I love how Matthew doesn’t misdirect or downplay. “I can’t ride a bike” “that’s the epitome of freedom, that sucks”. I always struggle because I try to offer solutions so I appreciate you showing the effects of just listening and understanding.
Good for you, Paul, for being able to talk about your very real frustrations and feelings about your blindness. As a sighted person, I can't begin to know what you must go through each day, but I appreciate these videos that are windows of awareness. It's heartwarming to see what a strong support you have in Matthew and Mr. Maple. The honesty you and Matthew share about loving each other for better or for worse, and how you work through obstacles together is what marriage should be about.
Paul & Matthew!! I absolutely just love you two and Paul, as a person in the running community, I have to say we do in fact have blind runners who run anything from a 5K to marathons, with a guide of course but they are killing it out there!
Paul you give me strength you are an inspiration! MATHEW you are such a rare soul Paul Mathew you are a beautiful and give me hope that relationships can be good !!! 💯✨🙏✨
I’m not blind, but I do have chronic fatigue, chronic pain, and a few other limitations. I completely resonate with the almost mourning of the independence you used to have. It’s a hard adjustment of going from these independent activities where you could go and do whatever you wanted to not being able to do them any more
I can't imagine what it's like. I do know that when I'm down it helps to listen to music. Distract yourself and tell us about your favorite music and why you love it.
Can you do keratoplasty or a corneal graft with your condition? Or can that affect the new corneas? Or have you ever thought about that? Because watching y’all you can sense a part of you missing, you know it’s hard just like people in wheelchairs they have that part of them missing which is that freedom to do whatever they want. Just curious
One thing I want to point out that I absolutely ADORE, is the fact that Matthew doesn't make Paul feel guilty for wanting to be by himself/independent. I've had partners that would say "Why dont you want me around?" When I occasionally want to go out and do things by myself. Having a partner that understands when you need to have some space or do things on your own is such an important thing.
same my father is this way getting real old sick and going blind. he knows he needs help and accepts but most of the time when something comes up we try our best to let him do it himself, still feel like you have freedom etc but have hel if you really need it
I wholly agree. And equally as important is the partner who understands when you need that security too. A loving relationship doesn’t have resentment. I love how you can feel how open they are with each other… honestly, teaching a whole lotta people who to be better at being in a relationship. I’m sure things aren’t perfect… no relationship is.. but the love and support is palpable.
yes I had partners like that all the time.. meanwhile I always respected their personal space hoping they would do the same for me! sadly they were all cheaters. . .
Never underestimate the power of agreeing with someone going through a rough time that their situation really does suck and you understand the reasons why they’re in pain. Sometimes that’s what we need. To be heard and understood without being comforted when there is no comfort that can make it feel better.
My partner would always feel so useless hearing my pain and only being able to say that they're sorry. My therapist told me to say "I dont need you to fix it, I just need you to listen"
It's so true. Community doesn't heal pain but it allows you to share the load. It's so helpful to have someone say that they see you and are ready to get through the sucky times along with you.
Thought the exact same thing. “Hey, I would never leave your side, Daddy!!❤❤❤” ❤ I love this so much how Mr. Maple is so sensitive and lightens his mood right away.
Matthew, you do such a wonderful job holding space and listening to Paul. While also making him smile when things are hard. It is a blessing in life to have a partner that can allow feelings to be recognized and be heard❤
@@LordRavensong allowing someone to share their feelings without putting your own thoughts or experience on. Allowing their feelings to be witnessed and experienced fully in a loving space.
As someone who is not blind, but otherwise disabled, I am feeling this so much right now. Thank you for showing both highs and lows of life with such honesty.
Totally agree with you. They are a proof of that true love can overarch everything. Fortunately, he's not alone and this family of three looks strong enough to overcome all.
Matthew, you do such a wonderful job of validating Paul, letting him be heard without having to "fix" him. You two have such a truly beautiful relationship.
