Iam a caretaker for a wonderful and strong woman who has fa. She was diagnosed at the age of 12 years old and is now 36. Thank you for taking the time to share your story. I shall share my best friends story before she loses her voice. She inspires me, has taught me so much, iam still out of words as to how I can describe our journey together. I love her to bits and pieces!
you are my new hero. thank you for all that you have done for the FA community. thank you for inspiring me, giviing me hope, and purpose. I can do something about this crummy disease that took down my siblings- I don't feel so helpless anymore. cheers, and keep moving!
My girlfriend has FA. I love the positivity! Such a terrible disease. A cure can't come soon enough. I don't want to see another person go through what she has.
Awesome!!! Inspiring!!! My niece has FA and our family is devastated! Thanks for giving us hope! Thank you for all that you have done for the FA community. God Bless you!
Thanks for the inspiration Kyle. It does start with the first mile. We need need inspiration every day. I am a fellow ataxian but have a different type. (SCA2) When I stepped on the beach in San Diego 2 1/2 years ago I have walked over 6000 miles since I ditched my cane that day. I struggle every day but keep walking so I don't roll. Eventually I will have to but I choose the joy of life every day.
upmost respect mate. my mum had F.A, and was wheelchair bound in her early 20s she`s sadly no longer with us. she unfortunately never shared the same spirit i see in you in this video. doctors were i live were clueless, she basically was given ibuprofen and later on a muscle relaxant pill to combat muscle spasms for her final 4 years. more research is needed!.. but mate your an absolute credit to the human species and i wish you all the luck in the world and mostly your health. peace bro...
Awesome to hear your talk. I got to see you off when you left Oceanside on that RAM race that year. Also got to meet you today on the trail in Huntington Beach during your fundraising ride. Keep doing what you are doing... so awesome.
I have FA, but right now I can still walk. It kind of is a bummer to think of what my future has in store for me, but for now I’m hoping I won’t lose the ability to drive. I won’t mind when I can’t walk, but my passion for driving and racing keeps me going forward. If I lose that, I’m really going to try to find something else before I lose hope. I know I’m kinda only talking about myself here but I just needed somewhere to vent about it a little
Thank YOU! TEDxPhoenixville was an amazing experience.
-Kyle
Iam a caretaker for a wonderful and strong woman who has fa. She was diagnosed at the age of 12 years old and is now 36. Thank you for taking the time to share your story. I shall share my best friends story before she loses her voice. She inspires me, has taught me so much, iam still out of words as to how I can describe our journey together. I love her to bits and pieces!
The world needs more of this guy
Thank you, Kyle, for such an inspiring talk. You continue to amaze me with your hard work and humility. Your positive attitude is contagious.
you are my new hero. thank you for all that you have done for the FA community. thank you for inspiring me, giviing me hope, and purpose. I can do something about this crummy disease that took down my siblings- I don't feel so helpless anymore. cheers, and keep moving!
My girlfriend has FA. I love the positivity! Such a terrible disease. A cure can't come soon enough. I don't want to see another person go through what she has.
Awesome!!! Inspiring!!! My niece has FA and our family is devastated! Thanks for giving us hope! Thank you for all that you have done for the FA community. God Bless you!
I'm 59 with FA. Love to hear you talk.Kyle..Positive.minds works.
Thanks for the inspiration Kyle. It does start with the first mile. We need need inspiration every day. I am a fellow ataxian but have a different type. (SCA2) When I stepped on the beach in San Diego 2 1/2 years ago I have walked over 6000 miles since I ditched my cane that day. I struggle every day but keep walking so I don't roll. Eventually I will have to but I choose the joy of life every day.
upmost respect mate. my mum had F.A, and was wheelchair bound in her early 20s she`s sadly no longer with us. she unfortunately never shared the same spirit i see in you in this video. doctors were i live were clueless, she basically was given ibuprofen and later on a muscle relaxant pill to combat muscle spasms for her final 4 years. more research is needed!.. but mate your an absolute credit to the human species and i wish you all the luck in the world and mostly your health. peace bro...
Awesome to hear your talk. I got to see you off when you left Oceanside on that RAM race that year. Also got to meet you today on the trail in Huntington Beach during your fundraising ride. Keep doing what you are doing... so awesome.
Kyle, it was an honor to have you at TEDxPhoenixville! Good luck with the ride in Orlando!
Always Incredible!
See you tomorrow in Clermont
Paulo
I have FA, but right now I can still walk. It kind of is a bummer to think of what my future has in store for me, but for now I’m hoping I won’t lose the ability to drive. I won’t mind when I can’t walk, but my passion for driving and racing keeps me going forward. If I lose that, I’m really going to try to find something else before I lose hope. I know I’m kinda only talking about myself here but I just needed somewhere to vent about it a little
Awesome as always Kyle! Love you and miss you!!!
Great job, Kyle!
A american hero! Your book "Shifting in to high gear" is underrated. It should be a bestseller!
Awesome, brother.
What a cruel blow and inspiring man
This is good, way better than PB&J. Just keep spinning buddy.
WoW!!!
Se podría encontrar este video traducido al español? Gracias
Two "dislikes" show they dont know anything about Ataxia
similar to my ms,,