looked as you do , nice to see you at long last. I am so sorry it’s more than asthma (which is bad enough) but you cope so well and carry on with your happy self I admire you xxx. Carol do you have someone you have to help you out when your not too good. I haven’t been out since 16th March. Carol does the glues etc affect you at all x. Yes it does sound like cystic fibrosis. Please take care. Sorry I thought I was on live but noooo. Yes non visible illnesses are awful I have leukaemia and have good and really bad days
Praying for you, Carol....Love you, dear crafty friend!! Big hugs 💖💖💖 Suzy
I will keep you in my prayers, I'm so sorry you can't breath well!
Thank you :) xx
Hello Chick, pray your breathing eases soon, as my Gran would of said “ you need rubbed out and drawn again”
(Can I be Jessica Rabbit please)
Take care sweetie. Your videos mean so much to me Carol, thank you x
Very informative video TFS... you are soooo precious💜💜💜love your new laugh as you call it👏👏🤣💜
lol 😊 thank you xx
I have a chronic condition (or two :) and I get how frustrating it is when (well meaning) people give me solution after solution after miracle cure. I know they want to help, so I just try to smile and say "thank you" but I can't imagine I'll be able to keep that up forever :) I was worried about you the other day, and thought "I hope she has health care and can see a doctor" and then you mentioned seeing your doctor AND I realized you're in the UK so you don't need health care to see a doctor. 😊 Please know that I'm thinking of you, even though I don't mention it in comments.
Hi Carol. I had a friend a few years back who had bronchyestasis but I never understood what it was. I myself have asthma and emphysema and much of what you say applies to me also. Life is not easy sometimes is it? Stay safe, stay sane and keep laughing. xoxoxoxo
I’m so sorry you’re suffering in this way Carol but as an ex theatre nurse, I would never wear a mask. The risks of hypercapnia and hypoxia are greatly increased. Fresh air boosts the immune system, so wearing a mask outside is definitely undesirable.The best result is for herd immunity in the population. X
Sorry to differ a bit but in the US she would be considered a High Risk group and while fresh air would be a great thing she should definitely stay away from the herd!!!😁
Seretide inhaler and loos weight, it saved my life , and I was very very sick for many years.
Sweetheart I so hope I didn’t offend you. It sounds like your on COPDs doorway. Bless your heart not being able to breath is just the worst. Love from the US lady. Take care of yourself and for heavens sake stay away from the herd. I’ve been grounded by my family and am going stir crazy. That’s how I found you lady. I feel lucky I did.
Hi Carol
Sending you good vibes and love from Australia. Would sea air help? A room humidifier? Milk products also cause the body to produce more phlegm. One just picks up these little bits of wisdom. Good luck to you, hope you can find some relief.
Hello carol
Bilateral just means both lungs. Some people get this in only one lung.
Hello, Carol
Will taurine be an option for you? It's an amino acid. Most CF start this when around age 5. Please check this out with you health providers.
Hi Carol....but I think I'm kinda late. 😩
Hi
Hello Carol
Hello carol