I love how mathew listens to him and can cheer him up with a joke without dismissing his feelings, it shows they truly know eachother and their boundaries. you two are so heartwarming to watch, and the fact you show your vulnerable moments and teach people two. you two are amazing, best wishes for what the future will bring you ❤
I think truly this is the experience of having a physical disability. I'm 26 and cant walk without a cane or walker, and I'm always the slowest person in a group of friends when we're trying to just simply walk even 15 feet because of it. I frequently catch myself resenting my mobility devices and hiding my wheelchair in a closet because the feeling of being *tethered* (great expression Paul) is so bad. I hate not being able to do things I see everyone else do easily, I hate only being able to do things halfway and while dragging a whole extra Thing along every time I go anywhere. I hate taking twice as long. People also dont talk enough about how Frustrating it is to always have at least one hand occupied by a mobility device. So many things in this world even in accessible places are built for you to use two hands to do them, so it's giving up my mobility or giving in and walling half the world off from myself. Sorry to coopt your expression, this is just a really hard thing that no one really understands until their physically disabled and most of my close circle isnt.
I know what you mean. As my osteoarthritis gets more and more established, I'm finding there are now so many places I can't go now. If I can't drive or be driven somewhere and then use my mobility scooter, I'm prevented from getting there. I can't visit certain parks anymore, and I used to love exploring old homes and stuff. I can't even go down stairs if there's no handrail for me to hold onto - even with my walking stick. The only plus about this is that I can do a shopping centre or theme park (hello Disney) and be the only one in my party who doesn't have aching feet by the end (scooters rock!) But I took early retirement about 18 months ago, with all the financial cuts that go with that, because the daily commute of car, train, second train, walk and then in reverse at the end of the day was literally using up all my physical strength before I did anything else.
I became physically disabled at 21 after a lifetime of decline due to a genetic illness and co-occurring conditions. I felt every word of this, I use a forearm crutch and get pushed in a hospital wc right now. I’m working on getting a wheelchair I can use independently and I’ll be so excited when I can afford it but it’s also so painful to know I experience life in a way most of my peers will never understand. Even my best friend who has the same illness sometimes will be like “let’s go do this thing” and I have to remind her that I can’t and it hurts. Some days I feel like hell yeah let the world see me as I am, a disabled young woman and I embrace my limitations. And some days I just want to hide knowing the public doesn’t just perceive me, they see my disability first and foremost.
As someone with legal blindness I completally understand being simeltaniously so grateful for the people who help you and so frustrated that you can't do more on your own.
Yeah I definitely would like to know too, a time when he felt free, he didn’t get to finish because his bf made a joke a didn’t let him finish his sentence
@@nadinethomas6938 I'm not sure if this is the answer he was going to give but they once posted a video where they went to the beach and there was no one else just the 3 of them and nothing Paul could stumble over and it was the first time in so long that he could not only walk but run around without being scared to fall and they all looked so happy it was a very touching moment, that might be what he was thinking about 🥹 I don't know the timeline though it could've happened after they made this video 😅
I’m sorry Paul- it is a challenge to realize limitations like that. Your spirit and heart is so much bigger and more infinite than those limitations, but I know sometimes the day to day realities weigh on you. I am not blind but I have some physical and intellectual limitations of my own and I take care of my mother, who is wheelchair bound with progressive MS. I just want you to know that your soul fairly shines from you- that the physical doesn’t take away from or even contain you. You are a whole person and you are glorious
It's really tough to live like that. But that means Paul is brave enough to handle this. And that is important. I love you guys so much. Hope Paul will have only easy and good days. I'm just so happy that he has Maple and Mattew❤ I'm really proud of Paul
It's natural to feel frustrated or sad sometimes. One of the conversations Paul had with Molly last week seemed to cover this really well. When Molly mentioned knowing that you're likely to outlive your parents. As she said, you can prepare, but are never really prepared, and every so often a bubble of sadness will grow. Don't feel bad or guilty when that happens. Let it. Take some time to be sad, or angry, or frustrated. Just don't let it consume everything. Matthew, the way you listen, acknowledge, and offer a release of joy is great. And the way that you both are courageous enough to allow this vulnerable side to be seen is one of the best demonstrations of strength I've seen from you both. Sending love, thanks, and a treadmill/static exercise bike with giant wind machine your way. ❤✊❤️
What a beautiful moment. Matthew’s attention to detail with the cream, Band-aide pressure, whisking the hair back, listening and questioning, comedic one liners…..all while holding space for Paul with love, acknowledgment, and sincerity. This is seriously beautiful and much love to Maple. Lol. 💖🙏🧚🏻
As someone who has used a wheelchair full time for over a decade, I understand. I'm so sorry for everyone living in this world that wasn't made for us. *hugs*
I said this before, I think, but thank you for sharing the difficult things. Its so personal its not easy to share. It gives us a more full picture of what your life is like. The are good and great days, and there are sad and frustrating days.
