I'm 18 & Only 4ft 1" - But Dwarfism Doesn't Define Me | BORN DIFFERENT
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- Опубликовано: 19 апр 2024
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LAST TIME "one in a million" Levi featured on Born Different, he was 11 years old. Now, having just turned 18, truly returned to catch up with Levi and his parents, Dona and Joseph. Born with an ultra-rare form of dwarfism called Jansen's metaphyseal chondrodysplasia (JMC), Levi's bones throughout his body are affected - as mom Dona describes it: "The bones grow what we call 'wonky'." As a result, in the years since we last saw Levi, he has had major surgeries to his spine and legs that were "painful and hard." One of the surgeries even involved breaking his femurs to fit metal rods and fuse his legs straight. Levi has faced many months of gruelling post-surgery rehabilitation and even had to learn to walk again "3 or 4 times." But Levi has overcome all these challenges and an upcoming drug trial offers renewed hope for his future and the future of other people living with JMC. While he waits, he is busy enjoying the outdoors - and, being a keen fisherman, a GoFundMe has been set up to help him achieve his dream of catching a fish in each of the 50 US states. Despite the "degenerative" nature of Levi's condition, his dad, Joseph, points to the fact that "he never complains, he just ploughs on through... And usually with a smile on his face." And you would not bet against Levi's defiant promise to "keep on pushing" - as Dona states: "He's a fighter. This condition probably picked the strongest kid to head up on."
Donate to Levi's GoFundMe: gofund.me/b9bed96a
Follow Levi:
/ littlelevi
/ golittlelevi
/ golittlelevi
/ littlelevi
Videographer: Rajah Samaroo
Producers: Tom Buckman, Kim Nguyen, Courtney Buabeng, Emika Berry
Editor: Alex Saunders
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If you enjoyed this film, you might like to watch the first film we made about Levi when he was 11: ruclips.net/video/fI4EktxFP8o/видео.html
I can’t believe there is so little research being done on this form of dwarfism. There just isn’t enough research money to go around. I was happy to see an update on this young man and observe his great attitude.
Maybe its hard to do research on this form because there is so few people having it..i dont know!
At this point there is only money to support wars, what a world 😢
Little guy with huge bravery
You go Levi!
This family is truly amazing. These are the kind of videos Im sure many of us miss seeing on this channel
Brave MAN ❤❤... Keep it up Brother!!!
BLESSINGS ❤ ❤👍❤❤
I don't know what caused me to be small but I found out that I have a rare genetic disorder called Williams syndrome in my early thirty's and I'm still alive at the age of56 and yes it definitely doesn't define us whatsoever and I'm so happy to see that you are doing well with it 😊
stay strong young man
God bless him & his family! He has a great joyful attitude. What a wonderful family facing adversity together!
Wow it's been a while since he appeared.He looks much better.I hope the best for his life.I hope he lives a happy healthy life
So great to see you again Levi! Good luck on your fishing expeditions 💪
You are wery Brave! Those kind of surgeries are horrible😕
Thank you being so strong
What an inspirational young man. I was born with Muscular Dystrophy and wasn't diagnosed till age 30.
When he say,”morning already.”that hit home!😢😊
What a beautiful & courageous young man with wonderful loving parents. I wish him a bright sparkling future and great happiness! He deserves the best!
Dona and Levi - you have grown into a terrific young man - just as you were a terrific young boy when I first met you both. As always my heart is with you. You are both one of a kind - undefinable for sure. Ann McGee
Levi is an absolute champion!
"We are all just people" 🖤 (side note, I loved seeing you play Uno as a family, that's one of my (mentally disabled) children's favourite games to play as a family)
What a courageous man blessed with supportive parents. I wish this family the most beautiful life. ❤
What wonderful people. Wow.
Amazing truly amazing 😊
Levi, you are amazing. I love your attitude; and I love your sense of adventure.
Hi Levi, I love your sense of humor and your brave spirit! So sorry you have to go through all this, and wish all of life's blessing for you and your family.. Greetings from Australia. ☀🌻🙏
he’s 18 and already got that old dad vibes 🤣 champ got that phone hooked on his side
It takes a powerful person to take on the world of medicine and fight for research. Love strong people, so much integrity ❤
Be strong 💪
Aww look at Levi, he's such a handsome young man, I'm so proud of him. He looks so much like his mom, its adorable
His dad looks like Tom Arnold 😂
And he likes to go fishin’ not fishing 😆
He is so amazing and brave and so proud of him and so special remarkable and strong strength and unbelievable person ❤❤😊😊
God bless you Levi!!!
I remember his first video bless 🙏😇🙏
Nice Video 💕❤️💕❤️❤️❤️❤️❤️
Bless him 💙💙💙💙✨✨✨✨
Levi is a big, brave guy dealing with a small body. If I were young, Levi's age, I would ask him to take me fishing. Very cool guy!
he is adorable and he can cook!!
He’s adorable!!
Maybe say something that doesn't sound d erogatory
I don't think it's bad it's better than being called ugly 😢
We all are God's children no matter it was right or wrong sick or well tall or short fat or thin God bless you❤
I wish everyone thought like this 😢
Go Catch Them Fish!!
God bless him and his family ❤ Wish you the best
Levi has the best attitude, he's welcome in Illinois. I'll show him where the fish are. 😊
❤❤❤❤❤
If you’re ever in California I’ve got the best fishing spots right lines brother
I have knock knees which makes my knees bend in idk if that’s bad
Nicole shavoniane Rainsford born Different
why doesn't blud have a pillow like what the sigma
levi ackerman
I'm all for helping Levi to see the more of the world but funding the whole family's vacays is asking for allot with what's going on right now in the world.
Levi you are AMAZING 😻 OMG i'm so ready to be friends with you in real lifeeeeee!!!
Levi, wake up to midnight Sonata, please 🙏 😅
Oompaloompa oopadeedo I got a bad feeling about you
👍
911 we got an emergency
Better show like this than promote lagibete
Can I ask what is lagibete?
Nicole brave little man womanizer this Nicole shavoniane Thomas Rainford thigpen 🎉
What
the
Doesn't define you... and here you are doing a video talking about it. Guess it defines you a little bit unless why care to do this?
Please post more Lesbians On please please 💕❤️❤️❤️❤️❤️❤️