If you only showed the good /fun times you would make anyone with a disability feel like a wuss on those bad/very painful days. Instead you show not only does it get to you sometimes, but that Matthew is there to support and validate those feelings as well. Here's wishing that everyone has a Matthew in their lives, be they family, friend or SO.
I feel the same. I lost a leg and ended up in a wheelchair. I want to run out the door and do what I used to do, but I'm dependent on people and devices to help me adapt to a world that used to work for me. I hope the rest of your week is less of a downer. Hang in there! 💙
What about sky diving or hang gliding. Would that be something you would consider doing? Cane and Maple not allowed. 🤔🥰 Matthew optional....lol. I would love a video of you doing something like that. Soo free
It's easy to forget that Paul is actually burdened pretty badly. He always seems so positive and happy❤ Fotunately, he has one hell of a backup with Matthew and Maple❤❤❤
I wish I had this kind of relationship. It's beautiful, loving, kind, considerate. Just absolutely amazing! I'm so happy to watch people that are happy. That is a rarity these days, particularly on social media
Matthew deserves an award made of platinum for being a very very good listener . I'm amazed by his calmness and yes paul and matthew and maple deserve eachother ❤
I have just recently been diagnosed with Ehlers-Danlos and will have to use a wheelchair soon. Seeing videos like this helps me stay positive. And Mathew, I just want to say the way you speak to Paul while he expressed his frustration is amazing. Thank you both for your story.
I’ll tell you that as much as I love Paul sense of humor and his positive outlook on life and his upbeat, personality and his upbeat, positive attitude… It makes me stop and appreciate the fact that I can see
I'm at 5 years as a wheelchair user and I feel this on 100 levels. I'm also blind in my left and have severe chronic pain. Constant and never ending. I miss independence and play and spontaneity and...
Theyre both cute and sweet to each other. Ive found in life nothing is forever and theres always hope. New technologies such as brain implants & sensors comnecting to small external cameras are restoring sight for people. Ya never know!!❤
This, right here, is their whole relationship. Matthew listening while caring for Paul, and understanding his heart and frustration... this is who they are. The pranks are an extension of this moment but the love and thoughtfulness are akways evident.
What an amazing gift Paul gives to Matthew every day. Complete and utter trust and love is not something most of us will ever receive in our lifetime.❤
Im a single mom to my 20yr old. He is blind, hearing impaired and non-verbal. I never thought of his side of our relationship. We are rarely apart and I love all of our time together. His laughter and kisses tell me he feels the same. We all thrive when there is someone to care for us. ❤I look forward to reading your book to him!
Thank you for sharing real feelings that sometimes come up and are a million percent valid. I'm sure it helps when open-hearted Matthew and Maple listen.
I literally can't imagine this... it sounds so heartbreaking. 8 years of not being able to do something like going for a walk by myself. It seems like such a mundane thing, but its definitely something that us sighted people take for granted. My God, I can’t imagine how horrible it must've felt when your vision just slipped away from you over time.
Are you fixing his face? Did he run into something?😢 That's a freaking bad week indeed... Hope you are feeling better now. From the injury and the freedom part
It may sound strange... but maybe if you go to an open short grass field, like a soccer field and just run. Run until your heart's content. No cane, no maple haha just you. Xx
I’m losing sight in my right eye because of a firecracker spark landed in my eye. I can’t even imagine what it’s like losing sight in both eyes much less the emotional roller coaster! Thank you for sharing your story and your books. Your husband and pup are such sweet angels. ❤
Paul, as a person who gained Macular Degeneration during covid (Im asthmatic and was working as a Nursing home Housekeeper. We werent allowed to just use surgical masks and the increased blood pressure popped vessels in the back of my eye and it's permanently scarred now), it was rough to come to terms with the fact that I would never drive again. I live in a rural enough area that I am just stuck at home until someone can drive me.
matthew is such a great listener. no interrupting, responding in a way that's non-judgmental but not overly sympathetic, and knows exactly when to make you laugh 😂🥹 you two are relationship #Goals #gayrights #lovewon
😢I really feel for you paul..I know its not on your own but maybe a tandem would be a good runner up!! You were amazing when you climbed up the climbing wall..You are an amazing person❤❤❤
I know how you feel, Paul. I was born half paralysed, I’m used to adapting items and activities for one hand use, and I am very grateful about my life, but I sometimes have moments when I want to be able to use both sides of my body. 😊
Okay I know that it doesn't fix the tether thing but what if you got one of those bubble bumper balls that they use for sumo soccer? It would keep you from getting hurt bumping into things, provide a space bubble around you from others, and you can go for a jog in it. Might be fun. If it doesn't work, try some other thinking out of the box ideas like this, as you know your disability better than anyone and would be better suited to find a way to bring accessibility back to your life so you can jog, or bike, or whatever you'd like, again.
I can't imagine not having my sight, I don't have a sense of smell which I know is weird but I sooo wish I was able to smell what Christmas smells like or a juicy burger or anything.
![Tee Grizzley - Blow for Blow (feat. J. Cole) [Official Video]](http://i.ytimg.com/vi/wNLN5xsx5dc/mqdefault.jpg)
It's hard to be grateful and resentful of the same thing at the same time. It tears you down a bit. Luckily you don't always feel like this. 💜
This segment made me tear up.
That is well put.
😢
I'm so glad that you do have Matthew and Maple and maybe just maybe, Mathew can help with you take that jog or try something!!?? 😉 😊❤🙏
Yeah it is hard sometimes luckily I have a very supportive family but I've had hard days too like getting lost and falling down stairs
I love how Matthew doesn’t misdirect or downplay. “I can’t ride a bike” “that’s the epitome of freedom, that sucks”. I always struggle because I try to offer solutions so I appreciate you showing the effects of just listening and understanding.
I'm grateful that you two share these moments with us. It's so important to see this. Thank you for sharing your journey with both ups and down
Good for you, Paul, for being able to talk about your very real frustrations and feelings about your blindness. As a sighted person, I can't begin to know what you must go through each day, but I appreciate these videos that are windows of awareness. It's heartwarming to see what a strong support you have in Matthew and Mr. Maple. The honesty you and Matthew share about loving each other for better or for worse, and how you work through obstacles together is what marriage should be about.
Paul & Matthew!! I absolutely just love you two and Paul, as a person in the running community, I have to say we do in fact have blind runners who run anything from a 5K to marathons, with a guide of course but they are killing it out there!
You could find a really big, clear, empty field, a run through it without help. When I do that it makes me feel so free and unjudged.
Paul you give me strength you are an inspiration! MATHEW you are such a rare soul Paul Mathew you are a beautiful and give me hope that relationships can be good !!! 💯✨🙏✨
Wow, thank you
I'm so sorry I pray that what ever you are going through you feel better..
I’m not blind, but I do have chronic fatigue, chronic pain, and a few other limitations. I completely resonate with the almost mourning of the independence you used to have. It’s a hard adjustment of going from these independent activities where you could go and do whatever you wanted to not being able to do them any more
I wish to know what made Paul feel so free. You guys are so lovely
Now I need to know what made Paul really feel free! 😭 but this is beautiful and Maple is such a sweetheart 🥰
A shout out to Matthew for being so patient and understanding towards Paul❤❤❤
I can't imagine what it's like. I do know that when I'm down it helps to listen to music. Distract yourself and tell us about your favorite music and why you love it.
You guys are so healthy and lovely. What a fantastic match ❤
Mr. Maples makes me laugh! He goes to the pranking partner and wags his tail at the pranker while you are getting pranked. It's too funny!
This hits a bit close to home. I've got the same condition and Also miss riding a bike...
Beautiful together ❤️❤️❤️❤️🥰
Thank you! 🤗
@MatthewandPaulOfficial 🥰❤️😃
Maybe go to an open space and run? Field or something safe. ❤
It's so awful feeling like you HAVE to rely on others to be able to do things.
Love you guys!!!!🙏🙂😀❤️🌈
Can you do keratoplasty or a corneal graft with your condition? Or can that affect the new corneas? Or have you ever thought about that? Because watching y’all you can sense a part of you missing, you know it’s hard just like people in wheelchairs they have that part of them missing which is that freedom to do whatever they want. Just curious
You guys should buy a tandem bike so Paul can enjoy riding again.
But what was the one time that you felt free??? Talk about a cliff hanger 😂😂😂
I know what he mean. My wife have inly one hand and she says "sometimes i wish i had 10 fingers" its a normal feel about a desease i think
One thing I want to point out that I absolutely ADORE, is the fact that Matthew doesn't make Paul feel guilty for wanting to be by himself/independent. I've had partners that would say "Why dont you want me around?" When I occasionally want to go out and do things by myself. Having a partner that understands when you need to have some space or do things on your own is such an important thing.
same my father is this way getting real old sick and going blind. he knows he needs help and accepts but most of the time when something comes up we try our best to let him do it himself, still feel like you have freedom etc but have hel if you really need it
I don’t get people that don’t understand their partners wanting alone time. Everyone needs time to themselves once in a while.
I wholly agree. And equally as important is the partner who understands when you need that security too. A loving relationship doesn’t have resentment. I love how you can feel how open they are with each other… honestly, teaching a whole lotta people who to be better at being in a relationship. I’m sure things aren’t perfect… no relationship is.. but the love and support is palpable.
yes I had partners like that all the time.. meanwhile I always respected their personal space hoping they would do the same for me!
sadly they were all cheaters. . .
Not just partners, but parents of disabled children. I know from experience.
Maple had to set the Maple slander straight 😅❤
When daddy talks smack about you...
❤
Maple: I would NEVER-
Mr Maple "Good sirs, I would NEVER"
Maple: I no run away I'm right here 🥺
다정한 대답을 거들어주며 폴의 말을 다 들어주고서, 기분을 풀어줄 수 있는 메이플을 소환한 매튜... 그 와중에 상처난 곳까지 꼼꼼히 케어해줬어... 정말 정말 아름다운 부부
Truly an example of love ❤
Never underestimate the power of agreeing with someone going through a rough time that their situation really does suck and you understand the reasons why they’re in pain. Sometimes that’s what we need. To be heard and understood without being comforted when there is no comfort that can make it feel better.
My partner would always feel so useless hearing my pain and only being able to say that they're sorry. My therapist told me to say "I dont need you to fix it, I just need you to listen"
It's so true. Community doesn't heal pain but it allows you to share the load. It's so helpful to have someone say that they see you and are ready to get through the sucky times along with you.
I tell my parents this all the time. “I don’t need solutions, just agree with me that it sucks and I’m allowed to be angry.”
Beautifully put 😊
Sometimes the best "comfort" is just the acknowledgement of the presence of pain.
Matthew is so validating! All partners should take his masterclass in being a supportive spouse!
Matthew, I know its not the time, but a bicycle built for two sounds like a great gift ❤ for him.
Ooh! That's a nice idea ❤
a tandem bike? also that reminded me of the song that goes daisy daisy give me your answer do
I was thinking the same 💖 it would be wonderful! ☺️
OMG YES!!!!❤
Fantastic idea
I just fell in love with you two all over again by watching him tend to you...😊
😊 thank you
Maple comes in with a “I’d never run away!” What a sweetie.
Gotta set the record straight!
Thought the exact same thing. “Hey, I would never leave your side, Daddy!!❤❤❤”
❤ I love this so much how Mr. Maple is so sensitive and lightens his mood right away.
He's so sweet, but the sadness is real. Thank you for being there for him.
Matthew, you do such a wonderful job holding space and listening to Paul. While also making him smile when things are hard. It is a blessing in life to have a partner that can allow feelings to be recognized and be heard❤
What is "holding space"?
@@LordRavensong allowing someone to share their feelings without putting your own thoughts or experience on. Allowing their feelings to be witnessed and experienced fully in a loving space.
With a section for them for Mr Maple in a trailer would be cool
Kudos to Paul too, it's hard to be vulnerable or to be upset and still laugh. They are both so open and loving. They are beautiful
@@Hime.Gusano agreed. It shows the deep love and trust they share💖
As someone who is not blind, but otherwise disabled, I am feeling this so much right now. Thank you for showing both highs and lows of life with such honesty.
I'm applying for disability right now and the depression has been showing up. ❤
Paul always seems so happy and enthusiastic. It is easy to forget that he has a life that is so challenging. Matthew, I am glad that he has you!
Totally agree with you. They are a proof of that true love can overarch everything. Fortunately, he's not alone and this family of three looks strong enough to overcome all.
Matthew, you do such a wonderful job of validating Paul, letting him be heard without having to "fix" him. You two have such a truly beautiful relationship.
I absolutely agree
I thought the same. This is a good example of how to just listen without giving advice.
My thought reading this is what is there to fix, Paul is awesome at being himself no matter what happens and I thought that is the best version
Well, “fix” being the operative word here. He is patching something up on his forehead. 😝
I love how mathew listens to him and can cheer him up with a joke without dismissing his feelings, it shows they truly know eachother and their boundaries. you two are so heartwarming to watch, and the fact you show your vulnerable moments and teach people two. you two are amazing, best wishes for what the future will bring you ❤
I think truly this is the experience of having a physical disability. I'm 26 and cant walk without a cane or walker, and I'm always the slowest person in a group of friends when we're trying to just simply walk even 15 feet because of it. I frequently catch myself resenting my mobility devices and hiding my wheelchair in a closet because the feeling of being *tethered* (great expression Paul) is so bad. I hate not being able to do things I see everyone else do easily, I hate only being able to do things halfway and while dragging a whole extra Thing along every time I go anywhere. I hate taking twice as long. People also dont talk enough about how Frustrating it is to always have at least one hand occupied by a mobility device. So many things in this world even in accessible places are built for you to use two hands to do them, so it's giving up my mobility or giving in and walling half the world off from myself.
Sorry to coopt your expression, this is just a really hard thing that no one really understands until their physically disabled and most of my close circle isnt.
Thank you for sharing
I understand this very well. I'm not ashamed but I am frustrated always being tethered.
I know what you mean. As my osteoarthritis gets more and more established, I'm finding there are now so many places I can't go now. If I can't drive or be driven somewhere and then use my mobility scooter, I'm prevented from getting there. I can't visit certain parks anymore, and I used to love exploring old homes and stuff. I can't even go down stairs if there's no handrail for me to hold onto - even with my walking stick. The only plus about this is that I can do a shopping centre or theme park (hello Disney) and be the only one in my party who doesn't have aching feet by the end (scooters rock!) But I took early retirement about 18 months ago, with all the financial cuts that go with that, because the daily commute of car, train, second train, walk and then in reverse at the end of the day was literally using up all my physical strength before I did anything else.
I became physically disabled at 21 after a lifetime of decline due to a genetic illness and co-occurring conditions. I felt every word of this, I use a forearm crutch and get pushed in a hospital wc right now. I’m working on getting a wheelchair I can use independently and I’ll be so excited when I can afford it but it’s also so painful to know I experience life in a way most of my peers will never understand. Even my best friend who has the same illness sometimes will be like “let’s go do this thing” and I have to remind her that I can’t and it hurts. Some days I feel like hell yeah let the world see me as I am, a disabled young woman and I embrace my limitations. And some days I just want to hide knowing the public doesn’t just perceive me, they see my disability first and foremost.
This is why i get so frustrated at areas that are hostile towards disabled people. I dont know how we lost our humanity.
As someone with legal blindness I completally understand being simeltaniously so grateful for the people who help you and so frustrated that you can't do more on your own.
My heart goes out to you, Paul. You seem like a lovely couple.
I’d love to hear what that “one time” was!
Yeah I definitely would like to know too, a time when he felt free, he didn’t get to finish because his bf made a joke a didn’t let him finish his sentence
@@nadinethomas6938 I'm not sure if this is the answer he was going to give but they once posted a video where they went to the beach and there was no one else just the 3 of them and nothing Paul could stumble over and it was the first time in so long that he could not only walk but run around without being scared to fall and they all looked so happy it was a very touching moment, that might be what he was thinking about 🥹
I don't know the timeline though it could've happened after they made this video 😅
Me too! What a cliffhanger 😂💕
I also want to know! ❤
God that’s such good active listening to someone
It's so beautiful to see two people who love each other like you, it restores faith. Mr. Maple you should protest against Matthew's suspicions!
I love that Matthew always seems to know how to cheer Paul up. Every time. ❤
I’m sorry Paul- it is a challenge to realize limitations like that. Your spirit and heart is so much bigger and more infinite than those limitations, but I know sometimes the day to day realities weigh on you. I am not blind but I have some physical and intellectual limitations of my own and I take care of my mother, who is wheelchair bound with progressive MS. I just want you to know that your soul fairly shines from you- that the physical doesn’t take away from or even contain you. You are a whole person and you are glorious
It's really tough to live like that. But that means Paul is brave enough to handle this. And that is important. I love you guys so much. Hope Paul will have only easy and good days. I'm just so happy that he has Maple and Mattew❤ I'm really proud of Paul
A partner who can help you laugh on the hard days is a beautiful gift ❤
It's natural to feel frustrated or sad sometimes. One of the conversations Paul had with Molly last week seemed to cover this really well. When Molly mentioned knowing that you're likely to outlive your parents.
As she said, you can prepare, but are never really prepared, and every so often a bubble of sadness will grow. Don't feel bad or guilty when that happens. Let it. Take some time to be sad, or angry, or frustrated. Just don't let it consume everything.
Matthew, the way you listen, acknowledge, and offer a release of joy is great. And the way that you both are courageous enough to allow this vulnerable side to be seen is one of the best demonstrations of strength I've seen from you both.
Sending love, thanks, and a treadmill/static exercise bike with giant wind machine your way. ❤✊❤️
Beautiful comment! ❤️
I love the giant wind machine idea! A Beyonce-style wind machine! I can see a fabulous Mr. Maple photoshoot now...
I love how Mathew is always there to comfort paul and makes him feel betters with his jokes ❤💯. Much love 💕 💕💕
What a beautiful moment. Matthew’s attention to detail with the cream, Band-aide pressure, whisking the hair back, listening and questioning, comedic one liners…..all while holding space for Paul with love, acknowledgment, and sincerity. This is seriously beautiful and much love to Maple. Lol. 💖🙏🧚🏻
As someone who has used a wheelchair full time for over a decade, I understand. I'm so sorry for everyone living in this world that wasn't made for us. *hugs*
As a wheelchair user I related to this feeling.
I was in a wheelchair for three years. I know how cruel it can be.
It's so important for people to know that everything isn't perfect all the time and these are very valid feelings for someone with your condition. ❤❤❤
I said this before, I think, but thank you for sharing the difficult things. Its so personal its not easy to share. It gives us a more full picture of what your life is like. The are good and great days, and there are sad and frustrating days.
You are so welcome!
If you only showed the good /fun times you would make anyone with a disability feel like a wuss on those bad/very painful days. Instead you show not only does it get to you sometimes, but that Matthew is there to support and validate those feelings as well. Here's wishing that everyone has a Matthew in their lives, be they family, friend or SO.
We love Paul. You are helping many others in your relatable way.
I feel the same. I lost a leg and ended up in a wheelchair. I want to run out the door and do what I used to do, but I'm dependent on people and devices to help me adapt to a world that used to work for me.
I hope the rest of your week is less of a downer. Hang in there! 💙
It’s great seeing Matthew and Mr. Maple helping Paul feel better. Such a great family💕💖🥰
What about sky diving or hang gliding. Would that be something you would consider doing? Cane and Maple not allowed. 🤔🥰 Matthew optional....lol. I would love a video of you doing something like that. Soo free
It's easy to forget that Paul is actually burdened pretty badly. He always seems so positive and happy❤ Fotunately, he has one hell of a backup with Matthew and Maple❤❤❤
I am crying MANLY TEARS! This is the most wholesome content I have seen in a while! ❤
We love you so much, good days bad days, all of you❤
This broke my heart 💓 but also uplifting hearing him sharing his gratitude. Thanks Matthew for holding space for him. 💜💜💜
I wish I had this kind of relationship. It's beautiful, loving, kind, considerate. Just absolutely amazing! I'm so happy to watch people that are happy. That is a rarity these days, particularly on social media
I NOTICED THIS IN YESTERDAY'S SHORT VIDEO THAT YOU UPLOADED!!!!! 😢😢 I hope Paul is fine now...
I love yall❤❤❤❤
Never lose hope, Paul. Youre great and so inspiring❤❤❤
They’re the cutest little family
Bless his heart. I couldn't imagine. 💜
Matthew deserves an award made of platinum for being a very very good listener . I'm amazed by his calmness and yes paul and matthew and maple deserve eachother ❤
The conversational reflection that Matthew is doing in this clip is awesome! Just so supportive either judging or giving advice.
I have just recently been diagnosed with Ehlers-Danlos and will have to use a wheelchair soon. Seeing videos like this helps me stay positive. And Mathew, I just want to say the way you speak to Paul while he expressed his frustration is amazing. Thank you both for your story.
Same boat here ❤
Just a wholesome relationship ❤
I’ll tell you that as much as I love Paul sense of humor and his positive outlook on life and his upbeat, personality and his upbeat, positive attitude… It makes me stop and appreciate the fact that I can see
I'm at 5 years as a wheelchair user and I feel this on 100 levels. I'm also blind in my left and have severe chronic pain. Constant and never ending. I miss independence and play and spontaneity and...
Matthew, thank you. Paul, thank you. You are both angels on this earth. I love you guys...and Maple too!
Huuuuugs! I hear you. I’m glad you have Matthew, Maple, and your cane. Bummed that you can’t just go for a jog when you want.
Theyre both cute and sweet to each other. Ive found in life nothing is forever and theres always hope. New technologies such as brain implants & sensors comnecting to small external cameras are restoring sight for people. Ya never know!!❤
So understandable. This has to be hard. I admire you for handling the blindness so well. ❤
This, right here, is their whole relationship. Matthew listening while caring for Paul, and understanding his heart and frustration... this is who they are. The pranks are an extension of this moment but the love and thoughtfulness are akways evident.
What an amazing gift Paul gives to Matthew every day.
Complete and utter trust and love is not something most of us will ever receive in our lifetime.❤
Can you run in a giant room with nothing in it or would that just give you anxiety?
Aww, Paul. My heart. 💔 I'm so happy you have Matthew.
Im a single mom to my 20yr old. He is blind, hearing impaired and non-verbal. I never thought of his side of our relationship. We are rarely apart and I love all of our time together. His laughter and kisses tell me he feels the same. We all thrive when there is someone to care for us. ❤I look forward to reading your book to him!
M A T H E W❤😂Stop Teethering Our Paul😂😂😂❤Hobart Tasmania Australia 🇦🇺 ♥️ ❤️ 💖 ❤😂😂😂❤😂
Thank you for sharing real feelings that sometimes come up and are a million percent valid. I'm sure it helps when open-hearted Matthew and Maple listen.
You are so welcome!
He is such a good and patient listener! ❤
Matthew, you are the one in a zillion ❤
GET A TANDEM BIKE!
WE MUST MAKE THIS MAN RIDE AGAIN!
And put one of those child trailers on it, so Mr. Maple can ride, too~❤
I literally can't imagine this... it sounds so heartbreaking. 8 years of not being able to do something like going for a walk by myself. It seems like such a mundane thing, but its definitely something that us sighted people take for granted. My God, I can’t imagine how horrible it must've felt when your vision just slipped away from you over time.
Are you fixing his face? Did he run into something?😢 That's a freaking bad week indeed... Hope you are feeling better now. From the injury and the freedom part
It may sound strange... but maybe if you go to an open short grass field, like a soccer field and just run. Run until your heart's content. No cane, no maple haha just you. Xx
I’m losing sight in my right eye because of a firecracker spark landed in my eye. I can’t even imagine what it’s like losing sight in both eyes much less the emotional roller coaster! Thank you for sharing your story and your books.
Your husband and pup are such sweet angels. ❤
Thank you for showing this raw emotional side. Makes me respect both of your strengths even more.
Paul, as a person who gained Macular Degeneration during covid (Im asthmatic and was working as a Nursing home Housekeeper. We werent allowed to just use surgical masks and the increased blood pressure popped vessels in the back of my eye and it's permanently scarred now), it was rough to come to terms with the fact that I would never drive again. I live in a rural enough area that I am just stuck at home until someone can drive me.
matthew is such a great listener. no interrupting, responding in a way that's non-judgmental but not overly sympathetic, and knows exactly when to make you laugh 😂🥹 you two are relationship #Goals #gayrights #lovewon
😢I really feel for you paul..I know its not on your own but maybe a tandem would be a good runner up!! You were amazing when you climbed up the climbing wall..You are an amazing person❤❤❤
I'm guessing it's not always easy, but having each other, and Mr. Maple, helps make tough days a little better. You are all amazing!
I know how you feel, Paul. I was born half paralysed, I’m used to adapting items and activities for one hand use, and I am very grateful about my life, but I sometimes have moments when I want to be able to use both sides of my body. 😊
Okay I know that it doesn't fix the tether thing but what if you got one of those bubble bumper balls that they use for sumo soccer? It would keep you from getting hurt bumping into things, provide a space bubble around you from others, and you can go for a jog in it. Might be fun. If it doesn't work, try some other thinking out of the box ideas like this, as you know your disability better than anyone and would be better suited to find a way to bring accessibility back to your life so you can jog, or bike, or whatever you'd like, again.
Paul, if you don't have access to one already, how about running on a treadmill? Best! 💜🏳️🌈
I can't imagine not having my sight, I don't have a sense of smell which I know is weird but I sooo wish I was able to smell what Christmas smells like or a juicy burger or anything.